My Degeneration: A Journey Through Parkinson’s 9780271085791

How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorag

207 69 22MB

English Pages 108 [107] Year 2015

Report DMCA / Copyright

DOWNLOAD PDF FILE

Recommend Papers

My Degeneration: A Journey Through Parkinson’s
 9780271085791

  • 0 0 0
  • Like this paper and download? You can publish your own PDF file online for free in a few minutes! Sign Up
File loading please wait...
Citation preview

My Degeneration

Dunlap_Shohl, My_InD_reprint.indd 1

2/2/16 11:59 AM

susan merrill squier and ian williams, general editors editorial collective MK Czerwiec (Northwestern University) Michael J. Green (Penn State University College of Medicine) Kimberly R. Myers (Penn State University College of Medicine) Scott T. Smith (Penn State University)

other titles in the series: MK Czerwiec, Ian Williams, Susan Merrill Squier, Michael J. Green, Kimberly R. Myers, and Scott T. Smith, Graphic Medicine Manifesto Ian Williams, The Bad Doctor: The Troubled Life and Times of Dr. Iwan James

Dunlap_Shohl, My_InD_reprint.indd 2

Books in the Graphic Medicine series are inspired by a growing awareness of the value of comics as an important resource for communicating about a range of issues broadly termed “medical.” For healthcare practitioners, patients, families, and caregivers dealing with illness and disability, graphic narrative enlightens complicated or difficult experience. For scholars in literary, cultural, and comics studies, the genre articulates a complex and powerful analysis of illness, medicine, and disability and a rethinking of the boundaries of “health.” The series includes original comics from artists and non-artists alike, such as self-reflective “graphic pathographies” or comics used in medical training and education, as well as monographic studies and edited collections from scholars, practitioners, and medical educators.

2/2/16 11:59 AM

A Journey Through

Parkinson’s

Peter Dunlap-Shohl The Pennsylvania State University Press | University Park, Pennsylvania

Dunlap_Shohl, My_InD_reprint.indd 3

2/2/16 11:59 AM

Library of Congress Cataloging-inPublication Data Dunlap-Shohl, Peter, 1958– , author, book artist My degeneration : a journey through Parkinson’s / Peter Dunlap-Shohl. p. cm. Summary: “A narrative of the author’s battle with Parkinson’s disease. Traces the author’s journey through depression, the disease symptoms, the medication and its side effects, the author’s interactions with family, and the mental and physical changes caused by the disease”—Provided by publisher. ISBN 978-0-271-07102-2 (pbk. : alk. paper) I. Title. [DNLM: 1. Dunlap-Shohl, Peter, 1958– . 2. Parkinson Disease—psychology— Cartoons. 3. Parkinson Disease— psychology—Personal Narratives. 4. Parkinson Disease—diagnosis— Cartoons. 5. Parkinson Disease— diagnosis—Personal Narratives. 6. Parkinson Disease—drug therapy— Cartoons. 7. Parkinson Disease—drug therapy—Personal Narratives. WL 359] RC382 616.8’33—dc23 2015020290

Dunlap_Shohl, My_InD_reprint.indd 4

Copyright © 2015 The Pennsylvania State University All rights reserved Printed in Hong Kong by Regent Publishing Services Published by The Pennsylvania State University Press, University Park, PA 16802–1003 The Pennsylvania State University Press is a member of the Association of American University Presses. It is the policy of The Pennsylvania State University Press to use acid-free paper. Publications on uncoated stock satisfy the minimum requirements of American National Standard for Information Sciences—Permanence of Paper for Printed Library Material, ansi z39.48–1992.

2/2/16 11:59 AM

To Pamela Dunlap-Shohl, my wife

Dunlap_Shohl, My_InD_reprint.indd 5

2/2/16 11:59 AM

Dunlap_Shohl, My_InD_reprint.indd 6

2/2/16 11:59 AM

Contents

Acknowledgments  ix

1. Diagnosis Blues  1 2. Learning to Speak Parkinson’s  17 3. Interview with a Killer  22 4. Moping and Coping  30 5. The Parkinson’s Prism  50 6. Island of the Caring and Competent  68 7. A Different Path  84 8. Diagnosis, Reprise  93

Dunlap_Shohl, My_InD_reprint.indd 7

2/2/16 11:59 AM

Dunlap_Shohl, My_InD_reprint.indd 8

2/2/16 11:59 AM

Acknowledgments This work would not exist if Steve Aufrecht hadn’t convinced me that I had something different to add to the mass of existing accounts of struggles with Parkinson’s Disease. It would be far more difficult to follow without the guidance of Kendra Boileau and others at Penn State Press. It would have been less informative without the generosity and research of Dr. David Heydrick. It would be markedly clumsier without the patient suggestions of my sister Margo Shohl Rosen, and it would be unthinkable without the stalwart love of my wife, Pamela Dunlap-Shohl, to whom it is dedicated.

Dunlap_Shohl, My_InD_reprint.indd 9

2/2/16 11:59 AM

Dunlap_Shohl, My_InD_reprint.indd 10

2/2/16 11:59 AM

1

Dunlap_Shohl, My_InD_reprint.indd 1

2/2/16 11:59 AM

2 

Dunlap_Shohl, My_InD_reprint.indd 2

2/2/16 11:59 AM

3

Dunlap_Shohl, My_InD_reprint.indd 3

2/2/16 11:59 AM

4 

Dunlap_Shohl, My_InD_reprint.indd 4

2/2/16 11:59 AM

5

Dunlap_Shohl, My_InD_reprint.indd 5

2/2/16 11:59 AM

6 

Dunlap_Shohl, My_InD_reprint.indd 6

2/2/16 11:59 AM

7

Dunlap_Shohl, My_InD_reprint.indd 7

2/2/16 11:59 AM

8 

Dunlap_Shohl, My_InD_reprint.indd 8

2/2/16 11:59 AM

9

Dunlap_Shohl, My_InD_reprint.indd 9

2/2/16 11:59 AM

10 

Dunlap_Shohl, My_InD_reprint.indd 10

2/2/16 11:59 AM

11

Dunlap_Shohl, My_InD_reprint.indd 11

2/2/16 11:59 AM

12 

Dunlap_Shohl, My_InD_reprint.indd 12

2/2/16 11:59 AM

13

Dunlap_Shohl, My_InD_reprint.indd 13

2/2/16 11:59 AM

14 

Dunlap_Shohl, My_InD_reprint.indd 14

2/2/16 11:59 AM

15

Dunlap_Shohl, My_InD_reprint.indd 15

2/2/16 11:59 AM

16 

Dunlap_Shohl, My_InD_reprint.indd 16

2/2/16 11:59 AM

17

Dunlap_Shohl, My_InD_reprint.indd 17

2/2/16 11:59 AM

18 

Dunlap_Shohl, My_InD_reprint.indd 18

2/2/16 11:59 AM

19

Dunlap_Shohl, My_InD_reprint.indd 19

2/2/16 11:59 AM

20 

Dunlap_Shohl, My_InD_reprint.indd 20

2/2/16 11:59 AM

21

Dunlap_Shohl, My_InD_reprint.indd 21

2/2/16 11:59 AM

22 

Dunlap_Shohl, My_InD_reprint.indd 22

2/2/16 11:59 AM

23

Dunlap_Shohl, My_InD_reprint.indd 23

2/2/16 11:59 AM

24 

Dunlap_Shohl, My_InD_reprint.indd 24

2/2/16 11:59 AM

25

Dunlap_Shohl, My_InD_reprint.indd 25

2/2/16 12:00 PM

26 

Dunlap_Shohl, My_InD_reprint.indd 26

2/2/16 12:00 PM

27

Dunlap_Shohl, My_InD_reprint.indd 27

2/2/16 12:00 PM

28 

Dunlap_Shohl, My_InD_reprint.indd 28

2/2/16 12:00 PM

29

Dunlap_Shohl, My_InD_reprint.indd 29

2/2/16 12:00 PM

30 

Dunlap_Shohl, My_InD_reprint.indd 30

2/2/16 12:00 PM

31

Dunlap_Shohl, My_InD_reprint.indd 31

2/2/16 12:00 PM

32 

Dunlap_Shohl, My_InD_reprint.indd 32

2/2/16 12:00 PM

33

Dunlap_Shohl, My_InD_reprint.indd 33

2/2/16 12:00 PM

34 

Dunlap_Shohl, My_InD_reprint.indd 34

2/2/16 12:00 PM

35

Dunlap_Shohl, My_InD_reprint.indd 35

2/2/16 12:00 PM

36 

Dunlap_Shohl, My_InD_reprint.indd 36

2/2/16 12:00 PM

37

Dunlap_Shohl, My_InD_reprint.indd 37

2/2/16 12:00 PM

38 

Dunlap_Shohl, My_InD_reprint.indd 38

2/2/16 12:00 PM

39

Dunlap_Shohl, My_InD_reprint.indd 39

2/2/16 12:00 PM

40 

Dunlap_Shohl, My_InD_reprint.indd 40

2/2/16 12:00 PM

41

Dunlap_Shohl, My_InD_reprint.indd 41

2/2/16 12:00 PM

42 

Dunlap_Shohl, My_InD_reprint.indd 42

2/2/16 12:00 PM

43

Dunlap_Shohl, My_InD_reprint.indd 43

2/2/16 12:00 PM

44 

Dunlap_Shohl, My_InD_reprint.indd 44

2/2/16 12:00 PM

45

Dunlap_Shohl, My_InD_reprint.indd 45

2/2/16 12:00 PM

46 

Dunlap_Shohl, My_InD_reprint.indd 46

2/2/16 12:00 PM

47

Dunlap_Shohl, My_InD_reprint.indd 47

2/2/16 12:00 PM

48 

Dunlap_Shohl, My_InD_reprint.indd 48

2/2/16 12:00 PM

49

Dunlap_Shohl, My_InD_reprint.indd 49

2/2/16 12:00 PM

50 

Dunlap_Shohl, My_InD_reprint.indd 50

2/2/16 12:00 PM

51

Dunlap_Shohl, My_InD_reprint.indd 51

2/2/16 12:00 PM

52 

Dunlap_Shohl, My_InD_reprint.indd 52

2/2/16 12:00 PM

53

Dunlap_Shohl, My_InD_reprint.indd 53

2/2/16 12:00 PM

54 

Dunlap_Shohl, My_InD_reprint.indd 54

2/2/16 12:00 PM

55

Dunlap_Shohl, My_InD_reprint.indd 55

2/2/16 12:00 PM

56 

Dunlap_Shohl, My_InD_reprint.indd 56

2/2/16 12:00 PM

57

Dunlap_Shohl, My_InD_reprint.indd 57

2/2/16 12:00 PM

58 

Dunlap_Shohl, My_InD_reprint.indd 58

2/2/16 12:00 PM

59

Dunlap_Shohl, My_InD_reprint.indd 59

2/2/16 12:00 PM

60 

Dunlap_Shohl, My_InD_reprint.indd 60

2/2/16 12:00 PM

61

Dunlap_Shohl, My_InD_reprint.indd 61

2/2/16 12:00 PM

62 

Dunlap_Shohl, My_InD_reprint.indd 62

2/2/16 12:00 PM

63

Dunlap_Shohl, My_InD_reprint.indd 63

2/2/16 12:00 PM

64 

Dunlap_Shohl, My_InD_reprint.indd 64

2/2/16 12:00 PM

65

Dunlap_Shohl, My_InD_reprint.indd 65

2/2/16 12:00 PM

66 

Dunlap_Shohl, My_InD_reprint.indd 66

2/2/16 12:00 PM

67

Dunlap_Shohl, My_InD_reprint.indd 67

2/2/16 12:00 PM

68 

Dunlap_Shohl, My_InD_reprint.indd 68

2/2/16 12:00 PM

69

Dunlap_Shohl, My_InD_reprint.indd 69

2/2/16 12:00 PM

70 

Dunlap_Shohl, My_InD_reprint.indd 70

2/2/16 12:00 PM

71

Dunlap_Shohl, My_InD_reprint.indd 71

2/2/16 12:00 PM

72 

Dunlap_Shohl, My_InD_reprint.indd 72

2/2/16 12:00 PM

73

Dunlap_Shohl, My_InD_reprint.indd 73

2/2/16 12:00 PM

74 

Dunlap_Shohl, My_InD_reprint.indd 74

2/2/16 12:00 PM

75

Dunlap_Shohl, My_InD_reprint.indd 75

2/2/16 12:00 PM

76 

Dunlap_Shohl, My_InD_reprint.indd 76

2/2/16 12:00 PM

77

Dunlap_Shohl, My_InD_reprint.indd 77

2/2/16 12:00 PM

78 

Dunlap_Shohl, My_InD_reprint.indd 78

2/2/16 12:01 PM

79

Dunlap_Shohl, My_InD_reprint.indd 79

2/2/16 12:01 PM

80 

Dunlap_Shohl, My_InD_reprint.indd 80

2/2/16 12:01 PM

81

Dunlap_Shohl, My_InD_reprint.indd 81

2/2/16 12:01 PM

82 

Dunlap_Shohl, My_InD_reprint.indd 82

2/2/16 12:01 PM

83

Dunlap_Shohl, My_InD_reprint.indd 83

2/2/16 12:01 PM

84 

Dunlap_Shohl, My_InD_reprint.indd 84

2/2/16 12:01 PM

85

Dunlap_Shohl, My_InD_reprint.indd 85

2/2/16 12:01 PM

86 

Dunlap_Shohl, My_InD_reprint.indd 86

2/2/16 12:01 PM

87

Dunlap_Shohl, My_InD_reprint.indd 87

2/2/16 12:01 PM

88 

Dunlap_Shohl, My_InD_reprint.indd 88

2/2/16 12:01 PM

89

Dunlap_Shohl, My_InD_reprint.indd 89

2/2/16 12:01 PM

90 

Dunlap_Shohl, My_InD_reprint.indd 90

2/2/16 12:01 PM

91

Dunlap_Shohl, My_InD_reprint.indd 91

2/2/16 12:01 PM

92 

Dunlap_Shohl, My_InD_reprint.indd 92

2/2/16 12:01 PM

93

Dunlap_Shohl, My_InD_reprint.indd 93

2/2/16 12:01 PM

94 

Dunlap_Shohl, My_InD_reprint.indd 94

2/2/16 12:01 PM

95

Dunlap_Shohl, My_InD_reprint.indd 95

2/2/16 12:01 PM

96 

Dunlap_Shohl, My_InD_reprint.indd 96

2/2/16 12:01 PM

Dunlap_Shohl, My_InD_reprint.indd 97

2/2/16 12:01 PM