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Social Work Series Editor: Richard Hugman
Rosaleen Ow Abner Weng Cheong Poon Editors
Mental Health and Social Work
Social Work Series Editor Richard Hugman School of Social Sciences University of New South Wales Sydney, NSW, Australia
The MRW in Social Work enables social work practitioners, policy makers and academics across the world to access in-depth, authoritative literature and cuttingedge research into professional practice, ethics, practice-based research methods and policy in the field. Grounding practice and policy in systematic theories and principles, it covers all specialties in the field including children and families, older adults, mental health, people with disabilities, domestic and gendered violence, intercultural practice, sexuality, international social work and community development. Drawing on a strong scientific basis, it offers reviews and analyses of key social issues, policy frameworks and practice methods, including counseling, casework, family therapy, groupwork, community work, community development, social development and social policy practice. More information about this series at http://www.springer.com/series/15559
Rosaleen Ow • Abner Weng Cheong Poon Editors
Mental Health and Social Work With 21 Figures and 12 Tables
Editors Rosaleen Ow Department of Social Work National University of Singapore Singapore, Singapore
Abner Weng Cheong Poon School of Social Sciences University of New South Wales Sydney, NSW, Australia
ISBN 978-981-13-6974-2 ISBN 978-981-13-6975-9 (eBook) ISBN 978-981-13-6976-6 (print and electronic bundle) https://doi.org/10.1007/978-981-13-6975-9 © Springer Nature Singapore Pte Ltd. 2020 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. This Springer imprint is published by the registered company Springer Nature Singapore Pte Ltd. The registered company address is: 152 Beach Road, #21-01/04 Gateway East, Singapore 189721, Singapore
Series Preface
Professional social work now exists in over 90 countries. From its early origins in the later part of the 1800s CE it has sought to develop a strong scientific basis, grounding practice and policy in systematic theories and principles. Today, as social work grows in all parts of the world, its body of knowledge about social issues, practices to address these and relevant policy frameworks is expanding rapidly. Consequently, keeping up to date on such knowledge is increasingly challenging for practitioners, policy makers and academics in the field. This series makes research-based knowledge available for everyone who has an interest in maintaining their grasp of the discipline by bringing together leading social work scholars, practitioners and policy makers to examine contemporary evidence on various aspects of the field. In this way it provides an authoritative range of voices from which everyone in the profession may gain a deeper understanding grounded in evidence. As it has expanded, social work has developed many areas of specialty, each of which now has its own body of knowledge that constitutes a sub-field of the profession as a whole. The Major Research Works in Social Work series addresses the need for up-to-date, authoritative, extensive reviews and analyses of knowledge in a range of areas of social work. Edited by significant contributors in each aspect of specialty, these volumes offer in-depth discussion of the specific practices and issues of policy and the organization of relevant services. By taking this approach, it is possible to ensure appropriate coverage of the range of specialties and also at the same time to provide sufficient depth of analysis and discussion of key ideas. As a profession, social work can be understood in a number of ways. First, there are fields of practice. These include children and families, older adults, mental health, people with disabilities, domestic and gendered violence, inter-cultural practice, sexuality, and international social work. Second, methods of practice also define areas of knowledge in social work. These include counselling, casework and case management, family therapy, groupwork, community work and community development, social development, social policy practice. Third, there are overarching issues that contribute to social work knowledge and theory, including professional ethics, practice-based research methods, policy studies. These are examples indicative of the range, rather than forming a definitive list, and point to the way in which a series may enable both breadth and depth to be addressed. At the
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same time they point to the extensive coverage that is relevant to the broad social work field. Although much of the tradition of social work research and analysis came originally from those countries that experienced early industrialization (the ‘global North’), given the worldwide growth of social work the editorial approach for this series also aims to be global in its focus. Volume editors and contributors are drawn purposefully from around the world and they in turn are expected to take a worldwide view of ensuring that the current evidence and analysis is presented. In addition to established leaders in the field with identification of the emerging leaders of the future whose work is seen as cutting-edge. This series was developed by selecting major themes across fields of practice, methods of practice and over-arching issues. Future titles will be added to the initial five areas – community practice, mental health, family and gendered conflict and violence, children and families, and social work theory and ethics – , reflecting the breadth of the social work profession. At the same time, because Springer Major Research Works are ‘living’ publications, able to be updated, the continuing development of the profession will be reflected in analysis and discussion that grows with the field through publication of revised chapters as further evidence and analysis becomes available. As Editor-in-Chief, I acknowledge the commitment and insights of the editors to each specific volume. Their expertise and hard work enable this series to pursue its overall goal. In this volume Rosaleen Ow and Abner Weng Cheong Poon have brought together leading researchers, educators, and practitioners in community practice and social development to create an insightful and challenging view of this dimension of social work. I also thank our Publishing Editor at Springer Nature, Mokshika Gaur, for her vision, enthusiasm, and support, as well as other colleagues at Springer Nature who have assisted the process of creating these volumes. Professor of Social Work University of New South Wales, Australia Series Editor, Springer Nature Major Research Works Social Work Series April 2020
Richard Hugman, Ph.D.
Volume Preface
Much has been happening in the world of mental healthcare. Theorists, practitioners, researchers, the community at large, and not of least importance are the persons who had experienced mental health challenges themselves being involved in addressing issues related to the understanding of the multiple systemic factors that could contribute to mental well-being and illness. This book is an attempt to put together the thoughts and models of practice found in mental healthcare from the diverse perspectives of social work practice with individuals, families, and the community globally. It covers both established and new research findings from many countries. The book is divided into different parts that hopefully will help the reader to understand the context within which the chapter is located. Part One is an overview of the thoughts pertinent to understanding what had been known about mental well-being and illness, and the values and ethics that should underlie mental healthcare. Part Two elaborates on the concept of mental health and etiology from the perspective of different disciplines and the implications for social work practice. Part Three focuses on social work with individuals, families, and the community based on the general ecological-systemic approach and other social work theoretical frameworks. Part Four focuses on contextualized social work practice reviewing models of intervention, challenges, and possibilities in the course of mental healthcare with different groups of people. Part Five examines some structural factors that impinge on mental well-being and illness such as legal and financial contexts. Part Six is the concluding chapter attempting to review future work in the area of mental health and social work. As co-editors, we are extremely grateful for the contribution of all the chapter authors. Without their commitment and diligence, it would have been an impossible task to put all the knowledge and creative thoughts on mental healthcare into such a
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huge volume. We also appreciate Professor Richard Hugman, Series Editor, and the wonderful team at Springer for their support and advice. We also want to thank our families for their understanding, patience, and continual support. Much thanks! Singapore, Singapore Sydney, NSW, Australia April 2020
Rosaleen Ow Abner Weng Cheong Poon
Contents
Part I
Introduction
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Theories on Mental Health, Illness and Intervention . . . . . . . . . . . Rosaleen Ow and Abner Weng Cheong Poon
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Ethics, Values, and Recovery in Mental Health Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Bani Aadam and Melissa Petrakis
Part II General Theories on Mental Health and Etiology of Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Psychological Perspective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Virgil L. GregoryJr.
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Behavior Analysis and Social Work . . . . . . . . . . . . . . . . . . . . . . . . Bruce A. Thyer
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Social-Cultural Ecological Perspective . . . . . . . . . . . . . . . . . . . . . . Monit Cheung and Carol A. Leung
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Developmental Approach to Mental Health . . . . . . . . . . . . . . . . . . Antoinette Lombard and Nontembeko Bila
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Qigong Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Jessie S. M. Chan and Siu-man Ng
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Medical Perspective on Mental Health . . . . . . . . . . . . . . . . . . . . . . Carol Harvey
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Part III Overview of Social Work Approaches in Working with Individuals, Families, and Communities . . . . . . . . . . . . . . . . . . . . . . 9
Individual Approach to Mental Health from a Psychodynamic and Cognitive Behavioral Perspective . . . . . . . . . . . . . . . . . . . . . . . . . . Mun Heng Low and Stuart Stevenson
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An Overview of Social Work Approaches in Working with Families of People with Serious Mental Illness . . . . . . . . . . . . . . . . Abner Weng Cheong Poon and Winnie W. Kung
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Community and Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . Robert Bland and Gabrielle Drake
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Community, Mental Health, and Social Work . . . . . . . . . . . . . . . . Caroline Lim and Rosaleen Ow
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Māori Social Work and Māori Mental Health in Aotearoa New Zealand . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Hannah Mooney, Andrea (Ange) Watson, Paulé Ruwhiu, and Awhina Hollis-English
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Contextualized Practice with Individuals and Families . . .
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Trauma-Informed Social Work Practice with Children and Youth . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Yogeswari Munisamy and Diane E. Elze
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Application of Mindfulness-Based Approaches in the Context of Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Si Ying Tan and Shian-Ling Keng
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Alcohol and Drug Use . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Wulf Livingston
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Social Work with Refugees and Migrants Maree Higgins
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Natural Disaster . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Timothy Sim and Joydeb Garai
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Mental Health and Social Work: The Islamic Perspectives . . . . . . Mohd Dahlan A. Malek
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Community Mental Health in South Korea . . . . . . . . . . . . . . . . . . You-Jin Chung and Ok-Kyung Yang
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Suicide Prevention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Lynette Joubert and Kristina Lainson
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Parenting Challenges for Persons with a Serious Mental Illness . . . Linda Campbell and Abner Weng Cheong Poon
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The Role of Religious Institutions in Mental Health Rehabilitation and Recovery in India . . . . . . . . . . . . . . . . . . . . . . . Srinivasan Chokkanathan, H. Sobhana, and Aravindhan Natarajan
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Part V
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Structural Factors in Social Work and Mental Health . . . . .
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Legal Provisions, Advocacy, and Empowerment . . . . . . . . . . . . . . Lisa Brophy
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Financial Challenges and Mental Health . . . . . . . . . . . . . . . . . . . . Irene Y. H. Ng and Trina R. Shanks
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Part VI
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Reflection of Future Social Work Practice in Mental Health . . . . . Abner Weng Cheong Poon and Rosaleen Ow
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Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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About the Series Editor
Prof. Richard Hugman was a social work practitioner in the UK for approximately 10 years, during which time he also completed his Ph.D. at Lancaster University. He has since held academic positions at Lancaster University (UK), Edith Cowan University and Curtin University (both Western Australia) and is now Professor of Social Work at University of New South Wales, Australia. He has published widely in the field, including nine monographs covering various aspects of professional social work, such as Power in Caring Professions (Macmillan, 1991), New Approaches in Ethics for the Caring Professions (Palgrave, 2005), Social Development in Social Work (Routledge, 2016) and most recently Virtue Ethics in Social Work: Towards Virtuous Practice (with Manohar Pawar, Bill Anscombe, Amelia Wheeler and Andrew Alexandra) (Routledge, 2020). Richard has been editor of British Journal of Social Work (1992–1995) and Australian Journal of Social Issues (1995–2000), as well as four edited books. Since 2004 he has been a consultant to UNICEF Vietnam and was ethics commissioner of the International Federation of Social Workers (2008– 2014). He continues to be engaged in various aspects of social development practice.
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Rosaleen Ow is currently Grant Manager of the Mrs Lee Choon Guan Endowed Research Fund in the Department of Social Work, National University of Singapore (NUS). She graduated with a bachelor’s degree in Social Work from NUS; a master’s degree (Econs.) from University College, Cardiff, Wales; and a Ph.D. in Social Work from the National University of Singapore. She was a social work practitioner working mainly with children and families in Singapore and Wales before becoming an academic at the National University of Singapore. Apart from teaching, she had been and is still an active volunteer for NGOs serving children with cancer and chronic illnesses and those with challenges in intellectual development. Working closely with NGOs and formal government bodies, her research and writing are focused on examining the social and cultural factors that are interlinked with the needs and challenges of different types of families and services available to support such families. She publishes in peer-reviewed journals and edited books mainly on issues related to direct social work practice and cross-cultural social work.
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Abner Weng Cheong Poon is Senior Lecturer of Social Work in the School of Social Sciences, University of New South Wales. He graduated with a Bachelor of Arts from the National University of Singapore, Master of Social Work (Mental Health) from the University of Melbourne, and Ph.D. from the University of Melbourne. He teaches social work practice in mental health and evidence-informed practice in social work. His research focuses on social work practice in mental health, impact of mental illness on families and caregivers, family intervention in mental health, children of parents with mental illness, health and wellbeing of migrants experiencing mental health problems, intimate partner violence in China, and community mental health teams. He has published peer-reviewed articles concerning caregivers of people with psychosis, families from culturally and linguistically diverse communities, intimate partner violence, community mental health teams, and parenting needs of people with mental illness. He collaborates actively with mental health services and non-governmental organizations to conduct practice-based research that provide important and useful implications for practice and policy.
Contributors
Mohd Dahlan A. Malek Faculty of Psychology and Education, Universiti Malaysia Sabah, Kota Kinabalu, Malaysia Bani Aadam NSW Ministry of Health, University of NSW, Sydney, NSW, Australia Nontembeko Bila Department of Social Work and Criminology, University of Pretoria, Hatfield, South Africa Robert Bland Australian Catholic University, Brisbane, Australia Lisa Brophy School of Allied Health, Human Services and Sport, College of Science, Health and Engineering, La Trobe University, Melbourne, VIC, Australia Centre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, VIC, Australia Mind Australia, Heidelberg, VIC, Australia Linda Campbell School of Psychology, University of Newcastle, Callaghan, NSW, Australia Jessie S. M. Chan School of Chinese Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, People’s Republic of China Department of Social Work and Social Administration, The University of Hong Kong, Hong Kong, People’s Republic of China Monit Cheung University of Houston, Houston, TX, USA Srinivasan Chokkanathan Department of Social Work, National University of Singapore, Singapore, Singapore You-Jin Chung Social Work Programme, S R Nathan School of Human Development, Singapore University of Social Sciences, Singapore, Singapore Gabrielle Drake Australian Catholic University, Sydney, Australia Diane E. Elze University at Buffalo School of Social Work, Buffalo, NY, USA
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Joydeb Garai Department of Applied Social Sciences, The Hong Kong Polytechnic University, Kowloon, Hong Kong, China Virgil L. Gregory Jr. School of Social Work – MSW Direct, Indiana University, Indianapolis, IN, USA Carol Harvey Department of Psychiatry, University of Melbourne and NorthWestern Mental Health, Melbourne, VIC, Australia Dr. Maree Higgins School of Social Sciences, UNSW Sydney, Sydney, NSW, Australia Awhina Hollis-English Awhina Hollis-English, Napier, New Zealand Lynette Joubert Department of Social Work, Melbourne School of Health Sciences, The University of Melbourne, Melbourne, VIC, Australia Shian-Ling Keng Division of Social Science, Yale-NUS College, Singapore, Singapore Winnie W. Kung Fordham University, New York, NY, USA Kristina Lainson Department of Social Work, Melbourne School of Health Sciences, The University of Melbourne, Melbourne, VIC, Australia Carol A. Leung University of California, Los Angeles, CA, USA Caroline Lim Department of Social Work, National University of Singapore, Singapore, Singapore Wulf Livingston Glyndwr University, Plas Coch Campus, Wrexham, Wales, UK Antoinette Lombard Department of Social Work and Criminology, University of Pretoria, Hatfield, South Africa Mun Heng Low AMKFSC Community Services Ltd., Singapore, Singapore Hannah Mooney Ngāti Raukawa ki te tonga, Te Āti Awa, Ngā Rauru, Te Ātihaunui a Pāpārangi, Massey University School of Social Work, Palmerston North, New Zealand Yogeswari Munisamy Child Protective Service, Rehabilitation and Protection Group, Ministry of Social and Family Development, Singapore, Singapore Aravindhan Natarajan Department of Criminal Justice, Social Work and Legal Specialties, School of Social Justice, University of Toledo, Toledo, OH, USA Irene Y. H. Ng Department of Social Work and Social Service Research Centre, National University of Singapore, Singapore, Singapore Siu-man Ng Department of Social Work and Social Administration, The University of Hong Kong, Hong Kong, People’s Republic of China
Contributors
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Rosaleen Ow Department of Social Work, National University of Singapore, Singapore, Singapore Melissa Petrakis Department of Social Work, Monash University, Melbourne, VIC, Australia Mental Health Service, St Vincent’s Hospital, Melbourne, VIC, Australia Abner Weng Cheong Poon School of Social Sciences, University of New South Wales, Sydney, NSW, Australia Paulé Ruwhiu Ngā Puhi, Ngāti Porou, Massey University School of Social Work, Albany, New Zealand Trina R. Shanks School of Social Work, University of Michigan, Ann Arbor, MI, USA Timothy Sim Department of Applied Social Sciences and World Health Organization Collaborating Center for Community Health Services, School of Nursing, Faculty of Health and Social Sciences, The Hong Kong Polytechnic University, Kowloon, Hong Kong, China H. Sobhana Department of Psychiatric Social Work, Lokopriya Gopinath Bordoloi Regional Institute of Mental Health, Tezpur, India Stuart Stevenson CASS School of Education and Communities, University of East London, London, UK Si Ying Tan Lee Kuan Yew School of Public Policy, National University of Singapore, Singapore, Singapore Bruce A. Thyer College of Social Work, Florida State University, Tallahassee, FL, USA Andrea (Ange) Watson Te Āti Awa, Ngāti Mutunga, Taranaki, Massey University School of Social Work, Palmerston North, New Zealand Ok-Kyung Yang Department of Social Welfare, College of Social Sciences, Ewha Womans University, Seoul, South Korea
Part I Introduction
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Theories on Mental Health, Illness and Intervention Rosaleen Ow and Abner Weng Cheong Poon
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Biological . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychological . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Spiritual . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Structural . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conceptual Frameworks . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Emerging Issues and Implications for Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
The chapter attempts to provide an overview of thoughts and theories that influenced the understanding of etiology, manifestations, and management of mental health and mental illnesses from multiple perspectives. The perspectives of professional service providers and academia representing the social sciences, medicine and neuroscience, and those of service users and the implications for assessment and management of mental health and illness are discussed. The acknowledgment that the view of a human being must be holistic to be complete has put spiritual and cultural beliefs into the assessment and management of mental health. Hence, the biopsychosocial-spiritual framework may be the most R. Ow (*) Department of Social Work, National University of Singapore, Singapore, Singapore e-mail: [email protected] A. W. C. Poon School of Social Sciences, University of New South Wales, Sydney, NSW, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_1
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consensual framework upon which social workers in multidisciplinary teams base the assessment and formulation of service plans for persons experiencing mental health problems and working toward recovery. The progression from control by external systems such as religious institutions and the state historically to the present-day movement of gaining control of individuals’ own recovery from mental illness has been a long journey of discourse. Research has also resulted in changes in policy, service provision, and the societal interpretation of abnormal behaviors that are outside the social norm. Emerging issues that may affect future social work practice in mental health such as the genetics of mental health leading to the targeting of specific therapies to individual patients or the relationship between structural issues such as economic and social inequalities with mental health are discussed. Keywords
Mental health · Social science · Neuroscience · Social work · Theories · Biopsychosocial-spiritual
Introduction Social workers are one of the main providers of mental health services in both the public and private sectors. They are at the interface between the person with the mental health issue and the environment providing a critical link between the service user, the multidisciplinary treatment team, and the community. Since social work practice is shaped primarily by the context in which it is practiced, it is therefore imperative that social workers understand the social and medical aspects of mental well-being and illness as a foundation for their involvement in service provision with the individual, family, group, and community. Thus, social work in mental healthcare is multilayered. Mental healthcare includes patient care involving different professionals, institutional and community services, the use of medication, and interventions related to health and illness arising from theories of selfhood and relationships with the transcendental such as mindfulness therapies. According to Halliwell (2013: 1), illness means a “single diagnosable condition or a number of related factors (biological, psychological, physiological or social) that unsettle an individual’s balance.” Illness is therefore a descriptive term for a condition that is sometimes visible but always contains a subjective element that includes a humanistic, social constructionist approach to health and illness. It “rests between the public world of policy and medical treatment and the private world of cognition, emotion, and somatic response” (Halliwell 2013: 1). From a more humanistic perspective, Scull (2015: 11) described madness (or unreason) as “massive, and lasting disturbances of reason, intellect and emotions.” The World Health Organization (WHO) defines mental health as a state of well-being in which every individual realizes his or her own potential, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make a contribution to her or his
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community (World Health Organization 2014). The positive dimension of mental health stressed in the WHO’s definition of health is contained in its constitution as “Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity.” Mental health may be described in another way as a continuum (Sands 2001: 17) where “an individual is more or less functional with respect to different activities. A person may function at a relatively high level in some areas (manages own apartment, uses transportation), but at the dysfunctional level in others (interpersonal relationships, employment).” “Insanity,” “madness,” or “mental illness” and mental healthcare had been a subject of debate and study beginning from ancient religious texts such as the Holy Bible to Freud (1909/1959) to Foucault (2006/2009) to the study of neuroscience and mental health in modern times (Littrell 2015). “In important ways,. . . madness is indelibly part of civilization . . . a problem that insistently invades our consciousness and our daily lives” (Scull 2015: 10). The history of etiology was focused primarily on the person with the mental health issue and ranged from beliefs with spiritual roots to psychodynamic factors to a social disease model requiring segregation from the public to biological theories involving the state of the human brain, genetics, and neuroscience. In spite of the plethora of theories, the boundaries between people with mental illness and those without remain ambiguous, controversial, and contested. Social work, on the other hand, has aligned its professional approach with contextual biopsychosocial explanations supporting the inclusion of a broader perspective such as the impact of family, groups, and community on mental health and illness in addition to etiology related primarily to individual factors. This broader perspective will be elaborated in subsequent sections of the chapter related to frameworks for mental healthcare and social work practice (see Scull 2015). Any attempt to review the historical development of thoughts on mental illness is necessarily incomplete, culture-bound, and subject to limitations of reconstructing the thoughts of early theorists by current writers. However, almost all text writings on the understanding of mental health and illness in prehistoric societies attributed abnormal behaviors to evil spirits that inhabited the body of unfortunate individuals (Alexander and Selesnick 1966; Neugebauer 1979). The Holy Bible, for example, records the existence of mental illness from a spiritual perspective based on the Judeo-Christian tradition. One example of mental illness from the Bible could be found in the narrative of Jesus healing a man by supernaturally casting out a legion of demon spirits in possession of the man into a herd of pigs (Luke 8:27–39, New King James Version, The Holy Bible 1982). The spiritual etiology of mental illness and cures can also be found in other religious orientations. In Singapore, for example, when someone is exhibiting unusual behaviors for no apparent cause, one possible explanation in folk medicine is possession by evil spirits (Ow and Saparin 2014). However, Sabry and Vohra (2013) wrote that the commonly held belief of Muslims that mental illness is a disease brought about by demons or bad spirits was imputed to them by Europeans in medieval times who themselves viewed mental illness as demon-related. They quoted modern Muslim scholars (Gharaibeh 2008; Mafullul 2003) as having rejected such a concept but instead viewed mental illness as having a physiological base. In Islam, all diseases including
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mental illness can be considered as trials and tests for the individual and/or the family (Islamweb 2004) and having a healthy secure relationship with Allah would result in better psychological functioning quoting “. . . And whosoever puts his trust in Allah, then He will suffice him . . .” (Qur’an 65:3 quoted in Sabry and Vohra (2013: S205)). Beliefs in witchcraft and casting out of evil spirits from the afflicted person’s body were also common in the early days of Greek, Chinese, Indian, and Egyptian civilizations with exorcism performed on people whose behaviors did not conform to the norm and were perceived as harmful to the afflicted individual and to the community. Cheung (1986: 172) described Chinese folk medicine as including “supernatural as well as Taoist beliefs including divination, sorcery, spirits, and ghosts” as being responsible for illnesses with mental illness as “a common reason for consultation with shamans and fortune–tellers.” Religious and folk beliefs and such altered mental states were also described in Scull (2015: 31) as manifested in “dramatic symptoms as fits, foaming at the mouth, grinding of teeth and biting of tongues, loss of control of bladder and bowels, and descent into unconsciousness, all readily interpreted as signs of possession.” Elaborate prayers and rituals involving drugs and other substances as well as extreme practices such as flogging or starvation were practices used to drive out the evil spirit/s in possession of the afflicted individual.
Biological While supernatural causation continued to persist among the general population, naturalistic explanations began to develop among Greek physicians, such as Hippocrates (460–370 B.C.) and Galen (A.D. 129–199), during the period known as the Enlightenment. These early physicians believed that mental illnesses were rooted in bodily pathologies that were disorders in the brain and the body and that “deviant behaviour was caused by brain pathology” (Sue et al. 2003: 19). Organic physical causes consisted of four basic elements, blood, phlegm, yellow bile, and black bile, each having qualities that produced different temperaments including mania and melancholia. The biological explanation has been heavily influenced in the modern era by the neurosciences where the makeup of a human being and human behavior are a result of brain structure and function. Genetic material in a person’s cells decides their physical features, temperaments, and vulnerability to diseases. Human thoughts, emotions, and behaviors are associated with nerve cell activities, and any changes in activity or structure of the brain will result in changes in thoughts, emotions, and behaviors. As a consequence, using a biological perspective, maintenance of mental health and treatment of mental illness are best managed by the use of drugs that will reduce the impact of negative brain development or brain cell activities. In addition, biological explanations also include biochemical theories (such as dopamine theory) with the basic premise that mental illness is caused by chemical imbalances affecting the function of neurotransmitters in the transmission of messages by neurons (nerve
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cells). Littrell (2015) surmised that while the body affects behavior and subjective states and attitudes, the reverse can also be true. While physiological factors are associated with the presentation of behavior symptoms, the use of drugs may not be the only answer since the mind also affects the body. Therefore, other nonmedical, more naturalistic alternatives in altering physiology and consequently the mind should also be considered as interventions in mental health. Alternative measures such as appropriate diet, social support, meditation, yoga, exercise, and practicing mindfulness can be as, if not more, efficacious and have less side effects compared to drug therapy. Health psychology, for example, believes in the role of primary intervention because certain social, demographic, situational, and psychological behaviors can determine a person’s risk for illness or disease. Even the collective actions of society such as air pollution, consequences of climate change, and impoverished social and economic conditions can also lead to poor physical and mental health (Bishop 1994).
Psychological The spiritual and organic debates were challenged by a resurgence of scientific inquiry with a humanistic focus that included the psychological viewpoint which stressed an emotional basis for mental health and illness. Present-day psychological explanations of mental health and illness comprise a large number of orientations. Psychodynamic models view mental illness as a result of childhood traumas or anxieties that are largely in the unconscious but may manifest in symptoms that humans are not aware of. The earliest proponent of the psychodynamic model was Sigmund Freud (1938, 1949) who changed from practicing as a neurologist to a psychiatrist. Since the Freudian era, traditional psychoanalytic theories about mental health and illness have changed to a greater emphasis on the role of the ego to modern psychoanalysis that uses techniques of re-experiencing mental conflicts rather than understanding them (see Sue et al. 2003: 48) for a chart on post-Freudian and psychoanalytic therapists). Although psychodynamic models had exerted a large influence on the understanding of human behavior and mental disorders, criticisms arose from their focus on individual case studies and the difficulties of empirical generalizations related to the unconscious and dependence on the cognitive and verbal ability of the individual in the assessment and problem-solving process. As a result of the criticisms leveled at the psychodynamic school of thought, behavioral explanations on the development of human behavior including mental illness arose from applications on the work of Ivan Pavlov (1849–1936), a Russian physiologist, who discovered the associative learning process (classical conditioning) while studying salivation in dogs. The application of classical conditioning principles to the development of human behavior including abnormal behavior was largely credited to John B. Watson (Watson and Rayner 1920) and subsequently expanded by B.F. Skinner (1904–1990) in the process called operant conditioning. All behaviors including symptomatic behaviors in mental illness are therefore said to be the consequence of faulty learning and reinforcement, and many therapeutic
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strategies were developed from this orientation. Although empirically stronger and therefore in a sense more accountable than insight-oriented therapies, behaviorism was criticized as ignoring the inner determinants of behavior. Cognitive models, on the other hand, do recognize the importance of inner processes in human behavior but focus on conscious thoughts that mediate or influence an individual’s emotional or behavioral state rather than the unconscious. Behavior is a response and consequence of how an antecedent (experience of an event) is interpreted (through worldviews, values, and beliefs). Changing abnormal behavior therefore involves changing known irrational and maladaptive thoughts in the way an individual organizes, interprets, and labels experiences rather than changing emotions and thoughts arising from the unconscious. Cognitive therapies are structured exercises with specific learning goals to identify and alter interpretations that distort their experiences and the resultant behavior or attitude. However, cognitive theories and therapies have also been the subject of criticism from psychologists with other theoretical orientations. For example, cognition, perhaps similar to the unconscious in psychodynamic theories, is also not an observable phenomenon and cannot form the basis for empiricism. While behavioral and cognitive approaches continued to be influential in psychological thought, from a humanistic perspective the reduction of a human being to being merely a product of reinforcements or the sum of its cognitive parts is to ignore the holistic and active nature of being human (Goldstein 1986). Humanistic and existential approaches evolved as a reaction to the determinism resulting from past experiences. While there are many strains to the humanistic and existential school of thought, one common assumption is that an individual’s reality is a product of unique experiences and perceptions of the world and in phenomenology term, understanding comes from reconstructing the world from that individual’s point of view. People are active agents, capable of making free choices and given the opportunities will be able to fulfill their desire to live lives most suited to what they want for themselves. The earliest proponents of this positive view of the individual were humanistic psychologists such as Maslow (1954) and Rogers (1961). The very strength of the humanistic and existential approaches in focusing on the subjective understanding of the human condition and hence their lack of suitability for scientific or experimental investigation is also the area that produced the heaviest criticism in terms of theory construction and generalization. In addition, the principles of application also seem more suitable for generalization to individuals who are articulate and searching for positive mental health rather than for understanding and working with individuals with serious mental health problems that need resolution. Risk and protective factors are well-researched topics in theories of resilience because they are believed to be associated with the disorder, and understanding them will assist in the development of preventive strategies. Resiliency is part of the positive psychology movement because if “people are taught resilience, hope, and optimism, they will be less susceptible to depression and will lead happier more productive lives” (Seligman 2002 quoted by Greene 2007: 12). The resilience perspective embodies most of the current thinking on the recovery process in mental illness. The theory-guided dimensions of health and well-being include self-acceptance, positive relations with others, autonomy, environmental mastery, purpose in
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life, and personal growth (Greene 2007: 13). These dimensions of well-being are congruent with the strength-based principles in social work practice that emphasize empowering the voice of the service user, tapping into inner resources, collaboration with the community in expanding opportunities for growth, and promoting membership that supports a sense of belonging.
Social In addition to explanatory theories located within the individual, other explanatory models include those that view individual behavior as a product of the systemic interaction between the individual and the family. In social work, systemic-perspective intervention is highly recognized as a core practice. A family systems perspective views “family members as inextricably intertwined in their lives and death, and all members of society as ultimately interconnected. Neither people, nor their problems, exist in a vacuum” (McGoldrick et al. 2008: 14). Family in most cases is the most powerful system to which an individual belongs, and the memories and culture of the family will remain with the individual wherever the person goes. This family interconnectedness is exemplified in the genograms used by many care professionals including social workers in understanding the individual and the family in the context of family structure and relationships, timeline, significant events, needs, and resources (McGoldrick et al. 2008). In addition, a genogram as a pictorial representation of a family can also be a tool for engagement of family members as they participate in constructing what is virtually a family tree for the purpose of problem-solving (Hepworth et al. 2017: 274–276). The family systems approach views personality development as mainly influenced by family attributes especially parental behavior. Abnormal individual behavior is a function of unhealthy family dynamics, and therefore the focus of help should not be on the individual alone but on the whole family. Families are subsequently blamed for causing someone to experience a mental illness or suffer a relapse, for example, the term “schizophrenic mothers” was commonly used in mental health services previously. The emphasis on family strengths in risk and resilience theory, for example, led to the inclusion of family members in the process of recovery for individuals with mental and/or substance abuse conditions by the Substance Abuse and Mental Health Services Administration (SAMHSA) (2017) in the United States. Family members are both impacted by, as well as potential support for, the individual with the mental health condition.
Spiritual Being religious and/or experiencing the presence of an inner spirit or self is increasingly recognized as a valid part of human experience. In the past, the spiritual approach to mental health based on folk beliefs had been focused on the negative effects of “spirits” as in evoking ill health. However, with the advent of phenomenology and the “strengths” perspective, there seems to have been a shift toward
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viewing spirituality as a factor that can contribute to positive health outcomes. Goldstein (1986) named this aspect of the self as the “person of faith,” primarily as religious beliefs associated with formal religious institutions. In the present era of vast possibilities and the trend towards embracing a holistic approach to understanding human behavior, belief in the presence of the transcendental, such as the spirits of ancestors or other animistic beliefs, exists within many indigenous groups. The acknowledgment of the transcendental, such as the spirits of ancestors or other animistic beliefs, resurfaced and exists within many indigenous groups in the twenty-first century. The presence of the transcendental, such as the spirits of ancestors or other animistic beliefs, has a bearing on cultural responses to experiences that are not shared by the majority of the community. A study conducted with Maori communities in New Zealand (Taitimu et al. 2018) found that participants had multiple explanatory models for commonly labeled “psychotic” or “schizophrenic” experiences with spiritual and cultural explanations being predominant. For example, hearing voices could be an everyday phenomenon of hearing an ancestor speaking words of advice and being connected with those who had gone before but are still very much a part of the present in the spirit. In another recent study on the grief experiences of mothers bereaved of a child, it was found that Chinese mothers across all religious orientations in the sample relied heavily on their religious teachings regarding life and death and the purpose of life on this earth to process their encounters with the “spirit” world during the periods of bereavement and adjustment to the loss (Mun and Ow 2017). It is not possible to discuss the beliefs related to mental health and illness among the myriads of belief systems among all peoples of the world but suffice to note at this point that the inclusion of spirituality and religiosity is an important aspect of social work practice with persons suffering from mental illness and also with their family and community. The incorporation of such experiences as valid in diagnosis and psychosocial assessment and intervention will render social work in the field of mental healthcare a more holistic profession respecting all aspects of the self that are significant to the individual in the journey of recovery.
Structural In recent years, the call to promote a more inclusive and fairer society globally (United Nations Development Programme (UNDP) 2016) has turned social work attention to the structural factors that impinged on the health and mental health of vulnerable persons including those with mental health problems. While progress in human development had been visible in the provision of basic health and other services, it had been an uneven process in that human deprivations still persist. In using an analytical and holistic approach to human development, the UNDP (2016: 2) concluded that human development includes having “things a person values being or doing”; having “a set of combinations of functionings that can be achieved”; and having “agency to do or achieve what is valued.” Human development focuses on the “richness of human lives rather than the richness of economies” and is both a
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process and an outcome. Arising from this fundamental approach to human development, social work’s involvement in mental healthcare will inevitably embrace the human rights and strengths-based approach in social development to alleviate issues related to mental illness and well-being. The social development which focuses on the strengths of people and the eradication of structural injustices that hindered the development of capabilities and freedom to act to achieve good health, access to knowledge, dignity, human security, and a decent standard of living are all within the wider social work agenda in mental healthcare. The social development approach works in tandem with individual and group approaches as part of the micro and macro practice that are aligned with the ecological and systemic frameworks that social work subscribes to in the assessment and problem-solving process. The social development approach is therefore aligned with the new recovery paradigm in mental healthcare where service users exercise their capabilities, rights, and participation in social, medical, economic, and legal issues related to their care and well-being (Webber and Joubert 2015). The process involves the partnership of all stakeholders from the individual to families and community to obtain the best outcome. Promoting the recovery agenda allows opportunities to manifest the vision that having a mental illness does not mean that an individual cannot live a fulfilled life. To live a meaningful and fulfilled life, one needs some measures of financial security. Although some people believe that one does not need to be rich to be happy, the relationship between socioeconomic status and mental illness had long been a subject of discourse and research (Tausig et al. 2004). Mental health problems can lead to disruptions in education and training and therefore reduce opportunities for entry and progress in employment, financial hardship, and a poorer quality of life for the individual and the family. Financial hardship and decreased opportunities in turn can impose mental stress on people and communities just as mental illness can impose financial hardship as a consequence. A quote from a recent review of poverty and mental health in the United Kingdom describes the systemic association as “Poverty increases the risks of mental health problems and can be both a causal factor and a consequence of mental ill health. Mental health is shaped by the wideranging characteristics (including inequalities) of the social, economic and physical environments in which people live. Successfully supporting the mental health and well-being of people living in poverty, and reducing the number of people with mental health problems experiencing poverty, require engagement with this complexity” (Elliot 2016). This social, economic, and environmental complexity increases when it is interfaced within a life course framework from birth to later life. The presence of social and financial pressures is common as part of the developmental needs of all individuals, but when they are interfaced with transitional crisis and/or poor physical health, the impact of the adversity and mental stress is increased. Recovery from mental ill health of people in chronic financial hardship may also be harder as they may be more susceptible to consequences of having a lower educational level, living in poorer and less supportive neighborhoods, food insecurity, lower social support networks, unemployment, stigmatization (including self-stigma), and discrimination. Understanding the correlates between financial stress and mental health is an important aspect of both micro and macro practice
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in social work. Therefore, “mental health must be addressed within poverty data and research, and, likewise, poverty addressed within mental health data and research” (Elliot 2016: 4). People with mental health may also need advice, support, and advocacy in managing the multiple services spread out in the community each with its own set of eligibility rules. Some people may require legal advice and support such as cases related to civil rights, stigmatization and discrimination, the law in forensic social work, protection from abuse and neglect, and debt management and repayment.
Conceptual Frameworks The question remains amid the myriads of explanatory theories and professions who possess the final authority on defining mental illness. What conceptual framework should we use to organize our social work practice in mental health? Psychiatrists use diagnostic tools such as the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) (American Psychiatric Association 2013) or the International Classification of Disease, Eleventh Revision (ICD-11) (World Health Organisation 2018) to determine the type of mental illness and drugs to manage psychiatric symptoms of humans presented with abnormal behavior. Neuroscientists and geneticists, on the other hand, believe that certain genes are the explanation for the existence of mental illness. In addition, the spiritual sage/philosopher might promote religious and cultural institutions for mental health problems (Hyman 2000). As a consequence of the existence of many plausible explanations for mental health and illness, social work as a profession which believed in problem-solving and the development of resilience from a holistic perspective has in recent years embraced two interrelated frameworks into practice. One is the biopsychosocialspiritual approach (BPSS) in understanding and working with individuals. The other is the ecological framework which is systemic in nature and engages a broader structural lens in viewing individual needs and resources. The BPSS approach started with the acceptance among professionals that the human experience is not solely a product of neurological and genetic processes. In healthcare settings, as shown above, there exist many different explanations of why behaviors are exhibited in particular ways especially in the field of mental health and illness. The biopsychological framework which is consistent with the strengths perspective has been and continues to be prominent in clinical practice in behavioral mental health (Sands and Gellis 2012). The biopsychosocial framework involves the need for social workers to possess and utilize adequate knowledge of biology such as genetics, neuro- and brain functioning, and psychopharmacology, although some argue that social work has largely neglected the “bio” component in practice and research (Maynard et al. 2017; Saleeby 1992). In addition, social workers should understand psychology and psychosocial factors that include interpersonal relationships with the family and significant others involved in the development of an individual’s behavior. In recent years, the spiritual aspects of the BPSS framework have developed rapidly with the acceptance that all behaviors have
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a contextual basis that may involve cultural, spiritual, and religious elements (Chan 2001; Gold 2010; Lee et al. 2009). The contribution of knowledge about the whole person and not only parts of the whole in assessment and management of the illness is within the domain and expertise of social workers in mental healthcare as part of a multidisciplinary team. In addition to the BPSS framework focusing on working with the individual, social workers in mental healthcare also work with external systems outside the individual such as the family, the immediate community, and the society at large. The systemic framework employed by social workers in practice was based on the ecological models of human development developed mainly by Bronfenbrenner in the 1970s (Bronfenbrenner 1979; Bronfenbrenner 1986). Ecological models differentiate the environment from the person. The ecological environment is conceived of a set of nested structures (Bronfenbrenner 1994) comprising of the microsystem (the immediate environment in which the individual functions), the mesosystem (the linkages and processes between or among two or more settings in the microsystem), the exosystem (the linkages and processes between two or among more than two settings of which one or more may not directly contain the individual but where events happening there may affect the individual such as the parent’s workplace), the macrosystem (the overarching culture of society or subculture of the community), and the chronosystem (change or consistency over time in the individual or the environment). The person-in-environment within the ecological framework has been and still is the most prominent approach in texts on social work practice such as Compton et al. (2005), Hepworth et al. (2017), and Sheafor and Horejsi (2008). The ecological perspective in mental healthcare is described as applicable to all clients but is particularly germane to the understanding and intervening with clients who are severely mentally disabled, many of whom are poor, socially isolated, and underserved by the human service system. In working with this vulnerable population, the clinical social worker can bridge the gap between the person with mental illness and the environment to create a better “fit” between the two systems (Green and McDermott 2010; Sands 2001). Different stages of life across the life span may give rise to different stressors as a consequence of the demands and resources required for achieving the developmental goals of each life stage. When the mental health needs of individuals are viewed in relation to the transitions and crises that occur throughout life within the context of the BPSS and the ecological frameworks, social work in mental health becomes even more complex in terms of assessment and intervention. For example, the mental health life course needs of an adolescent are different in nature from those of working adults or older retired persons in addition to biological differences and social environments, and hence approaches to working with them will also differ.
Emerging Issues and Implications for Social Work Mental health and illness are addressed in a variety of ways depending on which aspect of community mental health is the focus of attention. Community mental health principles include comprehensiveness of care, continuity of care, accessibility
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of care, provision of multifaceted care in the form of multidisciplinary teams of professionals, and accountability of care providers to the community and the service users. Community mental health services are conventionally provided at three levels: primary, secondary, and tertiary (Bentley and Taylor 2002). Primary prevention aimed at addressing the potential biological, environmental, and psychological causes of poor mental health through mental health education for high-risk groups, providing support with meeting basic needs such as housing and employment opportunities and reducing community or societal factors such as discrimination. Behavioral health is a broad term referring to one’s state of well-being and how behaviors and choices affect overall health and wellness. Behavior is generally perceived as changeable, and individuals can be empowered to make choices that can prevent, cure, or decrease symptoms of a large group of health disorders. Behavioral health is therefore also an important aspect of primary intervention in mental healthcare (Tackett 2018). Secondary prevention focuses on early identification of persons with mental illness and shortening the duration of the condition through specific treatment and intervention. Tertiary prevention is the attempt to reduce the rate of mental disability in the community through rehabilitation services and assisting individuals and families on the recovery journey. Measures taken to reduce ignorance, stigmatization, fear, and other exclusionary activities are part of tertiary intervention. People with serious mental illness were kept in asylums (or institutions) in the past. The living conditions of most psychiatric institutions were poor as seen in several inquiries reporting the overcrowding, inadequate treatment, and violations of human rights of individuals with mental illness in many countries such as Canada (Sussman 1998), the United Kingdom (Killaspy 2006), and Australia (Burdekin 1993). With the development of psychiatric medications (such as chlorpromazine and lithium) and the human rights movement, large psychiatric hospitals were closed in various places such as the United States around the 1950s (Hudson 2016). The sudden closure of psychiatric hospitals in the United States resulted in many people with mental illness becoming homeless, an increase in crime rates, and enormous burden on families caring for people with mental illness (Hudson 2016). Community mental health services have since been developed to support people living in the community. To coordinate the care of people with mental illness, case management has taken an important role in supporting people with mental illness and monitoring their mental health status (Fossey et al. 2012). Psychosocial rehabilitation programs such as supported housing, clubhouse, and social skills training have also been developed to improve the functioning skills of people with psychiatric disability. Social workers in mental healthcare are usually part of a multidisciplinary team (MDT) in the organizations providing formal services. Social workers are expected to perform many different roles in relation to working with individuals, families, and community and within the MDT. These numerous roles that social workers in mental health practice may be engaged in are described in detail in Bentley (2002). These roles include potentially being crisis counselors, diagnosticians, therapists, mediators, educators, skills trainers, case managers, medication facilitators, consumer and family consultants, collaborators on interagency and interdisciplinary teams,
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advocates and community organizers, program evaluators and researchers, and administrators and policy analysts. The generic role of a social worker in case management may pose additional opportunities and potential threats to the profession within the MDT (Lloyd et al. 2004; Renouf and Meadows 2012). As a result of these many different and potentially conflicting roles, mental health social workers need to have knowledge, values, and skills that together constitutes the “5 Cs” comprising being compassionate, committed, collaborative, creative, and competent (Bentley and Taylor 2002: 13–16). Social workers in mental health services often adopt a person-centered approach and family-oriented practice framework. In dominant individualized-focused mental health services, social workers may neglect the well-being and recovery of families in the treatment process (Hungerford and Richardson 2013; Poon et al. 2017). The recovery of individuals with mental illness and their families will need to be simultaneously addressed by social workers in mental health services (Poon et al. 2018). In addition, within a highly regulated practice context, social workers may overly emphasized risk management and paperwork, therefore neglecting therapeutic work with individuals (Sawyer 2008). In countries with more developed mental health laws, social workers may be required to align their practice with mental health legislations, which may cause an ethical dilemma in supporting individuals or families impacted by mental illness (Brophy and McDermott 2013). The social work role in mental health services in the future may be influenced by factors that relate to practice issues and macro-forces in the wider community. The direction of scientific inquiry on human behavior and change, economic, and political concerns in a world that is increasingly competitive in the development and utilization of scarce resources and the rise of social and cultural awareness all act to challenge the expertise of professional knowledge and skills in improving the quality of life for people with mental health problems. In mental healthcare, the movement from institution to community mental health services will put pressure on the process of integrating health and social care services. Antipsychotic medication may help to reduce symptoms and contribute to the stabilization of the psychiatric condition and restore functioning to premorbid state and regain roles that are valued in society. Rehabilitation is about the social service journey, and its success is influenced by the interface between the service user and the professionals in the working relationship. Anthony and Farkas (2012) in the preface to a guide to psychiatric rehabilitation practice concluded that there now exist a fundamental philosophy, principles, and values of psychiatric rehabilitation and substantial knowledge base with a variety of models of service that can make a critical contribution to promoting recovery. To be effective social workers involved in this area of mental healthcare require training not just in being competent in developing models of service but also gaining the knowledge base of psychiatric rehabilitation and the fundamental principles underlying its practice. Recovery, on the other hand, is often not a structured process and does not always move in a linear progression in gaining knowledge and skill. It is rather a personal journey unique to each individual that involves reassessing one’s attitudes, values, feelings, goals, and roles as a result of the mental health condition and how each of
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these together affects the individual’s ability to live a life that is functional and satisfying in spite of having to live with the mental health problem (Anthony 1993). The journey toward believing in one’s growth potential and taking responsibility for one’s life, disorder and problems is subject to internal as well as external processes. Accommodating one’s illness is an existential challenge in believing that one is worthy regardless of the illness and what the environment assesses one to be. The journey can be fraught with self-doubt and self-stigma as well as community stigma and lack of inclusion. Unexpected events and the ups and downs of everyday life during the recovery may make the journey like a roller coaster ride for both the individual and family. The ecological space of the recovering individual such as family, workplace, neighborhood, and community may also require similar changes in perceptions regarding the illness, the worth of the recovering person, and the importance of acceptance and social support. Social work in mental health therefore has to broaden its scope and practice beyond working with the individual and the family to include advocacy and social development in the mesosystem and the macrosystem of the recovering individual. Social integration of someone with mental illness is a community journey as much as recovery is a personal journey. In addition, the social worker in mental healthcare also has to contend with institutional responses in terms of programming and funding for services especially for those whose financial conditions make it difficult for them to access preventive and secondary care. Changing processes in organizations, managed care, and healthcare financing is a social policy journey that the social worker had traditionally been engaged in as a knight in white armor, but increasingly the battle is now joined by persons who have recovered or are recovering. People who had taken the responsibility for their own growth and quality of life are now more vocal and visible in advocating for policies that contribute to facilitating their journey to obtaining wellness and satisfaction in spite of the illness. The implication for social work is the need to adjust its role to one of partnership between the recovering individual and the practitioner rather than as an expert. The traditional paradigm established by psychiatry in delineating and labeling behaviors and syndromes as mental illness has been increasingly challenged especially with the publication of the DSM-5 in 2013 (American Psychiatric Association 2013). Controversy over the DSM-5 includes debates over many areas including the inclusion and categorization of disorders and relevance for different population groups across the life span such as the diagnosis and treatment of agespecific disorders and cultural relevancy in multicultural societies (Rose and Cheung 2012). Traditionally, mental health professionals have relied on the medical model using succeeding editions of the DSM from 1 to 5 to categorize disorders on the basis that mental disorders are diseases with the assumption that the individual with the disorder needs to be treated and fixed. For example, the use of medication that affects the biochemistry in the brain is expected to alter the physiology that gives rise to the problem. Social workers and counseling psychologists join other medical professionals as part of the multidisciplinary team in treating the behaviors of individual persons as diagnosed by the DSM. This paradigm in mental healthcare focuses primarily on correcting what has gone wrong with the individual (or the family)
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more than in promoting what can make it right such as understanding and alleviating broader social and environmental stressors impinging on the patients. Nevertheless, although modern research has debunked the separation of the mind and the body (Littrell 2008a), individuals do vary in their behaviors, and some of these variations can be attributable to genetic differences. Littrell (2015: 12) stated that “Scientists can identify which variations in the gene recipe for making a protein (called an allele) are associated with particular behavioral manifestations.” However, just as the body can affect behavior (as viewed within the field of neuroscience), subjective states can also affect behavior and disease processes (as viewed within the fields of social science and psychoneuroimmunology). Earlier research data showed, for example, that immunocompetence may be enhanced by psychosocial interventions (Kiecolt-Glaser et al. 1985). More recent research showed the link between stress and cardiovascular disease. Cardiovascular disease is presently viewed as an inflammatory disease. A summary of data on the subject showed that stressful events are associated with chronic inflammatory states and could explain the link between stress and cardiovascular disease (Littrell 2008b). For example, cardiovascular risk factors may include such stressors as unfairness in the workplace and lack of control over working conditions, racism, and, in societies with wider income gaps between the rich and the poor, increased stress may be a possible explanation for diminished health outcomes across all socioeconomic factors. The implication is that social work in mental healthcare must increasingly accept the challenge of working through both direct practice in the microsystem as well as on broader structural issues across the meso-, exo-, and macrosystems and not just practice within the medical model of diagnosis and treatment of the individual.
Conclusion Theories on the causes and the relevance of various treatment paradigms are spread over a wide range of disciplines and belief systems as expounded in the earlier sections of the chapter. Recent research in etiology and the use of psychosocial interventions in conjunction with medical treatment point to the continued importance of using a biological as well as a psychosocial and spiritual approach in the management of psychiatric symptoms and provision of psychiatric rehabilitation. However, recent research has also shown that the effect can be both ways. Biochemistry can affect behavior but emotional state of being can also alter biochemistry and behavior. Therefore, social workers should consider adopting a biopsychosocial-spiritual approach in mental health practice. Social work in mental health has also moved beyond the focus on treating the individual living with a mental illness as helpless and need to be “fixed.” The recovery movement has recognized that human beings can exercise agency when provided the opportunity and support to make sense of their illness and find the strengths within themselves and their eco-space to continue living lives that are satisfying and fulfilling for themselves. Social workers may take on many roles in mental healthcare with each role contributing to the alleviation of suffering for
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people with a mental illness. David Howe (1987) wrote about a taxonomy of social work theories and developed a framework for categorizing various social work activities in practice. Social workers have the “fixer” orientation when their work is functionalist in nature with the professional providing expertise and resources in working with individuals with a problem. Social workers who act as interpretivists in their practice are “seekers after meaning” focusing on the understanding of subjective interpretations of experience and problem-solving as individuals in their particular context. However, there are situations where the social worker’s focus of intervention is beyond the individual to the needs of the community of people with similar needs. Working with such communities or groups reflects the radical humanism in developing and supporting self-help and community development in social workers whose function is mainly as “raisers of consciousness.” Finally, in the last category, social workers roles may be that of a radical structuralist rallying people with similar problems to fight for social and political change. Although times changed and social work practice has developed in breadth and depth since the book (Howe 1987) was first published, it seems that social work in mental healthcare has continued to work on all these four paradigms. Social work in mental healthcare may need to do so even more visibly in the future. Human needs and conditions remain the same, and the interface between needs and solutions continues to be dynamic and requires addressing at all levels from the individual in the microsystem to the societal and global macrosystem.
Cross-References ▶ Developmental Approach to Mental Health ▶ Māori Social Work and Māori Mental Health in Aotearoa New Zealand ▶ Medical Perspective on Mental Health ▶ Mental Health and Social Work: The Islamic Perspectives ▶ Psychological Perspective ▶ Social-Cultural Ecological Perspective ▶ The Role of Religious Institutions in Mental Health Rehabilitation and Recovery in India
References Alexander FG, Selesnick ST (1966) The history of psychiatry. Harper & Row, New York American Psychiatric Association (2013) The diagnostic and statistical manual of mental disorders, 5th edn. American Psychiatric Association, Washington, DC Anthony WA (1993) Recovery from mental illness: the guiding vision of the mental health service system in the 1990’s. Psychosoc Rehabil J 16(4):11–23 Anthony WA, Farkas MD (2012) The essential guide to psychiatric rehabilitation practice. Boston University Center for Psychiatric Rehabilitation, Boston
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19
Bentley KJ (2002) Social work practice in mental health contemporary roles, tasks, and techniques. Brooks/Cole, Cengage Learning, Belmont Bentley KJ, Taylor MF (2002) A context and vision for excellence in social work practice in contemporary mental health settings. In: Bentley KJ (ed) Social work practice in mental health contemporary roles, tasks, and techniques. Brooks/Cole, Cengage Learning, Belmont, pp 13–16 Bishop GD (1994) Health psychology integrating mind and body. Allyn and Bacon, Boston Bronfenbrenner U (1979) The ecology of human development: experiments by nature and design. Harvard University Press, Cambridge Bronfenbrenner U (1986) Ecology of the family as a context for human development: research perspectives. Dev Psychol 22(6):723–742 Bronfenbrenner U (1994) Ecological models of human development. In: Husen T, Postlethwaite TN (eds) The international encyclopedia of education. Pergamon Press, Oxford Brophy L, McDermott F (2013) Using social work theory and values to investigate the implementation of community treatment orders. Aust Soc Work 66(1):72–85. https://doi.org/10.1080/ 0312407X.2011.651727 Burdekin B (1993) Human rights and mental illness: report of the national inquiry into the human rights of people with mental illness, volumes 1 and 2. Australian Government Publishing Service, Canberra Chan CLW (2001) An eastern body-mind-spirit approach: a training manual with one-second techniques. Department of Social Work and Administration, the University of Hong Kong. Hong Kong University Press, Hong Kong Cheung FMC (1986) Psychopathology among Chinese people. In: Bond MH (ed) The psychology of the Chinese people. Oxford University Press, Hong Kong, p 172 Compton BR, Galaway B, Cournoyer BR (2005) Social work processes, 7th edn. Brooks/Cole, Cengage Learning, Belmont Elliot I (2016) Poverty and mental health: a review to inform the Joseph Rowntree Foundation’s anti-poverty strategy. Mental Health Foundation, London Fossey E et al (2012) Case management. In: Meadows G, Farhall J, Fossey E, Grigg M, McDermott F, Singh B (eds) Mental health in Australia: collaborative community practice. Oxford University Press, South Melbourne, pp 428–450 Foucault M (2006/2009) History of madness. Routledge, New York Freud S (1909/1959) Beyond the pleasure principle. Bantam, New York Freud S (1938) The psychopathology of everyday life. In: Brill AB (ed) The basic writings of Sigmund Freud. Modern Library, New York Freud S (1949) An outline of psychoanalysis. Norton, New York Gharaibeh N (2008) Psychiatry and Arab Laws. Arab Psynet J 20 Gold JM (2010) Counselling and spirituality, integrating spiritual and clinical orientations. Pearson Education Inc, Upper Saddle River Goldstein H (1986) Education for social work practice: a cognitive-cross-cultural approach. Int Soc Work 29:149–164 Green D, McDermott F (2010) Social work from inside and between complex systems: perspectives on person-in-environment for today’s social work. Br J Soc Work 40(8):2414–2430. https://doi. org/10.1093/bjsw/bcq056 Greene RR (2007) Social work practice a risk and resilience perspective. Thomson Brooks/Cole, Belmont Halliwell M (2013) Therapeutic Revolutions (electronic resource): medicine, psychiatry, and American culture. Rutgers University Press, New Brunswick Hepworth DH, Rooney RH, Rooney GD, Strom-Gottfried K (2017) Direct social work practice theory and skills, 10th edn. Cengage Learning, Boston Howe D (1987) An introduction to social work theory: making sense of practice. Wildwood House, London Hudson CG (2016) A model of deinstitutionalization of psychiatric care across 161 nations: 2001–2014. Int J Ment Health 45(2):135–153. https://doi.org/10.1080/00207411.2016.1167489
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Hungerford C, Richardson F (2013) Operationalising recovery-oriented services: the challenges for carers. Adv Ment Health 12(11):11–21. https://doi.org/10.5172/jamh.2013.12.1.11 Hyman SE (2000) The genetics of mental illness: implications for practice. Bull World Health Organ 78(4):455–463 Islamweb (2004) The Islamic view of mental illness. Fatwa No. 86999. Islamweb. http://www. islamweb.net Kiecolt-Glaser JK et al (1985) Psychosocial enhancement of immunocompetence in a geriatric population. Health Psychol 4(1):25–41. https://doi.org/10.1037/0278-6133.4.1.25 Killaspy H (2006) From the asylum to community care: learning from experience. Br Med Bull 7980(1):245–258. https://doi.org/10.1093/bmb/ldl017 Lee MY, Ng S-M, Leung PPY, Chan CLW (2009) Integrative body mind spirit social work: an empirically based approach to assessment and treatment. Oxford University Press, New York Littrell J (2008a) The mind-body connection: not just a theory anymore. Soc Work Health Care 46(4):17–37 Littrell J (2008b) New developments in understanding cardiovascular disease and the implications for social work. Soc Work Health Care 46(2):35–49 Littrell J (2015) Neuroscience for psychologists and other mental health professionals – promoting well-being and treating mental illness. Springer, New York Lloyd C, King R, McKenna K (2004) Generic versus specialist clinical work roles of occupational therapists and social workers in mental health. Aust N Z J Psychiatry 38:3 Mafullul YM (2003) Forensic psychiatry in Nigeria: the current status. Am J Forensic Psychiatry 24(4):45–64 Maslow AH (1954) Motivation and personality. Harper & Row, New York Maynard BR, Boutwell BB, Vaughn MG (2017) Advancing the science of social work: the case for biosocial research. Br J Soc Work 47(5):1572–1586. https://doi.org/10.1093/bjsw/bcw108 McGoldrick M, Gerson R, Petry S (2008) Genograms assessment and intervention, 3rd edn. W.W. Norton & Co. Inc., New York Mun S, Ow R (2017) Death of a child: perspective of Chinese mothers in Singapore. J Relig Spiritual Soc Work Soc Thought 36(3):306–325. https://doi.org/10.1080/ 15426432.2017.1319781 Neugebauer R (1979) Medieval and early modern theories of mental illness. Arch Gen Psychiatry 36:477–483 Ow R, Saparin NHB (2014) Malay muslim worldviews: some thoughts for social work practice in Singapore. J Relig Spiritual Soc Work Soc Thought 33(1):73–94. https://doi.org/10.1080/ 15426432.2014.874261 Poon AWC, Joubert L, Mackinnon A, Harvey C (2017) Recovery for carers of people with psychosis: a longitudinal population-based study with implications for social work. Br J Soc Work. https://doi.org/10.1093/bjsw/bcx120 Poon AWC, Joubert L, Harvey C (2018) Perceived needs of carers of people with psychosis: an Australian longitudinal population-based study of caregivers of people with psychotic disorders. Health Soc Care Community 26(3):412–422. https://doi.org/10.1111/hsc.12530 Renouf N, Meadows G (2012) Working collaboratively in teams. In: Meadows G, Farhall J, Fossey E, Grigg M, McDermott F, Singh B (eds) Mental health in Australia: collaborative community practice, 3rd edn. Oxford University Press, South Melbourne, pp 325–333 Rogers CR (1961) On becoming a person. Houghton Mifflin, Boston Rose AL, Cheung M (2012) DSM-5 research: assessing the mental health needs of older adults from diverse ethnic backgrounds. J Ethn Cult Divers Soc Work 21:144–167 Sabry WM, Vohra A (2013) Role of Islam in the management of psychiatric disorders. Indian J Psychiatry 55(suppl 2):S205–S214. https://doi.org/10.4103/0019-5545.105534 Saleeby D (1992) Biology’s challenge to social work: embodying the person-in-environment perspective. Soc Work 37(2):112–118 Sands RG (2001) Clinical social work practice in behavioural mental health a postmodern approach to practice with adults, 2nd edn. Allyn & Bacon, Boston
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Sands RG, Gellis ZD (2012) Clinical social work practice in behavioral mental health toward evidence-based practice, 3rd edn. Allyn and Bacon, Boston Sawyer A-M (2008) Risk and new exclusions in community mental health practice. Aust Soc Work 61(4):327–341. https://doi.org/10.1080/03124070802428183 Scull A (2015) Madness in civilization. Princeton University Press, Princeton Seligman MEP (2002) Positive psychology, positive prevention, and positive therapy. In: Synder CR, Lopez SJ (eds) Handbook of positive psychology. Oxford University Press, New York, pp 3–7 Sheafor BW, Horejsi CR (2008) Techniques and guidelines for social work practice, 8th edn. Pearson Education Inc, Boston Substance Abuse and Mental Health Services Administration (SAMHSA) (2017) Recovery and recovery support. Substance Abuse and Mental Health Services Administration (SAMHSA). https://www.samhsa.gov/recovery Sue D, Sue DW, Sue S (2003) Understanding abnormal behavior, 7th edn. Houghton Mifflin Company, Boston Sussman S (1998) The first asylums in Canada: a response to neglectful community care and current trends. Can J Psychiatry 43(3):260–264. https://doi.org/10.1177/070674379804300304 Tackett B (2018) Behavioral health issues. https://www.projectknow.com/research/behavioralhealth Taitimu M, Read J, McIntosh T (2018) Nga Whakawhitinga (standing at the crossroads): how Maori understand what western psychiatry calls ‘schizophrenia’. Transcult Psychiatry 55(2):153–177. https://doi.org/10.1177/1363461518757800 Tausig M, Michello J, Subedi S (2004) A sociology of mental illness, 2nd edn. Pearson Education Inc, Upper Saddle River The Holy Bible, New King James Version (1982) Thomas Nelson Inc., Nashville United Nations Development Programme (UNDP) (2016) Human development report, Human development for everyone. United Nations Development Programme (UNDP). https:// reliefweb.int/sites/reliefweb.int/files/resources/2016_human_development_report.pdf Watson JB, Rayner R (1920) Conditional emotional responses. J Exp Psychol 3:313–317 Webber M, Joubert L (2015) Social work and recovery. Br J Soc Work 45(suppl 1):i1–i8. https://doi. org/10.1093/bjsw/bcv125 World Health Organisation (2018) ICD-11 international classification of diseases for mortality and morbidity statistics (Eleventh revision). WHO, Geneva World Health Organization (2014) Mental health: a state of well-being. World Health Organization. http://www.who.int/features/factfiles/mental_health/en/
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Ethics, Values, and Recovery in Mental Health Social Work Practice Bani Aadam and Melissa Petrakis
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Recovery as a Value Set . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Ethics, Recovery, and the Mental Health System . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Using Ethics to Guide Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Normative Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Rational Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Contextual Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Interpersonal Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Work Practice, Ethical Dilemmas, and Codes of Ethics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Power and Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Implicit Power Dynamics in Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Human Rights . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Ethical Dilemmas in Practice: A Case Scenario . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . A Description of Entering a Mental Health System . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Ethical Dilemmas Brought Up in the Above Scenario . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Coercion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Risk . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Discrimination and Bias . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Listening to Lived Experience . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Enacting Compassion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Inclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Empowerment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Competency . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Discretion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Power, Culture, and Reflective Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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B. Aadam (*) NSW Ministry of Health, University of NSW, Sydney, NSW, Australia e-mail: [email protected] M. Petrakis Department of Social Work, Monash University, Melbourne, VIC, Australia Mental Health Service, St Vincent’s Hospital, Melbourne, VIC, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_2
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Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 40 Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41 References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41
Abstract
Health care is bureaucratic and outcomes focused. It is influenced by market and political forces, as much as scientific ones, with friction between good practice and the neoliberal commodification of health services creating tensions. Decisions in health care are increasingly shaped by a myriad of “drivers and contingencies” against a backdrop of complex and conflicting values and ideas. Clinical governance, safety and quality, research and evaluation, cost-saving, and cost-efficiencies all intermingle to create a multifaceted working environment that needs to be agile to be responsive to people’s needs. It is against this backdrop, and in the growing complexity in all areas of health care, that recovery can be seen to enable the four core ethical principles (4Ps): respect (of autonomy), nonmaleficence (not doing harm), beneficence (doing good), and justice (treating people fairly). Our overall proposition is that the concepts and values that recovery drives, should be seen as central components to social work practice because it aligns with and complements codes of ethics, reinforces social work practice and standards, and enables better health and social outcomes. Keywords
Ethics · Values of recovery · Ethical practice · Code of ethics · Social work · Mental health · Recovery · Lived experience perspective
Introduction Ethics is a broad subject matter. It is fundamentally however, about what is right and wrong (Paalanen and Hopia 2017, p. 2). The purpose here then is to speak to ethics – which essentially orbits the notions of respect, nonmaleficence, beneficence, and justice (Beauchamp and Childress 2013; Hoop et al. 2008; Gillon 2003) – as it relates to mental health social work practice. Values is another expansive topic. Here we will define values as a set of collective and agreed-upon attitudes, beliefs, and ideas that inform and guide ethical behavior and decisions to pursue the normative ethical ideal of what we ought to do – or what is “good” practice. When we look at ethics and values in mental health practice, the idea of recovery is currently considered to be the most suitable ethical and value-laden concept today. Accordingly, this chapter will frame recovery as a set of values and outline how ethical practice can assist social workers. In doing so, we will look at what recovery means, what structures are involved in mental health practice, and how practice dilemmas can be addressed. Thoughts on what an “expert” or trained “professional” are; how we define duties and responsibilities; how we can delineate quality, safety,
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and risk; what is evidence-based practice; and what “diagnosis” and “illness” mean, will be explored as we look at ideas of coercion, informed consent, decision-making, self-determination, inclusion, and much more, through an ethical and value-based lens of recovery. Our paper will outline what should acceptable and not acceptable in the interaction between practitioner and consumer, service provider and service user, and service systems and culture. Implicit in these juxtapositions are the power dynamics at play, which have historically and culturally been curated (AASW 2010, p. 14). Although this will be far from an exhaustive survey, it should provide the reader with a taste of the ethical complexities (and opportunities) one may encounter and how recovery can supplement, even drive, better professional judgment, decision-making, and practice. This is an imperative, giving the necessary confidence to practitioners in their ability as social workers, to conduct their work to the high standard the profession holds itself in. This chapter draws upon both postgraduate scholarship in sociology and a lived experience of the use of mental health services. As such, this chapter examines the subject matter in a philosophical as well as person-centered and inclusive framing. Both authors hope this speaks to the reader as modeling recovery orientation and having mindfulness in terms of embodying the values and practices being discussed.
Recovery as a Value Set Above, we broadly defined values as a set of collective and agreed-upon attitudes, beliefs, and ideas. More specifically for the social worker in a mental health environment, it comprises of “unique preferences, concerns and expectations. . .which must be integrated into clinical decisions” (Sackett et al. 2000, p. 1). Today, recovery, as set of collective and agreed-upon attitudes, beliefs, and ideas that aims to address individuality via preferences, concerns, and expectations, is the most dominant paradigm shaping current mental health practice across the globe (Braslow 2013). Recovery emerged as a reaction of deinstitutionalisation and the anti-psychopharmaceutical transfiguration (Braslow 2013), as it challenged, and still continues to challenge, the perceptions of “experts” and their understanding of people with severe psychosocial challenges as “irrational” (Ramon 2009, p. 1616) and “passive recipients of treatment” (Hyde et al. 2014, p. 6). There is no consensus on what the concept of recovery exactly is (Davidson et al. 2016, p. 4), it has nevertheless become ubiquitous (Rose 2014, p. 17; Ramon 2009, p. 1615) across community, public and private settings, with recovery concepts (such as the CHIME: Connectedness Hope Identity Meaning Empowerment) and recovery-oriented practice and principles (such as Australia’s 2013 A national framework for recovery-oriented mental health services) being central features to mental health practice and policy, as well as service aims and objectives (Davidson et al. 2016, p. 4; Hyde et al. 2014, p. 5; Ramon 2009, p. 1615).
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For the individual who has experienced or is experiencing severe psychological distress, recovery means connecting and having relationships, attaining hope, understanding one’s abilities and limitations, engaging in an active and meaningful life, exploring one’s identity, having a positive sense of self, and learning or incorporating tools and techniques that make one resilient. Moreover, it is about personal autonomy, being able to make decisions about one’s own treatment and support; being given responsibilities, at least in part, of one’s own health care; and being empowered by the system and the people around them. For a practitioner, recovery is about listening, or better still, privileging lived experience voices and narratives (because it provides hope), including people in their health-care plans (because it empowers), allowing people the freedom and space to make decisions (to aid in self-determination and identity building), being responsive and allowing for some flexibility (to provide compassion and dignity), and allowing for mistakes via trial and error (to facilitate positive risk taking). It is sometimes referred to as “personal recovery” to distinguish it from the medical perspective of recovery – the idea that one is genetically and biologically lacking and whereby severe and persistent psychological distress is seen as one of pathology and dysfunction (Fulford 1989, p. 248). This medicalized approach subsequently impacts treatment, primarily through diagnosis and “disease” management (Fulford 1989, p. 85). Burns puts the distinction between the medical and personal models of recovery cogently by stating: The institutionalized medical language of mental disability is, at best, pejorative and situates mental conditions squarely within an individual disease framework. Terms such as ‘mental disease’ and ‘mental disorder’ construct psychological, emotional, and behavioral conditions as innate, biological, pathological states independent of socioeconomic, cultural, and political context. Likewise, the prevailing medical model of mental disability — which defines disability as an individual’s ‘restriction in the ability to perform tasks’ and handicap as ‘the social disadvantage that could be associated with either impairment and/or disability’ — serves to establish a direct causal relationship between individual impairment and disability. (2009, p. 11)
Recovery for the practitioner then is meant to go beyond pathological and deficitbased perspectives and looks at one as a complete and autonomous individual with self-determination. One of the critical components of recovery is to try and give power to the person seeking support, by placing them at the center of the decision-making process and shifting the focus on them rather than the service provider. By doing this, it starts to recognize the rationality and capacity of people even if it be temporarily impaired with experiences of extreme distress (Ramon 2009, p. 1620). As we can see then, recovery – as an agreed-upon set of beliefs, attitudes, and concepts – becomes a useful value-add for social work practice. A critical appraisal of recovery includes the “capture” of recovery by mainstream services (Pilgrim 2008; as cited by Davidson et al. 2016, p. 4). This has been seen to “dumb down opportunities” in critical thinking and practice (ibid). Detractors also argue that recovery is too narrow, mainly focusing on the inner subject experience of the individual while ignoring the relational and structural experiences that bring
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about distress, “inequality, and injustice” (Ramon 2009, p. 1620; Harper and Speed 2012, p. 23; as quoted by Davidson et al. 2016, p. 4). It is only when recovery is seen more broadly, namely, through the social model of disability (which argues that psychosocial disability is caused by the way society is organized, rather than by a person’s impairment or difference) or through the framework of human rights (which promotes equity, freedom and fairness) that recovery can claim to create something substantive in areas like participation, parity of opportunity, equality, and autonomy. Here, issues of inclusion, choice, control, and self-determination are “not considered to be solely issues of growth and development or [even] quality of life, but are viewed rather as fundamental to the rights and responsibilities of citizenship” (Davidson et al. 2009, p. 14). It is surprising then that the practice of the recovery has been, to an extent, uncritically accepted by practitioners working in the field (Davidson et al. 2016, p. 4), as well as by people who have themselves experienced acute psychological distress and have received recovery-type support. It could be because recovery is often said to be a personal and unique experience; facilitating a journey of growth, exploration, and awareness; and providing an opportunity for self-discovery and transformation. It could also be because recovery allows people who have historically been stripped of their power and ability to make decisions for themselves, to gain a modicum of control around treatment and support, enabling agency and allowing people to feel invested in their own recovery. This ownership creates a sense of responsibility and accountability, empowering people as they self-direct “in devising their own lives and values” (Gillon 2003, p. 16). In other words, people accept the concept of recovery because it is the best there is. It is a supportive and empowering experience, especially when comparing it to the medical model of recovery and other alternative treatment methodologies one usually comes (or has come) into contact with in mainstream treatment practices. Recovery is ultimately aspirational, with the idea of living life well, the way one wants, with or without the presence and experiences of mental health distress. Hence, recovery should be viewed by practitioners as an ethical obligation. So far, we have argued that recovery can be seen as a set of values and outlined what these values can translate to for both the individual and practitioner. The following section will look at how an ethical framework can assist in guiding practitioners in this challenging and dynamic system.
Ethics, Recovery, and the Mental Health System Ethics is a branch of philosophy that addresses notions of what is right and wrong, good and bad. When applied, ethics addresses practical everyday concerns and serves as a tool in establishing and clarifying boundaries (Paalanen and Hopia 2017, p. 2; Adams 2009, p. 84; Robertson 2009, p. 3). In this sense, ethics aims to find and implement the best possible answers to questions and dilemmas that arise as it guides decision-making and behavior. Ethics thus provides normative guidelines
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for behavioral and practice standards that are expected and even obligated (Adams 2009, pp. 83–84). For people labeled with a mental “illness,” many unacceptable scenarios that breach human rights have been normalized. For example, anger, frustration, and dissatisfaction with medical treatment are said to be part of one’s “resistance” and “non-compliance” with a “lack of insight” demanding compulsory treatment. There is a growing body of evidence that indicates this clinical and reductionist approach contributes to negative health, and social outcomes, even leading to death (McAnally 2017). Other ethical matters that one can point to as inherently controversial in the way they are understood include seclusion and restraint, hospitalization, assessment of capacity in decision-making, guardianship, and the rights of family (Paalanen and Hopia 2017, p. 10). With so much inherent systemic tension, social work practice can be precarious, particularly when the values and ethics of social work intersect with a health system that focuses on risk management, outcomes, and efficiencies (Fulford 1989, p. 131). Other discreet dilemmas include how mental health services focus on “monitoring symptoms and ascertaining the risks people may present to themselves and others. This well-intentioned but negative focus on deficits has contributed to stigma, discrimination and exclusion experienced by service users” (Davidson et al. 2016, p. 1). This culture of practice reinforces the image of people who experience severe psychiatric symptoms as “dangerous” and “irrational” and who need to be restrained and sedated to be treated. Here, structural violence is present alongside treatment.
Using Ethics to Guide Practice To avoid falling into a culture of apathy and maltreatment, social workers should use recovery to inform their practice. They should also use ethical decision-making methods that will assist them in fulfilling their responsibilities in maximizing health outcomes and minimizing abuse and mistreatment. Four methods in ethical reasoning to arrive at principled decisions will now be outlined.
Normative Approach Ethical reasoning asks how a professional should behave in a certain situation and how one can improve workplace protocols that support professional practice. In this normative approach, the practitioner uses rules or guidelines in their workplace to support the people they are serving. If the conventions they work under do not support the people they serve, then social workers should seek to change them (Paalanen and Hopia 2017, p. 3). Questions like “how will my decisions or actions affect people”; “how can my practice minimise harm”; and “what will create the least inconvenience and hardship” can assist practitioners in exploring solutions to some of the ethical dilemmas they encounter and to provide the moral justifications for the changes they want to see implemented.
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Rational Approach Decisions should always be logically consistent, compatible with the facts concerning the situation, and well-grounded in evidence (Paalanen and Hopia 2017, p. 3). This rational approach does not give space to one’s beliefs and assumptions. One’s instinctual feelings are not enough to disregard ethical boundaries or to validate exploitation. Moreover, prejudices and stigma shaped through diagnosis and illness need to be monitored, identified, and acknowledged, as questions of evidence-based treatment and how services and programs impact people exist as central features in this ethical line of reasoning.
Contextual Approach A service practice may not be ethically feasible to every person in every situation. It is always necessary that the social worker takes into account the milieu of the service user. This contextual approach thus needs social workers to discern the situation of the individual and service setting. Questions about family, culture, and religion; whether they are experiencing their symptoms intensely; what assets and strengths can they bring to the table; and what past treatment has contributed to their recovery can all be part of the conversation with the supporting team, as well as the service user, to explore treatment and support strategies.
Interpersonal Approach Finally, the interpersonal approach in formulating decisions dictates that ethical practice is found in the interaction or the interpersonal activities that occur between people. Therefore, ethically sound decisions transpire through the interaction with service users and the subsequent effects of that interaction. Here we find the relationship between the service user and service provider as fundamental to mental health service delivery (Paalanen and Hopia 2017, p. 3). Questions about how I should interact with people and what are the consequences of those interactions can be found at the forefront of this ethical technique.
Social Work Practice, Ethical Dilemmas, and Codes of Ethics When ethics is applied to a profession, it is usually in the form of codes of ethics (Robertson 2009, p. 3). Codes of ethics are values and practice standards that assist in addressing ethical dilemmas and conflicting practice principles (Adams 2009, p. 83; Robertson 2009, p. 42). They are there to assist in realizing respect for persons, beneficence, nonmaleficence, and justice – “the cornerstones of modern ethical codes for the health professions” (Hoop et al. 2008). Applying codes of ethics within the mental health service and support sectors can be challenging though. This is
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because these sectors are now human rights framed, demand a person-centered emphasis, call for collaborating with people and their supporters, and take an individualistic and nuanced approach to the needs and circumstances of people. Recovery values, principles, and approaches can assist here and are worthy explicit additions to social work codes of ethics. We state explicit because, implicitly, recovery is already alluded to in many practices and documents including the National Association of Social Workers (NASW) Code of Ethics (2017): The primary mission of the social work profession is to enhance human well-being and help meet the basic human needs of all people, with particular attention to the needs and empowerment of people who are vulnerable, oppressed, and living in poverty. A historic and defining feature of social work is the profession’s focus on individual well-being in a social context and the well-being of society. Fundamental to social work is attention to the environmental forces that create, contribute to, and address problems in living. . .Social workers seek to enhance the capacity of people to address their own needs. Social workers also seek to promote the responsiveness of organizations, communities, and other social institutions to individuals’ needs and social problems.
The above quote lists empowerment, well-being, social context, and capacity building as goals for social workers to strive for when working with people which are all simultaneously corresponding core elements of recovery. Another example can be found in the Australian Association of Social Workers (AASW) Code of Ethics (2017) when it describes the profession’s purpose this way: The social work profession promotes social change, problem solving in human relationships and the empowerment and liberation of people to enhance wellbeing. Utilising theories of human behaviour and social systems, social work intervenes at the points where people interact with their environments. Principles of human rights and social justice are fundamental to social work.
The above quote from the AASW Code of Ethics suggests that the interface between people and the environment is intrinsic to social work practice (Hyde et al. 2014, p. 10). This description refers to the interpersonal ethical value outlined above and echoes Slade’s (2009) characterization that “[r]ecovery happens in the space inbetween person and context” (p4, as quoted by Hyde et al. 2014, p. 10). It is clear from the above that although there is an “invisibility” of recovery in the conversation (Hyde et al. 2014, p. 10; Ramon 2009, p. 1620), notions of recovery are already deeply embedded in social work practice. This is demonstrated with the social work profession initiating a number of recovery type ideas, like: the involvement of service users in their own treatment; incorporating strength-based practice into treatment and care; and exploring narrative and anti-oppressive practice theories (Hyde et al. 2014, p. 10; Ramon 2009, p. 1615). Notwithstanding the close alignment of recovery and social work practice codes of ethics, ethical dilemmas will still arise because as Hyde et al. in Australia remind us: . . .an alignment between principles of social work. . .and recovery concept[s]. . .does not of itself guarantee that the concepts are one and the same or that true recovery-oriented practice will automatically be intrinsic to the practice of all mental health social workers. The move from principal to practice requires deeper critical reflection that needs to commence at the
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level of mental health social work training, acknowledging and respecting lived experience as an alternative participatory and patient-centred epistemology. This will equip the mental health social worker to resist and critique the ‘pull’ of the dominant [medical] discourse. . .. (2014, pp. 10–11)
Reamer agrees, however, further adds that codes of ethics embrace standards that reflect the concepts of professional paternalism and protection of third parties (2006, p. 26). For instance, Section 1.02 under Self-Determination of the NASW Code of Ethics states that social workers should “. . .respect and promote the right of clients to self-determination and assist clients in their efforts to identify and clarify their goals” but that “[s]ocial workers may limit clients’ right to self-determination when, in the social workers’ professional judgment, clients’ actions or potential actions pose a serious, foreseeable, and imminent risk to themselves or others” (2017). While social workers strongly believe in clients’ right to identify and pursue goals of their choosing, there is tension here since social workers characteristically also hold firm to the ethical practice necessary to protect clients from harming themselves and/or others. It is acknowledged by Reamer that: Paternalism is such a difficult problem for social workers because most practitioners are drawn to the profession by a sincere wish to help people who are experiencing difficult problems in their lives – for example, people with clinical depression, who are suicidal, who are living in unsanitary housing, who are involved in abusive relationships, or who are addicted to drugs or alcohol. That is, limits on professional paternalism may run counter to many practitioners’ instincts to protect vulnerable people from engaging in self-destructive behaviour. (2006, p. 27)
Fundamentally then, in this multifaceted environment, which is primarily driven by the medical model of recovery, codes of ethics “. . .cannot resolve all ethical issues or disputes, or capture the richness and complexity involved in striving to make responsible choices within a moral community” (NASW 2017, p. 4). Rather, code of ethics assembles a set of contemporary values, ethical principles, and ethical standards to which “professionals aspire and by which their actions can be judged” (ibid). When a system is largely illness centered (not person centered), driven by professionals (not led by service users), is deficit based (not strength based), and managed through diagnosis, risk, capacity, and disease labeling, then ethical dilemmas will undoubtedly emerge. This old medical model archetype where it views people with acute mental health challenges as an inherent liability to society by virtue of their “deficiency” is what leads to prejudicial, discriminating, and even dangerous beliefs and practices. Throughout history, we see the acceptance and normalization of horrific and dehumanizing practices.
Power and Social Work Practice Throughout the Middle Ages, people experiencing acute and chronic psychiatric experiences were considered demonically possessed and executed as “witches” (Robertson 2009, p. 30). In the time of “enlightenment,” people were placed into
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abject conditions, incarceration, and excluded from society (ibid). During this period, peoples’ confinement often involved physical restraint with such things as manacles or chains (ibid). The “mentally ill” systematically become the subject of “ridicule and demeaning curiosity” epitomized by the systematic practice of England’s Bethlehem hospital where a paying public could tour the hospital to laugh at, demean, and poke residents with sticks (ibid). The twentieth century did not get better for people who experienced acute psychological distress. The western world was deeply influenced by eugenics, which promoted the removal of “inferior genetic stock” from the population (ibid p31). As an example, long before the gas chambers of World War I were operational, European psychiatrists were assisting in the gassing of psychiatric patients (Robertson 2009, pp. 31–32): The murders were coordinated by a [German] official, Philip Bouhler, assisted by three professors of psychiatry – Nitsche, Heyde and Hannecke. Bouhler coordinated the process from Berlin at Tiergartenstrasse 4, hence the reference ‘T4’. Aktion T4 resulted in the murders of seventy to eighty thousand people with psychiatric disorders, mental retardation, brain diseases such as epilepsy and those with histories of asoziale (antisocial) behaviour. A questionnaire put to all psychiatrists in German hospitals helped to identify patients who were chronically mentally ill, or had criminal pasts.
To assist in ascertaining who should be exterminated, questionnaires were given to all psychiatrists working in hospitals to help identify people who were chronically mentally ill. This even included eliminating children suffering from “idiocy,” Down syndrome, and other mental and intellectual disorders. By 1936, many people in mental health facilities were being transferred to Dachau and other locations for extermination (Robertson 2009, p. 31). In Australia in the 1960s and 70s, the Chelmsford Hospital scandal involved the use of the discredited practice of continuous narcosis or “deep sleep therapy” (DST). This is when people were chemically induced into constant subduing sedation, fed through a nasogastric tube with an administration of ECT. There were 24 deaths that occurred with this “treatment,” and those who escaped death, but were perceived to be unresponsive to deep sleep therapy, were referred to a local teaching hospital for cingulotractotomy – or to put it more bluntly, holes in the head surgery (Robertson 2009, p. 37). Clear in the severity of medical negligence, Robertson states that Chelmsford Hospital was also culpable in the use of inexperienced nurses to care for people (ibid). And this was not an isolated incident or rogue behavior from one or a group of people, but a comprehensive failure of the system. The Human Rights and Equal Opportunity Commission summarized the findings of the Burdekin Report (an account of the national inquiry of human rights for people with severe and persistent mental health experiences in 1993) this way: “people affected by mental illness suffered from widespread systemic discrimination and were consistently denied the rights and services to which they are entitled” (HREOC 1993, p. 15). The above section briefly discusses the abuse of power by “experts” and systems toward vulnerable groups of people, as well as indicate why ethics and the values society places in formulating good practice in the treatment of people experiencing
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severe and persistent psychological distress have been absolutely essential for not only people experiencing “illness” but for practitioners who help support them (Ramon 2009, p. 1615). Having described some extreme forms of abuses, we will examine the subtler power dynamics that a social worker will face in their practice.
Implicit Power Dynamics in Social Work Practice By its very nature, social work practice is political because it examines social structures as a means of improving peoples’ lives. Further, it operates within a political and bureaucratic system, as it engages with a contradiction between social work’s emancipatory values and the controlling interventions common in mental health practice (Maylea 2016, 2017; Davidson et al. 2016; Ramon 2009). “The challenge. . .includes remaining consistent with. . .ethical principles while also capable of competently balancing the. . .control dimensions of practice” (Brophy and McDermott 2012, p. 3). As opposed to some form of coercion and compliance to diagnose and treat, collaboration – with the aim to motivate and inspire – has been emphasized wherein people are actively engaged in the planning and implementation of their health plans (Maylea 2017; Brophy and McDermott 2012, pp. 2–3). Personalizing and ensuring the voices of service users are being heard, and if possible privileged, particularly for people who have been scheduled, equalizes these power differentials (Brophy and McDermott 2012). Attributes like compassion, transparency, accountability to facilitate choice, and self-determination are suitable here as the practitioner attempts to be inclusive and collaborative – that is, ethical. Being and operating in this way has shown to reduce the need for coercive intervention, so that “casework practice with involuntary clients need not be characterised by hostility and resistance. Rather, such a relationship can be based on an understanding of the individual client and the social and structural forces influencing their behaviour” (Brophy and McDermott 2012, p. 2). As we can see, social workers locate themselves alongside rather than having power over people. Social workers are thus intent on being active and purposeful in improving the lives of people facing challenging psychosocial situations and experiences, with some commentators even recommending that social workers spend time speaking out against the “evils of institutional racism and other forms of discrimination,” as well as intervene when they see injustices involving the people they are supporting (Anderson 2004). This is because, it is argued, there is an “over reliance on pharmacological interventions, coercive approaches and inpatient treatment” which is inconsistent with the principles of doing no harm, human rights, and citizenship (United Nation’s Human Rights Council 2017, p. 13).
Human Rights Human rights are protections articulated in law that recognize the inherent dignity and “equal and unalienable rights of all members of the human family.” They enunciate why and how to keep people safe from exclusion, abuse, and neglect
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(WHO 2017). It is on the basis of this fundamental understanding that the notion of “patient” rights started to develop (ibid). The principal document for people with mental health and psychosocial disabilities is the Convention on the Rights of Persons with Disabilities (CRPD). Upholding and championing human rights is a core value of social work practice (Fronek 2012). However, Nipperess argues a need to move beyond rhetorical commitments to an in-depth exploration of the relationship and contested nature of human rights and social work in mental health social work practice (ibid). It is here that recovery can make an impact. Both recovery and human rights essentially advocate for agency through inclusion and self-determination, for people to be involved in their own treatment and care, giving people the opportunities to own their decisions and take responsibility of their own destiny. “Nothing about us, without us” is a phrase that succinctly summarizes the approach as a fundamental driver of good ethical practice when working with people to improve their mental health outcomes. The above outlined examples of the obvious abuses of power in the past, the implicit and subtle power relationships inherent to the system, and the responsibility to protect the dignity and rights of people. We will now look at a case scenario to ground our premise and link the concepts and ideas of this thesis to practice.
Ethical Dilemmas in Practice: A Case Scenario The following paragraph will be a description of a somewhat standard scenario. The subsequent paragraphs will then address key themes. In this, we hope to illustrate what a recovery-oriented set of values in addressing common ethical dilemmas can look like on the ground in practice. (The irony here is that we are using a generalized example with prototypical themes, aspects and experiences, while at the same time, railing against a system entrenched with uniformity and standardization, particularly with assessment and evaluation tools. If people reading this case scenario feel uncomfortable with the description of what one may go through when entering and staying at a mental health unit, we encourage them to think the inverse and empathize with how people experiencing acute psychological distress feel when being categorized and boxed into diagnosis and labels.)
A Description of Entering a Mental Health System When a person is coerced into entering a mental health facility because they have been assessed as a “risk,” they are not only interacting with the staff they see but with a system that has a long history of enforcing its will. Decisions and undue preferences by service providers in the “management” of the person are set in motion. Treatment and support are done in a vacuum, without completely understanding the person, their background, context, or experiences. They are assessed, evaluated,
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spoken at, and pried, as they feel overwhelmed, judged, and stigmatized. A person is kept out of discussions about their own treatment and is not completely informed to gain an understanding and depiction of what is occurring to them. There is no time to establish a genuine relationship as practitioners get on with maintaining the system they work in. In this system, the individuals find themselves in a strange place, in unfamiliar surroundings, being compelled to do things they do not want to do. When the individual is asked for their preferences, they are given limited options to choose from and only what a medical model of recovery can provide given the culture, environment, and constraints the facility operates in.
Ethical Dilemmas Brought Up in the Above Scenario Coercion Coercion diametrically opposes human rights and a recovery approach because it places an individual in a position of particular disadvantage and unique vulnerability through diminished (and deprived) autonomy, control, and decision-making (Maylea 2016, p. 465). Consequently, coercion in mental health practice is antithetical to social work values of respect for persons and social justice (AASW 2010). Despite this, however, social work practice is undertaken on the assumption that there is a need for coercion (Maylea 2016, p. 465). Some have argued that “social work as a profession should reject the notion of coercion, and work towards a mental health support system which respects capacity, agency and recovery” (Maylea 2016, p. 465). Coercion can be seen as a “result of a systemic failure to protect the rights of individuals” (UNHRC 2017, p. 15) with the social work profession requiring social workers to minimize compulsion to facilitate peoples’ enjoyment of rights, dignity, worth, and autonomy (AASW 2010). By reducing coercion and advocating for treatment in the least restrictive manner, one can – given the context – instill dignity, self-worth, and self-determination. Or to put it another way, if it can be accepted that the exercise of their given powers has the potential to facilitate a less restrictive, less traumatic, and less stigmatizing pathway, then social workers have a legal and ethical obligation to apply them (Maylea 2017, p. 473). (See Lisa Brophy’s, ▶ Chap. 24, “Legal Provisions, Advocacy, and Empowerment,” in this book for further reading.)
Risk Notwithstanding the positive developments in policy in most western countries, the focus of mental health services remains on the concept of risk. This is despite the inability to “accurately predict the future and so prevent all harm” (Davidson et al. 2016, pp. 1–2). The preoccupation with risk is perhaps because there is a misconception that violence to oneself or others is a “hallmark” of mental illness
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(Leblanc and Kinsella 2016, p. 64; Robertson 2009, p. 30) with services and systems feeling obliged to act to minimize this danger (Maylea 2016, p. 5). Maylea states that “the relationship between diagnosed mental illness and violence to others is poorly understood and regularly overblown.” He explains that the “inability of mental health professionals to accurately predict risk of harm entirely undermines risk management as a justification for involuntary treatment” (2016, p. 7). This argument is vindicated with a review of a number of studies determining that there is no solid evidence for this assumption. Maylea further argues the most effective way to manage risk is to apply recovery values and approaches to practice (2016, p. 7). While it is recognized that this may not entirely eliminate the need for coercion, it will however “affect the process, impact, frequency and duration of these types of intervention” (Davidson et al. 2016, p. 9).
Discrimination and Bias Social workers, whether implicit or explicit, have practice bias – the undue influence of their education, training, and organizational culture. Stull and colleagues state that there is evidence that implicit and explicit biases occur and “differentially” predict clinical decisions (2013, p. 6). In their own investigation, they discovered that when they modeled their review using potential factors “greater implicit, but not explicit, bias significantly predicted greater endorsement of restrictive or controlling clinical interventions” (Stull et al. 2013, p. 6). Moreover, a mental health facility has a very prescriptive method of dealing with people. As soon as one is admitted, they are systematically triaged and processed. Documents that are recorded are now what defines the person. A mental health system, absorbed with “service-determined outcomes under the strictures of clinical governance” and subsumed with preordained processes, cannot comprehensively and genuinely take on a recovery-oriented approach, which essentially caters to personal, individualized, and very diverse journeys of recovery (2010, p. 155). For as Trivedi reasons, how can the ethical dilemma of hope, transformation, and citizenship fit in with systems that preserve institutional structures (2010, pp. 153–154)? These ethical constraints prompt Stull and colleagues to argue for social workers to reflect and practice “on the ways in which attitudes [and processes] convey bias” against consumers and “how biases influence how they intervene with consumers” (2013, p. 2).
Listening to Lived Experience Although people depend on the expertise of social workers, the bigger expert is the person who is experiencing their own distress and treatment. This means that social workers should become listeners (as well as advocates) who work to a model that privileges the lived experienced voice and the will and preferences of the person over a model that privileges one’s “best interest” (as determined by the system).
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This is a correction in culture, because as psychiatric survivor and activist Erick Fabris writes: “we are not even credited with having experience” (as quoted by Leblanc and Kinsella 2016, p. 64), and this discrediting of people as legitimate knowers of their own experiences represents what Fricker (2007) refers to as testimonial injustice, which tacitly distorts judgments of peoples’ credibility as speakers (LeBlanc and Kinsella 2016, p. 63). Here again, we circle back to the notion that people who experience severe and persistent mental health issues are incapable of rational thought and insight into their own experiences and understanding (Leblanc and Kinsella 2016, p. 64; Robertson 2009, p. 30). Privileging peoples’ stories and experiences directly addresses the epistemic injustice perpetrated by the “disregard of the lived experiences of people and their supporters” (Bell 2014).
Enacting Compassion Compassion involves an authentic desire to help others. It is also about empathizing with the individual and what they are going through and acting in a way that assists in the alleviation of their distress. This could include listening empathically, validating peoples’ experience, cultivating a collaborative relationship, using positive language, and acknowledging the individual’s strengths, interests, and capacities. Social workers should not value professional routines over peoples’ needs. People often enter a mental health facility at a vulnerable time, overwhelmed and preoccupied with their own psychological and emotional experiences of distress – trying to make sense and meaning of it. The facility is an unfamiliar environment with unfamiliar people using an unfamiliar (medical) language. People who are admitted lose their control, lose their autonomy, are being observed, and feel skeptical. In this setting, compassion is absolutely critical and necessary in the interaction between social worker and service user.
Inclusion Participatory principles encourage social workers to include people in their own treatment and recovery plan. In order to do this, it will involve genuinely listening to people, having a gentile curiosity in order to understand them more holistically, self-checking undue preferences and biases, having a clear understanding of what is needed, and working together to achieve well-being goals. This is important because, historically, people placed in these systems are poorly informed and mostly excluded from the decision-making process (WHO 2010, p. 2 and NZ Guidelines Group pvii). Neither they nor their families have been listened to or been treated well (WHO 2010, p. 2). As a result, people in mental health systems continue to be socially excluded and discriminated against (ibid). Exclusion and discrimination do have deep and lasting effects on a person’s health, sense of identity, and worth. As a consequence, powerlessness though exclusion has emerged as a key risk factor in the etiology of disease (ibid).
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Conversely, the ability to exercise control and influence over one’s life and choices improves health outcomes and strengthens one’s identity and self-esteem. Accordingly, inclusion is an important therapeutic factor that promotes recovery and is considered a vital concept in relapse prevention. Through participation and engagement, a social worker fulfills their legal, moral, and professional obligations to the people they work with and to the code of ethics they subscribe to. Further, inclusion can lead to positive interactions and has the added value in breaking down stereotypes and misconceptions (WHO 2017, p. 54). A broader dimension of inclusion incorporates being able to own a home, opportunities to build financial resources, access to education and employment, and participation in political and public life, as well as, social and cultural life (WHO 2017, p. 22), these broader and holistic approach to recovery minimizes risk factors in the etiology of disease (WHO 2010, p. 2). This is why inclusion and participation in life are such critical aspects to recovery. Both the interpersonal and broader dimensions of inclusion sit well with social work values of social justice and citizenship.
Empowerment Empowerment is the “increasing capacity” (deBronkart 2017, p. 7) to “make choices, and to convert those choices into effective actions and outcomes” (World Bank 2016). It is a multifaceted social process through which individuals improve their understanding and control in life. It is intended to help individuals develop the necessary resources to cultivate identity, autonomy, and self-esteem, as they exert more influence in their social and political lives (WHO 2010, p. 1). This will allow people to change their social and physical environments, allowing themselves to facilitate their own improvements in their life circumstances (ibid p2). deBronkart argues that a necessary prerequisite to the mental health system achieving its desired outcomes is mental health services ensuring “past beliefs about patients don’t perpetuate limited capacities, or patient involvement will repeatedly fail” (2017, p. 5). Hence, the idea of empowerment here is essential, to break the cycle of biased, prejudiced, and stigmatized beliefs, as well as providing opportunities for people to reach their full potential. It is important to note that practitioners cannot empower people – they can just assist people in empowering themselves. This change of understanding will build confidence, self-esteem, and capacity – characteristics of empowerment – and should be looked at as an ethical goal. Further reading on empowerment, social justice, self-help, and other similar concepts can be found with Robert Bland and Gabrielle Drake’s work at ▶ Chap. 11, “Community and Mental Health.”
Competency Competencies are measurable standardized practice behaviors around performance. Being competent is critical to the social work profession. Robertson states
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competencies require three core components: specialized training and the acquisition of specialized skills; the provision of expert assistance to those who are vulnerable and in need; and the virtues of trustworthiness, efficacy, and knowledge (2009, p. 7). This proposition fits neatly with social work ethics and recovery-oriented philosophies. Competencies should be informed by evidence. People seeking assistance depend on social workers to be aware of and follow evidence-based practice and standards. Access to quality up-to-date information on how to interact, treat, and support people experiencing psychological distress will facilitate the implementation of effective health interventions. Competencies thus gives social workers the attributes and confidence to apply their skills and knowledge appropriately. The mental health environment is a very dynamic and rapidly changing ecosystem. The social work profession needs to be agile and responsive. History has proven that mental health social workers have a history of conceptual and practice innovation (Ramon 2009). Their competencies around ethical conduct and recovery-oriented practice will however need to shine through as they practice adjacent to a medical model that demands compliance in an “illness” framework.
Discretion There can be tension between the clinical practices of mental health systems and ethical practices underpinned by recovery values. This is because social workers will struggle to balance the needs of the people they are supporting with the system’s clinical culture, as they operate and respond to the conditions in which they work in, navigating the demands they experience and the beliefs they have about ethical practice. The system’s increase in standardization does not help, as it diametrically opposes recovery when recovery defined as a subjective, personal, and individual process. Although social workers have to conform if they are to become valued members of the organization they work for and the system they serve, the AASW Code of Ethics provides scope for social workers to use professional discretion to negotiate where this line is drawn. In other words, “Social workers engaged in statutory practice” and “any legally mandated authority” are to “ensure that the principles of natural justice are applied in all cases” (AASW 2010, p. 26). This means social workers have an opportunity to exercise professional discretion and judgment to ensure social justice and human rights are attained (AASW 2010) even when they clash with the system’s dominant values (Trevidi 2010, p. 160). The authors here contend that small pockets of opportunities can provide occasions for creative and innovative practice through an ethical value-based recovery approach.
Power, Culture, and Reflective Practice Laying at the foot of each personal interaction is the power differentials between service provider and service user. Historically speaking, it is one of paternalistic biomedical or “psychocentric” practice which has:
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B. Aadam and M. Petrakis . . .proliferated throughout society and can be seen in popular cultural expressions, organizational cultures, and academic discourse alike. The hegemony operates on different levels and through multiple mechanisms that blame the individual and thus erase the social context and social bases of many individualized problems in neoliberal society. Thus, in neoliberal culture, the forces of pathological individualism proliferate while social structural factors at play in mental, emotional, physical and social lives are expunged or downplayed. . .. (Croft et al. 2016, p. 1)
The “combination of a biomedical and [stigmatising] discourse forms a powerful partnership in creating a culture of control and coercion in mental health care” and acts as a significant barrier to practicing ethically oriented philosophies within inpatient settings (Hyde et al. 2014, p. 8). The archetypal justification for these abuses in practice may be due to the Kantian construct and makeup of the human, as a “rational being, able to construct maxims of rational moral action” (Robertson 2009, p. 14). Consequently, a mental health system’s assessment is not located “in [peoples’] suffering, their circumstances or their rights as citizens, but in their capacity to legislate moral action” (ibid). If they are seen as not having the capacity to make rational decisions, they are stripped of their humanity. It is this “rational capacity” that is assessed in relation to a healthy and functioning human being with the restoration of the mind being the goal of intervention by mental health systems (ibid). Social workers who are ethically orientated and values driven will be reflective of their own practice in critically analyzing, monitoring, and evaluating their work, to ensure they do not support and reinforce this paternalistic and authoritative culture. The ability to be reflective at one’s own practice in a continuous and methodical way is now considered essential to “good” practice. This involves scrutinising one’s own practice to identify the fundamental assumptions underpinning behaviours and decisions. Reflective practice also focuses on the underlying power dimensions in assumptive thinking, including “the many ways power operates, and a person’s own power and relationship to it” (Fook 2015, pp. 440–443). Social workers can be aided by a deconstruction of their thinking in order to expose how they participate in constructing and maintaining power in an oppressive mental health system. This will allow practitioners an opportunity to explore their place in the system and reflect on what they have normalized as part of their work (Fook 2015, p. 445).
Conclusion If ethics is about making the right decision and doing the right thing (Adams 2009, p. 84), then the means that guides ethical practice is the idea of recovery. In this light, recovery can be seen as inextricably linked in shaping ethical understanding (Robertson 2009, p. 3; Hoop et al. 2008, p. 354; Fulford 2008, p. 2). It is no wonder then that recovery has become the cornerstone of contemporary mental health practice, as it ultimately challenges the medical paradigm by fundamentally shifting the focus and power away from practitioners and service providers to the very
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individuals who seek out services and practitioners. Recovery should therefore be explicitly seen as a value-add in social work practice as it strongly aligns with social work values and is underpinned by the broader ethical framework of respect (for a person’s autonomy and self-determination), beneficence (doing good), nonmaleficence (not doing harm), and justice (treating people fairly, without bias and discrimination). Contested issues in an outcome-driven system will generate practice dilemmas (Davidson et al. 2016; Ramon 2009; Fulford 1989). However, recovery outlines what is acceptable and improper in contemporary mental health practice, and ethical strategies discussed in this chapter will help address practice dilemmas. Social work codes of ethics will assist, but should not be solely relied upon. This paper examined recovery as an ethical and value-based practice. A case scenario was presented to outline the subtlety of these abuses camouflaged under the normalization of practice. It is now up to the reader, as social workers, to delicately toil in a complex and rapidly changing environment that consistently produces ethical dilemmas (Davidson et al. 2016, p. 1; Fulford 2008, p. 3). These predicaments can appear in the appearance of professional standards against service user respect, organizational guidelines against personhood, and service systems against individual autonomy, treatment, and care. The quintessential ethical question to ask as a social worker in this environment is: How would I like to be treated?
Cross-References ▶ Legal Provisions, Advocacy, and Empowerment ▶ Medical Perspective on Mental Health ▶ Psychological Perspective ▶ Social-Cultural Ecological Perspective
References Adams P (2009) Ethics with character: virtues and the ethical social worker. eJ Sociol Soc Welfare 36(3) Article 5. http://scholarworks.wmich.edu/jssw/vol36/iss3/5. Accessed 12 Jan 2018 Anderson J (2004) Review – Mental health professionals, minorities and the poor, by Michael E. Illovsky. In Metapsychology Online Reviews 8(24). https://metapsychology.mentalhelp.net/ poc/view_doc.php?type=book&id=2196&cn=135. Accessed 20 Sep 2017 Australian Association of Social Workers (2010) Code of ethics. AASW, Canberra ACT. https:// www.aasw.asn.au/document/item/1201. Accessed 17 Nov 2017 Beauchamp TL, Childress JF (2013) Principles of biomedical ethics, 7th edn. Oxford University Press, New York Bell K (2014) Exploring epistemic injustice through feminist social work research. Affilia 29(2):165–177 Braslow JT (2013) The manufacture of recovery. Annu Rev Clin Psychol 9:781–809. https://doi. org/10.1146/annurev-clinpsy-050212-185642. Accessed 17 Nov 2017 Brophy L, McDermott F (2012) Using social work theory and values to investigate the implementation of community treatment orders. Aust Soc Work. https://doi.org/10.1080/ 0312407X.2011.651727 Burns JK (2009) Mental health and inequity: a human rights approach to inequality, discrimination, and mental disability. Health Hum Rights J 11(2). https://www.hhrjournal.org/2013/08/mental-
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health-and-inequity-a-human-rights-approach-to-inequality-discrimination-and-mental-disabil ity/. Accessed 3 Nov 2017 Croft L, Gray M, Rimke H (2016) Mental health and distress as a social justice issue: guest editors’ preface and acknowledgments. Stud Soc Justice 10(1):1–3. https://doi.org/10.26522/ssj. v10i1.1406 Davidson L, Rowe M, Tondora J et al (2009) A practical guide to recovery-oriented practice: tools for transforming mental health care. Oxford University Press, New York Davidson G, Brophy L, Campbell J (2016) Risk, recovery and capacity: competing or complementary approaches to mental health social work. Aust Soc Work. https://doi.org/10.1080/ 0312407X.2015.1126752 deBronkart D (2017) The paradigm of patient must evolve: why a false sense of limited capacity can subvert all attempts at patient involvement. Patient Experience J 4(2) Article 2. http://pxjournal. org/journal/vol4/iss2/2. Accessed 14 Aug 2017 Fook J (2015) Reflective practice and critical reflection. In: Lishman J (ed) Handbook for practice learning in social work and social care: knowledge and theory. Jessica Kingsley Publishers, London Fricker M (2007) Epistemic injustice: power and the ethics of knowing. Oxford online scholarship. https://doi.org/10.1093/acprof:oso/9780198237907.001.0001 Fronek P (Interviewer) (2012, Aug 2) On human rights and social work: In conversation with Sharlene Nipperess [Episode 17]. Podsocs. http://www.podsocs.com/podcast/on-human-rightsand-social-work/. Accessed 16 Nov 2017 Fulford KWM (1989) Moral theory and medical practice. Cambridge University Press, Cambridge, UK Fulford KWM (2008) Values-based practice: a new partner to evidence-based practice and first for psychiatry? [Editorial]. In: Singh AR, Singh SA (eds) Medicine, mental health, science, religion, and well-being. MSM, 6, Jan-Dec 2008, pp 10–21. https://doi.org/10.4103% 2F0973–1229.40565 Gillon R (2003) Ethics needs principles—four can encompass the rest—and respect for autonomy should be ‘first among equals’. J Med Ethics 29:307–312 Hoop JG, DiPasquale T, Hernandez JM et al (2008) Ethics and culture in mental health care. Ethics Behav 18(4):353–372. https://doi.org/10.1080/10508420701713048 HREOC (1993) Human rights and mental illness: report of the national inquiry into the human rights of people with mental illness. Canberra. https://www.aph.gov.au/Parliamentary_Business/ Committees/Senate/Former_Committees/mentalhealth/report/c03. Accessed 12 Jan 2018 Hyde B, Bowles W, Pawar M (2014) Challenges of recovery- oriented practice in inpatient mental health settings – the potential for social work leadership. Asia Pacific J Soc Work Dev 24(1–2):5–16. https://doi.org/10.1080/02185385.2014.885205 Leblanc S, Kinsella EA (2016) Toward epistemic justice: a critically reflexive examination of ‘sanism’ and implications for knowledge generation. Stud Soc Justice 10(1):59–78 Maylea C (2016) A rejection of involuntary treatment in mental health social work. Ethics Soc Welfare. https://doi.org/10.1080/17496535.2016.1246585 Maylea C (2017) Minimising coerciveness in coercion: a case study of social work powers under the Victorian Mental Health Act. Aust Soc Work 70(4):465–476. https://doi.org/10.1080/ 0312407X.2017.1326158 McAnally A (2017) ‘Their deaths were avoidable’: patients killed themselves while under observation at Scottish hospitals. Daily Record. 24 May 2017. https://www.dailyrecord.co.uk/news/ scottish-news/their-deaths-were-avoidable-patients-10485770. Accessed 15 Jan 2018 National Association of Social Workers (2017) NASW Code of ethics. https://socialwork.utexas. edu/dl/files/academic-programs/other/nasw-code-of-ethics.pdf. Accessed 17 Nov 2017 Paalanen T, Hopia H (2017) Introduction to professional ethics. JAMK University of Applied Sciences, Jyvaskyla Pilgrim D (2008) ‘Recovery’ and current mental health policy. Chronic Illn 4:295–304
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Ramon S (2009) Adult mental health in a changing international context: the relevance to social work. Br J Soc Work 39:1615–1622. https://doi.org/10.1093/bjsw/bcp066 Reamer FG (2006) Ethical standards in social work: a review of the NASW code of ethics 2nd edition. National Association of Social Workers. NASW Press, Washington, DC Robertson M (2009) An overview of psychiatric ethics. Health Education and Training Institute (HETI), Sydney Rose D (2014) The mainstreaming of recovery. J Ment Health 23(5):217–218 Sackett DL, Straus SE, Richardson SW et al (2000) Evidence-based medicine: how to practice and teach EBM, 2nd edn. Churchill Livingstone, Edinburgh/London Slade M (2009) Personal recovery and mental illness: a guide for mental health professionals. Cambridge university press, UK Stull LG, McGrew JH, Salyers MP et al (2013) Implicit and explicit stigma of mental illness: attitudes in an evidence-based practice. J Nerv Ment Dis 201(12):1072–1079. https://doi.org/ 10.1097/NMD.0000000000000056 Trevidi P (2010) A recovery approach in mental health services: transformation, tokenism or tyranny? In: Basset T, Stickley T (eds) Voices of experience: narratives of mental health survivors. Wiley, Chichester UNHRC (2017) Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. https://reliefweb.int/report/ world/report-special-rapporteur-right-everyone-enjoyment-highest-attainable-standard-0. Accessed 16 Oct 2018 World Bank (2016) Empowerment overview: what is empowerment? http://web.worldbank.org/ WBSITE/EXTERNAL/TOPICS/EXTPOVERTY/EXTEMPOWERMENT/0,,contentMDK:20272 299~pagePK:210058~piPK:210062~theSitePK:486411~isCURL:Y,00.html. Accessed 1 Oct 2017 World Health Organisation (2010) User empowerment in mental health – a statement by the WHO Regional Office for Europe. http://www.euro.who.int/__data/assets/pdf_file/0020/113834/ E93430.pdf. Accessed 23 Aug 2017 World Health Organisation (2017) Patients’ rights. Genomic resource centre. http://www.who.int/ genomics/public/patientrights/en/. Accessed 15 Nov 2017
Part II General Theories on Mental Health and Etiology of Mental Illness
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Psychological Perspective Psychodynamic, Humanistic, and Cognitive-Behavioral Theories Virgil L. Gregory Jr.
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Concept of Psychological Well-Being . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Positive Psychology . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychological Theories . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychodynamic Theory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Humanistic Theory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cognitive-Behavioral Theories . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Wave 3: Dialectical Behavior, Mindfulness-Based Cognitive, and Acceptance and Commitment Theories . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
The purpose of the present chapter is to explicate the specific etiological factors of mental illness, basic premises, concepts of psychological well-being, psychosocial interventions, and implications for social work practice with regard to psychodynamic, humanistic, and cognitive-behavioral theories. These specific psychological theories are included because of their historical and contemporary influence on explaining, researching, and treating psychopathology. As will be seen in the forthcoming text, each of the psychological theories has a unique perception of psychopathology and well-being that is of paramount practical benefit to the social work profession and the clients being served. The chapter concludes by specifying how clinical social workers can conscientiously
V. L. Gregory Jr. (*) School of Social Work – MSW Direct, Indiana University, Indianapolis, IN, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_5
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consume and ultimately produce or contribute to the development of social workoriented clinical theories. Keywords
Psychological theory · Social work · Mental illness · Well-being · Psychodynamic · Humanistic · Cognitive-behavioral
Introduction Thus far, the concepts of mental illness have been generally described and explained in ▶ Chap. 1, “Theories on Mental Health, Illness and Intervention” (Ow and Poon). The purpose of the present chapter is to explicate the specific etiological factors of mental illness, basic premises, concepts of psychological well-being, psychosocial interventions, and implications for social work practice with regard to psychodynamic, humanistic, and cognitive-behavioral theories. These specific psychological theories are included because of their historical and contemporary influence on explaining, researching, and treating psychopathology. An overt effort has been made to summarize the various theoretical perspectives using the writings of the actual pioneers of each theoretical perspective. The referencing of the original sources is also provided to allow readers to further independently review the various unique contributions of each respective psychological theory. It is recognized that while there are certainly strong intercontinental or national similarities in social work practice, there may also be differences with regard to the application of social work practice in mental illness. The various intercontinental or national differences could be explained by the specific psychosocial problems, political environments, social contexts, and other factors specific to a particular continent or nation. It is hoped that readers on an international level will understand and critically consider the psychological theories and concepts and appreciate the overt and contextual factors which distinguish them from one another, particularly as it pertains to the development and treatment of mental illness in their particular geographic or socio-environmental context.
Concept of Psychological Well-Being Positive Psychology A system that emphasizes reducing symptoms has led to the marginalization of affirmative or favorable indicators of mental health (Hayes 2012b). This sentiment has also been articulated by Shedler (2010) whom has stated that researchers, regardless of their theoretical and practice orientations, have not adequately assessed or measured the positive changes associated with psychotherapeutic intervention. In response to the focus on psychopathology and symptom reduction, positive
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psychology developed (Chou et al. 2013). Positive psychology focuses on strengths, assets, and other present factors in individuals which are contrary to and/or occur despite of psychological deficits or negatives (Seligman 1998). Both positive psychology and the recovery concept have many things in common, such as hope (Park and Chen 2016). According to Park and Chen within the context of positive psychology, hope is essential because it is required for one to believe that recovery is possible and hope provides the motivation for someone to begin the process of recovery.
Contemporary Implications for Positive Psychology Positive psychology is very consistent with the strengths-based perspective which thrives in social work. Assumptions of positive psychology include all individuals having the ability to experience self-improvement, live up to their own personal potential, and further their capacity for affection and labor (Chou et al. 2013). The strengths model, which has permeated social work literature, education, research, and practice, maintains that emphasis should be placed on an individual’s assets or strengths relative to their weakness or lack of ability, the environment which brings a number of opportunities, client self-determination, importance of relationship, and the potential for persons with mental illness to progress and improve (Rapp 1998).
Psychological Theories Psychodynamic Theory Sigmund Freud’s psychodynamic theory has had a profound effect on conceptualizing personality and treatment. Psychodynamic theory has received much literary attention in social work (Bliss and Rasmussen 2013; Deal 2007). Thyer (2017) has advocated for the removal of psychodynamic theory from the National Association of Social Worker’s (NASW) definition of clinical social work, claiming that its inclusion is not indicative of many practitioners in the social work profession, while Cummins (2017) has suggested that psychodynamic theory be included with behaviorally oriented theories. Psychodynamic theory includes a number of concepts pertaining to consciousness (Freud 1915/1989a, 1923/1989), personality (Freud 1923/1989), defense mechanism (Freud 1925/1989), and psychosexual stages (Freud 1933/1965) and continues to have a substantive presence in social work.
Basic Premise Psychodynamic theory is based on the ideal that processes that are considered to be unconscious or outside of the immediate awareness of the person are the cause of personality and psychiatric disorders (Freud 1923/1989). Unconscious, latent drives, cognitions, recollections, and desires have an influential effect on behavior (Freud 1915/1989a, 1923/1989). Freud (1915/1989a, 1923/1989) has identified types of consciousness: conscious, preconscious, and unconscious. At the conscious level, a
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person is cognizant of their thoughts and actions. At the preconscious level, thoughts and other such phenomena are under the surface; however these phenomena can be obtained fairly simply. The unconscious contains memories, thoughts, and other phenomena that were once conscious but are now reserved because awareness of them would be difficult and problematic. Psychodynamic theory suggests that the personality has three attributes: id, ego, and superego (1923/1989). The id is basic and unconscious and is in pursuit of pleasure and evades pain (pleasure principle, Freud 1911/1989). The ego is primarily conscious, logical, and rational and operates on the reality principle (foregoing desires until it is socially acceptable to obtain them, Freud 1911/1989). The superego is concerned with ethics (Freud 1925/1989). Psychodynamic theory also includes different defense mechanisms that address undesirable or difficult emotions (Freud 1925/1989). Several of the defense mechanisms in psychodynamic theory are regression (Freud 1925/1989), displacement (Freud 1913/1989), reaction formation (Freud 1907/1989), and repression (Freud 1915/1989a, 1915/1989b, 1925/1989), among others. Regression occurs when an individual slips back to juvenile behavior. Displacement involves the application of emotional energy on an individual or item who is not the true cause of the emotions. Reaction formation occurs when an individual expresses emotions or beliefs that are truly contrary to what the individual actually feels or believes. Projection is a defense mechanism where the individual takes what they truly feel and assigns those feelings to someone else. Repression is the act of taking undesirable internal content such as experiences and thoughts and placing them in the unconscious. Repression is the most frequently occurring defense mechanism. Psychosexual stages are another aspect of psychodynamic theory (Freud 1905/1989b, 1933/1965). Psychosexual stages include oral, anal, phallic, latency, and genital stages, each of which is characterized by a different source of pleasure and specific level of developmental progress ultimately in route to intimate adult relationships (Freud 1933/1965). The oral stage occurs during the first year, and pleasure is primarily obtained from the mouth. As the name implies in the anal stage, the anus is the primary source of pleasure and occurs during the potty training years. In the phallic stage, males and females recognize the phallus (and the vagina) as significant. From the ages of 6–12, the latency stage involves repressed sexual desires and emphasis on same-sex friendships. The last stage is the genital stage where sexual desires are stimulated, and the emphasis is now on intimate associations with persons of a different sex.
Etiology of Mental Illness In psychodynamic theory, mental illness can occur when an individual is stuck or fixated in one of the psychosexual stages (Freud 1925/1989, 1905/1989b, 1911/1989), regresses to a previous psychosexual stage (1933/1965), or experiences issues regarding repression (Freud 1925/1989). According to Freud (1905/1989b, p. 279), “every pathological disorder of sexual life is rightly regarded as an inhibition in development.” Anxiety from a Freudian psychodynamic perspective has been theorized to derive from a divergence between sexual energy and a repressed sexuality (Freud 1910/1989).
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Mental Well-Being Psychodynamic theory seeks to improve client outcomes via making repressed information conscious (Freud 1925/1989). In addition to insight, research has also shown that some of the most common goals of psychodynamic therapy have also included but are certainly not limited to the improvement of interpersonal relationships, improved functioning in various life domains (work, academic), self-esteem, and managing emotions (Philips 2009). Interventions Psychodynamic therapy uses interventions such as free association, interpretation, and analysis of transference among others to achieve its goal of making repressed information conscious (Freud 1925/1989). In free association, clients are discussing, without direction or self-restriction, any information which they are thinking of. Interpretation, which is related to free association, allows for meaning to be assigned to repressed information which makes itself available through dreams (Freud 1900/ 1989, 1911/1989) and free association. Transferences occur during analysis and are thoughts, impulses, wishes, or other mental experiences held by the client and deriving from the client’s past; yet these past mental experiences are from the client’s perspective represented by clinician (Freud 1905/1989a). In psychodynamic therapy, transference is brought to consciousness via the clinician/social worker persuading the client that the transference is a product of the repressed component of their childhood (Freud 1925/1989). This analysis of transference has been referred to by Freud as simultaneously the most complex and imperative aspect of analysis. Implications for Social Work Psychodynamic theory has a number of important implications for social work. Psychodynamic theory, including various aspects of the etiology of mental illness, as originally described by Freud, may not necessarily be consistent with various aspects of the social work profession. Since Freud’s articulation of psychodynamic theory, starting decades ago, there had been theoretical changes that were expressed, such as increased attention to object relations and psychopathological developmental deficiencies (Eagle 1987). With regard to clinical practice, greater focus on factors such as insight, empathy, and therapeutic rapport has gained importance (Eagle 1987). It has been argued that contemporary psychodynamic theory provides a more sophisticated conceptualization of human behavior and is indeed more consistent with social work values and ethics (Dean 2002). As noted by Bliss and Rasmussen (2013), modern psychodynamic social work practice includes collaboration, validation, and emphasis on therapeutic rapport, among other factors. Social work and contemporary psychodynamic theory recognize the importance of relationships; consequently social work practitioners can play a key role in the theoretical advancement of factors pertaining to therapeutic alliance (Deal 2007). Manualized interventions, such as those frequently employed in CBT, have a number of criticism which include lack of individualized treatment, decreased therapist creativity, and lack of external validity (Wilson 1996). Psychodynamic theory and its associated
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interventions may be particularly advantageous for marginalized, oppressed, and disenfranchised clients, who may not obtain as much benefit from manual-guided therapies (Bliss and Rasmussen 2013).
Humanistic Theory Humanistic theory encompasses an understanding of an individual’s unique experience, inherent integrity, and intrapersonal potential (Henry 2017). Two of the most profound and influential psychologists in humanistic theory are Abraham Maslow and Carl Rogers. The humanistic theories which are the foci of this chapter are those developed by both Maslow (1943) and Rogers (1951). Maslow published an often cited theory of human motivation pertaining to a hierarchy of human needs. Roger’s text on client-centered therapy is still commonly referenced in psycho-theoretical and psychotherapeutic literature. Maslow and Rogers’ theories were so influential that they are routinely referenced in introductory psychology textbooks today (Henry 2017).
Basic Premise Maslow’s (1943) theory of human motivation maintains that humans have five levels of related and interdependent hierarchical needs/motivations: physiology, safety, love, esteem, and self-actualization. Once needs at a lower level are satisfied to some degree, higher-level needs take place and become more prevailing. Physiological needs are the most basic and include the need or motivation for food, intercourse, hydration, and safety. Maslow substantiated the physiological need level by referencing various bodily homeostatic mechanisms for maintaining optimal biological functioning and stating that the various appetites can signify or represent a specific physiological insufficiency. The second level of need/motivation is safety. Maslow describes the need for safety as being represented by a structured, routine, hazard-free, and conventional environment with relationships that provide protection and security. Maslow further states that paradigms, religion, and science are premised on safety. Love is the third level of need/motivation in Maslow’s hierarchy, and it includes factors such as acceptance from others, substantive and meaningful relationships with others, and being both a provider and recipient of compassionate interaction. Maslow divides the fourth level of need/motivation, esteem, into two subsections. Esteem consists of the need for intrapersonal autonomy, accomplishment, and power as well as an interpersonal need for reverence or admiration from others. The highest level of need/motivation in Maslow’s hierarchy is self-actualization which includes an individual finding their unique purpose in life and realizing their true potential. According to Maslow, self-actualization cannot be obtained until the aforementioned lower-level needs are reasonably met. The client-centered theory developed by Rogers (1951) includes a number of propositions pertaining to individual experiences, construction of the self or one’s identity, a subjective nature of reality, value systems (internal and external influences), goals, self-actualization, environment, emotions, and ultimately the
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reconciliation of the one’s experience and self-identity. The propositions collectively explain ways in which an individual develops a sense of self and factors which contribute to or detract from that development of self/personality.
Etiology of Mental Illness Maslow (1943) has explicitly theorized regarding the psychopathological etiology and its relationship to various needs not being met. According to Maslow any potential or actual threat to the aforementioned fundamental human needs is linked to the overwhelming majority of mental illnesses. As it pertains to the need for safety, anxiety is considered to possibly derive from the world being viewed as threatening, dangerous, and results in individual behavior that assumes a catastrophic outcome is inevitable and seeking a savior to prevent some catastrophe. Maslow has described obsessive compulsive disorder as an attempt to find safety. Unmet love needs have been theorized by Maslow to account for psychopathology pertaining to antisocial personality (referred to as “psychopathic personality” by Maslow, p. 386) and contributed to an inability to provide and be receptive to love (Levy 1937). Unmet esteem needs can result in feelings of inadequacy and vulnerability and can be associated with neurotic psychopathology. According to clientcentered theory, mental illness or “psychological maladjustment” as referred to by Rogers (1951, p. 499) occurs due to stress or “tension” from an individual rejecting the recognition of substantive observational or emotional experiences which are contrary to the individual’s perception of self. Once an individual is cognizant of the difference between their perception of themselves and their various experiences, anxiety and ambiguity can develop. Mental Well-Being Well-being from a Maslow (1943) hierarchy of needs perspective is achieved when physiological, safety, love, esteem, and self-actualization needs are primarily fulfilled. Moreover Maslow has quite succinctly stated that in contrast to an individual who has unfulfilled long-term ongoing needs, a well-adjusted individual has needs which serve as motivation to achieve their full potential. Maslow has acknowledged that having all of the needs essentially satisfied is not typical. Maslow also stated in his theory of human motivation that for most individuals, the different levels of need are to some degree simultaneously satisfied and unsatisfied. According to Maslow as needs grow from physiological (lowest) to self-actualization (highest), the degree of satisfaction at each level decreases. It is important to note that according to Maslow, there are certain prerequisites necessary for the fulfillment of the aforementioned five levels of needs. These prerequisites appear to be social or environmental in nature and include free speech, self-determination, self-expression, justice, and impartiality. Mental well-being or “psychological adjustment” as described by Rogers (1951, p. 513), from a client-centered perspective, is indicative of a reconciliation of or consistency between the perception of self and individual’s various experiences. The mental well-being in client-centered theory has also been associated with feelings regarding decreased internal strain and further intrapersonal growth toward one’s true self. It is important to note however that Rogers (1957) has stated that
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psychiatric diagnosis is not important for client outcomes, unless the diagnosis of the client is necessary for the therapist to utilize factors (six in total, however three therapist’s factors are discussed in the next section on “Interventions”), which are ultimately believed to actually be responsible for therapeutic change.
Interventions Rogers (1951) has placed much emphasis on the attitude of the clinician and far less emphasis on techniques. In fact Rogers (1957) has identified a number of therapist characteristics that are believed to entirely facilitate psychotherapeutic change. These characteristics or factors include the therapist having and showing toward the patient (1) a honest, genuine, transparent, and self-aware presentation of himself; (2) unconditional positive regard which involves the therapist accepting the experience of the client without the acceptance being contingent on some prerequisite factor(s); and (3) empathy for client emotions and meanings. Rogers has maintained that the aforementioned three therapist’s characteristics and other factors produce psychotherapeutic change in all clients, regardless of diagnosis (see previous statements discounting the importance of psychiatric diagnosis). Moreover with regard to psychotherapeutic technique, Rogers argues that techniques or interventions, such as the ones listed in psychodynamic interventions, for example, are only useful to the extent to which they facilitate the aforementioned congruence, unconditional positive regard, and empathy. Similar to other therapies, humanistic therapy has defining characteristics, is offered in different modalities, has empirical support, and is used to address various mental health or psychosocial issues (Elliot 2001). Therapies that stem from humanistic theory focus on autonomy, interpersonal rapport, development, and other values as the active ingredients of change (Elliot 2001). From humanistic theory a number of different humanistic therapies have developed including Gestalt therapy, existential therapies, and experiential therapies (Cain 2001). As demonstrated in what is perhaps the most extensive meta-analysis on humanistic therapies, humanistic therapies have been shown to have some favorable outcomes with regard to mental illnesses or psychosocial problems such as depression, anxiety, adjustment issues, and relationship problems (Elliot 2001). This meta-analysis of humanistic therapies included individual, group, and couple modalities. Implications for Social Work As it pertains to humanistic theory, implications for social work include issues regarding the actual clinical necessity of psychiatric diagnosis and questions of what are the actual active ingredients in clinical interventions. Roger’s (1957) argument is by no means new, not even in 1957. Rosenzweig (1936) has already explained the belief that common factors, rather than specific so-called active ingredients, are responsible for similar outcomes among different psychotherapeutic interventions. As clinicians, social workers are responsible for being conscientious consumers of relevant research. The ongoing research regarding the dodo bird verdict and it’s implication for humanistic theory remains an ever-present factor for psychotherapeutically oriented social work practitioners and researchers.
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Humanistic psychological theory, as espoused by both Maslow and Rogers, has obvious and rather overt overlap with social work values and ethics (National Association of Social Workers – NASW 2017). Maslow and Roger’s humanistic theories are consistent with social work values and ethical principles pertaining to dignity and worth of the person, human relationships, helping people, and trustworthiness.
Cognitive-Behavioral Theories Cognitive-behavioral therapy (CBT) has thus far seen three different sets or waves of psychotherapeutic systems (Hayes 2016). The first wave consisted of behavioral therapies and associated theoretical underpinnings. The second wave includes both cognitive and behavioral interventions with theories that emphasize the relationships between thinking and emotion/behavior. The third wave of cognitive-behavioral therapy includes but is not limited to dialectical behavior therapy (DBT), mindfulness-based cognitive therapy (MBCT), and acceptance and commitment therapy (ACT). Unlike the first two waves of CBT, the third wave lacks a clear unifying aspect; however the third-wave therapies have “acceptance, mindfulness, cognitive defusion, dialectics, values, spirituality, and relationship” in common (Hayes 2016, p. 869). The discussion of cognitive-behavioral theoretical perspectives follows these three waves of cognitive-behavioral psychotherapeutic treatments.
Wave 1: Behavioral Theory Behavioral theory addresses both respondent and operant conditionings. There are a number of behavioral therapeutic approaches which are rooted in behavioral theory. Functional analysis, also called behavioral analysis, stems from operant conditioning. Functional analysis is now a key component of assessment in behavioral methods. Moreover applied behavioral analysis has contributed to social work practice, research, and education in various ways (Briggs et al. 2016). ▶ Chapter 4, “Behavior Analysis and Social Work” of this volume addresses behavior analysis (Thyer), and readers are referred there for further information pertaining to behavioral theory, intervention, and relevance to social work. Wave 2: Cognitive Theory Basic Premise Cognitive theory is based on the idea that flawed interpretations or appraisals (cognitions) of situations lead to unhealthy and problematic emotional and behavioral responses (Beck 1976). Cognition is viewed as having a hierarchical structure with specific implications for cognitive restructuring interventions that will be used (Beck 2011). The essential aspect of cognition is core beliefs (Beck 2011). Beliefs are perceptions that individuals have “about the self, world, and/or the future” (Wenzel et al. 2012, p. 30). Beck and Haigh (2014) have further expounded on the cognitive model and provided further clarification regarding phenomenological
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aspects of psychiatric disorder and a spectrum of functionality of beliefs. Belief systems occur on a spectrum from functional to dysfunctional and can be situational or constant. The likelihood of a psychiatric disorder occurring increases as beliefs become more skewed and exceed the innate functional threshold. The cognitive model has provided an overall framework which can be applied to a range of psychiatric disorders (Beck and Haigh 2014). Third-wave CBTs contain some component or variation of the second-wave CBT theory and/or interventions; therefore the second wave is given more detailed attention.
Etiology of Mental Illness The aforementioned basic cognitive model and its application to the explanation of various psychiatric disorders have been used to identify and target thoughts and beliefs systems specific to various mood, anxiety, psychotic, and personality disorders. For example, cognitive theory has been used to describe distinct dysfunctional belief systems that are presumed to underlie a number of different psychiatric disorders such as substance related (Wenzel et al. 2012), major depression, anxiety, bipolar, and psychosis (Beck 1976), among others. Mental Well-Being Mental well-being from a cognitive theoretical perspective is not a Pollyanna, hyperpositive worldview that exists contrary to reality. Persons with a psychiatric disorder can appropriately or inappropriately identify situations or events to be negative. In accordance with cognitive theory, associated cognitive-behavioral interventions are used to aid clients in recognizing, systematically evaluating, and changing dysfunctional beliefs and consequent thoughts (Beck 2011). Likewise if negative thoughts and/or beliefs are substantiated by objective evaluation, behavioral interventions are used to problem-solve and address problematic situations (Beck 2011). Interventions The interventions of cognitive therapy directly stem from cognitive theory and the case conceptualization of the individual patient. Cognitive therapy interventions are also based on a sound therapeutic rapport; incorporate collaborative empiricism, are structured, include homework; and adhere to other important principles of cognitive therapy (Beck 2011). Psychoeducation is used in cognitive therapy to help educate clients on the cognitive model. Albert Ellis’s (1994) ABCDE model is used to educate clients on the relationship between situations (A), irrational thoughts/beliefs (B), consequent emotions (C), challenging irrational beliefs (D), and the development of new/alternative rational beliefs (E). Dysfunctional thoughts and beliefs can be modified with cognitive restructuring or via various behavioral methods (Beck et al. 1979). Cognitive restructuring interventions include Socratic questioning pertaining to the evidence base for or usefulness of dysfunctional cognitions which contribute to emotional and behavioral disturbance (Beck et al. 1979). Beck and associates (1979) have used various Socratic questions such as the evidence for, costs and benefits of, and alternative explanations for dysfunctional thoughts and/or beliefs to ameliorate maladaptive
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emotion and behavior. These and other cognitive interventions used by Beck and associates continue to be applied in cognitive therapy manuals for a range of psychiatric disorders (Beck 2011; Beck et al. 2015; Clark and Beck 2010; Wenzel et al. 2012, among numerous others). Behavioral interventions commonly used in cognitive therapy include but are certainly not limited to problem-solving, behavioral experiments, activity scheduling, assertiveness, and role-playing among others (Beck 2011).
Implications for Social Work Licensed clinical social workers are the number one providers of mental health treatment in America (Heisler 2018), and CBT interventions are among the most frequently used by licensed clinical social workers (Pignotti and Thyer 2009). To provide successful CBT, it is necessary to understand the theory from which it derives (Beck et al. 1979). Given their training in the person in environment perspective (PIE), social workers who use cognitive theory to conceptualize cases and ultimately treat individuals are at a particular advantage to understand and address both micro- and macro- or social-environmental factors which could play a role in the client’s presenting problem. Perhaps one of the biggest implications of the second-wave cognitive-behavioral theory of mental illness and well-being is the consequent evidence-based CBT interventions which stem from the theory. There is a profound amount of research supporting the evidence base of CBT for the treatment of psychiatric disorders including anxiety, depressive, bipolar, psychotic, substance-related, personality, eating, as well as other disorders (Beck 2011). Moreover social workers have also discussed the specific use of second-wave cognitivebehavioral theory and therapy as it pertains to their application to social work practice with regard to severe mental illness such as bipolar disorder (Gregory 2010a) and schizophrenia (Gregory 2010b). Another attractive feature of cognitive-behavioral theory and the associated treatment is its consistency with social work value and ethics. With regard to social work values and ethics, CBT underscores the importance of interpersonal relationships, the innate and intrinsic value of all individuals, a collaborative relationship between the social worker and client, and recognition of the role of the social environment (González-Prendes and Brisebois 2012).
Wave 3: Dialectical Behavior, Mindfulness-Based Cognitive, and Acceptance and Commitment Theories There are a number of third-wave therapies and various theories associated with each. The present theoretical discussion of third-wave therapies is by no means inclusive of all the third-wave behavioral treatments. Instead several of the thirdwave theories which have received considerable clinical and empirical attention are discussed here. The theoretical underpinnings of DBT, MBCT, and ACT are discussed in the present chapter. Of the third-wave behavioral therapies, DBT, MBCT, and ACT are also discussed here because they have several features in
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common such as emphasis on mindful interventions and a dual focus on “acceptance and change” (Segal et al. 2004, p. 55). Other notable third-wave behavioral therapies include integrative behavioral couples therapy and functional analytic psychotherapy (Hayes 2016).
Basic Premise The theoretical premises of DBT, MBCT, and ACT collectively encompass various aspects of the aforementioned third-wave behavioral therapies. First DBT derives from biosocial theory which maintains that some individuals are biologically more vulnerable to emotions and impulsivity, and these factors in conjunction with dismissive or rejecting environments contribute to marked difficulty with effectively managing emotions (Linehan 1993, 2015). Second, MBCT is based on the theory pertaining to doing and being mind modes (Dimidjian et al. 2010). The theoretical premises associated with ACT are arguably the most complex psychological theories presented in this chapter. Relational frame theory (RFT) is associated with ACT and accounts for the relationship between language and thought (Hayes 2012b). Acceptance and commitment therapy is based on the theory that mental illness is associated with the interaction between language and thinking in conjunction with situational factors that collectively help create and sustain a psychological inflexibility (Luoma et al. 2007). In other words, ACT maintains that a number of factors act in concert to create psychological rigidity referred to as psychological inflexibility, and the purpose of ACT is to create psychological flexibility (Hayes 2012a). Other theoretical aspects of ACT are described below; however readers can obtain further information regarding RFT and the theoretical underpinnings of ACT via a number of resources (Hayes 2004, 2012a, b; Hayes et al. 2001). Etiology of Mental Illness Although all are considered third-wave behavioral therapies, DBT, MBCT, and ACT all offer unique explanations for the development of various disorders. Dialectical behavior therapy was initially created to treat women diagnosed with borderline personality disorder who had been suicidal (Linehan 1993). The aforementioned biosocial theory maintains that borderline personality disorder results from problems with regulating emotions (biological), invalidating environments, as well as a deficit in emotion regulation skills (Linehan 1993). Biosocial theory has since been applied to explain a number of disorders including comorbid borderline and substance use disorders, eating disorders, comorbid personality, and depression disorders (Dimeff and Koerner 2007). In MBCT problems such as depression occur when clients are stuck in doing mind mode (to decrease the difference between the actual state of being and the desired state of being), when it is not truly possible to obtain the preferred resolution (Dimidjian et al. 2010). Acceptance and commitment theory states that cognitive fusion, experiential avoidance, inflexible attention, lack of chosen values, inaction/impulsivity/avoidant persistence, and attachment to conceptualized self collectively create psychological inflexibility (Hayes 2012a). Previous research has shown that experiential avoidance, a component of psychological inflexibility, was often associated with a number of psychiatric disorders (Ruiz
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2010). Other research has shown psychological inflexibility to be associated with trichotillomania (Houghton et al. 2014), chronic pain (Kwok et al. 2016), depressive symptoms (Kato 2016), and pathological worry (Ruiz 2014).
Mental Well-Being Concepts of mental well-being in DBT, MBCT, and ACT theories are unique and congruent with their specific conceptualizations of mental illness or psychological pain. Mental well-being in DBT is in part characterized by the attainment of skills to develop a meaningful life (Linehan 2004). Given the biosocial theory upon which DBT was developed, specific skills are taught to manage emotions and self-validate (Linehan 1993). More will be said about DBT skills in the interventions section below. Mindfulness-based cognitive theory conceptualizes mental well-being as the accurate differentiation between modes of mind regarding doing and being, such that client/individual resources are used to their full potential (Dimidjian et al. 2010). Mindfulness-based cognitive therapy has several aims and themes pertaining to mental well-being (Segal et al. 2013). These aims and themes include providing clients with autonomy and disengagement from negative thought patterns as well as developing mental well-being via preventing relapses of depression; increasing awareness of cognitions, emotions, and physiology; and developing alternative methods for addressing disturbing cognitions and emotions. Mindfulness-based cognitive therapy skills which are employed to achieve this goal are discussed below. Psychological flexibility is the goal of ACT, and in ACT theory mental well-being is represented by six processes pertaining to psychological flexibility: defusion, acceptance, flexible attention to the present moment, values, committed action, and perspective-taking sense of self (Hayes 2012a). In ACT mental wellbeing includes psychological flexibility which is described as current awareness and acceptance with a simultaneous congruency between actions and values (Hayes 2012b). Interventions In accordance with their theories, DBT, MBCT, and ACT include various cognitive and behavioral interventions as well as other distinguishing factors which are indicative of the third-wave behavioral therapies (Hayes 2016). Marsha Linehan’s (2015) DBT uses sets of skills to achieve mental well-being: general, mindfulness, emotion regulation, interpersonal effectiveness, and distress tolerance interventions. The DBT skills are presented in a sequential fashion and overtly embody the previously mentioned core third-wave traits described by Hayes (2016). Dialectical behavioral therapy skills are similar to second-wave interventions in that, for example, both CBT and DBT conduct functional analyses of behavior and use cognitive restructuring. However DBT has less emphasis on challenging content of thoughts and more emphasis on restructuring the style of thinking and the considerable use of validation (Linehan 1993). These differences in cognitive restructuring are especially important given the aforementioned biosocial theory which states that dismissive or rejecting environments contribute to problems with managing emotions in persons with borderline personality disorder (Linehan 1993).
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Mindfulness-based cognitive therapy, relative to second-wave behavioral therapy, has several unique characteristics as well (Segal et al. 2013). Mindfulnessbased cognitive therapy maintains that facilitators should actively participate in mindfulness exercises, and this experience, in addition to increasing the practitioner’s legitimacy, also increases the mutual understanding that exist between the practitioner and client regarding the skills. That is, MBCT has a solipsism perspective with regard to practitioners using the interventions with clients. In accordance with the theory and aims, MBCT includes interventions such as meditation, breathing exercise, pleasurable and meaningful activities, acceptance, and cognitive interventions (greater focus on relationship to thoughts rather than content of thoughts) (Deckersbach et al. 2014; Segal et al. 2013). Currently there are manuals which apply MBCT to depression (Segal et al. 2013) and bipolar disorder (Deckersbach et al. 2014) and use MBCT with second-wave CBT (Ciarrochi and Bailey 2008). Readers are directed to ▶ Chap. 15, “Application of MindfulnessBased Approaches in the Context of Social Work” of this volume for more information regarding stress, mental well-being, and mindfulness-based therapy (Ling and Siying). Acceptance and commitment therapy uses processes which are consistent with the aforementioned six components of psychological flexibility (Hayes 2012a). In ACT the so-called interventions are actually referred to as “processes” (Hayes 2012b, p. 274). These six components of psychological flexibility are further subdivided into a mindfulness and acceptance subcomponent and a commitment and behavior change subcomponent. Hayes’ (2012b) manual provides a thorough explanation of the processes used in ACT. Some mindfulness and acceptance ACT processes intended to increase psychological flexibility are defusion (the use of metaphors, techniques to separate language from associated symbolism, recognizing thoughts without being critical of them), acceptance (exposure, willingness), and perspective-taking sense of self (whole, complete, perfect method). Some commitment and behavior change ACT processes intended to increase psychological flexibility are flexible attention to the present moment (meditation, focusing, progressive muscle relaxation), values (assessment of values, using values in conjunction with mindfulness and acceptance processes), and committed action (identification of goals and behavior to achieve goals, resolving obstacles to committed action). The previously mentioned ACT interventions are not at all exhaustive, as a totally inclusive identification of all ACT interventions is beyond the scope of this chapter. In addition to the previously mentioned texts by Hayes (2012a, b), readers can also find additional information pertaining to ACT interventions in other resources as well (Luoma et al. 2007). Although there are noted differences between second- and third-wave CBT, all of the aforementioned thirdwave CBTs use homework.
Implications for Social Work Third-wave CBTs such as DBT, MBCT, and ACT have a number of important current and future implications for the social work profession. Relative to the second-wave cognitive-behavioral theory, the third-wave theories address a number
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of different variables (spirituality, language, invalidating environments, and modes of mind) which offer social workers different ways of conceptualizing and ultimately treating the diverse clients they serve. There is now greater emphasis on the role of spirituality in social work practice. Some of the aforementioned third-wave CBTs may be able to integrate client’s spiritual beliefs in the therapeutic process and therefore further build therapeutic rapport and improve outcomes and support from family and others who share the client’s spiritual beliefs. Similar to the second-wave CBT, the third wave also provides social work involved in clinical research with the opportunity to develop and disseminate findings regarding the effectiveness and/or efficacy of DBT, MBCT, and ACT. Third-wave therapies such as MBCT (Hick and Chan 2010), DBT (Cooper and Parsons 2010), and ACT (Boone et al. 2015) have been discussed in the social work literature with specific implications for social work practice. Randomized controlled trials which use social work practitioners and social work’s PIE perspective may be of particular importance to clients served by clinical social workers. Dialectical behavior therapy’s biosocial theory (Linehan 1993, 2015) is particularly consistent with the PIE perspective, given its acknowledgment of the role of invalidating environments and associated interventions to address the deficit. Given that the social work profession has historically been action-oriented with regard to using micro and macro interventions to bring about needed individual and social change, respectively, the modes of mind theory behind MBCT are stimulating for the social work because it emphasizes acceptance and being with regard to dilemmas that do not currently have an available solution. The unique characteristics of the third-wave cognitive-behavioral theories (as described by Hayes 2016) are beneficial not only because of the new ways of conceptualizing client problems and providing new ways of helping people in treatment but also because of the new or stronger connections which are made in support of social work values and ethics (NASW 2017). With the third wave’s emphasis on spirituality, relationships, values, and acceptance, each of these thirdwave characteristics can be viewed as another way of validating the inherent dignity of worth of clients social workers serve.
Conclusion As can be seen across the aforementioned psychodynamic, humanistic, and cognitive-behavioral theories, each has substantially different ways of conceptualizing psychopathology and different clinical techniques for achieving psychological wellbeing. Clinical social workers should complete formal training, continue education, and obtain appropriate clinical supervision to stay abreast of various developments and evolutions in each of the psychological theories. In addition to being consumers and practitioners of psychological theories, clinical social workers must be appropriately critical and discriminating of theories to ensure any theories they adopt are consistent with social work values and ethics. Moreover, in addition to using psychological theories, social workers should be consistent consumers and
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producers of clinical social work research regarding the psychotherapeutic interventions which derive from these theories. The development of new theoretical knowledge can be conducted by social workers in academic settings testing clinical theories; clinical social work practitioners using meta-analytic statistical techniques to test theories pertaining to treatment effect, moderation, and mediation; or clinical social workers theorizing about their recurring clinical observations observed in everyday practice. It is the author’s desire that clinical social workers will not only be discriminating consumers of psychological theories but producers of clinical theories which uniquely serve the profession and advance individual, group, family, and community outcomes.
Cross-References ▶ Application of Mindfulness-Based Approaches in the Context of Social Work ▶ Behavior Analysis and Social Work ▶ Community and Mental Health ▶ Theories on Mental Health, Illness and Intervention
References Beck AT (1976) Cognitive therapy and the emotional disorders. International Universities Press, New York Beck AT, Davis DD, Freeman A (eds) (2015) Cognitive therapy of personality disorders, 3rd edn. Guilford Press, New York Beck AT, Haigh EAP (2014) Advances in cognitive theory and therapy: the generic cognitive model. Annu Rev Clin Psychol 10:1–24. https://doi.org/10.1146/annurev-clinpsy-032813-153734 Beck AT, Rush AJ, Shaw BF, Emery G (1979) Cognitive therapy of depression. Guilford Press, New York Beck JS (2011) Cognitive behavior therapy: basics and beyond, 2nd edn. Guilford Press, New York Bliss S, Rasmussen B (2013) Reflections on contemporary psychodynamic theory in clinical social work. J Soc Work Pract 27:211–215. https://doi.org/10.1080/02650533.2013.818938 Boone MS, Mundy B, Stahl KM, Genrich BE (2015) Acceptance and commitment therapy, functional contextualism, and clinical social work. J Hum Behav Soc Environ 25:643–656. https://doi.org/10.1080/10911359.2015.1011255 Briggs HE, Cox W, Sharkey CN, Corley N, Briggs AC, Black M (2016) The role of behavioral theory in model development research with single parent families. Child Adolesc Soc Work J 33:349–363. https://doi.org/10.1007/s10560-015-0428-y Cain DJ (2001) Defining characteristics, history, and evolution of humanistic psychotherapies. In: Cain DJ, Seeman J (eds) Humanistic psychotherapies: handbook of research and practice. American Psychological Association, Washington, DC, pp 3–54 Chou C, Chan F, Chan JYC, Phillips B, Ditchman N, Kaseroff A (2013) Positive psychology theory, research, and practice: a primer for rehabilitation counseling professionals. Rehabil Res Policy Edu 27:131–153. https://doi.org/10.1891/2168-6653.27.3.131 Ciarrochi JV, Bailey A (2008) A CBT practitioner’s guide to ACT: how to bridge the gap between cognitive behavioral therapy & acceptance & commitment therapy. New Harbinger Publications, Oakland
3
Psychological Perspective
63
Cooper B, Parsons J (2010) Dialectical behaviour therapy: a social work intervention? Aotearoa New Zealand Social Work Review 21(22):83–93 Clark DA, Beck AT (2010) Cognitive therapy of anxiety disorders: science and practice. Guilford Press, New York Cummins L (2017) Toward theoretical inclusiveness in clinical social work. Clin Soc Work J 45:367–370. https://doi.org/10.1007/s10615-017-0644-3 Deal KH (2007) Psychodynamic theory. Adv Soc Work 8:184–195 Dean RG (2002) Teaching contemporary psychodynamic theory for contemporary social work practice. Smith Stud Soc Work 73:11–27 Deckersbach T, Hölzel B, Eisner L, Lazar SW, Nierenberg AA (2014) Mindfulness-based cognitive therapy for bipolar disorder. Guilford Press, New York Dimeff LA, Koerner K (eds) (2007) Dialectical behavior therapy in clinical practice: applications across disorders and settings. Guilford Press, New York Dimidjian S, Kleiber BV, Segal ZV (2010) Mindfulness-based cognitive therapy. In: Kazantzis N, Reinecke MA, Freeman A (eds) Cognitive and behavioral theories in clinical practice. Guilford Press, New York, pp 307–331 Eagle M (1987) Theoretical and clinical shifts in psychoanalysis. Am J Orthopsychiatry 57:175–185 Elliot R (2001) The effectiveness of humanistic therapies: a meta-analysis. In: Cain DJ, Seeman J (eds) Humanistic psychotherapies: handbook of research and practice. American Psychological Association, Washington, DC, pp 57–81 Ellis A (1994) Reason and emotion in psycho-therapy: a comprehensive method of treating human disturbances. Revised and updated. Birch Lane Press, New York Freud F (1900/1989) The interpretation of dreams. In: Gay P (ed) The Freud reader. Norton & Company, New York, p 129–142 Freud F (1905/1989a) Fragment of an analysis of a case of hysteria (“Dora”). In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 172–239 Freud F (1905/1989b) Three essays on the theory of sexuality. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 239–293 Freud F (1907/1989) Obsessive actions and religious practices. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 429–436 Freud F (1910/1989) ‘Wild’ psycho-analysis. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 351–356 Freud F (1911/1989) Formulations on the two principles of mental functioning. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 301–306 Freud F (1913/1989) Totem and taboo. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 481–513 Freud F (1915/1989a) The unconscious. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 572–584 Freud F (1915/1989b) Repression. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 568–572 Freud F (1923/1989). The ego and the id. In: Gay P (ed) The Freud reader, Norton & Company, New York, p 628–658 Freud F (1925/1989) An autobiographical study. In: Gay P (ed) The Freud reader. Norton & Company, New York, pp 3–41 Freud F (1933/1965) Anxiety and instinctual life. In: Strachey J (ed) New introductory lectures on psycho-analysis. Norton & Company, New York, pp 81–111 González-Prendes AA, Brisebois K (2012) Cognitive-behavioral therapy and social work values: a critical analysis. J Soc Work Values Ethics 9:21–33 Gregory VL Jr (2010a) Cognitive-behavioral therapy for bipolar disorder: implications for clinical social workers. J Soc Serv Res 36:460–469. https://doi.org/10.1080/01488376.2010.510950 Gregory VL Jr (2010b) Cognitive-behavioral therapy for schizophrenia: applications to social work practice. Soc Work Ment Health 8:140–159. https://doi.org/10.1080/15332980902791086
64
V. L. Gregory Jr.
Hayes SC (2004) Acceptance and commitment therapy and the new behavior therapies: mindfulness, acceptance, and relationship. In: Hayes SC, Follette VM, Linehan MM (eds) Mindfulness and acceptance: expanding the cognitive-behavioral tradition. Guilford Press, New York, pp 1–29 Hayes SC (2012a) Acceptance and commitment therapy. American Psychological Association, Washington, DC Hayes SC (2012b) Acceptance and commitment therapy: the process and practice of mindful change, 2nd edn. Guilford Press, New York Hayes SC (2016) Acceptance and commitment therapy, relational frame theory, and the third wave of behavioral and cognitive therapies – republished article. Behav Ther 47:869–885. https://doi.org/10.1016/j.beth.2016.11.006 Hayes SC, Barnes-Holmes D, Roche B (eds) (2001) Relational frame theory: a post-Skinnerian account of human language and cognition. Plenum Press, New York Heisler E J (2018). The mental health workforce: A primer (Report No. R43255). Retrieved from Congressional Research Service. https://fas.org/sgp/crs/misc/R43255.pdf Henry CD (2017) Humanistic psychology and introductory textbooks: a 21st-century reassessment. Humanist Psychol 45:281–294. https://doi.org/10.1037/hum0000056 Hick SF, Chan LC (2010) Mindfulness-based cognitive therapy for depression: effectiveness and limitations. Soc Work Ment Health 8:225–237. https://doi.org/10.1080/15332980903405330 Houghton DC, Compton SN, Twohig MP, Saunders SM, Franklin ME, Neal-Barnett AM, . . . Woods DW (2014) Measuring the role of psychological inflexibility in trichotillomania. Psychiatr Res 220:356–361. https://doi.org/10.1016/j.psychres.2014.08.003 Kato T (2016) Psychological inflexibility and depressive symptoms among Asian English speakers: a study on Indian, Philippine, and Singaporean samples. Psychiatry Res 238:1–7. https://doi.org/10.1016/j.psychres.2016.02.007 Kwok SSW, Chan ECC, Chen PP, Lo BCY (2016) The “self” in pain: the role of psychological inflexibility in chronic pain adjustment. J Behav Med 39:908–915. https://doi.org/10.1007/ s10865-016-9750-x Levy DM (1937) Primary affect hunger. Am J Psychiatry 94:643–652. https://doi.org/10.1176/ ajp.94.3.643 Linehan MM (1993) Cognitive-behavioral treatment of borderline personality disorder. Guilford Press, New York Linehan MM (2004) Dialectical behavior therapy: synthesizing radical acceptance with skillful means. In: Hayes SC, Follette VM, Linehan MM (eds) Mindfulness and acceptance: expanding the cognitive-behavioral tradition. Guilford Press, New York, pp 30–44 Linehan MM (2015) DBT skills training handouts and worksheets, 2nd edn. Guilford Press, New York Luoma JB, Hayes S, Walser RD (2007) Learning ACT: an acceptance & commitment therapy skills-training manual for therapists. New Harbinger Publications, Oakland Maslow AH (1943) A theory of human motivation. Psychol Rev 50:370–396. https://doi.org/ 10.1037/h0054346 National Association of Social Workers (NASW) (2017) Code of ethics of the national association of social workers. NASW, Washington, DC Park J, Chen RK (2016) Positive psychology and hope as means to recovery from mental illness. J Appl Rehabil Couns 47:34–42 Philips B (2009) Comparing apples and oranges: how do patient characteristics and treatment goals vary between different forms of psychotherapy? Psychol Psychother Theory Res Pract 82:323–336 Pignotti M, Thyer BA (2009) Use of novel unsupported and empirically supported therapies by licensed clinical social workers: an exploratory study. Soc Work Res 33:5–17. https://doi.org/ 10.1093/swr/33.1.5 Rapp CA (1998) The strengths model: case management with people suffering from severe and persistent mental illness. Oxford University Press, New York
3
Psychological Perspective
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Rogers CR (1951) Client-centered therapy. Houghton Mifflin, Boston Rogers CR (1957) The necessary and sufficient conditions of therapeutic personality change. J Consult Psychol 21:95–103. https://doi.org/10.1037/h0045357 Rosenzweig S (1936) Some implicit common factors in diverse methods of psychotherapy. J Orthop 6:412–415. https://doi.org/10.1111/j.1939-0025.1936.tb05248.x Ruiz F (2010) A review of acceptance and commitment therapy (ACT) empirical evidence: correlational, experimental psychopathology, component and outcome studies. Int J Psychol Psychol Ther 10:125–162 Ruiz FJ (2014) The relationship between low levels of mindfulness skills and pathological worry: The mediating role of psychological inflexibility. Anales de Psicología 30:887–897. https://doi.org/10.6018/analesps.30.3.150651 Segal ZV, Teasdale JD, Williams JMG (2004) Mindfulness-based cognitive therapy: theoretical rationale and empirical status. In: Hayes SC, Follette VM, Linehan MM (eds) Mindfulness and acceptance: expanding the cognitive-behavioral tradition. Guilford Press, New York, pp 45–65 Segal ZV, Williams JMG, Teasdale JD (2013) Mindfulness-based cognitive therapy for depression: a new approach to preventing relapse, 2nd edn. Guilford Press, New York Seligman ME (1998) The president’s address. Am Psychol 54:559–562 Shedler J (2010) The efficacy of psychodynamic psychotherapy. Am Psychol 65:98–109. https://doi.org/10.1037/a0018378 Thyer B (2017) It is time to delink psychodynamic theory from the definition of clinical social work. Clin Soc Work J 45:364–366. https://doi.org/10.1007/s10615-015-0530-9 Wenzel A, Liese BS, Beck AT, Friedman-Wheeler DG (2012) Group cognitive therapy for addictions. Guilford Press, New York Wilson GT (1996) Manual-based treatments: the clinical application of research findings. Behav Res Ther 34:295–314
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Behaviorism as a Philosophy of Science . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Respondent Learning Theory Foundations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Operant Learning . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Observational Learning . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Methods in Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Assessment and Measurement . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Specific Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Anxiety . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Schizophrenia . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Depression . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Summary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
This chapter provides an overview of the social work applications of the practice approach known as behavior analysis to the field of mental health. Behavior analysis has been an empirically supported approach to mental health practice for over 50 years, and its general principles have been accepted within social work since the 1930s. The chapter distinguishes between the philosophical foundations of this approach, known as behaviorism, from the practice applications derived from learning theory, and its hallmark approach to evaluation of clinical practice known as single-system research designs. Behavior analysis makes use of the theoretical principles of respondent, operant, and observational learning and through these concepts has derived a very wide array of empirically supported B. A. Thyer (*) College of Social Work, Florida State University, Tallahassee, FL, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_22
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methods of mental health assessment and treatment. The focus on behavior analysis is on a client’s behavior, but behavior includes not only overt, publicly observable actions but also one’s emotions and thoughts, since these too are functions of the human body. Behavior analysis has always been concerned with promoting functional behavior of clients, but also the enhancement of positive feelings and thoughts, with parallel efforts to reduce dysfunctional behavior, maladaptive thinking, and dysphoric affect. The widespread belief that behavior analysis is solely focused on overt behavior is a harmful myth. Some clinical social workers are complete, or radical, behavior analysts, accepting the philosophy of science called behaviorism, the conceptual framework of social learning theory, and the research approach of single-subject designs. Others borrow selectively from among these principles to improve their practice in a more eclectic manner. Keywords
Social work · Behavior analysis · Evidence-based practice · Clinical practice · Empirical · Social learning theory
Introduction Approaches to social work practice in the field of mental health derived from learning theory, and given the labels of behavior analysis or behavior therapy, have been present in our professional literature for a very long time. One quote illustrating this perspective can be found in Robinson (1930, pp. 83–84): “Two dominant schools of thought may be recognized as differentiating case work approach and treatment at the present time: behaviorist psychology and psychiatric interpretation. The former emphasizes habit training, conditioning and reconditioning in treatment. . .illustrations of a partial use of this psychology in treatment are abundant in any case work area.” Other early social work writers commenting on the value of behavioral methods for social work include Berman (1927) and Bruno (1936). A general definition of behavioral social work was provided by Thyer and Hudson (1987, p. 1): “. . .the informed use by professional social workers of assessments and interventions based on empirically derived learning theories. These theories include, but are not limited to, respondent learning, operant learning, and observational learning. Behavioral social workers may or may not subscribe to the philosophy of science known as behaviorism.” Let’s be clear from the outset of what is meant by the word “behavior” when we talk about behavior analysis and therapy. In turning to The Social Work Dictionary (Barker 2014, p. 38), we read that behavior is defined as “Any action or response by an individual, including observable activity, measurable physiological changes, cognitive images, fantasies, and emotions.” In other words, the term behavior subsumes everything a person does, internal or external, volitional or not. A fist pump is as much behavior of the person as is the pumping of their heart. Squeezing the hand
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in a friendly handshake is behavior, as is the peristaltic squeezing of our intestines. Reading aloud is as much behavior as is whispering or reading to oneself without making a sound. The toothache pain one experiences is as real as one’s teeth chewing food, and love for one’s family is as real as a physical kiss. All are seen as behavior and can be the focus of behavioral intervention. Indeed, from the earliest years of the development of behavioral therapies, many have been focused on non-observable behaviors, dysfunctional feelings such as depression and anxiety, reducing nightmares or hallucinations, changing irrational thoughts, correcting delusions, and ameliorating obsessional thinking. This point is stressed because behavioral approaches are often (incorrectly) claimed to only focus on overt, public behavior and that this is a serious limitation of this approach. Such incorrect claims are simply ignorant or malicious. The complete or radical perspective of behavior analysis includes four discrete elements: a philosophy of science (properly called behaviorism), an empirical theoretical foundation, a repertoire of research-supported methods of assessment and intervention, and an approach to assessment and evaluating clinical practice outcomes known as single-system research designs. Each of these elements will be reviewed.
Behaviorism as a Philosophy of Science We shall start with behaviorism’s philosophy of science. Critical social work reminds the profession that often the assumptions of social work practice go unacknowledged or at least unchallenged. Behaviorists cannot be reasonably accused of these sins, as there is an extensive literature outlining, elaborating, and sometimes critiquing its philosophical assumptions. The journal Behavior and Philosophy has been published since 1972 and is explicitly devoted to the philosophical foundations of the study of behavior (see https://behavior.org/journals/), articulating and defending the behavioral position. A number of books are also available that do the same thing (e.g., Hayes and Ghezzi 1997; Lattal and Chase 2003; O’Donnell 1985; Rachlin 1991; Thyer 1999). The core assumptions of behaviorism appear in Table 1 and generally reflect the perspective of mainstream contemporary scientific inquiry. It is of course recognized that these assumptions may not be themselves “provable” in a scientific sense. Like the axioms devised by Euclid, from which he constructed an extremely useful system of plane geometry, behaviorally oriented clinicians and scientists find the array of axiomatic positions listed in Table 1 very useful in their approach to social work practice and scholarly research.
Respondent Learning Theory Foundations Behavioral social work is strongly grounded in several interconnected theories of human behavioral development and change. The broad outlines of each of the distinct approaches will be familiar to most social workers. Most fundamentally,
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Table 1 Some of the components of the philosophy of science called behaviorisma Acceptance of Realism – The point of view that the world has an independent or objective existence apart from the perception of the observer Determinism – The assumption that all phenomena have physical causes that are potentially amenable to scientific investigation Positivism – The belief that valid knowledge about the objective world can be arrived at through scientific research Empiricism – A preference to rely on evidence gathered systematically through observation or experiment, and capable of being replicated (i.e., verified) by others, using satisfactory standards of evidence Rationalism – The belief that reason and logic are useful tools for scientific inquiry and that, ultimately, truthful explanations of human behavioral will be rational Operationalism – The assertion that it is important to develop measures of phenomena (e.g., client problems, interventive procedures) that can be reliably replicated by others Parsimony – A preference of the simpler available adequate explanations for behavioral phenomena Pragmatism – The view that the meaning or truth of anything resides in its consequences in action Scientific skepticism – The point of view that all claims should be considered of doubtful validity, until substantiated by credible scientific data a
From Royse et al. (2016, p. 30)
the principles comprising respondent learning theory attempt to partially explain the development, maintenance, and elimination of relatively simple reflexive types of behavior and of human feelings. Also known as Pavlovian conditioning, after its foremost investigator the Russian physiologist Ivan Pavlov, respondent learning is a person-in-environment approach that examines the simple forms of reflective reflexive, not reflective behavior all humans demonstrate from birth (and sometimes in utero) and can acquire afterward. We blink in response to a puff of air on our eye. Humans do not learn this behavior; it exists from birth. We flinch when we hear an unexpected loud noise. This too is unlearned, and similar responses have been observed with the human fetus. These natural phenomena have been given some labels, with the event that triggers a naturally occurring reflexive reaction called an unconditioned stimulus (UCS) and the unlearned reflex called a unconditioned response (UCR). Pavlov (and many others prior to and after him) observed that events which immediately precede a UCS can themselves come to evoke a URC. When this happens the formerly neutral prior event is called a conditioned stimulus, or CS, and the response evoked by the CS is now called a conditioned response, or CR. If I stand behind you and murmur the word “bang,” you will likely not react very much. But if I murmur the word bang and a moment later I crash a pair of cymbals behind you, you will flinch and winch to the loud sound. If I do this a number of times, shortly, when I murmur the word “bang,” you will flinch and winch, even if I do not clash the cymbals behind you. When I was young, I had my first bowl of Chinese hot and sour soup. Initially, when the bowl was set before me, nothing in
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particular happened, but during later meals over the years, when the hot and sour arrives, I begin to salivate, just like Pavlov’s famous dogs. In these examples of soup and cymbals, can you label the UCS, UCR, CS, and CR? The phenomena of respondent learning have been demonstrated not only among human beings all around the world but across all animal species examined. It seems to be a universal property of living animals, down as far as single-celled organisms. While human beings may possess certain unique characteristics that distinguish us from other animals (and that itself is a debatable topic), we are undeniably members of the animal kingdom and are subject to its fundamental principles of learning. To bring this topic closer to the field of social work and mental health, there is strong evidence that respondent learning principles are implicated in the etiology, as least partially, of a wide variety of behavioral disorders. Specific and social phobias, agoraphobia, post-traumatic stress disorder, acute stress reactions, and racism (see Arhin and Thyer 2004) are some examples. Many specific phobias, for example, begin when someone has a frightening experience with a previously neutral stimulus (a dog, a scary movie depicting something horrible). Coelho and Purkis (2009) provide a review of the evidence relating the onset of phobias to conditioning experiences. Sometimes the CS is experienced directly (being bitten by a dog), or sometimes vicariously (seeing a horror movie involving a mad dog), via information (reading about the diseases dogs can spread to humans) or seeing someone else (e.g., a parent) act extremely frightened around a dog. One may be able to eliminate a dysfunctional CR through the process called respondent extinction. The clinical social worker presents the CS at a low level which does not evoke a strong CR. This is repeated, and gradually the intensity of the CS is increased, slowly, at a level tolerable to the client. I recently used this approach to help someone with a severe fear of balloons. She lived several hundred miles away, so we used the audiovisual program called Skype to conduct a respondent extinction-based treatment called exposure therapy to help her. At a prearranged time, she called me via Skype and both of us could see and hear each other clearly. She could not tolerate watching and hearing me blow up a balloon to its full size and then pop it (her worst fear), so I had her minimize her screen so my image was very small and turn off the volume. She could tolerate watching me partially blowing up balloons then, which I did and proceeded to pop them. Soon she stopped flinching to the soundless image of small balloons being popped, and I asked her to maximize the image so she had greater exposure to the sight of popping balloons. Then, I asked her to increase the volume slightly, so she could, barely, hear the popping sounds. At her own pace, she increased the volume. After an hour or so, she was flinching much less and intermittently yelling in fear and laughing while watching me pop balloons with the volume and image at their maximum. At that point she could try and blow balloons up herself, initially only part way, and then pop them and then blow them up bigger and bigger. After 2 h she was blowing them up all the way and popping them with a pin, albeit with flinching and muted screams. After this session, when she could pop balloons on her own, I had her continue daily balloon inflating and popping exercises. After several months her severe fear of balloons had all but disappeared (see Elmhurst and Thyer 2019, for details).
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The details of respondent learning principles are quite involved, and it is not at all such a simple process of learning new behavior as is commonly viewed. One social work resource which reviews this approach to learning can be found in Thyer (2012).
Operant Learning More complex or volitional behavior in people can often be explained through a different form of learning theory, called operant conditioning. This too is a personin-environment perspective which focused on how the consequences which have followed a given behavior in the past influence its future occurrence. Behavior which has been followed by a rewarding consequence usually becomes strengthened or more probable in the future, a process called reinforcement. In operant learning there are two types of reinforcement, positive reinforcement, wherein something is presented or experienced by a the person, after they display a given behavior, and negative reinforcement, wherein something is removed after a particular behavior, and the behavior is also subsequently strengthened or becomes more probable. If you put coins in a vending machine and candy is delivered, you are more likely to put coins in that machine when you are hungry. If hard work on term paper is followed by a good grade, you are more likely to work hard on similar assignments in the future. The word positive in positive reinforcement refers to something being presented, and the word negative to something being removed, after a behavior. If turning the volume down on the television reduces obnoxious noise, this is a form of relief, and you are more likely to use the volume control in the future when obnoxious noise is being played. Because the consequence consists something being removed and the behavior is strengthened, this process is called negative reinforcement. Negative reinforcement is a good thing and examples abound – putting on sunglasses in the bright sun, opening an umbrella in the cold rain, escaping the boring house when chores are completed, and scratching an itch, all examples of behavior maintained by negative reinforcement. Punishment involves consequences that are either presented (positive punishment) or removed (negative punishment), which reduces the likelihood of performing a given behavior in the future, at least under similar circumstances. If you are jabbed with a fork by your mother when you rudely reach across the dining table, and you reach rudely across the table less often in the future (at least when your mom is there), your mom is using positive punishment, positive in that she presented you with something and punishment because behavior became less likely. We do not like experiencing positive punishment (usually). If your mom deducts some money from your usual allowance when you reach across the table, and you decrease your rudeness, your mom is using negative punishment, negative because something was removed and punishment because the behavior became less likely. Examples of both types of punishment are also all around us. If we get a fine for speeding and speed less in the future, the ticket and fine served as effective negative punishment (because your money was taken away). Fines as a form of social control in general are designed, intentionally or not, as negative punishment. See if you can identify what form of operant learning is present in each of the following four examples:
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• You tend to leave your dirty clothes lying around the house. Your partner begins a program of picking them up and throwing them away. After a while you leave your clothes lying around the house less frequently (even though you have not run out of clothes). • You are late returning a library book and are charged a fine. You become less tardy in the future in terms of returning library books. • You put some money in a slot machine and WIN! Hundreds of dollars come spilling out into your bucket. You play slot machines even more frequently in the future. • You have a headache. You take aspirin, and within an hour, your headache has disappeared. In the future you are more likely to take aspirin when you have a headache. How did you do? Get them all right? Good job! When reinforcement that has been maintaining a given behavior is halted, the behavior tends to temporarily strengthen and then to decrease and eventually cease. In the past, a child has found that when she yells for her mom, mom tends to approach her and give her attention. If one yell does not do the trick, then two, three, or more yells have usually induced mom to attend to the child, perhaps give her something tangible she desires. Such reinforcement processes, often extending out during months of learning history, can produce a child who has severe tantrums regularly. If mom is instructed by the social worker, as a part of a behavior management plan, to only attend to the child when she makes a request in a normal voice, and to steadfastly ignore loudly yelling demands for mom’s presence, the first few times this approach is followed, the “tantrums” will likely increase, before diminishing. This eventual decrease in problem behavior is called extinction, and the temporary increase is called an extinction burst. Another operant learning process is called shaping and involves the differential reinforcement of approximations to a desired terminal behavior that may ultimately be quite complex. When I am teaching my students to write papers in APA style, initially their prose and citations are hopelessly incorrect. I provide some corrections to their draft and praise them for what they got correct, and they turn in a more accurate assignment. This is repeated, and after a few drafts, with corrective feedback and praise along the way as they improve, soon most are completing APA-compliant papers. When teaching my kids to set the table, I showed them a complete service setting and asked them to duplicate it. They got some things right and other things wrong (e.g., the fork should be on the left). I praised them for what they got right and the next time asked them to try again. They usually got a few more steps correct. Again, praise, repeat, praise, and soon they were setting the table correctly (and I could comfortably pass along this one onerous chore to them for years!). Professors use shaping with their doctoral students. The ultimate task for most Ph.D. students is to produce an independent research project called the dissertation, a long and complex affair. However, during the 4 or more years of doctoral study, the students engage in tasks that successively approximate steps toward a real dissertation. They learn APA style, a statistical software package, and how to search the literature and perform a systematic review, collect empirical data
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and assess for reliability and validity, come up with one or more research questions and hypotheses, assist on my projects or those of senior doctoral students, and eventually begin their own research exercise, shaping. There are two additional ways to categorize operant learning and that is viewing some types as contingency-shaped, wherein there is actual contact with reinforcing, punishing, and shaping consequences, and of personal experience with the removal of reinforcement and the decrease in behavior (Do you recognize operant extinction?). However, with humans, there is a second, perhaps broader, category of operant learning called rule-governed behavior (RGB). In RGB, behavior is changed by a verbal or written description of contingencies of reinforcement and punishment, rather than by direct contact. Some of us wear sunscreen because we have gotten burned, and later, when we wore sunscreen, we did not get sunburned and had a much nicer day at the beach. Others of us heard the advice, “Wear sunscreen at the beach so you do not get burned.” We wore sunscreen and have avoided most sunburns. Following directions, verbally or manually, and reading and adhering to what signs say are efficient ways of conveying the presence of the contingencies present in a given situation, without having to directly experience them. “Do not touch the stove element. It is hot and you will get burned” is an example most of us have followed. Using the manual containing instructions on setting up your computer is another. Take learning to drive a car. We could give someone a key, let them get in the car, and fumble around for days figuring out what to do. Learning would take very long, be terribly inefficient, and involve many mistakes. But having an instructor tell us what to do, each step of the way, is a much more rapid way of learning to drive than the trial and error method of self-shaping. Following a recipe for baking a cake is more likely to produce an edible cake than giving someone the ingredients and letting them figure it out on their own. RGB only works so long as it usually leads to reinforcement. If the directions are incorrect or omit a crucial step, people may abandon attempting to acquire the new behavior. Usually RGB involves the verbal/ written specification of the behavior and the outcome. Think of assembly instructions for a piece of furniture, or install a new software on your computer. But sometimes RGB is a more generalizable method of learning. Learning to comply when mother says “Come here” is usually a good idea, and most children learn to obey such rules reasonably consistently, but only because compliance has been followed by reinforcement in the past. If in the past when mother said “Come here” and compliance was followed by punishment, then adherence to the rule will be followed weakly, if at all. To be most effective, rules describing contingencies should yield fairly immediate consequences. Having a deadline is also a way to strengthen the efficacy of rules. Telling my children “If you make an A on this week’s test I will take you to the movies” is more likely to strengthen studying behavior this week than telling them “If you make an A for the semester I will take you to the movies then.” Hayes (1989) is a good source to learn more about the distinctions between contingency-shaped and rule-governed behavior. Both are seen as forms of operant learning. Like respondent learning, operant learning has been demonstrated in all animal species tested – other primates, mammals like dogs, cats, pigs, elephants, reptiles,
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fish, amphibian, insects, etc. Again this suggests this is a universal and powerful mechanism of learning which is crucially important in human development across the life-span and in the emergence of both functional and dysfunctional behavior. Wong (2012) is an excellent overview of operant theory, written from a social work perspective.
Observational Learning A third form of learning which is foundational to behavioral social work is learning via imitation, also known as modeling. In short “. . .a good deal of learning occurs through vicarious rather than a personal experience. We observe the behavior of others, observe the consequences, and later we may imitate their behavior” (Mazur 1998, p. 289). Learning by imitation is not limited to humans but has been observed through the animal kingdom (other primates, dogs, cats, rodents, bird, octopi, and even fish!), including learning fairly complex repertoires. One-month-old infants have demonstrated the capacity to imitate adults, suggesting a strong evolutionary component to this form of learning. It is likely that the ability to learn from others (especially their mistakes and successes) enabled our distant ancestors to survive and reproduce more successfully than those who lacked such a capacity. Of course the same can be said for respondent and operant learning. Overlapping with the principles of rule-governed behavior, one can readily see the value of being able to learn not from what others tell us to do but what they demonstrate doing. Being shown a new skill is often a more effective method of skill acquisition than being told what to do. Modeling is facilitated by observing people similar to oneself, by observing models being rewarded for their success, and models who initially display less than perfect skill but who gradually improve and then get rewarded, are more effective exemplars than demonstrating perfect performance the very first time. Many behavior therapies combine all three elements of learning theory principles. When I do real-life exposure therapy, I am using principles of respondent extinction. I almost always model what I am ask fearful clients to do before asking them to do something difficult (e.g., touch a snake), and I am liberal in my use of reinforcement contingent upon their undertaking more fearful behavior, with praise and the judicious use of humor being foremost tools in this regard. Very few behavioral methods are purely one form or another.
Practice Methods in Mental Health Social workers making use of behavioral methods fall along a continuum with respect to adherence to the complete behavioral model. At one end are practitioners who respect the empirical research foundations enjoyed by many behavioral interventions, and they apply them with their clients, who they may have diagnosed using the criteria found in the Diagnostic and Statistical Manual of Mental Disorders (DSM-5, American Psychiatric Association 2013). They may not subscribe to the
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philosophy of science called behaviorism, and they may make no use of singlesystem research designs to evaluate their practice. They simply pragmatically adopt methods that work. Many practitioners fall into this camp. Others, such as the author of this chapter, fully embrace the perspective known as behavior analysis, make little to no use of the DSM, use learning theory to guide their assessment and interventive techniques, and attempt to use single-system designs to evaluate the outcomes of their practice. The DSM is viewed by behavior analysts as a scientifically flawed document which is both empirically and conceptually of little value in terms of being able to effectively help clients. As reviewed in a number of critical articles (e.g., Thyer 2006, 2014, 2015), the very definition of mental disorder found in the DSM-5 is tautological. This definition states “A mental disorder is a syndrome characterized by clinically significant disturbance in an individual’s cognition, emotional regulation, or behavior that reflects a dysfunction in the psychological, biological or developmental processes underlying mental functions” (APA 2013, p. 20). Claiming that a mental disorder is a disturbance in the processes underlying mental functioning is simply repeating words, like saying you can recognize sleeping pills because they put you to sleep. Imagine cardiology claiming that we can recognize heart disease because heart functioning is disturbed. Maybe the cause is not heart disease but diet, endocrine problems, medication side effective, or overuse of caffeine. Yet virtually any condition that is distressful can be labeled a mental disorder, according to the DSM-5. Behavior analysts suggest that when conditions adversely effecting thoughts, emotions, or behavior can be etiologically attributed to factors such as genetics, physical diseases such as Alzheimer’s, the effects of drugs or other ingested substances, or one’s environmental history, it is scientifically inappropriate to label the resultant changes in behavior as a mental illness. The disciplinary overreach contained within the DSM-5 can be correctly viewed as a self-serving effort on the part of psychiatry to reclaim and even expand upon their professional purview. If all disturbances in cognitive, emotional, and behavioral functioning are said to be mental illnesses, irrespective of the etiology of that disturbance, and we are further told that the “DSM is a medical classification of disorders. . .” (APA 2013, p. 10), then the supremacy of psychiatrists as being the diagnosticians and treatment providers of choice (by virtue of their medical background) is unblinkingly asserted. This means that nonmedical professionals such as clinical social workers, psychologists, behavior analysts, etc. are seen as suboptimally trained practitioners. Situational contexts, upbringing, parents, peers, impoverishment, and lack of opportunities are largely ignored in the DSM, even though these factors are frequently the etiological precursors to disturbances in behavior (and recall that in behavior analysis, the term behavior also includes emotions and thoughts). One response by clinical social workers is to hold our nose and use the DSM criteria and terminology in our practice, in effect turning a blind eye to the deficits of the DSM. This is perhaps the most common practice. Another approach is to not use the DSM at all. Some very distinguished practitioners have advocated this approach, people such as Thomas Szasz and Carl Rogers. The whole approach
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known as client-centered therapy largely eschews the DSM categorical system, as do practitioners who use family systems therapy, who tend to view individual disturbance as a reflection of familial dysfunction. The approaches to clinical social work developed by de Shazer and Berg, solution-focused brief therapy, Michael White’s narrative therapy, and Saleebey’s strengths-based perspective all avoid psychiatric categorization, focusing instead on client’s strengths and possible solutions, not problems. Behavior analysts too make no use of the DSM (except perhaps for insurance billing purposes). They are aware of the conceptual and reliability problems contained within the pages of the DSM-5 and instead focus on measuring behaviors and addressing them without stigmatizing labels. For example, a client who may meet the DSM-5’s criteria for PTSD may not be approached with an omnibus therapeutic approach (e.g., a medication, psychoanalysis, etc.) which is intended to treat the “disease” of PTSD. Instead, the behavioral analyst would work with the clients to assess the discrete behavioral issues that are disturbing them. These may include features such as nightmares, intrusive thoughts during the day, avoidance of situations resembling their trauma, an exaggerated startle response, hypervigilance, etc., all of which are amenable to empirical assessment. Each such difficulty could be individually addressed using different therapies derived from learning theory, and by reducing the severity of each aspect of the problem, which collectively gave rise to the presumptive diagnosis called PTSD. At some point the client is significantly improved, ideally demonstrated by a reduction in the presenting problems which lead the client to seek treatment. If the nightmares are now gone, avoidance is eliminated, intrusive thoughts absent, etc., the client is “cured,” all without resorting to using the label of PTSD. These various behavioral aspects troubling the client are not seen as symptoms of some underlying illness or disease; there is no disease present, not any other medical condition behind the problems. The nature of PTSD is environmental, not mental. The etiology resides in the client’s past environmental experience, the traumatic event. Now, of course the trauma may interact with some pre-existing aspect of the client. Someone with prior vulnerabilities may develop PTSD-like problems, whereas someone with a background that had presented less averse experiences may emerge relatively unscathed from the same “trauma.” The young soldier with a history of being severely battered as a child, or parental substance abuse and spousal fighting, may well be more likely to develop PTSD to a horrible combat-related situation, but the heightened vulnerability to develop PTSD is itself related to the soldier’s prior environmental experiences, not to their character, intrapsychic functioning, or attachment patterns. These three patterns, if they exist at all, are behaviors caused by one’s past environment; they do not cause or contribute to PTSD directly.
Assessment and Measurement In keeping with good social work practice, after the conventional introductory session(s) spent establishing a relationship and a verbal or written treatment contract
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with the client, the behavioral practitioner devotes some time to selecting a method to empirically measure client functioning, with a focus on their presenting problem(s). As defined by The Social Work Dictionary, behavioral assessment is “. . .the attempt to establish the antecedent stimuli and consequences that shaped and/ or maintain a given discrete behavior or more complex repertoire. The psychosocial origins of behavior are sought in terms of environment events, not mental ones. Behavior is defined in quantifiable dimensions such as how much, how often, and how long” (Barker 2014, p. 38). Unlike psychodynamic therapy, behavior is not seen as symbolic of underlying intrapsychic issues. Little Hans’ fear of horses would be taken at face value, and not interpreted as a fear that his father would castrate him (Freud 1909). Assessment may involve the direct measurement of overt behavior; obtaining client self-reports of private events, either overt behaviors which are not amenable to direct observation by others (e.g., bedroom or bathroom-related behaviors) or of internal experiences such as feelings, thoughts, obsessions, hallucinations, etc.; or of some relevant physiological measurement (e.g., biofeedback-related assessments, blood sugar, blood pressure, drug testing, etc.). When clinically feasible such measures are repeatedly assessed so as to establish a baseline or data-based sense of client functioning. In a very real way, taking a baseline is congruent with the social work dictum of “Beginning where the client is at.” It is also fulfilling Mary Richmond’s advice from over 100 years ago when she told us “. . .special efforts should be made to ascertain whether abnormal manifestations are increasing or decreasing in number and intensity, as this often has a practical bearing on the management of the case” (Richmond 1917). In some clinical situations, such as a crisis, the delays involved in obtaining a baseline may not be advisable, and this step is omitted. Ideally the baseline shows that the client’s problem is stable, or perhaps growing worse. Thus when intervention begins and continuing measurements are taken, the social worker is in a better position to determine if the client is improving, stable, or perhaps getting worse, on the selected outcome measures (there are be more than one). In behavioral social work, results are usually displayed in the form of a line graph, in addition to the traditional narrative case report. One can augment clinical judgment based on talking with the client by referencing the graphed data and thus be able to more compellingly say if the client is improving or not. There is a substantial literature on the use of this methodology, usually called single-system research designs, in the evaluation of social work practice (e.g., Thyer and Myers 2007). In some situations, wherein the intervention is removed and reinstated, the level of causal inference can be substantially enhanced, to the point one can say not just that the client got better, but they improved because of your social work services. Here the adoption of single-system designs segues into what the behavior analysts call the experimental analysis of behavior, and in the contemporary practice of behavior analysis, this is almost expected of each case. But this level of methodological rigor has not penetrated the field of social work to any great extent. Still, the use of regular, systematic, reliable, and valid empirical measurement of client functions, ideally before, during, and after social work intervention, is a hallmark method which has long distinguished this behavioral mode of practice of others.
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Specific Disorders Anxiety Anxiety is usually defined as the client self-report of fear and active avoidance or escape from, feared situations, behaviors which are disproportionate to the actual danger of the situation. There are many ways in which such clinically anxious behavior has been categorized, and the use of this common nomenclature may be used for convenience sake, so long as one keep in mind there are not actual diseases in a medical sense, and the boundaries between the supposed discrete conditions offer considerable blurriness. One behavioral therapy which has been around for many years, and enjoys a considerable amount of supportive clinical research, is called real-life exposure therapy and is based on respondent and operant learning theory. In this approach the social worker attempts to determine the nature of the anxiety-evoking stimulus (AES) for the client and to arrange to recreate it in carefully titrated amounts or dosages of exposure. For example, someone with a fear of heights may be introduced to an open stairwell, wherein during treatment they may be induced to gradually ascend at their own pace. The client with a severe fear of dogs enters a room containing a small puppy and only encounters larger dogs in later sessions as fears to the small dogs have been removed. The client is introduced to the AES with their full and informed consent, knowing they can have the situation terminated at any time. The social worker models coming into contact with the AES and asks the client to reflect on what they are feeling and thinking as they watch. With time the client usually calms down, and the therapist asks them to come closer, to briefly touch, and then to hold the AES. Homologous steps are arranged for different types of AES – heights, enclosed spaces, public speaking, insects, etc. With prolonged contact, the client almost inevitably calms down, permitting upping the intensity of the exposure exercise. With time, the clinician usually sees a reduction in avoidance, with subjective fear and physiological arousal remaining elevated. With more time, variables such as heart rate and perspiration subside, leaving the self-report of anxiety to be the last variable comprising “anxiety” to extinguish. Sessions usually last at least 1 h and should end on a “high note,” when the client is reporting feeling calm. Subsequent sessions pick up where the previous one left off or perhaps a bit behind the end of the previous session. Significant improvements are usually seen within the first few hours, and most clients obtain significant improvements so that all functional limitations are eliminated, as is excessive physiological arousal and the experience of subject anxiety. A search of YouTube using phrases such as “exposure therapy for phobias” will bring up many clips depicting this approach (e.g., https:// www.youtube.com/watch?v=zKTpecooiec). Clearing houses and websites describing research-supported treatments for anxiety disorders indicate the high value of this approach (e.g., https://www.div12.org/ diagnoses/) and in some cases provide clinical materials to assist with the application of the method, such as therapist treatment manuals, client manuals, assessment forms, and training opportunities. The applications of real-life exposure therapy
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are strongly supported for a wide array of conditions described in the DSM, such as specific and social phobias, post-traumatic stress disorder, panic disorder, agoraphobia, obsessions, and compulsions. Adaptions of this approach are used to effectively help reduce the craving of substance abusers and people with anorexia, bulimia, morbid grief, and pathological jealousy.
Schizophrenia The varied conditions that have been labeled schizophrenia have been known for millennia. While it is possible that the condition will ultimately be shown to have a primarily biological etiology, at present insufficient evidence exists to support such a claim. In particular the hypothesis that this condition is related to underlying disturbances in neurotransmitter function has been known to be false for decades, even though this idea remains widely prevalent, reinforced by the pharmaceutical industry which profits from promoting this point of view (Whitaker 2002). While it is ideal that social workers have a clear and valid etiological formulation crafted before undertaking the treatment of clients, it is not always possible and for many conditions such as schizophrenia and other chronic mental illnesses is unlikely to be obtained. Nevertheless we must proceed with offering clinical services, and fortunately the absence of a clear etiological understanding of a condition does not prevent us from being able to effectively care for someone. Just as lime juice was known to prevent scurvy before the discovery of vitamins, and proper hygienic practices beneficial in surgery and wound care before the discovery of bacteria, there are many effective interventions that can be used to help people with chronic mental illnesses, absent a scientifically compelling etiological theory, or causal mechanism for the treatment’s effectiveness. One such approach to provide effective care for persons with schizophrenia is called assertive community treatment (ACT), a multidisciplinary form of therapy which has been around for over three decades. Free treatment resources to learn about the research-based foundations of ACT can be found on the Evidence-Based Practices Resource Center (https://store.samhsa.gov/product/Assertive-CommunityTreatment-ACT-Evidence-Based-Practices-EBP-KIT/SMA08-4345) with information on how to build such a program, how to train frontline staff, treatment manuals, and how to evaluate your local ACT program. ACT has many behavioral methods built within it, relating to enhancing job skills; remaining employed; taking medication reliably, anger control, social skills training; and performing the functional daily living activities needed for independent, community-based living. A 15-min video describing ACT can be found here – https://www.youtube.com/watch?v= o6NtKACjwps&feature=youtu.be. Social workers have a central role on the ACT team. In inpatient settings reinforcement-based programs called token economies have long been used to promote adoptive behavior and reduce psychotic-like actions of clients (Paul and Lentz 1977; Hackenberg 2018). In these systems patients are regularly awarded tokens or points throughout the day for displays of socially
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adaptive behavior and other actions associated with normality. The earned points are exchanged daily (usually) for consumables and extra privileges such as outings, movies, etc. above and beyond those normally used in the hospital. The general approach called social skills training makes extensive use of reinforcement and shaping techniques to help persons with psychosis (see Turner et al. 2018, for a recent meta-analysis of this research) and has the potential to not simply promote functional skills but also to reduce the so-called negative symptoms of schizophrenia (Grantholm and Harvey 2018). In this method, discrete aspects of positive social interaction are broken down into small behaviors, actions like gaining and maintaining appropriate eye contact, initiating appropriate greetings, engaging in conversation, saying farewell, enquiring about the well-being of others, etc. Each is taught, sometimes alone, using praise and shaping, the use of mirrors and video feedback, and repeatedly practiced under conditions that increasingly resemble real-life settings. Social skills training is a remarkable effective psychosocial intervention which social workers are quite naturally able to provide. There is also considerable literature on the use of behavioral methods to reduce or eliminate hallucinations, without the concomitant use of antipsychotic medications (Haddock et al. 1998). Very simply put, hallucinatory or delusional behavior is put on extinction, and normal conversation is selectively attended to and reinforced. Distraction methods (listening to music via earphones) can be useful and are teaching the client to simply ignore the experiences. Data can be taken surrounding the circumstances and times of day when hallucinations and delusions are more frequent and also time when they are less likely to occur. The social worker then works with the client to seek to expand the environmental situations where hallucinations and delusions are less likely (productively engaged in interesting activities) and minimize the times when they are more likely (e.g., alone with nothing to do). This latter approach is similar to the exception-seeking questioning undertaken in solution-focused brief treatment (SFBT), except behaviorally oriented therapists had been doing it years before SFBT was invented, and they augment simply asking questions about exceptional times by taking empirical data to see if their client’s reports are accurate. And then data continues to be taken to see if the intervention is having any effects. The use of methods such as these has even been shown to impact the display of so-called multiple personalities (e.g., see Kohlenberg 1973).
Depression The experience of depression can take many forms and occur under different circumstances. There is postpartum depression; post-myocardial infarction depression; depression following the death of a loved one, the loss of a job, or loving relationship; and depression which is otherwise apparently uncaused (an assumption the behaviorist rejects, since all phenomena are seen as having potentially identifiable causes). In traditional psychodynamic theory, depression is seen as angerturned-inward. Behaviorally oriented clinicians take a more parsimonious approach and investigate environmental aspects of the client’s life which may contribute to
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dysphoric mood. The model of Peter Lewinsohn is a particularly well-developed theory of depression in this regard. “In the mid 1970s, Peter Lewinsohn argued that depression is caused by a combination of stressors in a person’s environment and a lack of personal skills. More specifically, the environmental stressors cause a person to receive a low rate of positive reinforcement. . .. According to Lewinsohn, depressed people are precisely those people who do not know how to cope with the fact that they are no longer receiving positive reinforcements like they were before. For example, a child who has newly moved to a new home and has consequently lost touch with prior friends might not have the social skills necessary to easily make new friends and could become depressed. Similarly, a man who has been fired from his job and encounters difficulty finding a new job might become depressed. In addition, depressed people typically have a heightened state of self-awareness about their lack of coping skills that often leads them to self-criticize and withdraw from other people (e.g., depressed people may avoid social functions and get even less positive reinforcement than before). To make matters worse, some depressed people become positively reinforced for acting depressed when family members and social networks take pity on them and provide them with special support because they are ‘sick.’ For example, some spouses may take pity on their depressed partners and start to do their chores for them, while the depressed person lays in bed. If the depressed person was not thrilled to be doing those chores in the first place, remaining depressed so as to avoid having to do those chores might start to seem rewarding.” (c.f. https://www.mentalhelp.net/articles/psychology-of-depression-behavioral-theories)
Lewinsohn has developed an array of measures which can be used in the assessment and response to treatment of depressed clients, such as the Unpleasant Events Scale, the measurement of the experience of pleasant events, the measurement of coping skills, and the like. Treatment involves attempting to minimize the client’s further exposure to unpleasant, depressogenic experiences and to schedule and promote the client’s exposure to pleasant events that they find rewarding. Lewinsohn developed a manualized “Coping with Depression” (CWD) course. “Treatment” can be undertaken more or less independently by the client (e.g., self-help) as well as in a group format or via individual therapy, and the program is now available in hard copy book form and also via computer, CD-ROM, and DVD. Clients are taught an array of skills to cope with depression – social skills, how to seek out and proactively schedule their engagement in rewarding activities, identifying negative thoughts, and promoting ways of thinking that elevate one’s mood. Baseline data is usually gathered for each client and the results used to plan an individualized program of treatment. The CWD program has been used with an array of diverse client populations and in many countries and has been tested in over 25 randomized controlled trials. It has also been shown to be an effective method to prevent depression (Cuijpers et al. 2009).
Summary Social work practice guided by the principles of modern social learning theory, the philosophy of science known as behaviorism, the assessment and interventive methods of behavior analysis and therapy, and the evaluation of outcomes using
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single-system research designs is a comprehensive approach to mental health practice. Illustrations were given of the effective use of this model for clients with anxiety, persons with schizophrenia, and clinically depressed persons. This approach is widely used to help people with an array of so-called mental disorders, as well as to help clients with substance abuse problems, intellectual disabilities, and associated problems such as self-abusive behavior and aggression. The professional infrastructure of behavior analysis and therapy is solidly established. The Association for Behavior Analysis International (ABAI) has over 7500 members worldwide and an affiliated chapter membership of more than 28,000. The ABAI presidency is now held by a social worker, Dr. Mark Mattaini, and the organization supports numerous journals and annual national and international conferences. The practice of behavior analysis is now licensed as an independent discipline in over 25 states, and insurance reimbursement for behavior analytic services is widespread. The primary independent practice qualification is the masters-level Board Certified Behavior Analyst (BCBA) credential, awarded by the Behavior Analyst Certification Board (https://www.bacb.com/), after passing the accredited courses, passing a rigorous national-level examination, acceptance of the BACB Code of Ethics, and obtaining suitable continuing education biannually. There is a doctoral qualification to the BCBA, a bachelor’s level qualification, and a lower-level Registered Behavior Technician qualification. There are over 29,000 BCBAs and over 300 academic programs providing approved courses and degrees leading to certification. The related discipline of behavior therapy has its own professional association, the Association for Behavioral and Cognitive Therapies (http://www.abct.org/ About/?m=mAbout&fa=dAbout) and is dominated by psychologists although social workers are welcome to join. The past president of ABCT is social worker Dr. Gail Steketee, one of our field’s most widely cited scholars, notably for her outcomes research in the behavioral treatment of persons with obsessive compulsive disorder, PTSD, and hoarding. Previously, social worker Dr. Richard B. Stuart served as the President of this organization (1974–1975). He was a pioneer in the fields of behavioral marital and family therapy, the treatment of obesity, and violent behavior. ABCT publishes a number of high-quality journals and sponsors annual conferences and continuing education programs. ABCT is clearly more of a cognitive-behavior therapy organization, while ABAI largely eschews any notions of the role of cognitive factors as etiological agents of mental disorders. For the behavior analysts, cognitions, while real, are simply more behavior to be explained. Where do the negative thoughts of the depressed come from? Most likely from their upbringing and current environment experiences. Thus thoughts and beliefs, like overt actions, stem primarily from the environment, and the focus of treatment is on what is felt, not the feeling. Behavior analysis omits the middleman. A traumatic experience causes behavioral avoidance, negative feelings, and upsetting thoughts. All three aspects of behavior are the sequelae to the experience. The cognitive-behavior therapist is more likely to contend that the trauma occurs; it causes thoughts and feelings, which lead to changes in overt behavior. Thus the focus would be on changing the client’s ways of thinking.
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Most social workers will perhaps not be prepared to make the jump to identifying more as a behavior analyst or as a behavior therapist by becoming involved with these membership organizations. But all social workers should be thoroughly familiar with social learning theory and of the principles and practices of behavior methods. To the extent we believe that it is important to follow the latest research demonstrating that some treatments are effective and some are less, so (and some are harmful) behavior analysis and therapy should be an array of methods we are prepared to provide our clients with so-called mental disorders. Indeed, it has been said that our clients have a right to effective treatment (Myers and Thyer 1997). If we really believe this, becoming familiar and competent with these methods is an ethical imperative (Thyer 1995).
Cross-References ▶ Community, Mental Health, and Social Work ▶ Social-Cultural Ecological Perspective ▶ Theories on Mental Health, Illness and Intervention
References American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders, 5th edn. Author, Washington, DC Arhin A, Thyer BA (2004) The causes of racial prejudice: a behavior analytic perspective. In: Chin JL (ed) The psychology of prejudice and discrimination: volume I, Racism in America. Praeger, Westport, pp 1–19 Barker R (ed) (2014) The social work dictionary, 6th edn. National Association of Social Workers, Washington, DC Berman L (1927) The religion called behaviorism. Boni and Liveright, New York Bruno F (1936) The theory of social work. DC Health, New York Coelho CM, Purkis H (2009) The origins of specific phobias: influential theories and current perspectives. Rev Gen Psychol 13:335–348 Cuijpers P, Munoz RF, Clarke GN, Lewinsohn PM (2009) Psychoeducational treatment and prevention of depression: the “Coping with Depression” course thirty years later. Clin Psychol Rev 29:449–458 Elmhurst K, Thyer BA (2019) Self-conducted and Skype-mediated exposure therapy of a woman with a severe balloon phobia: a single-case study. Manuscript submitted for publication Freud S (1909) The analysis of a phobia in a five year old boy. In: Strachey L (ed) Standard edition of the complete psychological works of Sigmund Freud. Volume 10. Hogarth Press, London Grantholm E, Harvey PD (2018) Social skills training for negative symptoms of schizophrenia. Schizophr Bull 44:472–474 Hackenberg TD (2018) Token reinforcement: translational research and application. J Appl Behav Anal 51:393–435 Haddock G, Tarrier N, Spaulding W, Yusupoff L, Kinney C, McCarthy E (1998) Individual cognitive–behavior therapy in the treatment of hallucinations and delusions: a review. Clin Psychol Rev 1:821–838 Hayes SC (ed) (1989) Rule-governed behavior: cognition, contingencies, and instructional control. Plenum Press, New York, pp 191–220
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Hayes LJ, Ghezzi PM (1997) Investigations in behavioral epistemology. Context Press, Reno Kohlenberg RJ (1973) Behavioristic approach to multiple personality: a case study. Behav Ther 4:137–140 Lattal KA, Chase PN (eds) (2003) Behavior theory and philosophy. Plenum, New York Mazur JE (1998) Learning and behavior, 4th edn. Prentice-Hall, Upper Saddle River Myers LL, Thyer BA (1997) Should social work clients have the right to effective treatment? Soc Work 42:288–298 O’Donnell JM (1985) The origins of behaviorism. New York University Press, New York Paul GL, Lentz RJ (1977) Psychosocial treatment of chronic mental patients: milieu versus social-learning programs. Harvard University Press, Cambridge, MA Rachlin H (1991) Introduction to modern behaviorism, 3rd edn. W.H. Freeman, New York Richmond M (1917) Social diagnosis. Russell Sage Foundation, Philadelphia Robinson V (1930) A changing psychology for social casework. University of North Carolina Press, Durham Royse D, Thyer BA, Padgett DK (2016) Program evaluation: an introduction to an evidence-based approach, 6th edn. Cengage, Boston Thyer BA (1995) Promoting an empiricist agenda within the human services: an ethical and humanistic imperative. J Behav Ther Exp Psychiatry 26:93–98 Thyer BA (ed) (1999) The philosophical legacy of behaviorism. Kluwer, Dordrecht Thyer BA (2006) It is time to rename the DSM. Ethical Hum Psychol Psychiatry 8:61–67 Thyer BA (2012) Respondent learning theory. In: Thyer BA, Dulmus CN, Sowers KM (eds) Human behavior in the social environment: theories for social work practice. Wiley, New York, pp 47–81 Thyer BA (2014) A review of Essentials of psychiatric diagnosis: responding to the challenge of DSM-5 by Allen Francis. Res Soc Work Pract 24:165–169 Thyer BA (2015) The DSM-5 definition of mental disorder: critique and alternatives. In: Probst B (ed) Critical thinking in clinical assessment and diagnosis. Springer International, Cham, pp 45–68 Thyer BA, Hudson W (1987) Progress in behavioral social work: an introduction. J Soc Serv Res 10(2/3/4):1–6 Thyer BA, Myers LM (2007) A social worker’s guide to evaluating practice outcomes. Council on Social Work Education, Alexandria Turner DT, McGlanaghy E, Cuijpers P, van der Gaag M, Karyotaki E, MacBeth A (2018) A metaanalysis of social skills training and related interventions for psychosis. Schizophr Bull 44:475–491 Whitaker R (2002) Mad in America: bad science, bad medicine, and the enduring mistreatment of the mentally ill. Basic Books, New York Wong SE (2012) Operant learning theory. In: Thyer BA, Dulmus CN, Sowers KM (eds) Human behavior in the social environment: theories for social work practice. Wiley, New York, pp 83–123
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Social-Cultural Ecological Perspective Monit Cheung and Carol A. Leung
Contents Introduction: Ecological Approach as a Social Work Modality . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Social-Cultural Ecological (SCE) Perspective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Theoretical Link to Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Social-Cultural Ecological (SCE) Measures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Case Examples . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Case #1: Don’t Underestimate How Hard We Are Trying . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Case #2: Everyone Matters . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Tools: Culturagram and Ecomap . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ASK Cultural Competency Instrument for Practice Evaluation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Why Use SCE Perspective in Mental Health Services? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion: Functions of the SCE Perspective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
This chapter describes the complexity of ecological theory for building the socialcultural ecological (SCE) framework for social work practice. It addresses the cycle of problem formulation, solution, and evaluation of practice, which is a basis for understanding how clients’ micro-level problems may directly or indirectly be associated with the macro-level issues in their environment. Particularly, this chapter will illustrate how to measure clients’ social-cultural awareness – a concept linking mental health assessment to service planning. Two case studies will be presented to illustrate how to apply the SCE framework into practice using M. Cheung (*) University of Houston, Houston, TX, USA e-mail: [email protected] C. A. Leung University of California, Los Angeles, CA, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_25
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tools such as ecomaps and culturagrams. Clinical questions will be formulated and illustrated in these case studies. Lastly, six elements from the SCE perspective will be summarized to apply clinical skills for the promotion of effective prevention and intervention strategies, culturally relevant assessment of clientin-environment factors, and competency-based evaluation of an effective plan to improve mental health and social care services. Additionally, the ASK (Attitude Skill Knowledge) cultural competency instrument is introduced as a tool for self-assessment. The purpose of this multidimensional assessment is to empower individuals, specifically about replacing their negative thoughts with positive engagement using a holistic view to assess, implement, and evaluate interventions. Keywords
Ecological perspective · Culture · Clinical practice · Social work practice · Ecomap · Culturagram · ASK cultural competency instrument
Introduction: Ecological Approach as a Social Work Modality Social workers have adopted the ecological approach in practice for screening and assessing problems from a broader angle to plan effective interventions. Since the seventeenth century when social work claimed its goal in poverty relief, the ecological approach became a practice guiding post that helped social workers focus on the roles of the environment on human development. The long-term vision of social work has been to remove environmental barriers and sociocultural biases that can raise serious personal and justice concerns to the community. Individual or family problems that were considered private matters became public concerns, as they had a negative impact on the community. For example, a child with hair lice may seem to be only an individual or family problem, but actually this problem can develop into a school concern because hair lice can be passed to others due to close proximity between this child and other children. In another example within a populated low-income neighborhood, the diseases passed on by rats through contaminated food not only affect one family but also the entire community because of the highly contiguous diseases. The concept “person-in-environment” (PIE) has become a cornerstone to support the implementation of casework, group work, and community work that informed practitioners about the multiplicity and complicity of social work practice. The PIE principles incorporate an assessment route involving individual, family, social, ethnic/cultural political systems, as well as environmental conditions to facilitate social work practice, including a focus on planning, assessment, and service delivery. In the early ecological-focused works, Germain (1973), Barker (1973), and Grinnell (1973) offered a theoretical base for social workers to identify contributing factors of individual changes based on environmental shifts. Later works of Bronfenbrenner (1989) also postulated the same premises
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Fig. 1 Multiple levels of a social work client system
that individuals react to the conditions for changes that lead to societal beliefs and attitudes toward interpersonal relationships. The ecological approach studies individuals interacting with the environment with results testifying the cycle of social changes accompanied by individual changes. These changes include individual biopsychological factors (microsystem); multidimensional interactional elements within the environment (mesosystem); the conditions in social, political, cultural, and economic contexts that influence the general beliefs and attitudes shared by the members in society (macrosystem); and people’s reactions to the different parts of social and cultural changes in relation to the change in time (chronosystem) (Fig. 1).
The Social-Cultural Ecological (SCE) Perspective The ecological approach in social work addresses the cycle of problem formulation, solution, and evaluation of practice. Based on the theory of social work by Compton and Galaway’s earlier work (1975), social workers perform various tasks through a series of personal and social processes that mobilize resources along with client-worker interactions and an environmental analysis. The “social work processes” are designed to help clients become self-sufficient, and thus the social work goal is to “help clients to help themselves” (Osmo 2001). The cycle of the social work processes can be demonstrated with at least seven stages: (1) define the problem; (2) identify resources and constraints in the environment; (3) set up goals and objectives; (4) assess individual strengths, problems, and sociocultural barriers; (5) implement service plans; (6) measure success and evaluate outcomes; and (7) end
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the service. The processes are evaluated with input from the entire social work system including clients, workers, collaterals, and others who have interactions with the clients. The end stage is typically called “case closure” or “termination” with a follow-up evaluation. Each stage involves processing of human interactions, service engagement, problem assessment, and intervention, to untie the complicated relationship problems (between individuals and their environment) that have affected the well-being of the client. The social-cultural ecological (SCE) perspective emphasizes an understanding of the client’s social and cultural environment that aims to promote living standard and family harmony. It analyzes the interrelationships between and among social, cultural, economic, and political systems that generate changes for an expansion of service scope to promote quality of life. In a mental health setting, services are designed to help individuals deal with behavioral changes and then use the collective power from the individual’s larger support network as a base to affect systemic changes. With the SCE perspective, social workers generate strategies to achieve different goals: (1) client engagement at a micro level of individual intervention and (2) community engagement at a macro level of social changes. Reciprocally, small steps toward appropriate changes in the environment will lead to changes in the individual (McLeroy et al. 1988). Psychologist Albert Bandura (1977) developed the reciprocal determinism (RD) theory to assess how a person’s behavior is influenced by both the personal factors and the social environment in a bi-directional manner. SCE expands from the RD theory to include multidimensional connections among social and cultural factors within one’s environment for the promotion of mental health. Manitiu and Pedrini (2016) describe the characteristics of this multidimensionality as “smartness” and “sustainability” in personal successes within the totality of social, cultural, and environmental adjustments. Currently, “green social work” and “global social work” are the most recent practice innovations that aim to provide a safe environment with cultural heritage and geographic relevance to promote social justice and self-care regardless of boundary and geographic differences (Dominelli 2014; Lyons et al. 2006; Noble 2016). The emphasis of these innovative ideas is for social workers to be the change agent and for the clients to be the change carrier for promoting environmental support to meet personal and community needs. For instance, environmental pollution is a “green social work” concern with which social workers work with people who live in a community with high rates of cancer diagnoses to identify impact of chemical contamination on personal well-being. Through collective actions, people in the polluted community receive additional healthcare support and mobilize advocacy efforts to ask for governmental sanction. The personal concern has no boundary as environmental malice must be controlled to promote the mental health of the entire community. Combining the social and cultural factors in the environment, the SCE perspective not only helps to impact a client system through counseling and family-based services but also promotes social changes through individual participation in policy analyses and advocacy work (Cheung et al. 2017). With both direct and indirect
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practice strategies for intervention, a culturally relevant approach with an ecological perspective is uniquely generated for each client system. This perspective empowers social workers to be a specialist in effectively assessing problems and identifying needs from various systemic levels including individual, family, small group, larger community, and society as a whole. With the social and cultural aspects being assessed within the entire client system, social workers have obtained a society-recognized professional identity to play various roles in disseminating resources and promoting changes within the individual and the larger system. This ecological approach has been expanded to offer the SCE lens for refining and expanding the scope of mental health practice to specifically include an integrative cultural perspective based on social and environmental changes.
The Theoretical Link to Mental Health When assessing the mental health of an individual, social workers must first identify the contributing factors that are internal and external to the person. These factors include an individual’s biological makeup, developmental growth process, personal definition of happiness, quality of life, social inclusiveness, sense of belonging, environmental support, and other social and cultural influences. Mental health is more than an individual’s life fulfillment but also a community integration of such fulfillment, from resolving problems to creating hopes, in the social, cultural, and ecological context – such as combating poverty, gender inequalities, cultural biases against immigrants, and ethnic discrimination and removing structural barriers to access services (Ritchie 1994). As facilitators to remove barriers, such as obtaining a driver license, accessing proofs of academic credentials, or creating a safe zone for disclosing traumatic experiences, social workers can engage clients and enhance their full participation in the intervention process. The primary needs of some clients may not be similar to the basic needs of other clients due to variation of their past experiences. From a psychological point of view, the key variables for defining one’s mental health are typically abstract in nature and relate mainly to the emotional wellbeing as perceived by the individual. In contrast, from a social work point of view, both internal and external factors are important to determining one’s mental health. With a holistic analysis, the client becomes more aware of how these contributing factors affect and protect the individual’s development and resilience, thus moving toward recovery and healing from the presenting problem. As the biopsychological assessment is performed, external influences must also be analyzed to find positive ways to improve the social-cultural ecological interactions among individuals so as to improve each individual’s mental well-being within the same system. In turn, the individuals apply effective communication and adjustment strategies to promote their mental capabilities for resolving challenges and mutually helping each other. Mental health is thus enhanced along with the successes in obtaining an adequate level of self-esteem and achievement. Both internal and external factors are important in measuring happiness and promoting the quality of life.
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The Social-Cultural Ecological (SCE) Measures While mental health is measured based on individual functioning, this measure must have a close relationship to the social, cultural, and ecological systems (Leung and Cheung 2013). Based on the social systems theory, a social system has many interrelated parts. Each part interacts with others to find ways to connect, resolve conflict, produce solutions, and fulfill the purpose to connect each part with its respective role and function. From an ecological perspective, all parts within a system must be integrated to justify the continuity of each part in a balanced and meaningful way in conjunction to other parts. An individual is a part of this integral system. The SCE perspective is derived from this social systems theory to help social workers conduct comprehensive assessments. The overall goal is to assist clients in improving their situations within the environment. It starts with the presenting problem, using nonjudgmental questions such as “What problem have you experienced that is connected to your environment?” Clients are encouraged to define their environment in the assessment process and are empowered to engage in an intervention that is not only based on the presenting problem but also planned with environmental support or adjustment. Culturagrams and ecomaps are tools used for assessment, which aim to identify sources of emotional stability and create helpful changes for the individual and family systems (Cheung and Leung 2008). The SCE perspective highlights the essentiality of these interpersonal relationships, patterns of behaviors that have been connected to the environment, and awareness of diversity in various social-cultural ecological environments. Social-cultural awareness is a client-focused term illustrating ways to stimulate the client to think about how the ecological surrounding has impacted the well-being of an individual in the family system (Cheung and Leung 2008; Cribb and Haase 2016). Together, these three terms – social, cultural, and ecological – are used to represent the essence of the SCE practice model. This SCE model places importance on the dynamic interactions between the client and the surroundings, such as family, other individuals, community (school, work, neighborhood), society (healthcare system, policy), and other socioeconomic and cultural components (gender, race, ethnicity, sexual orientation, socioeconomic status, language, geographic and immigration factors) for the analysis of a client’s needs, problems, and solutions. The reason it is called “dynamic” is that the social worker will help the clients to measure the changes after each step of the intervention or advocacy work has been implemented. The purpose of applying the SCE perspective in social work practice is to improve the well-being between people and their environment (Gitterman and Germain 2008). Using the SCE perspective, social workers provide services to (1) eliminate, alleviate, or reduce life stressors on an individual level and (2) influence social and physical environmental characteristics or advocate for changes that are responsive to the needs of diverse client systems. Environmental factors including social inequalities and ethnic disparities can inform clients about the different ways to develop strategies for influencing individual and family decisions or impacting the long-term implementation of government policy (Kaskie et al. 2016). Social workers
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apply a systematic way to address the gaps or disparities within the clients’ ecological systems so that social, economic, ethnic, and political justice can be promoted. Analysis of environmental impact is a key tool in political social work which is a specialization in social work for advancing social justice for all.
Case Examples This chapter presents two cases to demonstrate how social workers use the SCE perspective to analyze the presenting problem and the environment of the client system and to identify the service gaps. The first case provides clinical questions involving the client’s social-cultural awareness, strengths of the client system, how to identify solutions to the presenting problem, and intervention strategies. The second case illustrates the use of a culturagram and an ecomap to visually assess the interpersonal and intersystem dynamics. The strengths of individuals and social-cultural resources are highlighted to promote the well-being and quality of life in the client system.
Case #1: Don’t Underestimate How Hard We Are Trying Catherine and Joshua, a Caucasian couple, both 36 years old, have been struggling to start a family for the last 5 years in a rural county. When they turned 30, Catherine and her husband had hopes for becoming parents, only to quickly discover that the journey would be difficult. After a year of attempting with one early miscarriage, Catherine was diagnosed with polycystic ovary syndrome. This is a common endocrine disorder that affects nearly 15% of women in the reproductive age. The couple had been undergoing in vitro fertilization (IVF) over a period of 6 months. Catherine describes her experience as “gut-wrenching and filled with heartache.” She obsesses daily about how and when they can conceive. She explains that she is feeling an excruciating amount of pressure to conceive because the majority of her friends have either one child and/or are currently pregnant with their second child. Upon her most recent therapy session, Catherine discloses that the couple took out additional loans to pay for uncovered medical bills. Many couples with infertility have a higher risk of anxiety, depression, and stress that contribute to marital distress and divorce (Cousineau and Domar 2007; Donarelli et al. 2016). For example, Catherine has been obsessing over wanting a child, which may be compromising her feelings of happiness and creating marital problems. The social worker examines whether Catherine is having feelings of depression and anxiety and assesses her support system. Since the issue of infertility may also affect her husband’s emotions, Catherine can invite her husband to work through this issue together. Next, the social worker validates that this situation is common and that Catherine is not alone. Referring her to a group with a focus on infertility helps Catherine feel supported. Therapeutic questions (five levels) from the SCE perspective are asked:
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1. Individual: Health and emotion issues • How are you taking care of yourself? • Think of something you like to do but do not do any more. What are your feelings surrounding this issue? 2. Family: Family support • How do you and your husband support each other during this journey? • Tell me about the various options for starting a family. • Who in your extended family would you go to when you encounter a difficult decision? 3. Community: Values and support • How do you define a supportive community (friends, church, school, work)? • How has the community supported you in this process? • What would your closest friends say if they wanted you to feel happy? • If you do not feel supported, what obstacles are you facing? • Assess how your community has influenced your plan (of starting a family). How does this community influence your thoughts about having a child? 4. Culture: Beliefs and support • In your culture, what factors are the most important to you (and your husband)? • What cultural perspective has been helpful to help you deal with difficulties? • Name a philosopher in your culture. What would this philosopher say or do to advise you about your current situation? 5. Society: Social pressure and reasoning • You mentioned the pressure of society about having a baby at a certain age. What is your belief around that? • How does your insurance policy influence your decision? • What advice do you want to hear from society?
Case #2: Everyone Matters A teacher contacts a school social worker regarding Carl, a 12-year-old boy, for his behaviors in the classroom: sad and scared for seemingly no reason and not able to complete assigned homework. Carl does not respond to any comforting comments once he gets upset. His parents have spent little time with him and do not know much about his classroom problems. During the first session, Carl discloses that he is undocumented (a foreign-born person not having the appropriate legal documents or visa to stay in the United States) and “terrified that I will have to leave my home.” The school social worker conducts a family session and finds out that the parents are working long hours and not even earning a minimum wage. The parents are struggling to pay rent, electricity, and other necessities. The social worker assesses family stressors and addresses the difficulties faced by Carl particularly when he cannot complete his homework. The home electricity has been shut off for a week. Carl is unable to do his homework at night but is embarrassed to explain this situation to his teachers. The social worker connects Carl to an after-school program
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and a national school lunch program (low-cost or free school meals for low-income families). The parents show gratitude for the assistance. 1. Individual: School performance • What do you think about your (Carl’s) current school work? • Who is your (Carl’s) primary caretaker? • When Carl cannot complete his homework, who would be able to help? • Who would be the best person to help you (Carl) with homework? • What feelings are bothering you (Carl) regarding your home situation? 2. Families: Parents’ employment and current household environment • In addition to your (parents’) current employment, what kind of financial assistance has your family received (or tried to get)? • What can we do to help you build/have a better home? • If your family receives electricity assistance, how would that improve your (Carl’s) homework completion? • How comfortable are you to be the main help-seeker who tries to get support? 3. Community: • What resources within your immediate environment have you tried to get? • What do you know about our school lunch program (or other social services)? • Has your immigration status affected the support you tried to get? • Connecting resources is critical for you (Carl) to excel in school. What kind of resources do you (and your family) need in order to help you (Carl) study and complete homework each day? 4. Culture: • What brought you to the United States (from your country of origin)? • Describe the relationship between you (your family) and your extended family. • Which part of your culture has helped (or hindered) you to seek help when needed? 5. Society: • You know that students must receive K-12 education. That’s great. Tell me more about what you know about college education. • What worries do you have about your (Carl’s) education? • How has the American immigration policy, Deferred Action for Childhood Arrivals (DACA), impacted your thoughts about seeking support from the school? • How would your best friends react to you if you told them you were receiving support from the US government?
Practice Tools: Culturagram and Ecomap Both culturagrams and ecomaps are visualization tools that help the social worker prepare information, document needs, and assist clients to see the connection between a presenting problem and the SCE components. By doing so, the clients
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Reasons for Relocation
Length of Residency in the Community
Values about Family
Values about Education and Work
Health Beliefs
FAMILY Name (Age) Name (Age) Name (Age)
Legal Status
Language Spoken at Home and in Community
Affiliation with Cultural and Religious Communities Life Stressors and Crisis Events
Holidays and Special Events
Fig. 2 Culturagram
can move, remove, and/or add new components into a graphic format to clearly see what has been impacting their or their family’s well-being. Using Case #2 (Carl) as an example, the clinician uses a standardized culturagram (Fig. 2) to prepare main headers collected from intake. Typically, the assessment components can be typed or written on the culturagram to show that social workers ask similar questions to most families to identify (1) reasons for relocation, (2) values about family, (3) values about education and work, (4) health beliefs, (5) time in the current community, (6) legal status, (7) language spoken at home and in the community, (8) holiday and special events, and (9) impact of the crisis event. It aims to encourage the clients to modify these headers and/or provide additional information, such as connecting the presenting problem with other environmental and external issues, causes of the problem, influences, environmental impact on decisions, congruence between decision-making process and cultural values, and possible solutions. After completing the initial assessment, a culturagram is used for further assessment (Fig. 3). According to Carl’s case, a summary statement in each of the areas is provided to indicate the different levels of social, cultural, and environmental assessments of the family. Once the social worker includes specific information on the culturagram, culturally relevant resources such as how to define youth transitioning (Mandarino 2014) can be discussed and identified to improve the presenting problem. This family may report feelings of shame because of their son’s poor grades. However, the social worker can reframe the presenting problem by informing the family that there might be secondary problems that have not been addressed. Understanding the root of the problem may help the family identify necessary services for the family and individual. Because there are multiple problems such as school performance, low income, and other interpersonal relationship problems, policies such as free lunch for the child and after-school tutoring services are other resources that can improve the child’s behavior outcomes. Ultimately, if the
Maria: Didn’t know that her son was struggling in school. Jorge: Struggling to keep a stable job and blames himself for Carl’s poor academic performance.
Maria & Jorge: No health care benefits. Use of home remedies to get rid of aches and pains.
Fig. 3 Culturagram with client’s input
Holidays and Special Events Family: The majority of the family lives in Mexico besides Maria’s sister and her husband. They celebrate major holidays together but their relationship i s conflictual at times.
Affiliation with Cultural and Religious Communities Maria & Jorge: Christianity The family attends church service every Sunday.
Language Spoken at Home and in Community Spanish-speaking parents who speak limited English. Carl speaks English well.
Legal Status Undocumented immigrants who brought Carl from Mexico at the age of 2.
Life Stressors and Crisis Events
FAMILY Jorge (42) Maria (38) Carl (12)
Jorge, Maria & Carl: All for ten years
Length of Residency in the Community
Health Beliefs
Values about Education and Work Both parents have an elementary school education. The parents hope that their child can be a firstgeneration college-educated graduate.
Values about Family Women are the primary caretakers at home. However, with their family stressors, Maria started working at a store three months ago.
Reasons for Relocation Jorge: Came to US to build a different career. Maria: Moved with husband.
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Fig. 4 Ecomap
surrounding environment is stabilized, Carl can rebuild his self-esteem, reduce his sad mood, and improve his interpersonal relationship with friends, families, and his teacher. Lastly, shame and guilt must be addressed so that the entire family can come together to resolve difficulties. Without making any assumptions, the social worker may also prepare an ecomap as a success measure for the family to move, revise, add, and subtract information from the graph. Figure 4 is the beginning graph that is prepared as a standardized form to normalize the situation; for example, the social worker may say, “We use this standardized graph to measure family successes against adversities in the environment. Please check if you would like to modify the graph after we have a chance to work together to adjust the situation as this is only the beginning effort to measure changes in your individual, family and community functioning.” The universalization technique is used when a uniform format is presented before placing the child’s name on the graph. This ecomap graph can be prepared on computer as PowerPoint slides that all circles, lines, and texts can be adjusted or modified according to the input from the clients. Figure 5 illustrates how clients may add lines and circles to represent relationships that have not been included in the standardized graph. In Carl’s case, his parents identify additional circles to represent “lack of health insurance” for the family and “friends” for Carl. At the first two sessions, the clients are encouraged to work on this ecomap to show family dynamics, particularly related to the extended family or friends and coworkers. As a result of encouragement, stressful lines are added between insurance and finance, between finance and health, and between Carl’s immediate household and the extended family. Direct impact lines are also added between immigration status and work and between immigration status and
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Fig. 5 Ecomap with clients’ input: Carl’s case
Carl’s friends. With visualization of the social, cultural, and environmental connections, Carl describes how he has found ways to protect himself from being bullied in school. Counseling services are offered, and training programs are planned in the school to prevent and stop school bullying. Again, this case illustrates the importance of environmental interventions to stop violence, solve mental health problems, and work with the immediate environment of the identified client. Many factors are identified, such as home, school, friends, and other individuals, who can provide support or other types of resources for the client and his family.
ASK Cultural Competency Instrument for Practice Evaluation Evaluation of the social worker’s cultural competency is an important task throughout the entire social work processes. Leung and Cheung (2013) have tested 97 items of cultural competency with input from 171 child protection workers and supervisors in Texas. These evaluative items were categorized into seven social work practice stages (or phases): contact, problem identification, assessment, service planning, intervention, evaluation, and termination. The aim of this 97item ASK instrument is to encourage workers and supervisors to focus on knowledge (K), skills (S), and attitude (A). Although knowledge is a prerequisite before skill application, attitude is a must when working with clients of diverse backgrounds. In order to empower clients to work toward their goal to be successful or to be able to resolve their issues, social workers must use positivity and focus on strengths from the beginning and conduct their own self-assessment on a regular
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basis. The acronym ASK is named reversely from KSA for the purpose of heightening frontline workers’ awareness toward a comprehensive evaluation of their practice with a strong commitment and a cyclical approach. Figure 6 is the entire instrument with 97 items for self-assessment, and Fig. 7 contains 24 items (also bolded in the 97-item instrument) tested with factor analysis results with supervisors’ input. In order to encourage social workers’ efficient assessment of their cultural competency, supervisors can use the short version (24 items) as a tool for training and staffing purposes.
Why Use SCE Perspective in Mental Health Services? Social workers have applied many theories such as client-centered theory, strengthsbased theory, and psychodynamic and cognitive-behavioral interventions to social work practice to ground their clinical skills. However, social workers need a framework to guide their professional practice skills in social work when applied to various populations. More specifically, in certain subpopulations, targeted interventions are used to improve the well-being and social functioning of each client. The combination of applying a practice-focused perspective along with a theoretical framework of clinical practice is an essential guide and tool. To accomplish the tasks of how to apply the culturally sensitive and strengths-based practice perspective in social work, six elements in the SCE perspective are summarized, with “SOCIAL” as the acronym: S: Sustainability: The ultimate goal of sustainability is to preserve the needs of the social worker and be able to maintain the needs of the clients without compromising the values, beliefs, and ethical standards of a social worker. Effective practice skills always start with the clinicians themselves by approaching ways to improve their self by using self-care, peer supervision, or therapy to enhance the culture, ideology, and values perspective on their clients. Social workers are at risk for burnout and secondary traumatic stress. If symptoms of compassion fatigue are detected in the early stages, negative consequences of the therapeutic work between the client and clinician may be prevented. In this area of practice orientation, social workers develop their skills by observations, analysis of social influences, and identification of the relationship between self and social control. O: Organization of Knowledge, Values, and Skills: The use of a systematic way to document knowledge for certain subgroups is extremely important. For example, treating the symptoms of psychosis is very different from the symptoms of anxiety. In order to stay informed and organized, a strong skill set in practice is documentation. Social workers must show an ethical and professional standard to their client by staying up to date with treatment planning. One tool is the use of documentation to identify salient characteristics and life events of the clients to improve their environment or social functioning. In this area of practice, social and cultural expectations of the individual, family, community, and society must be examined. C: Competence-Based Comparisons: Social workers should compare practice with evidence and consult with their supervisors to determine whether their clinical practice techniques may or may not work for a particular individual. Additionally,
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The “ASK-97 Cultural Competency Assessment” Instrument Revised version in 2018 by Monit Cheung and Patrick Leung The following self-assessment tool is used in different stages when working with clients who are culturally different from me: Contact Phase As I conduct the first interview, 01 K 02 K 03 K 04 K 05 K 06 S 07 S 08 S 09 S 10 S 11 S 12 S 13 A 14 A 15 A 16 A 17 A 18 A
I show my understanding toward my clients’ reaction. I understand that culture may influence perception. I consider my clients' expectations toward how an interview is arranged. I greet clients with respect. I share agency policy about accepting food from my clients. I know how to select an appropriate translator. I use greeting skills to build rapport. I explain who I am and why I am here. I apply skills that are appropriate for clients in a cross-cultural environment. I ask clients about their previous experiences with social service professionals. I express my desire to understand my clients' experiences. I validate my understanding of my clients’ culture. I anticipate that my clients may want to know more about this interview. I accept the fact that my clients may refuse to talk to me. I believe that my clients do not like to be interrupted when speaking. I must be careful not to show disrespect. I respect differences as long as they do not cause harm. I do not confront my clients in front of their children.
Problem Identification Phase As I help my clients identify their problem, 19 K 20 K 21 K 22 K 23 S 24 S 25 S 26 S 27 S 28 S 29 S 30 A 31 A 32 A 33 A 34 A
I prepare myself to share culturally relevant ideas with my clients. I have knowledge about clients’ problem definitions. I explore how a person’s upbringing may influence behavior. I contemplate how clients’ expectations may connect to their behavior. I acknowledge my clients’ contributions to helping me understand their culture. I explain how my increased understanding of my clients’ culture can help us work better together. I discuss the cultural appropriateness of the presenting problem with my clients. I validate the meaning of my clients’ use of words or expressions. I ask further questions with attention to my clients’ use of words or expressions. I restate relevant statements made by my clients. I ask my clients to reflect what they heard me saying about their situation. I listen. I understand that cultural differences may influence attitude. I value input from clients to clarify their perceptions of the problem. I understand that my definition of problem may be perceived differently from my clients’ cultural perspective. I feel it is important to be mindful of my own biases.
Fig. 6 (continued)
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Assessment Phase As I conduct assessment, 35 K 36 K 37 K 38 K 39 S 40 S 41 S 42 S 43 S 44 S 45 A 46 A 47 A 48 A
I know how to ask culturally relevant questions about my clients’ personal background. I update myself on evidence-based practices that are culturally relevant to my clients. I know how to assess my clients’ belief system. I understand the importance of motivating my clients to describe their support system. I explain the reasons of asking questions about my clients’ family. I involve my clients in collecting culturally specific information. I assess family strengths within the context of my clients’ cultural norms. I help my clients understand culturally specific behaviors within the limit of the law. I assess my clients’ access to informal support. I assess my clients’ access to formal support. I understand how my clients see my role differently based on previous experience. I value mutual understanding between my clients and myself. I believe my clients’ choice of communication means can be culturally based. I value my clients’ cultural expectations.
Service Planning Phase As I set goals and objectives for service planning, 49 K 50 K 51 K 52 K 53 S 54 S 55 S 56 S 57 S 58 A 59 A 60 A 61 A 62 A
I develop case planning relevant to clients’ culture. I know how to set goals and objectives in congruence with my clients’ values. I know how to target culturally specific services when needed. I learn from my clients about culturally relevant resources within their environment. I include culturally specific resources in service plans when appropriate. I develop a culturally specific contract with a focus on client strengths. I use culturally specific input from my clients in developing the service contract. I help the client identify culturally specific barriers. I use culturally appropriate language. I value culturally specific ideas contributed by my clients in service planning. I enjoy learning from my clients about their culture. I respect my clients’ contributions to their service planning. I value my clients’ definition of culturally specific outcomes. I acknowledge the importance of securing support services valued by my clients.
Intervention Phase As I work with my clients, 63 K 64 K 65 K 66 K 67 S 68 S 69 S 70 S 71 S 72 A 73 A 74 A 75 A
I ask questions and share information related to cultural differences. I am aware of culturally sensitive approaches in designing interventions. I have knowledge about my clients’ cultural expectations. I know how to conduct assessments with reference to my clients’ culture. I acknowledge the importance of culturally specific practices. I explore other possible meanings of clients’ behaviors. I address inappropriate behaviors without judging. I use culturally relevant methods to build client strengths. I help my clients set up a goal to identify sources of cultural pride. I continue learning about my clients’ culture. I am ready to adjust interventions to meet the cultural needs of my clients. I use my previous experiences in working with clients from a specific culture as a guide. I am open to hearing about other people’s ideas.
Fig. 6 (continued)
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Evaluation Phase As I evaluate our work, 76 K 77 K 78 K 79 S 80 S 81 S 82 S 83 S 84 A 85 A 86 A
I identify culturally relevant information for outcome evaluations. I monitor progress with attention to my clients’ cultural context. I use information about clients’ cultural characteristics when designing interventions. I use culturally relevant methods of evaluating clients' success. I use culturally relevant information for outcome evaluation. I display my satisfaction about goal achievement. I address how the situation can be improved. I am open to hearing about clients’ self-evaluation. I value clients’ participation in the evaluation process. I seek out culturally relevant information for measuring outcomes. I maintain a positive attitude toward my clients.
Termination Phase As I end my work with my clients, 87 K 88 K 89 K 90 S 91 S 92 S 93 S 94 S 95 A 96 A 97 A
I acknowledge my clients’ reactions when dealing with termination. I communicate with my clients about issues of termination. I know that my clients’ reactions to termination may be based on cultural values. I discuss issues of termination with my clients within a cultural context. I encourage my clients to express feelings about termination. I respect cultural rituals and beliefs that address termination. I use appropriate cultural resources. I summarize my clients’ accomplishments with their cultural strengths. I value the discussion about my clients’ reactions to termination. I am open to discussing the cultural meaning of case termination. I understand that my clients have an option on how to express feelings toward case closure.
Fig. 6 “ASK” for cultural competency
staying informed with social work research is critical as well. While social workers may not have access to peer-reviewed journal articles discussing newly designed interventions, attending relevant conferences can improve social worker’s competence. In this area of practice, the social, cultural, and environmental theories must be integrated into a thorough understanding of interpersonal relationships, with which a multidimensional exchange process can be carried out to highlight the importance of the environmental impact on individual functioning. I: Internationally Informed: Staying updated about international affairs can promote a deeper connection between you and the client. While most clinicians are treating specific subgroups, knowing a broad range of ideology, current events, and perspective can enlighten the client. Using global information to understand the diversity of our clients who may come from different geographical regions or countries can be used as a practice tool. A client’s psychological, social, racial, economic, political, immigration, and physical forces can be further analyzed for the client to understand the impact of social and cultural influences.
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Use the following scale between 1 and 5 to assess your readiness in terms of Attitude, Knowledge and Skill when working with a specific family or client: 1=Totally Unprepared 2=Somewhat Unprepared 3=Prepared but Need Practice 4=Ready to Practice 5=Competent Attitude Assessment 1. I continue learning about my clients’ culture. 2. I am open to hearing about my clients’ self-evaluation. 3. I am open to hearing about other people’s ideas. 4. I value input from clients to clarify their perceptions of the problem. 5. I maintain a positive attitude toward my clients. 6. I am open to discussing the cultural meaning of case termination. 7. I listen. 8. I value my clients’ cultural expectations.
1 1 1 1 1 1 1 1
2 2 2 2 2 2 2 2
3 3 3 3 3 3 3 3
4 4 4 4 4 4 4 4
5 5 5 5 5 5 5 5
Skill Assessment 9. I use culturally relevant methods to build client strengths. 10. I explore other possible meanings of clients’ behaviors. 11. I use culturally appropriate language. 12. I respect cultural rituals and beliefs that address termination. 13. I address inappropriate behaviors without judging. 14. I ask questions and share information about cultural differences. 15. I acknowledge the importance of culturally specific practices. 16. I use appropriate cultural resources. 17. I greet clients with respect.
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5 5 5 5 5 5 5 5 5
Knowledge Assessment 18. I understand how to include clients’ cultural characteristics in designing an effective intervention. 19. I communicate with clients about issues of termination. 20. I know how to conduct assessments with reference to clients’ culture. 21. I have knowledge about clients’ problem definitions. 22. I develop case planning relevant to clients’ culture. 23. I use culturally relevant information for outcome evaluation. 24. I have knowledge about my clients’ cultural expectations.
1 2 3 4 5 1 1 1 1 1 1
2 2 2 2 2 2
3 3 3 3 3 3
4 4 4 4 4 4
5 5 5 5 5 5
TOTAL SCORE: __________ AVERAGE SCORE = Total Score / 24 =
__________
Fig. 7 ASK instrument (version 2013) for use in cultural competency assessment working with people of diverse cultures: attitude (A), skill (S), and knowledge (K)
A: Attitude Positivity: The adaptation of the SCE perspective through research, clinical practice, and societal changes must be noted. Beliefs and values may shift due to cultural shifts in seeing things from a positive angle. In this area of practice, social workers must stay informed about updated evidence-based clinical practice
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strategies, to be applied when there is a paradigm shift from problem-focused thinking to social cognitive “doing.” L: Leadership: The practice perspective of social workers involves taking on many responsibilities, including leadership roles. A leader will identify the needed changes, create the visions for the change, and guide others to create healthy changes. The executions of the change must be from the voices of the population being served or how policy affects the social environment. In this area of practice, an ideal candidate for leadership must embrace the values of the social work profession and join the social network to reinforce knowledge dissemination and skills refinement.
Conclusion: Functions of the SCE Perspective The SCE perspective provides a comprehensive theoretical base for social workers to apply relational skills during the delivery of effective prevention and intervention strategies, in the assessment of client-in-environment factors, and in the evaluation of an effective plan to improve mental health and social care services. The concepts in SCE are linked to the social systems theory for multidimensional treatment strategies. The main goal of SCE is to improve the social functioning of clients who are struggling with mental health issues. Thus, the main variables for future research from the SCE perspective include sustainability, dependability, equity development, and engagement of clients to change the maladaptive pattern of behaviors. The functions of SCE serve across practice arenas from micro to macro practices. There is an evaluation component in SCE that client-oriented measures must be used for validating client’s own definition of the problem and for recording client successes. Two clinical cases are included in this chapter for illustrating how to prevent hospitalization of clients due to individual mental health symptoms. From the SCE perspective, social workers act as an advocate for the clients who may be marginalized in getting adequate resources to support changes. In conclusion, SEC aims to promote social, ethnic, and economic justice. The ripple effect of prevention is expanded through the first few stages of social workers’ involvement: (1) contacting clients to engage them in assessing the environment factors of their problems, (2) assessing resources and constraints that may help clients make significant attitudinal changes toward the presenting problem, and (3) participating in the entire intervention process to plan, implement, and evaluate successes in resolving difficulties. The strengths of the SCE perspective include the use of nonjudgmental assessment with client engagement tools. Its challenges are related to the functioning of the individuals involved in the entire process, in that people with severe and persistent mental health illnesses may not be able to be engaged independently in the process. Nevertheless, this approach empowers families to be involved. A SCE question is: “Would your expectations toward treatment be identified in conjunction to their environment?” or “Who in this environment would continuously provide support, and how?” Clients’ idea to
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change would be supported and reinforced throughout the entire social work process. Our final words are first, individual satisfaction is a function of how well the individual connects to the strengths of the environment and how the person can untie negativity from the presenting problem; second, self-care helps integrate internal and external well-being of us all. Helping clients to care for self and others at every level of their engagement with their social and cultural environment is the best way for them to understand themselves, their needs, and their solutions. The roles of social workers are to encourage, empower, and enforce, so that clients can appreciate their effort, fulfill their expectations, and adapt to or change their environment.
Cross-References ▶ Community and Mental Health ▶ Developmental Approach to Mental Health ▶ Medical Perspective on Mental Health ▶ Natural Disaster ▶ Suicide Prevention
References Bandura A (1977) Social learning theory. Prentice-Hall, Englewood Cliffs Barker R (1973) Explorations in ecological psychology. Am Psychol 54:320–323 Bronfenbrenner U (1989) Ecological systems theory. In: Vasta R (ed) Annals of child development, vol 6. pp 187–249, Greenwich, CT: Jai Press Cheung M, Leung P (2008) Multicultural practice and evaluation: a case approach to evidencebased practice. Love Publishing, Denver Cheung M, Leung CA, Liu ES-C (2017) Advocacy journey promoting child sexual abuse prevention in Hong Kong. J Child Sex Abus 26:957–969. https://doi.org/10.1080/ 10538712.2017.1349854 Compton BR, Galaway B (1975; 1984) Social work processes. Dorsey Press, Homewood Cousineau TM, Domar AD (2007) Psychological impact of infertility. Best Pract Res Clin Obstet Gynaecol 21(2):293–308 Cribb VL, Haase AM (2016) Girls feeling good at school: school gender environment, internalization and awareness of socio-cultural attitudes associations with self-esteem in adolescent girls. J Adolesc 46:107–114 Dominelli L (2014) Promoting environmental justice through green social work practice: a key challenge for practitioners and educators. Int Soc Work 57:338–345 Donarelli Z, Coco GL, Gullo S, Marino A, Volpes A, Salerno L, Allegra A (2016) Infertility-related stress, anxiety and ovarian stimulation: can couples be reassured about the effects of psychological factors on biological responses to assisted reproductive technology? Reprod Biomed Soc Online 3:16–23 Germain CB (1973) An ecological perspective in casework practice. Soc Casework 54:323–330 Gitterman A, Germain CB (2008) The life model of social work practice: advances in theory and practice. Columbia University Press, New York Grinnell R (1973) Environmental modification casework’s concern or casework’s neglect? Soc Serv Rev 47:208–220
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Kaskie BP, Leung C, Kaplan MS (2016) Deploying an ecological model t stem the rising tide of firearm suicide in older age. J Aging Soc Policy 28:233–245. https://doi.org/10.1080/ 08959420.2016.1167512 Leung P, Cheung M (2013) Factor analyzing the “ASK” cultural competency self-assessment scale for child protective services. Child Youth Serv Rev 35:1993–2002. https://doi.org/10.1016/j. childyouth.2013.09.014 Lyons KH, Manion K, Carlsen M (2006) International perspectives on social work: global conditions and local practice. Palgrave Macmillan, New York Mandarino K (2014) Transitional-age youths: barriers to accessing adult mental health services and the changing definition of adolescence. J Hum Behav Soc Environ 24:462–474. https://doi.org/ 10.1080/10911359.2013.835760 Manitiu DN, Pedrini G (2016) Urban smartness and sustainability in Europe. An ex ante assessment of environmental, social and cultural domains. Eur Plan Stud 24:1766–1787. https://doi.org/ 10.1080/09654313.2016.1193127 McLeroy KR, Bibeau D, Steckler A, Glanz K (1988) An ecological perspective on health promotion programs. Health Educ Q 15:351–377 Noble C (2016) Green social work – the next frontier for action. Soc Altern 35:14–19 Osmo R (2001) A conceptual tool: making social workers’ assumptions explicit. Soc Work Educ 20:209–217. https://doi.org/10.1080/02615470120044301 Ritchie MH (1994) Cultural and gender biases in definitions of mental and emotional health and illness. Couns Educ Superv 33:344–349
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Developmental Approach to Mental Health Antoinette Lombard and Nontembeko Bila
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Health, Vulnerability, and Protection . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Health and Human Development . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Developmental Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Human Rights-Based Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . People Participation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Integrating Social and Economic Development . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Linking Micro and Macro Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Partnerships for Human Development . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
The developmental approach to mental health aligns social workers’ commitment to the services they provide with the need to promote a fairer and more inclusive society. The 2030 Agenda for Sustainable Development’s vision is to leave no one behind – this is central to social work and lies at the core of mental health approaches. In the 2030 Agenda, mental health is associated with well-being, which is essential for human development. A developmental approach focuses on structural injustices that impede human progress and mental health. It is a holistic, human rights-based approach in which participation, social and economic development, micro and macro practice, and partnerships are equally important and are integrated to promote and protect mental health. The approach is in line with the new recovery-oriented human rights-based and strength-based approaches to A. Lombard (*) · N. Bila Department of Social Work and Criminology, University of Pretoria, Hatfield, South Africa e-mail: [email protected]; [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_3
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mental health which position mental illness and mental health along a continuum of health and where service users’ participation is central. In keeping with a mental health recovery approach, a developmental approach uses social investment strategies and interventions on a continuum of micro and macro practice levels where service users’ rights, their participation, and social and economic development and inclusion are inherent to the process and outcomes. The chapter concludes that the developmental approach to mental health offers social workers a platform to promote and protect mental health on an individual, household, community, policy, and research level. Furthermore, in partnership with stakeholders, including service users, this approach to mental health contributes to sustainable development and promotes justice for all. Keywords
Developmental approach · Mental health · Leaving no one behind · Recovery · Human rights · Partnerships · Sustainable development · 2030 Agenda for Sustainable Development
Introduction The Global Agenda for Social Work and Social Development’s (2012) commitment to contribute to a more just, inclusive, and peaceful society is aligned with the United Nations (UN) 2030 Agenda for Sustainable Development to transform the world to a more “just, equitable, tolerant, open and socially inclusive world in which the needs of the most vulnerable are met” (UN 2015, p. 4). The developmental approach, which underpins both these agendas, creates a platform for social work to promote and protect mental health within a sustainable development framework. The 2030 Agenda for Sustainable Development [hereafter 2030 Agenda] is a charter for the people and the planet in the twenty-first century. It recognizes that people are central in preserving the planet for current and future generations (UN 2015). The commitment of the 2030 Agenda to the notion that “[n]o one must be left behind” (UN 2015, p. 7) was strengthened by devoting the United Nations Development Programme (UNDP) 2016 Human Development Report to the theme of human development for everyone (UNDP 2016). Leaving no one behind is a universal aspiration that unites the globe in the commitment, in the words of Helen Clark, administrator of the UNDP, to the premise that “[h]uman development has to be sustained and sustainable and has to enrich every human life so that we have a world where all people can enjoy peace and prosperity” (UNDP 2016, p. iv). Leaving nobody behind is also central to social work and lies at the core of the call for mental health for all. In the 2030 Agenda, mental health is associated with well-being (UN 2015), as captured in its vision: “A world with equitable and universal access to quality education at all levels, to health care and social protection, where physical, mental and social wellbeing are assured” (UN 2015, p. 2). Mental health is thus an essential
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and inseparable component of health. This implies that mental illness is also a mental health issue (Prince et al. 2007) – suggesting that it is possible for a person to have a mental illness and to experience mental health at the same time (Caplan 2010). This assertion is embedded in the updated 2014 World Health Organization’s (WHO) definition of mental health, which indicates that mental health is “a state of well-being in which every individual realizes his or her own potential, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make a contribution to her or his community.” The definition reflects a shift in the dominant paradigm in the mental health field from the conventional social work approach in the late twentieth and twentyfirst century, which was an expert-clinical approach, to one of recovery, collaboration, and human rights, focusing on strengths rather than weaknesses (Caplan 2010) as the key principles underlying a developmental approach to social work and mental health. From a well-being perspective, mental health cannot be seen in isolation, separate from other spheres relevant for human development. This means that Goal 3 of the 2030 Agenda, namely, to “[e]nsure healthy lives and promote well-being for all at all ages,” is an integral part of all 17 sustainable development goals, as they “are integrated and indivisible and balance the three dimensions of sustainable development: the economic, social and environmental” (UN 2015, p. 2). This is an important premise in understanding a structural approach to mental health. Those who use mental health services often face stigmatization and exclusion. These challenges are exacerbated by structural injustices, including inequality, poverty, unemployment, and factors such as gender, race, ethnicity, sexuality, and disability (Fawcett 2012). Caplan (2010, p. 74) alludes to the disabling effects of mental illness and how they can affect individuals in a multitude of ways, “depending on the severity, duration, treatment, and the support structure” available to those individuals. Furthermore, Caplan (2010, p. 74) asserts that the disabling effects cannot be seen in isolation – various socioeconomic factors influence mental health, such as “unemployment, poverty, relationship issues, lack of housing, stigma and discrimination, and difficulty functioning in everyday life.” Caplan (2010, p. 74) points out that these are “just a few of the many common impairments that affect individuals and families.” Mental illness imposes a significant economic burden, not just on the individuals with a mental disorder but also on households, communities, employers, the healthcare system, and government budgets (Foresight 2008; McCrone et al. 2008). It perpetuates the cycle of poverty by interfering with individuals’ capacity to function in paid or non-income roles, leading to decreased social and economic productivity. This explains why people with mental health problems are often the poorest of the poor, because it may be impossible for them and/or their caregivers to work (Jenkins et al. 2011). The Human Development Report (UNDP 2016) states that whatever the reach of societal challenges may be, whether they are lingering (deprivations), deepening (inequalities), or emerging (violent extremism), most are mutually reinforcing and have an impact on people’s well-being in both the present and future generations. A developmental approach to mental health includes biopsychosocial approaches
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to mental health that explore social causative factors, which predominantly emphasize social determinants and a social framework in addressing them (Fawcett 2012). To ensure human development for everyone, it is not enough to identify the nature and the reasons for the deprivation of those left out (UNDP 2016). The Human Development Report (UNDP 2016) asserts that some aspects of the human development analytical framework and assessment perspectives must be shown upfront to address the issues that prevent universal human development. Such aspects include “human rights and human security, voice and autonomy, collective capabilities and the interdependence of choices [which] are key for the human development of those currently left out” (UNDP 2016, p. iii). Other factors, such as gender, must also be considered to “assess and ensure that human development benefits reach everyone” (UNDP 2016, p. iii). Human development is thus influenced by inequalities and structural injustices in society which should be addressed to ensure mental health and well-being for all. Fawcett (2012) suggests that in order to address inequalities, there needs to be a balanced focus on social, cultural, and economic conditions that support family and community life. A developmental approach to social work involves a holistic approach that integrates human, social, and economic development by taking the broader environmental context into consideration. Because it is embedded in a social justice- and human rights-based framework, a developmental approach to social work connects the micro/individual/personal level with the macro/political/ structural level (Patel 2015). In this context, a developmental approach is about sustainable development with a global and national developmental agenda. According to the UN, “[s]ustainable development recognizes that eradicating poverty in all its forms and dimensions, combating inequality within and among countries, preserving the planet, creating sustained, inclusive and sustainable economic growth and fostering social inclusion are linked to each other and are interdependent” (UN 2015, p. 5). In social work’s commitment to leave nobody behind, a developmental approach to mental health therefore has to promote human development within the framework of sustainable development. The chapter begins with a discussion of mental health in the context of vulnerability and protection. Next, mental health is discussed in relation to human development. A developmental approach to social work in promoting human development is then outlined in relation to its respective themes, namely, a human rights-based approach, people’s participation, the integration of social and economic development, the linking of micro and macro practice, and, finally, partnerships for development (Patel 2015). The conclusion summarizes the main points.
Mental Health, Vulnerability, and Protection The factors that contribute to mental health and well-being interact with one another. These factors are individual attributes and behaviors, social and economic circumstances, and environmental factors (WHO 2012). Individual attributes relate to a person’s natural and learned ability to deal with thoughts and feelings and
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to manage him/herself in daily life (emotional intelligence), as well as the capacity to deal with the social world by participating in social activities, taking responsibility for and respecting the views of others (social intelligence) (WHO 2012). Social and economic circumstances refer to the fact that an individual’s capacity to develop and flourish is deeply influenced by his/her immediate social surroundings – including his/her opportunities to engage positively with family members, friends, and colleagues and earn a living for himself/herself. Restricted or lost opportunities to gain education and income are especially pertinent socioeconomic factors (WHO 2012). Environmental factors refer to the wider sociocultural and geopolitical environment in which people live, which can also affect an individual’s household or community’s mental health status, including levels of access to basic commodities and services (water, essential health services, and the rule of law). They also include exposure to predominant cultural beliefs, attitudes, or practices, as well as social and economic policies formulated at a national level. Discrimination, social or gender inequalities, and conflict are examples of adverse structural determinants of mental well-being (WHO 2012). These factors can threaten or protect mental health – as Beckett (2006, cited in Fawcett 2012) argues, all people are vulnerable in some respects, and most people are potentially or actually vulnerable in relation to a very wide range of risks and various old and new forms of social exclusion. The WHO (2010) affirms that vulnerability can lead to poor mental health. If mental health is to be promoted for all from a developmental approach, the vulnerability of people with mental health problems cannot be omitted from the discussion. Mental health problems lead to reduced development and increased vulnerability, which are reflected in poverty, inequality, social and economic exclusion, stigma, violence and abuse, and restricted exercise of civil and political rights. In turn, this situation may worsen already poor mental health, as it leads to hopelessness, sadness, social withdrawal, and problems with sleeping, eating, and concentrating (Drew et al. 2011). Poor mental health can be both a cause and a consequence of the experience of social, civil, political, economic, and environmental inequalities (Friedli 2009). Mental health conditions are more common in areas of deprivation, and, in addition to poor physical health and adverse life events, poor mental health is consistently associated with unemployment, less education, and low income or a low material standard of living (Friedli 2009). An ongoing cycle can develop involving vulnerable groups, mental health conditions, and adverse development outcomes which perpetuate existing vulnerability. Cavill et al. (2017) caution that vulnerability itself is a risk factor for developing mental health problems and leads to stigma and marginalization, which further generates poor self-esteem, low self-confidence, reduced motivation, and less hope for the future. As the result of stigmatization and discrimination, the rights of people with mental health problems may be violated. Many are denied economic, social, and cultural rights with restrictions on their right to work and education, and they may be denied reproductive rights and rights to the highest attainable health (WHO 2013a). Despite their vulnerability, people with mental health problems – including schizophrenia, bipolar disorder, depression, alcohol and drug use disorders, child
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and adolescent mental health problems, and intellectual impairments – have been largely overlooked as a target of development work (WHO 2013a). This is despite the high prevalence of mental health conditions, their economic impact on families and communities, and the associated stigmatization, discrimination, and exclusion (Ngui et al. 2010). Mental illness frequently leads individuals and families into poverty (WHO 2011). In some instances, people with mental health problems are homeless or unjustly imprisoned, which worsens their vulnerability (WHO 2013a). A developmental approach to social work focuses on people who are vulnerable, not from a deficit point of view, but from a human rights- and strength-based perspective, to tackle inequalities and create opportunities for human development and growth. The developmental approach aligns the Agenda for Social Work and Social Development (2012) with the 2030 Agenda for Sustainable Development by committing social workers to leave nobody behind in the global action plan for the next 15 years (UN 2015). Jenkins et al. (2011) indicate the three main approaches that have been used to improve mental health in low- and middle-economy countries. The first is the public mental health approach, which focuses on a combination of prevention and treatment of severe mental illness (SMI) such as schizophrenia and bipolar mood, as well as the integration of mental healthcare into existing health services. The second is the human rights-based approach, which emphasizes the deinstitutionalization of people with a chronic mental disorder/illness. The third is a developmental approach, which targets poverty reduction to expand access to health, and assumes that mental health will improve with increased national wealth. These three approaches, prevention and treatment, human rights, and poverty reduction, are combined in a developmental approach to social work and mental health within a sustainable developmental framework. In the context of this chapter, the call to leave nobody behind is about protecting and promoting mental health in relation to human development, which is discussed next.
Mental Health and Human Development Human development is about people and human freedom: the freedom to realize the full potential of every human life – now and in the future (UNDP 2016). The two fundamental types of freedom for human development are freedom of well-being, represented by functionings and capabilities, and freedom of agency, represented by voice and autonomy (UNDP 2016). Functionings include the different things a person may “value being and doing – such as being happy, adequately nourished and in good health, as well as having self-respect and taking part in the life of the community.” Capabilities are the various sets of combination of functionings (beings and doings) that a person can achieve (UNDP 2016, p. 1). Agency is about having a voice and autonomy and to do or achieve what is valued (UNDP 2016). Mental health is embedded in a set of functionings such as opportunities to learn and be educated in order to enhance capabilities, for example, to work and experience freedom from discrimination, being homeless, poverty, unemployment, and
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exclusion. Being treated with dignity is fundamental to developing agency. It is important for a person’s mental health to have a sense of self-worth and selfawareness, self-confidence, and self-esteem, have maturity to judge and make decisions, be able to form affectionate relationships, generate and sustain supportive networks, be able to tackle life’s tasks and deal with complex demands, and, “most important of all, hav[e] the capacity to grow as a person” (Fawcett 2012, p. 516). Freedom, justice, and peace in the world are embedded in recognition of the inherent dignity and the equality and rights of people (UN 1948). Sen (1999) argues that there is a link between different types of freedom and distinct types of rights and opportunities. Mental health is a freedom and a human right which is embedded in social justice, which is a core value of social work. Isbister (2001) affirms that freedom can only reach its fullest potential in the presence of equality. Therefore, making development matter for all people in the world, now and in the future, is a universal approach which lies at the core of the human development paradigm, acknowledging the life claims of everyone (UNDP 2015). From a structural point of view, the developmental approach is, first and foremost, about human development. In order to leave no one behind in its aspiration to promote mental health and well-being, the developmental approach is embedded in human rights and the call to achieve social justice within a sustainable development framework.
Developmental Social Work A developmental approach to social work embraces a human rights-based approach, people’s participation, the integration of economic and social development, bridging micro and macro practice, and partnerships (Patel 2015). These elements, which are discussed below, are intertwined in promoting human development. They are underpinned by the five Ps of the 2030 Agenda, namely, people, the planet, prosperity, partnerships, and peace (UN 2015), all of which anchor the development approach in a sustainable development framework.
Human Rights-Based Approach The human rights-based approach to development recognizes protection and promotion of human rights as an explicit development objective and encourages participation, long-term planning, and a multidimensional understanding of poverty (Drew et al. 2010). Drew et al. (2011) point out that people with mental health problems are often denied civil and political rights, such as the right to marry and find a family, personal liberty, and the right to vote and to participate effectively. The WHO (2013a) states that people with mental health problems are often denied the right to exercise their legal capacity on issues affecting them, including treatment and care. Furthermore, people with mental health problems often live in vulnerable situations and may be excluded from society, which constitutes a significant
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impediment to the achievement of national and international developmental goals (WHO 2013a). Human rights are indivisible and interconnected (Ife 2012). Hence, civil and political rights; social, economic, and cultural rights; and environmental rights are all equally important to promote mental health. From a structural and social justice perspective, the lives of people with mental disorders can be improved through policies, plans, and programs that lead to better services in general and for this vulnerable group in particular (WHO 2005). Declarations and treaties play an important role in progressive mental health policies that seek to increase opportunities for people with mental disorders to live fulfilling lives in the community. International human rights documents broadly fall into two categories: ones that legally bind states that have ratified such conventions and ones that are referred to as international human rights standards, which are considered guidelines enshrined in international declarations, resolutions, or recommendations, issued mainly by international bodies (Freeman and Pathare 2005). Examples of the first kind of document are international human rights conventions, such as the International Covenant on Civil and Political Rights (ICCPR) (UN 1966a) and the International Covenant on Economic, Social and Cultural Rights (ICESR 1966b). The second category includes UN General Assembly Resolutions such as the Principles for the Protection of Persons with Mental Illness and the Improvement of Mental Health Care (UN MI Principles 1991). The second category of documents are not legally binding, but they can and should influence legislation in countries, since they represent international consensus (WHO 2010). The WHO (2008) indicates that the adoption of the UN Convention on the Rights of Persons with Disabilities (CRPD) in 2006 was a major step forward in improving the lives of people with mental health problems. Moreover, the WHO (2013a) asserts that this marks a paradigm shift away from viewing people with disabilities as objects of charity toward viewing them as bearers of human rights with the capacity for self-determination. Notably, the CRPD provides a comprehensive legal framework for ending the discrimination experienced on a daily basis by many people with mental health conditions. It protects and promotes their rights and promotes their inclusion in international cooperation, including international development programs (WHO 2013a). The African (Banjul) Charter on Human and Peoples’ Rights (1981) is a legally binding document supervised by the African Commission on Human and Peoples’ Rights. The instrument contains a range of important articles on civil, political, economic, social, and cultural rights. Clauses pertinent to people with mental disorders include Articles 4, 5, and 16, which cover the right to life and the integrity of the person, the right to respect of dignity inherent in a human being, and the prohibition of all forms of exploitation and degradation (WHO 2010). The European Convention for the Protection of Human Rights and Fundamental Freedoms (1950), backed by the European Court of Human Rights, provides binding protection for the human rights of people with mental disorders residing in all the states that have ratified the Convention (Drew et al. 2011).
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There are several human rights standards applicable to mental health. Firstly, the UN principles for the protection of persons with mental illness and improvement of mental healthcare (UN MI principles 1991) serve as a framework for the development of mental health legislation in many countries. Secondly, the Standard Rules on the equalization of opportunities for people with disabilities reiterate the goals of equalizing opportunities established by the World Programme of Action (WHO 2005). The Declaration of Caracas (1990), adopted as a resolution by legislators, mental health professionals, human rights leaders, and disability activists convened by the Pan American Health Organization (PAHO/WHO), has major implications for the structure of mental health services. It states that exclusive reliance on inpatient treatment in a psychiatric hospital isolates patients from their natural environment, thereby generating greater disability. The Declaration establishes a critical link between mental health services and human rights because it concludes that outmoded mental health services put patients’ human rights at risk. It aims to promote community-based and integrated mental health services by suggesting that existing psychiatric care should be restructured (Drew et al. 2011). The Madrid Declaration on Ethical Standards for Psychiatric Practice adopted by the General Assembly of the World Psychiatric Association (WPA) in 1996 is an example of an international association of mental health professionals’ attempt to protect the human rights of persons with mental disorders by issuing its own sets of guidelines for standards of professional behavior and practice (WHO 2010). Among other standards, the Madrid Declaration insists that treatment should be provided in partnership with persons with mental disorders and that involuntary treatment can only be enforced in exceptional circumstances (WHO 2010). Based on various declarations and treaties, many progressive mental health policies have sought to increase opportunities for people with mental disorders to live fulfilling lives in the community. Freeman and Pathare (2005, p. 4) indicate that legislation can foster such opportunities if it prevents inappropriate institutionalization and provides for appropriate facilities, services, programs, personnel, protections, and opportunities to allow people with mental disorders to thrive in the community. This suggests that legislation plays a role in ensuring that a person suffering from a mental disorder can participate in the community. The prerequisites for such participation include access to treatment and care, a supportive environment, housing, rehabilitative services (e.g., occupational and life skills training), employment, nondiscrimination and equality, and civil and political rights (such as the right to vote, drive, and access courts) (Freeman and Pathare 2005). Legislation can be a means to secure more resources for mental health and improve rights and mental health standards and conditions in a country (Funk et al. 2005). However, in order for a law to make a positive difference to the lives of people with mental disorders, it must have realistic and attainable goals (Funk et al. 2005). The WHO (2013b, p. 30) presents an overview of the opportunities that legislation can facilitate for mental health outcomes:
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Mental health legislation, or mental health provisions integrated into other laws for example, anti-discrimination, general health, disability, employment, social welfare, education, housing, and other areas may cover a broad array of issues including access to mental health care and other services, quality of mental health care, admission to mental health facilities, consent to treatment, freedom from cruel, inhumane and degrading treatment, freedom from discrimination, the enjoyment of a full range of civil, cultural, economic, political and social rights, and provisions for legal mechanisms to promote and protect human rights, for example, review bodies to oversee admission and treatment to mental health facilities, monitoring bodies to inspect human rights conditions in facilities and complaint mechanisms.
The human rights-based approach to development recognizes the protection and promotion of human rights as an explicit development objective and encourages participation, long-term planning, and a multidimensional understanding of poverty (Drew et al. 2010). This understanding is important in tackling the inequalities that contribute to mental illness and in advocacy for socioeconomic rights and the inclusion of people affected by mental illness. Green (2012) argues that people’s right to socioeconomic development is related to concepts of citizenship, participation, and power, which underscores the importance of the participation of service users in mental health planning and activities.
People Participation Developmental social work emphasizes the inclusion of people’s voices in their own development (Lombard 2014). A developmental approach thus recognizes that people with mental health problems are key actors in their own development, rather than merely passive recipients of commodities and services (WHO 2010). Caplan (2010) points out that the power of participation in the mental health field is now well established in the recovery vision for mental health, which is an initiative articulated by service users. Service users define recovery in terms of what is important to them (Fawcett 2012). In this context, Double (2002, quoted in Fawcett 2012, p. 525) avers that recovery “is not about becoming symptom free, but about reclaiming an individually determined and socially valued lifestyle, retaining control over decision-making processes, and utilising advance directives if necessary.” A recovery-oriented approach assumes that individuals have the capacity to take responsibility for their lives (Bila 2017). Empowerment is therefore central in recovery-oriented mental healthcare. Slade (2009) explains that empowerment emerges from agency beliefs and involves behavior that has a positive impact on people’s lives. Contrary to older approaches that regard the person as the problem, there has been a fundamental shift in the recovery perspective to mental health toward seeing the person as part of the solution. Having agency and a voice is about enlarging people’s freedoms so that they can pursue the choices that they value in building their capabilities (UNDP 2016). Human development therefore implies that people must influence the processes
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that shape their lives, including mental health recovery through active participation (UNDP 2016). It is not only important that people with a mental illness have choices in their treatment but also that they have a choice about participating in society. Therefore, people with mental health problems should be supported to participate in development opportunities in their communities (Janardhana and Naidu 2012). Self-determination can be achieved on both individual and collective levels. Hence, service users, as a distinct group, should be included as equals in policy and service decisions (Caplan 2010). From a developmental approach perspective, service users are key partners in their recovery. Their inclusion also applies to decisions on development and poverty reduction activities such as education, employment and livelihood programs, and the human rights agenda (WHO 2013b), all of which are essential components for social and economic inclusion.
Integrating Social and Economic Development Given the strong role of social determinants in mental health, rehabilitative interventions must also address poverty reduction (Jenkins et al. 2011). Mental health conditions are associated with high rates of unemployment (WHO 2010), and therefore livelihood interventions are increasingly linked to mental health interventions (Baingana 2011). Chisholm (2013) indicates that grants and support for small business operations have demonstrated benefits, not only for people with mental health conditions but also for their families and communities, which can strengthen their capacity and enable them to participate fully in public affairs. The recovery vision that emphasizes that each individual has unique talents to have a meaningful and productive role in society, either as an individual or as a collective, harmonizes with a social investment approach to mental health (Caplan 2010). The social investment approach is a strategy toward prosperity and sustainable livelihoods. The premise of a social investment approach is “that economic development must promote social welfare and that social welfare interventions, in turn, must promote economic development, that interventions are not consumptionbased but are productive and driven by consumers [service users], and that human rights are at the forefront of all efforts” (Caplan 2010, p. 78). Consumers refer to people with mental illness who are service users of mental health services. Social investment strategies build on people’s capabilities to be productive citizens and lead normal and fulfilling lives (Midgley and Conley 2010). Social enterprise is an innovative social investment strategy in mental healthcare and other disabilities to foster social and economic development and inclusion (Caplan 2010). Social investment, as in the case of recovery, nurtures the skills and knowledge of people and encourages participation in education, community involvement, and employment to develop and use these talents (Caplan 2010). Integration of social and economic development strategies is important for human development and in particular for service users who have a say in their recovery. Social investment strategies contribute to building social capital, which is important for service users to develop cohesive relationships through mental health peer support groups (Caplan
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2010). Furthermore, social investment strategies strengthen mental health service users’ right to socioeconomic development and the development of their capabilities to live independent lives. It provides “opportunities for the social inclusion for some of the most marginalised people in society, working with them to overcome the experiences of isolation and stigma that are often the most debilitating effects of mental illness” (Caplan 2010, p. 71). Both micro and macro interventions are required to create opportunities for social and economic inclusion.
Linking Micro and Macro Practice As indicated above, mental health, like other aspects of health, can be affected by a range of socioeconomic factors that must be addressed through a comprehensive strategy of promotion, prevention, treatment, and recovery (WHO 2013b). The developmental approach’s focus on both micro and macro interventions is aligned with the recovery focus in mental health, which Caplan (2010, p. 71) refers to as “a new paradigm in the conceptualization, discourse, and treatment of mental health.” This shift was sparked by the “advocacy of mental health consumers and [is] grounded in the concepts of hope, relationship, meaningful activity, empowerment, self-determination, and education” (Caplan 2010, p. 71). In this framework, recovery does not necessarily mean the absence of illness; rather, it describes the ability to cope with the symptoms of a mental illness and have quality of life in whatever way is significant for the individual (Caplan 2010). Recovery can also be viewed as learning how to cope effectively, not only by addressing the symptoms of mental illness but also by overcoming its negative consequences (to which social stigma contributes considerably), such as homelessness, unemployment, or problems with relationships (Caplan 2010). Similar to the argument that people can and do recover from mental illness to lead fulfilling and meaningful lives (Caplan 2010), a developmental approach does not discard the remedial or treatment approach but accommodates its implementation through human rights- and strength-based approaches. In promoting mental health, the emphasis should therefore be on services, policies, legislation, plans, strategies, and programs that protect, promote, and respect the rights of people with mental health problems (WHO 2013b). Through a micro-macro practice lens, recovery is seen as lying on a continuum, ranging from the individual/personal intervention level, including treatment and development of agency, to the macro/political level where advocacy practice is important in challenging and breaking down inequalities that impede socioeconomic development and inclusion. Linking micro and macro practice interventions is therefore an important feature of developmental social work in shifting from a remedial or clinical perspective to a structural perspective that exposes injustices and abuses of human rights and, most importantly, addresses the socioeconomic factors that impede mental health and human development. On a macro level, it requires engagement on a political level to influence policy through advocacy practice. Funk (2010) indicates that targeted policies, strategies, and interventions for reaching people with mental health conditions should be developed and mental
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health interventions should be mainstreamed into broader poverty reduction programs. Mainstreaming involves the elements of participation, accountability, nondiscrimination, empowerment, and an explicit linkage to human rights standards (Department of Social Development 2013; Baingana 2011). To make implementation a reality, adequate funds must be dedicated to mental health interventions and mainstreaming efforts. Furthermore, service providers should be encouraged to address the needs of people with mental health problems as part of their development work (Drew et al. 2011). In this regard, Fawcett (2012, p. 515) refers to the challenge to make what she calls “underfunded systems” actually work, which is an important issue for social work advocacy on a macro level. Linking micro and macro practice interventions emphasizes the holistic nature of a developmental approach. The approach sees recovery as lying on a continuum where human rights, participation, and social and economic development play an inherent role in influencing the “core concepts of recovery.” These concepts are self-direction, hope, empowerment, the involvement of supportive personal relationships, having a meaningful role in society, and a process of nonlinearity – meaning to be flexible in achieving recovery (Caplan 2010, p. 79). Shifting the continuum of recovery to a full circle requires active partnerships among various stakeholders.
Partnerships for Human Development The premise of recovery-oriented mental health approaches is that everyone should be involved in mental health services and that everyone should be given opportunities to work together and integrate various skills and experiences to promote and protect mental health (Bila 2017). Therefore, mental health partnerships cut across all sectors on global and national levels, including governments, nongovernmental organizations (NGOs), community-based organizations (CBOs), the private sector, ordinary citizens, and service users. The importance of partnerships is reiterated on a global level in the 2030 Agenda for Sustainable Development, where one sustainable development goal (SDG) has been dedicated to this end. SDG 17 reads: “Strengthen the means of implementation and revitalize the Global Partnership for Sustainable Development” (UN 2015, p. 26). The partnership goal applies to the remaining 16 SDGs. This includes SDG 3, which relates to health and mental health and well-being. Fawcett (2012, p. 526) explains the global link of mental health, commenting: “Across the globe, improving mental well-being, preventing mental ill-health, and responding to mental distress in all its manifestations are key concerns.” WHO (2010) emphasizes that support for opportunities for exchange between countries on effective policy and legislative intervention strategies to promote mental health, prevent mental illness, and promote recovery from illness based on the international and regional human rights framework is vital. Partnerships thus play an essential role in sustainable human development and hence in mental health and well-being. States that are signatories of the 2030 Agenda declaration have committed themselves to a collaborative partnership that will forge transformation of the
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world through achieving the sustainable development goals. In the commitment to leave no one behind, they promised the following: “As we embark on this great collective journey, we pledge that no one will be left behind” (UN 2015, p. 3). From a global perspective, all governments should work along with the WHO, which is responsible for “promoting measures which focus on mental health promotion and mental ill-health prevention on reducing inequalities within and between nations” (Fawcett 2012, p. 526). However, the WHO (2013b) asserts that of all development stakeholders, governments play the most important role in creating enabling environments, reducing stigma and discrimination, promoting human rights, and improving the quality and quantity of services (education, health, social services, and poverty alleviation). From a human rights-based perspective, governments have a duty to promote and protect mental health and well-being for all and should be held accountable by civil society in the fulfillment of this duty. Commitment to the 5-year action plan to achieve the 17 SDGs and its 167 targets includes the government’s duty to implement commitments such as the Accra Agenda for Action, the CRPD, and other human rights conventions (McInerneyLankford and Hans-Otto 2010). The new focus on recovery, which has progressed from the lived experiences of people who use such services (Care Services Improvement Partnership [CSIP] 2007), emphasizes the key role that they have to play in mental health partnerships. In this regard, Fawcett (2012) points out that service users’ perspectives are gaining ground and that many public services in countries such as Australia and especially the UK now employ service user advocates. However, this has not escaped implementation challenges. Hence, Fawcett (2012) emphasizes the importance of staff training, good use of resources, and effective communication and support systems to enable agencies and organizations to foster links with service user movements. Partnerships should also be developed with the broader community from which service users come. Bracken and Thomas (2004, p. 13) argue that problems such as poverty and unemployment are social and not individual problems. Because they are “at the heart of mental health crises,” they also require social responses (Bracken and Thomas 2004, p. 13). Services provided by civil society can include healthcare, social services, education programs, and livelihood projects (Fawcett 2012, p. 515). In addition, the WHO (2010) states that civil society can play an important role in supporting people with mental health conditions to access the resources they need and to integrate fully into the community through direct service provision and advocacy. Partnerships in the community should support the creation and promotion of associations and organizations for people with mental health problems, as well as for their caregivers (WHO 2013b). Dialogue between health workers; government authorities in the areas of health, human rights, disability, education, and employment; and the judiciary is important in supporting and strengthening service users, caregivers, and associations and organizations who work with people with mental health problems to integrate recovery services (WHO 2013b). In addition, the WHO (2010) states that strong links should be developed between mental health services, housing, and other social services, because mental health conditions often coexist
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with a number of other problems, such as homelessness. Furthermore, the WHO (2013b) indicates that civil society can advocate and lobby the government and funders to recognize and support people with mental health conditions. In order to improve development outcomes, government can provide support to build and strengthen mental healthcare users’ groups and offer opportunities for these groups to express their views and participate in decision-making processes (WHO 2013b). Medical-legal Partnerships (MLPs) have recently emerged in the global mental health environment as a new private initiative to enhance mental health service users’ rights to recovery. An established network of MLPs operates in various contexts in the USA, including general practice medicine and specialized services, such as psychiatry and social work (Cohen et al. 2010). MLPs are joint ventures between lawyers and medical professionals that integrate legal assistance with a medical setting. The purpose is for partners to seek to identify and resolve legal issues that have an impact on patients’ health and well-being (Cohen et al. 2010). MLPs provide legal assistance in areas such as income support, rights to divorce, education, guardianship and power of attorney, and issues pertaining to tenancy (Zuckerman et al. 2008). Ryan et al. (2012) highlight three key activities in which MLPs engage: providing legal help in a healthcare location, transforming the practices of legal and health institutions, and influencing policy change. Cohen et al. (2010) assert that evidence shows that the availability of legal support and services to those who are disadvantaged significantly influences their health. Through an MLP, legal practitioners can support the reduction of psychological stress of a person with mental health concerns by being present and available to resolve issues such as tenancy, fines, and custodial orders, which are issues that can exacerbate the deterioration of the person’s mental health (Ryan et al. 2012). MLPs strengthen the human rights-based basis of the developmental approach to mental health. This facilitates the engagement of partnerships on a legal basis. It creates space for partnerships between professionals such as lawyers, medical professionals, psychologists, and social workers (Colvin et al. 2011). Furthermore, collaborations between physicians, nurses, social workers, and attorneys enhance service delivery, helping it to meet the needs of families who require a one-stop service. Colvin et al. (2011) have highlighted the integral role that social workers play in an MLP and argue that MLP team members recognize the need for teaching and adopting social work’s empowering approach, which is important in achieving social justice for all. Rand (2006) affirms that the empowerment approach can enhance social justice and systemic changes adopted by lawyers and other MLP team members. MLP strategies are developmental, but their impact in a broader sustainable development context in fostering social and economic inclusion of mental health service users is determined by their availability and accessibility to all mental health service users but in particular by those that are mostly affected by structural injustices. The emphasis on structural injustices shows that research can and should play an important role in a developmental approach. This implies that research institutions are important partners in mental health recovery. Drew et al. (2010) call on academic and research institutions to improve development outcomes by generating and
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synthesizing policy-relevant research findings, as well as building capacity to conduct and interpret research at local levels. These authors argue that research which is properly formulated and conducted can inform the planning and implementation of development programs and the allocation of scarce human and financial resources. Academic and research institutions should play a key role both in building and managing knowledge and in building the capacity of policymakers, planners, and service providers from different sectors (Drew et al. 2010). The importance of partnerships in relation to the other themes of a developmental approach, as well as the overall responsibility of governments to promote citizens’ mental health and well-being on all levels, can be demonstrated as the key direction for public mental health promotion and protection for individuals, households, communities, and vulnerable groups, who are all important stakeholders in recovery partnerships. The WHO (2012) advocates for public mental health responses across these levels by means of a number of key strategies and interventions which provide a platform for developing strong partnerships among all stakeholders involved in mental health promotion, protection, and recovery. These strategies and interventions are summarized below in three broad categories.
Developing and Protecting Individual Attributes • Mothers and infants: Enabling early attachment, providing appropriate parenting training and natal care (including postdepression care, developing safe, stable, and nurturing relationships between children and their parents and caregivers) • Children and adolescents: Ensuring sufficient nutrition and stimulation • Older adults: Implementing healthy aging policies and community activities • All age groups: Encouraging regular physical activity and a healthy diet; discouraging or restricting the use of tobacco, alcohol, and other psychoactive substances Supporting Households and Communities • Families: Ensuring secure living conditions for children and adolescents, targeting prevention at those with behavioral disorders and those with a parent with mental illness, and preventing intimate partner violence • Workers/employees: Supporting increased employment opportunities and promoting safe and supportive working conditions (including stress management) • Low-income households: Ensuring basic living conditions (shelter, water, and sanitation) and providing social and financial protection • Communities: Making neighborhoods safe, enhancing civic assets/social networks, and restricting the availability of alcohol, drugs, and tobacco Supporting and Protecting Vulnerable Groups in Society • Developing and implementing social inclusion policies • Implementing anti-discrimination laws and policies • Making education available and accessible to all • Promoting women’s rights and freedoms and gender-equity policies • Providing early intervention to refugees after exposure to trauma (including those caught up in conflict)
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• Conducting awareness-raising campaigns • Fostering responsible reporting in the media The proposed strategies and interventions illustrate that mental health rests on individuals’ capacity to manage their thoughts, feelings, and behaviors, as well as their interactions with others (WHO 2005). It is essential that these core attributes of self-control, resilience, and confidence be allowed to develop and become ingrained in the formative stages of life, so that individuals are equipped to deal with the complex choices and potential adversity they may face as they grow older (WHO 2004). Promoting a healthy start in life is therefore vital (WHO 2004). On an individual level, mental health and well-being are strongly mediated by the immediate social context in which people live, work, and carry out their day-to-day activities (Tol et al. 2011). At a family and community level, the focus is therefore on fostering living and working conditions that enable psychosocial development and promote positive interactions within families and social groups (WHO 2010). The proposed strategies and interventions relate to the recovery continuum of micro and macro practice, which underpin the other themes of a developmental approach, namely, human rights, participation, the integration of social and economic development, and partnerships.
Conclusion Social workers who adopt a developmental approach to mental health commit to challenging and addressing structural injustices and inequalities to promote a more just and inclusive society for all. In social work’s commitment to leave nobody behind, a developmental approach creates a platform to promote and protect mental health within a sustainable development framework. Mental health and well-being are essential for human development. A developmental approach to mental health is in line with a recovery-oriented, human rights-based approach to mental health, presented on a continuum of micro and macro practice interventions that emphasize treatment, protection, prevention, and promotion. The underpinning themes of a developmental approach, namely, human rights, participation, the integration of social and economic development, the linking of micro and macro practice, and the development of partnerships, are interrelated. Hence, those who adopt such an approach embrace a holistic approach to mental health promotion, protection, and recovery. Within the framework of sustainable development, a developmental approach values people, the planet, prosperity, partnerships, and peace in its pursuit to leave no one behind (UN 2015) and achieve social justice for all. Partnerships are essential for human development and mental health and wellbeing. Improving development outcomes for vulnerable groups should be a priority for partners in mental health promotion and protection. Social investment strategies are important to address the structural determinants that contribute to and exacerbate mental distress and illness. Such strategies are essential to strengthen mental health service users’ agency, capabilities, and livelihoods, enabling them to live independently.
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All development stakeholders have a responsibility to ensure that the rights of people with mental health conditions (as a vulnerable group) are protected. This means making sure that they are provided with opportunities to improve their living conditions and lead fulfilling lives within their communities. Government in particular must play a key role in creating an enabling environment to promote and protect mental health, and government should be held accountable by all stakeholders to deliver on this duty. Finally, Fawcett (2012, p. 515) calls on social workers to pose critical questions and look creatively at options for what she calls a more “responsive mental health practice.” The developmental approach to mental health is such a response: it offers a platform for social workers to promote and protect mental health on an individual, household, community, policy, and research level and, in doing so, to contribute to sustainable development and promote justice for all.
Cross-References ▶ Community and Mental Health ▶ Community, Mental Health, and Social Work ▶ Legal Provisions, Advocacy, and Empowerment
References African Charter on Human and Peoples Rights (1981) adopted in Nairobi. Available via http://www. humanrights.se/wp-content/uploads/2012/01/African-Charter-on-Human-and-Peoples-Rights. pdf. Accessed 20 Nov 2017 Baingana F (2011) Mainstreaming mental health and development in Uganda through advocacy. End of project evaluation report. Basic Needs UK, Kampala Bila NJ (2017) A recovery-oriented social work programme for mental health care in a rural area in South Africa. Unpublished doctoral thesis, South Africa, University of Pretoria Bracken P, Thomas P (2004) Out of the clinic and into the community. Openmind 126:13 Caplan MA (2010) Social investment and mental health, the role of social enterprise. In: Midgley J, Conley A (eds) Social work and social development. Theories and skills for developmental social work. Oxford University Press, New York, pp 71–87 Care Services Improvement Partnership (CSIP), Royal College of Psychiatrists (PCPsych) & Social Care Institute for Excellence (SCIE) (2007) A common purpose: recovery in future mental health services. Joint position paper 08. Social Care Institute for Excellence, London Cavill S, England P, House S, Ferron S (2017) Understanding, respect and including people with mental health conditions as part of the CLTS process. International Conference, UK, Loughborough Chisholm D (2013) Investing in mental health, evidence for action. WHO, Geneva Cohen E, Fullerton DF, Retkin R, Weintraub D, Tames P, Brandfield J, Sandel M (2010) Medicallegal partnership, collaborating with lawyers to identify and address health disparities. J Gen Intern Med 25(2):136–139 Colvin JD, Nelson B, Cronin B (2011) Integrating social workers into medical-legal partnerships: comprehensive problem solving for patients. Soc Work 57(4):333–341 Declaration of Caracas (1990) Conference for the restructuring of psychiatric care in Latin America. Available via http://www.paho.org/bulletins/index.php?option=com. Accessed 15 Nov 2017
6
Developmental Approach to Mental Health
127
Department of Social Development (2013) Framework for social welfare services. South Africa. Available via www.dsd.gov.za. Accessed 17 Feb 2017 Drew N, Faydi E, Freeman M, Funk M (2010) Mental health and development: targeting people with mental health conditions as a vulnerable group. WHO, Geneva Drew N, Funk M, Lamichchane J, Chavez E, Katonka S, Pathare S, Lewis O, Gostin O, Saraceno B (2011) Human rights violation of people with mental psychosocial disabilities, an unresolved global crisis. Lancet 378(9803):1664–1675 European Convention for the Protection of Human Rights and Fundamental Freedoms (1950) adopted in Rome. Available via http://www.echr.coe.int/Documents/Convention_ENG.pdf. Accessed 19 Nov 2017 Fawcett B (2012) Mental health. In: Gray M, Midgley J, Webb SA (eds) The sage handbook of social work. Sage, London, pp 515–530 Foresight (2008) Foresight mental capital and wellbeing project, final project report. Government Office for Science, London Freeman M, Pathare S (2005) WHO resource book on human rights and legislation. WHO, Geneva Friedli L (2009) Mental illness resilience and inequalities. WHO regional office for Europe, Copenhagen Funk M, Drew N, Saraceno B (2005) The resource book on mental health, human rights and legislation. WHO, Geneva Funk M (2010) Mental health and development: targeting people with mental health conditions. WHO, Geneva Global Agenda for Social Work and Social Development (2012) Collaboration between IASSW, IFSW, ICSW. Available via http://www.globalsocialagenda.org. Accessed 15 Sept 2017 Green D (2012) From poverty to power, how active citizens and effective states can change the world, 2nd edn. Practical Action Publishing, Oxford, Oxfam International, Oxford Ife J (2012) Human rights and social work. Towards rights-based practice, 3rd edn. Cambridge University Press, London Isbister J (2001) Capitalism and justice, envisioning social and economic fairness. Kumarian Press, Bloomfield Janardhana N, Naidu DM (2012) Inclusion of people with mental illness in community based rehabilitation, need of the day. Int’l Journal of Psychosocial Rehab 16(1):117–124 Jenkins R, Baingana F, Ahmad R, McAid D, Atun R (2011) Social, economic, human rights and political challenges to global mental health. Ment Health Fam Med 8(2):87–96 Lombard A (2014) A developmental perspective in social work theory and practice. In: Spitzer H, Twikirize JM, Wairire GG (eds) Professional social work in East Africa, towards social development, poverty reduction and gender equality. Fountain Publishers, Kampala, pp 43–55 McCrone P, Dhanasiri S, Patel A (2008) Paying the price: the cost of mental health care in England to 2026. King’s Fund, London McInerney-Lankford S, Hans-Otto S (2010) Human rights indicators in development, an introduction, World Bank study. Available via https://openknowledge.worldbank.org/handle/10986/ 2529. Accessed 5 Nov 2017 Midgley J, Conley A (2010) Introduction. In: Midgley J, Conley A (eds) Social work and social development, theories and skills for developmental social work. Oxford University Press, New York, pp xiii–xixx Ngui EM, Khasakhala L, Ndetei D, Roberts LW (2010) Mental disorders, health inequalities and ethics global perspective. Int Rev Psychiatry 22(3):235–244 Patel L (2015) Social welfare and social development, 2nd edn. Oxford University Press, Cape Town Prince M, Patel V, Saxena S, Maj M, Maselko J, Phillips MR, Rahman A (2007) No health without mental health. Lancet 370(9590):859–877 Rand S (2006) Teaching law students to practice social justice, an interdisciplinary search for help through social work’s empowerment approach. Clinical L Rev 13:459–504 Ryan AM, Kutob RM, Suther E, Hansen M, Sandel M (2012) Pilot study of impact of medical-legal partnership services on patients’ perceived stress and wellbeing. J Health Care Poor Underserved 23:1536–1546
128
A. Lombard and N. Bila
Sen A (1999) Development as freedom. Oxford University Press, Oxford Slade M (2009) Personal recovery and mental illness: a guide for mental health professionals. Cambridge University Press, Cambridge Tol WA, Patel V, Tomlinson M, Baingana F, Galappatti A (2011) Research priorities for mental health and psychosocial support in humanitarian settings. PLoS Med 8(9):e1001096 UN (United Nations) (1948) Human rights declaration. Available via http://www.un.org/en/docu ments/udhr/. Accessed 1 Aug 2015 UN (United Nations) (2015) Transforming our world, the 2030 Agenda for Sustainable Development. General Assembly A/RES/70/1 25 Sept 2015. Available via http://www.un.org/en/devel opment/desa/population/migration/generalassembly/docs/globalcompact/A_RES_70_1_E.pdf. Accessed 10 Aug 2017 UNDP (United Nations Development Programme) (2015) Human development report work for human development. Available via ttp://hdr.undp.org/sites/default/files/2015_human_develop ment_report.pdf. Accessed 9 Jun 2017 UNDP (United Nations Development Programme) (2016) Human Development Report, Human development for everyone. Work for human development. Briefing note for countries on the 2015 Human Development Report. 31 December 2016. Available via http://reliefweb.int/report/ world/human-development-report-2016-human-development-everyone. Accessed 9 Sept 2017 UN (United Nations) General Assembly (1966a) International Covenant on Civil and Political Rights. Treaty Series 999:171 UN (United Nations) General Assembly (1966b) International Covenant on Economic, Social and Cultural Rights. Treaty Series 993:3 United Nations (UN) General Assembly (1991) Principles for the protection of persons with mental illness and for the improvement of mental health care (MI principles). Resolution 46/119 of 18. United Nations, New York World Psychiatric Association (1996) Madrid declaration on ethical standards for psychiatric practice. WPA General Assembly, Madrid. Available via http://www.wpa.net.org/detail.php? section_id=5&content_id=48. Accessed 21 Nov 2017 WHO (World Health Organisation) (2004) Promoting mental health. Available via http://who.int/ mental_health/evidence/en/promoting-mhhh.pdf. Accessed 10 Nov 2017 WHO (World Health Organisation) (2005) Mental health atlas. WHO Library cataloguingin-Publication, Geneva WHO (World Health Organisation) (2008) WHO Mental Health Gap Action Programme (mhGAP). Available via http://www.who.int/mental_health/mhgap/en. Accessed 9 Nov 2017 WHO (World Health Organization) (2011) Mental Health Atlas. WHO Library Cataloguingin-Publication, Geneva WHO (World Health Organisation) (2014) Mental health: a state of wellbeing. http://www.who.int/ features/factfiles/mental_health/en. Accessed 28 Sept 2017 WHO (World Health Organisation) (2010) Mental health and development: Targeting people with mental health conditions as vulnerable groups. Available via http://http://www.who.int/mental_ health/policy/mhtargeting/en. Accessed 10 Nov 2017 WHO (World Health Organisation) (2012) Investing in mental health. Available via http://apps. who.int/iris/bitstream/10665/87232/1/9789241564618_eng.pdf. Accessed 20 Nov 2017 WHO (World Health Organization) (2013a) What is mental health? Available via http://www.who. int/features/factfiles/mental_health/en. Accessed 14 Nov 2017 WHO (World Health Organization) (2013b) Mental health action plan 2013–2020. Available via http://apps.who.int/iris/bitstream/10665/89966/1/978924150602_eng/pdf. Accessed 11 Nov 2017 Zuckerman B, Sandel M, Lawton E, Morton S (2008) Medical-legal partnerships, transforming health care. Lancet 372(9650):1615–1617
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Qigong Practice Healing and Self-Management for Mental Health and Mental Illness Jessie S. M. Chan and Siu-man Ng
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Integration of Self-Management, Healing, CAM, and BMS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Self-Management and Healing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Integration of CAM and Self-Management . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . BMS and Innate Healing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Importance for Social Work to Integrate . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Basic Concepts in TCM . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . BMS Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Mental health is a major public health concern. Nearly two-thirds of people with mental disorder never seek help from a health professional due to stigma. Furthermore, conventional therapies are not always effective. The use of complementary and alternative medicine (CAM) is common in persons with mental disorders. On the other hand, healthcare systems also face the challenges of a lack of capacity due to limited resources. Self-management using CAM will be a J. S. M. Chan (*) School of Chinese Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, People’s Republic of China Department of Social Work and Social Administration, The University of Hong Kong, Hong Kong, People’s Republic of China e-mail: [email protected] S.-m. Ng Department of Social Work and Social Administration, The University of Hong Kong, Hong Kong, People’s Republic of China e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_23
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crucial approach and instill individual responsibility and offer tools to patients and train them to utilize relevant skills, which may be one means of bridging the gap between patients’ needs and the capacity of health and social service. Social workers have an important role to play in health education and promotion of the self-management of mental health and mental disorders. Inspired by traditional Chinese medicine (TCM) and Eastern philosophies, an Eastern body-mind-spirit (BMS) model was developed to ignite innate healing power, which aims at fostering a harmonious dynamic equilibrium within clients and between clients and their social and natural environment. It is a multidimensional and holistic approach that can be used to guide social work intervention. Qigong, an ancient simplified BMS practice, can be adopted as a healthy lifestyle and behavior in the daily self-management of mental health and mental illness. In the future, there is also a need to train more health professionals to ensure the patients can truly master the self-management skills (e.g., BMS and Qigong practice), and new health behaviors are sustainable over time. Keywords
BMS · Qigong · TCM · Healing · Self-management · CAM · Mental health · Mental illness
Introduction Mental health is a major public health concern. World Health Organization (WHO) report showed that one in four people in the world will be affected by mental or neurological disorders at some point in their lives (WHO 2001). The high prevalence of mental disorders results in high, long-term personal, healthcare, and societal costs. Mental disorders are among the strongest contributors to the global burden of disease (de Jonge et al. 2017). Nearly two-thirds of people with a known mental disorder never seek help from a health professional due to stigma. Furthermore, conventional therapies are not always effective. Merely half of depressed individuals seek medical treatment, and just over 30% of them receive an efficacious treatment (Cuijpers et al. 2011; Gourgouvelis et al. 2018). The use of complementary and alternative medicine (CAM) is common in persons with severe mental disorders, particularly high in persons receiving conventional care (8.6–17.8%) and persons receiving specialist mental healthcare (14.0–22.5%) (de Jonge et al. 2017). A nationally representative survey in the USA found that complementary and alternative therapies are used more than conventional therapies by people with mental disorders such as self-defined anxiety attacks and severe depression (Kessler et al. 2001). Use of complementary and alternative medical therapies is more than twice as common among youth with mental health concerns as those without (Kemper et al. 2013). In addition to mental
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disorders, CAM also may be applied for promotion of mental health (Kemper and Shannon 2007). CAM refers to the practices and products that people use as adjuncts to or alternatives to Western medical approaches, including a variety of self-care interventions, such as taking natural products, doing meditation, mindfulness practice, Qigong, Tai Chi, or Yoga. Traditional Chinese medicine (TCM) is one of CAM, which is the most common adopted by the Chinese community and has become increasingly popular in other countries. Inspired by TCM and Eastern philosophies, Chan (2001) developed an Eastern body-mind-spirit (BMS) model, which aims at fostering a harmonious dynamic equilibrium within clients and between clients and their social and natural environment. This model has four basic assumptions. First, everything is connected: human existence is a manifestation of physical, psychological, and spiritual being. The different domains are interconnected and come together to form a whole. Human existence is also connected with the bigger world, in both the social and natural environments. Second, life is the eternal dance of Yin and Yang. Life is ever changing, and the interflow of energy maintains a harmonious dynamic equilibrium. The disruption of such harmony is the cause of life problems. Third, healing comes from within: therapy aims to ignite the client’s innate healing power that will bring them back to a state of balance. Intervention looks for strength rather than pathology. Fourth, restoring harmony not only cures illness and resolves problems; it also opens up opportunities for growth and transformation. The BMS model is composed of three themes: body (body scan, breathing and meditation, mindful body exercise, Qigong practice, massage, therapeutic touch), mind (emotional expression, social support, appreciation, self-affirmation, letting go), and spirit (meaning of life, harmony with nature, personal transcendence, forgiveness, compassion). Details of the BMS model will be described in the following section. This approach has been applied to various target groups such as cancer patients, infertile couples, divorced women, and adolescents. Systematic outcome studies were conducted for the approach, and evidence of its efficacy and its potential for generalization are growing (Chan et al. 2000, 2001a, 2017a; Ho and Chan 2002). Qigong practice, which is an integral part of the BMS model and also a simplified BMS practice, has also been independently adopted and proved to be effective for mental health in different chronic diseases (Chan et al. 2014, 2017b, c). This chapter will introduce an Eastern BMS approach inspired by ancient TCM and Eastern philosophy and propose a simplified BMS practice (Qigong) as a self-management skill in mental health and mental illness. Firstly, the concepts of CAM, BMS, selfmanagement, healing, and social work intervention will be introduced, and then the concepts of Yin-Yang and Five Elements in TCM will be elucidated. Secondly, BMS interventions with SMART principle, one-second technique, and Qigong will be described in detail. Thirdly, our empirical research and application on BMS and Qigong in Hong Kong will be shared. Lastly, future direction for social work practice/research in BMS will be stated in the conclusion.
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Integration of Self-Management, Healing, CAM, and BMS Self-Management and Healing Persons with mental disorders experience many physical and emotional consequences which worsen their quality of life and affect their ability to function in familial, social, and vocational realms, and they also experience discrimination in many aspects of their life (Herrman 2001). However, many people with mental illness, particularly anxiety and depression, are not early recognized and receive the appropriate treatments. Many people with potentially remediable disorders are not properly treated (Herrman 2001). On the other hand, healthcare systems also face the challenges of a lack of capacity due to limited resources. Available evidence supports the need for improved integration of mental health services in primary healthcare and strengthening of community services (Jacob and Coetzee 2018). Increased attention has been concentrated on approaches managing chronic symptoms to maintain patient independence and quality of life over longer periods of time (Grady and Gough 2014). Based on the concept that patients are active participants in their own treatment, self-management is defined as the day-to-day management of chronic conditions by individuals over the course of an illness. “Self-management refers to the individual’s ability to manage the symptoms, treatment, physical and psychosocial consequences and life style changes inherent in living with a chronic condition. Efficacious selfmanagement encompasses ability to monitor one’s condition and to test the cognitive, behavioural and emotional responses necessary to maintain a satisfactory quality of life” (Barlow et al. 2002). Three sets of tasks associated with selfmanagement include medical management of the condition, behavioral management, and emotional management (Grady and Gough 2014). Self-management will be a crucial approach in managing these chronic conditions, preventing illness and promoting wellness (Grady and Gough 2014). Selfmanagement programs instill individual responsibility and offer tools to patients and train them to utilize relevant skills, which may be one means of bridging the gap between patients’ needs and the capacity of health and social service (Barlow et al. 2002; Grady and Gough 2014). Self-management interventions can positively affect both the outcomes and cost of chronic illness (Lorig and Holman 2003). A growing body of evidence has shown that self-management approaches can provide benefits to participants in terms of knowledge, performance of self-management behaviors, self-efficacy, and health status compared with standard care without intervention and appear to be as effective as other cognitive-behavioral interventions (Barlow et al. 2002). Given the time-consuming nature of many interventions and the involvement of the cost of health professionals’ time and delivering interventions, self-management approaches are relatively cost-effective. There is a need to tailor self-management approaches to different age groups in different cultural settings and even extend them to include carers and family members using the Internet (Barlow et al. 2002) to reduce the burden of healthcare services. Selfmanagement is a holistic and multicomponent approach including providing
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information, drug management, symptom management, dealing with psychosocial consequences, lifestyle (including diet and exercise), social support, communication, and other strategies (Barlow et al. 2002).
Integration of CAM and Self-Management The maintenance of health and the management of illness may be viewed as being the responsibility of the individual; thus the concept of self-management is integral to both the maintenance of wellness and the management of illness (Grady and Gough 2014). Responsibility for day-to-day disease management gradually shifts to the individuals from healthcare professionals (Barlow et al. 2002). Self-management education needs to become a central mission of health education and be integrated with all other services such as medical care and health promotion. The self-management may be regarded as the efforts to maintain wellness and control symptoms and illness progression for primary, secondary, and tertiary prevention (Grady and Gough 2014). Traditionally, self-management has been linked to secondary and tertiary prevention to strengthening the healthcare system by improving the quality of care and controlling cost (Grady and Gough 2014). The enhancement of self-efficacy was found to be associated with changes in health behavior and future health status (Lorig and Holman 2003). Furthermore, self-management may serve as a model for all levels of prevention and wellness to engaging people to actively stay healthy and avoid illness through making choices and changing their own health behavior (Grady and Gough 2014). In a review paper, among the 145 studies extracted, the majority of self-management focuses on asthma (n = 66), followed by diabetes (n = 18) and arthritis (n = 17). There were only five papers that implemented self-management in mental illness, which included depression (n = 1), psychiatric disorder (n = 1), and schizophrenia (n = 3) (Barlow et al. 2002). Collectively, self-management interventions aim to increase participants’ knowledge, self-efficacy, and use of self-management behaviors. These interventions have been shown to have a beneficial effect on the well-being of participants. The findings have shown an improvement in mood, particularly depression (Barlow et al. 2002). In conclusion, self-management in mental health and mental illness is beneficial. Mindfulness-based interventions as CAM merged as a self-management strategy. Daily mindful meditation practice has been shown to be safe, portable, and costeffective and can be recommended as an adjunct to standard care as self-management strategy for mental illness such as major depressive disorder and post-traumatic stress disorder (PTSD). After an 8-week course, participants are encouraged to adopt meditation practice as a lifestyle change and self-care strategy (Khusid and Vythilingam 2016). When patients are committed to adopting mindfulness meditation as a health behavior change, it can become a powerful self-care tool that encourages individuals to actively engage in enhancing their mental health (Khusid and Vythilingam 2016). Mindfulness-based cognitive therapy (MBCT) learned through the Internet or telephone and home mindfulness meditation practice also showed some
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Spirit
Body
Body scan, breathing and meditation, mindful body exercise, massage, therapeutic touch.
Meaning of life, harmony with nature, personal transcendence, forgiveness, compassion.
Mind Emotional expression, social support, appreciation, self-affirmation, letting go.
Fig. 1 Body-mind-spirit transformation
preliminary promising results in reducing depressive symptoms (Khusid and Vythilingam 2016). More information on mindfulness can be found in ▶ Chap. 15, “Application of Mindfulness-Based Approaches in the Context of Social Work.”
BMS and Innate Healing Different from most existing problem-based psychotherapy interventions, the BMS model incorporates a strength-focused and growth-oriented perspective, goes beyond coping and symptom reduction, and aims for transcendence to a higher level of connectedness within the self, with others, and with the universe. The essence of the body-mind-spirit model is graphically represented in Fig. 1.
Body Processes and Emotional Healing Body scan: the healing process can start with getting in touch with the body and connecting it with the emotions. Body scanning is a useful technique. In a relaxed and mindful state, clients are instructed to use mental imagery to scan through their whole body to check if any part is experiencing pain or discomfort. They are then encouraged to talk about the physical pain and discomfort and explore the relationship with their emotions. The process enhances the clients’ awareness of their physical discomfort and emotions and the connection between them. Unlike Western medicine, Chinese medicine does not classify emotions as good (e.g., happiness) or bad (e.g., sadness): it sees all emotions as natural and necessary.
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Adopting a systemic perspective, which is similar to the modern systems theory, Chinese medicine regards health as a state of harmonious dynamic equilibrium among the different emotions, maintained by the facilitative and repressive forces between the emotions. A fully healthy person should be able to experience their emotions fully, including those emotions such as sadness, anger, and fear, which may be labeled as negative emotions in some Western literature. Proper expression of emotions in a balanced way is very important for the health. Through the meridians, the emotions and different systems of the body are connected into an integrated whole, but both an excess and a lack of certain emotions will upset the balance and hence affect health. For example, excessive anger and fear damages the bodily functions and general health. Through the liver meridian, excessive anger brings about disturbances to various parts of the body, most notably the head and chest, resulting in headache, dizziness, elevated blood pressure, and feeling of congestion or pain in the chest area. Through the kidney meridian, excessive anger brings about genitourinary dysfunctions. This systemic perspective on emotions is a reflection of the deep influence of the Yin-Yang Theory and the Five Elements Theory on Chinese medicine.
The Power of the Mind and Spirit The corresponding Chinese word for mind is Xin, which literally means “the heart.” We believe that the power of the heart is more important and ultimately greater than the power of the brain. When the heart is dead, a person cannot be truly living. Effective intervention must include the rekindling of the heart as a goal. As such, the concept of mind (Xin) is a complex construct that encompasses will power, vision, hope, emotion, human sensitivity, passion, cognition, or the whole of humanity in one word. Techniques for mobilizing the power of the mind include mindfulness practices, meditation, letting go, forgiveness, compassion, and loving kindness. The process of transformation in our BMS model involves five “As” – three of them (acknowledge vulnerability, accept adversity and the unpredictability of life, and activate self-healing capacity) are related to the mind and two (affirmation and appreciation) are related to the spirit. The mind concerns adaptive coping strategies, whereas the spirit concerns wisdom in life. Acknowledge vulnerability: influenced by Buddhist and Christian teaching, we help clients normalize suffering as part of life. By acknowledging our own vulnerability, we can face pain and loss with tranquility. Trauma and loss can result in ultimate growth. Accept adversity and the unpredictability of life: acceptance is different from resignation. Resignation represents the assumption of the role of victim, but acceptance is the peaceful understanding of the reality of a situation. “Acceptance is not a passive surrendering, but rather an act of taking responsibility; it is not blaming oneself for having the disease, but working energetically to restore one’s system to balance” (Abramson 2003, p. 20). Acceptance means fully embracing whatever is in the present. The yin-yang metaphor inspires us to understand that gains and losses are embedded in each other. People who embrace loss are more ready to appreciate gain.
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Activate one’s self-healing capacity: by letting go of intense emotional attachment, we can free our energy for self-healing. Buddhism teaches people not to cling to things or persons. Frustrations can be caused by unmet expectations. Letting go and genuine forgiveness are the ultimate solutions to our emotional problems. In our experience of working with Chinese cancer patients, bereaved widows, and divorced women, we have found that clients’ self-healing power is largely ignited from their determination to let go of the victim role and to maximize their own healing capacity. We invite our clients to read aloud affirmation statements like “I am determined to let go of the past and to live a new, independent life”; and “I choose to love myself and be the master of my own life.” If an individual can move through and beyond illness patterns and discover the inner self, they can regain a state of well-being. Among persons suffering from depression, clinging is common and is often a core cause of the mental disorder. Clinging can be attached to internal or external objects and can be related to the past, present, or future. Examples are not able to let go of what has been lost and preoccupation with certain desires or hatreds. Transcending clinging is the critical step for activating one’s self-healing capacity and moving towards full recovery.
Affirming Spirituality and a New Appreciation of Life The remaining two As are affirmation and appreciation: affirming the meaning of life and a renewed appreciation of life through suffering help recreate the oncedisrupted harmony of body, mind, and spirit. Traumatic events may shatter a person’s world view and self-identity (Fife 1994; Janoff-Bulman and Berg 1998). The cognitive reappraisal of a traumatic event, the search for meaning, and the integration of the experience into one’s life helps people to adapt to the loss brought about by the event (Fife 1994; Janoff-Bulman and Berg 1998; Lazarus and Folkman 1984; Taylor 1983). The reconstruction of meaning after loss involves the process of “sensemaking,” “benefit finding,” and “identity reconstruction” (Davies et al. 1998; Neimeyer 2000, 2002). We engage clients in a process of re-storying their lives to develop a more coherent narrative of their life experiences. We help them to discover the positive in suffering. The BMS model uses the concepts of impermanence and the unpredictability of life from Buddhism and Daoism to help patients to reconstruct their experience of illness or loss and make sense of their misery. Our recent study of cancer survivors confirms our belief that life affirmation (e.g., “I can face life challenges with a peaceful mind”) and appreciation of life (e.g., “I enjoy life every day”) are two important factors constituting spirituality (Chan et al. 2004). While Western forms of therapy largely work to help patients better master, control, and overcome their problems, Buddhist teaching encourages the individual to detach and let go so that they can flow with the here-and-now and the “momentby-moment experience,” instead of being controlled by, or preoccupied with, desire. Paradoxically, one gains control by letting go of control. By practicing emotional detachment and letting go, people find it easier to forgive. Forgiveness is the ultimate solution to emotional disharmony.
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Importance for Social Work to Integrate Mainstream psychotherapy focuses on the psychosocial domain, emotions, behavior, cognition, and interpersonal relationships. As influenced by the evidence-based movement of conventional medicine, evidence-based practice is now a widely recognized goal in mainstream psychotherapy. However, many interventions are narrowly focused on a particular aspect of the client. Despite obtaining evidence of the efficacy of a measure in a controlled experimental situation, knowledge of its general application in a real clinical situation is often scant. A common fault in social work intervention is that of reductionism and a compartmentalized view of the total well-being of individuals and groups. Fragmentation of services tends to narrow the focus of the helping professionals within a certain mandated scope of interventions. Such an approach fails to address the multidimensional and interconnected nature of the problems or to bring about meaningful benefits to the clients’ lives. However, there is growing evidence that the body, mind, and spirit are interconnected. This evidence includes research findings in diverse areas such as biofeedback, psychoneuroimmunology (Ader et al. 1991), holistic body work such as Tai Chi (Cheng and Macfarlane 2001) and Yoga (Manocha et al. 2002; Panjwani et al. 2000), mindfulness training (Baer 2003; Kabat-Zinn 2003), and spirituality in clinical care (Culliford 2002). There is a strong indication that health professionals should incorporate bodily and spiritual dimensions in their interventions so that they may respond to their clients in an integrated way.
Social Work Intervention to Embrace Holistic Well-Being Inspired by the conceptual framework of these ancient theories, a social worker in the role of therapist may stimulate clients to explore their own body-emotion connections. The role of mental health social workers is to enhance the person’s social functioning, promote recovery and resilience, and aim to reduce stigma through therapeutic interventions and the mobilization of services and supports (Australia Association of Social Worker 2015). The scope of social work intervention is extremely wide, ranging from the remedial to the developmental, and even transcendental. We can conceptualize it as a four-level model as shown in Table 1. 1. Personal safety: in cases where personal safety is under imminent threat, the primary objective of intervention is to ensure safety. A social worker’s most prominent role is as an official agent who performs duties in line with their position and, if necessary, exercises the relevant statutory power. Common examples of such case scenarios are child abuse, domestic violence, dealing with people with mental disorders in an unstable mental condition, and negligence in caring for people with mental incapacitation. Crisis intervention skills are often necessary in these situations. 2. Basic needs and physical illnesses: when basic needs are unmet and physical illnesses untreated, the primary objective of intervention is to ensure that the necessary resources are mobilized to address those needs. These resources can include medical services, rehabilitation services, and other tangible support. A
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Table 1 Scope of social work intervention Scope of intervention 1. Personal safety
2. Basic needs and physical illnesses
3.Psychosocial distresses and pathology
4. Holistic wellbeing
Key intervention strategy Exercising positional duties and statutory power in relation to: Child abuse Domestic violence People with mental disorders in an unstable mental condition Negligence in caring for people with mental incapacitation Victims of crime/violence Crisis intervention Mobilization of resources Medical service Rehabilitation service Support for the underprivileged or disabled Problem-solving and a task-centered approach Psychosocial therapies Individual therapies Marital and family therapies Group therapies Responding to clients as an integrated whole Achieving body-mind-spirit harmony The SMART principle Strength focused Meaning reconstruction Affirmation of self Resilience training Transformation
Social workers’ primary roles Official agent in implementation of welfare legislation
Case and care manager
Counselor and therapist
Coach and counselor
social worker’s most prominent role in such cases is that of case and care manager. Competence in case management is required in such situations. 3. Psychosocial distresses and pathology: in cases where individuals or families are experiencing distress, the primary objective of intervention is one of problemsolving and, if appropriate, treatment of the underlying psychosocial pathology. A social worker’s most prominent role in such cases is that of counselor and therapist. Competence in problem-solving training, task-centered approaches, and various counseling and psychotherapy approaches is required. 4. Holistic well-being: many social workers may see this term as being non-specific. “Holistic” refers to the integration of the whole in terms of the physical (body), the cognitive and emotional (mind), and peace of mind and life meaning (spirit). “Well-being” refers to a positive state and growth, rather than pathological problems. The focus of intervention at this level is on strength rather than on problems and on the whole person rather than a narrow interpretation of cognition
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or behavior. The primary objective is to promote growth and transformation through achieving mind-body-spirit harmony. A social worker’s most prominent role here is as a coach and counselor. Most social work textbooks cover levels 1–3 very well, but few of them provide information about specific intervention at level 4. Traditionally social workers are shy of working in the bodily and spiritual domains. Similarly, enquiring into the spiritual domain does not require a social worker to have had intensive training in a monastery deep in the mountain for tens of years. As spirituality is a natural part of every person, reflection on and sharing of spiritual issues should not be too alien to social workers or their clients. Reflections on growth through pain and the search for a meaning of life are core spirituality interventions. In particular, we will introduce the body-mind-spirit approach in the social work intervention (Chan et al. 2001b). Many social workers work under immense pressure and spend most of their time struggling with the problems of their clients at levels 1 and 2. Some more fortunate individuals can also afford to play a role at level 3. Level 4 is often regarded as something too impractical, idealistic, and remote. Such a concept is incorrect. Strength- and transformation-oriented intervention can speed up the recovery process and shorten the entanglement in problem-focused interventions. As is shown in the following sections, it is not as difficult as it seems to be and can be incorporated into the intervention process early on. Intervention is about inducing change in the client. Change can involve the reduction or extinction of the negative or the increase or synthesis of the positive. Research and clinical experience suggest that the former is far more difficult to achieve than the latter. A good example is that many people found establishing a new good habit much easier than getting rid of an old bad habit. It is easy to understand. The negative factors, including emotional, behavioral, or cognitive reactions, have usually been in existence for years and have become a habit of the client and a part of their whole system. Taking away the negatives will trigger homeostatic forces to restore the old pattern. By contrast, inducing positives is often rewarding, selfreinforcing, and reinforced by the system. In return, in making positive changes, clients will gain more capacity to cope or live with the negatives. Therefore, adding level 4 intervention at an early stage can help to free social workers from the entanglement of intervention at levels 1–3. Through fostering growth and transformation, BMS intervention may achieve the social work ideal of “helping people to help themselves.”
Basic Concepts in TCM The Yin-Yang Theory and the Five Elements Theory were first described in the ancient book Yi Jing (also known as I Ching, The Book of Changes, written around 7 BC) and had great influence in the conceptualization of the original theories of Chinese medicine. Both theories propose a universal model to understand the pattern of change of all things in the world, from the microscopic to celestial phenomena.
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Firstly, they propose that all things in the world can be classified by broad categorical systems – the Yin-Yang System or the Five Elements System. Secondly, they propose that there is a universal pattern of interactions and changes among these broad categories. Thirdly, by applying the knowledge of the universal model, one can understand the pattern of interactions and changes between anything, for example, the relationships between the different bodily organs.
The Yin-Yang Theory Yin and yang are opposites and are a mutually facilitating but are also a mutually repressing pair. Yin signifies substance, stillness, storage, darkness, and softness. Yang signifies energy, movement, transporting, brightness, and hardness. Examples of such yin-yang pairs are earth and sky, night and day, moon and sun, winter and summer, and woman and man. The Yin-Yang Theory proposes a universal model depicting the pattern of interactions and changes within a yin-yang pair. Some core relationships are as follows. 1. Yin and yang are mutually facilitating as well as mutually repressing. These two opposite forces together maintain a dynamic equilibrium. 2. Yin and yang are mutually dependent. They cannot flourish on their own. 3. Yin and yang are relative but not absolute concepts. For example, among a group of yin subjects, there can be subjects that are relatively yang, as well as subjects that are extremely yin. 4. At either extreme of yin or yang, there can be sudden qualitative change, i.e., extreme yin changes to yang or extreme yang changes to yin. Yin and yang working in a harmonious dynamic equilibrium is considered to be fundamental to good health. This classic yin-yang logo (Fig. 2) shows the mutually embedded nature, dynamic interflow, and dual metamorphosis of yin and yang.
Fig. 2 Yi-Yang logo
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Fig. 3 An integrated whole – body-mind-spirit interconnectedness
Wood
Water
Fire
Metal Note:
Earth Facilitating force Repressing force
The Five Elements Theory The Five Elements Theory proposes the classification of everything into five broad categories: wood, fire, earth, metal, and water (Fig. 3). Each category is representative of a cluster of characteristics. For example, wood stands for growth, blossom, stretching, and decongestion. Two normal forces – the facilitating force and the repressing force – work on each other among the elements. Wood facilitates fire, fire facilitates earth, earth facilitates metal, metal facilitates water, and water facilitates wood. Meanwhile, wood represses earth, fire represses metal, earth represses water, metal represses wood, and water represses fire. Each pair of forces working together maintains the dynamic equilibrium among the five elements and prevents any element from becoming “hypo” or “hyper.” Such a state of equilibrium is considered to be essential for good health.
BMS Interventions The Smart Principle The mind-body-spirit model (Chan et al. 2001c) is a multidimensional and holistic approach that can be used to guide social work intervention. Its uniqueness can be summarized by the SMART principle. The SMART principle is consistent with the theoretical shift from psychosocial pathology to positive psychology and empowerment interventions. The five SMART components are as follows. Strength focused: intervention should focus on identifying, assuring, and enhancing the strength of the clients. By actively identifying strength, a social worker can truly respect the healing capacity of their clients. Meaning reconstruction: the therapist may help their clients to emerge from the victim role and to obtain meaning from and transcend the suffering. The ability to find meaning in suffering can be a motivating force for perseverance and the generation of healing strength. Affirmative and appreciative: the therapist helps the client to affirm and appreciate themselves as well as the external world of both their social and natural
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environments. The process of downward comparison by the clients can also help them to mobilize energy to help other people. Resilience: this is not only about coping ability but also about the ability to acknowledge vulnerability, accept adversity and unpredictability, recognize impermanence, and let go. Transformation: this is a state of body-mind-spirit harmony that enables a person to live fully and completely. With transformation, individuals can develop a personal capacity of self-sufficiency in life and are able to formulate selfless goals to help other people and to collectively benefit society.
One-Second Techniques The bodily processes that are highlighted in this model are not necessarily very complicated. Inspired by traditional Chinese holistic health practices, Chan (2001) developed one-second techniques that are simple to learn for counselors and easy to follow for clients. Dialogue Box 1 provides some examples of these interesting techniques. By working with the body, the client can develop a sense of control because they are doing something to help themselves physically and emotionally. The mood changes as the clients focus on the physical movements and massage. Tai Chi and Qigong practice can also be used as a psychological distraction for clients who are troubled by an obsessive indulgence in pain. Box 1 One-Second Techniques
Techniques of the Hands Health is in our hands. According to Chinese medicine, all the 12 meridians pass through the hands, feet, and ears. Massage of the hands, feet, and ears can activate our self-healing capacity. 1. Palm rubbing: with palms facing one another, fingers to fingers, palm to palm, rub the palms and fingers hard until they are warm. With palms slightly cupping and palms facing each other about 6–8 in apart, close your eyes and feel the tingling Qi (invisible energy that circulates around our body through the meridians) sensation between the palms. 2. Healing hands: rub the hand until they are warm and then place the hands over the body parts that feel pain or discomfort. Pass the heat and healing energies of the hands onto the part of the body that needs nurture and love. Our hands have healing abilities which we do not utilize effectively. Put the hands on the abdomen when going to bed, imagining calming and soothing energies going into the body and go to sleep with such comforting energies. 3. Clapping Qigong: for people who are prepared to work much harder on their hands, the clapping Qigong is the simple single technique that one can try. With fingers and palms facing each other, hold the fingers upward with palms in front of the chest like hands folded in prayer. Open the palms to shoulder width and make loud forceful claps. The hands should feel the (continued)
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Box 1 (continued)
pain and may look blue for the first 2 weeks of practice. Do this for 5 min, three times a day for effective results. For people with acute grief or extreme anger, do it for half an hour twice every day. 4. Open and close fingers: both hands on both sides of the body form a straight line with the shoulders. With some force, stretch all the fingers out and fold them back into a fist and then stretch out again. Imagine that there is dirt on the tips of your nails, and while stretching your fingers, try to discard the dirt. Do this 50 times twice a day. 5. Roll the wrists with hands like a lotus flower: there are acupuncture points along the wrist which can be calming and stabilize heartbeat. Roll the wrists in big circles so as to stimulate the acupuncture points. Do the rolling of the wrists 50 times twice a day. These are examples of one-second techniques taken from Chan (2001). An Eastern Body-Mind-Spirit Approach – A Training Manual with OneSecond Techniques. Hong Kong: Department of Social Work & Social Administration, The University of Hong Kong. There are techniques of the ears, eyes, mouth, and feet in Chan’s book.
Acupressure and light massage: acupuncture and tuina (therapeutic massage) were originally conceived based on the meridian theory of Chinese medicine. They aim to manipulate the flow of Qi in the meridian system so as to restore the state of healthy balance. There is evidence that acupuncture and tuina are effective for a number of conditions such as insomnia, depression, migraine, pains, and perimenstrual problems. For safety reasons, acupuncture and tuina need to be administered by qualified personnel. For social work intervention, acupressure and light massage are more appropriate alternatives. Chan (2001) simplified these practices into one-second techniques. Mastery of these techniques can help clients regain a sense of control over both the body and the mind. Prescribing acupressure and light massage to couples or families can help to enhance marital and family relationships, as massaging one another is a way of communicating and expressing concern and love. Sometimes it can work quicker and better than words.
A Simplified BMS Practice: Qigong Tai Chi, Qigong, and Yoga are good examples of this type of body-mind-spirit exercise. Through mindful movement and breathing, the clients get in touch with their true total being and develop an appreciation of themselves and their environment. Simplified Tai Chi, Qigong, and Yoga are practical options for use in counseling work. If these exercises are practiced in a group, they can provide additional benefits of social support. Breathing can be used as a powerful tool to bring stability to the body and mind. Mindful breathing helps us get in touch with our deep
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emotions, whether they are feelings of pain, fear, anger, joy, or contentment. In deep breathing meditation, one moves to a state of total concentration and consciousness. People in a state of supreme consciousness are able to connect with their internal self – body, mind, and spirit – and the outer world – the social and natural environment. During breathing meditation practice, a therapist may verbally guide clients to achieve harmony within themselves and with the external world. Values such as appreciation, self-affirmation, forgiveness, and compassion can be cultivated in clients during this practice. Breathing exercises do not necessarily have to be practiced while the body is still but can be practiced along with movement and mental imagery. As one of body-mind-spirit practices, Qigong is an ideal and efficient way of cultivating Qi to maintain and heal the body, mind, and spirit and achieve optimal health, well-being, and spiritual cultivation (Manek and Lin 2012). Qigong combines two parts: “Qi” is the fundamental “vital energy” or “dynamic force” in the entire universe and all living organism; and “Gong” means the skill of cultivating, regulating, and harnessing (strengthening and directing) “Qi’ (the vital energy) for general self-preservation and health, healing, longevity, and particularly spiritual development (Lee and Lei 1999; Manek and Lin 2012). Qigong can keep the equilibrium between yin and yang in the body and is helpful both physical and mental health. Qigong is very simple and easy to learn. Anyone can practice it anytime and anywhere. It does not require any facility and special location and only requires low demands either physically or cognitively. It is suitable for all ages including the elderly and people with chronic illness.
BMS and Qigong: Research and Application in Hong Kong Since 2009, in addition to BMS therapy, our team also has adopted Qigong as an alternative therapy and self-management skills in the persons with chronic illness such as chronic fatigue and sleep disturbances with anxiety and depressive symptoms. Our findings are very promising, which showed Qigong not only reduces physical and mental fatigue symptoms and alleviates anxiety and depressive symptoms but also improves quality of sleep, mental health-related quality of life, and even spirituality (Chan et al. 2011b, 2013a, 2014; Ho et al. 2012; Li et al. 2015; Ng et al. 2013). Qigong has been shown to shape body, mind, and spiritual health (Chan et al. 2013b). An effective practice regimen was identified as at least 3 times per week and at least 30 min per session (Chan et al. 2012b). Adopting relevant objective biomarkers, we further explored the underlying mechanism and demonstrated that Qigong may improve the telomerase activity (antiaging effects) (Ho et al. 2012) and reduce the adiponectin level in chronic fatigue person with depressive symptoms (antidepressive effects) (Chan et al. 2017c) and salivary cortisol level (Ho et al. 2013). Besides that, BMS therapy and Qigong were also found to reduce interleukin-1 beta and interleukin-6 (which are proinflammatory cytokines) among persons with mid and moderate depressive symptoms and sleep disturbances (Chan et al. 2017c, b). An increasing number of studies have demonstrated the effectiveness of Qigong exercise in mood regulation and improvement of psychological well-being (Yeung et
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al. 2018). The effect of Qigong has been found to be comparable with that of cognitive-behavioral therapy in significantly reducing depressive symptoms among outpatients with clinical depression (Chan et al. 2012a) and adults with depressive symptoms (Chan et al. 2011a). Given the dyadic associations between psychological distress and sleep disturbance among patients with cancer and their family caregiver, especially spouses (Chan et al. 2016), BMS and Qigong exercise as self-management approaches were adopted in psycho-oncological area and even extended to include the patient-caregiver dyads to manage their negative symptoms and improve their quality of life (Lau et al. 2018; Chan et al. 2013c). Based on the above evidence for Qigong exercise, Qigong practice as a healthy lifestyle was introduced to person with chronic fatigue in a nongovernmental organization (NGO) in Hong Kong. In this knowledge exchange activity in The University of Hong Kong, “train the trainer” course was conducted to train more Qigong trainers to lead daily Qigong practice in the workplace to promote holistic well-being. A web-based self-health management system (https://learning.hku.hk/ qigong/) was developed to help the participants and the public to do the selfassessment for self-monitoring purpose. In the future, Qigong will be offered to individuals with mental illness who are interested in self-management to decrease negative symptoms and improve mental health. Online health approaches in helping individuals to learn Qigong practice as self-management skills are needed. Social workers have an important role to play in health education and the promotion of the self-management of mental health and mental disorders. This can be achieved through advocacy, mass education, and community intervention. To adopt evidence-based practice and self-management skills using a holistic approach in social work intervention, social workers need to master practice research skills and continuously keep up to date with the latest developments in evidence-based interventions, regardless of whether they are originated from within social work or from other disciplines. As roles of the caring professions merge, social workers can maintain role differentiation by asserting basic social work values and principles. In a multidisciplinary team, social workers can be the champion for a holistic view in understanding a person and an empowerment approach in working with our service users.
Conclusions The chapter introduced the concept of holistic intervention and proposed an Eastern BMS approach in mental health and mental illness. The BMS approach facilitates growth and aims to foster a harmonious equilibrium within a client and between the client and his/her social and natural environment. This strengthoriented holistic approach can speed up recovery and help shorten the entanglement in problem-focused intervention. Based on our research evidence and empirical application, Qigong is a simple, efficient BMS practice, which can be adopted as a healthy lifestyle and behavior in the self-management of mental health and mental illness.
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In the future, in addition to physiological and psychosocial outcomes, longer-term follow-ups and the assessment of cost-effectiveness are needed in the evaluation of self-management interventions. Use of technologies, such as the web-based systems or apps on cell phone, should be incorporated into the self-management of mental health and chronic mental illness. There is also a need to train more health professionals to ensure that patients can truly master the self-management skills (e.g., BMS and Qigong practice), and that the new health behaviors are sustainable over time.
Cross-References ▶ Application of Mindfulness-Based Approaches in the Context of Social Work
References Abramson RJ (2003) The unity of mind, body, and spirit: a five element view of cancer. Adv Mind Body Med 19(2):20–21 Ader F, Felten DL, Cohen N (1991) Psychoneuroimmunology. Academic, San Diego Australia Association of Social Worker (2015) Scope of social work practice: social work in mental health. Retrieved from https://www.aasw.asn.au/document/item/8309 Baer RA (2003) Mindfulness training as a clinical intervention: a conceptual and empirical review. Clin Psychol Sci Pract 10(2):125–143 Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J (2002) Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 48(2):177–187 Chan CLW (2001) An eastern body-mind-Spirit approach – a training manual with one-second techniques. Department of Social Work & Social Administration, The University of Hong Kong, Hong Kong Chan CLW, Law MYY, Yeung PPY (2000) An empowerment group for Chinese cancer patients in Hong Kong. In: Chan CLW, Fielding R (eds) Psychosocial Oncology & Palliative Care in Hong Kong: the first decade. Hong Kong University Press, Hong Kong Chan CLW, Chan Y, Lou VWQ (2001a) Evaluating an empowerment group for divorced Chinese women in Hong Kong. Res Soc Work Pract 12:558–569 Chan CLW, Ho PSY, Chow E (2001b) A body-mind-spirit model in health: an eastern approach. Soc Work Health Care 34(3/4):261–282 Chan CLW, Ho PSY, Chow E (2001c) A body-mind-spirit model in health: an eastern approach. Soc Work Health Care 34(3/4):261–282 Chan HY, Chan CLW, Ho RTH, Ng SM, Ho SMY, Sham JST, Chow LWC (2004) Tallying the pains and gains: development of spiritual outlook inventory for cancer survivor. Manuscript submitted for publication Chan AS, Cheung MC, Tsui WJ, Sze SL, Shi D (2011a) Dejian mind-body intervention on depressive mood of community-dwelling adults: a randomized controlled trial. Evid Based Complement Alternat Med 2011:Article ID 473961. https://doi.org/10.1093/ecam/nep1043 Chan JSM, Yuen LP, Leung E, Wong V, Ho RTH, Chan CLW (2011b) Efficacy of qigong in the treatment of chronic fatigue syndrome: a prospective randomized controlled trial. Ann Behav Med 41(S1):s224, D-127 Chan AS, Wong QY, Sze SL, Kwong PP, Han YM, Cheung MC (2012a) A Chinese Chan-based mind-body intervention for patients with depression. J Affect Disord 142(1–3):283–289. https:// doi.org/10.1016/j.jad.2012.1005.1018
7
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Chan JSM, Yuen LP, Chan HY, Ho RTH, Sham JST, Chan CLW (2012b) Effects of Qigong exercise and its dose-response relationship in reducing fatigue for patients with chronic fatigue syndrome: a randomized waitlist-controlled trial. Ann Behav Med 43(S1):s282. Oral presentation at the 23rd annual meeting & scientific sessions of society of behavioral medicine and was recognized as a meritorious student abstract, April 11–14, 2012, New Orleans Chan JSM, Ho RTH, Wang CW, Yuen LP, Sham JST, Chan CLW (2013a) Effects of qigong exercise on fatigue, anxiety, and depressive symptoms of patients with chronic fatigue syndrome-like illness: a randomized controlled trial. Evid Based Complement Alternat Med 2013:Article ID 485341), 8 pages. https://doi.org/10.1155/2013/485341 Chan JSM, Ng SM, Ho RTH, Ziea ETC, Ng BFL, Chan CLW (2013b) Does qigong shape body, mind and spiritual health for patients with chronic fatigue syndrome (CFS) in a RCT? Ann Behav Med 45(S2):s278, D-085 Chan THY, Yuen LP, Lee T, Chan JSM, Sham JST, Chan CLW (2013c) The effects of qigong on quality of life and cognitive functioning in people with cancer. In: Presented as an abstract at annual meeting of Society of Behavioral Health (D-176K) Chan JSM, Ho RTH, Chung KF, Wang CW, Yao TJ, Ng SM, Chan CLW (2014) Qigong exercise alleviates fatigue, anxiety, and depressive symptoms, improves sleep quality, and shortens sleep latency in persons with chronic fatigue syndrome-like illness. Evid Based Complement Alternat Med 2014:Article ID 106048), 10 pages. https://doi.org/10.1155/2014/106048 Chan JSM, Yu NX, Chow AYM, Chan CLW, Chung KF, Ho RTH, . . . Chan CHY (2016) Dyadic associations between psychological distress and sleep disturbance among Chinese patients with cancer and their spouses. Psychooncology 26(6):856–861. https://doi.org/10.1002/pon.4240 Chan CHY, Ji XW, Chan JSM, Lau BHP, So KF, Li A, . . . Chan CLW (2017a) Effects of the integrative mind-body intervention on depression, sleep disturbances and plasma IL-6. Psychother Psychosom 86(1):54–56 Chan JSM, Li A, Chan CLW, So KF, Chen JP, Ji X, . . . Ng SM (2017b) Qigong exercise improved quality of sleep and reduced interleukin-1 beta and interleukin-6 among persons with depressive symptoms and sleep disturbances: a randomized controlled trial. https://doi.org/10.1093/sleepj/ zsx050.1086 Chan JSM, Li A, Ng SM, Ho RTH, Xu A, Yao TJ, . . . Chan CLW (2017c) Adiponectin potentially contributes to the Antidepressive effects of Baduanjin qigong exercise in women with chronic fatigue syndrome-like illness. Cell Transplant 26(3):493–501. https://doi.org/10.3727/ 096368916X096694238 Cheng WK, Macfarlane DJ (2001) Effects of a modified Tai Chi programme on the physical and psychological wellbeing of elderly Chinese. In: Paper presented at the the 2nd international symposium on Chinese elderly, Shanghai Cuijpers P, Clignet F, van Meijel B, van Straten A, Li J, Andersson G (2011) Psychological treatment of depression in inpatients: a systematic review and meta-analysis. Clin Psychol Rev 31(3):353–360. https://doi.org/10.1016/j.cpr.2011.1001.1002 Culliford L (2002) Spirituality and clinical care. Br Med J 325:1434–1435 Davies CG, Nolen-Hoeksema S, Larson J (1998) Making sense of loss and benefiting from the experience: two construals of meaning. J Pers Soc Psychol 75(2):561–574 de Jonge P, Wardenaar KJ, Hoenders HR et al (2017) Complementary and alternative medicine contacts by persons with mental disorders in 25 countries: results from the world mental health surveys. Epidemiol Psychiatr Sci 27:1–16. https://doi.org/10.1017/S2045796017000774 Fife BL (1994) The conceptualization of meaning in illness. Soc Sci Med 38(2):309–316 Gourgouvelis J, Yielder P, Clarke ST, Behbahani H, Murphy BA (2018) Exercise leads to better clinical outcomes in those receiving medication plus cognitive behavioral therapy for major depressive disorder. Front Psych 9(37). https://doi.org/10.3389/fpsyt.2018.00037. eCollection 02018 Grady PA, Gough LL (2014) Self-management: a comprehensive approach to management of chronic conditions. Am J Public Health 104(8):e25–e31. https://doi.org/10.2105/ AJPH.2014.302041 Herrman H (2001) The need for mental health promotion. Aust N Z J Psychiatry 35(6):709–715
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Ho RTH, Chan CLW (2002) The effect of eastern psychosocial intervention support group in breast cancer patients in Hong Kong: a pilot study on salivary cortisol, GHQ12 and HADS. In: Paper presented at the 6th psycho-oncology conference, Hong Kong Ho RTH, Chan JSM, Wang CW, Lau BW, So KF, Yuen LP, . . . Chan CLW (2012) A randomized controlled trial of qigong exercise on fatigue symptoms, functioning, and telomerase activity in persons with chronic fatigue or chronic fatigue syndrome. Ann Behav Med, 44(2):160–170. https://doi.org/10.1007/s12160-12012-19381-12166 Ho RTH, Chan JSM, Ng SM, Lau BWM, So KF, Cheung IKM, . . . Chan CLW (2013) The regulation of HPA activity and anti-aging effect of Qigong exercise for patients with chronic fatigue syndrome: telomerase activity and salivary cortisol. In: Poster presentation at the 34th Annual Meeting & Scientific Sessions of the Society of Behavioral Medicine, March 20–23, 2013, San Francisco Jacob N, Coetzee D (2018) Mental illness in the Western Cape Province, South Africa: a review of the burden of disease and healthcare interventions. S Afr Med J 108(3):176–180. https://doi.org/ 10.7196/SAMJ.2018.v7108i7193.12904 Janoff-Bulman R, Berg M (1998) Disillusionment and the creation of values. In: Harvey H (ed) Perspectives on loss. Brunner/Mazel, New York Kabat-Zinn J (2003) Mindfulness-based intervention in context: past, present, and future. Clin Psychol Sci Pract 10(2):144–156 Kemper KJ, Shannon S (2007) Complementary and alternative medicine therapies to promote healthy moods. Pediatr Clin N Am 54(6):901–926 Kemper KJ, Gardiner P, Birdee GS (2013) Use of complementary and alternative medical therapies among youth with mental health concerns. Acad Pediatr 13(6):540–545. https://doi.org/ 10.1016/j.acap.2013.1005.1001 Kessler RC, Soukup J, Davis RB, Foster DF, Wilkey SA, Van Rompay MI, Eisenberg DM (2001) The use of complementary and alternative therapies to treat anxiety and depression in the United States. Am J Psychiatry 158(2):289–294 Khusid M, Vythilingam M (2016) The emerging role of mindfulness meditation as effective selfmanagement strategy, Part 1: clinical implications for depression, post-traumatic stress disorder, and anxiety. Mil Med 181(9):961–968. https://doi.org/10.7205/MILMED-D-7214-00677 Lau BH, Chow AYM, Wong DFK, Chan JSM, Chan CHY, Ho RTH, . . . Chan CLW (2018) Study protocol of a randomized controlled trial comparing integrative body–mind–spirit intervention and cognitive behavioral therapy in fostering quality of life of patients with lung cancer and their family caregivers. J Evid Inf Soc Work 15(3):258–276. https://doi.org/10.1080/ 23761407.23762018.21435325 Lazarus RS, Folkman S (1984) Stress, appraisal, and coping. Springer, New York Lee CT, Lei T (1999) Qigong. In: Jonas WBL, J. S. (eds) Essentials of complementary and alternative medicine. Lippincott Williams & Wilkins, Philadelphia, pp 392–409 Li J, Chan JSM, Chow AYM, Yuen LP, Chan CLW (2015) From body to mind and Spirit: qigong exercise for bereaved persons with chronic fatigue syndrome-like illness. Evid Based Complement Alternat Med 2015:Article ID 631410 Lorig KR, Holman H (2003) Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 26(1):1–7 Manek NJ, Lin C (2012) Qigong. In: Yuan CS, Bieber EJ, Bauer BA (eds) Traditional Chinese medicine. Informa Healthcare, London Manocha R, Marks GB, Kenchington P, Peters D, Salome CM (2002) Sahaja yoga in the management of moderate to severe asthma: a randomized controlled trial. Thorax 57(2):110–115 Neimeyer RA (2000) Searching for the meaning of meaning: grief therapy and the process of reconstruction. Death Stud 24(Issue 6):541–559 Neimeyer RA (2002) Mourning and meaning. Am Behav Sci 46:235–251 Ng SM, Chan JSM, Ho RTH (2013) The effects of qigong exercise on quality of life for persons with chronic fatigue syndrome: a randomized controlled trial. Ann Behav Med 45(S2):s299, D174
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Panjwani U, Selvamurthy W, Singh SH, Gupta HL, Mukhopadhyay S, Thakur L (2000) Effects of Sahaja Yoga meditation on auditory evoked potentials (AEP) and visual contrast sensitivity (VCS) in epileptics. Appl Psychophysiol Biofeedback 25(1):1–12 Taylor S (1983) Adjustment to threatening events: a cognitive theory of adaptation. Am Psychol 38:1161–1173 WHO (2001). Fact sheet: the world health report. Retrieved from https://www.who.int/whr/2001/ media_centre/en/whr01_fact_sheet1_en.pdf Yeung A, Chan JSM, Cheung JC, Zou L (2018) Qigong and Tai-Chi for mood regulation. Focus 16:40–47. https://doi.org/10.1176/appi.focus.20170042
Further Reading Abramson RJ (2003) The unity of mind, body, and spirit: a five-element view of cancer. Adv Mind Body Med 192:20–21 Chan CLW (2001) An eastern body-mind-Spirit approach – a training manual with one-second techniques. Department of Social Work & Social Administration, The University of Hong Kong, Hong Kong Chan CLW, Ho PSY, Chow E (2001) A body-mind-spirit model in health: an eastern approach. Soc Work Health Care 34(3/4):261–282 Chan JSM, Ho RTH, Chung KF, Wang CW, Yao TJ, Ng SM, Chan CLW (2014) Qigong exercise alleviates fatigue, anxiety, and depressive symptoms, improves sleep quality, and shortens sleep latency in persons with chronic fatigue syndrome-like illness. Evid Based Complement Alternat Med 2014:Article ID 106048), 10 pages. https://doi.org/10.1155/2014/106048 Chan JSM, Li A, Ng SM, Ho RTH, Xu A, Yao TJ, . . . Chan CLW (2017) Adiponectin potentially contributes to the antidepressive effects of baduanjin qigong exercise in Women With Chronic Fatigue Syndrome-Like Illness. Cell Transplant 26(3):493–501. https://doi.org/10.3727/ 096368916X096694238 Engel GL (1977) The need for a new medical model: a challenge for biomedicine. Science 196 (4286):129–136 Ho RTH, Chan JSM, Wang CW, Lau BW, So KF, Yuen LP, . . . Chan CLW (2012) A randomized controlled trial of qigong exercise on fatigue symptoms, functioning, and telomerase activity in persons with chronic fatigue or chronic fatigue syndrome. Ann Behav Med 44(2):160–170. https://doi.org/10.1007/s12160-12012-19381-12166 Lee MY, Chan CHY, Chan CLW, Ng SM, Leung PPY (2018) Integrative body-mind-spirit social work for health and mental health: an empirically-based approach to assessment and treatment, 2nd edn. Oxford University Press, New York Ng SM, Leng LL, Ho RTH, Zhang Z, Wang Q (2018) A brief body-mind-spirit group therapy for Chinese medicine stagnation syndrome: a randomized controlled trial. Evid Based Complement Alternat Med:1. https://doi.org/10.1155/2018/8153637
HKU Website on Qigong and Chronic Fatigue https://learning.hku.hk/qigong/
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Assessment and Diagnosis of Mental Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Diagnosis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Providing a Diagnosis to Consumers and Families . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Diagnosis as a Guide to Treatment and Service Access . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Diagnosis as an Aid to Clinical Communication . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Narrow Medical or Brain-Disease Model of Mental Illness: History and Critiques . . . . . . The Biopsychosocial Model of Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Biopsychosocial Model in Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Psychiatric Formulation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Psychiatric Formulation in Mental Health Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Place of Culture within Diagnosis, Formulation, and the Biopsychosocial Model . . . . . . . Beyond the Brain-Disease Model: Other Aetiological Theories of Mental Illness . . . . . . . . . . . . Socio-developmental Influences on the Genesis and Course of Mental Disorder: Accumulating Evidence . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Current Understandings of Causation of Psychiatric Disorders: Gene-Environment Interactions and Epigenetics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
This chapter provides a medical perspective on mental health, including current diagnostic systems which inform and underpin treatment and service delivery. Conceptualizations of mental disorders and their advantages and disadvantages for the assessment and treatment of persons living with mental illness are C. Harvey (*) Department of Psychiatry, University of Melbourne and NorthWestern Mental Health, Melbourne, VIC, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_4
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outlined. Despite its limitations, diagnosis remains central to communicating a shared understanding of disordered experiences and behaviors between consumers, families, and professionals. Talking about a diagnosis in mental health is a skilled task, requiring sensitivity, an individualized approach within a trusting relationship, and sufficient time to address and revisit concerns and misunderstandings. All mental health professionals, including social workers, can helpfully contribute. Current etiological theories in mental health are described, including the medical or brain-disease model of mental illness which has been dominant in recent decades. Although not unique to psychiatry, the biopsychosocial (-cultural) model and psychiatric formulation both help to address some of the challenges of current diagnostic conceptualizations and to counterbalance the medical model. Further, these approaches are consistent with social work theory and practice and contribute strongly to a more person-centered, recovery-oriented approach to mental health practice which recognizes social aspects of human experience. Gene-environment interactions and epigenetics are also consistent with this since they integrate accumulating research evidence about social and environmental contributions to the development and course of mental disorders into etiological theory. They also reaffirm the value of psychosocial interventions and person-in-environment approaches to recovery. The implications of these medical perspectives for social work practice in mental health are elaborated. Keywords
Diagnosis · Biopsychosocial model · Formulation · Medical model · Braindisease model of mental illness · Social factors · Gene-environment interactions · Epigenetics
Introduction This chapter will first focus on the psychiatric contribution to diagnostic systems in mental health. The underpinning conceptualizations of mental disorders and their associated advantages and disadvantages and the challenges and solutions these present for the assessment and treatment of persons living with mental illness will be outlined. The importance of the biopsychosocial (-cultural) model, and of formulation, will be elaborated as a way of addressing some of the challenges represented within current diagnostic conceptualizations. An overview of current etiological theories in mental health will also be provided, including consideration of the medical or brain-disease model of mental illness. Other theories which link with broader conceptualizations of causation and emphasize findings derived from social psychiatric research and recent work in gene-environment interactions and epigenetics will be briefly described. The implications of these medical perspectives on mental health for social work practice will be elaborated. The term “consumer” is used throughout this chapter to refer to people living with mental illness of various types. This is consistent with the widespread use of this
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term in Australian mental health services. However, it is acknowledged that other terms such as “patient,” “client,” or “service user” are in more common usage elsewhere. The term “patient” will also be used if also used in the source material.
Assessment and Diagnosis of Mental Disorders A key contribution of medical practitioners to multidisciplinary mental health practice is their expertise in assessment and diagnosis of mental disorders. Consequently, there is a strong emphasis on knowledge and skills relevant to this area of practice in psychiatric training (Chaplin et al. 2007).
Diagnosis There are many reasons for accurate diagnosis in mental health, although most agree that the major reason is to guide treatment planning (Chaplin et al. 2007; Outram et al. 2014). There are two major diagnostic classification systems in widespread use in mental health internationally: the Diagnostic and Statistical Manual of Mental Disorders (DSM) developed by the American Psychiatric Association (APA) and the International Classification of Diseases (ICD) which is published by the World Health Organization (WHO).
Brief Overview of the Two Major Diagnostic Systems The classification of mental disorders was included in the 8th edition of the ICD in the 1970s (Singh et al. 2012). The ICD is in its 10th edition (World Health Organisation 1992), an edition first endorsed in 1990 and regularly updated but soon to be replaced by version 11. According to the WHO ICD website, the ICD is “used in clinical care and research to define diseases and study disease patterns, as well as manage health care, monitor outcomes and allocate resources.” The ICD provides a common language for the identification of health trends and statistics globally (http://www.who.int/classifications/icd/factsheet/en/). The DSM has existed in various versions since 1952; DSM-5 was released in 2013 (American Psychiatric Association 2013). The APA DSM website describes the DSM as “an authoritative volume that defines and classifies mental disorders in order to improve diagnoses, treatment, and research” (https://www.psychiatry.org/ psychiatrists/practice/dsm). Both these major diagnostic classification systems have drawn on expert scientific advice. The development of earlier versions of the mental disorder classification within ICD was linked to large multicountry epidemiological studies such as the International Pilot Study of Schizophrenia (Leff et al. 1992). In the case of each DSM revision, expertise is drawn from numerous research scientists from psychiatry and other disciplines, clinical care providers, and consumer and family advocates. For DSM-5, relevant research was evaluated by a task force and work groups to
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propose draft criteria which were finally approved after expert advice on the strength of evidence for proposed changes and their clinical utility and public health impact.
Categorical and Dimensional Approaches to Diagnosis A weakness of current diagnoses in mental health is the lack of corresponding evidence about the physiological processes or mechanisms, whereby such conditions develop and progress. So, there is a lack of laboratory tests or other investigations to inform most diagnoses (Nemeroff et al. 2013; Nesse and Stein 2012; Timimi 2014). Therefore, diagnostic classification systems in mental health are symptom-based and rely heavily on the recognition of syndromes – a collection of symptoms (and signs) that occur together as an identifiable condition in a group of people. Psychiatric syndromes are complex phenomena which can potentially be conceptualized and assessed in two contrasting ways: either as categories or as dimensions. Categorical approaches to diagnosis tend to diagnose a case of a disorder at a threshold number of symptoms. For instance, major depressive disorder is diagnosed in DSM-5 when a person reports that five (or more) of nine possible symptoms have been present during the same 2-week period (American Psychiatric Association 2013). The most obvious advantage of this approach is that it assists clinicians to decide who is sufficiently ill to require treatment, by applying this categorical “cut point.” However, observations from both clinical practice and research reveal that there is no separation at this “cut point” between “non-cases” and “cases” of disorder, as expected within a categorical model of diagnosis; in other words, a number of people score just below the threshold for disorder (“subthreshold cases”). Therefore, “zones of rarity” between mental disorders which indicate clear separations between each syndrome are rarely observed, and it is difficult to draw clear boundaries between many disorders and normality (Nesse and Stein 2012; O’Donovan and Owen 2016). These observations fit better with a dimensional approach to diagnosis (described more fully below). Categorical diagnoses are arguably most valuable for homogeneous disorders, for example, diagnoses where symptom profiles and severity are similar, where etiological factors are shared, and where categorical diagnosis guides treatment with some accuracy (Macneil et al. 2012). However, few psychiatric disorders match this description (Nesse and Stein 2012; O’Donovan and Owen 2016). As these and other authors have argued, two individuals with major depression may have quite different symptom profiles and severity. Conversely, symptoms such as auditory hallucinations can be shared across several diagnoses, for example, schizophrenia and mania with psychotic features. Further, phenomena as diverse as mood and personality disorders, psychoses, and anxiety disorders can be associated with varied etiological factors, ranging from genetic to environmental. These may include trauma, personality styles, and interpersonal stressors, with each factor playing a greater or lesser role for each person (Macneil et al. 2012). Thus, a categorical approach is not only a less than perfect fit for the observed phenomena but also has the added disadvantage that it may lead clinicians to overlook the complexity and heterogeneity inherent in an individual’s symptomatology or within the etiological factors for their disorder.
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Another important limitation of the categorical approach to diagnosis is that many individuals are found to have more than one disorder, that is, to experience comorbidity. Thus, it appears necessary in clinical practice to make more than one diagnosis to encompass the experiences and difficulties of a significant minority of people. Epidemiological surveys provide support for these clinical observations. For example, analyses of the 2007 Australian National Survey of Mental Health and Well-Being (Teesson et al. 2009) show that 25% of all cases of the common mental disorders were comorbid with at least one other disorder. Given the difficulties raised by a categorical approach to diagnosis, there is increasing interest in applying a dimensional approach to conceptualizing and assessing psychiatric syndromes. A dimensional approach classifies mental disorders by quantifying a person’s symptoms or other characteristics of interest and representing them with numerical values on one or more scales or continuums, rather than assigning them to a mental disorder category (Nesse and Stein 2012). Thus, traits such as mood or interpersonal functioning exist on a continuum ranging from normal variation to pathology (Tyrer et al. 2011). As mentioned, this better describes the existence of subthreshold cases of various disorders. Subthreshold cases are important to encompass within any diagnostic approach since they involve impaired functioning and may result in appropriate clinical referral and need for services (e.g., Rutter 2011). However, there are also potential problems with a dimensional approach, including the generation of multiple combinations of high and low scores on each of a number of dimensional characteristics, which makes the system unwieldy and impractical (Tyrer et al. 2011). Both major diagnostic systems use categorical and dimensional approaches, although relying more heavily on categorical. These two approaches should be seen as complementary. Thus, dimensional assessments allow for more fine-grained descriptions which may often inform the more user-friendly categorical approach to treatment decisions.
Overall Critique of Current Diagnostic Systems in Mental Health Many critiques emphasize the conceptual and empirical limitations of diagnostic systems in mental health, although these have particularly focused on the latest version of the DSM (e.g., Frances 2012; Pemberton and Wainwright 2014; Timimi et al. 2014). These have come from within psychiatry as well as other disciplines, including social work (e.g., see the special issue of Research on Social Work Practice, including Lacasse 2014a). It is important that social workers are informed about current diagnostic systems and their advantages and disadvantages (see Table 1). A recurring criticism of the main systems of psychiatric diagnosis is that disorders are reified, that is, something subjective is turned into something “concrete,” despite the noted limitations of classificatory systems. Also, links between life experiences and symptoms of emotional distress can be lost or obscured (Humphreys and Thiara 2003; Lacasse 2014b; Pemberton and Wainwright 2014; Timimi 2014; Wong 2014). Further, clinicians may be distracted from other relevant symptoms and contributory factors, including their complexities and interactions, which are not described
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Table 1 Implications for social work practice It is essential for social workers to be well informed about current diagnostic systems and their conceptual underpinnings and the implications of these for the individual consumer, their family, and the service system, as well as for policy, funding, and research Social workers should understand the main advantages and disadvantages of diagnostic systems and diagnoses, so as to adopt an appropriately critical stance to their application within practice Understanding the wide range of responses of consumers and families to receipt of a diagnosis and how and why these occur is essential for social work practice Social workers can play a helpful supporting role in the provision of a diagnosis to a consumer and their family, grounded in their acquisition of effective communication skills and the application of these in team-based approaches The biopsychosocial model and psychiatric formulation represent useful knowledge and skills sets for all mental health professionals, including social workers Social workers should ensure that the “bio-” continues to be part of their application of the biopsychosocial model and of person-in-environment approaches within their practice Social workers can play an important role by advocating for, and applying their understanding of, the wider context of mental disorder within the practice of diagnosis and treatment; this includes contributing person-in-environment perspectives Advances in the understanding of biomedical contributions to the aetiology of mental disorders, especially gene-environment interactions and epigenetics, should prompt social workers to rethink their knowledge base Social workers should aim to be informed, but not expert, readers of biomedical developments The integration of biological and social perspectives, underpinned by robust research, is essential, and social workers have an important contribution to make to this Advocacy for ethical and person-centered translation of emerging scientific knowledge and the protection of vulnerable populations continues to be a very important role for social workers
within the operationalized diagnostic criteria for each disorder (Macneil et al. 2012; Wong 2014). For instance, Humphreys and Thiara (2003) argue that an exclusively medical model approach to diagnosis for women with mental health symptoms due to domestic violence may result in pathologizing the individual rather than acknowledging and addressing the abuse context. This decontextualized view of behavior, in which problems in living are medicalized, may have dehumanizing and unhelpful consequences in terms of treatment and service responses (Frances 2012; Humphreys and Thiara 2003; Lacasse 2014b). One way of attempting to better represent the complex nature of psychiatric disorders was the multiaxial diagnostic assessment system introduced in DSM-3. Thus, each individual could be evaluated in terms of several different domains of experience which went beyond acute symptoms to try to encompass the diverse factors that account for a patient’s mental health. This multiaxial system included Axis IV – sometimes referred to as the social work axis – which could highlight psychosocial and environmental problems. Unfortunately, the multiaxial system was removed from DSM-5 (Lacasse 2014b). The validity of psychiatric diagnoses, that is, whether they represent actual entities, is undermined by the existence of widespread comorbidity, as previously described. Many authors have pointed out that the reliability of many psychiatric diagnoses is poor and this is especially the case in clinical settings (Lacasse 2014b; Timimi 2014). Thus, two clinicians seeing the same patient
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independently will not reach the same diagnosis on most occasions. Inter-rater agreements were reported to be uniformly poor for some common diagnoses such as major depressive disorder and generalized anxiety disorder in DSM-5 field trials, a finding linked with the marked heterogeneity of people who meet criteria for these disorders and comorbidity between these and other disorders (Lacasse 2014b; Regier et al. 2013; Timimi 2014). The sheer number of diagnoses in DSM has been criticized: DSM-1 listed 106 diagnoses and DSM-5 describes 157. In part, this represents efforts to increase the coverage of the system by identifying new disorders or specific subtypes of existing disorders with purported treatment or other clinical implications. The aim is to explain more of the observed phenomena and, through refinement of diagnoses, to lead to more appropriate and effective treatments. However, one adverse consequence is the creation of circumstances in which comorbid disorders are increasingly common. Most would agree that the number of diagnoses is far too many for any clinician to remember the criteria for each, which arguably undermines the usefulness of the system (Nemeroff et al. 2013). Moreover, some critics have linked the number of diagnoses in DSM with the financial (as opposed to scientific) utility of DSM-5 (Frances 2012; Lacasse 2014b). Concern has also been raised that this represents a medicalization of human problems and/or problems of daily living (Frances 2012; Lacasse 2014b). A frequently cited example is the removal of bereavement as an exclusion criterion for the diagnosis of major depression. This challenges the view that grief after the loss of a loved one, which frequently comprises depressive symptoms, belongs to the category of healthy psychic reactions and coping strategies (Frances 2012; Nemeroff et al. 2013). Notwithstanding these challenges and difficulties in assigning reliable and valid diagnoses in mental health, formulating diagnoses continues to be a very important activity for pragmatic reasons. Diagnosis assists with collecting data at a service or population level – a purpose for which the ICD classification is explicitly designed (http://www.who.int/classifications/icd/factsheet/en/). This can be useful for service planning, benchmarking between services, and research, especially epidemiological research on variations in prevalence and outcome of mental disorders and their associated biological, psychological, and social factors. Further, receipt of a diagnosis by an individual may facilitate access to treatment, services, and resources for the individual as well as their family, as well as enabling funding for specific treatments and medication subsidies (Frances 2012; Nemeroff et al. 2013). Making and providing a diagnosis to consumers and their families is therefore a significant contribution of medical practitioners in mental health. However, providing a meaningful diagnosis in a timely and sensitive manner is by no means a uniformly shared and applied knowledge and expertise.
Providing a Diagnosis to Consumers and Families In their review article, Milton and Mullan (2014) describe how rates of provision of diagnoses to consumers have increased in the last decade and how they vary by
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diagnosis and probably by culture and migrant status. Thus, diagnostic discussion for schizophrenia diagnoses and for general mental health diagnoses varies between 77% and 88%, except for consumers who had immigrated (22%). Communicating a schizophrenia diagnosis appears less common than, say, providing a depression diagnosis, and a substitute or euphemistic diagnosis such as psychosis or major mental illness may be provided for the former (Outram et al. 2014). This is associated with consumers having a poorer understanding of their condition (Milton and Mullan 2014). While most clinicians in an Australian study supported the need to give a diagnosis of schizophrenia, they gave multiple reasons for not doing so in practice (Outram et al. 2014); psychiatrists interviewed in a separate study even thought it might be anti-therapeutic to discuss diagnosis when prescribing antipsychotics (Chaplin et al. 2007). These perplexing and contradictory findings raise important questions about what should be a fundamental practice in mental health care. In part, clinicians’ varied responses and practices concerning provision of a diagnosis may relate to their awareness of the diverse reactions of consumers and their families to receiving a diagnosis. It cannot be assumed that receipt of a diagnosis is either “good or bad news” (Gallagher et al. 2010), since reactions are complex and vary between individuals provided the same diagnosis and between individuals according to diagnosis; for example, there are more negative responses to a diagnosis of Alzheimer’s disease compared with vascular dementia (Aminzadeh et al. 2007). Recognized negative reactions include anger, anxiety, fear, despair, shock, denial, and shame, the latter especially due to cultural beliefs. Some of these reactions relate to concerns about feelings and experiences of stigma, with more widespread concerns among those receiving diagnoses of psychotic, as opposed to nonpsychotic, disorders (Dinos et al. 2004; Mestdagh and Hansen 2014; Milton and Mullan 2014). The negative impact of a mental illness diagnosis on an individual’s social identity and relationships with others is regularly reported and may undermine their willingness to share diagnostic information with others and/or lead to selective hiding of their diagnosis or even avoidance of contact with others (Mestdagh and Hansen 2014; Milton and Mullan 2014). Nevertheless, the importance of accuracy in diagnosis is emphasized. For example, parents of children with autism have reported that confusion may be experienced in the context of misdiagnosis, which is common in the early stages of assessment (Altiere and Von Kluge 2009). However, even when technically correct information is given, such as more than one diagnosis when this is consistent with comorbidity in current diagnostic systems, consumers have reported confusion (Gallagher et al. 2010). A diagnosis may be rejected because it pathologized issues or did not help individuals make sense of their situation (Humphreys and Thiara 2003; Milton and Mullan 2014). This may link with previously described deficiencies of existing diagnostic systems. Finally, and despite the importance of diagnoses in enabling treatment access, treatment dropouts have been reported because of hearing a diagnosis (Milton and Mullan 2014). On the other hand, there is potential relief for the consumer in having a diagnosis to help explain what they have been experiencing. This is because the initial onset
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of illness may involve confusing and/or frightening changes such as distressing symptoms, isolation from friends and family, difficulties in everyday functioning, or a long-standing sense of difference from others. This sense of relief may apply equally to family members. Relief in response to a diagnosis is most apparent in people diagnosed with depression or anxiety (Milton and Mullan 2014; Dinos et al. 2004). Nevertheless, most research with people with schizophrenia (and their families) suggests a preference to have a named diagnostic entity rather than uncertainty (Magliano et al. 2008). Similarly, some adolescents interviewed by Buston (2002) spoke about a lack of diagnosis being frustrating and leading to uncertainty, even though clinicians reported greater reluctance to give younger people a diagnosis because of stigma-related concerns (Outram et al. 2014). Other positive responses include viewing the diagnosis as validating or helpful to treatment and presenting an opportunity to develop positive coping skills (Aminzadeh et al. 2007; Milton and Mullan 2014). Overall, the review of Milton and Mullan (2014) concluded that most consumers want diagnostic information and see it as their right choice. Therefore, current practice suggests a gap between the information preferences of consumers and their level of satisfaction with diagnosis discussion (Fossey et al. 2012; Milton and Mullan 2014). There is increasing recognition that providing a diagnosis requires an individualized approach to giving information in the context of a trusting relationship and with active involvement of the consumer and their family and key supports wherever possible (Gallagher et al. 2010; Mestdagh and Hansen 2014). This should include discussion about the meaning and implications of the diagnosis, so as to avoid misunderstanding and help the consumer and their family to develop a realistic appraisal of their situation. It is apparent that this requires time (Gallagher et al. 2010) and is often an ongoing process of care rather than a one-off event, as exemplified in the disclosure of a dementia diagnosis (Aminzadeh et al. 2007). It requires mastery of the “subtle interplay of hope and pessimism” in communication of diagnosis (Outram et al. 2014, page 551). While focused on reported practices of consultant psychiatrists when prescribing antipsychotics, Chaplin et al. (2007) provide useful strategies for strengthening the therapeutic alliance in the context of potentially difficult discussions with consumers. Intervention studies aimed at facilitating diagnostic communication are still few but showed significant improvements in consumer satisfaction and mood and in clinician communication skills, without negative outcomes for consumers or clinicians (Holm-Denoma et al. 2008; Milton and Mullan 2014). Further, satisfaction with diagnosis is higher if it is received faceto-face and if there is supplementary support from other professionals (Milton and Mullan 2014), suggesting a specific and important role for social workers (see Table 1). There are growing recommendations for development of detailed protocols for communicating diagnosis, including coordinated team-based approaches, and to feed these into training (Chaplin et al. 2007; Milton and Mullan 2014). However, more research is needed to achieve this aim, including with more professional groups and with greater inclusion of participants with psychosis and taking cross-cultural issues into consideration (Aminzadeh et al. 2007; Holm-Denoma et al. 2008; Milton and Mullan 2014).
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Diagnosis as a Guide to Treatment and Service Access As already emphasized, diagnosis can be useful to guide treatment and is commonly perceived as the main purpose of diagnosis. Current psychiatric medications are mostly symptomatic treatments, as is consistent with the largely symptom-based nature of psychiatric diagnoses. As argued by Nemeroff et al. (2013), helpful associations between treatment efficacy and existing diagnostic boundaries do exist: for example, lithium is very effective for many people with a diagnosis of bipolar disorder but is not an effective antipsychotic. However, it should also be noted that other treatments are helpful for more than one diagnosis, for example, antipsychotics may be effective treatments for schizophrenia and mania (Nemeroff et al. 2013). Provision of a diagnosis may facilitate access to diagnosis-specific services that are available for people with autism or dementia. Individuals without a definitive diagnosis may therefore be excluded from needed services and resources, such as access to supports, benefits, or medication subsidies (Milton and Mullan 2014; Milton and Mullan 2017). Some mental health services are organized according to diagnosis-specific care pathways (e.g., borderline personality disorder) to improve quality of care and efficiency through the systematic application of treatment recommendations in clinical practice guidelines (e.g., National Institute for Health and Care Excellence 2009). Whether diagnostic (and therefore eligibility) criteria are met therefore becomes an important issue. For example, it has been argued that changes within DSM-5 to the diagnosis of autism will affect access to services such that those with “higher-functioning autism” may lose out (see Nemeroff et al. 2013). Particularly important is the role of diagnosis in facilitating access to early intervention. Most would agree that early intervention is a worthwhile goal; nevertheless, the practicalities are not straightforward (van Os and Guloksuz 2017; Yung and Nelson 2013). By way of example, it has been argued that the existence of a prodromal phase in most cases of schizophrenia (i.e., changes or deterioration in diverse subjective symptoms and behavioral signs that precede the onset of psychotic symptoms) creates a target for early intervention. The rationale is that early intervention would prevent, ameliorate, or delay onset of psychosis (Yung and Nelson 2013). Criteria for “ultrahigh risk” (UHR) or “clinical high risk” (CHR) for “transition” to a psychotic disorder have been developed, with accompanying treatments and services. Treatments remain controversial, however, due to concerns that a substantial proportion of people not truly at risk (false positives) may be treated, including with antipsychotic medications which carry attendant risks of side effects (Frances 2011; Yung and Nelson 2013). The latest evidence does not support use of antipsychotics in the UHR group (Stafford et al. 2013; Yung and Nelson 2013); even so, the concept of an ultrahigh-risk diagnosis continues to be debated and has not been formally included in DSM-5 (Frances 2011; Frances 2012; Nemeroff et al. 2013; van Os and Guloksuz 2017). Van Os and Murray (2013) question whether the ultrahigh-risk state is a reliable and valid binary concept. They also question whether treatment of this condition can prevent the transition to frank psychosis, which may be an invalid or overly simplistic concept (van Os and Murray
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2013). Instead, they and others argue for a public health perspective rather than the relatively inefficient medical high-risk approach (van Os and Guloksuz 2017). Thus, while the importance of timely access to appropriate services and resources is largely undisputed, whether diagnosis is accurate and meaningful in so far as providing a helpful therapeutic target is clearly a crucial prerequisite.
Diagnosis as an Aid to Clinical Communication Diagnosis may facilitate communication between clinicians and provide a useful shorthand for conveying information and orientating all concerned to relevant considerations, such as treatment options and prognosis (e.g., American Psychiatric Association 2013). On the other hand, Lacasse (2014a) has argued that unreliable diagnostic labels are probably unhelpful in clinical communication. Further, shorthand descriptions such as diagnosis carry the risk of overlooking the rich and nuanced details of each person’s situation and may lead to professionals treating all persons with a specific diagnosis as being the same, with identical issues and needs. Despite these caveats, diagnoses continue to be “invaluable working concepts for clinicians” (Kendell and Jablensky 2003). Also, person-in-environment perspectives contributed by social workers can assist with mitigating this risk (see Table 1). Further, there are several important conceptual developments which, when applied in practice, mitigate the potentially adverse consequences of applying diagnoses in mental health practice and represent an important medical contribution. These are elaborated below – see sections “The Biopsychosocial Model of Mental Illness” and “The Psychiatric Formulation.”
The Narrow Medical or Brain-Disease Model of Mental Illness: History and Critiques The brain-disease model of mental illness has been dominant in recent decades and underpins current research and approaches to diagnosis. Neurobiological models of mental illness are too varied to be satisfactorily summarized here. However, a brief overview of the most common and enduring conceptualization, the dopamine hypothesis of schizophrenia, will be provided. Kendler and Schaffner (2011) have written a useful account of the history of the dopamine hypothesis of schizophrenia, pointing out that this has been one of the most prominent etiological theories in psychiatry for over 50 years. Dopamine is one of a number of neurotransmitters, that is, chemical mediators between nerve cells in the brain. In its earliest form, the dopamine theory proposed that schizophrenia may be related to a relative excess of dopamine-dependent neuronal activity in the brain (Meltzer and Stahl 1976). A selective synthesis of meta-analyses and reviews of studies attempting to validate the dopamine hypothesis, ranging from measuring brain levels of dopamine and its metabolites to genetic association studies, is summarized by Kendler and Schaffner
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(2011). They conclude that efforts to empirically validate the hypothesis have largely failed, leading to it being reformulated. The current and most accepted reformulation of the dopamine hypothesis is that schizophrenia is characterized by reduced dopamine in the frontal areas of the brain and excessive dopamine in neurons in the mesolimbic pathway, sometimes referred to as the reward pathway (Davis et al. 1991). The former dysregulation is postulated to lead to negative symptoms of schizophrenia, such as cognitive impairments, and the latter to positive symptoms, such as hallucinations. Further, experts increasingly agree that dopamine does not explain the cause of schizophrenia per se, rather it acts as the final common pathway of diverse predisposing factors, environmental or genetic or both (Howes et al. 2017; Kendler and Schaffner 2011; Lau et al. 2013). This is consistent with the pharmacological dopamine hypothesis of antipsychotic action for which there is more substantial support. Kendler and Schaffner (2011, p. 59) point out that evidence for “other leading ‘neurochemical’ etiological theories in psychiatry, such as the serotonin hypothesis of depression,” may be similarly lacking. There have undoubtedly been many advances in understanding the neurobiology of psychiatric disorders, for instance, through brain imaging studies. However, the narrow conception and/or application of a medical, and especially brain disease, model of mental illness has received many criticisms (e.g., Healy 2016; Malla et al. 2015; Timimi 2014; Wakefield 2013; Wong 2014). It has been argued that a braindisease model of mental illness would reduce stigma and accusations that people with mental illness are weak-willed or have a character defect but it appears that the contrary is true (Timimi 2014; Wakefield 2013). It seems that the public do not have an explanatory model of mental illness as “just like medical illness,” and, contrary to previous assumptions, those who adhere to such a model are less optimistic and accepting of people with mental illness (Malla et al. 2015). Malla et al. (2015) have also argued that a neurobiological model of mental illness is unhelpful in other respects. Unlike somatic illnesses such as diabetes, mental disorders “affect the very core of one’s being through a range of experiences and phenomena of varying severity that alter the individual’s thinking, perception and consciousness about the self, others and the world” (Malla et al. 2015, p. 148). Thus, therapy goes beyond restoring dysfunctional physiological mechanisms and encompasses helping the person feel better and to interact more adaptively with their physical and social environments (Malla et al. 2015). A brain-disease model is arguably not helpful for acceptance of psychological and social treatments (Malla et al. 2015; Wong 2014) and, moreover, may lead to overuse of medication (Wakefield 2013). Indeed, it has been argued that overreliance on a medical model is associated with poor treatment outcomes in the current service system (Pemberton and Wainwright 2014; Timimi 2014; Wong 2014). The example of evolving models for understanding alcohol addiction or dependence provides a useful illustration of the dilemmas posed by over-adherence to a brain-disease model of mental illness. In the nineteenth century, a moral model of addiction was evident which held people responsible for their behavior and tended to be applied in a harshly moralistic or punitive manner (see Elam 2015; Morse 2004). It was argued that application of a chronic brain disease or medical model to
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alcohol (and other) addictions would alleviate stigma, reduce “victim-blaming,” and encourage many to seek help (Ferentzy and Turner 2012) since the condition was then seen as wholly outside their control. However, one of the adverse consequences of this model is to remove any idea of the drinker as an active participant in their recovery (Peele 2016). Recent research contradicts this in so far as it reveals that change in addictive behavior is usually self-initiated (Peele 2016). Further, motivational interviewing approaches have been shown to enhance consumers’ intention to change and are now regarded as evidence-based practices in the substance abuse field (Lundahl et al. 2010). A relevant conclusion in this field, but also more broadly applicable in mental health, is that while the medical, and more particularly the brain disease, model should not be abandoned, its narrow application is unhelpful (Healy 2016).
The Biopsychosocial Model of Mental Illness Despite the recent dominance of the brain-disease model of mental illness, other models of mental disorder have also existed for some time and may be considered to complement (rather than replace) the brain-disease model. They have helped to reposition the person experiencing the mental disorder as a more active participant in their own recovery, particularly by emphasizing the centrality of the person’s experiences in understanding psychiatric disorders (Healy 2016; Pemberton and Wainwright 2014). A good example is the biopsychosocial model which has been influential within psychiatry for some time. Detailed histories and descriptions of the biopsychosocial model are provided in most psychiatry and mental health textbooks (e.g., Bland et al. 2012, pp. 399–400). The term owes a great deal to the American psychiatrist George Engel. He suggested that the biological, psychological, and social dimensions of illness must be attended to simultaneously rather than taking a narrow medical approach to mental illness (Borrell-Carrió et al. 2004; Engel 1977). Further, Engel’s model implied that biological, psychological, and social elements and factors interact dynamically, in health and in illness, and emphasized a systems view of health and illness, with each system forming part of higher-order systems (Engel 1977; Garland and Howard 2009; Healy 2016). Thus, systems extended from cells, tissues, and organs through an individual person and beyond to a family, a community, culture and subcultures, and society (Bland et al. 2012; Borrell-Carrió et al. 2004; Farre and Rapley 2017). Reciprocal interactions between biological, psychological, and social factors and the multiple levels of the various systems are conceptualized, consistent with models of circular rather than linear causality. This conceptualization has underpinned other models, such as the World Health Organization’s (2001) International Classification of Functioning, Disability and Health (http://www.who.int/classifications/icf/en/ accessed 19 April 2018). There are many potential implications of applying the biopsychosocial model in practice. It is widely accepted that the biopsychosocial model can guide clinicians in their everyday work and has the potential to lead to more humanistic and patientcentered care (Borrell-Carrió et al. 2004; Farre and Rapley 2017). The model has
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helped to include consideration of emotional well-being, functioning in daily life and performance of social roles within patient assessment and care, which are particularly important in chronic disease (Fava and Sonino 2008; World Health Organisation 2001). The model is more consistent with the recovery movement and consumer demands for more psychologically based mental health care, as well as with a public health orientation to mental health (Pemberton and Wainwright 2014). Consistent with social work practice (Healy 2016), the biopsychosocial model underlines the importance of understanding the person in their context (Timimi 2014) which is central to the person-in-environment approach (Wong 2014). Implicit in these approaches is the involvement of the patient’s relatives and/or significant others in assessment and treatment planning because of their often-extensive knowledge of the patient as well as their significance for the person’s recovery (Harvey and O’Hanlon 2013). The biopsychosocial model (and related approaches which emphasize the relevance of psychological and social factors, as well as biological factors, to the causation and outcome of mental illness) is consistent with accumulating evidence for sociodevelopmental influences on the genesis and course of mental disorder. Evidence is comprehensively outlined in other texts (e.g., see “Principles of Social Psychiatry,” Morgan and Bhugra 2010) and will be briefly summarized later – see section “Beyond the Brain-Disease Model: Other Aetiological Theories of Mental Illness.”
The Biopsychosocial Model in Practice Concerns about the biopsychosocial model have been raised. These include that it is imperfectly applied in day-to-day practice and the end result is often to preference one aspect of the model over another. So, biological considerations may still dominate in some settings, or psychoanalytic concepts may be preeminent elsewhere (Ghaemi 2009). Within social work (see Table 1), some have argued that the “bio-” has been ignored (e.g., Maynard et al. 2017). Some critics identify deficiencies in the model itself and argue these explain its imperfect implementation. These include that the model is too vaguely defined and therefore not testable; does not include a method to identify relevant biopsychosocial data; gives no indication of what level of analysis (biological, psychological, or social) to prioritize and when; and cannot be efficiently put into practice because it is too time-consuming (Farre and Rapley 2017; Ghaemi 2009). Ghaemi (2009) has argued that the model is of limited value since it is so vague as to lead to dogmatic pursuit of eclectic and nonevidence-based approaches. Modifications or enhancements of the model have been proposed which include emphasizing cultural considerations (which were always a component of Engel’s model) or proposing patient-centered interviewing methods which could be used to elicit relevant biopsychosocial data (Engel 1977; Farre and Rapley 2017; Smith et al. 2013). Despite the identified drawbacks, however, the biopsychosocial model continues to influence much psychiatric practice and is routinely used as a guiding framework for formulation, another significant component of psychiatric assessment and treatment planning.
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The Psychiatric Formulation The information gleaned from the clinical activities of history-taking and mental state and physical examination, which underpin the generation of a diagnosis as a fundamental part of psychiatric practice, may be summarized and then synthesized to construct a formulation. Diagnosis and formulation are essential components of psychiatric practice, and formulation enhances the value of diagnosis and may serve to mitigate some of its shortcomings. As previously argued, a diagnosis in isolation tells us little about a person’s experience of mental disorder, fails to take account of current and historical environmental events, and typically overlooks external causal or contributory factors (Macneil et al. 2012; Wong 2014). Therefore, it is relevant to identify and understand these broader aspects of experience to guide a more individualized and personalized approach to treatment planning and select potential targets for therapeutic change (de Beer 2017; Macneil et al. 2012; Wong 2014). One way to achieve this is to generate a formulation. A formulation goes beyond a summary and attempts a synthesis of available clinical information by concentrating on those aspects of the history that appear most significant and including some understanding of the interactions between events (de Beer 2017; Kirby and Grover 2017; Meadows et al. 2012). It aims to identify and explain etiological factors (de Beer 2017). Further, formulation synthesizes the patient’s experience with relevant clinical theory and research and thereby forms the bridge between assessment and treatment (Macneil et al. 2012). Thus, the selection of information and the inferences drawn from it depend on the theoretical framework used and the evidence which informs the formulation (Macneil et al. 2012; Meadows et al. 2012). Examples of theoretical frameworks include Bowlby’s attachment theory and Erikson’s life cycle stages (Kirby and Grover 2017). A formulation should be devised to assist with further assessment as well as with treatment planning; it may be particularly helpful for people who have not had an adequate response to traditional interventions and/or those with complex presentations and comorbidities (Macneil et al. 2012; Meadows et al. 2012). Formulation can be especially useful in identifying treatment challenges, such as difficulties in establishing a therapeutic alliance or ongoing problems of poor adherence to recommended treatments, and how to overcome these. Formulations are a living document which should be revisited to enable new information to be incorporated as it emerges (Macneil et al. 2012).
The Psychiatric Formulation in Mental Health Practice There are varied approaches to formulation. All attempt to address the question: Why has this patient presented in this manner at this time and why the condition (s) has/have continued (de Beer 2017). Although formulations can be biomedical in orientation, a common approach is to use the biopsychosocial model to frame the information gathering and synthesis. The “five Ps” constitute one popular approach to organizing the content of a formulation and are summarized by Macneil et al.
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(2012). Descriptions of variants of this approach are readily accessible elsewhere (e.g., Kirby and Grover 2017; Meadows et al. 2012). Thus, a two-dimensional grid may be generated to assist in synthesizing material using the five Ps along one axis and the biopsychosocial model along the other. In brief, the five Ps (often also referred to as the four P model if the initial summary is not included as one of the Ps) start with a summary of the presenting problem containing demographic details, relevant history and symptoms or behaviors, and how the person’s life is affected. Next, predisposing factors such as biological contributors (such as genetic vulnerability which may be indicated by a family history of mental illness, acquired brain injury), psychological elements (such as the person’s habitual coping style), and social factors (such as early childhood adversity, experience of migration as a child) are synthesized. Precipitating factors are then organized using the same biopsychosocial approach, and likely significant events preceding the onset of disorder are identified, such as stressors or losses. After this, perpetuating factors are summarized and encompass factors which may be hypothesized to maintain current problems or difficulties such as ongoing substance use, social isolation, chronic physical ill-health, prolonged unemployment, and poor engagement with services. The fifth P considers protective factors or the person’s strengths which could include social supports, their motivation to change, their role and identity as a parent or employee, aspects of resilience, or helpful coping strategies. Whatever the structure or approach used to generate a psychiatric formulation, all involve clinical reasoning skills which are underpinned by critical thinking and synthesis (de Beer 2017; Macneil et al. 2012; Meadows et al. 2012). As pointed out by de Beer (2017), step-by-step guidelines are lacking because psychiatric formulation is highly case specific; therefore, he has proposed that Bloom’s taxonomy (an educational classification system) might be used to help teach formulation skills. Recognizing a similar lack of guidelines for psychosocial case formulation, Restifo (2010) proposed an initial set of psychosocial factors drawn from a range of theoretical perspectives which are accompanied by treatment implications. These include mismatch between coping skills and level of adversity; problematic beliefs, expectations, or wishes; disturbance of interpersonal attachments; “undigested” psychological material; and a systemic issue in which the disturbance is located with a group (see Restifo 2010 for further examples and details). Although still not commonplace, there are increasing calls for collaborative formulations which are co-constructed with consumers (Pemberton and Wainwright 2014). Similar care should be applied to developing collaborative formulations as to sharing diagnoses, due to the varied nature of consumers’ reactions.
The Place of Culture within Diagnosis, Formulation, and the Biopsychosocial Model In acknowledgment of one of the shortcomings of diagnostic systems and standard approaches to formulation, there has been growing acceptance of the need for eliciting and organizing cultural information relevant to diagnostic assessment and
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treatment planning (see ▶ Chap. 5, “Social-Cultural Ecological Perspective” for detailed consideration of social/cultural perspectives). This recognizes that culture affects the clinical encounter for every consumer, not only minority groups, since culture impacts psychiatric care through diverse influences on identity such as gender, age, and sexual orientation (Lewis-Fernandez et al. 2014). The biopsychosocial model is also sometimes elaborated to the biopsychosocial-cultural model to prompt consideration of cultural factors. Mezzich et al. (2001) point out that cultural factors play a significant role at each stage of the data gathering process in psychiatric assessment. They highlight that activities, ranging from, for example, engaging appropriately with relatives and significant others, the manner of exploring intimate personal matters, the interpretation of patient reports concerning the significance and severity of emotional complaints, the evaluation of difficulties with social functioning, through to assessing the extent and value of social supports, are all impacted by culture. The Outline for Cultural Formulation (OCF) was introduced with DSM-4 to provide a framework for clinicians to organize cultural information relevant to diagnosis and treatment. The OCF organized clinical information in four domains: (1) cultural identity of the individual consumer; (2) cultural explanations of illness; (3) cultural interpretations of psychosocial stressors, supports, and levels of functioning; and (4) cultural aspects of the consumer-clinician relationship. DSM-5 introduced a Cultural Formulation Interview that operationalizes the data gathering process for the OCF and consists of a core 16-item questionnaire, reportedly taking about 20–25 min to complete (Lewis-Fernandez et al. 2014; Lewis-Fernandez et al. 2017).
Beyond the Brain-Disease Model: Other Aetiological Theories of Mental Illness Socio-developmental Influences on the Genesis and Course of Mental Disorder: Accumulating Evidence In keeping with biopsychosocial approaches to causation and outcome of mental disorder, it is increasingly acknowledged that the disease risk associated with adverse environmental stimuli exceeds the effects of common genetic risk variants in exposed individuals by far (Meyer-Lindenberg and Tost 2012; Van Os et al. 2008). A plausible biopsychosocial model for the aetiology of depression is reasonably well accepted (Craig 2010). This builds on seminal work by the medical sociologist Professor George Brown and his colleagues who studied life events and difficulties which preceded the onset of depression in women (Brown and Harris 1978). As summarized by Craig (2010), up to 90% of depressive episodes are preceded by a severe life event within the previous months involving loss, humiliation (defined as likelihood that the event would provoke a sense of being put down or loss of self-esteem), and entrapment (defined as the extent to which the event underscored the fact of being trapped in a punishing situation). Subsequent studies
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have also identified psychosocial vulnerabilities such as negative self-evaluations and negative interactions in the home, which in the presence of a severe life event, were associated with depression onset (Craig 2010). In relative contrast, evidence is still emerging to suggest that “adverse social contexts and experiences over the life course” are relevant to the onset of psychosis (Morgan and Hutchinson 2010). Studies examining whether social factors play a role in the onset of psychosis are limited by methodological challenges and the complexity of the enquiry. Nevertheless, strong and consistent evidence exists for elevated rates of schizophrenia and other psychoses in migrant and minority ethnic populations (Cantor-Graae 2007; Van Os et al. 2008). The overall relative risk for developing schizophrenia associated with migration is more than double (MeyerLindenberg and Tost 2012; van der Ven and Selten 2018). Cantor-Graae (2007) points out that this risk is greater than most other risk factors associated with schizophrenia, except for family history of psychosis; she concludes that these findings are hard to explain solely in terms of biological factors. Instead, they point to a role for social factors, although underlying mechanisms remain unclear (Cantor-Graae 2007; Morgan and Hutchinson 2010). A review of recent studies has proposed that migration or ethnic minority status are proxies for exposure to an inferior social status or discrimination, which remains the most credible explanation (van der Ven and Selten 2018). There is also reasonably consistent evidence for the association of urban environments with an approximately two- to threefold increased risk of schizophrenia (e.g., Cantor-Graae 2007; Meyer-Lindenberg and Tost 2012; Morgan and Hutchinson 2010; Van Os et al. 2008), although whether this is explained by social or other risk factors is yet to be established. At present, urbanicity represents an indicator of risk factors which are more prevalent in many densely populated environments (Cantor-Graae 2007; Morgan and Hutchinson 2010). Meyer-Lindenberg and Tost (2012) suggest that the more an individual stands out from their social milieu in terms of minority status, social fragmentation, and socioeconomic status, the higher their risk of developing schizophrenia. There is also emerging evidence to implicate childhood adversity, especially sexual, physical, and emotional abuse, in the onset of psychosis, although more longitudinal and population-based studies are needed (Bendall et al. 2008; Cantor-Graae 2007; Morgan and Hutchinson 2010). Further, early childhood adversity is an increasingly accepted risk factor for other severe mental illnesses (e.g., borderline personality disorder and depression) (Meyer-Lindenberg and Tost 2012). Psychosocial influences on the course and outcome of disorders such as schizophrenia are well researched and recognized. For example, research has demonstrated a link between the emotional climate in families and the likelihood of relapse of a family member who has been diagnosed with schizophrenia (Farhall et al. 2012; Harvey and O’Hanlon 2013). Higher rates of relapse were observed in families where there was a high level of critical, hostile, or over-involved responses by family members toward the person living with schizophrenia (high expressed emotion), than in families where there was a low level of expressed emotion (Brown et al. 1972; Vaughn and Leff 1976). Such responses are best viewed as an understandable and common reaction to the experience of living with someone with a severe and
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relapsing condition (Harvey 2018). Arising from this research, family psychoeducational interventions were developed to reduce relapse by reducing high expressed emotion and helping family members to cope more effectively with the illness through education, stress reduction techniques, and skills training (Farhall et al. 2012; Harvey and O’Hanlon 2013).
Current Understandings of Causation of Psychiatric Disorders: GeneEnvironment Interactions and Epigenetics There is general agreement that there has been a failure to identify biomarkers for psychiatric diagnoses despite considerable research efforts, including studies of neuroimaging, cognitive neuroscience, and blood markers for cortisol suppression (e.g., Lacasse 2014b; Nemeroff et al. 2013; O’Donovan and Owen 2016; Timimi 2014). However, recent advances in genetic research have led to studies seeking to identify specific genetic markers for psychiatric disorders. The current state of knowledge concerning the genetics of psychiatric disorders is a vast and actively debated topic which can only be briefly summarized here. The most significant advances have been made for schizophrenia with 50 genes identified compared with only 3 genes for anxiety disorder, according to a recent review of meta-analysis studies (Gatt et al. 2015). The emerging consensus is that most psychiatric disorders, including schizophrenia, bipolar disorder, and major depressive disorder, are complex genetically and highly polygenic (O’Donovan and Owen 2016). That is, they show evidence of the combined effects of many common genetic variants of small effect, as well as rare and de novo variants of large effect (Cattaneo et al. 2016; Gratten et al. 2014; O’Donovan and Owen 2016). Gatt et al. (2015) describe some examples of genetic variants specific to a disorder, but, overall, risk alleles tend not to be specific to any disorder (O’Donovan and Owen 2016). Thus, many of the individual genetic associations are shared across multiple disorders which points to extensive biological pleiotropy, that is, the altered function of a gene influences multiple traits (Gatt et al. 2015; O’Donovan and Owen 2016). An example of the cross-disorder effects of genetic variation comes from studies of copy number variants (CNVs) in which sections of the genome are repeated. These show that CNVs that influence risk for schizophrenia also often do so for autism spectrum disorders, intellectual disability, developmental delay, and attention deficit hyperactivity disorder (O’Donovan and Owen 2016). This is a rapidly evolving field in which current methodological limitations are likely to be incrementally addressed (Gatt et al. 2015). It is now largely accepted that the best way to understand and integrate available evidence is to regard psychiatric disorders as being characterized by a complex interplay between genetic and environmental factors (Cattaneo et al. 2016; Van Os et al. 2008). Put another way, nature interacts with nurture to produce psychosis (and other psychiatric disorders) and not in a linear fashion but “where the effect of one is conditional on the other” (Van Os et al. 2008, p. 1066). Intriguingly, this echoes the systems thinking and reciprocal interactions described by Engel (1977)
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in the biopsychosocial model (Garland and Howard 2009). These developments should prompt social workers to rethink their knowledge base. In their influential paper, van Os et al. (2008) described that “biological synergism (co-participation of causes to some outcome) between environmental exposure and background genetic vulnerability is thought to be common in multifactorial disorders such as psychosis.” Added to this, the rapidly growing science of epigenetics has become increasingly relevant. Epigenetics is the study of changes in organisms caused by modification of gene expression (active versus inactive genes) rather than alteration of the genetic code itself. That is, it concerns biological mechanisms that produce variability in phenotype (observed characteristics of an individual) without a change in genotype (their genetic sequence) (http://epialliance.org.au/whatis-epi/; Cattaneo et al. 2016; Garland and Howard 2009). In their recent overview of current knowledge, El-Sayed et al. (2013) summarize the main epigenetic mechanisms, which include DNA methylation, and report that epigenetic modification has been demonstrated in the aetiology of autism, schizophrenia, bipolar disorder, depression, anxiety disorders, and suicide. This extends our understanding of how both the environment and individual lifestyle can directly interact with an individual’s genetic code to influence epigenetic change (http://epialliance.org. au/what-is-epi/), providing additional points of intervention on the pathway to development of psychiatric disorders.
Conclusion The psychiatric contribution to mental health includes an emphasis on the importance of robust approaches to assessment and diagnosis which inform and underpin treatment and service delivery. Despite the limitations of the major diagnostic systems, diagnosis retains its central place in communicating a shared understanding of disordered experiences and behaviors between consumers, families, and professionals. Talking about a diagnosis in mental health is a skilled professional task, requiring sensitivity, an individualized approach within a trusting relationship, and the time to address and revisit concerns and misunderstandings. Helpful contributions can be made by all mental health professionals, including social workers. The biopsychosocial (-cultural) model and psychiatric formulation, although not unique to psychiatry, are both noteworthy contributions to mental health practice from a medical perspective. Both help to complement and counterbalance the medical or brain-disease model of mental disorder which has been dominant in recent decades, and, consistent with social work theory and practice, they contribute strongly to a more person-centered, recovery-oriented approach to mental health practice which recognizes social aspects of human experience. Rapidly evolving understandings of aetiology in mental health, especially concerning gene-environment interactions and epigenetics, are consistent with these approaches. They help to integrate accumulating research evidence about social and environmental contributions to the development and course of mental
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disorders into etiological theory and reaffirm the value of psychosocial interventions and person-in-environment approaches to recovery. Some of the key implications for social work practice are summarized in Table 1.
Cross-References ▶ Alcohol and Drug Use ▶ Community and Mental Health ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Mental Health and Social Work: The Islamic Perspectives ▶ Individual Approach to Mental Health from a Psychodynamic and Cognitive Behavioral Perspective ▶ Social-Cultural Ecological Perspective ▶ Theories on Mental Health, Illness and Intervention ▶ Trauma-Informed Social Work Practice with Children and Youth
References Altiere M, Von Kluge S (2009) Searching for acceptance: challenges encountered while raising a child with autism. J Intellect Develop Disabil 34(2):142–152 American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders, 5th edn. American Psychiatric Publishing, Arlington Aminzadeh F, Byszewski A, Molnar F, Eisner M (2007) Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers’ perspectives. Aging Ment Health 11(3):281–290 Bendall S, Jackson H, Hulbert C, McGorry P (2008) Childhood trauma and psychotic disorders: a systematic, critical review of the evidence. Schizophr Bull 34(3):568–579 Bland R et al (2012) Assessment: specialised assessment skills. In: Meadows G, Grigg M, Farhall J, McDermott F, Fossey E, Singh B (eds) Mental health in Australia: collaborative community practice, 3rd edn. Oxford University Press, Sydney, pp 394–400 Borrell-Carrió F, Suchman A, Epstein R (2004) The biopsychosocial model 25 years later: principles, practice, and scientific inquiry. Ann Fam Med 2(6):576–582 Brown G, Harris T (1978) Social origins of depression: a study of psychiatric disorder in women. Tavistock Publications Ltd, London Brown G, Birley J, Wing J (1972) Influence of family life on the course of schizophrenic disorders: a replication. Br J Psychiatry 121:241–258 Buston K (2002) Adolescents with mental health problems: what do they say about health services? J Adolesc 25:231–242 Cantor-Graae E (2007) The contribution of social factors to the development of schizophrenia: a review of recent findings. Can J Psychiatr 52:277–286 Cattaneo A, Cattane N, Begni V, Pariante C, Riva M (2016) The human BDNF gene: peripheral gene expression and protein levels as biomarkers for psychiatric disorders. Transl Psychiatry 6 (11):e958 Chaplin R, Lelliott P, Quirk A, Seale C (2007) Negotiating styles adopted by consultant psychiatrists when prescribing antipsychotics. Adv Psychiatr Treat 13:43–50 Craig T (2010) Depression. In: Morgan C, Bhugra D (eds) Principles of social psychiatry. Wiley, Chichester, pp 215–226 de Beer W (2017) Original opinion: the use of bloom’s taxonomy to teach and assess the skill of the psychiatric formulation during vocational training. Australas Psychiatry 25(5):514–519
172
C. Harvey
Davis K, Kahn R, Ko G et al (1991) Dopamine in schizophrenia: A review and reconceptualization. American Journal of Psychiatry 148:1474–1486 Dinos S, Stevens S, Serfaty M, Weich S, King M (2004) Stigma: the feelings and experiences of 46 people with mental illness. Qualitative study. Br J Psychiatry 184:176–181 Elam M (2015) How the brain disease paradigm remoralizes addictive behaviour. Sci Cult 24(1):46–64 El-Sayed A, Koenen K, Galea S (2013) Putting the “epi” into epigenetics research in psychiatry. J Epidemiol Community Health 67(7):610–616 Engel G (1977) The need for a new medical model: a challenge for biomedicine. Science 196:129–136 Farhall J et al (2012) Psychological therapies. In: Meadows G, Farhall J, Fossey E, Grigg M, McDermott F, Singh B (eds) Mental health in Australia. Oxford University Press, South Melbourne, pp 468–501 Farre A, Rapley T (2017) The new old (and old new) medical model: four decades navigating the biomedical and psychosocial understandings of health and illness. Healthcare 5(4):88 Fava G, Sonino N (2008) The biopsychosocial model thirty years later. Psychother Psychosom 77(1):1–2 Ferentzy P, Turner N (2012) Morals, medicine, metaphors, and the history of the disease model of problem gambling. J Gambl Issues 27:1–27 Fossey E, Harvey C, Mokhtari M, Meadows G (2012) Self-rated assessment of needs for mental health care: a qualitative analysis. Community Ment Health J 48(4):407–419 Frances A (2011) Psychosis risk syndrome – far too risky. Aust N Z J Psychiatry 45(10):803–804 Frances A (2012) DSM 5 Is a guide not a bible – ignore its ten worst changes: APA approval of DSM-5 is a sad day for psychiatry. Psychology Today, US Gallagher A, Arber A, Chaplin R, Quirk A (2010) Service users’ experience of receiving bad news about their mental health. J Ment Health 19(1):34–42 Garland E, Howard M (2009) Neuroplasticity, psychosocial genomics, and the biopsychosocial paradigm in the 21st century. Health Soc Work 34(3):191–199 Gatt J, Burton K, Williams L, Schofield P (2015) Specific and common genes implicated across major mental disorders: a review of meta-analysis studies. J Psychiatr Res 60:1–13 Ghaemi S (2009) The rise and fall of the biopsychosocial model. Br J Psychiatry 195:3–4 Gratten J, Wray N, Keller M, Visscher P (2014) Large-scale genomics unveils the genetic architecture of psychiatric disorders. Nat Neurosci 17(6):782–790 Harvey C (2018) Family psychoeducation for people living with schizophrenia and their families. Br J Psychiatr Adv 24(1):9–19 Harvey C, O’Hanlon B (2013) Family psycho-education for people with schizophrenia and other psychotic disorders and their families. Aust N Z J Psychiatry 47:516–520 Healy K (2016) After the biomedical technology revolution: where to now for a bio-psycho-social approach to social work? Br J Soc Work 46(5):1446–1462 Holm-Denoma J et al (2008) Patients’ affective reactions to receiving diagnostic feedback. J Soc Clin Psychol 27:555–575 Howes O, McCutcheon R, Owen M, Murray R (2017) The role of genes, stress and dopamine in the development of schizophrenia. Biol Psychiatry 81(1):9–20 Humphreys C, Thiara R (2003) Mental health and domestic violence: “I call it symptoms of abuse”. Br J Soc Work 33:209–226 Kendell R, Jablensky A (2003) Distinguishing between the validity and utility of psychiatric diagnoses. Am J Psychiatry 160(1):4–12 Kendler K, Schaffner K (2011) The dopamine hypothesis of schizophrenia: an historical and philosophical analysis. Philos Psychiatry Psychol 18(1):41–63 Kirby K, Grover A (2017) The psychiatric interview, mental state examination and formulation. In: Bloch S, Green S, Janca A, Mitchell P, Robertson M (eds) Foundations of clinical psychiatry, 4th edn. Melbourne University Press, Melbourne Lacasse J (2014a) A critical appraisal of the DSM-5: social work perspectives [Special Issue]. Res Soc Work Pract 24(1):5–173
8
Medical Perspective on Mental Health
173
Lacasse J (2014b) After DSM-5: a critical mental health research agenda for the 21st century. Res Soc Work Pract 24(1):5–10 Lau C, Wang H, Hsu J, Liu M (2013) Does the dopamine hypothesis explain schizophrenia? Rev Neurosci 24(4):389–400 Leff J, Sartorius N, Jablensky A, Korten A, Ernberg G (1992) The international pilot study of schizophrenia: five-year follow-up findings. Psychol Med 22:131–145 Lewis-Fernandez R et al (2014) Culture and psychiatric evaluation: operationalizing cultural formulation for DSM-5. Psychiatry 77(2):130–154 Lewis-Fernandez R et al (2017) Feasibility, acceptability and clinical utility of the cultural formulation interview: mixed-methods results from the DSM-5 international field trial. Br J Psychiatry 210:290–297 Lundahl B, Kunz C, Brownell C, Tollefson D, Burke B (2010) A meta-analysis of motivational interviewing: twenty-five years of empirical studies. Res Soc Work Pract 20:137–160 Macneil C, Hasty M, Conus P, Berk M (2012) Is diagnosis enough to guide interventions in mental health? Using case formulation in clinical practice. BMC Med 10:111 Magliano L, Fiorillo A, Malangone C, Vecchio H, Maj M (2008) Views of persons with schizophrenia on their own disorder: an Italian participatory study. Psychiatr Serv 59 (7):795–799 Malla A, Joober R, Garcia A (2015) Mental illness is like any other medical illness: a critical examination of the statement and its impact on patient care and society. J Psychiatry Neurosci 40(3):147–150 Maynard B, Boutwell B, Vaughn M (2017) Advancing the science of social work: the case for biosocial research. Br J Soc Work 47(5):108 Meadows G et al (2012) Assessment: essential skills. In: Meadows G, Grigg M, Farhall J, McDermott F, Fossey E, Singh B (eds) Mental health in Australia: collaborative community practice, 3rd edn. Oxford University Press, Sydney, pp 342–393 Meltzer H, Stahl S (1976) The dopamine hypothesis of schizophrenia: a review. Schizophr Bull 2(1):19–76 Mestdagh A, Hansen B (2014) Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies. Soc Psychiatry Psychiatr Epidemiol 49(1):79–87 Meyer-Lindenberg A, Tost H (2012) Neural mechanisms of social risk for psychiatric disorders. Nat Neurosci 15(5):663–668 Mezzich J, Berganza C, Ruiperez M (2001) Culture in DSM-IV, ICD-10, and evolving diagnostic systems. Psychiatr Clin N Am 24(3):407–419 Milton A, Mullan B (2014) Communication of a mental health diagnosis: a systematic synthesis and narrative review. J Ment Health 23(5):261–270 Milton A, Mullan B (2017) Views and experience of communication when receiving a serious mental health diagnosis: satisfaction levels, communication preferences, and acceptability of the SPIKES protocol. J Ment Health 26(5):395–404 Morgan C, Bhugra D (2010) Principles of social psychiatry. Wiley, Chichester Morgan C, Hutchinson G (2010) The sociodevelopmental origins of psychosis. In: Morgan C, Bhugra D (eds) Principles of social psychiatry. Wiley, Chichester, pp 193–213 Morse S (2004) Medicine and morals, craving and compulsion. Subst Use Misuse 39(3):437–460 National Institute for Health and Care Excellence (2009) NICE guideline. Borderline personality disorder: recognition and management. National Institute for Health and Care Excellence, British Psychological Society, UK. Nemeroff C et al (2013) DSM-5: a collection of psychiatrist views on the changes, controversies, and future directions. BMC Med 11:202 Nesse R, Stein D (2012) Towards a genuinely medical model for psychiatric nosology. BMC Med 10:5 O’Donovan M, Owen M (2016) The implications of the shared genetics of psychiatric disorders. Nat Med 22(11):1214–1219 Outram S et al (2014) Communicating a schizophrenia diagnosis to patients and families: a qualitative study of mental health clinicians. Psychiatr Serv 65(4):551–554
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C. Harvey
Peele S (2016) People control their addictions. No matter how much the chronic brain disease model of addiction indicates otherwise, we know that people can quit addictions – with special reference to harm reduction and mindfulness. Addict Behav Rep 4:97–101 Pemberton R, Wainwright T (2014) The end of mental illness thinking? Int J Clin Health Psychol 14(3):216–220 Regier D, Narrow W, Clarke D, Kraemer H, Kuramoto S, Kuhl E, Kupfer D (2013) DSM-5 field trials in the United States and Canada, Part II: test-retest reliability of selected categorical diagnoses. Am J Psychiatry 170(1):59–70 Restifo S (2010) An empirical categorization of psychosocial factors for clinical case formulation and treatment planning. Australas Psychiatry 18(3):210–213 Rutter M (2011) Research review: child psychiatric diagnosis and classification: concepts, findings, challenges and potential. J Child Psychol Psychiatry 52:647–660 Singh B, Ng C, Meadows G (2012) The global perspective. In: Meadows G, Grigg M, Farhall J, McDermott F, Fossey E, Singh B (eds) Mental health in Australia: collaborative community practic, 3rd edn. Oxford University Press, Sydney, pp 31–37 Smith R, Fortin A, Dwamena F, Frankel R (2013) An evidence-based patient-centered method makes the biopsychosocial model scientific. Patient Educ Couns 91(3):265–270 Stafford M, Jackson H, Mayo-Wilson E et al (2013) Early interventions to prevent psychosis: Systematic review and meta-analysis. BMJ 346:f185 Teesson M, Slade T, Mills K (2009) Comorbidity in Australia: findings of the 2007 National Survey of Mental Health and Wellbeing. Aust N Z J Psychiatry 43:606–614 Timimi S (2014) No more psychiatric labels: why formal psychiatric diagnostic systems should be abolished. Int J Clin Health Psychol 14(3):208–215 Timimi S, Thomas P, Davies J, Kinderman P (2014) Antipsychiatry and the antidepressants debate Lancet. Psychiatry 1(3):174 Tyrer P, Crawford M, Mulder R (2011) Reclassifying personality disorders. Lancet 377(9780):1814–1815 van der Ven E, Selten J (2018) Migrant and ethnic minority status as risk indicators for schizophrenia: new findings. Curr Opin Psychiatry 31(3):231–236 van Os J, Guloksuz S (2017) A critique of the “ultra-high risk” and “transition” paradigm. World Psychiatry 16(2):200–206 van Os J, Murray RM (2013) Can we identify and treat “schizophrenia light” to prevent true psychotic illness? Br Med J 346:f304 Van Os J, Rutten B, Poulton R (2008) Gene-environment interactions in schizophrenia: review of epidemiological findings and future directions. Schizophr Bull 34(6):1066–1082 Vaughn C, Leff J (1976) The influence of family and social factors on the course of psychiatric illness. A comparison of schizophrenic and depressed neurotic patients. Br J Psychiatry 129:125–137 Wakefield J (2013) DSM-5 and clinical social work: mental disorder and psychological justice as goals of clinical intervention. Clin Soc Work J 41(2):131–138 Wong S (2014) A critique of the diagnostic construct schizophrenia. Res Soc Work Pract 24(1):132–141 World Health Organisation (1992) The ICD-10 classification of mental and behavioural disorders. World Health Organisation, Geneva World Health Organisation (2001) International Classification of Functioning, disability and health (ICF). World Health Organisation, Geneva Yung A, Nelson B (2013) The ultra-high risk concept-a review. Can J Psychiatr 58(1):5–12
Part III Overview of Social Work Approaches in Working with Individuals, Families, and Communities
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Individual Approach to Mental Health from a Psychodynamic and Cognitive Behavioral Perspective Mun Heng Low and Stuart Stevenson
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . A Psychodynamic Approach in Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Application of Psychodynamic Approaches . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychodynamic Notions of Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychoanalytic Theory and Human Development . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychodynamic Theory and Reflective Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychodynamic Social Work Strategy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychodynamic Formulation of a Case Study . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cognitive Behavior Approaches in Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . How People Change? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cognitive Behavioral Therapy as Theory of Change . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cognitive Behavioral Therapy’s View of Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Goal of Cognitive Behavioral Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Motivating the Client . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Understanding the Context . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Assessment in Cognitive Behavioral Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Following Is a Case Example of an Assessment Using Cognitive Behavioral Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Treatment Plan in Cognitive Behavioral Theory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cognitive Therapy, Mindfulness-Based Cognitive Behavioral Theory, and Acceptance and Commitment Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cultural Issues for Consideration in Cognitive Behavioral Theory . . . . . . . . . . . . . . . . . . . . . . . . Cognitive Behavioral Theory and Reflective Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . .
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M. H. Low (*) AMKFSC Community Services Ltd., Singapore, Singapore e-mail: [email protected] S. Stevenson CASS School of Education and Communities, University of East London, London, UK e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_6
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On Learning . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . On Learning from the Experts for Social Workers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . On Learning from the Clients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Working with mentally ill individuals not only requires social workers to understand psychopathology and the etiology of mental illness, but it also requires them to have specific skills to counsel and manage service users suffering from various and often complex mental health conditions. This requires social workers to develop a range of skills to manage these clients. Central to this task is the social worker’s ability to build a solid therapeutic relationship. This would be regardless of any specific therapeutic approaches that underpin their work. This would enable social workers to be able to provide a tailored approach for the clients. This chapter adopts a reflective approach reviewing how social workers utilize a psychodynamic and cognitive behavioral approach in working with people with mental health conditions that includes case study vignettes. Keywords
Relationship building · Mental health · Therapeutic alliance · Social work · Psychodynamic · Cognitive behavioral
Introduction All social work intervention begins with relationship building. The management of relationship with complex service users is a central aspect of the work. Mental health problems, though they might have some biological origins, are precipitated by stresses in relationships and situations. Harry Stack Sullivan reminded us that human problems are rooted in human relations, whether these relationships are healthy or unhealthy (Sullivan 1968). Sullivan’s significant contribution is that while he recognized the importance of the biological aspects of mental health issues, he also acknowledged that powerful social and cultural forces play a determining role in creating ineffective patterns of interpersonal relating, which are often mistaken for disease. Additionally, Sullivan believed these forces were crucial even when biological disorders were evident (Evans 1996). Anti psychotics may alleviate the psychotic symptoms but will not resolve the intrapersonal and interpersonal challenges. Some symptoms may persist even with the best medication. Therefore, social work intervention begins at establishing a good therapeutic relationship that comes from the core of social work values (NASW 2017). The interest in the therapeutic alliance has increased exponentially in recent years, as well-conducted
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research pointing to the central importance of the relationship in the outcome of therapeutic work are reported (Norcross 2002). Regardless of the therapeutic approaches, the ability to engage the clients is the core of effective intervention. Through such intervention, named “therapeutic alliance” by Freud in his own words, “we make our clients our collaborators” (Breuer and Freud 1893–1895). Nevertheless, the concept of therapeutic alliance, whose origin could be traced to Freud and Sterba, was later elaborated by many psychoanalysts and, while remaining a controversial idea, gradually acquired a position of respectability. Therapeutic alliance often is defined as the contractual arrangement through which the logistics of treatment are specified (e.g., scheduling, fee setting and payments, confidentiality). Similarly, behavioral and cognitive behavioral therapy may sometimes appear to be unconcerned with the relationship and have paid increasing attention to the therapeutic relationship as a crucial factor in their work (Goldfried and Davison 1994). With this therapeutic alliance, we could work collaboratively with our clients to promote psychological health. Standing on the shoulders of established therapeutic traditions developed across various disciplines, social work pioneers such as Florence Hollis had built upon the learning and the continual developments in these traditions to help clients with mental health challenges to better manage their psychological health. As pointed out by Shedler (2010), “psychological health is not merely the absence of symptoms; it is the positive presence of inner capacities and resources that allow people to live life into a greater sense of freedom and possibilities” (Shedler 2010, p. 107). Different approaches address the same problem at very different angles, which nevertheless are equally effective. Though cognitive behavioral therapy has often been cited as the evidence-based approach to manage psychological issues, a metaanalysis conducted by Scott Miller found that the result was insignificant, and that points to the fact that all methods are as effective or ineffective (Duncan et al. 2010). Different schools of thought would approach the presentation of the problem differently. Milton Erickson would help clients to deal with the state; cognitive behavioral therapy will address the faulty cognition, and psychodynamic approaches focus on assisting clients to make sense of their early childhood experiences, and others (Erickson and Rossi 2014). While some techniques carry some research evidence to show their efficacy, not one therapeutic approach holds an exclusive license to good therapy. In my opinion, they can be equally effective as there is variability in their outcomes, depending on various factors. For example, a good Rogerian therapist who could provide empathetic listening may be enough to “melt” the depression as the client feels supported while others require the therapist to challenge their default cognitions. Other approaches like emotion-focused therapy have developed empathetic intervention like empathetic attunement and empathetic conjecture, to strengthen the therapeutic relationship (Greenberg 2004). This therapeutic alliance will enable the client to feel safe and to accept the worker and the help. The fundamental sense of acceptance is implied or acknowledged in the work of Carl Rogers (1951), Les Greenberg (2002), and Diana Fosha (2000), among many others (Huges 2007). However, not all emotions are a result of faulty cognitions; emotions may arise due to various interpersonal reasons, and these need to be addressed in therapy so clients can make sense of these emotions from their own story. Thus, there is no one way toward the resolution of these predicaments.
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When a solid relationship is built between the social worker and the client, the social worker needs to provide a comprehensive case assessment based upon the biopsychosocial-spiritual framework to ascertain the issues and needs that plague the client. Once this is done, the social worker could determine the kind of intervention required. In most mental health cases, the social workers cannot avoid providing case management service that looks into the various practical and social needs of their clients. This cannot be taken lightly, as when the client is unable to get their basic needs met, it is hard to progress to another. The social worker, while attending to all the practical needs, tends to decide on how to help the client deal with the psychological predicaments using various counseling/psychotherapy approaches. While doing this, it will not just strengthen the therapeutic relationships but also provide aid in the therapy process as the client would perceive the worker as someone who is showing interest in helping them. From the casework process, the client will also develop some sense of readiness to deal with deeper issues. This chapter will focus on two classical approaches in mental health, namely, the psychodynamic and the cognitive behavioral approach.
A Psychodynamic Approach in Mental Health This section discusses the potential usefulness and the link between psychodynamic theory and its relationship-based practice – to demonstrate how psychodynamic principles can act as “interpersonal tools” to enable social workers to navigate complex relationships with the more vulnerable and challenging clients more effectively. This section addresses two main issues in mental health social work with individuals. First is the notion of an individual within a social context, positing that individuals live in a relational way and cannot be engaged in isolation. Any social work intervention, therefore, needs to engage the multifaceted aspects of the individuals in the context, to be more effective. The second part of this section addresses how psychodynamic understanding can assist the social worker in engaging with the internal and external worlds of the client to enable effective intervention while being cognizant of the material reality of their experiences concerning structural oppression, trauma, and abuse. An effective psychodynamically oriented social worker needs to traverse a complex terrain of internal and external reality between the client and the context. Psychodynamic theory enhances the reflective aspects of social work intervention that has come to the fore in the area of social work proactive education, research, and training that will be discussed in more detail. Psychodynamic theory and its sophisticated reflective capacities also provide social workers with powerful interpersonal tools to manage complex relationships with the most vulnerable clients – within the chaotic and turbulent organizations and environments in which they often inhabit.
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Application of Psychodynamic Approaches Psychodynamic theory is premised on the notion of the unconscious and conflict: the defense mechanisms employed by the individuals to manage their psychic reality. An individual will resort to defensive maneuvers unconsciously in times of stress as it becomes a challenge to self-image, for example, wanting to be a good and effective parent or member of the community or professionals such as social workers who can resort defensively if they are not perceived in a certain way by self and others (Trevithick 2011). An understanding of unconscious phenomena by social workers when working with their clients can be a particularly useful strategy to manage complex phenomena such as destructive enactments. Indeed, a psychodynamic understanding, even when psychotherapy is not involved, can enable social workers to operate beyond the surface phenomena and with a greater understanding regarding unconscious processes in their interaction with clients. The interaction, therefore, between the client and the psychodynamically informed social worker has the potential to be more sensitive to what may become enacted between the two of them. There is a need to understand what motivates human behaviors and an acknowledgment of both external and internal processes. Psychodynamic concepts and formulations deepen the understanding of what it means to be human and to recognize distress and our responses to them in terms of how people attempt to manage painful anxiety by defensive maneuvering. Examples of the more common defense mechanisms include dissociation, denial, splitting, projection, and projective identification. Additionally, the notions of transference and countertransference are also pivotal in the understanding of psychodynamic practices. Clients who are most defended are often the most traumatized; they need their defenses more than an average person. Defenses and resistances need to be understood and respected and worked skillfully and sensitively (Evans 1996). Emotional responses are not neutral phenomena. Each human encounter with a professional or person in a social situation is imbued with complex emotional aspects of prior relationships. The skills required of a psychodynamically oriented social worker are to know how to think through difficult feelings and the impact these feelings have on relationships and responses. This includes insight and management of their own defenses in the face of challenging interventions. A relationship-based practice has increasingly become an essential aspect of social work education and practice (Ruch 2005). Social work has been criticized for being too formulaic and a tick box – acting defensively and in a risk-averse way (Cooper et al. 2003; Armstrong and Rustin 2014; Cooper and Lousada 2004). Consequently, reflective practice and the use of self have come to the fore and are central to social work education. This is a requirement and practice for all social work students throughout their training in the UK – to explicitly demonstrate social work competencies and standards of proficiency for social work accreditation.
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Psychodynamic Notions of Mental Health The need to relate is innate; it begins at our very earliest days (Stern 2000). Many notions of mental health, however, are culturally specific and can change over time (Marsella and Yamada 2000). According to Freud, an indicator of good mental health is the ability to love and work (Freud 1925). This still has relevance today concerning service users whose social workers often come into contact with them while struggling with personal relationships and the maintenance of a stable lifestyle – which includes employment and the capacity to care for their own children. Melanie Klein’s (1959) notion of mental health includes the ability to maintain the “depressive position” for a significant amount of time. The depressive position requires the internal capacity to view the world in a balanced way, without needing to split relationships excessively with those we love and hate, instead recognizing that most people are far more nuanced. The ability to relate without becoming too enmeshed by projective processes with others is to see people and experiences more realistically and not excessively based on our unconscious expectations of them – an essential developmental achievement that requires the ability to have a realistic view of others that is not overly dominated by unconscious fantasy and the need to project inordinately. This is based on the premise that people have unconscious tendencies to: (i) Project the unconscious fantasy to others, thereby disavowing aspects of themselves that they need to face in order to gain a better quality of life via greater psychic health. This is through addressing rather than denying destructive aspects of themselves. The process is known as projective identification. Projective identification is important in the clinical process for the social worker; as Ogden (1982) said, “it offers a way of integrating his understanding of the social worker’s internal experience with that which he is perceiving in the client. Such an integrated perspective is particularly necessary to work with clients with schizophrenia because it safeguards the social worker’s psychological equilibrium in the face of what sometimes feels like a barrage of chaotic psychological debris emanating from the patient.” The awareness of the projective identification process in the social worker is vital to manage their own transferences and at the same time identify such observation to the client. (ii) Repeat traumatic experiences that they have been unable to manage but unconsciously revisit these experiences – this is known as repetition compulsion. Freud in his book Beyond the Pleasure Principle highlighted four ways that repetitive compulsion manifests. In the first way, the client keeps going back to traumatic incidents in their dreams rather than revisiting the good pleasure past. The second way comes from Freud’s observation that children in distress kept throwing their favorite toys from the crib, became upset with the loss, and then reeled the toy back in, only to repeat this action. Freud theorized this as the child trying to master the sense of loss. The third way is when the client brings up repressed materials of the past in therapy as if there was a compulsion to repeat the events of his or her childhood and in the transference evidently disregarding the pleasure principle in every way. The
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fourth is the so-called destiny neurosis, manifested in “the life-histories of men and women. . .[as] an essential character-trait which always remains the same and which is compelled to find expression in a repetition of the same experience” (Freud 1920). The understanding of repetitive compulsion helps the social worker to have a further understanding of the client’s behavior. For example, the victim of interpersonal relationship keeps going back to the abusive relationship.
Psychoanalytic Theory and Human Development A personality develops throughout the life span and is built primarily on early childhood experiences that are enacted and repeated in the present – in an unconscious way (Fonagy and Target 2003). Classical psychoanalytic thinking theory stemming from Freud (1925) and Klein (1959) was far more inclined to locate pathology in the individual. They saw the mind as residing within the person and a person’s mind, simultaneously relating to others’. Psychopathology in this paradigm is, therefore, generated from within the individual based on early experiences of poor parenting, innate constitution, trauma, and abuse. The idea of what constitutes an individual from a psychodynamic perspective has increasingly shifted from the individual’s mind as internal to the individual to the mind being viewed as relational and intersubjective (Stolorow 1997). It is clear that the context is an essential aspect of how clients should be engaged and of particular importance to social work due to the contextualized nature of social work and social work education. The prioritization of structural oppression and how it contributes to the development of service users’ difficulties, along with the most appropriate response to such prioritization, are the cornerstone of much social work training. Therefore, when working with individuals, even from the psychodynamic perspective, it is essential to work within their context and within their relational field, which would include the community, families, and professions. Even when working within a psychodynamic paradigm, the external world of the client needs to be held very firmly in mind in order to engage them effectively and consider their needs strategically. Clients who are often involved in statutory services tend to be the most vulnerable – requiring the involvement of multiple agencies (Evans 1996). It is, therefore, important for social workers to understand how clients’ context responds to them and vice versa, as this can be highly indicative of their state of mind that will provide invaluable information for how best to engage them. Therefore, intervention in isolation risks a potentially skewed view of their difficulties.
Psychodynamic Theory and Reflective Social Work Practice An ability to think before acting in a reflective manner is an essential requirement for social work engagement (Stevenson 2018). It is often argued that the projective
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process is deployed much more aggressively and frequently with more vulnerable individuals. The process organizes its world and those around it far more powerfully. This means that those on the receiving end of such projections are impacted more forcibly; hence, necessary skills are required to manage powerful projections and projective identification. Fundamental to psychodynamic approach in social work is the ability for the social worker to think about difficult, uncomfortable, and painful feelings and view them as communication that can be responded to in the right way and at the right time. This is no easy feat, particularly in the face of clients who may be in a crisis and who may be demonstrating violent or distressing and destructive behaviors. The reflective practice required from practitioners in these contexts is to disentangle their own feelings based on prior history with other service users, thereby creating a space for empathy and not allowing an excess of identification and enactment (Hinshelwood 2004; Evans 1996). This reflective experience requires an understanding of transference (Freud 1912; Klein 1952; Ruch 2005) in which social work practitioners may have redirected their unconscious emotions based on prior experiences with other clients, usually relating to experiences with authority figures, which may be their parents or other professionals, to other groups of clients, and the understanding of countertransference of the social workers (Heimann 1950; Corbett 2016) – feelings invoked by these groups of clients that require sensitive management and insight.
Psychodynamic Social Work Strategy The role of contemporary social work has been increasingly complex. It requires social workers to skillfully traverse many highly challenging social phenomena, societal structures, and cultural assumptions as well as powerful unconscious forces. Effective social work practitioners require an understanding of both external and internal phenomena to enable the ability to manage the balance between thinking, doing, and being as a basis of the “use of self” as a resource that they offer. The social work task demands a clear theoretical framework as a basis for social workers to plan and deliver each step (of social work activities) methodically and systematically. A well-thought-out theoretical formulation that is cognizant of clients’ predicament, the role of social workers in the context of their agency and its policies, procedures and the ethos of the community at any given time is, therefore, an essential aspect of an effective social work strategy and a basis for establishing relationships with clients. The most challenging clients require an understanding of the meaning of their behaviors especially when it involves the criminal justice system, like criminal offenses. The enactment requires understanding as a form of communication (Gordon and Kirtchuk 2008; Doctor 2003). An important way in which to access this meaning is via understanding transference and countertransference – social work practitioner-client relationship; often under the disturbed behaviors are psychotic anxieties relating to fragmentation. The task of a mental health professional is to
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enable such individuals to resist withdrawal or to regress from psychic reality – instead of facing reality and the demands of everyday life. An essential aspect of what could be an attempt at recovery is the development of insight and psychological thinking about the factors that underpin the disturbing behaviors and state of mind (Evans 1996). Attempting to make emotional contact with a traumatized and troubled state of mind is challenging for both the practitioner and the client. A response to clients’ concrete demands obfuscates an opportunity of understanding their more latent anxieties and the risk they pose to themselves and others. Overall, their behaviors can be best managed if practitioners are able to allow themselves to be emotionally impacted by the relationship they have with clients while maintaining enough distance to enable reflection during the process (Gutheil and Gabbard 1998) – this allows a more balanced view of the clients. Social workers need a model to enable them to understand communication and human suffering to manage themselves emotionally during the process, without resorting to defensive maneuvering such as withdrawing emotionally.
Psychodynamic Formulation of a Case Study The authors will bring this theory together when the social worker considers an assessment of a 35-year-old female, Ms. B, who has had a history of sexual abuse and severe neglect, chronic depression, anxiety, occasions of psychosis, and a diagnosis of borderline personality disorder. This woman had her own children removed due to severe neglect. With social work support, she began to make progress, and the children were returned to her care. However, matters deteriorated again, and the children were again removed from her care due to further neglect. Social services felt that they had given her many chances, but she was still unable to provide care for the children who were placed again in foster care. When the social worker met with Ms. B, he was struck at the poor and empty quality of her life and the complexities of essential needs. She was apparently in no position to resume the care of her children due to her own experience with trauma and abuse. Her inadequate welfare provision for children had somehow inflicted trauma and abuse on them. Considering a victim/perpetrator dynamic (Corbett 2016; Gutheil and Gabbar 1998), the social worker was simultaneously concerned with her manifestly passive, depressed, victim persona and the latent, perhaps very angry and vengeful woman due to incidents unconsciously leading her trauma and abuse to being re-enacted in her children (Motz 2016; Welldon 2011). This woman’s personality structure is highly complex and requires sophisticated understanding and management. In addition to her manifest depression and anxiety, it is essential to understand some of the unconscious and perhaps more destructive aspects if she is to be effectively helped and the risk she exposes her children to be assessed accurately. Exclusively seeing her as a victimized and lonely woman, who she indeed is, does not give a sufficiently dimensional impression of the specialist input she requires. She seems to demonstrate an example of one of the dysfunctional
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defenses called “an identification with the aggressor” (Ferenczi 1949; Freud 1936). It is a dysfunctional defense against the knowledge of the pain of previous trauma that comes at a great cost by exacerbating personal difficulties. It is often deployed by people who have been victimized and traumatized in their own lives in an attempt to master unprocessed trauma where “childhood trauma has been turned into adult triumph” (Stoller 1986). It is a significant driver for the intergenerational transmission of trauma and abuse. During the assessment process, the social worker had to manage his feelings of wanting to withdraw from her and to express his frustration at her very obvious errors leading to the harm suffered by the children, as well as her seeming oblivion to further risk of sexual abuse. However, an understanding of unconscious processes, especially projective identification, the repetition compulsion, and an identification with the aggressor, enabled the social worker to understand the complex psychological dynamics that Ms. B was caught up in, of which she had very little insight. This helped him to manage his relationship with Ms. B more sensitively and with more empathy during the assessment process, in line with child protection principles, which places the children’s welfare at the center of any recommendation and decision-making. Providing the children with the care that she never received herself but so gravely craved was perhaps a great undertaking for Ms. B. Her situation elicited a powerful and envious response, potentially fueled by resentment of the children as they were receiving the support and care that she previously did not. This prevents her from providing the children with a consistent standard of care. Factors mentioned above would need to be addressed in any psychotherapeutic work with Ms. B. Work includes any unconscious identification she has made on her own family, specifically her parents, who betrayed her and by whom she was sexually abused or despairingly longed to be provided protection from. These feelings of betrayal were re-enacted in her relationships with the social services personnel and her children. An understanding of both Ms. B’s more vulnerable and destructive aspects, albeit unconscious, would hopefully lay down the foundation for her to engage with the input that she so desperately required.
Cognitive Behavior Approaches in Mental Health This section introduces cognitive behavioral therapy (CBT) – a way of managing mental health clients. While mental health conditions may have a biological origin, for example, schizophrenia, bipolar disorders, the way we respond to the conditions and deal with it might give more power to the conditions. The success rate of this approach in dealing with a wide variety of challenging mental health conditions ranging from depression, anxiety to chronic pain, and sleep disorder have been empirically validated in numerous studies (Butler et al. 2006; Beck and Clark 1997). Cognitive behavioral paradigm is not a single school of thought; it embraces several approaches within the paradigm. Cognitive behavioral therapy is now established as a major psychotherapeutic approach and has a strong empirical basis for a range of difficulties, particularly anxiety disorders and depression (Beck et al. 1979).
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How People Change? Different schools of psychotherapy have different ideas about how people change. Indeed, the ideas have changed over time with more understanding of the human minds from different disciplines; the knowledge of mental health and wellness is also evolving (Goldstein and Siegel 2017). As such, different schools have fine-tuned their understanding of how people change. This is an ongoing process – human beings are complex, and many variables might affect these intrapersonal and interpersonal aspects.
Cognitive Behavioral Therapy as Theory of Change Beck is a pioneer in the school of cognitive behavioral therapy; Ellis has contributed a slightly different model of cognitive behavioral therapy called rational emotional behavioral therapy. Padesky and Mooney (1996) put the key ideas proposed by Beck and Ellis into a five-part generic model that the authors find very helpful in their clinical practice. Regardless of the schools, the basic premise is that human suffering is the result of faulty cognitions. These defective thinking biases implicate in the maintenance of specific problematic emotions and behaviors. The cognitive techniques could be utilized to make these cognitions more explicit and, in the process, assist clients to develop alternative useful and realistic cognitions. When default cognitions are corrected, emotions can be changed and behaviors can be managed or brought under control through cognitive and behavioral interventions that are tailored to treat these problems. The techniques include elements of both cognitive techniques and behavioral techniques such as: self-monitoring, identifying and challenging faulty cognitions and assumptions that maintain the issues and experiences, decatastrophizing, scheduling activities and behavioral experiments. Specifically, Padesky and Mooney’s (1990) five-part generic cognitive model is found to be helpful. The model outlines five domains: thoughts, physical reactions, moods, behaviors, and the environment. This model is grounded on the assumption that each element is an important aspect of life experience and that they are all interconnected. This model assumes that each area affects the others and that changes in one could lead to changes in all. We could use this model to understand mental health problems and to see how cognitive behavioral interventions could be used to deal with specific problems in different areas.
Cognitive Behavioral Therapy’s View of Mental Illness Cognitive behavioral therapy views mental illness as a result of how people view the situation that consequently affects the way they interpret the situation. The result of these views and interpretations are often manifested in a particular behavior or manner as a response to the situation.
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Aaron Beck’s theory of depression was based on the modern version of Hippocrates’ theory (Sullivan; Neale and Kendler 2000). The theory postulates that we are all susceptible to any mental health conditions; it could be biological and/or a triggering situation like stress. A good example of this would be that if an individual perceived his current state as hopeless and the individual tells himself that it is because the individual is useless, then the individual will starts to react and not try to work on the problem. Eventually, the condition will deteriorate and the prediction will cause itself to become true, also known as the self-fulfilling prophecy. Even in a situation in which one might be having auditory hallucinations, cognitive behavioral therapy would suggest that intervention would depend on how we think of these voices and how we react to them. Cognitive behavioral therapy is also used to treat psychoses and it has been proven that clients are able to develop new strategies to manage their symptoms better.
The Goal of Cognitive Behavioral Therapy The goal of clinical social workers using cognitive behavioral therapy is to help clients change effectively. Fundamentally, the primary goal of intervention in cognitive behavioral therapy is to enhance the clients’ subjective well-being and their increased feeling of well-being regardless of the reduction of their symptoms (Pinto et al. 2008). The overarching goal of the social worker using this approach could be accomplished using the following tasks. The social worker could: 1. Educate the clients about their mental health condition. The social workers need to help them understand the etiology and prognosis of the conditions. Through psychoeducation, social workers provide clients with information including sharing on the treatment plan. It is also vital for them to explain the nature of the conditions to empower the clients in the process. 2. Show the clients how they may monitor their thoughts to keep them in check. The clients could try out some exercises that can help them reconstruct more balanced thinking. This reality testing is another important task in providing help to the clients. 3. Instruct them with the principles and practice of problem-solving; this in itself is empowering as it may effectively address the actual problems that the clients might otherwise overlook. 4. Give constructive and corrective feedback on the clients’ behavior during the session. It is also important to share with them some techniques of selfmonitoring between sessions. They will benefit from this if they are given the rationale for the benefits of self-restraint, patience, and reflective delay. This is to control clients’ tendency to be reckless and impulsive when in a hypomanic state. 5. Arm the clients with strategies that help them to maximize planning, focusing, and repetition. This would help the client to overcome their disorganization and distractibility.
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As social workers, we do not prescribe any medication to our client; our primary goal is to help clients manage their distress using psychological and behavioral intervention. The treatment is often done in conjunction with motivational interviewing. We have to work along with clients based on their stages of change. The reason why stages of change are of such importance is because for the interventions to be meaningful – for the clients and for the clinical work to progress – the social worker needs to start from the stage where the client is at. At times, the clinical work may seem prematurely terminated, but it can still be a meaningful experience for the clients. The fact that clients are given an opportunity to respond to a relationship and draw out strengths and resources from their own capacities (Coker 1996) is itself empowering. There may be times that the social worker just needs to “plant a seed” for the clients and allow them to work on it after some contemplation.
Motivating the Client According to Prochaska et al. (1995), clients are often at different stages of change; for effective intervention, we need to direct different interventions to clients at a different stage of change. Prochaska et al. (1995) conceptualized the stages of change into five: pre-contemplation, contemplation, preparation, action, and finally maintenance/relapse. Pre-contemplation is when the client does not see that he or she has a problem. Contemplation, on the other hand, is when the client starts to doubt his or her perception of things, but the need to change is still ambivalent. When the client’s perception is shaken and leans toward change, he or she will start taking steps toward it. They may start reading about the situation, for example, but mostly nothing much will change. Change is when they are taking concrete actions – when they are working on the problem in the action phase. After active actions are taken then the client will move into a state of recovery. This is when they move into the stage of maintenance/relapse depending on his or her ability to maintain the change. If the client fails to sustain the change, then he or she may relapse back to the pre-existing state. At the different stages of change, the social worker needs to use different strategies to engage the client and provides intervention that may facilitate the client to move onto the next stage. For almost all clients, they are oblivious of the problems and have no insights to their situations. For example, even when a client is experiencing auditory hallucinations, he or she may still think that it is a “normal” experience. Some would think that they may have acquired some special power. Usually, they do not seek help even if they notice something is abnormal; they may still be bargaining with themselves that maybe the problem will resolve by itself. Building on the strength of the therapeutic alliance, social workers can then start collecting data that helps in case conceptualization. Figure 1 adapted from both the biopsychosocial-spiritual framework, and the 4 Ps along with cognitive behavioral formulation illustrates how to make sense of things. Social workers need to identify presenting problems (reason for treatment), precipitating (factors that trigger the
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Biological
Psychological
Social
Family history of mental illness
Poor coping
History of physical /emotional abuse
Spiritual
Poverty
Core beliefs
I am a failure I am unlovable
I am no one in society
God only loves if I am successful.
I am only happy/ accepted if I have money Triggering factors
I am unemployed!
Compensatory behaviors Precipitating factors/
Never stop chasing for money Maintenance cycle Situation
triggering event
Thoughts
Physical
Mood
Behavior Wife’s critics
Current predicaments
Perpetuating factors
Financial difficulties Rigid thinking
Low education/ society changes Lack of support in family
Mediating factors
Protective factors
Fig. 1 CBT case formulation
Open for help seeking Religious beliefs
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problem), predisposing (factors that fuel the problem), and the protective factors within the framework.
Understanding the Context Gambrill (1997) highlighted the importance of understanding behaviors in the context of clients’ environment to improve our assessment (Gambrill 1997; Cormier and Cormier 1991). The following will discuss more on assessment in cognitive behavioral therapy.
Assessment in Cognitive Behavioral Therapy It is crucial for social work practitioners to identify psychopathology by putting on cognitive behavioral therapy lenses. Using cognitive behavioral therapy to manage a hoarding disorder, social work practitioners need to conceptualize the symptoms and related challenges through processing information, understanding emotional attachment, and overvaluation of objects. Such cognitive deficits can allow and foster the development and sustainment of many irrational beliefs (Williams and Viscusi 2016). Clients with hoarding behaviors may present themselves with a set of fixed mentality that objects are precious and too valuable to be discarded. They would have assigned meanings to these objects, which might undermine the ability to dispose the items, for example, growing up during wartime in which things were hard to find. In the process of case conceptualization, practitioners have to be mindful of cultural expectations or differences as specified by the Diagnostic and Statistical Manual (DSM) (Rathod et al. 2015). It will also be useful to assess clients by looking at their beliefs systems – the cognitive triad (Beck et al. 1979). The cognitive triad comprised of three parts, clients’ belief about (1) themselves, (2) others, the world, and life in general, and (3) the future. Social workers can ascertain these belief systems via the following methods: • Direct questioning – no digression. This is exceptionally important when practitioners try to get insights on the faulty cognitions. • Homework assignments – a short write-up about how they view themselves, their lives, and the future. • In the Singapore context, practitioners who work with clients with low levels of literacy may want to propose a mobile voice recorder to audiotape their thoughts. Audios can be played during sessions with the help of visual aids, like diagrams. • Personal (and psychiatric) history of the clients – to generate hypotheses about what kind of life experiences had shaped clients to believe in what they believe. • Ultimately, the presentation of scenarios – for clients to elicit faulty cognitions through the sharing of life experiences in sessions.
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Case Example
Presenting Issues Mr. Eric, a 54-year-old gentleman, was brought to see the social worker because he was experiencing low mood and lethargy and had had no mood to engage in any activities. He was married with two school-going children. His wife was working as a salesperson to help the family finances. He had become very withdrawn, and that had caused his wife’s agitation. His symptoms included believing that he was useless because he could not provide sustenance for the family and failed to take on responsibilities of maintaining a stable income to support the wife and two children. He had gotten anxious when he was thinking of going back to work and had lost confidence in almost everything. He was fired due to some on the job mistakes he had made and was worried about his tarnished reputation. Current Situational Issues (Including Family Issues, Culture, and Community Issues) He had lived with his wife and children in a three-room flat, in an old estate in Singapore. He grew up in a traditional Chinese family of six and the parents. He managed to complete secondary education and had been working as a technician since he left school. He had worked hard for years and was promoted to a supervisory level. However, in his last employment, he had made some mistakes in his workplace which had put his colleagues at risk. Fortunately, the equipment was disabled in time to save some of the colleagues from getting injuries. The Board of Inquiry had held him accountable for breaching the safety regulations. Since the incident, he had been laid off from work where he had spent 30 years of his life doing. Cognitive Behavioral Therapy Case Formulation Mr. Eric is feeling useless as he is currently not working. He is distraught; blaming himself for not being able to provide for his family. He feels inadequate; he has no capabilities to do things and to make full use of himself. His condition has triggered wife to confront him about these negative symptoms. His two children are too scared to talk to him because he often seems unapproachable and unresponsive. Wife’s lack of insight into his condition has worsened the situation. His sense of self is significantly affected.
The Following Is a Case Example of an Assessment Using Cognitive Behavioral Approach Sharing of case conceptualization is recommended to reach a common understanding of what the goals of the treatment are (Beck 2011). The sharing can also help clients alleviate their sufferings. Most clients would feel better when they know what to expect from the therapy sessions, and when they recognize the support that the therapists are providing. When both expectations are laid on the table, and the support system is strengthened, the clients are more likely to proceed with the treatment plan.
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Besides identifying and addressing faulty cognitions, social work practitioners are expected to understand clients’ life predicament – to ascertain and eliminate causes (e.g., biomedical/organic causes, developmental delays/deficits, and other issues pertinent to immediate family and social environment) (Gambrill 1997). For instance, Mr. Eric’s unemployment may be due to unexpected economic situations, or medical conditions that have caused him not to find a job. It is crucial for us to have a holistic appreciation of the case before we can work collaboratively with clients on the treatment plan.
Treatment Plan in Cognitive Behavioral Theory By using the principles of cognitive behavioral theory, the social worker will be able to help a person to challenge his black and white thinking, that is, he is either a successful person or a complete failure. This enables him to shift his mind and begin looking at things from a different lens. The goal of challenging his erroneous beliefs is aimed at guiding him to shift his values and to face criticism head-on. There were moments when Mr. Eric could not bring himself to do so; the social worker then encouraged him to utilize some of the mindfulness-based approaches that teach individuals to resist the temptation to react; Steve Hayne’s has termed this process as psychological flexibility. After some time, he started partaking in activities and got himself a part-time job. This “break” from work is encouraged to help him cope with present situations and learn to adapt to the new demands of the workforce. As part of the recovery process, the social worker had worked with him in educating him on the low mood and shedding some insight on his state of affairs. Besides guiding him and assisting him in strengthening positive coping strategies, the social worker had proposed to him a simple problem-solving approach should he need it in times of distress, with the following steps: • • • • • •
Identify the problem. Prioritize the problem to be solved. Decide on the goals and set targets for self. Work on the steps that are necessary to achieve the targets. Review and recognize achievement. Reward self.
Cognitive Therapy, Mindfulness-Based Cognitive Behavioral Theory, and Acceptance and Commitment Therapy Current cognitive behavioral theory approaches integrate the traditional practices of mindfulness. Instead of focusing on erroneous beliefs, the clients are encouraged to take a step back and refrain from engaging in compulsive/impulsive behaviors but instead look at the situation objectively and calmly before deciding on any course of action (Segal et al. 2012). Steve Hayes in his acceptance and commitment therapy has integrated mindfulness into his intervention. He introduced intervention like
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helping clients develop psychological flexibility, where the clients are encouraged to heighten their awareness and presence of mind to the thoughts, feelings that are intruding, and choose not to respond to them, but to focus on their goal (Hayes et al. 2011).
Cultural Issues for Consideration in Cognitive Behavioral Theory The practice of any clinical work has to take cultural issues into consideration. The belief system of the clients and the practitioners are equally fundamental – belief systems can influence the outcome of an intervention. One important consideration would be the “concept of work” in the Asian culture. It can be explained that Mr. Eric’s wife (a case study presented above) had reacted strongly to the situation due to her perceived cultural expectations. Mr. Eric was unable to fulfill the set of expectations about work that resulted in the reinforcement of faulty cognition that he was useless and a failure.
Cognitive Behavioral Theory and Reflective Social Work Practice The reflective practice arose from Schon’s mistrust of technical rationality – it fails to recognize that understandings of concepts are developed from the integration of theory and practice rather than a simple application of “scientific” knowledge to the practice field (Kinsella 2010). Reflective social work practice replaces the rigidity of technical rationality; a more fluid approach in which a greater emphasis is placed on integrating both theory and practice. The process involves tailoring theoretical and research-based knowledge (what Schon refers to as the “high ground”) to fit the circumstances encountered in specific practice situations (“the swampy lowlands”) (Thompson and Pascal 2012). This translates the ability of social workers to link their own clinical experiences with knowledge derived from research to predict the efficacy of the intervention. Classical cognitive behavioral therapy would encourage social workers to challenge the faulty thought processes of clients, while the presentday approaches like mindfulness practice would advise clients to pause and look at the options presented before them before eliciting any response – to train clients not to react impulsively. As a reflective social work practitioner, we need to question and reexamine what we know (theory) and how we do (practice) what we are doing. Essentially, we need to critically look into instances such as whether a change in faulty cognition will necessarily improve the clients’ well-being. Well-being could be improved subsequent to clients’ realization of their own emotions and meaning-making.
On Learning Social workers, like many other professionals, need to constantly engage in various levels of learning. Learning could be at various levels. Social workers could engage in self-reflections, in learning from the experts, and from the clients.
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On Learning from the Experts for Social Workers Irrespective of the school of thought, social workers when faced with clients who present with mental health challenges are advised to adopt Erickson’s (1993) deliberate practice framework highlighted by Miller et al. (2017) – it contains four key elements, namely: 1. A focused and systematic effort to improve performance pursued over an extended period; 2. Involvement of and guidance from a coach/teacher/mentor; 3. Immediate ongoing feedback; 4. Successive repetition and refinement via solo performance outside of performance (Miller et al. 2017).
On Learning from the Clients Patrick Casement (1985), a psychodynamic trained social worker, in his book On Learning from the Patients, has reminded us of the value of learning from our clients. The role of supervision in social work allows social workers to guide their practice. An internal supervisor will work on cases with the assigned supervisee on topics such as personal biases – preconceived notions or conceptual misunderstandings. Social workers might have underestimated the power of their biases or unresolved issues in the past or present that could easily trigger the “sleeping” (unconscious) mind. Values play an important role in cognitive behavioral therapy. Social workers’ values may not be the main focus of analysis; they still have to be cognizant of their personal values that could affect the working relationship with clients. Schon (1983) emphasized the significance of reflecting both in and on action. Reflection in action is to reflect on behavior as it happens, whereas reflection on action reflects the behavior after an event – to review, analyze, and evaluate the situation. Another term coined was “knowing in action” to describe tacit knowledge. Unlike cognitive behavioral therapy, psychodynamic-oriented social workers place an emphasis on the process of projective identification, which provides “fertile grounds for the client blame and avoidance of the therapist responsibility” (Grotstein 1981; Whipple 1986). This issue entails competing debates in which different schools of therapy present different concepts and opinions. In this context, it will suffice to suggest that every social worker needs to raise self-awareness and to seek supervisory consultations if the issues are beyond the area of expertise. Further, Casement (1985) urged social workers to learn from their mistakes to improve and enrich their clinical experiences through constant reflection, which will help us gain insight into the psyches of people.
Conclusion Psychodynamic and cognitive behavioral approaches in working with people with mental health issues highlighted in this chapter are the two important approaches that have significant influence on the development of social work. Pioneers in social
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work have drawn heavily on these two approaches to devise ways of working with clients with various problems. However, similar to the historical development of psychotherapy that has evolved over the years, practitioners in the field are urged to build up their understanding and the application of knowledge when engaging their clientele. Issues can present themselves as far more complex; the need to constantly review existing treatment models and learn to develop new ones to improve clients’ quality of life is central. As new approaches emerge, practitioners need to keep abreast of all the developments. Furthermore, practitioners are required to master clinical skills, irrespective of differences in schools of thoughts, to be able to establish good relationships with their clients. As pointed out by Scott Miller (Duncan et al. 2010), the pivot of the relationship is the practitioner-client alliance.
Cross-References ▶ Medical Perspective on Mental Health ▶ Psychological Perspective ▶ Trauma-Informed Social Work Practice with Children and Youth
References Armstrong D, Rustin MJ (eds) (2014) Social defences against anxiety: explorations in a paradigm. Karnac Beck J (2011) Cognitive behavior therapy. Basics and beyond. Guilford, New York Beck A, Clark DA (1997) An information processing model of anxiety: automatic and strategic processes. Behav Res Ther 35:49–58 Beck et al (1979) Cognitive therapy of depression. Guilford Press Breuer J, Freud S (1893–1895) Studies on hysteria. Reprinted by Basic Books Inc, 2000 United States of America Butler et al (2006) The empirical status of cognitive-behavioral therapy: a review of meta-analyses. Clin Psychol Rev 26:17–31 Casement P (1985) On learning from the patient. Routledge, New York Coker M (1996) Ending where the client is: a psychodynamic approach to forced terminations. In: Edward J, Sanville JB (eds) Fostering healing and growth: a psychoanalytic social work approach. Jason Aronson, Northvale, pp 353–371 Cooper et al (2003) Controlled trial of the short- and long-term effect of psychological treatment of post-partum depression. 1. Impact on maternal mood. Br J Psychiat 182:412–419 Cooper, Lousada (2004) Borderline welfare: feeling and fear of feeling in modern welfare (Tavistock Clinic Series). Routledge Publishing Corbett A (2016) Psychotherapy with male survivors of sexual abuse, the invisible men. Routledge Cormier WH, Cormier LS (1991) Interviewing strategies for helpers: fundamental skills and cognitive behavioural intervention. Brooks & Coles, New York Doctor R (2003) Dangerous patients: psychodynamic approach to risk assessment and management. Karnac Books, London Duncan B, Mille S, Wampold BE, Hubble MA (eds) (2010) The heart and soul of change : delivering what works in therapy, Second Edition: American Psychological Association. Kindle Edition
9
Individual Approach to Mental Health from a Psychodynamic and. . .
197
Ericsson K, Krampe RT, Tesch-Römer C (1993) The role of deliberate practice in the acquisition of expert performance. Psychol Rev 100(3):363–406 Erickson MH, Rossi EL (2014) Experiencing hypnosis: therapeutic approaches to altered states. The Milton H. Erickson Foundation Press. USA Evans FB (1996) Harry Stack Sullivan: interpersonal theory and psychotherapy. Routledge, New York Ferenczi (1949) Confusion of the tongues between the adults and the child—(The language of tenderness and of passion). Int J Psychoanal 30:225–230 Fonagy P, Target M (2003) Psychoanalytic theories: perspectives from developmental psychopathology. Whurr Publishers Limited Fosha D (2000) The transforming power of effect. Basic Books, New York Freud S (1912) The dynamics of transference. The standard edition of the complete psychological works of Sigmund Freud Freud S (1920) Beyond the pleasure principle. Dover Publication, New York Freud S (1925) An autobiographical study. In: Stachey (ed) The standard edition of the complete psychological works of Sigmund Freud, vol 20. Hogarth Press, pp 157–173 Freud S (1936) The ego and the mechanism of defense. International University Press Gambrill E (1997) Critical thinking and the process of evidence-based practice. Oxford University Press Goldfried MR, Davison GC (1994) Wiley series in clinical psychology and personality. Clinical behavior therapy, Exp edn. Wiley Goldstein B, Siegel DJ (2017) Feeling felt: cocreating on the emergent experience of connection, safety, and awareness in individual and group psychotherapy. In: Solomon M, Siegel D (eds) How people change: relationships and neuroplasticity in psychotherapy. W. W. Norton, New York, pp 273–289 Gordon JH, Kirtchuk G (2008) Psychic assault and frightened clinicians: countertransference in forensic settings. Karnac Books, London Graham MJ (2017) Reflective thinking in social work: learning from student narratives. Routledge, London Greenberg L (2002) Emotion-focused therapy: coaching clients to work through the feelings. American Psychological Association, Washington, DC Greenberg L (2004) Emotion focused therapy. Clin Psychol Psychother. 11(1):3–16 Greenberg L et al (2002) Client’s experience of empathy. In: Watson J et al (eds) Client-centered and experiential psychotherapy in the 21st century: advances in theory, research and practice. PCCS Grotstein JS (1981) Splitting and projective identification. Jason Aronson Gutheil, Gabbard (1998) Misuses and misunderstandings of boundary theory in clinical and regulatory settings Am J Psychiatry 155:409–414 Hayes S, Strosahl KD, Wilson KG (2011) Acceptance & commitment therapy: the process and practice of mindfulness change. Guilford, New York Heimann P (1950) On counter-transference. Int J Psychoanal 31:81–84 Hinshelwood RD (2004) Suffering insanity: psychoanalytic essays on psychosis. Psychology Press Huges D (2007) Attachment-focused therapy. Guilford Press Knaus WJ (2012) The cognitive behavioral workbook for depression, second edition: a step-by-step program. New Harbinger Publication Kinsella EA (2010) Professional knowledge and the epistemology of reflective practice in Nursing Philosophy. Blackwell Publisher Klein M (1952) Some theoretical conclusions regarding the emotional life of the infant. In: The writings of Melanie Klein, volume 8: envy and gratitude and other works. Hogarth Press, London, pp 61–94 Klein M (1959) Our adult world and its roots in infancy. SAGE Marsella, Yamada (2000) Handbook of multicultural mental health: chapter 1. The study of culture and psychopathology: fundamental concepts and historic forces. Academic Press Miller et al (2017) Professional development: from oxymoron to reality. The cycle of excellence. Wiley
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M. H. Low and S. Stevenson
Mitcheson L, Maslin J, Meynen T, Morrison T, Hill R, Wanigratne S (eds) (2010) Applied cognitive and behavioural approaches to the treatment of addiction: a practical treatment guide. Wiley, Chichester Motz A (2016) The psychology of female violence: crimes against the body. Routledge NASW (2017) Code of ethics. https://www.socialworkers.org/About/Ethics/Code-of-Ethics/Codeof-Ethics-English Norcross JC (ed) (2002) Psychotherapy relationships at work: therapist contributions and responsiveness to patient needs. Oxford University Press, New York Ogden T (1982) Projective identification and psychotherapeutic techniques. Jason Aronson Padesky CA (1996) Developing cognitive therapist competency: teaching and supervision models. In: Salkovskis PM (ed) Frontiers of cognitive therapy. Guilford Press, New York, pp 266–292 Padesky CA, Mooney KA (1990) Clinical tip: presenting the cognitive model to clients. Int Cognit Ther Newsl 6:13–14 Pinto A, Greenberg B, Grados M, Bienvenu O, III, Samuels J, Murphy D, . . . Shugart Y (2008) Further development of YBOCS dimensions in the OCD collaborative genetics study: symptoms vs. categories. Psychiatry Res 160:83–93 Persons JB (2008) The case formulation approach to cognitive–behavior therapy. Guilford Press Prochaska JO, Norcross JC, DiClemente CC (1995) Changing for good. Avon, New York Rathod et al (2015) Individualized case formulation. In: Rathod et al (eds) Cultural adaptation of CBT for serious mental illness: a guide for training and practice. Wiley Press Rogers CR (1951) Client centered therapy. Houghton Mufflin, Boston Ruch G (2005) Relationship-based practice and reflective practice: holistic approaches to contemporary child care social work. Wiley Publishing Schon DA (1983) The reflective practitioner: how professionals think in action. Basic Books, New York Segal Z, Williams M, Teasdale J (2012) Mindfulness-based cognitive therapy for depression. Guilford, New York Simon G, Beck A (2014) Cognitive behaviour therapy: a guide for the practising clinician, vol 1. Routledge Press, New York Shedler J (2010) The efficacy of psychodynamic psychotherapy in American Psychologist. American Psychology Association, New York, pp 98–109 Stevenson S (2018) Risk and parenting assessments in child welfare court proceedings – a psychodynamic approach. J Soc Work Pract 32:1–11 Stern DN (2000) The interpersonal world of the infant: a view from psychoanalysis and developmental psychology. Routledge Publishing Stoller (1986) Pervasion: the erotic form of hatred. Karnac Stolorow RD (1997) Dynamic, dyadic, intersubjective systems: an evolving paradigm for psychoanalysis. Psychoanal Psychol 14(3):337–346 Sullivan HS (1968) The interpersonal theory of psychiatry. W. W. Norton, New York Sullivan PF, Neale MC, Kendler KS (2000) Genetic epidemiology of major depression: review and meta-analysis. Am J Psychiatry 157:1552–1562 Thompson, Pascal (2012) Developing critically reflective practice. Reflective practice: international & multidisciplinary perspectives. 13(2) Trevithick P (2011) Understanding defences and defensiveness in social work. J Soc Work Pract 25(4):389–412 Watson J, Goldman RN, Warner MS (eds) (2002) Client centered and experiential psychotherapy in the 21st century: advances in theory, research and practice. PCCS Books Wells A (1997) Cognitive therapy of anxiety disorders: a practice manual and conceptual guide. Wiley Williams M, Viscusi JA (2016) Hoarding disorder and a systematic review of treatment with cognitive behavioural therapy. Cogn Behav Ther 45(2):93–110 Whipple (1986) Discussion of “The Merits and Problems with the Concept of Projective Identification” by Janet Finell. Psychoanal Rev 73B(2):121–128
An Overview of Social Work Approaches in Working with Families of People with Serious Mental Illness
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Abner Weng Cheong Poon and Winnie W. Kung
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Impact of Mental Illness on Families and Carers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Objective Burden . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Subjective Burden . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Positive Impact . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Family Interventions for Serious Mental Illnesses . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . What Do Families Need? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Elements and Forms of Family Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Family Intervention as an Evidence-Based Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Why Family Intervention Works? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Barriers in Provision of Family Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Emphasis on Individual-Focused Treatment Models . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Structural Barriers to Family Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Lack of Cultural-Sensitive Family Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Families commonly assume the role of providing care to their relatives with serious mental illness in the community. Caring for someone with a serious mental illness can often result in negative consequences such as disruption in family activities, poor psychological and physical health, and diminished quality A. W. C. Poon (*) School of Social Sciences, University of New South Wales, Sydney, NSW, Australia e-mail: [email protected] W. W. Kung Fordham University, New York, NY, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_8
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of life. Social work, with its unique emphasis on systems theory, can provide a useful understanding of the relational dynamics between the people with mental illness and their families and help ameliorate such negative interactional cycles. With the strengths perspective, social workers can also recognize and support families’ resilience and positive attitudes in caregiving. Family interventions have shown robust effects in reducing patient symptomatology and relapse rate and in enhancing their functioning. They have also improved quality of life of both patients and their families, bettered communication, and reduced negative expressed emotions within families. Key elements of family psychoeducation include education about the illness, skills training in problem-solving and communication, and social support. Partnership with carers in the treatment process is also crucial. Despite evidence supporting the effectiveness of family interventions, notable barriers that limit the implementation of this evidence-based practice include the emphasis on individual-focused models, limited financial resources, and the lack of skilled family-oriented workers. By aligning with the current focus on recovery in the mental health field, social workers should utilize the systems perspective in their practice to support the recovery of people with mental illness by assisting them and their families to lead more productive lives in the community. Keywords
Families · Carers · Caregiving · Family intervention · Burden · Mental health and serious mental illness
Introduction Families have played a significant role in the lives of people with mental illness (Lefley 2009). Following the closing of psychiatric hospitals in the 1960s and 1970s in the USA, UK, and other countries, patients were discharged into the communities. Care of people with mental illness was then shifted from institutions to communities. For many, families took up the major role in caregiving. This deinstitutionalization movement was fuelled by increasing advocacy for human rights and the recognition of poor conditions and discriminatory treatment of people with mental illness in psychiatric facilities reported globally (Burdekin and Gallagher 1998). However, support was not provided to the families as they faced their challenging role in caregiving. In social work, the systems perspective has contributed to the understanding of the impact of individuals’ mental illness on the families caring for them on one hand and how families can influence the trajectories of individuals’ mental illness on the other (Bland et al. 2015a). In addition, environmental factors such as healthcare resources and legal provisions (more discussion appears in ▶ Chap. 24, “Legal Provisions, Advocacy, and Empowerment” of this book), as well as cultural perception of mental illness, also influence the experience of families. The quality and
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accessibility of mental health services play a critical role in shaping the impact of mental illness on families. Moreover, families have been seen as allies in treatment for persons with mental illness (Lefley 2009; Thorning and Dixon 2016) as they are an integral part of patients’ support systems in the community. Given that a high percentage of people with mental illness have contacts with their families (Morgan et al. 2012; Thorning and Dixon 2016), the social work profession with its unique systems view has an important role in working with both people with mental illness and their families to reduce the stress for both parties and, from a strengths perspective, to bring forth what they each can offer to one another in the caregiving process (Bland et al. 2015b; Chen and Greenberg 2004). Society’s perspective toward families in mental health has shifted considerably over time. For example, in the past, when knowledge of mental illness was inadequate, mothers of people with schizophrenia were blamed and labeled as schizophrenogenic mothers (Neill 1990). Some studies that looked at how families’ communication patterns, such as double-bind, “caused” family members to “split” cognitively to adapt to the pathological environment (see chapter by Bateson et al. (1956)) also resulted in the notion of schizophrenogenic families (Morris 2012). With increasing knowledge about biological factors involved in the development of mental illness (Healy 2016), and the advocacy movement of families of patients with mental illness, for example, the National Alliance on Mental Illness (NAMI) in the USA (Lefley 2009), blaming of families as causes of serious mental illnesses is now much less common in the field. More comprehensive discussion of the various perspectives on the etiology of mental illness can be found under Part II of this book. The notion of expressed emotion yielded many significant findings in studies relating families’ communication patterns with patients’ mental health outcomes. High expressed emotion, as characterized by family members’ hostility, criticism, and emotional over-involvement toward the person with mental illness, was found to reduce patients’ functioning and shorten the period between relapses (Kavanagh 1992; Wearden et al. 2000). Although some interpreted the research findings as blaming families for worsening the conditions of the patient, the findings sparked family interventions that aimed to help families adapt to their caregiving role and reduce their highly charged and emotionally intense interactions with their relatives (Wearden et al. 2000). As a result, these studies helped to improve the quality of life for both the patients and their families. Increasing recognition of the rights and privacy of people with mental illness in psychiatric services has resulted in families and carers not being provided with adequate information about their relatives and sometimes being shunned or sidelined in the treatment process (Rowe 2012; Thorning and Dixon 2016). In recent years, family advocates, researchers, and practitioners have argued for involving families in the treatment planning of people with mental illness. Families are increasingly being recognized as collaborators and allies in the treatment process. In this chapter, we shall address the impact of mental illness on families and carers, the benefits of family interventions for individuals with serious mental illness (hereon as patients), and the barriers that need to be addressed in order to provide such interventions more effectively. Although we acknowledge that family therapy is used by mental health
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workers in their practice, especially with patients and families affected by milder mental health issues, we will not be discussing family therapy in this chapter. This is because we are focusing our discussion on patients with serious mental illnesses which include schizophrenia and schizophrenia spectrum disorders, bipolar disorders, and other psychotic disorders. We shall use family/carer interchangeably to describe people who provide some caring responsibilities to their relatives/friends with mental illness while acknowledging that people with mental illness may not consider themselves as needing a carer and that their families/friends may not consider themselves as carers to their loved ones (Lawn and Mcmahon 2014).
Impact of Mental Illness on Families and Carers Serious mental illnesses compromise individuals’ cognitive and affective functioning. When these patients are in an actively psychotic state, they can lose contact with reality through delusions and hallucinations, and at other times they can also become very inert and withdrawn. Such symptomatology can be debilitating to their day-today functioning and can be very disturbing to people around them, especially their family members. Because of their compromised level of functioning, they need a lot of assistance, and families often get involved in providing assistance and protection. These mental illnesses also have relapsing courses requiring long-term care, thus putting chronic strain on the carers (Thorning and Dixon 2016). The impact on families who are caring for someone with mental illness has been well documented in numerous studies. Early studies exploring the experience of family members found largely negative effects from caring for someone with mental illness, as carers bore the brunt of the burden of care for their ill relatives with few pertinent services in the community shortly after deinstitutionalization (Grad and Sainsbury 1968). The challenge in caregiving to people with serious mental illness seems to persist to date (Caqueo-Urízar et al. 2017; Poon et al. 2018b; Thorning and Dixon 2016). Diverse negative effects on carers include disrupted relationships, psychological distress, and financial difficulties (Kung 2016a; Lin et al. 2018). Researchers have developed the notion of caregiving burden to capture these negative effects experienced by families. Objective burden refers to challenges imposed on carers’ activities, relationships, health, housing, and finance; subjective burden refers to individuals’ perception of the emotional challenges and difficulties in caregiving (Schene et al. 2006). Studies have indicated that the degree of caregiving burden was mediated by factors such as levels of appraisal of the illness, social support, coping strategies, and relationship between family and patient (Joyce et al. 2000; Zegwaard et al. 2011).
Objective Burden The most commonly reported burden experienced by families is the disruption of their daily activities when caring for someone with mental illness (Kung 2016b). They may need to put their own activities on hold or curtail them in order to care for
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their loved ones. Many studies reported that carers often felt socially isolated (Hayes et al. 2015). Some families reported not attending social gatherings out of worries about leaving the person with mental illness alone at home or fear of embarrassment or shame due to patients’ sometimes disruptive or socially inappropriate behaviors (Kung 2016b). Some carers only shared their challenges with some close friends, as they perceived that most people would not understand or were worried that others would judge them. Some carers reported finding that their relatives and friends avoided visiting or socializing with them (Kung 2016b). Relationships between different family members may be affected as the primary carers may sacrifice their relationships with other relatives while focusing on their responsibilities caring for the person with mental illness (Caqueo-Urízar et al. 2017). Siblings of people with mental illness may feel that their parents give more attention to their siblings (Bowman et al. 2015). Likewise, spouses of the primary carers may feel neglected; poor relational and sexual satisfactions have also been reported (Lawn and Mcmahon 2014). People with mental illness who themselves are parents may experience additional challenges in managing their parenting responsibilities and mental health. Many studies in the last decade examined the needs of young children and their parents with mental illness (Campbell et al. 2012). Children affected by parental mental illness are more likely to have behavioral problems and feel isolated and have higher risk of developing mental illness (Reupert and Maybery 2016). Parents with mental illness may need coaching and emotional support in parenting and community or home-based interventions (Reupert and Maybery 2016). Challenges of parents with serious mental illness are discussed more comprehensively in ▶ Chap. 22, “Parenting Challenges for Persons with a Serious Mental Illness” of this book. Carers’ experience of poor mental health is well established (Jansen et al. 2015). They tend to develop anxiety disorder, depression, or both. Studies have also documented that carers may experience poor sleeping pattern, psychological distress, and worries (Jansen et al. 2015). Carers seeking psychological or psychiatric treatment for their own mental health problems has also been reported (Kung 2016b). Poor physical health status of carers that deteriorated significantly over time has been reported recently (Poon et al. 2017; Thunyadee et al. 2015). Some carers experience some somatoform expression of stress such as pain and fatigue due to long-term caregiving responsibilities, and they tend to neglect their own physical health (Thunyadee et al. 2015). Due to overwhelming caregiving responsibilities, financial burden, or personal neglect, carers often do not maintain a healthy lifestyle. A recent study reported that carers of young people with early psychosis have a high risk of diabetes, being overweight, and having other long-term physical health problems (Poon et al. 2018a).
Subjective Burden Families also worry about long-term care of their loved ones with mental illness. People with serious mental illness tend to have difficulty finding employment and
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lack independent living skills; thus parents are often very involved in supporting them financially and in day-to-day care. This burden of care becomes increasingly poignant as the parents age and begin to have their own health problems. They often worry about who will take care of their mentally ill children when they can no longer care for them (Kung 2016b). Siblings who take over the caregiving responsibilities when parents are gone may also experience caregiving burden and psychological distress (Bowman et al. 2015). Carers also reported experiencing grief over their loved ones’ mental illness and the related lost opportunities in life (Miller et al. 2008). This sense of grief is clearly documented in studies of parents of children with mental illness. Carers’ levels of grief were noted to be related to the deterioration of the functioning levels of their relatives over time (Poon et al. 2017). The prolonged grief in carers of people with long-term mental illness is often not recognized and neglected by mental health professionals (Poon et al. 2017). Overall, carers perceived their quality of life to be poor (Hayes et al. 2015). Studies conducted in various countries showed that carers experienced poorer quality of life than the general population, and such poor quality persisted over time (Hayes et al. 2015; Poon et al. 2017). Carers’ perception of their quality of life was found to be closely related to their own physical and mental health and to their perceived caregiving burden (Hayes et al. 2015). Carers’ quality of life was also found to be related to patient-related factors such as psychiatric symptoms and functioning (Boyer et al. 2016). Given the immense burden of care that families experience, social workers should consider assessing the needs and well-being of family members as a routine practice. In addition, social workers should consider ways to ease carers’ stress by educating families about mental illness and its effects, medications, and resources. Providing family intervention is an important option, which will be discussed more comprehensively later.
Positive Impact While there are negative impacts from caregiving, some families are able to appreciate the experience as positive transformations when they manage to cope with the challenges. Some carers were able to experience a deepening sense of self-awareness and inner strength and greater capacity to empathize with those who were more vulnerable in society (Zauszniewski et al. 2010). Some relatives reported seeing themselves become stronger, more tolerant, less judgmental, and more sensitive toward others (Lukens and Thorning 2011). Others found the positive effects of caregiving by achieving a sense of purpose in life and altruism (Chen and Greenberg 2004). Most carers did not choose this role for themselves but rather acted out of a sense of responsibility they get involved in the care for their ill relatives (Lawn and Mcmahon 2014). Many, however, accepted the role positively and demonstrated devotion to their loved ones (Kung 2016a; Thorning and Dixon 2016). Moreover, caregiving could sometimes be reciprocal as carers also received emotional and practical help from the family members for whom they cared (Chen and Greenberg 2004; Coldwell et al. 2011). Caregiving relationships were reported to be rewarding
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for both carers and recipients of care (Coldwell et al. 2011). Limited studies have investigated the positive effects of caregiving; as a result, understanding of the transformation process and benefits of caring for people with mental illness is inadequate. Coming from a strengths perspective, it is important for social workers to embrace families’ experience of personal growth and the role of patients in contributing to these gains as they facilitate the journeys of recovery for both patients and their carers simultaneously.
Family Interventions for Serious Mental Illnesses Given the chronic nature and the relapsing course of serious mental illnesses like schizophrenia, bipolar, and other psychotic disorders, and their debilitating impact on patients’ cognitive and psychosocial functioning, family involvement in caregiving is often necessary. Family interventions have been developed to help families with the immense challenges in assuming the caregiving role and the possible mutually reinforcing negative interactions between carers and patients that ultimately worsen the illness trajectory. In the following section, we shall examine (1) what these families may need in order to ease the burden of care and facilitate patient recovery; (2) the key elements and forms of family interventions; (3) research findings that indicate family intervention as an evidence-based practice; and finally (4) why family intervention works.
What Do Families Need? The positive symptoms of schizophrenia, bipolar, and other psychotic disorders which manifest as the presence of delusions, hallucination, and disruptive behaviors and the negative symptoms that manifest as the absence of certain behaviors in the form of inertia and paucity of affects may cause relatives to feel anxious, angry, guilty, sad, and frustrated. These feelings of relatives may intensify their expression of criticism and overprotection of the patient (Anderson et al. 1986; Kavanagh 1992). Because of the core psychological deficits these patients experience, they are particularly vulnerable to internal and external stimuli (Anderson et al. 1986). Thus, families’ intensely expressed emotions and behaviors are likely to exacerbate patients’ stress and lead to greater vulnerability to relapse. Such mutually reinforcing cycles of negative interactions need to be stopped (Kung et al. 2012). Very often the ways that patients tend to react and what may help them could be counterintuitive to many carers and clinicians (McFarlane 2016). Thus, carers need knowledge about the nature and course of the illness so that they can form realistic expectations of patients’ functioning and the illness trajectory and keep pace with their gradually increasing capacity without exerting undue demands (McFarlane 2016). Families also need to be coached on effective communication with their ill relatives to reduce the escalation of these expressed emotions that causes excessive stimuli and stress to patients. They also need coping strategies to handle the immense burden of care and resolve problems and conflicts arising in the caregiving process.
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Such support to families could lead to calmer family interactions which not only benefit the carers but also delay patient relapse (Hooley 2007). Given the immense stress experienced by these families and their social isolation, it is also important to provide emotional and practical support as they go through the emotional upheavals resulting from the relapsing cycles of the illness. Crisis intervention and home-based services would also be helpful during critical periods. Respite care may sometimes be necessary for carers as well so that they have some space to recuperate from the burden of care. Moreover, support not only from professionals but from other carers who have had similar experiences is very important as they are able to empathize and share their experiences with each other. Since the continual use of psychotropic drugs is of paramount importance in helping patients maintain their mental functioning, families need to be educated to help them support patients’ medication compliance and consult with the psychiatrist regularly. To facilitate patients’ attainment of their longer-term recovery goals, families need help to understand and support patients in completing their educational goals and securing employments at the level they can achieve. This not only fulfills the goals of their loved ones with mental illness but also provides a source of hope and reduces dependence, thereby easing the caregiving burden (Thorning and Dixon 2016). Due to the debilitating effect of these serious mental illnesses, patients often are not able to maintain independent living and rely on services and government benefits to satisfy their tangible and psychosocial needs. Due to the myriad of service provisions and the complex bureaucracies in the mental health and government systems, families often need information about community resources and assistance in navigating them to gain access to needed services and benefits. The aims of family interventions are two-pronged: to improve conditions for persons with mental illness and those of their families. For persons with mental illness, improvement of their clinical outcome and functioning levels is the main goal. Key targeted areas of clinical outcomes include reduction of psychiatric symptoms, relapses, and hospital stays. Functional outcomes involve social and occupational functioning such as employment, independent living skills, and quality of social relationships. Family interventions also aim to reduce carers’ stress so as to enable them to support their ill relatives, so that they can improve their own quality of life and attain some of their own life goals in the recovery process.
Key Elements and Forms of Family Interventions In response to the needs of caregiving families and to professionals’ increasing recognition of families as allies and indispensable partners in the treatment process, numerous family interventions have been developed and researched. They are basically grounded in psychoeducation which integrates educational elements and therapeutic theories (Thorning and Dixon 2016) such as family systems and problem-solving. According to the World Schizophrenia Fellowship (1998), family intervention is a structured method for incorporating patients’ family members, other relatives, and friends into acute and ongoing treatment and rehabilitation.
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Family psychoeducation includes cognitive learning such as information about the etiology and course of the illness, medication, treatment management, community resources, and service coordination to facilitate community integration. It also involves imparting knowledge and skills to improve family communication and addressing both patients’ and carers’ expectations, emotional reactions, and distress. Family members are helped to maintain clear boundaries through appropriate lowkey direct communications and to share both their positive and negative thoughts and feelings toward each other. Clinicians can coach carers to express themselves calmly, clearly, and briefly and to avoid critical and hostile comments as well as nagging and emotionally charged exchanges. Carers are guided on implementing structured problem-solving strategies and coached on individualized coping and rehabilitative strategies. Finally, facilitating the expansion of social support networks, integration with the community, and crisis planning with professional involvement are also essential. In family intervention, the family is not the object of therapy but rather an indispensable partner to the mental health professionals. Through the intervention, family members become more sophisticated key implementers of interventions, with their own different expertise and potential skills, thereby complementing clinicians to counter the neurologic deficits inherent in the disorder (McFarlane 2016). However, carers’ self-care should be emphasized to avoid burnout. Similar elements are noted for family intervention for bipolar disorder, namely, psychoeducation, communication enhancement training, problem-solving skills training, and self-care for carers (Reinares et al. 2014). Regardless of the type of disorder, many family interventions include elements of a peer group format to provide the much-needed emotional support, practical advice, and information sharing on community resources among people who can identify with their challenging caregiving ordeals and whom they can trust without the fear of stigma. In the process of helping others, carers also feel empowered. Unlike some psychotherapy groups, members of these carers’ support group are encouraged to socialize outside of the group sessions and become each other’s social network after the formal conclusion of the group to combat the social isolation in the caregiving process (Lefley 2009). Over the past four and a half decades, various models of family intervention with varying lengths and formats have been developed and tested. Family psychoeducation was found to be more potent than other family interventions in attaining positive outcomes for patients and families. There are at least two main types of family psychoeducation conducted by mental health professionals such as social workers, psychiatrists, and nurses. One involves single-family sessions with both the carers and the patients, following workshops in which information about the mental illness is shared mainly with carers (Anderson et al. 1986; Falloon et al. 1984). Another involves a psychoeducational multifamily group in which a few families with both patients and carers attend the sessions together (Kopelowicz et al. 2012; McFarlane 2004). Commonly used models today are a mix of family psychoeducation (Anderson et al. 1986), behavioral family therapy (Falloon et al. 1984), and multifamily group therapy (McFarlane 2004). Other models include
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individualized family consultation (Poon et al. 2019), modified forms of more traditional family therapies (Marsh 2001), and open dialogue which is a modern adaptation of systemic family therapy (Seikkula et al. 2006). Some professionally led short-term models of family education or therapeutic education have also been developed and implemented (Amenson 1998). In addition to programs led by professionals, family-led information and support classes or groups have mushroomed in the past two decades, such as those offered by Carers Australia and the National Alliance on Mental Illness (NAMI) in the USA and the Journey of Hope (Dixon et al. 2011), which are all delivered in the community. One advantage of having these programs in the community is that even when patients are not involved in the mental health system, families can still obtain such practical and emotional support (Thorning and Dixon 2016). With the increasing use of technology, the latest development seems to be online programs of family psychoeducation which shows positive results for both patient and carer (Rotondi et al. 2010). Through the Internet this approach could expand its reach to persons with serious mental illnesses and their families who live at a distance from other families, treatment facilities, or family support and advocacy groups, so that they can still obtain needed support in the community and reduce social isolation (Thorning and Dixon 2016).
Family Intervention as an Evidence-Based Practice Various models of family intervention have been implemented and studied, and results indicate that they are one of the most persistently effective interventions for the treatment of schizophrenia, bipolar, and other psychotic disorders. In a comprehensive review funded by the US National Institutes of Health on Schizophrenia Patient Outcome Research Team (PORT), family intervention was highlighted as being of critical importance to positive patient outcome compared to other psychosocial treatments, pharmacotherapies, and electroconvulsive therapy (Dixon et al. 2010). The most recent reviews by McFarlane (McFarlane 2016) and Thorning and Dixon (Thorning and Dixon 2016) reiterated its high acclaim for patients with schizophrenia, and that by Reinares et al. (2014) reported the same for patients with bipolar disorder. With over 100 outcome studies on family psychoeducation in the past over four decades, meta-analyses of the studies indicated a reduction in relapse rate by 50–60% in individuals receiving family psychoeducation compared to those receiving treatments as usual (McFarlane 2016). Other positive patient outcomes included reduction in psychiatric symptoms, especially positive symptoms (Magliano et al. 2006), reduction in rehospitalization and patients’ perceived stress (Dyck et al. 2000), increased medication adherence (Mueser et al. 2001), and improved social functioning and enhanced vocational outcome (Zhang et al. 1994). For carers, there was notable lowering of burden and distress levels (Sellwood et al. 2007) and an increase in illness knowledge and a sense of efficacy and well-being. Improvement in family relationships and functioning (Jewell et al. 2009; Lefley 2010), together with increased perception of professional and social
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support (Magliano et al. 2006), was also noted. These positive outcomes were found to persist at 1–2 years of follow-up after intervention (McFarlane 2016). While the aforementioned positive outcomes were mainly reported in studies on patients with schizophrenia, similar findings were also noted in patients with bipolar disorder (Reinares et al. 2014). It should be recognized, however, that the level of effectiveness of family intervention is related to the duration of treatment implemented (dosage effect) and the state or stage of the patient’s illness. In the PORT report in the USA, family psychoeducation was highlighted as the recommended treatment to be offered for at least 6–9 months to patients with a recent relapse or exacerbation in order to attain significant reduction in relapse and rehospitalization rates (Dixon et al. 2010). While studies on stable patients without recent episodes also showed reduction in relapse and hospitalization rates, the results were weaker compared to those with recent exacerbation (Thorning and Dixon 2016). Interventions of less than 6 months showed varied results, with longer interventions for those without recent episodes bearing better results in general (Thorning and Dixon 2016). In situations where at least 6 months of family intervention was not feasible or acceptable, a minimum of four sessions was shown to have positive patient and family outcome for both stable patients and patients with a recent relapse (Thorning and Dixon 2016; Vaughn et al. 1992). However, another meta-analysis of 16 studies found that family interventions of fewer than 10 sessions had no important effects on relatives’ burden (Cuijpers 1999). For bipolar disorder, positive outcomes for both patients and families were reported when the intervention was started post episode or when the patient was in remission. However, studies showed inconsistent findings when family psychoeducation was introduced when the patient was in the acute phase of their illness. Family intervention seems to improve mood for at least a subgroup of patients such as those whose families have high impairment levels (Miller et al. 2008; Reinares et al. 2014). In general, family intervention is particularly beneficial in the early years of the course of a serious mental illness when improvements can have a dramatic and longterm effect when family members are still involved, open to participation, and willing to change in attitude and interaction with the patient. It seems that family intervention provided to people with first episode and prodromal psychosis yields the most promising results with substantial return of functioning and prevention of psychotic episodes altogether (McFarlane 2016).
Why Family Intervention Works? One of the important functions of family intervention is that it seeks to engage family members in collaborative decisionmaking among patient, family, and clinician. Thus clinicians’ empathic engagement of patients and family members is of prime importance (McFarlane 2016) so that they can work as a team in the treatment and rehabilitation process. Studies indicated that when clinicians reached out to families
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by conducting in-home sessions, it promoted positive outcome (Falloon et al. 1985; Reinares et al. 2014), likely by conveying clinicians’ earnestness in helping as well as reducing practical and psychological barriers of the families to receive treatment. Furthermore, although psychoeducation is an important element in family intervention, studies have shown that programs that present information without also imparting skills to carers in communication and problem-solving regarding illness management and rehabilitation fail to reduce relapse rates (Falloon et al. 1985; Greenberg et al. 1995). Thus clinicians need to not only instruct but also provide opportunities for carers to practice the skills learned to increase their sense of selfefficacy in coping with the illness situation (Cuijpers 1999). Another important element that makes family intervention so potent is that it helps to increase social support to families and expand their social network such as through the multifamily psychoeducation groups or carer support groups, whether facilitated by professionals or carers themselves. This building of community support in the longer run is important to combat the sense of isolation through the sharing of concerns, burdens, and ultimate coping strategies, especially in view of the stigma around serious mental illnesses and the immense challenges in the caregiving process. Although the original goal of family intervention was to decrease high expressed emotion as a means to prevent relapse, studies found that while many of the effects of family intervention were mediated by reductions in expressed emotion, such effects were enhanced by elements that focused on clinicians’ general empathic support to families and patients; problem-solving, coping, and communication skills training; and the enhancement of social networks and support (McFarlane 2016). Some argue that services should not consider providing a particular type of family intervention only but rather consider a range of family interventions and offer appropriate multiple interventions to families (Harvey et al. 2012). As interventions address different areas, no single intervention will be able to address all the needs of people with mental illness and their families. Family inclusive approaches then serve as a first level of family intervention to engage carers, which can be used further to introduce other appropriate family interventions to meet their needs accordingly (Poon et al. 2019). Family interventions should not be provided as a once off program but ongoingly in order to support families long term, especially those having a patient with a serious and chronic mental illness such as schizophrenia.
Barriers in Provision of Family Interventions Despite substantial evidence showing the effectiveness of family interventions, especially family psychoeducational programs, family interventions are often not routinely provided in mental health services (Harvey and O’Hanlon 2013). Many researchers have highlighted that there are multiple barriers hindering such provision. We are categorizing commonly known barriers in three broad areas: emphasis on individual-focused models, structural factors, and the lack of cultural-sensitive models.
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The Emphasis on Individual-Focused Treatment Models Due to the recognition of the importance of case management in mental health, public mental health services have largely reorganized services into case management approaches and emphasized on individualized care of people with mental illness in the community (Dieterich et al. 2017). Within individual-focused models, case managers have a key role in coordinating services to support people with mental illness in obtaining necessary resources to cope with the impact of the illness. While there are benefits to individualized care in supporting people with mental illness, there has been a neglect in providing holistic care to families coping with caregiving responsibilities. Numerous studies have reported that families felt dissatisfied with their low level of inclusion in the planning and discussion of the treatment of their relatives with mental illness (Poon et al. 2018b). Sometimes in the name of the protection of patient confidentiality, families who had more contacts with patients were not solicited for information that may have given a fuller picture of their functioning. In addition, with the emphasis in recovery of individuals, services may focus solely on the betterment of individuals. The burden of caregiving for someone with a long course of psychiatric illness and the failure of services to address families’ needs have resulted in some carers experiencing poor health and well-being and becoming dissatisfied with mental health services as discussed earlier. As family inclusive practice and family intervention have shown promising results, it is important to obtain management’s support by elucidating them on the effectiveness of these treatments in order to promote a family-sensitive practice culture and to increase the uptake of family intervention.
Structural Barriers to Family Intervention The second barrier to family intervention is related to structural factors. Along with the implementation of individual-focused models, organizations receiving funding tend to focus on their responsibilities in providing individualized psychiatric treatment and care to people with mental illness. Thus, minimal funding is available for additional family interventions within routine care (Harvey and O’Hanlon 2013), and the incentive within organizations to provide additional work with families may be minimized. In addition to finance, other resources are required to implement family intervention. One of them is skilled mental health workers to provide the service. As training in family intervention is often not provided in discipline-specific tertiary education, mental health workers need to learn how to work with families on the job. Furthermore, there is a lack of skilled supervisors in mental health services who can provide supervision to staff with keen interest in family intervention and promote a culture that supports family work. This points to the importance of family systems in general and of family intervention in particular in social work professional training as well as postgraduate professional development training. It is only with adequate training and supervision that staff could have confidence and motivation to work with families.
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Another structural barrier is related to the availability of space in which to provide family interventions. Most community mental health services operate within the context of a clinic. Most psychiatric clinics have limited adequate consultation rooms for workers to provide family interventions. Although workers can provide family interventions at homes of families, this limits the type of family treatments to interventions with single-family units. Thus creativity in space use and intentional design in mental health settings are important to accommodate the conduct of family sessions, psychoeducational workshops, and support groups.
Lack of Cultural-Sensitive Family Intervention The last barrier is the lack of cultural-sensitive models in family interventions (Barrio and Yamada 2010; Rooney et al. 2006). Most family interventions are developed in White culturally dominant contexts. While not minimizing the benefits of existing family interventions for diverse cultures, these practices may not be readily applicable in local contexts. For example, the topic of emancipation in Anderson’s family psychoeducational model (Anderson et al. 1986) and open family communication in Falloon’s Behavioral Family Therapy (Falloon et al. 1984) may not be useful for families with more traditional cultures in which it is a norm for unmarried family members to stay home with their parents and more subtle communication styles are preferred. Many have argued that family interventions could be useful for ethnic minorities but need to be modified to ensure that they are culturally relevant (Giacco et al. 2014; Lucksted et al. 2012). To address this need, some culturally sensitive family intervention programs have been developed. Based on family psychoeducational programs (Anderson et al. 1986) and multifamily groups (McFarlane 2004), a family psychoeducational program was developed for Chinese American families with a patient having schizophrenia (Kung et al. 2012). The program recognized the need for the psychoeducation element of imparting knowledge about the mental illness and providing support among carers. It also accommodated the Chinese culture’s sensitivity to shame when patients’ problematic behaviors are revealed directly in front of “outsiders” and thus adopted a single-family model to coach carers in communication and problem-solving with their ill member. The study showed promising results in supporting Chinese immigrant families. Positive outcome was also seen in a multifamily group trial (McFarlane 2004) for Vietnamese families in Melbourne, Australia (Bradley et al. 2006). In this modified multifamily intervention, patients were invited to participate in multifamily educational sessions, ethnospecific explanatory models were recognized before introducing the biopsychosocial model of illness, and both traditional and western treatments were acknowledged (Bradley et al. 2006). Another culturally modified multifamily group therapy based on the McFarlane’s model (2004) found improvement in medication compliance among Mexican Americans with schizophrenia by considering their belief and attitudes toward medications (Kopelowicz et al. 2012). In addition, Mooney and colleagues have provided a discussion of a Māori model of practice which includes cultural, spiritual, and contemporary indigenous practices in working with Māori
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families in New Zealand in ▶ Chap. 13, “Māori Social Work and Māori Mental Health in Aotearoa New Zealand” of this book. Given the clear need for culturally sensitive programs, more family interventions need to be developed and studied among different cultural groups in different countries.
Conclusion As social workers constitute a large number of the work force in the mental health field, they have an important role in providing services to patients with serious mental illness and their families. Understanding the intricate relationship between the wellbeing of patients and that of their carers, social workers should advocate for family involvement in the treatment process and attend to carers’ needs resulting from their caregiving burden. With the growing emphasis on recovery in the mental health field which aims at facilitating people with serious mental illness to regain autonomy in the community (Davidson et al. 2008), the role of families/carers in assisting these patients is of paramount importance. Social workers are well equipped to work with both families and their relatives with mental illness given their systems orientation in both theory and practice. As members of the multidisciplinary mental health team which has a large number of medical and nursing professionals, rather than conforming to the norm of individualized approach in mental health treatment, social workers should advocate for families in mental health practice. They should play a major role in contributing to the provision of family interventions such as family psychoeducation programs in partnership with carers and other professionals. By seeking the perspectives and contributions of carers, social workers can help to develop or adapt innovative family interventions that are well suited to the local contexts. By aligning with mental health policies concerning recovery, social workers can advocate for working with families as being essential in contributing to the recovery of people with mental illness (Poon et al. 2018c).
Cross-References ▶ Legal Provisions, Advocacy, and Empowerment ▶ Māori Social Work and Māori Mental Health in Aotearoa New Zealand ▶ Parenting Challenges for Persons with a Serious Mental Illness ▶ Reflection of Future Social Work Practice in Mental Health ▶ Theories on Mental Health, Illness and Intervention
References Amenson C (1998) Schizophrenia: a family education curriculum. Pacific Clinics Institute, Pasadena Anderson CM, Reiss DJ, Hogarty GE (1986) Schizophrenia and the family. The Guilford Press, New York
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Barrio C, Yamada A-M (2010) Culturally based intervention development: the case of Latino families dealing with schizophrenia. Res Soc Work Pract 20(5):483–492. https://doi.org/ 10.1177/1049731510361613 Bateson G, Jackson DD, Haley J, Weakland J (1956) Toward a theory of schizophrenia. Behav Sci 1:251–264. https://doi.org/10.1002/bs.3830010402 Bland R, Renouf N, Tullgren A (2015a) Social work practice in mental health: an introduction, 2nd edn. Allen and Unwin, Crows Nest Bland R, Renouf N, Tullgren A (2015b) Working with families. In: Bland R, Renouf N, Tullgren A (eds) Social work practice in mental health. Allen & Unwin, Crows Nest Bowman S, Alvarez-Jimenez M, Wade D, McGorry P, Howie L (2015) Forgotten family members: the importance of siblings in early psychosis. Early Interv Psychiatry 8(3):269–273. https://doi. org/10.1111/eip.12068 Boyer L, Baumstarck K, Auquier P (2016) Assessment of the burden of care and quality of life of caregivers in schizophrenia. Adis, Cham Bradley G, Couchman G, Perlesz A, Nguyen A, Singh B, Riess C (2006) Multiple-family group treatment for English-and Vietnamese-speaking families living with schizophrenia. Psychiatr Serv 57(4):521–530 Burdekin B, Gallagher A (1998) The United Nations and National Human Rights Institutions. Q Rev UN High Commissioner Hum Rights 1:815–825 Campbell L et al (2012) The experiences of Australian parents with psychosis: the second Australian national survey of psychosis. Aust N Z J Psychiatry 46(9):890–900. https://doi.org/ 10.1177/0004867412455108 Caqueo-Urízar A, Rus-Calafell M, Craig TKJ, Irarrazaval M, Urzúa A, Boyer L, Williams DR (2017) Schizophrenia: impact on family dynamics. Curr Psychiatry Rep 19(2):1–8. https://doi. org/10.1007/s11920-017-0756-z Chen F, Greenberg JS (2004) A positive aspect of caregiving: the influence of social support on caregiving gains for family members of relatives with schizophrenia. Community Ment Health J 40(5):423–435 Coldwell J, Meddings S, Camic PM (2011) How people with psychosis positively contribute to their family: a grounded theory analysis. J Fam Ther 33(3):353–371 Cuijpers P (1999) The effects of family interventions on relatives’ burden: a meta-analysis. J Ment Health 8(3):278–285 Davidson L, Rowe M, Tondora J, O’Connell MJ, Lawless MS (2008) A practical guide to recoveryoriented practice: tools for transforming mental health care. Oxford University Press, New York Dieterich M, Irving CB, Bergman H, Khokhar MA, Park B, Marshall M (2017) Intensive case management for severe mental illness. Cochrane Database Syst Rev Issue:CD007906. https:// doi.org/10.1002/14651858.CD007906.pub3 Dixon LB et al (2010) The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements. Schizophr Bull 36(1):48–70. https://doi.org/10.1093/schbul/sbp115 Dixon LB et al (2011) Outcomes of a randomized study of a peer-taught family-to-family education program for mental illness. Psychiatr Serv 62(6):591 Dyck DG, Short RA, Hendryx MS (2000) Management of negative symptoms among patients with schizophrenia attending multiple-family groups. Psychiatr Serv 51(4):513–519 Falloon IRH, Boyd JL, McGill CW (1984) Family Care of Schizophrenia: a problem-solving approach to the treatment of mental illness. Guilford Press, New York Falloon IRH et al (1985) Family management in the prevention of morbidity of schizophrenia: clinical outcome of a two-year longitudinal study. Arch Gen Psychiatry 42(9):887–896. https:// doi.org/10.1001/archpsyc.1985.01790320059008 Giacco D, Matanov A, Priebe S (2014) Providing mental healthcare to immigrants: current challenges and new strategies. Curr Opin Psychiatry 27(4):282–288. https://doi.org/10.1097/ YCO.0000000000000065 Grad J, Sainsbury P (1968) The effects that patients have on their families in a community care and a control psychiatric service – a two year follow-up. Br J Psychiatry 114(508):265–278
10
An Overview of Social Work Approaches in Working with Families of. . .
215
Greenberg J, Greenley J, Kim H (1995) The provision of mental health services to families of persons with serious mental illness. Res Community Ment Health 8:181–204 Harvey C, O’Hanlon B (2013) Family psycho-education for people with schizophrenia and other psychotic disorders and their families. Aust N Z J Psychiatry 47(6):516–520 Harvey C, O’Hanlon B, Young J (2012) Intervention for families. In: Meadows G, Farhall J, Fossey E, Grigg M, McDermott F, Singh B (eds) Mental health in Australia: collaborative community practice. Oxford University Press, Melbourne, pp 481–485 Hayes L, Hawthorne G, Farhall J, O’Hanlon B, Harvey C (2015) Quality of life and social isolation among caregivers of adults with schizophrenia: policy and outcomes. Community Ment Health J 51(5):591–597 Healy K (2016) After the biomedical technology revolution: where to now for a bio-psycho-social approach to social work? Br J Soc Work 46(5):1446–1462. https://doi.org/10.1093/bjsw/bcv051 Hooley JM (2007) Expressed emotion and relapse of psychopathology. Annu Rev Clin Psychol 3:353–375 Jansen JE, Gleeson J, Cotton S (2015) Towards a better understanding of caregiver distress in early psychosis: a systematic review of the psychological factors involved. Clin Psychol Rev 35:56–66. https://doi.org/10.1016/j.cpr.2014.12.002 Jewell TC, Downing D, McFarlane WR (2009) Partnering with families: multiple family group psychoeducation for schizophrenia. J Clin Psychol 65(8):868–878. https://doi.org/10.1002/ jclp.20610 Joyce J, Leese M, Szmukler G (2000) The experience of caregiving inventory: further evidence. Soc Psychiatry Psychiatr Epidemiol 35(4):185–189 Kavanagh DJ (1992) Recent developments in expressed emotion and schizophrenia. Br J Psychiatry 160:601–620 Kopelowicz A, Zarate R, Wallace CJ, Liberman RP, Lopez SR, Mintz J (2012) The ability of multifamily groups to improve treatment adherence in Mexican Americans with schizophrenia. Arch Gen Psychiatry 69(3):265–273 Kung W (2016a) Tangible needs and external stressors faced by Chinese American families with a member having schizophrenia. Soc Work Res 40(1):53–63. https://doi.org/10.1093/swr/svv047 Kung WW (2016b) Culture- and immigration-related stress faced by Chinese families with a patient having schizophrenia. J Marital Fam Ther 42(3):409–422. https://doi.org/10.1111/ jmft.12145 Kung WW, Tseng Y-F, Wang Y, Hsu P-C, Chen D (2012) Pilot study of ethnically sensitive family psychoeducation for Chinese-American patients with schizophrenia. Soc Work Ment Health 10 (5):384–408. https://doi.org/10.1080/15332985.2012.678570 Lawn S, Mcmahon J (2014) The importance of relationship in understanding the experiences of spouse mental health carers. Qual Health Res 24(2):254–266. https://doi.org/10.1177/ 1049732313520078 Lefley H (2009) Family psychoeducation for serious mental illness. Oxford University Press, New York Lefley HP (2010) Treating difficult cases in a psychoeducational family support group for serious mental illness. J Fam Psychother 21(4):253–268. https://doi.org/10.1080/08975353.2010.529014 Lin E et al (2018) Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: a scoping review. Health Soc Care Community. https:// doi.org/10.1111/hsc.12546 Lucksted A, McFarlane WR, Downing D, Dixon L (2012) Recent developments in family psychoeducation as an evidence-based practice. J Marital Fam Ther 38(1):101–121. https:// doi.org/10.1111/j.1752-0606.2011.00256.x Lukens EP, Thorning H (2011) Siblings in families with mental illness. In: Caspi J (ed) Sibling development: implications for mental health practitioners. Springer, New York, pp 195–219 Magliano L, Fiorillo A, Malangone C, De Rosa C, Maj M (2006) Patient functioning and family burden in a controlled, real-world trial of family psychoeducation for schizophrenia. Psychiatr Serv 57(12):1784–1791
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Marsh DT (2001) A family-focussed approach to serious mental illness: empirically supported interventions. Professional Resource Press, Sarasota McFarlane WR (2004) Multifamily groups in the treatment of severe psychiatric disorders. The Guilford Press, New York McFarlane WR (2016) Family interventions for schizophrenia and the psychoses: a review. Fam Process 55(3):460–482. https://doi.org/10.1111/famp.12235 Miller IW, Keitner GI, Ryan CE, Uebelacker LA, Johnson SL, Solomon DA (2008) Family treatment for bipolar disorder: family impairment by treatment interactions. J Clin Psychiatry 69(5):732–740 Morgan VA et al (2012) People living with psychotic illness in 2010: the second Australian national survey of psychosis. Aust N Z J Psychiatry 46(8):735–752. https://doi.org/10.1177/ 0004867412449877 Morris JA (2012) The fall of the schizophrenogenic mother. Lancet 380(9837):14–20. https://doi. org/10.1016/S0140-6736(12)61180-5 Mueser KT, Sengupta A, Schooler NR, Bellack AS, Xie H, Glick ID, Keith SJ (2001) Family treatment and medication dosage reduction in schizophrenia: effects on patient social functioning, family attitudes and burden. J Consult Clin Psychol 69(1):3–12 Neill J (1990) Whatever became of the schizophrenic mother? Am J Psychother XLIV(4):499–505 Poon AWC, Harvey C, Mackinnon A, Joubert L (2017) A longitudinal population-based study of carers of people with psychosis. Epidemiol Psychiatr Sci 26(3):265–275. https://doi.org/ 10.1017/S2045796015001195 Poon AWC, Curtis J, Ward P, Loneragan C, Lappin J (2018a) Physical and psychological health of carers of young people with first episode psychosis. Australas Psychiatry 26(2):184–188. https://doi.org/10.1177/1039856217748250 Poon AWC, Joubert L, Harvey C (2018b) Perceived needs of carers of people with psychosis: an Australian longitudinal population-based study of caregivers of people with psychotic disorders. Health Soc Care Community 26(3):412–422. https://doi.org/10.1111/hsc.12530 Poon AWC, Joubert L, Mackinnon A, Harvey C (2018c) Recovery for carers of people with psychosis: a longitudinal population-based study with implications for social work. Br J Soc Work 48(6):1754–1773. https://doi.org/10.1093/bjsw/bcx120 Poon AWC, Harvey C, Fuzzard S, O’Hanlon B (2019) Implementing a family-inclusive practice model in youth mental health services in Australia. Early Interv Psychiatry 13(3):461–468. https://doi.org/10.1111/eip.12505 Reinares M, Sánchez-Moreno J, Fountoulakis KN (2014) Psychosocial interventions in bipolar disorder: what, for whom, and when. J Affect Disord 156:46–55 Reupert A, Maybery D (2016) What do we know about families where parents have a mental illness? Child Youth Serv 37(2):98–111. https://doi.org/10.1080/0145935X.2016.1104037 Rooney R, Wright B, O’Neil K (2006) Issues faced by carers of people with a mental illness from culturally and linguistically diverse backgrounds: carers’ and practitioners’ perceptions. Aust eJ Adv Ment Health 5(2):1–13 Rotondi A et al (2010) Web-based psychoeducational intervention for persons with schizophrenia and their supporters: one-year outcomes. Psychiatr Serv 61(11):1099–1105 Rowe J (2012) Great expectations: a systematic review of the literature on the role of family carers in severe mental illness, and their relationships and engagement with professionals. J Psychiatr Ment Health Nurs 19(1):70–82. https://doi.org/10.1111/j.1365-2850.2011.01756.x Schene A, van Wijngaarden B, Koeter M (2006) Introduction and manual for the IEQ-EU. In: Thornicroft G, Becker T, Knapp M, Knudsen HC, Schene A, Tansella M, Vázquez-Barquero JL (eds) International outcome measures in mental health. Gaskell, London, pp 85–91 Seikkula J, Aaltonen J, Alakare B, Haarakangas K, Keränen J, Lehtinen K (2006) Five-year experience of first-episode nonaffective psychosis in open-dialogue approach: treatment principles, follow-up outcomes, and two case studies. Psychother Res 16(2):214–228
10
An Overview of Social Work Approaches in Working with Families of. . .
217
Sellwood W, Wittkowski A, Tarrier N, Barrowclough C (2007) Needs-based cognitive-behavioural family intervention for patients suffering from schizophrenia: 5-year follow-up of a randomized controlled effectiveness trial. Acta Psychiatr Scand 116(6):447–452 Thorning H, Dixon L (2016) Caregiving for individuals with serious mental illness: a life cycle perspective. In: Burgio LD, Gaugler JE, Hilgeman MM (eds) The spectrum of family caregiving for adults and elders with chronic illness. Oxford University Press, New York, pp 173–211 Thunyadee C, Sitthimongkol Y, Sangon S, Chai-Aroon T, Hegadoren KM (2015) Predictors of depressive symptoms and physical health in caregivers of individuals with schizophrenia. Nurs Health Sci 17(4):412–419. https://doi.org/10.1111/nhs.12205 Vaughn K, Doyle M, McConaghy N, Blaszczynski A, Fox A, Tarrier N (1992) The Sydney intervention trial: a controlled trial of relatives’ counselling to reduce schizophrenic relapse. Soc Psychiatry Psychiatr Epidemiol 27(1):16–21 Wearden AJ, Tarrier N, Barrowclough C, Zastowny TR, Rahill AA (2000) A review of expressed emotion research in health care. Clin Psychol Rev 20(5):633–666. https://doi.org/10.1016/ S0272-7358(99)00008-2 World Schizophrenia Fellowship (1998) Families as partners in care: a document developed to launch a strategy for the implementation of programs of family education, training, and support. World Schizophrenia Fellowship, Toronto Zauszniewski JA, Bekhet AK, Suresky MJ (2010) Resilience in family members of persons with serious mental illness. Nurs Clin N Am 45(4):613–626. https://doi.org/10.1016/j. cnur.2010.06.007 Zegwaard MI, Aartsen MJ, Cuijpers P, Grypdonck MH (2011) Review: a conceptual model of perceived burden of informal caregivers for older persons with a severe functional psychiatric syndrome and concomitant problematic behaviour. J Clin Nurs 20(15–16):2233–2258. https:// doi.org/10.1111/j.1365-2702.2010.03524.x Zhang M, Wang M, Li J, Philips MR (1994) Randomised-control trial of family intervention for 78 first-episode male schizophrenic patients: an 18-month study in Suzhou. Jiangsu Br J Psychiatry Suppl 165(Suppl 24):96–102
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Domain of Social Work Practice in Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Lived Experience as an Organizing Principle . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Nature of Community . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Understanding Recovery Theory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Element 1: Connectedness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Element 2: Hope and Optimism About the Future . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Element 3: Identity . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Element 4: Meaning in Life . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Element 5: Agency and Empowerment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Stigma, Shame, and Discrimination . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Example: Our Consumer Place – Empowerment Through Collective Action . . . . . . . . . . . . . . . . . Empowerment Through Challenging Orthodoxy and Promoting an Alternative Voice . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Contemporary mental health policy and practice has been based on two basic principles – the need for an evidence-based approach to practice and a recognition of the importance of understanding the lived experience of mental illness. Beyond the symptoms of the various disorders is the range of personal and social consequences of illness. These include disruptions to a sense of self, R. Bland (*) Australian Catholic University, Brisbane, Australia e-mail: [email protected] G. Drake Australian Catholic University, Sydney, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_7
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relationships, economic security, work, and housing. The social context and social consequences of mental disorder are central to social work practice in the mental health area. This chapter has explored a number of theoretical perspectives including the concept of lived experience, recovery theory, stigma, shame, and empowerment. A practice focusing on these social dimensions of mental illness demands an engagement both with the broader evidence base shared by all disciplines, and a specific concern for individuals and their families, and the experience of mental illness and its consequences in their lives. Keywords
Recovery · Community · Empowerment · Social work · Mental health
Introduction While the experience of mental distress is acutely personal, we acknowledge that people experience that distress within a network of intimate and other social relationships. Social work has traditionally sought to apply a broad focus to understanding mental health problems. We see an individual within a family, within a community. We understand the importance of life stage; of schooling and work; of physical health; of gender, ethnicity, and culture; of sexuality, disability, and spirituality; and of housing and income security. A broad social work perspective on mental illness seeks to understand how each of these dimensions of social life shapes the experience of mental distress. In this chapter we will explore a number of important theoretical aspects of social work practice, specifically the concept of “lived experience” of mental illness, the concept of community, and the potential for recovery theory to provide a coherent theoretical basis for organizing social work practice. We will consider the nature of social inclusion, stigma, and shame. Empowerment is often identified as a goal for social work practice, and we will consider this concept and examples of empowerment in group and community settings. In this chapter, we have chosen to use the term consumer to describe individuals who have a lived experience of mental illness and treatment. This is the term preferred by individuals with a lived experience in the Australian context. In other countries the term service user is commonly used.
The Domain of Social Work Practice in Mental Health In their review of the various ways of understanding the domain of social work in mental health, Bland et al. (2015) identify different approaches to practice in different national contexts. For example, many social workers in North America work as private practice therapists on a fee for service basis. In Britain and Australia, this is less common, and social workers are generally employed in public
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mental health settings as part of multidisciplinary teams or in community-based recovery-oriented services. Mental health legislation and differences in policy and funding of services in various countries shape the way that social work is practiced. In New Zealand, for example, mental health services have been strongly influenced by multicultural principles so that Maori culture is acknowledged and broader community approaches are incorporated to complement more individual treatments. In Australia over the last 20 years, there has been a significant effort within the social work profession, to articulate the role of social work in mental health and to lift the practice competence of mental health social workers (Bland et al. 2015). The Australian Association of Social Workers (AASW) has specified core knowledge and skills that all schools of social work have to teach in social work programs as a condition of accreditation (AASW 2017). The AASW has established a specific category of membership that recognizes advanced competence in mental health that qualifies accredited members for private practice work in the national health insurance scheme. A key aspect of the AASW reforms has been an articulation of the domain of social work in mental health, and the 2008 definition of the domain has been central to professional identity, education, and training. The domain statement is produced below: The domain of social work in mental health is that of the social context and social consequences of mental illness. The purpose of practice is to promote recovery, restore individual, family, and community wellbeing, to enhance development of each individual’s power and control over their lives, and to advance principles of social justice. Social work practice occurs at the interface between the individual and the environment: social work activity begins with the individual, and extends to the contexts of family, social networks, community, and the broader society. Social context At the level of ‘social context’, social work is concerned with the way each individual’s social environment shapes their experience of mental illness and mental health problems. Its concerns include issues of individual personality, vulnerability and resilience, family functioning, strengths and stressors, support networks, culture, community, class, disability, ethnicity and gender. In addition to the intrapsychic aspects of ego functioning, self-esteem, spirituality, and interpersonal aspects of family functioning and personal relationships, its concerns include broader social issues of economic wellbeing, employment and housing. Social consequences At the level of ‘social consequences’, social work is concerned with the impact of mental illness and mental health problems on the individual, the family and personal relationships, and the broader community, including the impact on sense of self, on life chances, on family wellbeing, and on economic security, employment, and housing. Social work is concerned with the interface between mental illness and broader health and welfare issues such as child protection and domestic violence. Social justice At the level of ‘social justice’, social work is concerned with issues of stigma and discrimination, of political freedoms and civil rights, of promoting access to necessary treatment and support services, and of promoting consumer and carer rights to participation and choice in mental health services. It is concerned with making all human services more accessible and responsive to the specific needs and wishes of people with mental illness, and their family and other carers. (AASW 2008, pp. 8–9)
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The statement reflects the familiar social work concept of understanding the “person in environment” and provides a basis for understanding a community approach to practice in the mental health area that is distinctly social work in focus – with an emphasis on social justice and social consequences of mental illness in areas such as housing, employment, economic security, and family welfare.
Lived Experience as an Organizing Principle In the mental health field, the dominant research narrative is that of the scientific delineation of diagnostic categories and the search for evidence to inform practice. These positivist approaches underpin broad areas of policy and practice, including psychiatric assessment, epidemiology, the development of targeted medications, the assessment and management of risk, and the articulation and evaluation of psychosocial interventions. All mental health disciplines share this knowledge base, and social workers in mental health settings will absorb and contribute to the evidence base for practice (Victorian Government Department of Health 2013). We would, for example, endorse the principle of careful assessment and rigor in psychiatric diagnosis, together with the search for effective interventions for mental health disorders. This positive embrace of evidencebased practice as an underpinning principle for social work practice is strongly and cogently argued by academics such as Thyer, both in this book and elsewhere (Thyer and Myers 2011). Alongside this principle, and central to the definition of the domain of social work described in the previous section, is a recognition of the broader social context in which both disorder and treatment are experienced. This is an important dimension of mental health consumer advocacy over the last 20 years, an insistence that people are not defined by their diagnostic label and that the labels themselves do not effectively describe the experience of mental illness (Bland and Tullgren 2015). This principle encourages us to focus not on a set of symptoms but on the realities of life with a mental illness. When we do this, we discover that people describe problems of isolation and loneliness, poverty, disrupted family relationships, housing, and income security – social problems that are at the heart of social work practice. Lived experience becomes a starting point for understanding the impact of mental illness, not just for individuals but for their families as well (Bland and Renouf 2017). The practice principle for social work here is the need to start not with a diagnostic label but with a concern for the lived experience of the client and their family and friends. The experience of loneliness, powerlessness, poverty, stigma, and discrimination provides a focus for social work activity and indeed for research and knowledge building consistent with Thyer and Myers’ (2011) demand for a strong evidence base for practice. In the next section, we set out the principles of recovery theory that build on a focus on lived experience and provide a theoretical basis for social work practice.
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The Nature of Community A community approach to mental health practice is based on a recognition of the community as a potential site of intervention, both in health promotion and prevention and in moderating the impact of mental illness on individuals and families. It is consistent with the broad definition of the domain of social work in mental health described earlier in this chapter. We can touch only briefly on the very diverse literature on prevention and health promotion, but we will offer some useful definitions that help to frame the discussion of examples of empowerment that we will develop later in the chapter. Mental health promotion is any action taken to maximize mental health and well-being among populations and individuals (Commonwealth of Australia 2000). It aims to protect, support, and sustain the emotional and social well-being of the population by promoting the factors that enhance mental health. It is a relevant concept across the spectrum of interventions – before, during, and after the onset of mental health problems and mental disorders. Prevention is defined as “interventions that occur before the initial onset of a disorder to prevent the development of disorder” (Mrazek and Haggerty 1994, p. 23). In her overview of the scope of mental health promotion, Barry (2007) argues that promotion relies on three key determinants of mental health – social inclusion, freedom from discrimination and violence, and economic participation. This assertion connects broader promotion and prevention activities with the social justice themes of social work practice. Other relevant concepts familiar to social work practice include risk, resilience, protective factors, resources, and vulnerability. The Commonwealth of Australia monograph Promotion, Prevention and Early Intervention (Commonwealth of Australia 2000) identifies the creation of supportive social, cultural, and physical environments as a key strategy for encouraging positive mental health in communities.
Understanding Recovery Theory The concept of recovery has emerged as a consistent unifying principle in contemporary mental health policies and services in many different cultural and political contexts. Despite unanimous endorsement of the principle and the enthusiasm of service providers and policy-makers to describe their services as recovery based, considerable difficulties remain in its definition and application. The principle is essentially radical, challenging a preoccupation with illness and symptoms, diagnosis, and standardized treatments, in favor of a concern for the individually based lived experience of illness (Bland and Tullgren 2015). Recovery as a philosophy emerged partly from the rehabilitation movement based in Boston (Anthony 1993) but mainly from the published first-person accounts of the consumer empowerment movement (Deegan 1988).
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Anthony (1999) defines recovery as: A deeply personal, unique process of changing one’s attitudes, values, feelings and goals, skills and/or roles. It is a way of living a satisfying, hopeful and contributing life even with the limitations caused by illness. Recovery involves the development of new meaning and purpose in one’s life. (p. 3)
O’Hagan’s definition from New Zealand’s Blueprint (Mental Health Commission 1998) is simple: Recovery is living well in the presence or absence of one’s mental illness.
Onken (2014) and Slade (2009) emphasize the dual nature of the recovery experience. It can be understood both as the management and moderation of distressing symptoms, what Slade calls clinical recovery, and the personal journey of restoring a positive sense of self and meaningful sense of belonging. Onken insists that this journey of recovery is about building a life in the community (Onken 2014). Jacobson and Greenley (2001) emphasize the community dimensions of recovery including a sense of connection with others and external conditions such as human rights, a positive culture of healing, and recovery-oriented services (Jacobson and Greenley 2001). Slade maintains that recovery also involves a radical change in the way that mental health services engage with consumers: Overall, proponents of a recovery approach seek to reverse some priorities. People with mental illness don’t need treatment—they need a life. Treatment may contribute to the process of striving for a life worth living, but it is a means, not an end...The overarching principle of recovery is that the impoverished expectations, clinical preoccupations, and stigmatizing beliefs sometimes held by mental health workers should not preclude everyday ways of addressing common human problems. (Slade 2009, p. 704)
In recent years, there has been extensive work in conceptualizing and theorizing the nature of recovery, and there is an emerging consensus among the different writers about the dimensions of recovery (Onken 2014; Davidson et al. 2005; Topor et al. 2011; Leamy et al. 2011). In the following section, we use a recovery framework developed by Wyder and Bland (2014) and emphasize those dimensions of recovery most relevant to our analysis of the place of community in social work practice.
Element 1: Connectedness Being connected is a cornerstone of recovery from a mental illness. Indeed, recovery from a mental illness is not done in isolation, and relationships and support from others play a crucial role in this journey. Consumers as part of their journey will need to have supportive others and role models, whether they
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are family members, friends, professionals, community members, or peers, who will provide them encouragement through the difficult times and help celebrate the good. There is now also mounting evidence of the importance of peer support in the consumer’s recovery journey (Craze 2013). Being connected also means being connected to their community. In this, consumers need to have the opportunity to expand and start occupying functional social roles such as partner, worker, student, taxpayer, or friend and to be able to make worthwhile contributions to a community of their choice. In summary, social support serves as a protective factor both for consumers and families, and good support will facilitate coping and family functioning.
Element 2: Hope and Optimism About the Future Hope and optimism have consistently been identified as being at the center of the recovery journey of consumers. People with the lived experience of mental illness need to have a sense of hope that recovery is possible (Davidson et al. 2005; Leamy et al. 2011). While this is true for consumers, hope plays a central part in the recovery journeys of families and indeed the mental health workers themselves (Bland and Darlington 2009; Tweedell et al. 2004). There is emerging evidence of a connection between the family’s hopefulness and its capacity to sustain the hopefulness of the consumer. Both consumers and family members identify the hopefulness of mental health workers as central to their capacity to sustain the recovery journey (Bland and Darlington 2009). Hope is a complex concept, a part of the worker’s being rather than necessarily anything that they do. Valuing hope in mental health practice is an acknowledgment of the humanity of working with others.
Element 3: Identity As part of their journey, consumers redefine themselves and start viewing their mental illness as only one aspect of a multidimensional identity rather than the mental illness being their primary identity. Many consumers, over time, have been able to rebuild and redefine a more positive sense of self. This task of rebuilding identity is invariably done through relationships with others. People recovering from a mental illness need to recover not only from the effects of the illness itself but also from social consequences and societal stigma associated with this (Davidson et al. 2005; Leamy et al. 2011). Many with lived experience of mental illness felt that they had struggled to overcome the stigma associated with mental illness and the impact this had on their sense of self. As we will show later in this chapter, peer-based programs offer both consumers and families opportunities to challenge stigmatizing and limiting illness identities. A second strategy for identity change is the careful use of language, preferring strengths-based words and concepts over the pathology-saturated labels and language of psychiatry (Sartorius 2002).
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Element 4: Meaning in Life Throughout their illness consumers start to make meaning of the experiences of mental illness and incorporate these into their lives. As part of this, many with lived experience learn to accept the limitation imposed by their illness and discover talents, gifts, and possibilities that allow them to pursue and achieve new life goals despite the presence of the disability. This can involve pursuing and achieving new life goals and/or increasing their quality of life. Those with lived experience will start to resume ordinary community roles such as partner, worker, student, taxpayer, and friend. This represents a turning to a community of their choice (Davidson et al. 2005; Leamy et al. 2011). This journey of re-engagement with friends, family, and community is often shared with the family, who have often been isolated by caring responsibilities and the shame and stigma that they feel in response to the mental illness. Families moved from “fixing” and “doing for” to “being with” and “journeying alongside” (Tew et al. 2012).
Element 5: Agency and Empowerment As part of their recovery journey, consumers learn to assume primary responsibility for their transformation to a person in recovery. The important concept here is a sense of agency. This process involves gaining control over one’s life and treatment. Consumers often talk about having the opportunities to make choices and being given the dignity of risk, where they are allowed to make decisions that allow them to succeed and fail (Davidson et al. 2005; Leamy et al. 2011). Assuming control over their lives is complex and involves the ability to resume control of a life that has been controlled not only by an illness but also by a treatment system and possibly family. As part of this process, consumers learn to manage their own levels of distress, stress, or depression. While complete symptom remission is not necessary, being able to manage symptoms in some way is essential for recovery (Davidson et al. 2005). Recovery always involves periods of good and difficult times, setbacks and accomplishments, and times when symptoms may be more or less controlled. A shift happens when consumers move away from simply receiving services to actively participating in and using treatments of their choice to bring symptoms under some degree of control and having their own coping strategies rather than being merely a recipient of other people’s interventions (Davidson et al. 2005; Deegan 1988). A sense of empowerment and control over one’s life also emerges when people in recovery begin to demand the same rights and take on the same responsibilities as other citizens (Davidson et al. 2005; Leamy et al. 2011). These citizen rights include the right to decide where to live, whom to love, and how to spend one’s time. Responsibilities include paying taxes and voting. Becoming empowered is also linked to the concept of social inclusion, which has both a component of active citizenship and a sense of connection.
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Empowerment happens through accessing resources such as housing and employment and confronting stigma and discrimination (Tew et al. 2012). Empowerment is a popular concept in social work, emphasizing as it does the importance of the social justice focus for mental health practice. Linhorst’s analysis of the meaning of empowerment in mental health is useful in identifying the practical dimensions of the concept (Linhorst 2006). He outlines a number of basic principles of empowerment which are relevant to our analysis of community and recovery and the broader concepts of social context, social consequences, and social justice that comprise the domain of social work. These principles include: • Empowerment involves holding power, control, and influence over one’s life and treatment. • Resources are critical to empowerment. Obtaining resources gives increased control over one’s life. • Empowerment can refer to both a process and an outcome. Participation is central to the process of empowerment. • Empowerment involves an interconnection between the individual and their environment. • Empowerment is situational – what is happening in a specific context at a specific point in time. • One cannot empower another – people empower themselves (Linhorst 2006, p. 10). Onken builds on these and the familiar recovery concepts in arguing for the importance of building community capacity as a distinct and important dimension of recovery (Onken 2014). Recovery depends on system change, not just personal change. He identifies the need for basic material supports in housing, employment, and health care. He emphasizes the importance of citizenship, stewardship of the environment, and the development of social capital. We look at these aspects of community development in the next section of this chapter.
Stigma, Shame, and Discrimination Goffman’s (1963) early definition of stigma as “spoiled identity” is still a useful starting point for our understanding of the nature of stigma. Stigma is typically defined as a visible mark of disgrace or infamy, while shame is seen as the painful feeling arising from the consciousness of something dishonorable, improper, and ridiculous that is done by oneself or another (Johnson 2015). Within the psychiatric literature, there is an awareness of the nature and impact of stigma in mental health (Horsfall and Cleary 2010), yet the nature of shame is less frequently acknowledged. Both stigma and shame are relevant to the analysis of the community dimensions of social work practice, because they are both fundamentally socially constructed and operate in a social and community context.
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Bakshi et al. (1999) suggest that stigma in mental illness denotes an unjust and involuntary labeling process that misconstrues the character and personalities of individuals affected by mental disorder. The effect of stigma is to “other” and dehumanize. The identity of the individual is “spoiled,” lost in the power of the label. Corrigan and Watson (37) distinguish between public stigma and selfstigma. Public stigma is the reaction that the general population has to people with mental illness. Self-stigma is the prejudice which people with mental illness turn against themselves. Both public and self-stigma may be understood in terms of three components: stereotypes, prejudice, and discrimination (Corrigan and Watson 2002, p.16). In their analysis of the concept of stigma, Epstein et al. (2012) provide a consumer perspective on the lived experience of stigma. They argue that the label conveys expectations that people with mental illness are peculiar, dangerous, and incompetent but that the concept of stigma does not place sufficient responsibility with those who discriminate on the basis of such thinking. The expectations and actions of others compound the very real difficulties already imposed by the illness. The impact of stigma and discrimination can be profound. Consumers have written extensively about the power of stigma (Epstein 1995) and the powerful and destructive impact of stigma for consumers. Epstein has argued that the stigma of some disorders is greater than for others and that there is, in fact, a hierarchy of stigmas in which depression and anxiety are widely accepted in the community, but personality disorder remains highly stigmatized. Other consumers have written about the experience of shame. Remi, for example, wrote: I think that the price of shame surrounding having or even knowing someone with mental health problems is too high a price to pay. Shame is why symptoms escalate, shame is why people don’t go to therapy, it’s the reason why people don’t tell their family and friends, shame costs lives, it leads to suicide and strange behaviours that others don’t or won’t understand, shame is what causes isolation and keeps a person harbouring a secret that should not be their sole burden to bear when professional help is available. It has taken me so long to realise that the shame isn’t worth it. (Remi’s Blog 2017)
Research by Wyder et al. (2015) found high levels of shame among the families of inpatients detained under mental health laws. Confronting that sense of shame was identified as part of the family’s recovery journey and involved developing a new identity, sense of self, and sense of control over their situation. This study identified the treatment service as a source of stigma for the families and argued for a more “family-centered” approach to inpatient care. An analysis of the connection between social inclusion and mental illness (Leff and Warner 2006) develops the ideas of stigma and discrimination as fundamental to social exclusion. Reviewing the international research literature on community approaches to challenging stigma and discrimination, Sartorius (37) argues that we need to work on a number of different social sectors, for example, health ministries, social welfare services, labor ministries, nongovernment organizations, and the media. Each of these sites provides multiple opportunities to challenge the negative impact of stigma.
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Leff and Warner (2006) remind us that stigma can be imposed by a hostile or ignorant community but can be most effective in the form of “self-stigma,” the process of individuals and families absorbing negative stereotypes of mental illness and acting on these stereotypes. This results in low self-esteem, sense of shame, and low expectations – both of self and of service response. Other research, for example, the Anglicare Tasmania study of poverty and mental illness (Cameron and Flanagan 2004), has emphasized the power of the double stigma. People with mental illness often experience poverty, and their clothing, dental health, and physical appearance are visible signs of their status as poor and mentally ill. The two stigmas are mutually reinforcing. One area of research has argued that the power of stigma is a barrier to helpseeking – that people suffering from mental distress avoid treatment services because of the stigma. Bathje and Pryor (2011) found that public stigma and selfstigma both worked to discourage people from seeking mental health care. A similar finding by Chronister et al. (2013) and research by Rüsch et al. (2009) recommended working at the community level to challenge stigma and facilitating social supports for people, in order to overcome the barrier of stigma to effective help-seeking. The research is significant because it locates the potential site for intervention not with the individual consumer but with the broader community. Stigma is maintained through popular media. Advocacy groups in Australia such as ARAFMI, SANE, and Beyond Blue have worked hard to confront stigma and community ignorance about mental illness through community education and “media watch” activities. These programs appear to rely on the assumption that bad attitudes are based on ignorance and that change will happen when people better understand the nature of mental illness. It is significant however that Australian research (Mental Health Council of Australia 2005, 2011) has found that a major site of stigma and oppression was the mental health system itself. Consumers reported that mental health workers often treated them with a lack of respect and were patronizing, dismissive, blaming, and judgmental. Research in the UK by Sartorius (37) reached similar conclusions. He argued that mental health professionals perpetuate stigma through the application of diagnostic labels and low expectations. These findings challenge the basis for an educational strategy to reduce stigma. Consumers in these studies reported that health professionals were capable of the most disrespectful and dehumanizing response to people with mental illness. In recognition of this, the Australian National Mental Health Strategy includes a major priority of engaging consumers and family carers in the education and training of the mental health workforce. The National Practice Standards (Victorian Government Department of Health 2013) set out in detail the attitudes and values of workers that reflect a respectful relationship with consumers that must be the start of non-stigmatizing mental health practice. The focus of anti-stigma campaigns remains difficult. Programs like Beyond Blue have been successful in promoting the simple idea that depression is common and that treatment is available and effective. Others, such as the Wesley Report
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Living with Mental Illness (Wesley Mission 2007), take a broader approach seeking to build awareness of mental illness and challenge misinformation in the community based on a concept of “mental health literacy.” This task of community education and attitude change continues to pose a long-term challenge. Many campaigns seem to have the problem of explaining two competing truths: firstly that people with mental health problems are not “others” but “us” and secondly that mental illness is serious and profoundly life changing (Bland et al. 2015). All this is made more difficult by the wide range of disorders grouped uncomfortably under the common tag of “mental illness.” In summarizing the UK approach to confronting stigma, the Sainsbury policy paper The Future of Mental Health: A Vision for 2015 concludes that it is debatable how far stigma can be challenged: “To achieve genuine change, increased investment in mental health promotion will be vital, but so will attitudinal change within services, among employers and in society as a whole” (Sainsbury Centre for Mental Health 2006, p. 15). While stigma and discrimination are related concepts, it may be helpful to recognize that strategies to confront these issues may be different. Public education and marketing campaigns may be needed to present mental illness in a more positive light, but discrimination might be confronted more directly and with the weight of the law rather than the vagaries of public opinion. Perhaps the most valuable challenge to stigma has come from advocacy groups within the consumer movement. Agencies such as Our Consumer Place provide a strong consumer voice to support advocacy and public education. For example, they have prepared very practical manuals for consumers engaged in public speaking or education work. They have challenged anti-stigma projects that promote positive views of some disorders such as depression while allowing stigma on other disorders to continue. Another challenge to stigma has come from the burgeoning information available to the public on the Internet where consumer voices can be easily accessed, along with good practical information about disorders and treatments by advocacy groups like SANE Australia (Bland et al. 2015). The New Zealand experience has been based more strongly on principles of the protection of human rights through specific legislation. The New Zealand Bill of Rights (1990) sets down basic rights in such areas as security including the right to refuse medical treatment, democratic and civil rights, and protection from discrimination. The New Zealand Human Rights Commission has a framework for human rights that includes: • Participation – people should be able to participate in society and decisions that affect them. • Accountability – those in authority should act justly and be answerable for their actions. • No discrimination – people should be treated fairly. • Empowerment – allowing people to use rights as a leverage for action. • Linking decision-making to agreed human rights norms. • Identification of all relevant human rights and balancing various rights (Mental Health Commission New Zealand 2007, p. 180).
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This emphasis on human rights overtakes a concern for confronting stigma. If the law can deal effectively with the impact of stigma, there is less need to address the difficult challenge of changing community attitudes and values. A concern with social exclusion provides a natural focus for social work activity in multidisciplinary team settings, offering as it does an additional conceptual and practical paradigm for social work practice. It leads social work back to core business. It represents an additional focus for work, to complement more therapeutic definitions of practice (Bland et al. 2015).
Example: Our Consumer Place – Empowerment Through Collective Action This original description of Our Consumer Place is taken from their website: Our Consumer Place is a resource centre run entirely by people diagnosed with “mental illness” (we choose to call ourselves “consumers”). We provide information, training, support and advice to consumer-run groups and projects (or more specifically, “Consumer Developed Initiatives” (CDIs)). We also support what we call “consumer perspective,” recognising that the lived experience of “mental illness” provides a crucial source of insight that is of value and must be respected. We believe that we are part of an important cultural shift, towards valuing and respecting the lived experience of “mental illness”. Our Consumer Place has been developed by consumers for consumers. (http://www.ourconsumerplace.com.au/consumer/aboutus)
The organization asserts that it is not a therapeutic resource or an advocacy group. Rather, the focus is on building the intellectual and skill base of the consumer movement and building a consumer community with the skills and resources to effect change for mental health consumers. The community building supported by Our Consumer Place is localized and contextualized. They run workshops and presentations for both professional workers and for consumers which focus on developing a distinct consumer perspective in mental health. One major activity has been the establishment of a clearinghouse of lectures, publications, and websites to resource consumers as they engage in training and contribute to the knowledge base for the mental health workforce. Leading intellectuals at Our Consumer Place such as Merinda Epstein and Flick Grey have given consumers a powerful voice in the mental health community. One of the distinctive contributions of the organization has been that of challenging and reclaiming the language of mental illness. Merinda’s cartoon drawings and deeply insightful and irreverent text offer an engaging and accessible set of ideas relevant to both consumers and professionals. The word “mad” has been embraced and promoted, featuring in such publications as “Mad Workplaces” and the “Madquarry Dictionary.” Ann Tullgren, consumer and social worker and a regular contributor to the Our Consumer Place newsletters, has produced a helpful list of stigmatizing words and alternative ways of expressing these. Judgmental phrases such as “non-compliant” are reworked to become “choosing my own
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treatment.” A constant message of Our Consumer Place is that the language we use constructs the reality of that experience, and challenging the negative, disrespectful, and pessimistic language of psychiatry is an ongoing part of the struggle to defeat stigma. How is Our Consumer Place an example of empowerment? • Providing resources. Our Consumer Place develops the intellectual property that forms the basis of education and training and makes it available to the consumer community. Individual consumers are connected with very skilled and committed activists. The quality training provided supports the good efforts of mental health workers as well as consumer activists. • Reclaiming identity – a positive view of madness. In line with the recovery task of building a positive identity, Our Consumer Place can give isolated consumers and their families a language, role models, encouragement, and hope to be able to abandon the highly stigmatized and life-limiting role of mental health patient. There is another way to be mad, and there can be some pride, and indeed some joy, in that identity. • Asserting authority and sense of agency. This is achieved through training and publication, promoting the consumer voice as a valid and important alternative to the dominant voice of mental health clinicians and academics. Our Consumer Place has been able to challenge the power of stigma and the hidden oppression of the anti-stigma campaigns. There is specific training in consumers using their experience to train others, moving beyond telling their story, and using their experience to challenge beliefs and values. Consumers recognize that they are the experts in their own experience and that that expertise is powerful when shared with others. • Establishing a sense of community. Our Consumer Place is a community of likeminded individuals, drawn together for mutual support and education. The newsletters and website provide a point of connection, pride, and identity.
Empowerment Through Challenging Orthodoxy and Promoting an Alternative Voice The Hearing Voices Network websites says that it is (https://www.hearing-voices. org/): A movement of voice hearers, professionals and carers that operates hundreds of self-help groups all around the world. Together, we are united in our mission to promote recovery and reduce the stigma associated with voice hearing. Although ‘auditory hallucinations’ are commonly understood as meaningless symptoms of biological illness, research suggests there are many explanations for hearing voices. Some people begin to hear voices as a result of extreme stress or trauma, while others find spiritual guidance in the form of their voices.
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How is the Hearing Voices Network an example of empowerment? • The Hearing Voices Network offer information, support, and understanding to people who hear voices and those who support them. The network highlights the limitations of a solely medical model in understanding and responding to hearing voices. It also provides self-help groups where voice hearers can discuss their experiences in a safe, nonjudgmental environment. • The Hearing Voices Network positions people with lived experience as experts and provides training to mental health professionals to help challenge the harmful paradigm of hopelessness and stigma that exists within the mental health system. The Network promotes hope that recovery and flourishing is possible. It also challenges stigma associated with hearing voices. • People with lived experience support, promote, and disseminate research findings into various approaches to hearing voices.
Conclusion Working with consumer groups and with family carer organizations is an important part of the community work of social workers. Confronting stigma and discrimination, and promoting the welfare of disadvantaged groups, is core business for the profession. The consumer and career organizations challenge the professional community to work effectively together. When social workers are employed in clinical services, they work as part of the powerful service structures that consumers and family carers can find oppressive. Working in respectful partnership with consumers and family carers remains a challenge for all the mental health disciplines. This chapter has explored a number of theoretical perspectives including the concept of lived experience, recovery theory, stigma, shame, and empowerment. We have worked from a definition of the domain of social work in mental health as being the social context and social consequences of mental illness. A practice focusing on these social dimensions of mental illness demands an engagement both with the broader evidence base shared by all disciplines, and a specific concern for individuals and their families, and the experience of mental illness and its consequences in their lives.
Cross-References ▶ An Overview of Social Work Approaches in Working with Families of People with Serious Mental Illness ▶ Behavior Analysis and Social Work ▶ Community, Mental Health, and Social Work ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Individual Approach to Mental Health from a Psychodynamic and Cognitive Behavioral Perspective
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▶ Legal Provisions, Advocacy, and Empowerment ▶ Social-Cultural Ecological Perspective
References Anthony W (1993) Recovery from mental illness: the guiding vision of the mental health services in the 1990’s. Psychosoc Rehabil J 16(94):11–23. https://doi.org/10.1037/h0095655 Anthony W (1999) Recovery from mental illness: the guiding vision of the mental health service system in the 1990’s. Psych Rehab J 16(4):11–23 Australian Association of Social Workers (AASW) (2008) Practice Standards for Mental Health Social Workers AASW Canberra. https://www.aasw.asn.au/practitionerresources/related-documents Australian Association of Social Workers (AASW) (2017) Australian Social Work Education and Accreditation Standards (ASWEAS) AASW Canberra. https://www.aasw.asn.au/practi tioner-resources/related-documents Bakshi L, Rooney R, O’Neil K (1999) Reducing stigma about mental illness in transcultural settings: a guide. Australian Transcultural Mental Health Network, Melbourne Barry M (2007) Building capacity for effective implementation of mental health promotion. Advan Ment Health 6(2):82–90 Bathje G, Pryor J (2011) The relationships of public and self-stigma to seeking mental health services. J Ment Health Couns 33(2):161–176 Bland R, Darlington Y (2009) The nature and sources of hope: perspectives of family caregivers of people with serious mental illness. Perspect Psychiatr Care 38(2):61–68. https://doi.org/ 10.1111/j.1744-6163.2002.tb00658.x Bland R, Renouf N (2017) Social work and mental health. In: Ellem K, Chui W, Wilson J (eds) Social work and human services best practice, 2nd edn. Federation Press, Melbourne. ISBN 9781760021443 Bland R, Tullgren A (2015) The lived experience of mental illness. In: Fitzgerald J, Byrne G (eds) Psychosocial dimensions of medicine. IP Communications, Victoria. IBSN 9780992518189:0992518180 Bland R, Renouf N, Tullgren A (2015) Social work practice in mental health, 2nd edn. Allen & Unwin, Sydney. IBSN 97817433147531 Cameron P, Flanagan J (2004) Thin ice: living with serious mental illness and poverty in Tasmania. SARC Anglicare Tasmania, Hobart. PB: 0-9580475-7-X. Web: 0-9580475-8-8 Chronister J, Chou C, Liao H (2013) The role of stigma, coping, and social support in mediating the effect of societal stigma on internalized stigma, mental health recovery, and quality of life among people with serious mental illness. Community Psychol 41(5):582–600. https://doi. org/10.1002/jcop.21558 Commonwealth of Australia (2000) National Action Plan for Promotion, Prevention and Early Intervention for Mental Health. Mental Health and Special Programs Branch, Commonwealth Department of Health and Aged Care, Canberra. ISBN 0 642 44724 1 Corrigan P, Watson A (2002) Understanding the impact of stigma on people with mental illness. World Psychiatry 1(1):16–20. PMID:16946807 Craze L (2013) A national framework for recovery-oriented mental health services: policy and theory. Commonwealth of Australia, Canberra Davidson L, O’Connell M, Tondora J, Lawless M, Evans A (2005) Recovery in serious mental illness: a new wine or just a new bottle? Prof Psychol Res Pract 36(5):480–487. https://doi.org/10.1037/0735-7028.36.5.480 Deegan P (1988) Recovery: the lived experience of rehabilitation. Psychosoc Rehabil J 11:11–19 Epstein M (1995) One Stigma or Many. Paper presented at THEMHS Conference, Melbourne. http://www.ourconsumerplace.com.au/consumer/resources
11
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Epstein M, Olsen A, Grey F (2012) How communities respond to mental health distress: a consumer perspective. In: Meadows G, Farhall J, Fossey E, Grigg M, McDermott F, Singh B (eds) Mental health in Australia collaborative community practice, 3rd edn. Oxford University Press, South Melbourne, pp 18–13. ISBN 9780195574883 Goffman E (1963) Stigma: notes on the management of spoiled identity. Penguin Books, London. ISBN 067162247,9780671622442 Horsfall J, Cleary M (2010) Stigma in mental health: clients and professionals. Issues Ment Health Nurs 31(7):450–455. https://doi.org/10.3109/01612840903537167 Jacobson N, Greenley D (2001) What is recovery? A conceptual model and explanation. Psychiatr Serv 52:482–485. https://doi.org/10.1176/appi.ps52.4.482 Johnson MR (2015)The Fight: Stigma vs Shame [Blog post]. Retrieved from https://www. huffingtonpost.com/mr-johnson/stigma-verses-shame_b_7991216.html Leamy M, Bird V, Le Boutillier C, Williams J, Slade M (2011) Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry 199:445–452. https://doi.org/10.1192/bjp.bp.110.083733 Leff J, Warner R (2006) Social inclusion of people with mental illness. Cambridge University Press, Cambridge. ISBN-13: 978-0-521-61536-5 (paperback) Linhorst D (2006) Empowering people with severe mental illness. Oxford University Press, Oxford. ISBN 9780195171877 Mental Health Commission (1998) Blueprint for mental health services in New Zealand. Mental Health Commission, Wellington. https://doi.org/10.1176/appi.ps.52.4.482 Mental Health Commission of New Zealand (2007) Te haererenga mo to whakaoranga 1996–2006. Mental Health Commission, Wellington Mental Health Council of Australia (2005) Not for service: experiences of injustice and despair in mental health care in Australia. Mental Health Council of Australia, Canberra. ISBN 0-9580363-5-7 Mental Health Council of Australia (2011) Consumer and carer perspectives of stigma from mental heath and other health professionals. Mental Health Council of Australia, Canberra Mrazek P, Haggerty R (1994) Prevention of mental disorders: effective interventions and policy options. World Health Organization, Geneva. ISBN 92 4 159215 X Onken S (2014) Realizing recovery: a strengths-based practice framework. In: Francis A, Pulla V, Clark M, MAriscal S, Ponnuswami (eds) Advancing social work in mental health through strengths-based practice. Primrose Hall Publishing, Brisbane. ISBN 978-32323230-3 Remi Blog: The stigma and shame around mental illness stopped me from getting support [Blog post]. Retrieved from https://www.time-to-change.org.uk/blog/stigma-and-shame-around-men tal-illness-stopped-me-getting-support. (Remi’s blog). Accessed Dec 2017 Rüsch N, Corrigan P, Wassel A, Michaels P, Larson J, Olschewski M, Wilkniss S, Batia K (2009) Self-stigma, group identification, perceived legitimacy of discrimination and mental health service use. Br J Psychiatry 195(6):551–552. https://doi.org/10.1192/bjp.bp.109.067157 Sainsbury Centre for Mental Health (2006) The future of mental health: a vision for 2015. Sainsbury Centre for Mental Health, London Sartorius N (2002) Iatrogenic stigma of mental illness. Br Med J 324(7352):1470–1471. https://doi. org/10.1136/bmj.324.7352.1470 Slade M (2009) 100 ways to support recovery: a guide for mental health professionals. Rethink recovery series, vol 1. Rethink, London Tew J, Ramon S, Slade M, Bird V, Melton J, Le Boutillier C (2012) Social factors and recovery from mental health difficulties: a review of the evidence. Br J Soc Work. https://doi. org/10.1093/bjsw/bcr076. Advance Access Thyer B, Myers L (2011) The quest for evidence-based practice: a view from the United States. J Soc Work 11:8–25. https://doi.org/10.1177/1468017310381812 Topor A, Borg M, Girolamo S, Davidson l (2011) Not just an individual journey: social aspects of recovery. Int J Soc Psychiatry 57:90–91. https://doi.org/10.1177/0020764010345062
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Tweedell D, Forchuk C, Jewell J, Steinnagel L (2004) Families’ experience during recovery or nonrecovery from psychosis. Arch Psychiatr Nurs 18(1):17–25. ISBN: 0135146550,9780135146552 Victorian Government Department of Health (2013) National Practice Standards for the Mental Health Workforce 2013. Department of Health, Melbourne Wesley Mission (2007) Living with mental illness: attitudes, experiences and challenges. Wesley Mission, Sydney Wyder M, Bland R (2014) The recovery framework as a way of understanding families’ responses to mental illness: balancing different needs and recovery journeys. Aust Soc Work 67(2):179–196. https://doi.org/10.1080/0312407X2013.875580 Wyder M, Bland R, Heriot A, Crompton D (2015) The experiences of the legal processes of involuntary treatment orders: tension between the legal and medical frameworks. J Law Psychiatry 38:44–50. https://doi.org/10.1016/j.ijlp.2015.01.006
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 238 Definition of Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 238 Determinants of Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 239 Definition of Community . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 240 Green Spaces . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 240 Civic Engagement . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 243 Alcohol Outlet Density . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 246 Intimate Partner Violence . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 247 .... Child Maltreatment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 248 .... Violent Crime . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 249 .... Social Work Implications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 251 Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 253 Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 253 References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 254
Abstract
This chapter review serves to present a limited number of community factors that contribute to mental ill health and well-being and when addressed can lead to improved psychological health. The community-level factors that can be addressed through social work interventions or social work-led initiatives include exposure to green spaces, civic engagement, and alcohol outlet density. The chapter proposed that actions taken at the community level such as advocacy for and usage of public parks, volunteerism, and actions taken to help regulate accessibility to alcohol consumption may have potential to directly or indirectly prevent mental ill health and improve population mental health. C. Lim (*) · R. Ow Department of Social Work, National University of Singapore, Singapore, Singapore e-mail: [email protected]; [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_24
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Keywords
Community · Mental health · Greenness · Civic engagement · Alcohol outlet density
Introduction Mental disorders are highly prevalent. According to the World Health Organization World (WHO) Mental Health Survey (The WHO World Mental Health Survey Consortium 2004), up to 26.4% of individuals surveyed, or approximately one in four persons, met diagnostic criteria for at least one common mental disorder including anxiety disorders, mood disorders, disorders associated with impulse control, and substance use disorders in the previous year. Findings from a later systematic review and meta-analysis of large-scale mental health surveys to derive global prevalence of the same set of common mental disorders, except for disorders associated with impulse control converged with the WHO (2004) findings reported above, indicating that the prevalence has not changed in recent years (Steel et al. 2014). The researchers found that 17.6% of respondents, or approximately one in five, met criteria for a common mental disorder during the previous 12 months, whereas 29.2%, about one in three participants, met criteria at some time during their lifetime (Steel et al. 2014). Several studies have been conducted to identify the prevalence of mental illness in the community. For example, the second Singapore Mental Health Study estimated that 13.9% of the adult population, more than one in eight, met diagnostic criteria for a mood, anxiety, or alcohol use disorder (Subramaniam et al. 2019). In addition, the National Centre of Social Research in the United Kingdom conducted a survey with 5000 adults and reported that 26% had been diagnosed with a mental illness. It also found that a further 18% reported having experienced a mental illness but had not been diagnosed (Bridges 2014). Given the prevalence of mental disorders, policymakers and public-health officials are increasingly concerned with ways to improve the mental health of the general population.
Definition of Mental Health Good mental health is not marked by the mere absence of mental disorder. According to the WHO (2018a), mental health enables people to realize their potential, cope with life stresses, engage in productive and fruitful work, and make contributions to the community. Therefore, the WHO mental health plan is to not only manage mental illness but also promote mental well-being. At the 13th General Program of Work (GPW13) covering 2019–2023, the WHO Director-General, Dr. Ghebreyesus, declared that the time is ripe to empower communities and individuals to attain the highest standard of health. The vision of the WHO Special Initiative for Mental Health acknowledged that mental health has to be an integral part of UHC (Universal Health Coverage). Nobody should be denied access to mental health care because she or he is poor or lives in a remote place (WHO
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2018b). Within the UHC initiative, Strategic Action 2 is defined as scaling up interventions across community-based, general health, and specialist settings. The WHO 2019–2030 initiative followed the Comprehensive Mental Health Action Plan 2013–2020 where one of the major objectives adopted at the 66th World Health Assembly (WHO 2013) was to provide comprehensive, integrated, and responsive mental health and social care services in community-based settings. The following sections will therefore discuss some areas of social work interventions across community-based and general health settings in the context of mental health.
Determinants of Mental Health Understanding the link between the community and mental health in the population is based on the ecological-systemic framework commonly used in the context of social policies and service provisions in the social care sector. The ecological-system perspective focuses on the interrelatedness of people and the environment. The ecological-systemic paradigm was first introduced by Bronfenbrenner in the 1970s (1974, 1977, 1979) based on empirical observations and evolving theories about the processes and conditions that influence the life course development of human beings in the actual environments in which they live. The general ecological model conceived of the environment as highly differentiated systems but with mutual influence across systems. Like a set of Russian dolls, the ecological environment is a set of nested structures each inside the other moving from the innermost level to the outside. The innermost microsystem consists of a pattern of activities, social roles, and interpersonal relations in the immediate environment such as family, school, and work place. The next system in the set of ecological structures is the mesosystem comprising the linkages and processes between two or more settings in which the individual is directly involved such as between the family and the school in the case of school children. In other words, the mesosystem is a system of microsystems whose interactions impact on the individual. The exosystem comprises the linkages and processes between two or more settings with at least one setting not containing the individual such as the parent’s workplace in the case of a child. Although the individual is not in the workplace, nevertheless the processes within the exosystem may also have an influence on the individual. The macrosystem, the last in the nested structures, consists of the overarching characteristics of the micro-, meso-, and exosystems such as culture, belief systems, and other factors embedded in the wider societal environment of the individual. Later theoretical developments extended the ecological parameter to the inclusion of the chronosystem where historical time is conceived as part of the environment in which the individual lives. The chronosystem encompasses any change or consistency over time in the environment such as family structure, societal norms, or place of residence (Bronfenbrenner 1994). Since the different systems interact and influence each other and impact on the development of the individual, the ecological-systemic paradigm becomes an important model for understanding the potential of the environment in shaping social functioning, mental health, and illness. The aim of social work practice is to promote the social functioning of individuals via adaptation to their environment and/or by ameliorating the environment. The
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ecological-systemic perspective allows social work practitioners to intervene at the environmental level to promote better mental health. Germain (1978, p. 542) noted that “when inputs or stimuli are insufficient, excessive, or missing altogether, an upset occurs in the adaptive balance which is conceptualized as stress: the usual ‘fit’ between the person and environment has broken down.” As such, a lack of “fit” between people and their environment can be damaging to both. An emphasis on the environmental determinants of health and wellbeing, including mental health, will reflect the importance of the “fit” between the exosystem and the macrosystem in the development and functioning of the individual.
Definition of Community One aspect of the environmental determinants of mental health that has been the focus of research is the community. The traditional notion of community as geographical locations where people carried out all aspects of their lives, where they live, work, socialize, and shop may no longer apply. Nowadays people may carry out activities in different locales outside the immediate environment where they live, work, and play. So how is community to be defined? The conceptualization varies according to disciplines. For some disciplines, community means the geophysical environment in which people live and work, but for others, community represents relationships or the social environment. In this chapter, community is defined as the social context as well as the physical environment that influence behaviors. The following review serves to present a limited number of community factors that contribute to mental ill health and well-being. The focus is on community-level factors that can be addressed through social work interventions or social work-led initiatives. These community factors include exposure to green spaces, civic engagement, and alcohol outlet density and will be discussed in greater details in the following sections. The objective is to emphasize that social work’s contribution to actions taken at the community to address these factors have potential for preventing mental ill health and improving social care.
Green Spaces An emerging body of research has focused on the relationship between exposure to greenness, which is part of the natural environment, and health including mental health. Results from cross-sectional and longitudinal epidemiological studies conducted in different countries have demonstrated the beneficial effects of the natural environment (e.g., Alcock et al. 2014; Mukherjee et al. 2017; White et al. 2013). An index of natural environment is the availability of urban green spaces. These spaces include public parks and other vegetated areas. Researchers have posited that proximity to urban green spaces improves health via increasing opportunities for physical activity, reducing heat effects, regulating pollution, and increasing access to consumable greens. Nearby greenness has been found to be associated
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with other positive health indicators such as healthier infant birth weight (e.g., Banay et al. 2017) and lower risk of cardiovascular and respiratory disease (e.g., Donovan et al. 2013). Closer proximity to urban green spaces have also been linked to more favorable psychological health. White and colleagues (2013), for example, explored the relationship between urban green space and two indicators of mental health, wellbeing, and distress. Drawing on panel data gathered from over 10,000 individuals who participated in the British Household Panel Survey, the researchers applied fixed effects analysis to compare the mental health of the same individuals at different points in time reflecting different states (e.g., when they are married, employed, living in an area with less green space vs. when they are unmarried, unemployed, and living in an area with more green space) while controlling for individual characteristics (age, education, marital status, number of children living at home, income, health status, and employment status) and area-level variables (income, employment, education, crime). Results revealed a small but beneficial effect of green space on mental distress and life satisfaction. As the percentage of green space increases, mental distress decreased and life satisfaction increased. These effects were statistically significant even after controlling for potential individual- and area-level correlates of mental health. Using data from the British Household Panel Survey, Alcock et al. (2014) expanded the aforementioned study by investigating the impact of changes in area of green space near residence on mental health. The researchers found that individuals who relocated to greener urban areas reported sustained improved mental health post move, whereas individuals who moved to less green areas reported poorer mental health in the year preceding the move, but demonstrated an improvement in their mental health following the move. The finding related to movers to less green areas may be explained by the negative impact of anticipated moving on mental health and declining mental health that precipitated the move. Similarly, Reklaitiene et al. (2014) found a statistically significant association between use of park, residential proximity, and depressive symptoms in a sample of adults residing in Kaunas city, Lithuania. Adjusting for age, marital status, education, smoking, alcohol used, and body mass index, individuals who use the parks regularly (spend more than or equal to 4 h per week) but lived further away had higher odds of being classified as having depressive symptoms than those who had residential proximity. Among individuals who did not use the park or used it very infrequently (less than 4 h per week), distance to the park was not found to be significantly associated with the likelihood of endorsing depressive symptoms. In the same fashion, Mukherjee and colleagues (2017) reported an association between park availability close to home and major depression among adults with chronic medical condition in Delhi, India. Controlling for age, sex, educational attainment, marital status, household wealth, and family size, area of the nearest park was inversely but significantly associated with current major depression. In other words, risk of current major depression was higher among participants who lived near smaller parks than those who lived near larger parks after adjusting for potential confounders. The researchers posited that smaller parks may not be as well
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maintained as larger parks, thus failing to incentivize residents to use the park for walking and social interactions, activities known to positive impact mental health and perhaps with social connectedness which will be discussed more fully in the next section. Participants who lived near smaller parks reported less physical activity per week compared to their counterparts who lived near larger parks. However, physical activity did not mediate the association between area of nearest park and current depression. Other measurements of park availability, namely, distance to the nearest park, number of parks in the neighborhood, and total area of all parks in the neighborhood were also not significantly associated with current major depression. Other aspects of mental health and the natural environment have also been studied. Using data from a nationally representative sample of community-dwelling older adults without cognitive impairments recruited from across the United States, Pun et al. (2018) examined the association between green space and self-perceived stress, depressive symptoms, and anxiety symptoms, and whether the associations were mediated by physical activity, loneliness, and social support. Adjusting for confounders (age, gender, year, season, region, educational attainment, temperature, and air quality), the researchers found that increased greenness was significantly associated with lower levels of self-perceived stressed during the previous week. The significant inverse association was partially explained by increased physical activity afforded by higher levels of greenness. Greenness has also been examined for its relationship with mental health among adolescents and young adults. With data from teenagers in the United States, this prospective cohort study examined the association between exposure to greenness during childhood, determined by participant’s mother’s home address, and depressive symptoms (Bezold et al. 2018). The researchers found that higher exposure to greenness during childhood was significantly associated with a lower risk of developing high depressive symptoms. This association was statistically stronger for participants who lived in areas of high population density and those with younger age at onset of depression, although the latter association was not statistically significant. A statistically significant association, however, was found between exposure to greenness and persistence of depressive symptoms among participants who grew up in higher population density areas. It is noteworthy that these reported associations were based on adjusted analyses performed on data gathered from more than 11,000 adolescents. Similarly, Van Aart and colleagues (2018) also found salutary effects of greenness on mental health in a sample of Belgian children. The researchers examined crosssectional associations between exposure to semi-natural and forested area and various behavioral and emotional outcomes in Belgian children and adolescents aged 9–15. After controlling for age, sex, and parental socioeconomic status, increased exposure to agricultural area was found to be negatively associated with hyperactivity but not with other behavioral outcomes (conduct problems, emotional problems, peer problems, proposal behavior, and overall behavioral difficulty). Whereas higher exposure to semi-natural and forested area was not found to be significantly associated with behavioral challenges, it was found to be significantly associated with emotions of happiness, sadness, anxiousness, and overall negative emotions. In addition to a cross-sectional evaluation, the sample of children and adolescents were followed up over several years, thus enabling Van Aart and colleagues (2018) to also examine
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longitudinal associations. The researchers found that higher levels of exposure to semi-natural and forested area in 2012 predicted significantly higher levels of happiness in 2015, partly explained by lower residential noise. There is some evidence that exposure to natural environment in care facilities may improves the mental health of residents. Browning et al. (2019) investigated whether tree canopy cover surrounding nursing homes was important for understanding the presence of depressive symptoms in residents. The researchers gathered data on percentage of tree canopy surrounding each of 9186 nursing homes across United States and percent of residents with depressive symptoms. Their investigation revealed an inverse relationship between tree canopy cover up to 3000 m away and percentage of residents with depressive symptoms so that higher percentage of tree cover surrounding facilities was associated with significantly lower percentage of residents with depressive symptoms. This association remained significant even after adjusting for variables that may impact on residents’ mental health: residents’ sociodemographic characteristics, quality of care at facilities, air quality, and population density. Notably, the association became weaker as distance of tree canopy cover from nursing home increased. The researchers offered several mechanisms for the link between natural environment and depressive symptoms in elderly residents of nursing homes. These include the facilitation of physical and social activities among residents and reduction of noise and air pollution. In addition to mental health, research has also found an association between exposure to greenness and more objective measures of mental well-being such as salivary cortisol levels in a sample of individuals living in a deprived neighborhood. Thompson and colleagues (2012) investigated whether greenness around people’s home was associated with stress, measured objectively via salivary cortisol and subjectively via completion of the self-reported Perceived Stress Scale (Cohen et al. 1983). Greater exposure to green space close to home was significantly associated with greater reduction in diurnal cortisol from morning to evening, an indicator of better mental well-being, and negatively associated with self-reported stress. Overall, there seems to be on-going evidence that availability and closeness to green spaces have a positive effect on mental health and well-being either directly or indirectly. As such, social work should consider engagement with community partners to increase service users’ exposure to greenness as part of its repertoire of skills and services. Urban planners, parks and recreation providers, and recreational groups are all part of the exo- and macrosystems in the community. They can help to generate better green spaces in the environment and incentivize residents to engage in outdoor activities, either as individuals or as members of a community group, to improve social and mental well-being.
Civic Engagement Civic engagement is defined as involvement in political and nonpolitical activities to address issues of public concern and promote the civic life of one’s community. Individual volunteerism, electoral participation, and charitable giving are common types of civic engagement activities that reflect the degree of social connectedness
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between the individual and the community. A body of research from epidemiological to experimental studies has explored the relationship between civic engagement and mental health. For example, with longitudinal data gathered from a nationally representative sample of adolescent followed up through young adulthood, WrayLake and colleagues (2019) investigated the bidirectional association between multiple types of civic engagement (community engagement, voting, and other political behaviors) and depressive symptoms in a sample of adolescence and young adults in the United States. They found that participation in extracurricular activities during adolescence predicted lower levels of depressive symptoms during early young adulthood holding constant levels of depression during adolescence. Similarly, service and organizational involvement during early young adulthood predicted lower depression during young adulthood. The findings that community engagement may have mental health benefits for youth are consistent with findings from the beneficial link found among older adults. The connection between these two factors is further established as reflected in the following review of research conducted in this area. Findings from cross-sectional and longitudinal studies have demonstrated that civic engagement, particularly volunteerism, is associated with lower levels of mental ill health (e.g., Creaven et al. 2018; Li and Ferraro 2005; Olesen and Berry 2011; Yeung et al. 2018). For example, Ding et al. (2015) examined the relationship between civic engagement – attending events that bring people together such as festivals, making time to attend services at places of worship, giving money to charity, and volunteering during spare time – and mental well-being, which was measured using items based on the Medical Outcomes Study Short Form (SF-36), in a representative Australian sample. The researchers found that civic engagement in 1 year predicted better mental well-being the next year, specifically life satisfaction and vitality, after controlling for age, labor force status, relationship status, educational attainment, household income, and physical health. Civic engagement was not significantly predictive of better overall mental well-being when other types of community participation activities were considered. The researchers found that among the three types of community participation examined, informal social connectedness was the strongest predictor of overall mental well-being. The researchers however found that the benefits of civic engagement were more pronounced among participants who had better mental well-being. Creaven and colleagues (2018) investigated the association between volunteering and mental health using crosssectional data derived from the sixth wave of the European Social Survey (ESS), comprising data gathered from all persons aged 15 years and older who were residents of Western Europe at the time of data collection. They found that volunteering was significantly associated with lower severity of depressive symptoms and that volunteering at any level was associated with beneficial effects over no volunteering. Tabassum et al. (2016) also found in a cohort study using data gathered from a nationally representative British population aged 15 and over that people who volunteered reported lower scores on the General Health Questionnaire (GHQ), indicating better mental well-being. People who volunteered frequently (once a week) reported the lowest GHQ score, whereas people who never volunteered
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reported the highest GHQ score. The relationship remained significant even after adjusting for potential confounders (e.g., sex, marital status, income, and general health). Empirical evidence of a positive association between volunteering and mental health is particularly strong among older adults. Using longitudinal data gathered from a nationally representative sample of adults aged 60 and over in the United States, Morrow-Howell and colleagues (2003) addressed questions related to the relationship between volunteering and late-life well-being. The researchers tested several hypotheses. Among them were that volunteers have higher levels of mental well-being than those who did not volunteer and that a dose-response relationship exists between volunteering and well-being. Results from their investigation revealed important findings, notably, that volunteering had a positive effect on late-life well-being so that older adults who engaged in more hours of volunteering reported better mental well-being. Using longitudinal data from the Asset and Health Dynamics Among the Oldest Old Study (AHEAD), Lum and Lightfoot (2005) examined the association between formal volunteering and health in a national representative sample of older people over age 70 in the United States. The researchers found that older adults who had volunteered at least 100 hours evidenced smaller increase in depression levels 7 years later than older adults who did not volunteer at least 100 hours per year. Can the relationship between volunteerism and mental well-being be explained by social connectedness? Creaven et al. (2018) investigated this association using data derived from the sixth wave of the European Social Survey (ESS), comprising data gathered cross-sectionally from all persons aged 15 years and older who were residents of Western Europe at the time of data collection. As previously described, volunteering was found to be significantly associated with lower severity of depressive symptoms and that any level of volunteering was associated with beneficial effects over no volunteering. However, this association weakened after adjusting for social connectedness, suggesting mediating effects. Measurement of social connectedness included items on intimate ties, frequency of social activities, and perceived social support. Individuals who were well connected had comparatively lower severity of depressive symptoms than did those who were poorly connected. Importantly, volunteers tended to be highly connected socially. This result demonstrates that the benefits of volunteering on mental health are better explained by volunteers’ social connectedness. Indeed, studies have found strong associations between social connectedness and mental well-being. A cross-sectional study of a random sample of adults 45 years old and older living in an Australian coastal community found that contact with friends and neighbors were associated with less psychological distress among retired people but not among working adults of the same age (Olesen and Berry 2011). Berry and Welsh (2010) found that informal social connectedness was associated with less emotional distress in a cross-section study of a nationally representative Australian sample. When this association was examined longitudinally, the researchers found the same relationship: informal social connectedness – measured by being contact with friends and relatives, chatting with neighbors, talking about current affairs with
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friends and family, keeping in touch with friends, and seeing extended family members – in 1 year predicted higher mental well-being the next year. The relationship was linear so that greater number of informal social connectedness was associated with lower severity of psychological distress. Freisthler and Maguire-Jack (2015) found that neighborhood collective efficacy, measured by neighborhood members’ willingness to intervene for the common good (e.g., if children were spray painting graffiti on a local building) and social cohesion, was associated with lower rates of child physical abuse in California. In the same fashion, Schofield and colleagues (2018) found that parents’ perception of higher levels of community social cohesion in a rural sample of White participants living in Iowa was significantly associated with lower number of adverse childhood events reported by their offspring regardless of parents’ level of exposure to adverse events during childhood. Adolescents who reported the highest number of adverse childhood events had parents who experienced high number of childhood adversity and perceived community social cohesion to be low. Whereas higher levels of social connectedness have been found to be associated with better mental well-being, findings from research suggest that the effects of political participation are less favorable. Higher levels of political participation in 1 year was associated with higher levels of mental health distress the following year even after controlling for other forms of community participation and confounding variables (Ding et al. 2015). Olesen and Berry (2011) similarly found that greater participation in political protest was significantly associated with poorer psychological health in retirees, not among employed participants. Researchers have offered several hypotheses including that individuals with poorer mental well-being are drawn to political participation and the possibility that political participation compromises mental well-being. Overall, civic engagement may result in a higher degree of social connectedness that can have positive effects on mental well-being. The association between civic engagement and mental health may be explained by the social integration theory, which posits that volunteering enhances volunteers’ sense of meaning and purpose in life, facilitates social interactions, develop social support through an enlarged social network, and introduces fulfilling and self-validating experiences, collectively bolstering mental well-being. Community participation also promotes mental health by strengthening aspects of social cohesion such as sense of belonging, social trust, information sharing. However, political participation appears to be negatively associated with mental health.
Alcohol Outlet Density As previously described, the definition of community includes the physical environment. Related to mental health, research has examined the impact of alcohol outlet density, a commonly used indicator of adverse physical environments. Alcohol outlet density refers to the geographic distribution of establishments in a defined area licensed to sell alcohol for consumption on or off premise and forms one aspect of the built environment that has an impact on the lives and mental well-being of
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individuals. Greater alcohol outlet density, a frequently used measure of alcohol availability, has been implicated in problematic behaviors that include intimate partner violence, child maltreatment, crime, and violent assaults. The following sections will review research on the exposure to these alcohol-related harms and heightened risk for mental ill health and psychological distress.
Intimate Partner Violence Research has established an association between excessive alcohol consumption and perpetration of intimate partner violence which prompted the investigation of whether alcohol outlet density also contributes to heightened risk of intimate partner violence perpetration in addition to other neighborhood socioeconomic characteristics (Iritani et al. 2013; Resko et al. 2010; Waller et al. 2013). Iritani et al. (2013), for example, examined the relationship between alcohol outlet density and perpetration of intimate partner violence among young adult women in the United States using data from the National Longitudinal study of Adolescent Health. The researchers found that young women who lived in a neighborhood with higher off-premise alcohol outlet density were significantly more likely to report perpetrating physicalonly intimate partner violence against their male partner in the previous year. This association remained significant even after adjusting for participants’ demographic characteristics (age, race and ethnicity, marital status, and experience of childhood abuse or neglect), alcohol use, and neighborhood-level characteristics. Similar relationship between off-premise alcohol outlet density and physical-only intimate partner violence was reported by Waller et al. (2013) in a study of male-tofemale intimate partner violence. Addressing the limitations of relying on police data (by including only cases brought to the attention of law enforcement and the lack of data on the perpetrator’s demographics and alcohol use patterns), the researchers sought to advance understanding of the link in a nationally representative sample of young adult men between the ages of 18 and 27 years old. Total alcohol outlet density, which combines both on-premise and off-premise establishments, significantly increased the odds of physical intimate partner violence perpetration. Building on earlier works, Cunradi et al. (2011) tested the hypothesis that higher alcohol outlet density (measured by on-premise outlets such as bars, restaurants, and off-premise outlets) would be positively associated with an expanded list of intimate partner violence events, namely, intimate partner violence-related police calls and intimate partner violence-related crime reports over and above neighborhood characteristics (poverty, unemployment, and racial and ethnic composition). Similar finding of a link between off-premise alcohol density outlet and intimate partner violence was reported in that each additional off-premise alcohol density outlet was associated with a 4% increase in intimate partner violence-related calls and 3% increase in intimate partner violence-related crime reports. The researchers, however, did not find an association between on-premise alcohol density outlet and intimate partner violence. Researchers have hypothesized that greater alcohol outlet density increases access to alcohol, which in turn result in increased alcohol consumption, a known risk factor for perpetration of intimate partner violence. Another
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plausible explanation is that higher alcohol density outlet may represent loosed social control, thus attracting individuals with heightened risk of perpetration.
Child Maltreatment According to the WHO (2014b), child maltreatment is a public health problem. Close to one quarter (22.6%) of adults experienced physical abuse during childhood; 36.3%, emotional abuse; 16.3%, neglect; and 25.6%, sexual abuse. Childhood maltreatment negatively impacts on mental and behavioral health that includes increased risk of a range of mental disorders and suicidality. Parental substance use is a known antecedent to child maltreatment or child welfare system involvement (e.g., Freisthler and Gruenewald 2013). Indeed, parents with known substance use disorder have been found to be significantly more likely to engage in child maltreatment (e.g., Freisthler and Gruenewald 2013). The availability of on-premise alcohol establishments in the community may prompt parents to spend time away from home, which results in supervisory neglect. The accessibility of off-premise alcohol outlets, on the other hand, increases the risk of hazardous alcohol consumption in caregivers at home, thus engendering risk of physical abuse (Freisthler and Gruenewald 2013). Researchers have offered several theories to explain the plausible link between alcohol density outlet and child maltreatment. The routine activities theory posits that density and types of alcohol outlets in the immediate environment influence the drinking behavior of caregivers, which in turn impacts on the probability of perpetrating abuse (Cohen and Felson 1979). With greater density of alcohol outlets, especially off-premise outlets, alcohol becomes more accessible, thus facilitating more frequent alcohol use and increasing the risk of committing child abuse or neglect given the disinhibiting properties of alcohol (Freisthler et al. 2004). However, overall findings on the association between alcohol outlet density and child maltreatment have been mixed. For example, Freisthler et al. (2014) investigated alcohol outlet density and self-report of supervisory neglect using data gathered from 3023 participants via a telephone survey from cities throughout California. The investigation revealed that higher concentration of on-premise alcohol outlets was positively related to leaving a child home alone when an adult should be present. This association remained significant even after adjusting for child and parent attributes. Density of on-premise or off-premise alcohol outlet was however not significantly associated with other types of supervisory neglect, namely, leaving a child in the car alone, leaving a child when unsure of safety, and unsafe monitoring. Using the same data, Freisthler and Maguire-Jack (2015) did not find an association between alcohol outlet density and child physical abuse. Research has also provided evidence that higher alcohol outlet density is associated with intergenerational continuity of childhood abuse and neglect. Schofield and colleagues (2018) examined the link between community environment (socioeconomic status, neighborhood services, social cohesion, and alcohol vendor density) and experience of adverse childhood events (abuse, emotional
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neglect, and household challenges) and intergenerational continuity of these childhood adversities. Results showed that adolescents living in neighborhoods with higher concentration of alcohol outlets reported higher number of childhood adverse events regardless of their parents’ level of childhood adverse events exposure. However, among adolescents living in neighborhoods with low concentration of alcohol outlets, the number of childhood adverse events was positively associated with their parents’ exposure. Importantly, these associations remained significant after controlling for potential confounders comprising parent neuroticism, parent alcohol problems, and community characteristics. This study thus provided further evidence of the association between alcohol outlet density and child maltreatment.
Violent Crime Research has provided empirical evidence that greater access to alcohol outlets is associated with violent crimes in the community/area (Campbell et al. 2009; Toomey et al. 2012). Locales such as neighborhoods with more alcohol establishments tend to experience higher number of violent crimes than those with fewer establishments. The association between alcohol outlets and violent crimes can be explained by the location of these outlets which tends to be in areas of low supervision such as socially disorganized neighborhoods (Gruenewald et al. 2006; Felson and Eckert 2016). Such neighborhoods facilitate crimes by providing motivated perpetrators avenues, like abandoned buildings, to congregate. Another explanation for the observed positive association between alcohol outlet density and violent crimes (Gruenewald 2007) posits that as alcohol availability increases via more alcohol establishments, excessive alcohol consumption correspondingly increases, which in turn increases the risk for alcohol-related harm. Types of place managers employed by alcohol outlets may also play a role. Place managers employed in on-premise establishments, such as waitresses, bartenders, and bouncers, can be more effective in preventing crime. They are not only in closer proximity to, but also are afforded longer duration of contact with potential offenders. Place managers therefore have more opportunities to intervene such as in employing de-escalation techniques. Consequently, researchers have hypothesized a stronger association between off-premise alcohol outlets and violent crimes. Similarly, Trangenstein and colleagues (2018) tested the hypothesis of a stronger relationship between off-premise alcohol outlets and violent crime exposure with more recently available data gathered from Baltimore, Maryland. The researchers examined the relationship between on-premise, off-premise, and LBD-7 (establishments permitted to sell alcohol on and off premise), and specific types of crime comprising homicide, aggravated assault, sexual assault, and robbery. Findings demonstrated a significant association between access to alcohol outlet and violence crime adjusting for neighborhood factors (percent minority, owner-occupied housing, median annual household income, population density, and drug arrest). Specifically, a 10% in access was related to a 4.2% increase in total violence crime. The
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association was strongest for off-premise alcohol outlets such that a 10% increase was associated with a 4.4% increase in total violent crime exposure, whereas a 10% increase in on-premise outlet and LBD-7 outlet was associated with a 3.0% increase and 4.2% increase in total violent crime exposure, respectively. Greater accessibility to off-premise alcohol outlet was significantly associated with all index of violent crime, namely, homicide, aggravated assault, sexual assault, and robbery. These findings thus support the researchers’ hypothesis of a stronger association between off-premise alcohol outlets and violent crimes. Zhang et al. (2015) evaluated the impact of a reduction in alcohol outlet density on violent crime in Buckhead, an affluent neighborhood in northeast Atlanta, Georgia. The neighborhood experienced considerable changes in the density of alcohol outlets between 1990s and 2000s. A growth of on-premise outlets in the neighborhood between 1997 and 2002 was followed by a reduction between 2003 and 2007, resulting in an overall decline of 6.8% in alcohol outlet from 1997 through 2007. The researchers compared exposure to violent crime in Buckhead during this period with exposure in two control sites, Midtown and Downtown, with similarly high clusters of alcohol outlets between 1997 and 2002, but experienced further increase of at least 24% between 2003 and 2007. The researchers reported a significant positive association between alcohol outlet density and violent crime exposure across all three neighborhoods. These findings also bolster those from cross-sectional studies of the link between alcohol outlet density and violent crime exposure. The findings linking alcohol outlet density directly to mental ill health has been more limited and less persuasive. Pereira et al. (2013) related alcohol outlet density to mental ill health in a population representative of the Australian sample comprised of adults aged 18 and above. Two mental health outcomes were measured: selfreport of prior diagnosis with anxiety, stress, or depression; and hospital contact (inpatient, outpatient, or emergency) for mental health within a 3-year window period from the time of survey completion. The researchers found that for every additional alcohol establishment in the neighborhood, harmful consumption of alcohol during the previous 4 weeks increased by 6%. The researchers also observed increased odds of hospital contact for mental health needs among participants with an alcohol establishment in the neighborhood compared to those without; however, this association was not statistically significant after controlling for participants’ age, sex, educational attainment, and household income. The number of hospital contacts in the sample was small, which may explain the insignificant association. Lamb and colleagues (2017) also examined the association between alcohol outlet density and two mental health outcomes, alcohol consumption and depressive symptoms, in women from socioeconomically disadvantaged neighborhoods in Australia. The researchers found associations of small effect sizes between alcohol outlet density in the neighborhood and alcohol consumption pattern, but did not find evidence of a statistically significant association with depressive symptoms. Although research on the effects of alcohol outlets density on the mental health of individuals is limited, the reasons why people drink and the consequences of excessive drinking are significant issues for social work to address. One of many reasons for drinking is to change one’s mood or mental state. Alcohol can alleviate
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feelings of anxiety and depression temporarily and are often used as a form of “selfmedication” such as to relax and sleep better and to lower inhibitions. Drinking depresses the central nervous system which can make moods fluctuate and numb emotions so that dealing with difficult issues can be avoided. While drinking does not necessarily cause mental illness, regular consumption of alcohol decreases the levels of the brain chemical serotonin which is a key chemical in depression. A result of decreased serotonin can begin a cyclical process where a person drinks to relieve depression leading to further feelings of depression requiring more alcohol to medicate the depression. Therefore, people with mental health problems may use drinking alcohol to cope with mental health issues which may make existing mental health problems worse. In an indirect manner, the density of alcohol outlets and alcohol accessibility may lead to even poorer mental health among individuals who may have existing mental health issues (Mental Health Foundation 2006).
Social Work Implications To improve mental wellbeing, there is a need to improve the social and physical environments in which people live and work. Actions taken at the community level have the potential to improve population mental health. Social work in the mental health field had long been embedded in a medical perspective where intervention and service provision had been located primarily in clinical settings within the microand meso-systems. The bio-psycho-social-spiritual framework (BPSS) has been most useful in contexts that primarily include direct interactions between the individual and the family and other more immediate social systems such as schools or the workplace. However, in the light of emerging evidence from a body of research in mental health and the community, factors such as green spaces, civic engagement and the accessibility of alcohol in the built environment, social workers need to consider expanding their role beyond clinical practice to participation in civic activities to increase their influence in preventive and ameliorative work. According to the WHO (2014a), more than 50% of the world’s population resides in urban areas, reducing access to natural environment. Since exposure to greenness is associated with better mental well-being, expansion and inclusion of urban green spaces in cities may also result in improvement in mental well-being of the population. Enhancing access to green space is a promising low-cost intervention for the reduction of depression, and disadvantaged populations may derive the strongest health benefits. Social work’s participation in advocating for investment in green space such as in care facilities may also lead to improvement in the mental wellbeing of residents. An example is the use of green care farm as a psychosocial approach to care (de Bruin et al. 2015). Green care farm offers residents access to natural environments including gardens and farm yards to encourage activity. Another example could be for social workers to participate actively in urban planning by advocating for better and more appropriate use of green spaces to help improve the mental health of residents in the community. The BBC recently reported that cities around the world are adopting a long-standing feature of Chinese public
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parks to boost exercise among pensioners and to keep them as physically and mentally healthy for as long as possible (Traverso 2019). Crowds of elderly Chinese participate in early morning exercises such as qigong, dancing, and even light gymnastics and cardio workouts. Given the ageing population across the globe, other cities in such as London, Berlin, and Toronto have also introduced playgrounds for seniors. The BBC report above also included two important observations. First, the morning exercise habit of Chinese people has a long-standing cultural tradition dating back to the Huangdi Neijing (The Yellow Emperor’s Inner Canon) in the third century where waking up early and exercising is a pillar of Chinese traditional medicine. Second, it was reported that culture was not the only factor in influencing park use among seniors. Location, design, and amenities are also important. Older adults sometimes do not feel welcomed in public parks because they are designed for younger users. Public parks may then not be psychologically accessible to them. Social work in mental health therefore has an important role to play in advocating for the availability of green spaces as well as the provision of appropriate amenities and programs for different age groups as a preventive and ameliorative strategy. Where there is no cultural tradition of exercise, social workers could be more proactive in encouraging exercise routines in available green spaces for their service users and perhaps can even conduct counseling sessions in open spaces instead of confining help to clinical settings for some service users. Social connectedness is also an important factor in developing and maintaining better mental health. Social work can include encouragement for service users to attend programs that enhance informal social relationships. Connecting with friends and relatives, chatting with neighbors, connecting with friends and family over current affairs, keeping in touch with friends, and staying in touch with extended family members leading to improvement in mental health could become part of the clinical work social workers conduct with individuals and families. Helping to facilitate and support volunteerism such as in recovery programs could provide better opportunities for service users to gain a higher level of confidence and selfesteem than just talk therapy alone. Advocating for limited alcohol availability in neighborhoods has the potential to reduce the level of harmful use of alcohol, which in turn may reduce exposure to negative mental health outcomes arising such as alcohol-related intimate partner violence, child maltreatment, drunk driving, public nuisance and fights, and violent crimes. In some countries such as Singapore, there are on-going attempts to test out different ways in which drinking-related laws and regulations could be put in place to regulate the consumption of alcohol and reduce the harmful effects of unregulated alcohol consumption in public places (https://singaporelegaladvice.com/law-arti cles/legal-drinking-age-singapore-drinking-related-laws/). The current legal drinking age in Singapore is 18 years old and it is illegal to sell alcoholic beverages to any person below the age of 18 years in licensed premises such as restaurants and supermarkets. In addition, Singapore law prohibits consumption of alcohol in public places such as parks and the sale of alcohol from retail outlets between 10.30 pm and 7.00 am. The Straits Times Forum page reported an 18-year-old Wee Yan Loong’s observation that alcohol makes young people vulnerable to being victims of crimes
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and also being criminals themselves. In addition, alcohol abuse can result in longterm repercussions such as in brain structure development which results in impulsiveness and a lack of coordination as well as become susceptible to other type of addictions. As such, he proposed that the authorities should consider raising the legal drinking age to 21 years (Wee 2019). It may be worth thinking about whether social work in mental health should be equally, if not even more, concerned than Wee (2019) on the preventive aspects of the effects of alcohol on mental well-being especially among young drinkers and therefore the need to be more participative in reviews and advocacy regarding public accessibility to alcohol purchase and consumption. Social workers can also play a role in advocating for limited off-premise alcohol outlets in residential neighborhoods.
Conclusion Overall, linking mental health and the community presents new challenges for social work. Social workers themselves need to be cognizant of factors in the service users’ environment and their effects on mental well-being. There is a need to be creative in maximizing the positive effects of certain environmental factors such as green spaces and opportunities in the community to help the service users be more socially connected. Social workers themselves need to be more participative and engaged in working with community partners such as urban planners, community leaders, concerned-members of the public in creating a community that supports maximum mental health. Social service agencies need to be more accepting that professional work in the mental health setting can transcend the medical clinical practice model and expands to an inclusion of both formal and informal work settings. One emerging model is the Connecting People Study and the subsequent Intervention Model (mgoat73 2012) where the core of practice is the principles of co-production. Co-production involves the worker and the individual co-creating and taking responsibility for the decisions made about objectives and actions to be taken in the work to be achieved in health and social care. Unlike the traditional approach of helping one-on-one, the intervention also involves developing new connections and social networks outside the worker/service user dyad as part of the strategy to achieve the co-created objectives within a supportive agency. Mental health and the community presents new challenges but also opportunities for social work to be more engaged with the exo- and macrosystems of their service users as well as expand the worker’s personal and professional expertise.
Cross-References ▶ Alcohol and Drug Use ▶ An Overview of Social Work Approaches in Working with Families of People with Serious Mental Illness ▶ Community and Mental Health ▶ Developmental Approach to Mental Health
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▶ Financial Challenges and Mental Health ▶ Legal Provisions, Advocacy, and Empowerment ▶ Qigong Practice ▶ Suicide Prevention
References Alcock I, White MP, Wheeler BW, Fleming LE, Depledge MH (2014) Longitudinal effects on mental health of moving to greener and less green urban areas. Environ Sci Technol 48:1247–1255. https://doi.org/10.1021/es403688w Banay R, Bezold C, James P, Hart J, Lade F (2017) Residential greenness: current perspectives on its impact on maternal health and pregnancy outcomes. Int J Women's Health 9:133–144. https:// doi.org/10.2147/IJWH.S125358 Berry HL, Welsh JA (2010) Social capital and health in Australia: an overview from the household, income, and labour dynamics in Australia survey. Soc Sci Med 70:588–596 Bezold CP, Banay RF, Coull BA, Hart JE, James P, Kubzansky LD, . . . Laden FL (2018) The association between natural environments and depressive symptoms in adolescents living in the United States. J Adolesc Health 62:488–495. https://doi.org/10.1016/j.jadohealth.2017.10.008 Bridges S (2014) Mental health problems. In: Health Survey for England (chapter 2). Retrieved from http://healthsurvey.hscic.gov.uk/media/37739/HSE2014-Ch2-Mental-health-problems.pdf Bronfenbrenner U (1974) Developmental research, public policy, and the ecology of childhood. Child Dev 45:1–5 Bronfenbrenner U (1977) Toward an experimental ecology of human development. Am Psychol 32:515–531 Bronfenbrenner U (1979) The ecology of human development: experiments by nature and design. Harvard University Press, Cambridge, MA Bronfenbrenner U (1994) Ecological models of human development. In: Husen T, Postlethwaite TN (eds) The international encyclopedia of education, vol 3, 2nd edn. Pergamon, Oxford Browning MHEM, Lee K, Wolf KL (2019) Tree cover shows an inverse relationship with depressive symptoms in elderly residents living in U.S. nursing homes. Urban For Urban Green 41:23–32. https://doi.org/10.1016/jufug.2019.03.002 Campbell C, Hahn RA, Elder R, Brewer R, Chattopadhyay S, Fielding J, . . . Middleton JC (2009) The effectiveness of limiting alcohol outlet density as a means of reducing excessive alcohol consumption and alcohol-related harms. Am J Prev Med 37:556–569 Cohen LE, Felson M (1979) Social change and crime rate trends: a routine activity approach. Am Sociol Rev 44:588–608. https://doi.org/10.2307/2094589 Cohen S, Kamarck T, Mermelstein R (1983) A global measure of perceived stress. J Health Soc Behav 24:385–396 Creaven AM, Healy A, Howard S (2018) Social connectedness and depression: is there added value in volunteering? J Soc Pers Relat 35:1400–1417. https://doi.org/10.1177/0265407517716786 Cunradi CB, Mair C, Ponicki W, Rember L (2011) Alcohol outlets, neighborhood characteristics, and intimate partner violence: ecological analysis of a California city. J Urban Health 88:191–200. https://doi.org/10.1007/s11524-011-9549-6 de Bruin SR, Stoop A, Molema CC, Vaandager L, Hop PJWM, Baan CA (2015) Green care farms: an innovative type of adult day service to stimulate social participation of people with dementia. Gerontol Geriatr Med:1–10. https://doi.org/10.1177/2333721415607833 Ding N, Berry HL, O’Brien LV (2015) One-year reciprocal relationship between community participation and mental wellbeing in Australia: a panel analysis. Soc Sci Med 128:246–254. https://doi.org/10.1016/j.socscimed.2015.01.022
12
Community, Mental Health, and Social Work
255
Donovan GH, Butry DT, Michael YL, Prestemon JP, Liebhold AM, Gatziolis D, Mao MY (2013) The relationship between trees and human health: evidence from the spread of the Emerald Ash Borer. Am J Prev Med 44:139–145. https://doi.org/10.1016/j.amepre.2012.09.066 Felson M, Eckert M (2016) Crime and everyday life. Sage Publications, Thousand Oaks Freisthler B, Gruenewald P (2013) Where the individual meets the ecological: a study of parent drinking patterns, alcohol outlets, and child physical abuse. Alcohol Clin Exp Res 37:993–1000. https://doi.org/10.1111/acer.12059 Freisthler B, Maguire-Jack K (2015) Understanding the interplay between neighborhood structural factors, social processes, and alcohol outlets on child physical abuse. Child Maltreat 20:268–277. https://doi.org/10.1177/1077559515598000 Freisthler B, Midanik LT, Gruenewalk PJ (2004) Alcohol outlets and child physical abuse and neglect: applying routine activities theory to the study of child maltreatment. J Stud Alcohol 65:586–592 Freisthler B, Johnson-Motoyama M, Kepple NJ (2014) Inadequate child supervision: the role of alcohol outlet density parent drinking behaviors, and social support. Child Youth Serv Rev 43:75–84. https://doi.org/10.1016/j.childyouth.2014.05.002 Germain CB (1978) General-systems theory and ego psychology: an ecological perspective. Soc Serv Rev 52:535–550 Gruenewald PJ (2007) The spatial ecology of alcohol problems: niche theory and assortative drinking. Addiction 102:870–878. https://doi.org/10.1111/j.1360-0443.2007.01856.x Gruenewald PJ, Freisthler B, Remer L, Lascala EA, Treno A (2006) Ecological models of alcohol outlets and violent assaults: crime potentials and geospatial analysis. Addiction 101:666–677. https://doi.org/10.1111/j.1360-0443.2006.01405.x Iritani BJ, Waller MW, Halpern CT, Moracco KE, Christ SL, Flewelling RL (2013) Alcohol outlet density and young women’s perpetration of violence toward male intimate partners. J Fam Violence 28:459–470. https://doi.org/10.1007/s10896-013-9516-y Lamb KE, Thornton LE, Teychenne M, Milte C, Cerin E, Ball K (2017) Associations between access to alcohol outlets and alcohol intake and depressive symptoms in women from socioeconomically disadvantaged neighborhoods in Australia. BMC Public Health 17(1):83. https:// doi.org/10.1186/s12889-017-4022-4 Li Y, Ferraro KF (2005) Volunteering and depression in later life: social benefit or selection processes? J Health Soc Behav 46:68–84 Lum TY, Lightfoot E (2005) The effects of volunteering on the physical and mental health of older people. Res Aging 27:31–55. https://doi.org/10.1177/0164027504271349 Mental Health Foundation (2006) Cheers report. https://www.mentalhealth.org.uk/publications/ cheers-understanding-relationship-between-alcohol-and-mental-health. Retrieved 6 Jan 2020 mgoat73 (2012, Apr 10) Introducing the connecting people intervention. https:// connectingpeoplestudy.net/2012/04/10/introducing-the-connecting-people-intervention/ Morrow-Howell N, Hinterlong J, Rozario PA, Tang F (2003) Effects of volunteering on the wellbeing of older adults. J Gerontol Soc Sci 58B:S137–S145 Mukherjee D, Safray S, Tayyab M, Shivashankar R, Patel SA, Narayanan G, Ajya VS, . . . Prabhakaran D (2017) Park availability and major depression in individuals with chronic conditions: is there an association in urban India? Health Place 47:54–62. https://doi.org/ 10.1016/j.healthplace.2017.07.004 Olesen SC, Berry HL (2011) Community participation and mental health during retirement in community sample of Australians. Aging Ment Health 15:186–197. https://doi.org/10.1080/ 13607863.2010.501053 Pereira GW, Wood L, Foster S, Haggar F (2013) Access to alcohol outlets, alcohol consumption and mental health. PLoS One 8:e53461. https://doi.org/10.1371/journal.pone.0053461 Pun VC, Manjourides J, Suh HH (2018) Association of neighborhood greenness with self-perceived stress, depression and anxiety symptoms in older U.S adults. Environ Health 17(1):39. https:// doi.org/10.1186/s12940-018-0381-2 Reklaitiene R, Grazuleviciene R, Dedele A, Virviciute D, Vensloviene J, Tamosinunas A, . . . Nieuwenhuijsen MJ (2014) The relationship of green space, depressive symptoms and
256
C. Lim and R. Ow
perceived general health in urban population. Scand J Public Health 42:669–676. https://doi.org/ 10.1177/1403494814544494 Resko SM, Walton MA, Bingham CR, Shope JT, Zimmerman M, Chermack ST (2010) Alcohol availability and violence among inner-city adolescents: a multi-level analysis of the role of alcohol outlet density. Am J Community Psychol 46:253–262. https://doi.org/10.1007/s10464010-9353-6 Schofield TJ, Donnellan B, Merrick MT, Ports KA, Klevens J, Leeb R (2018) Intergenerational continuity in adverse childhood experiences and rural community environments. Am J Public Health 108:1148–1152. https://doi.org/10.2015/AJPH.2018.304598 Steel Z, Marnane C, Iranpour C, Chey T, Jackson JW, Patel V, Silove D (2014) The global prevalence of common mental disorders: a systematic review and meta-analysis 1980–2013. Int J Epidemiol 43:476–493. https://doi.org/10.1093/ije/dyu038 Subramaniam M, Abdin E, Vaingankar JA, Shafie S, Chua BY, Sambasivam R, . . . Chong SA (2019) Tracking the mental health of a nation: prevalence and correlates of mental disorders in the second Singapore Mental Health Study. Epidemiol Psychiatr Sci 29:e29. https://doi.org/ 10.1017/S2045796019000179 Tabassum F, Mohan J, Smith P (2016) Association of volunteering with mental well-being: a life course analysis of a national population-based longitudinal study in the UK. BMJ Open 6: e011327. https://doi.org/10.1136/bmjopen-2016-011327 The WHO World Mental Health Survey Consortium (2004) Prevalence, severity, and unmet need for treatment of mental disorders in the World Health Organization World Mental Health Surveys. JAMA 291:2581–2590 Thompson CW, Roe J, Aspinall P, Mitchell R, Clow A, Miller D (2012) More green space is linked to less stress in deprived communities: evidence from salivary cortisol patterns. Landsc Urban Plan 105:221–229. https://doi.org/10.1016/j.landurbplan.2011.12.015 Toomey TL, Erickson DJ, Carlin BP, Lenk KM, Quick HS, Jones AM, Harwood EM (2012) The association between density of alcohol establishments and violent crime within urban neighborhoods. Alcohol Clin Exp Res 36:1468–1473. https://doi.org/10.1111/j.1530-0277.2012.01753.x Trangenstein PJ, Curriero FC, Webster D, Jennings JM, Latkin C, Eck R, Jernigan DH (2018) Outlet type, access to alcohol, and violent crime. Alcohol Clin Exp Res 42:2234–2245. https:// doi.org/10.1111/acer.13880 Traverso V (2019) Cities around the world are adopting a long-standing feature of Chinese public parks to boost exercise among pensioners. Retrieved from https://www.bbc.com/worklife/arti cle/20191028-the-cities-designing-playgrounds-for-the-elderly Van Aart CJC, Michels N, Sioen I, De Decker A, Bijnens EM, Janssen BG, . . . Nawrot TS (2018) Residential landscape as a predictor of psychosocial stress in the life course from childhood to adolescence. Environ Int 120:456–463. https://doi.org/10.1016/j.envint.2018.08.028 Waller MW, Iritani BJ, Christ SL, Halpern CT, Moracco KE, Flewelling RL (2013) Perpetration of intimate partner violence by young adult males: the association with alcohol outlet density and drinking behavior. Health Place 21:10–19. https://doi.org/10.1016/j.healthplace.2013.01.002 Wee YL (2019, Mar 4) Raise drinking age to 21. The Straits Times. Retrieved from https://www. straitstimes.com/forum/letters-in-print/raise-drinking-age-to-21 White MP, Alcock I, Wheeler BW, Depledge MH (2013) Would you be happier living in a greener urban area? A fixed-effects analysis of panel data. Psychol Sci 24:920–928. https://doi.org/ 10.1177/0956797612464659 World Health Organization (2013) Comprehensive mental health action plan 2013–2020. Retrieved from https://www.who.int/mental_health/action_plan_2013/en/ World Health Organization (2014a) Mental health: a state of well-being. Retrieved from https:// www.who.int/features/factfiles/mental_health/en/# World Health Organization (2014b) Global status report on violence prevention 2014. Retrieved from https://apps.who.int/iris/bitstream/handle/10665/145087/WHO_NMH_NVI_14.2_eng. pdf?sequence=3
12
Community, Mental Health, and Social Work
257
World Health Organization (2018a) Mental health: strengthening our response. Retrieved from https://www.who.int/news-room/fact-sheets/detail/mental-health-strengthening-our-response World Health Organization (2018b) The WHO special initiative for mental health (2019–2023): Universal Health Coverage for mental health. Retrieved from https://apps.who.int/iris/bitstream/ handle/10665/310981/WHO-MSD-19.1-eng.pdf?ua¼1 Wray-Lake L, Shubert J, Lin L, Starr LR (2019) Examining the associations between civic engagement and depressive symptoms from adolescence to young adulthood in a national U.S. sample. Appl Dev Sci 23:119–131. https://doi.org/10.1080/10888691.2017.1326825 Yeung JWK, Zhang Z, Kim TY (2018) Volunteering and health benefits in general adults: cumulative effects and forms. BMC Public Health 18:1–8. https://doi.org/10.1186/s12889017-4516-8 Zhang X, Hatcher B, Clarkson L, Holt J, Bagchi S, Kanny D, Brewer RD (2015) Changes in density of on-premises alcohol outlets and impact on violent crime, Atlanta, Georgia, 1997–2007. Prev Chronic Dis 12:1–10. https://doi.org/10.5888/pcd12.140317
Māori Social Work and Māori Mental Health in Aotearoa New Zealand
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Hannah Mooney, Andrea (Ange) Watson, Paulé Ruwhiu, and Awhina Hollis-English
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Māori (the Indigenous People of Aotearoa New Zealand) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Māori Belief Systems . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Impact of Colonization . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Health Services for Māori . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Māori Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Symptoms of Mental Ill Health: A Māori Worldview . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Te Whare Tapa Whā and the Meihana Model . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Case Study Demonstration of the Meihana Model . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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This chapter is written by four Māori women who are social workers, academics, supervisors, mothers, and members of their own tribal groups. The authors write from their unique perspectives that are inevitably shaped by their histories, tribal affiliations, and social work practice. H. Mooney (*) Ngāti Raukawa ki te tonga, Te Āti Awa, Ngā Rauru, Te Ātihaunui a Pāpārangi, Massey University School of Social Work, Palmerston North, New Zealand e-mail: [email protected] A. A. Watson Te Āti Awa, Ngāti Mutunga, Taranaki, Massey University School of Social Work, Palmerston North, New Zealand e-mail: [email protected] P. Ruwhiu Ngā Puhi, Ngāti Porou, Massey University School of Social Work, Albany, New Zealand e-mail: [email protected] A. Hollis-English Awhina Hollis-English, Napier, New Zealand e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_9
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Abstract
Indigenous experiences of mental health are inevitably affected by the historical trauma experienced by colonization. Instead of looking solely to the dominant western ideas to address these issues, Māori social workers are using ancestral, cultural, spiritual, and contemporary indigenous practices to meet the health and well-being needs of Māori. This chapter presents Tā (Sir) Mason Durie’s (2001) Māori model of practice Te Whare Tapa Whā, an extension into Pitama’s et al. (2007) Meihana model, and then applies the Meihana model to a case study. There is no “one solution” or quick fix in this case study, and the authors acknowledge the variables involved when working in the area of mental health and the importance of critical reflection in practice. Keywords
Māori · Mental health · Social work · Indigenous · Meihana model
Introduction Pre-colonial Māori had belief systems in place to help understand and manage wellbeing. Kingi states: “Prior to colonization Māori did in fact have well-developed mechanisms for health protection and health promotion, and a comparatively advanced knowledge and understanding of how diseases were transmitted” (2005, p. 8). However, Māori mechanisms of well-being were significantly affected by the introduced belief systems of the British and by other outcomes of colonization eroding the Māori social and cultural infrastructure of whānau (extended family), hapū (subtribe or collection of family groups), and iwi (tribe). In Aotearoa New Zealand, much like other countries impacted by colonization, Indigenous health and well-being is measured comparatively with non-Indigenous standards of health, and the predominant medical approach is to separate mental health from physical and other elements of Māori well-being. Currently the status of Māori mental health is influenced by the trauma of colonization; however there is a reclamation of “culturefirst” or “culture-alongside” Western frameworks (Durie 2011; Pitama et al. 2007; Hirini and Collings 2005). This chapter presents aspects of this history with an emphasis on Māori belief systems and ways of viewing mental health. Readers are then introduced to Māori social work practice methods, how they work, and the values they bring to practice. These practice frameworks reflect Māori worldviews, embracing the traditional as contemporary and culturally appropriate. Māori experiences of mental health services and the advent of Kaupapa Māori mental health services are presented. The chapter explores Māori symptoms of mental ill health and areas where there could be misinterpretation and misunderstanding. The chapter then presents Te Whare Tapa Whā, a well-known Māori model of practice with an additional discussion on how extending into the Meihana model provides a critical, ecological perspective. A case
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study provides an example of how this theory can apply to practice for social workers and other helping professionals. For the purpose of this chapter, Māori words are translated into English, and when they are used, their meaning will be explained. Like many languages, Māori words cannot simply be translated into English as it does not capture the true context and the meaning can be “lost in translation.” The translations provided reflect a simple understanding.
Māori (the Indigenous People of Aotearoa New Zealand) In Aotearoa New Zealand, the indigenous people are known as Māori or tangata whenua (people of the land). Māori were (and still are) a collectivist culture, rich in oral tradition. Traditional social structures comprised of groups of families that lived together and relied on each other, known as whānau (extended family). Each whānau existed within a hapori (community) or hapū (subtribe or collection of family groups) and would belong and live within a geographic area that was important to their iwi (wider tribal group) (Walker 1990). There were, and still are, hundreds of tribal groups living within their tribal areas; however today many have moved away from their traditional communal setting (Durie 2011). Being connected to ones’ whānau, hapū, and iwi as well as to the geographical area of their ancestors is still extremely important to Māori, even to those who live in other parts of the world. Māori are now a minority within their own country (albeit the largest minority) at 14.9% of the total population (Statistics New Zealand 2013).
Māori Belief Systems The intention here is not to give a complete overview of Māori belief systems, but to provide a snapshot into a Māori worldview that shapes ideas of health and wellbeing. A traditional way of life for Māori featured strong support and belief systems, a whānau, hapū, and iwi structure embedded in Māori customs and knowledge (as mentioned above). Wairuatanga (Māori spirituality) guides the daily Māori way of life through an important familial connection to ngā Ātua (the Gods). This is nurtured from the belief that one’s whakapapa (genealogy) connects people intergenerationally to the gods and inherently to the land and environment: “throughout all procedural forms of interactions between humanity there is an intercession and dialogue between the living and the dead, the physical natural and spiritual dimensions” (Ruwhiu and Ruwhiu 2005, p. 10). A strong clue to this is found in the words “tangata whenua,” Māori are people of the land and identify strongly to significant landmarks to connect to and understand the past, present, and future. An example of this is the saying “Ko au te awa, ko te awa ko au,” I am the river and the river is me. These landmarks are Ātua; Ranginui is the Sky Father; and the land is Papatūānuku, our Earth Mother. Connected to Ātua are all living and nonliving
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things that have Mauri (life force); as such they are attributed qualities that are respected, cared for, and revered. Social balance is maintained through tikanga and kawa (customs and values) passed down through the generations that detail how one should best behave and interact and which places, people, and objects are tapu (had certain restrictions) or noa (unrestricted). Examples of these beliefs and practices are in more overtly spiritual events such as birth and death, but they also play a role in day-to-day tasks, collecting/hunting for food, travelling, and in rules of engagement (Harmsworth and Awatere 2013). Certain individuals were noted to have significant spiritual influence, connection, and standing. Tohunga (spiritual leaders) were conduits to the spirit world, guides, and healers. Others had substantial mana (prestige, integrity) either inherited or earned; these were often those in leadership positions and their firstborn children (Mead 2003).
The Impact of Colonization Aotearoa New Zealand was colonized by the British, and in 1840 Te Tiriti o Waitangi, The Treaty of Waitangi, was signed between a number of iwi and the Crown guaranteeing Māori continued rights. There were multiple versions of the Treaty, and what followed was either a complete disregard for the Treaty, as each side continued with the view that their own versions were the correct ones (English and Māori versions) or resistance by those who did not sign. Māori continued to maintain traditions while integrating introduced beliefs such as Christianity. Colonization has caused immeasurable intergenerational, spiritual, and psychological harm for many Māori. Over 170 years Māori traditions were negatively impacted, language almost lost, large tracts of land confiscated (by force or through law), and death and incarceration have been (and still are) major issues. An example of this was the Tohunga Suppression Act of 1907, which made being a practicing Tohunga illegal. An urban shift in the 1950s saw many Māori move from their rural communities into the cities, particularly in search of better employment opportunities. Around this time, Māori were expected to assimilate through informal and formal policies that became insidious nationally and in people’s homes significantly affecting the intergenerational transmission of knowledge and Māori identity. Urbanization led to significant lifestyle changes and a reduction of traditional whānau support systems. This is significant as a relationship between cultural strength and good mental health is a protective factor (Kingi 2005). Māori rates of mental ill health (as defined by western ideas of diagnosis) have increased since 1970, and Māori mental health status is a major concern. The more Māori have assimilated into “mainstream” culture, the harder it has been to utilize Te Reo Māori (Māori language) and to maintain Māori values and a connection to whānau, hapū, and iwi (traditional social structures) (Kingi 2005).
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Through loss of access to spiritual guidance and other implications of urbanization and assimilatory social policies, many Māori found themselves disconnected from their whānau, hapū, iwi, and the associated stability, “colonization has interrupted and disrupted the intergenerational transmission of tikanga (protocols), reo (language) and Mātauranga Māori (Māori knowledge)” (Pihama et al. 2014, p. 249). In recent years Maori have emphasized the importance of culture as a protective factor, which is now reflected in mental health services.
Health Services for Māori Historically, consistent with the international community, the mental health system in New Zealand had an institutionalized approach with prisons, asylums, and mental institutions providing long-term housing and “treatment” for the mentally ill and disabled. From the 1980s a deinstitutionalization process began that led to the growth of community mental health services. For some Māori, if they or a family member have mental health concerns, they will seek support through their own whānau, hapū, and iwi before accessing professional services. Currently mental health services offer a greater range of community- and government-provided services that are available to Māori. Mild to moderate mental health support is mainly accessed through general practitioners (GPs), primary health organizations (PHOs), and/or nongovernment organizations (NGOs), and Māori also have access to iwi (tribal) services or urban Māori services. Another newer initiative in policy (although not new in Māori communities) is Whānau Ora where a whānau-centered approach is promoted; this can be found in many social, community, and health services (Boulton et al. 2013). When Māori are experiencing more severe symptoms, hospital-based services can be accessed such as crisis services, inpatient services, and community mental health and addiction services. In some areas there is a separate Kaupapa Māori service, and Māori should have a choice to access this service or a mainstream service. Non-Māori are also able to access these services. According to Te Rau Matatini (now Te Rau Ora), the National Centre for Māori Health, Māori Workforce Development and Excellence (2016), the aims of Kaupapa Māori mental health and addiction services include: 1. 2. 3. 4. 5. 6. 7.
Connections with Māori whānau, hapū, iwi, and community organizations; Support by mana whenua [local hapū and iwi] and/or the local Māori community; Utilization of Māori derived beliefs, values, and practices; Staff who are predominantly of Māori descent; Aims that are consistent with wider aims and aspirations of Māori development; Facilitation of access to, and support of, kaumātua [elders]; An emphasis on whakawhanaungatanga [relationship building].
Access to these Māori-led and culturally appropriate services provides the best outcomes for whānau (Waitoki et al. 2014).
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In recent years, there has also been a focus on Māori workforce development in mental health, including Māori social workers. The aim is to grow the Māori workforce to provide better and more appropriate services to Māori. Te Rau Puāwai is an innovative and successful bursary program for Māori students, administered by Massey University and funded by the government. Over the last 20 years, they have produced 400 graduates and have a 95% success rate (Te Rau Puawai 2018). Te Rau Ora (formerly known as Te Rau Matatini) also offers opportunities for Māori to consider and work towards a career in mental health (Te Rau Ora 2019). While services are now more culturally appropriate, there are still many gaps and areas to develop and improve. A 2000 survey of 247 New Zealand psychiatrists highlighted views that Māori were particularly biologically or genetically predisposed to mental illness and several psychiatrists expressed racist views (Johnstone and Read 2000). Taitimu, Read and McIntosh’s (2018) research highlighted that Māori are likely to benefit from both clinical and cultural interventions. However in reality found Māori “spiritual and cultural constructions to be marginalised and/or pathologised within mainstream settings resulting in a survival coping strategy of silence” (2018, p. 170).
Māori Social Work Māori social workers are social workers who identify and whakapapa Māori (have Māori genealogy). For many Māori social workers, their culture is integrated into their practice. Māori social work has embraced the importance of culture in practice, leading other helping professions (Hollis-English 2015). For the majority of these social workers, their Māori identity and beliefs are congruent and integrated across the personal and professional; so, what is practiced in the workplace is consistent with what is practiced in the home and community (Hollis-English 2015). Māori social workers have embraced the reclamation of Māori ways of doing things that gathered strength in the 1980s. Māori frameworks and models of practice guide Māori social workers in the different phases of interaction and engagement with whānau. An example is mana-enhancing practice (Ruwhiu 2001), which ensures social work practitioners consider key recognition points in their practice such as the importance of historical events in Aotearoa New Zealand, the acknowledgement and promotion of one’s identity, and working with Māori using Māori concepts of well-being. Attention to the engagement phase is vitally important when engaging Māori. This is because Māori put a strong value on face-to-face contact, connection, and relationship building. Without this, rapport can be adversely affected, and the engagement can be lost, poor, or meaningless (Mooney 2012). Attention to relationship building means taking the time to engage meaningfully with the person; this includes exploration of whakapapa (genealogy). The understanding and links that can be gained from this process are very effective and create connection beyond that of “social work professional and client” to kinship (and you may in fact be working
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with your own whānau) (Ruwhiu and Ruwhiu 2005). Having this cultural lens can also ensure that misunderstanding leading to labeling and misdiagnosis is less likely to occur.
Symptoms of Mental Ill Health: A Māori Worldview Māori social workers and their allies work to challenge monocultural approaches that do not take spiritual and cultural constructions into consideration. A Māori cultural approach and recognition can be healing and respectful. This cultural approach alongside Western frameworks helps to avoid misdiagnosis. A number of “diagnostic” areas from a Māori perspective will now be discussed. Mauri mahi, Mauri ora, Mauri noho, Mauri mate Industry begets prosperity – Idleness begets poverty
The whakataukī (proverb) above talks about the Māori concept Mauri. Mauri, loosely translated, means “life force,” and here it states that someone with a productive life will be well, while someone who is inactive will be unwell. An understanding of a Māori worldview can help practitioners accurately interpret depressive symptoms and avoid misdiagnoses when working with Māori. What might be labeled as “depression” or seen as symptoms of “depression” from a Western perspective may manifest differently for Māori, and therefore symptoms can be interpreted incorrectly. Similarly, Pōhatu (2011) refers to Mauri moe, “actions and expressions of inactivity,” in this phase. This is not seen as unhealthy; it is described as a safe space that has untapped and proactive potential. The following terms are different states of Mauri moe: Kai te noho puku – being anxious and withdrawn Kai te pouri – being withdrawn and not taking part Kai te tangi – expression of hurt Kai te aue – expression of anguish and pain Kai te mamae – experiencing hurt/pain Kai te noho noaiho – not participating in activities Kai te noikore – having no energy to participate in activities (Pōhatu 2011, p. 5)
While these “symptoms” present challenges to a person’s ability to progress, there is a recognition of the reflective qualities of this state and a chance for “energies to be regathered and recomposed” (Pōhatu 2011, p. 5). While people can experience this state, it is part of a dynamic process that can change over time and has positive aspects. Another example of what depression might look like is the concept of whakamā. While this concept (like most Māori concepts) is too large to cover in this chapter, we can provide some basic understanding. Whakamā is often translated as to be ashamed or embarrassed, and there are different levels of this where Māori can feel
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shy, modest, or nervous, but at a deeper level, there are feelings of inadequacy, shame, and inferiority (Sachdev 1990). These can be experienced when outside of one’s comfort zone and when in the presence of others depending on the nature of the relationship, for example, if in the presence of a person who has power or if you are being reprimanded. Māori can also experience whakamā when someone commits a wrongdoing against them (whether intentional or not) (Sachdev 1990). Durie states that it can be in response to “a sense of disadvantage or a loss of standing” (2001, p. 25). Māori who are whakamā may present as unmotivated, non-compliant, and anxious, and they may avoid eye contact and/or be in a catatonic state. Metge (1995) describes some of the symptomology of whakamā to help understand the presentation: Someone who is whakamaa looks like a wooden post. They stand there petrified. He is frozen. It is almost as if they have lost all power of movement except the eyes moving to and fro. He just sits there. Whakamaa is loss of speech, loss of action. He stands there not seeing, not hearing, not answering. The child has switched off. He is looking downwards. He has shut off his ears, and he has got himself a bit braced too. The shutters come down. She was just struck dumb. Whakamaa is not speaking; being dumb, speechless. When they stand up, all they have thought out to say, they lost it. They become tongue-tied and dumbfounded. He is at a loss for words. They are only there in body. (Metge 1995, pp. 45–46)
Other Māori terms are used to describe someone with depressive symptoms. Mate pāpōuri is a term used to describe being in a state of sadness for an extended time. Pouritanga is another term often used to describe feelings of depression. Māori can also present with “psychotic” symptoms such as hallucinations or visions, hearing voices (speaking to ancestors), or with “special powers” of foresight. In Te Ao Māori, these are not always an illness, but a gift (Webster and Bosmann-Watene 2003). In traditional times these were more easily recognized, understood, and nurtured, as the person was viewed as being able to connect to the spiritual world or have the ability to converse with ancestors. When treated through prescription medication or drug/alcohol use, they may interfere with the natural process of being connected to the spiritual world. The Mental Health Foundation produced a report on Māori perspectives of depression and highlighted the term “whakamōmori.” This can be translated as a “deep-seated underlying sadness” or “in-built tribal suffering” (Mental Health Foundation n.d., p. 3). While it is often used as an equivalent to suicide, it refers more broadly to “a loss of alternatives that can be so overwhelming to the individual as to lead eventually to their death” (Coupe 2005, p. 10). In a NZ Psychological Society
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Conference speech, Hon. Tariana Turia (2000) highlighted the impact of tribal suffering and compared colonization and oppression with that of a home invasion, “a consequence of colonial oppression has been the internalisation by Māori of the images the oppressor has of them. . .a despair leading to self-hatred, and for many, suicide.” Turia argued that, for Māori, depression often manifests in the form of anger rather than sadness, which can easily be misunderstood by non-Māori health professionals. Ill-health can be caused by unresolved issues that originate due to an imbalance between the spiritual and physical realm (Bush and NiaNia 2012). Mate Māori can be defined as “unresolved traditional Māori ‘dis-ease’ that may result in physical, psychological, relationship and spiritual suffering or even death” (Bush and NiaNia 2012, p. 349). Pōrangi (dark night) is a form of Mate Māori and is described as a state of disconnection and darkness, an outcome of being disconnected to culture and values (Taitimu et al. 2018). In Māori mental health assessments, this should always be explored as an alternative cause for depressive and/or psychotic symptoms. When screening for Mate Māori issues, there needs to be an element of understanding of what Mate Māori is and what it might look like; historically this was the role of the Tohunga. Today, helping professionals, even if they are Māori, have variable understandings of Te Ao Māori (Māori worldview). It is helpful to have a kaumātua or cultural advisor involved at this stage or after Mate Māori issues are discovered (or suspected). Māori may find it frustrating trying to interact and communicate their perspective because it can be difficult to explain the state they are in, particularly in a predominately clinical environment where these symptoms are interpreted from a non-Māori lens. There are major concerns when the responsibility for understanding cultural difference and interpreting/translating their feelings to a different cultural group falls on the most vulnerable person in the relationship. The following Māori model of practice, and the case study that follows, provides an example of how a Māori social worker may practice in a way that integrates a Māori worldview with contemporary western approaches.
Te Whare Tapa Whā and the Meihana Model Māori social workers (and other helping professionals) can use Māori models of practice to better enhance their work with Māori families. Durie’s (2001) Te Whare Tapa Whā, a Māori model of practice, is presented with the additional concepts introduced in Pitama’s Meihana model (Pitama et al. 2007). Te Whare Tapa Whā is a metaphor of a four-sided whare (house). Each side of the house is represented by essential aspects of a person’s well-being: taha taha hinengaro (emotions, thoughts, feelings side), whānau (familial side), taha wairua (spiritual side), and taha tinana (physical side). Each wall of the house needs to be in balance for the house to maintain its foundations and remain upright (Durie 2001, p. 69). The examples provided for each “wall of the house” are not exhaustive; they are also not exclusive;
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while they are presented separately for practical purposes, they overlap and integrate with each other. Taha Hinengaro – this dimension refers to a person’s mental well-being, cognitive activities, emotion, and intuition. It is the female element, private and unseen, so needs to be sensitively explored (Pere 1988, 1991). Cherrington (2009) notes that this is inclusive of communication, personality, and attitude of individuals and whānau. It also takes into consideration learning difficulties and a person’s understanding of what is happening. Thoughts and emotions are investigated with the individual and whānau: How do they feel about the concerns they have, how do they feel about life in general, how do they feel about themselves and others, and how do they express their emotions? Hinengaro is often the focus of a mental health assessment where people are asked about their thoughts, feelings, and the risk and safety issues connected to these. A Māori worldview is that this cannot be assessed in isolation from the other elements. Taha Whānau – health and well-being is about being connected to others and having strong relationships with whānau (extended family). With permission, the social worker engages with the person’s whānau as they are extensions of that person, critical in their health and well-being journey. It is also important that “Kaupapa whānau” (people linked with a common purpose) and their role be explored and included as needed. This is different from “whakapapa whānau,” who will have a biological or whānau connection, and incorporates key stakeholders in a person’s life, often viewed as just as important as whakapapa whānau, particularly for those who have lost genealogical connections (Lawson-Te Aho 2010). The role of the social worker is to explore whakapapa: familial and ancestral links that connect Māori to each other, the land, and the Ātua (Gods). This may include past, intergenerational, and contemporary stories of warfare, migration, intermarriage, and links with significant landmarks. Inevitably, this identifies the person’s level of knowledge and connection to whānau, hapū, and iwi, whether the person is physically and/or mentally near or far from these. Relationships with close and extended whānau members can be explored, the person’s role and responsibility within their whānau and whether they feel they are supported and nurtured within their environment. Questions such as their connection to the marae (meeting house, place of refuge/spiritual significance) or any other cultural institutions may help to understand their interactions outside of their home and in their community. It is important to note that sometimes Māori who are “disconnected” from their cultural identity may not wish to talk about it at the beginning of the assessment, but the practitioner needs to remain open to them changing their mind. This is often the case when Māori feel whakamā about their lack of knowledge or if they do not feel comfortable sharing this with the helping professional. This can be addressed after time and process of relationship building, use of Māori frameworks, and healing. Whānau may also have their own intervention strategies of connection and support for their whānau member through practical, physical, and spiritual means. Interventions may also include the nurturing of the person’s cultural identity and might involve reconnecting them, encouraging them, or going with them to their ancestral lands, being with their people and connecting with the area (climbing their
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mountain, bathing in their river, visiting significant areas – marae, urupā (burial grounds), old and current whānau homes). There may also be some work around understanding significant historical events and how these may have impacted on the present-day individual and whānau situation, sometimes connecting with the day-today issues they are experiencing. Intergenerational relationships and historical events are considered as possible reasons for mental health concerns (e.g., whakamā and Mate Māori discussed earlier). All of these considerations to whānau connections also link into taha hinengaro as there are attached emotions and expressions shown in their various relationships. Taha Wairua – Wairua is the connection to the spiritual element and present in peoples’ values and belief systems. The use of karakia (prayer, incantation) can pave the way for spiritual acknowledgement, protection, and cleansing, carrying more weight when led by spiritual leaders and experts. Everything is interconnected; as humans we are connected to the Ātua (Gods), the whenua (land/environment), and tangata (people). It is encapsulated in the following poem: Wairua By Heather Delamere Thomson “Koro, what is wairua?” the child asked, eyes wide “Wairua, my moko is what gives us life Handed down to us from a time past At the moment of your beginning You shared with me the wairua of your tipuna: For I am your link with the past And you are my link to the future The aroha of the whānau has wairua And their words, their laughter, their tears The marae, tangi, waiata and whakapapa Have a wairua that strengthens us, gives us pride So too the sunrise and sunset The soft summer rain, the raging storm, The song of the birds in the trees, The waves on the beach The mist rising from the bush The moonlight on the water And the embracing darkness of the night To sit quietly in the wharenui or the urupa And feel the presence of your tipuna is to feel wairua Your arms around my neck, your breath on my cheek, Fills me with a special wairua For there is wairua in all things that give meaning to life To love, to the future.
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“So moko, open your mind, Let your heart love Your eyes see Your ears hear Your hands feel Give of yourself, my moko For in giving, you receive And the wairua grows.” (Thomson cited in Cherrington 2009)
The social worker will observe the person’s presence (physical and spiritual) as these can be incongruent to what he/she is reporting. They will also assess whether the person listens to their wairua or he/she experiences intuitive moments that he/she is ignoring or afraid of. Examples of these can be signs and symbols received through experiences, dreams, messages, and instinctive feelings about people and situations. As in the past, people also continue to have gifts of foresight and mediumship – harnessing these gifts can be daunting for some particularly if misunderstood or misinterpreted by self and others. An example of this is the belief that certain wildlife come with messages. There are stories about spirits that can be very significant to Māori families and are often associated with certain landmarks, transgressions of tapu, or a person’s role and placing in the families. These are tied with the ideas of tapu and noa mentioned earlier where these areas are respected so as not to bring the individual or the family negative consequences (bad luck, death). These stories need to be explored with the person and their whānau due to the sometimes very significant consequences and because it can affect a person’s ability to improve their situation generally. Additionally, wairua is also connected to personal values and worldviews where what we do and how we act have a significant effect on the way we see ourselves and how healthy our wairua is. For example, if we have done something that does not sit with our value base, our wairua gives us indications of guilt, shame, fear, and whakamā. It may not always be possible or practical to visit ancestral lands, as discussed earlier, due to geographical location, mobility, and finances, but sometimes a visit or continued visits to a beach or a walk in the bush may be enough to enhance the spirit of the person. Māori social workers and their whaiora (person seeking wellness) can utilize these moments to reinvigorate the senses with touch, smells, sights, and sounds and either have an engaging moment through discussion or silence. Some Māori find that references and connection to the different gods associated with areas and elements can help them to understand how they (or a loved one) might be thinking, behaving, or feeling, for example, exploring Tāwhirimātea (the god of the winds), the different roles of the wind, and how it can be revered or despised (see Rangihuna et al. 2018 work Mahi a Atua). The following basic questions can help the social worker understand ways to assist the person to uplift their spirit: What are the person’s strengths? How can they be enhanced? What makes them feel good? What do they enjoy doing? Taha Tinana – in mental health assessments, good physical health and development is seen as a protective factor. For Māori this is also the case; a person’s
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physical health is an important aspect to explore and is strongly connected to wairua and hinengaro. If a person is feeling satisfied with their appearance, and is fit and healthy, their wairua is most likely to reflect this too. Do they view themselves as important and tapu, not to be harmed by self and others? (Cherrington 2009). This includes substance use, self-harm, violence, and so on. The social worker will assess whether there are health issues, the person’s view of their physical self, whether there are limitations, for example, the person’s mobility is affected, and areas where the person would like to improve (and whether this is possible or not). Do they have access to the right supports? For example, do they want to quit smoking and know and understand their options? Do they want to work on their physical fitness? The tinana (the body) should be viewed in a balanced way; sometimes the issue is more in relation to overdoing things and causing stress on the body, for example, studying late into the evening and overexercising. Māori have their own interventions (rongoa), cleansing rituals, traditional medicines, herbal remedies, and massage therapies that can be used to assist the person experiencing physical, spiritual, and mental ailments. These have come from many years of research and were administered by Tohunga (spiritual leaders). The social worker may assist the person to access a healer for this intervention. Unfortunately, there are fewer Tohunga available, and often kaumātua (elders) are now in the role of spiritual guides and healers. Sometimes just having a kaumātua available to talk with can be helpful and settling for the person. The Meihana model, developed by Pitama et al., is an extension of Te Whare Tapa Whā and for use within mental health “to facilitate the fusion of clinical and cultural competencies to better serve Māori within mental health service delivery” (2007, p. 120). It is a useful framework utilized to assess the strengths of the social worker and service and also the person and whānau. It adds in two other concepts: Taiao – the person’s physical environment, their home, their community, and their support services and systems. It includes the physical environment of the service, for example, accessibility, surroundings, and respect for whaiora (person seeking wellness). Iwi katoa – the wider macrocontext, societal and political structures, values, and beliefs that dictate appropriate behaviors and policies (which also has an impact on service delivery). For the social worker, this includes an analysis of how their own worldview, value, and belief affect work with the person and their whānau. This has similarities with the popular theory used in social work, Bronfenbrenner’s (1979) Ecological System’s theory where social workers can assess the person’s level of fit with the systems around them. While this model can help those with limited cultural knowledge, for appropriate and effective application, a certain level of cultural and clinical competency is required (Pitama et al. 2007). This overall framework will be referred to as the Meihana model. Figure 1 The Meihana model designed by the authors of this chapter, demonstrating the interconnectedness of the model and how the four areas from Te Whare Tapa Whā are nested within taiao and iwi katoa The Meihana model can be utilized in numerous ways and at different stages of intervention. The model can be used as an analysis method, to reflect on an
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Fig. 1 The Meihana model
individual and whānau within their context. It can also be used alongside and with whānau to assist them to understand concerns and explore strengths, within their context. It can also be utilized as a planning or reflective tool (e.g., a debrief model) for Māori social workers and other helping professionals and services, to explore worldviews and practice.
Case Study Demonstration of the Meihana Model A case study will be presented here and then discussed with the Meihana model. In applying a Māori model of practice, theory and practice come together from a specifically Māori lens. Here is a reminder of the basic translations of the key concepts; taha hinengaro (emotions, thoughts, feelings side), taha whānau (familial side), taha wairua (spiritual side), taha tinana (physical side), te taiao (physical environment) and iwi katoa (wider macro context). The case study is an example that can be utilized by people interested in a deeper understanding of the application of this model. Parts of the story have been changed to protect the confidentiality of the whānau; however we would like to acknowledge the young girl and her whānau and the lessons learned from this scenario. The outcome of this case was tragic; however, from this tragedy there is learning and improvements in practice. A case study – Mere’s story part one: A young Māori girl, Mere (13), experienced sexual abuse for a number of years by a family member and after it was discovered she suffered from symptoms of Post-traumatic stress. Her erratic behaviour meant that she was regularly in and out of hospital (nowhere felt safe for her) because she was actively suicidal. When Mere was in the
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specialist youth hospital she continued to have distressing symptoms and she ran away a number of times. They trialled different medication and on discharge she was given a new one. The hospital was outside of the region, so immediate whānau support was not readily available. Those who worked with her (in hospital and in the community) found her behaviour challenging and many had either opted out or had started to take a judgmental approach. She made friends in hospital and this was seen as negative, influencing her behaviour and attempts to get back into hospital when she was home. Prior to the abuse Mere appeared to be high functioning, she attended school and participated in sports and cultural events.
This case demonstrates that there were significant concerns (from both a western and Māori perspective) and the need for ongoing clinical input, safety, risk assessment, and cultural input. The following tables highlight how the Meihana model can be utilized to explore aspects of Mere’s situation (Tables 1, 2, and 3). Mere’s story part two: Mere’s care was transferred to new Māori social workers from hospital based mental health services. A visit took place in the home with Mere and her mother. Initially Mere was part of the conversation but then disappeared from sight. When Mere did not return after a few minutes the social workers’ queried her absence and at this point noticed a knife block in the kitchen, this raised alarm bells because of Mere’s past suicide attempts, all access to means should have been removed or restricted. Mum kept talking; she did not seem to notice anything amiss, whereas the social workers began to feel concerned; both later reflected on an instinctive, sick feeling. Mere’s story part three: Tentatively the social workers called for Mere hoping they would be proven wrong about their feelings. They found her sitting in a sleep-out away from the house holding a large butcher’s knife. She refused to put the knife away and instead put it to her throat – she made cut marks on her throat, but stopped, momentarily distracted. A bird had appeared in the sleep-out, it was a large bird, but still covered in down. The mother and daughter worked together to try to get the bird out of the sleep-out. Once it was out Mere walked away, refusing to give up the knife. The social workers’ contacted the police for assistance. Following this Mere was again admitted to hospital. Mere’s story part four: Mere spent a week in an adult ward in hospital. When she was discharged a new safety plan was put in place to support a safe transition home, agreed to by Mere and whānau. She was due to see the Psychiatrist three days later but the night before her appointment she took her life in the same sleep-out.
Through reviewing this case using the Meihana model, we can reflect on and learn ways to improve social work practice. The case was crisis-based, and on reflection the support from services was primarily based in a medical model, focused on diagnosis, medication, and hospitalization. The whānau was left with the devastation of the loss of Mere and the whānau member (the abuser) still among them. The Māori concept of whakamā was evident from both Mere and the abuser (Table 4). This case was not absent of a cultural approach, but the argument is that there was not enough “culture-first” or “culture-alongside” at all points of engagement. The aim is not to dismiss the medical model; it is to show that taking a broader view, inclusive of the cultural lens, applied in a meaningful way, can benefit social work practice with Māori. This is an important commitment for the mental health sector and beyond.
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Table 1 Mere’s story part one Taha hinengaro
Taha whānau
Taha wairua
Taha tinana
Taiao
Iwi katoa
Mere and her whānau experienced many emotions, i.e., whakamā, grief, anger, self-hatred, and other negative thought processes Mere had to deal with the aftermath and mixed emotions of the exposed abuse and people viewing the behavior of the abuser as wrong and disgusting Although Mere struggled with what had happened, she was trying to improve her situation A crisis occurred for the whānau (the abuse) The whānau had to consider how to support Mere and cope with the information and changes in her (managing her emotions and risk) Relationships were redefined, for example, with the abuser, for Mere and the whānau Mere’s father was not in her life Mere felt that she had betrayed the abuser. This person was a trusted male member of the whānau The whānau rallied to support Mere Mere had a strong, trusting relationship with a female member of her whānau Mere had new friendships (mostly dismissed as negative by the adults around her) Issues of transgression of tapu (the body is sacred) – Mere and her whānau were victims of wrongdoing and an extreme violation of trust Attachment, connection, and relationships with close loved ones were impacted The trauma associated with the abuse and the discovery by her family led to a post-traumatic stress response and she did not feel safe anywhere Physical and sexual violation of Mere’s physical body Physical safety (suicidal ideation, self-harm) Mere excelled at netball and hoped to continue with this in the near future, although this was now fragmented Mere’s ability to attend school was impacted Her cries for help were minimized as “behavioral” by support services. She experienced judgment from individuals and services Mere had wraparound service support, including local iwi services This impacted upon her youth culture, as normal developmental behaviors (i.e., sexuality development, relationships with adults and peers) were distorted and her identity damaged The abuse was a breach of cultural norms, expected rules of encounter/society norms, and a crime Society views the behavior of the abuser as wrong and disgusting Absence of father is a concern for many families in New Zealand Māori stories of the Ātua (Gods) can help to explain actions, feelings, and emotions connected to sexual abuse. The following pūrākau (story) about the transition of Hine-tītama to Hine-nui-te-pō shows how she reinvented herself in response to the abuse and betrayal she experienced. Aspects of resilience, respect, and hope are present in this story, as well as the clear message that physical and sexual abuse and incest are shameful and unacceptable The story of Hine-tītama and Tāne Hine-tītama is the daughter of Hineahuone and Tāne. In childhood she became separated from her father and was unaware her father was alive. They met later in life, and while Hine-tītama was not aware of Tāne’s identity, Tāne was aware of Hine-tītama’s identity and did not reveal his identity to her. They fell in love and had many children. On discovering Tāne was her father, Hine-Tītama drew support from her women relatives to leave him and created a new life in the underworld. After reciting an incantation to prevent him from pursuing her, she transformed herself to become Hine-nui-te-pō, guardian of the underworld, to prepare for her children (and humankind) in death (Smith et al. 2002 cited in Le Grice and Braun 2016)
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Table 2 Mere’s story part two Taha hinengaro
Taha whānau
Taha wairua
Taha tinana Taiao
Iwi katoa
Initially Mere was open to engaging with the social workers and welcomed them into her home alongside her mother There had been no overt indication that Mere was upset, and she had not said anything when she removed herself from the meeting An initial meeting was held with Mere and her mother Whānau supports and relationships were explored Whānau management of risk became a concern, for example, the knife block Mother’s apparent disconnection with understanding of risk needed further exploration Māori social workers experienced an instinctual response and sick feeling; this added to risk assessment concerns Gauging the mauri or energies in the room and reading non-verbal communication such as body language helped to attune to this Mum appeared to be desensitized to Mere’s behaviors and was therefore desensitized to the unseen energies that communicated to the social workers Mere leaving the meeting was a concern for the social workers Social workers discussed services that were involved and supporting Mere and her whānau Services needed to improve collaboration and provide better support to Mere and whānau The meeting was held in the whānau home Societal expectation for whānau to protect and nurture their tamariki (children) and keep them safe at all times Societal expectations that mothers predominately carry the sole responsibility to protect and nurture the whānau Societal and developmental view that young people can demonstrate difficult behavior and are to blame for it
Conclusion While the experiences of indigenous groups around the world differ, similarities are apparent. Like Māori, other indigenous peoples have experienced the effects of colonization. Like Māori, other indigenous peoples are significantly represented in low socioeconomic groups, suffer similar patterns of disease, and engage in similar battles for recognition of rights. Indigenous peoples are more at risk of developing mental health and addiction problems, and cultural alienation can provide some explanation of this (Durie 2005). There are also similarities in experiences and worldviews in relation to WesternEurocentric treatments and ongoing issues of diagnosis, misdiagnosis, and mismanagement that are related to culture (Durie 2005). To counteract these and advance health and well-being, indigenous peoples around the world share a common purpose to retain their own distinctive cultural identity and exercise selfdetermination (Durie 2008 cited in Te Rau Matatini 2016). This would mean that the communities of indigenous peoples advocate for their own traditional models of practice to be a part of or all of the assessment and intervention planning. This chapter contributes to the pursuit of this goal.
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Table 3 Mere’s story part three Taha hinengaro
Taha whānau
Taha wairua
Taha tinana
Taiao
Iwi katoa
Although there was a clear risk history, she had presented as engaging and willing to build a relationship; however a moment later, she was less able to manage herself, seemed uncomfortable in her own skin, and desperately looked for escape Although Mum had a slow initial response, she actively undertook to remove the knife from her daughter and protect her from self-harm Mother and daughter worked together to remove the bird from the sleep-out The incident in the sleep-out was demonstrative of the erratic nature of the issues Mere and her whānau were experiencing. There seemed to be limited boundaries between a crisis and “normality” The “gut feelings” and an intuitive wairua feeling of the social workers associated with the crisis experience were significant; events, signs, and symbols showed that all was not right or “tika” with Mere These signs are significant to Māori and other cultures and can be overlooked if there is not an openness to be aware of them. For example, at the time the presence of the bird seemed bizarre, while it may have been a welcome distraction, it was just for a minute, and the incident with the knife continued. Perhaps it gave Mere a brief reprieve from her own distress and helped to avoid a more serious injury from occurring in the sleep-out that day Mere was communicating a strong message by removing herself from the meeting and waiting in the sleep-out with the knife Immediate safety issues/self-harm behavior Safety concerns of those around her as Mere was carrying a large knife around The sleep-out was significant; it was separate from the home. It may have been a place of refuge for Mere Police support and de-escalation of crisis Admission to hospital Ongoing support by social workers Police did not initially view the situation as requiring further input from them however responded to the social workers’ concerns Māori worldview of significance of signs and symbols, for example, the presence of a bird can be associated with death
Māori development in the Māori mental health field has been to build the Māori workforce and develop in the area of dual competency, specializing in the areas of both clinical mental health and cultural mental health. The pervasive impact of colonization and symptoms that are “treated” or caused by alcohol and other drug use can create a difficult assessment environment, because cultural issues may be not recognized or may be overlooked or masked. For Māori and non-Maori social workers, culture is viewed as an important element of practice, and to varying degrees, they will be influenced and guided in their practice by Māori theories and models of practice that are based on a Māori worldview. It is essential that “culturefirst” or “culture-alongside” assessment and interventions continue to grow and develop and that these are supported by attitude changes and policy. The Meihana model was presented and applied to a case study, highlighting how each area can be explored, ensuring that this cultural lens is genuinely considered.
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Table 4 Case review Taha hinengaro Taha whānau
Taha wairua
Taha tinana Taiao
Iwi katoa
How could Mere have been supported to be more physically and emotionally safe? Did the whānau feel resentment to services and individuals? How could Mum have been supported to address relationships, emotions, attachment with daughter, and possible desensitivity to risk? Social workers needed to have more of a sense of whānau dynamics and Mere’s identity and changes of these over time (and in response to the abuse and discovery of abuse) How can whanaungatanga (building relationships) be practiced in crisis situations? The significance of the bird How could Mere have been supported to be more physically and emotionally safe? Addressing risk and safety better, for example, better planning to keep Mere alive, access to means Organizations, services, and policy need to examine their worldview, practice, and judgments pertaining to those accessing (or not accessing) services What changes need to be made to service delivery and attitudes? Consistency of support for Mere and whānau Analysis of the support to staff who were working with Mere and whānau (during and after her passing) Organizations, services, and policy need to examine their worldview, practice, and judgments pertaining to those accessing (or not accessing) services Suicide and youth suicide is a major concern in New Zealand Mental health issues and suicide are also a concern particularly for Māori. Māori are overrepresented in negative statistics The need to protect young people from being victims of sexual abuse. How to recognize abuse has happened (or is happening)? How to address it and support the victim in the best way possible, taking into account their cultural identity? How are whānau, hapū, and iwi included in the mahi (work)? Services are now focusing more on understanding trauma and providing traumainformed interventions; need to ensure this is culturally appropriate for Māori. How are social workers prepared to work with trauma?
Cross-References ▶ Trauma-Informed Social Work Practice with Children and Youth ▶ Social-Cultural Ecological Perspective ▶ Suicide Prevention
References Boulton A, Tamehana J, Brannelly T (2013) Whānau-centered health and social service delivery in New Zealand. Mai J 2(1):18–32 Bronfenbrenner U (1979) The ecology of human development: experiments by nature and design. Harvard University Press, Cambridge, MA
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Bush A, Niania W (2012) Voice hearing and pseudo-seizures in a Māori teenager: an example of mate Māori and Māori traditional healing. Australas Psychiatry 20(4):348–351. https://doi.org/ 10.1177/1039856212456090 Cherrington L (2009) Te hohounga: Mai i te tirohanga Māori. The process of reconciliation: towards a Māori view. The delivery of conduct problem services to Māori. Ministry of Social Development, Wellington Coupe NM (2005) Whakamomori: Māori suicide prevention: a thesis presented in partial fulfilment of the requirements for the degree of doctor of philosophy in Māori studies. Massey University, Turitea Campus, Palmerston North Durie M (2001) Mauri ora: the dynamics of Maori health. Oxford University Press, Auckland Durie M (2005) Indigenous health reforms: best health outcomes for Māori in New Zealand. Massey University, Palmerston North Durie M (2011) Indigenizing mental health services: New Zealand experience. Transcult Psychiatry 48(1/2):24–36 Harmsworth GR, Awatere S (2013) Indigenous Māori knowledge and perspectives of ecosystems. In: Dymond JR (ed) Ecosystem services in New Zealand – conditions and trends. Manaaki Whenua Press, Lincoln, pp 274–286 Hirini P, Collings DP (2005) Whakamomori: He whakaaro, he kōrero noa, A collection of contemporary views on Māori and suicide. Report 3: Social Explanations for Suicide in New Zealand. Ministry of Health, Wellington, pp 1–28 Hollis-English A (2015) Theories in Māori social work: indigenous approaches to working with and for indigenous people. Aotearoa New Zealand. Soc Work 27(4):5–15. https://doi.org/10.11157/ anzswj-vol27iss4id432 Johnstone K, Read J (2000) Psychiatrist recommendations for improving bicultural training and Maori mental health services: a New Zealand survey. Aust N Z J Psychiatry 34:135–145 Kingi TK (2005) Māori mental health: past trends, current issues, and Māori responsiveness. Massey University, Wellington Lawson-Te Aho K (2010) Definitions of whānau: a review of selected literature. Available from www.familiescommission.org.nz Le Grice JS, Braun V (2016) Mātauranga Māori and reproduction: inscribing connections between the natural environment, kin and the body. Alternative 12(2):151. https://doi.org/10.20507/ AlterNative.2016.12.2.4 Mead HM (2003) Tikanga Maori: living by Maori values. Huia Publishers, Wellington Mental Health Foundation (n.d.) Māori perspectives on depression. Mental Health Foundation, Auckland Metge J (1995) New growth from old. Victoria University Press, Wellington Mooney HA (2012) Māori social work views and practices of rapport building with rangatahi Māori. Te Komako Aotearoa New Zealand Soc Work 24:3–4 Pere RR (1988) Te wheke: Whaia te maramatanga me te aroha. In: Middleton S (ed) Women in education in Aotearoa. Allen & Unwin Port Nicholson Press, Wellington Pere RR (1991) Te wheke: a celebration of infinite wisdom. Ao Ako Global Learning, Gisborne Pihama L, Reynolds P, Smith C, Reid J, Tuhiwai-Smith L, Te Nana R (2014) Positioning historical trauma theory within Aotearoa New Zealand. Alternative 10(3):248–262 Pitama S, Robertson P, Cram F, Gillies M, Huria T, Dallas-Katoa W (2007) Meihana model: a clinical assessment framework. N Z J Psychol 36(3):118–125 Pohatu TW (2011) Mauri – rethinking human wellbeing. MAI Rev 3:1–12 Rangihuna D, Kopua M, Tipene-Leach D (2018) Mahi a Atua: a pathway forward for Māori mental health? N Z Med J 131(1471):79–83 Ruwhiu LA (2001) Bicultural issues in Aotearoa New Zealand social work. In: Connolly M (ed) New Zealand social work: contexts and practice. Oxford University Press, Auckland, pp 54–71 Ruwhiu PTO, Ruwhiu LA (2005) Ko te pae o te atua mai i nga whakaaro hohonu nei, hei oranga mo te ira tangata. Te Komako Soc Work Rev J. Winter 2005, I VIII(2):4–19 Sachdev PS (1990) Whakamaa: culturally determined behaviour in the New Zealand Maori. Psychol Med 20:433–444
13
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Statistics New Zealand (2013) Māori ethnicity StatsMaps. New Zealand Government Available online. http://archive.stats.govt.nz/StatsMaps/Home/Maori%20ethnicity/2013-Cen sus-map-Maori-ethnic-group.aspx Taitimu M, Read J, McIntosh T (2018) Ngā whakawhitinga (standing at the crossroads): how Māori understand what Western psychiatry calls “schizophrenia”. Transcult Psychiatry 55(2):153–177 Te Rau Matatini (2016) Kaupapa Māori mental health and addiction services: best practice framework. Te Rau Matatini, Wellington Te Rau Puawai (2018) Te Rau Puawai. http://www.massey.ac.nz/massey/maori/maori_research/terau-puawai/te-rau-puawai_home.cfm Te Rau Ora (2019) Te Rau Ora https://terauora.com/ Turia T (2000) Speech notes NZ psychological society conference: Hamilton, Waikato University, New Zealand. Available online http://www.converge.org.nz/pma/tspeech.htm. Accessed 17 Jan 2018 Waitoki W, Nikora LW, Harris P, Levy M (2014) Māori experiences of bipolar disorder: Pathways to recovery. Māori and Psychology Research Unit, University of Waikato; Te Pou o te Whakaaro Nui: The National Centre of Mental Health Research, Information and Workforce Development. Hamilton Walker R (1990) Ka whawhai tonu matou: struggle without end. Penguin, Auckland Webster J, Bosmann-Watene G (2003) Walking in two worlds: a critique of the diagnostic and statistical manual from a perspective of Te Ao Maori. Soc Work Rev 15(3):8–11
Part IV Contextualized Practice with Individuals and Families
Trauma-Informed Social Work Practice with Children and Youth
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Definitions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Childhood Exposure to Violence: A Global Epidemic . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Trauma-Informed Care, Systems, and Service Delivery . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Evidence-Based Trauma-Specific Treatments with Children and Youth . . . . . . . . . . . . . . . . . . . . . . . Cognitive Behavioral Therapies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Group Cognitive Behavioral Therapies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Eye Movement Desensitization and Reprocessing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Child-Parent Psychotherapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Evidence-Informed and Practice-Informed Trauma-Specific Treatments . . . . . . . . . . . . . . . . . . . . . . Somatic Trauma Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Attachment Focused Family Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Life Story Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Expressive Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Preventative Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Nine Practice Guidelines for Working with Traumatized Children and Youth . . . . . . . . . . . . . . . . Practice Principle 1: Ensuring Safety and Creating a Safe Environment . . . . . . . . . . . . . . . . . . Practice Principle 2: Teaching Children and Youth About Emotional Literacy and Emotional Regulation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Principle 3: Giving Back Control and Pacing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Principle 4: Preparing Children and Youth for Critical Transitions in Their Lives and Giving Them a Voice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Principle 5: Increasing Their Support System and Including Their Significant Others in the Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Principle 6: Actively Deploying Resources and Anchors . . . . . . . . . . . . . . . . . . . . . . . . .
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Y. Munisamy (*) Child Protective Service, Rehabilitation and Protection Group, Ministry of Social and Family Development, Singapore, Singapore e-mail: [email protected]; [email protected] D. E. Elze (*) University at Buffalo School of Social Work, Buffalo, NY, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_10
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Practice Principle 7: Ensuring Predictability and Structure, Continuity, and Repetitiveness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Practice Principle 8: Designing Trauma Response Plan with the Child or the Youth . . . . . Practice Principle 9: Consolidating Coherent and Honest Narratives of the Children’s Lives with Them and Their Significant Others . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Challenges in Developing Trauma-Informed Systems . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Tuning in to the Impact of Trauma Work on the Social Worker . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Self of the Worker . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Preventing Vicarious Trauma, Secondary Traumatic Stress, and Burnout . . . . . . . . . . . . . . . . . Reflective Supervision . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Self-Care . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Annex A . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Annex B . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Human rights violations and other traumatic events imperil the lives of millions of children worldwide, jeopardizing their physical, emotional, mental, spiritual, and social development, health, and well-being. Childhood trauma is a global public health problem. Untreated childhood trauma can impose lifelong negative consequences on children’s health, well-being, and life chances. Children and their families urgently need access to trauma-informed systems of care and trauma-specific interventions. Given the social work profession’s focus on social justice, advocacy, and facilitating access to resources, an in-depth understanding of trauma-informed social work practice is critical for direct practice with children and youth, program development, research, and policy. Trauma-informed social work intervention and advocacy will optimize the chance of achieving good outcomes in adulthood for vulnerable, traumatized children and youth. This chapter provides an overview of trauma among children and youth and its consequences on their lives. This chapter also describes principles of trauma-informed service delivery and evidence-based, culturally appropriate trauma-specific interventions with children and adolescents. Keywords
Trauma · Trauma-informed care · Children and youth · Trauma-specific interventions
Introduction Childhood trauma is a global public health problem (Stark and Landis 2016). Human rights violations and other traumatic events imperil the lives of millions of children worldwide, jeopardizing their physical, emotional, mental, spiritual, and social development, health, and well-being (World Health Organization [WHO] 2014). Child maltreatment (i.e., physical, sexual, and emotional abuse), child neglect,
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trafficking for forced labor and sexual exploitation, armed conflicts, natural and environmental disasters, exposure to domestic and community violence, life-threatening injuries and diseases, forced displacement and migration, and terrorism blight children’s lives and life chances (United Nations Children’s Fund [UNICEF] 2016a). In the United States and Singapore, exposure to traumatic events often precedes children’s involvement in child welfare, juvenile justice, behavioral health, homeless services, and primary healthcare systems. Untreated childhood trauma can impose lifelong negative consequences on people’s health, well-being, and life chances. Children and their families urgently need access to trauma-informed (TI) systems of care and trauma-specific interventions (Substance Abuse and Mental Health Services Administration [SAMHSA] 2014). Given the social work profession’s focus on social justice, advocacy, and facilitating access to resources, an in-depth understanding of trauma-informed social work practice is critical for direct practice with children and youth, program development, research, and policy. Trauma-informed social work intervention and advocacy will optimize the chance of achieving good outcomes in adulthood for vulnerable, traumatized children and youth. Additionally, professional development for social workers through a trauma-informed lens will enhance social workers’ competency, retention, and rejuvenation. This chapter provides a brief overview of trauma among children and the consequences of traumatic stress on their lives. This chapter also describes the principles of TI care; initiatives to develop TI service delivery systems; evidence-based, culturally appropriate trauma-specific interventions and promising TI practices with children and adolescents; and nine practice guidelines for social work practice with traumatized children and youth. The chapter concludes with the challenges in implementing trauma-informed care and attention to self-care for social workers to prevent vicarious trauma and burnout.
Definitions Discussions of childhood trauma must distinguish between trauma, traumatic events, traumatic stress, post-traumatic stress disorder (PTSD), and complex trauma. Trauma, as defined by SAMHSA (2014), “results from an event, series of events, or set of circumstances that is experienced by an individual as physically or emotionally harmful or life threatening and that has lasting adverse effects on the individual’s functioning and mental, physical, social, emotional, or spiritual wellbeing” (p. 7). The Diagnostic and Statistical Manual of Mental Disorders (Fifth Edition) more narrowly defines trauma as direct or indirect exposure to actual or threatened death, serious injury, or sexual violence (i.e., a criterion A trauma) (American Psychiatric Association [APA] 2014). Not all children exposed to traumatic events experience traumatic stress. Child traumatic stress refers to persistent distressing reactions, of short or long duration, which overwhelm a child’s ability to cope, following exposure to a traumatic event, thus affecting the child’s daily functioning. Such adverse reactions may be physiological, emotional, psychological, or behavioral and may
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emerge immediately or with delayed expression (National Child Traumatic Stress Network [NCTSN] 2013). Most children exposed to trauma exhibit resilience and do not suffer from prolonged trauma-related difficulties (Miller-Graff and Howell 2015). A subset of children, after a traumatic exposure, may meet diagnostic criteria for post-traumatic stress disorder (PTSD) if they experience characteristic symptoms (e.g., intrusive memories; avoidance behaviors; negative changes in cognitions, mood, arousal, and reactivity) that last longer than 1 month, which cause them clinically significant distress or impairment in functioning (APA 2014). An array of individual (e.g., developmental stage, prior trauma, co-occurring mental health problems, perceived threat to life, fear), family (e.g., domestic violence, caregiver response, culture), and community (e.g., neighborhood violence, lack of social support) risk factors influence a child’s likelihood of developing PTSS or PTSD post-trauma (Miller-Graff and Howell 2015; Trickey et al. 2012). A meta-analysis of PTSD rates in trauma-exposed children, ages 2–18, found that 15.9% developed PTSD following exposure to a criterion A trauma, with girls subjected to interpersonal trauma (e.g., violence, war, terrorism) showing the highest rate (32.9%). Approximately 10% of the children developed PTSD following exposure to a non-interpersonal trauma (e.g., life-threatening disease, death of a loved one, disaster) (Alisic et al. 2014). PTSD prevalence and symptom severity in children, ages 5–18, appear to spontaneously decline during the first 6 months and 3 months post-trauma, respectively (Hiller et al. 2016). Another meta-analysis revealed a strong association between negative appraisals of trauma and PTSS in children and adolescents (Mitchell et al. 2017). A study of multiple trauma exposure of 721 Singapore children in out-of-home care revealed that 63% experienced at least one interpersonal trauma and 35% experienced multiple trauma exposure (Liu et al. 2016). The children with multiple trauma exposure had poorer psychosocial functioning with higher number of lifefunctioning needs, behavioral and emotional needs, and risk behavior needs. Complex trauma refers to the pervasive impact on children of multiple, chronic, and recurrent adverse traumatic events, usually beginning in early childhood within the caregiving system, and the deleterious developmental and biopsychosocial problems associated with those experiences. Children with complex trauma histories may experience impairment in one or more developmental domains: (a) emotional and behavioral self-regulation; (b) neurobiological processes; (c) self-concept and self-esteem; (d) cognitions, such as attention regulation and information processing; and (e) attachments and relationship formation (Kliethermes et al. 2014). The PTSD diagnostic classification, which conceptualizes trauma as a single event, is limited in its applicability to children who experience complex trauma. Researchers and clinicians have long advocated for a “developmental trauma disorder” (DTD) classification, which would incorporate the pervasive effects of complex trauma on children’s functioning across multiple domains (e.g., affective and behavioral dysregulation, cognitive deficits, self-perception, and relational problems), symptoms not captured in PTSD or co-occurring diagnoses. The debate continues, as DTD was not included in the DSM-V (Denton et al. 2017).
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Research in developmental neuroscience, endocrinology, immunology, epigenetics, and developmental traumatology has revealed that prolonged exposure to trauma and “toxic stress” cause dysregulation of neurobiological stress systems, with subsequent alterations in brain structure and function, and adverse consequences on children’s emotional, cognitive, social, and behavioral functioning (see reviews: De Bellis and Zisk 2014; Hein and Monk 2017). Toxic stress occurs with severe, prolonged, repeated exposure to adversity (e.g., abuse, neglect, violence, caregiver mental illness/substance abuse, family economic hardship) without sufficient adult support. While positive (i.e., brief increases) or tolerable (i.e., time-limited) stress responses are normal aspects of healthy development, “toxic stress responses” involve excessive, prolonged activation of stress responses systems, potentially undermining healthy development and well-being across the life span (Center on the Developing Child 2016). The duration, severity, proximity, and age of trauma onset and individual and environmental risk (e.g., neighborhood violence, poor schools) and protective (e.g., family cohesion, social support, safe neighborhoods) factors may intensify or attenuate the effects of toxic stress on neurobiological stress systems (McLaughlin et al. 2015; Shern et al. 2016). Home environments with toxic stress exposure to children and youth are also evident in Singapore. A study of the family profiles of 440 maltreated children in Singapore classified the families by four types: large household group, high criminality group, harsh parenting group, and low disadvantage group. The high criminality group consisted of half the parents of children who were abused in this class having mental health issues and three-quarters having a criminal history (Chng et al. 2018).
Childhood Exposure to Violence: A Global Epidemic Trafficking, armed conflicts, displacement, child maltreatment, disasters, and other traumatic events affect millions of children and youth worldwide (UNICEF 2016a, b). More than 25% of detected trafficking victims in 2014 were children, with rates ranging from 8% to 64%, depending upon the region (United Nations Office on Drugs and Crime [UNODC] 2016). Nearly 250 million children live in areas affected by armed conflicts (UNICEF 2016a). These conflicts subject children to “six grave violations” of their human rights (i.e., abduction, recruitment as combatants, denial of humanitarian access, sexual violence, killing and maiming, and attacks against schools and hospitals) (Office of the Special Representative of the Secretary-General for Children and Armed Conflict [OSRSG/CAAC] 2013). Children under 18 years of age comprise half of the world’s refugees and 15% of all migrants. Displaced children, particularly unaccompanied minors, risk sexual, physical, and psychological abuse; human trafficking; murder; torture; exploitation by smugglers; separation from family members; detention; kidnapping; slave labor; illness; and death (U.N. Department of Economic and Social Affairs 2016; UNICEF 2017a, b). In destination countries, they face discrimination, stigmatization, violence, racism, xenophobia,
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detention, economic deprivation, and poor living conditions (UNICEF 2017a, b; Murphey 2016). Globally, child maltreatment is a pervasive public health problem (WHO 2014). A synthesis of several meta-analyses of global prevalence rates determined that 12.7% of adults had experienced childhood sexual abuse (7.6% of boys and 18% of girls); 22.6%, physical abuse; 36.3%, emotional abuse; 16.3%, physical neglect; and 18.4%, emotional neglect. Prevalence rates for maltreatment were largely similar across continents, except for sexual abuse; females in Africa, Australia, and North America reported the highest rates of sexual abuse (i.e., approximately 20%) (Stoltenborgh et al. 2015). In Singapore, it was reported in Channel News Asia online that the number of child abuse cases are on an upward trend with 894 child abuses investigated by the Ministry of Social and Family Development in 2017 compared to 343 in 2014 (Ong 2018).
Trauma-Informed Care, Systems, and Service Delivery Responding to demands for systems change from women trauma survivors and other mental health consumers, SAMHSA, in the early 1990s, embarked on a long-term commitment to fund and promote TI systems of care (DeCandia et al. 2014; Jennings 2008). Since then, SAMHSA, in partnership with other federal agencies and national associations, has spearheaded multiple initiatives to integrate TI care across publicly funded systems serving children, adolescents, and adults (Berliner and Kolko 2016; DeCandia et al. 2014; Hanson and Lang 2016). Trauma-informed care (TIC) promotes: (a) safety (i.e., physical, emotional, psychological); (b) trustworthiness and transparency in organizational practices; (c) peer and family support; (d) collaboration and mutuality (i.e., sharing power and decision-making); (e) empowerment, voice, and choice for staff and clients; and (f) attention to cultural and gender issues, and historical trauma. Trauma-informed (TI) systems and organizations recognize the far-reaching impact of traumatic experiences on individual, families, groups, organizations, and communities and integrate this knowledge into policies and practices to promote recovery. Providers recognize the signs and symptoms of trauma, the pervasiveness of trauma exposure among client populations and staff, and avoid blaming and re-traumatizing clients during service delivery (SAMHSA 2014). TI systems routinely screen for trauma exposure and trauma-related symptoms, and, when indicated, conduct thorough trauma assessments (Child Welfare Information Gateway 2015; Ford et al. 2007), although they may refer clients elsewhere for trauma-specific treatments. TI systems for children and their families utilize a strengths-based approach that engages families, supports resilience, builds protective factors, and promotes continuity of care and collaboration across systems (Rozzell 2013). TI systems require the availability of mental health practitioners skilled in delivering evidence-based, culturally appropriate treatments and community- and system-wide trauma education (Henry et al. 2011).
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Among its child-focused initiatives, SAMHSA has administered, for nearly two decades, the National Child Traumatic Stress Network, the mission of which is “to raise the standard of care and increase access to services for traumatized children and their families across the United States” (NCTSN 2013, p. 1). NCTSN supports the development and dissemination of evidence-based, culturally appropriate assessments and interventions; provider training; research and evaluation; community awareness campaigns; and advocacy for TI practices and policies across multiple child-caring service sectors (NCTSN 2007). Over the last two decades, the vast majority of states have integrated TI practices and policies into their behavioral health systems for children and adolescents (Jennings 2008). Through its position statements, technical assistance provision, and the development and dissemination of TI best practices and policies, the National Association of State Mental Health Program Directors (NASMHPD), since the late 1990s, has kept trauma at the forefront of an agenda for state mental health systems’ transformation. The NASMHPD convened multiple national meetings of trauma experts to develop criteria for building a TI mental health system, and disseminated TI activities, best practices, and model policies to state mental health agencies (Jennings 2008). The Children’s Health Act of 2000 (P.L. 106-310), subsequent rules issued by the Centers for Medicare and Medicaid Services, and standards of the Joint Commission on the Accreditation of Healthcare Organizations, boosted efforts to restrict the use of seclusion and restraint (S/R) in children’s psychiatric settings (Azeem et al. 2015). Recognizing that S/R are inherently violent, coercive, and traumatizing practices, NASMHPD issued specific guidelines to reduce their use in inpatient behavioral health settings (Huckshorn 2006). The guidelines identified six core strategies: (a) leadership that prioritizes TI organizational transformation; (b) data collection to assess implementation efforts; (c) workforce development; (d) TI risk assessments and intervention strategies integrated into organizational operations and policies; (e) inclusion of children, families, and advocates in implementing TI principles; and (g) rigorous debriefing of incidences (Huckshorn 2006). Implementation of these guidelines reduced S/R in a pediatric inpatient setting (Azeem et al. 2015) and in children’s residential programs (LeBel et al. 2010). Statewide, interagency, and site-specific initiatives have successfully integrated alternatives to S/R into organizational cultures and operations (LeBel et al. 2010). Together, the Children’s Bureau within the Administration for Children and Families (ACF), SAMHSA, NCTSN, and NCTSN’s affiliated Chadwick Center for Children and Families have advanced the development of TI child welfare (CW) practices, policies, and models and integrated TI-CW and behavioral health systems. The Children’s Bureau issued policies and provided funding to support statewide initiatives to develop TI-CW systems (Berliner and Kolko 2016). ACF designated TI-CW system development a child welfare funding priority and supported approximately 20 state and tribal TI-CW initiatives (e.g., Akin et al. 2017; Bartlett et al. 2016; Kerns et al. 2016). Although far from universal, TI practices or models have also been integrated into US juvenile justice, pediatric healthcare, behavioral health, homeless, and
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education systems (Ko et al. 2008; DeCandia, et al. 2014; Jennings 2008; Rozzell 2013; McInerney and McKlindon 2014; O’Grady 2017; SAMHSA 2014; U.S. Interagency Council on Homelessness 2015). Comprehensive recommendations exist for integrating TI approaches into juvenile justice systems (Attorney General’s National Task Force on Children Exposed to Violence 2012), including juvenile and family courts (Marsh et al. 2015), and law enforcement practices (International Association of Chiefs of Police and Yale Child Study Center 2017). Advocates have called for an end to practices that further traumatize children and youth (e.g., incarceration for nonviolent offenses, seclusion and restraint, strip searches, solitary confinement, physical/sexual abuse by staff and youth) (Branson et al. 2017). The NCTSN Medical Traumatic Stress Working Group (2004), the American Academy of Pediatrics (2014), and the Center for Pediatric Traumatic Stress (2015) have developed comprehensive toolkits for families and healthcare providers to advance TI pediatric healthcare and address pediatric medical traumatic stress (PMTS). The Integrative Model of Pediatric Medical Traumatic Stress provides a conceptual model to guide pediatric healthcare professionals in preventing, assessing, and treating PMTS, with TI approaches (Marsac et al. 2016; Price et al. 2016). The US Interagency Council on Homelessness, under the Obama Administration, emphasized trauma and the urgent need for TI service delivery in its federal strategic plan to prevent and end homelessness (U.S. Interagency Council on Homelessness 2015). The National Center on Family Homelessness has created organizational assessments, toolkits, and curricula to guide homeless programs in developing TI practices and policies for homeless and displaced children and families (Clervil et al. 2013; Guarino et al. 2009). Noteworthy TI guides or models for education systems are NCTSN’s Child Trauma Toolkit for Educators (2008); the Washington State Compassionate Schools Initiative (Wolpow et al. 2009); the Trauma and Learning Policy Initiative in Massachusetts (Cole et al. 2013); and the Sanctuary Model ®, an organizational transformation model, which was first implemented in children’s residential treatment programs (Bloom 2013). In TI schools, school personnel understand the impact of trauma on learning, integrate TIC principles to create a TI culture, foster school connectedness and positive behavior in children, utilize restorative practices rather than punitive disciplinary procedures, and provide tiered support based on students’ needs (Walkley and Cox 2013; Wolpow et al. 2009).
Evidence-Based Trauma-Specific Treatments with Children and Youth There is a myriad of evidence-based and evidence-informed treatments for trauma that aim to improve the child’s quality of life, ensure daily functioning, and help the child enhance self-regulation and coping skills.
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Cognitive Behavioral Therapies Silverman et al.’s (2008) review of evidence-based psychosocial treatments for children and adolescents exposed to traumatic events evaluated 21 randomized controlled trials (RCTs). Two cognitive behavioral therapies (CBTs) met either well-established or probably efficacious criteria for improving child and adolescent outcomes such as post-traumatic stress symptoms (PTSS), depressive symptoms, anxiety symptoms, and externalizing behavior problems. Trauma-focused cognitive behavioral therapy (TF-CBT) was rated as well-established. Six studies tested individual CBT with parent involvement, four of which tested TF-CBT specifically. Only two of the TF-CBT studies in the Silverman et al.’s (2008) review included children younger than 5 years. Five of the six studies focused on sexual abuse as the main traumatic event. TF-CBT treatment includes approximately 10–12 separate child and parent sessions, with parents and children receiving the same elements. Some sessions are conjoint. Treatment elements include psychoeducation about trauma exposure and PTSS; coping skills (e.g., affect identification/modulation, relaxation, cognitive coping); imaginal exposure (i.e., explicitly recalling details, thoughts, and feelings about traumatic experiences; often through drawings, writing, or other creative mechanisms); in vivo exposure (i.e., through confronting innocuous trauma reminders); cognitive restructuring of maladaptive, trauma-related cognitions; and safety skills training. Parents are taught parenting skills (e.g., praise, contingency management). Eight-session versions of TF-CBT were more effective than an eightsession non-CBT community treatment approach. Cohen et al. (2011) concluded in his study that TF-CBT effectively improved children’s interpersonal partner violence-related PTSD and anxiety.
Group Cognitive Behavioral Therapies Group CBT is a common treatment approach for symptoms of childhood trauma. Children and adolescents are the main participants with minimal parent involvement. Group CBT usually consists of 10 treatment sessions which include psychoeducation, coping skills, and cognitive restructuring (Layne et al. 2008) and commonly tested in schools. Some approaches include imaginal and/or in vivo exposure, problem-solving, and focus on social support. In Groupwork CBT with parent involvement, children and parents typically meet concurrently but separately over 16 sessions, with a few joint sessions. Treatment elements are similar to those in individual CBT with parent involvement. When the trauma is from physical abuse, treatment focuses equally on parent outcomes, such as parenting behavior, preventing physical abuse recidivism, and the mental health impact of trauma exposure. Treatment involves content relating to parent’s commitment to non-violence on their children or spouse.
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Eye Movement Desensitization and Reprocessing EMDR intervention involves guided imagery and relaxation to enhance coping skills; cognitive restructuring; imaginal exposure; and simultaneous bilateral sensory input, such as eye movements. Treatment involves 8–12 individual therapy sessions. A number of studies provide evidence for the effectiveness of EMDR in treating trauma symptoms in children (Silverman et al. 2008).
Child-Parent Psychotherapy Several randomized clinical trials have shown that Child-Parent Psychotherapy (CPP) is effective in helping children aged 3–5 recover from trauma. The intervention promotes affect regulation in the child and focuses on the dyad to provide a joint trauma narrative. This intervention reduces inter-dyad conflicts and has shown to improve the mother-child relationship. This intervention prevented child trauma symptoms and behavioral issues and also ensured that mothers would not avoid the issues and engage in sessions to help the children (Keeshin and Strawn 2014).
Evidence-Informed and Practice-Informed Trauma-Specific Treatments Somatic Trauma Therapy The premise of this intervention is that PTSD has somatic components. Somatic Trauma Therapy (STT) focuses on psychobiology and neurobiology. This integrated trauma therapy utilizes tools for identifying, understanding, and treating trauma effects on mind and body. Rothschild (2000) writes on bridging the gap between talk therapy and body therapy to help the client heal from trauma. She posits three phases in trauma recovery: (a) safety and stabilization, (b) trauma narrative, and (c) integration. She also proposed eight keys for the individual’s own safe trauma recovery: (a) plot your course with mindfulness; (b) begin with your epilogue. . .you made it; (c) remembering is not required; (d) stop flashbacks; (e) reconcile forgiveness and shame; (f) take smaller steps for bigger leaps; (g) get moving; and (h) make lemonade.
Attachment Focused Family Therapy Hughes (2007) posits that childhood trauma, when addressed with this model of family therapy, can result in benefits for children and parents who were traumatized
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in their childhoods. He highlights how the principles of attachment and intersubjectivity help with dysregulation and interpersonal family conflicts. Hughes outlines seven steps in attachment-based family therapy to facilitate the exploration and resolution of childhood trauma: (a) The social worker/therapist be the source of attachment security. (b) As pockets of safety emerge, the social worker deepens intervention with the parent-child dyad by moving to mildly stressful themes and facilitates intersubjectivity exploration. (c) Primary intersubjectivity is established and the social worker moves to secondary subjectivity. (d) Co-regulating the affect associated with the event in the sessions. (e) Child is no longer dysregulating in shame or terror and is co-creating new meaning of the traumatic event. (f) Child is able to integrate the event into his or her autobiographical narrative. (g) The event is assimilated into a coherent narrative.
Life Story Work Life story work is an established social work approach with roots in practice with children and reminiscence work with elderly clients. Social workers have done life story intervention with children in out-of- home care, providing them with a factual narrative of their lives about significant events in their lives, and significant people in their lives. This helps children formulate a coherent narrative that provides integration and a sense of settlement as they embark on the next stage in their life. The child’s voice is a key focus in life story work, which attempts to answer the “what, when and why” questions about the child’s life experiences in a gentle and creative manner. This approach allows the child to “unravel confusion and discard negative emotional baggage” (Conner et al 1985) cited in Rose (2012). Rose shares that the life story therapy also consolidates the strengths and triumphs of the child in the face of adversity.
Expressive Therapy Expressive therapy is a psychodynamic approach which utilizes a blend of expressive personal growth and counseling methods (Pearson and Wilson 2001). The intervention focuses on emotional healing and involves a range of experiential approaches including sandplay and symbols work. The aim is to help children develop inner-life skills and access enhanced resilience. Each task in this activity-based approach supports integration of body, mind, and feelings, and activates innate healing potential. Expressive therapy is a client-centered, strengthsbased approach and assumes an invitational stance.
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Preventative Interventions Marsac et al. (2014) discuss early interventions to prevent PTSS or PTSD in children exposed to potentially traumatic events. They discuss a range of skills taught at an early stage after traumatic events. Early interventions aimed at increasing efficacy in survivors, focus on building problem-solving skills, promoting positive activities, managing reactions, promoting helpful thinking, and rebuilding healthy connections. Pharmacologic interventions have been used in clinical trials with adults and now more with youth to prevent PTSD after a physical injury. Morphine was the first medication shown to be effective in preventing PTSD in youths and children in hospitals after an acute burn injury.
Nine Practice Guidelines for Working with Traumatized Children and Youth Nine principles, drawn from literature and from the authors’ social work practice with traumatized child and youth in Singapore, Australia, and America, are (a) ensuring safety and creating a safe environment; (b) teaching children and youth about emotional literacy and emotional regulation; (c) giving back control and pacing; (d) preparing children and youth for critical transitions in their lives and giving them a voice; (e) increasing their support system and including their significant others in the intervention; (f) actively deploying resources and anchors; (g) ensuring predictability and structure, continuity, and repetitiveness; (h) designing trauma response plan with the child or the youth; and (i) consolidating coherent and honest narratives of the children’s lives with them and their significant others.
Practice Principle 1: Ensuring Safety and Creating a Safe Environment Safety is always first in trauma-informed interventions (Herman 2001). Rothschild (2000) highlights that resolving trauma could mean releasing defenses. If the current living environment is unsafe, children and youth will not be ready for trauma work. Social workers have an ethical responsibility to work in a safe manner with vulnerable children and youth. Safety ranks as the most basic need in Maslow’s hierarchy of needs. Without safety, there can be no recovery. In the Child Safety Commission’s publication, From Isolation to Connection (2009), the spiral of healing framework is shared with clients, and safety is reinforced by ensuring that abuse, neglect, and other traumatizing events have stopped. Children may rate their sense of safety differently for different people in their lives and in different contexts, such as the home, the foster care and residential placement, and the school. This
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creates the need to invite children to share their varied ratings of their felt sense of safety. Fisher (1999) warns that if the social worker listens empathically to the patient’s account of a flashback, they may risk worsening their intrusive symptoms. Retelling one’s story can be re-traumatizing for clients if safety has not been established. Protective interrupting of the intrusive thoughts and flashbacks is needed. Social workers should be attuned to physical signals of autonomic system arousal transmitted by the client’s bodily responses and tone of voice. When a client turns pale, breathes rapidly or hyperventilates, has dilated pupils, is shivering or expresses that he or she is cold, his or her sympathetic nervous system is aroused. Presence of such symptoms should indicate to the social worker the need to calm the client down first. Grounding and centering skills are imparted during safety stage to help children and youth be connected to the present moment. Grounding can be in different forms such as placing one’s feet to the ground firmly and breathing deeply. Touching items from nature such as a stone or grass can be grounding as with the kinesthetic activities such as gardening, swimming, and cooking. It is important to identify the ones that resonate with the child or youth.
Practice Principle 2: Teaching Children and Youth About Emotional Literacy and Emotional Regulation Neurobiology and somatics are important in trauma intervention. Traumatic stress can impact the child’s emotional ability to identify and express core emotions. Perry (2012) shares that for someone who is traumatized, the brain is set with associations that are like landmines. Stress or distress resulting from triggers can result in changes to cognition, affect, behavior, neurophysiology, and physiology. Co-regulation ensures that the child’s amygdala is not triggered. Co-regulation empowers the primary caregiver to help children learn to manage their own arousal and the intensified emotions (Van Der Kolk 1994). Matching tone, rhythm, and sound and matching intensity (Hughes 2007) is also helpful in this process. The children or youths’ learnt behavior and response to trigger is like an established highway route. The new behavior response to trigger, learnt during intervention, needs repeating and re-testing for it to become an established response. It thus takes time for these new behaviors to embed and new routes of behavioral responses to form. As part of psycho-education for children and youth around emotional literacy, affect identification is paramount. For instance, using the thermometer picture to ask children to indicate their intensity of feelings can help with affect and emotional regulation. For youth, helping them chart their behavioral responses to various emotions can be extremely helpful. Somatically, teaching children and youth a range of balance and muscle strengthening exercises helps to build containment measures. This could reduce hypervigilance and managing hyperarousal states.
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Practice Principle 3: Giving Back Control and Pacing As part of establishing safety, social workers should avoid having children access their trauma memories prematurely because such premature recollections could trigger flashbacks. Trauma results in loss of control for children and youth. As such, the focus is on helping them gain back control by making decisions, starting with simple ones such as choosing what colors to use or where they would like to sit in sessions. Pacing allows social workers to titrate the intervention while paying attention to the somatic responses of the children. Levine (2008) writes that a key principle in renegotiating trauma in children is to allow the child or youth to “control the pace of the game.” The social worker needs to respect children’s wishes and never compel them to do what is not within their ability and willingness. For youth, exercising control can be part of identity development. Adults can expect that teens might resist adult intervention as a way of asserting and maintaining control (Fahlberg 2012). Nevertheless, social workers and other adults need to ensure that youths are supervised for their safety.
Practice Principle 4: Preparing Children and Youth for Critical Transitions in Their Lives and Giving Them a Voice Children face many critical transitions, and social workers can help them negotiate these transitions in a meaningful way. Some examples of transitions include being brought into statutory care from birth family, a sudden death of a family member, loss due to incarceration, sudden homelessness, or coming out to family around their sexuality. Children and youth feel deeply about these transitions. Some of these transitions can be traumatic for them if they have insufficient resources for coping. Social workers need to facilitate safe space for the children to express their feelings. The flooding of emotions may result in dysregulation or behavioral and psychosomatic symptoms. Preparing children for transitions with significant support network people in their lives helps mitigate sense of overwhelm and maladaptive behaviors. The effects of “repeated transition” can be “profound” on children or youth, as each transition “always brings some type of loss” (Department of Safety 2006, p. 1). Minimizing the number of changes for a child is necessary and keeping some aspects of their lives constant is essential. Youth transitioning from care to community are often at a disadvantage compared to their peers. They are more likely to be unemployed or underemployed, less likely to further their education, more likely to have lower incomes and greater financial problems, and more likely to suffer from social and mental health problems (Forbes et al. 2006). They are less likely to seek assistance independently and need a support system to facilitate their connection with needed services to meet their care needs. The authors propose a model of transition for children moving from one placement to another to guide the social worker in their intervention work with children
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and their caregivers pre-, during, and post-transition (Annex A). The model also outlines interventions to use at each stage to facilitate transitions effectively.
Practice Principle 5: Increasing Their Support System and Including Their Significant Others in the Intervention Peter Levine (2008) shares that “trauma is about loss of connection to ourselves, to our bodies, to our families, to others and to the world around us.” Connection is a key principle in trauma-informed care (National Child Traumatic Stress Network 2013). Quality care and strong support trigger release of oxytocin and keep the amygdala from activating the fear/stress/defense systems (Hughes 2007). Hughes (2007) in facilitating developmental attachment highlights how the involved parent or caregiver creates depth and greater meaning to the therapeutic process. The intervention emphasizes and focuses on emotional attunement and empathy. Attachment-based family therapy (ABFT) is conducted based on the belief that strong relationships within families can buffer against the risk of adolescent depression or suicide and help in the recovery process. Attachment theory posits that when parents and caregivers are responsive and protective, children develop a healthy sense of self, trust in others, better capacity for independence, and affect regulation. Some children have no attachment or disrupted attachment with their primary caregivers due to abuse or desertion. Significant others and support network is essential and focused in practice approaches used in child protection such as Signs of Safety, Partnering for Safety, as well as Protective Behaviors. “Constructive working relationships” among family members, and between the professional network, are “the heart and soul of effective practice” in working with children and youth who have suffered abuse (Department for Child Protection 2011). The Signs of Safety framework paper in Western Australian child protection points to the fact that best outcomes for vulnerable children arise when constructive relationships exist in both these arenas. The rationale behind “involving an informed naturally occurring network around the family” is to “break the secrecy and shame” that are common in child abuse or youth abuse cases. Interpersonal positive relationships are resources for a traumatized children or youth. Connection and help-seeking and a steady network of trusted adults can help traumatized children and youth feel settled and assured.
Practice Principle 6: Actively Deploying Resources and Anchors Resources can be “anything that helps you feel better” (Miller-Karas 2015). It can be from past or present life. A resource makes the individual feel peace, calm, comfort, happiness, relief, and well-being. Resourcing the child or youth is
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important and involves tracking what the resourcing does to regulate and calm the body. Anchors are specialized resources that integrate Levine’s SIBAM (Sensation, Image, Behavior, Affect, and Meaning) elements and concrete observable resources that can be tapped on during trauma work as a “good braking tool with any trauma therapy” and prevents arousal level from being “out of control” (Rothschild 2003). Annex B outlines the five types of resources: practical, physical, psychological, interpersonal, and spiritual that social workers can help their clients identify during intervention. Tapping on their resources and anchors can also help with regulation.
Practice Principle 7: Ensuring Predictability and Structure, Continuity, and Repetitiveness Children or youth’s exposure to traumatic events “overwhelms their usual adaptation in everyday life” (Herman 2001). As such, one goal for supporting children and youth after a traumatic event is to ensure predictability, structure, and continuity to daily life. It is important that the child and youth resume their previous routine and rituals as soon as possible. If the child or youth needs to adapt to new routines, they should be preempted. There also needs to be consistency in these new routines for a period of time. Skuse and Mathew (2014) reinforce the need for structure and routine in the trauma recovery intervention where the child presents behavior that is “instable and chaotic.” Perry (2012) shares how plasticity is not uniform in all parts of the brain and that the lower parts such as the brainstem are harder to change as it protects itself from too much changes. There is a need for more repetitions of positive behaviors to effect the needed change. He suggests the use of repetitive rhythmic activities such as poetry and songs which can be soothing to children. Structure and consistency by the professionals and the caregivers is important (Child Safety Commission 2009). Traumatized children sometimes have little internal structure and, therefore, need firm boundaries, rules, expectations, and consequences. Professionals create safety by being reliable and consistent, being firm but nonpunitive, and ensuring good boundaries between caregivers and children and youths. Helping children and youths recognize who are the safe and unsafe people around them, and respecting their personal spaces and choices help them to have a sense of predictability. Intervention by the social worker in the various ecosystems of the child includes building daily routines; talking to parents/caregivers on house rules and structure; building in support and resources during transition time (e.g., waking up and bedtime); talking to the school and ensuring calmer classroom responses; and setting up rituals for the child or the youth such as prayer times as a family, sleep rituals, and one-on-one carer-child time. Repetitive expressive therapies and play can be helpful for the child. Many children who are introduced to sandplay and other play mediums do engage in repetitive play until they achieve mastery over the situation in their play.
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Practice Principle 8: Designing Trauma Response Plan with the Child or the Youth The plan should be clearly explained to the child when he/she is calm. Children can also be actively involved in developing the plan as it would give them a sense of control and predictability. They can be given a written copy (using words and/or pictures) of the plan. This will be useful as initially, it may be difficult for them to remember the plan when distressed. To facilitate the implementation of this plan, the school and carers should keep each other informed of changes so that both can be supportive of the implementation of the plan. The trauma-informed plan could be organized in the following subsections: (a) Identified presenting issue. (b) Identified behavior. (c) List of possible triggers and signs that situation is escalating. (d) Location of intervention. (e) Goal of intervention. (f) Who would the child like support from? (g) Words and actions to use to regulate and de-escalate. (h) Words and actions to avoid. (i) Child’s resources and special interest activities. (j) Follow-up action. (k) Evaluation and review date.
Practice Principle 9: Consolidating Coherent and Honest Narratives of the Children’s Lives with Them and Their Significant Others Children and youth who have experienced trauma may have fragmented memories of their lives (Rose 2005). If they have had multiple moves and disruptions in attachment and connection, it becomes even more difficult for children to develop a strong sense of self and for them to understand how the past influences their present behavior (Fahlberg 2012). Rose (2012) shares that storytelling and narrative sharing reminds children and youth of where they belong. He describes life story work process as “a powerful, regulating, anchoring, reassuring, rewarding neurophysiological effect.” Through intensive research into the child’s past, life story work enables the child to understand what has happened, when and where they have lived, who has cared for them, and most importantly decisions that have impacted on their lives. Sometimes, adults might hold back from sharing information about the past with children or youth, and thus suggesting that the past is too much to cope with or something to be ashamed of. The premise of this intervention is that no matter how traumatizing past experiences were, the child has lived through them and survived, and so can live with the truth. “Truth can be presented in a harmful way that lowers the child’s self-esteem or in a way that helps the child to understand and accept his
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past and thus raise his self-esteem” (Rose 2005). Children need to be consulted in the process to give voice to their experiences and allow alternative identity consolidation. Critical to life story work is the involvement of significant others. An important consideration for the social worker is the stage of trauma work in which this intervention is done. Life story work is done in the trauma narrative stage or integration stage. This should not be done in the safety stage as it could destabilize the child or teen further. Resources and anchors need to be established first so that the child can go to his/her safe space or engage in resourcing activities when the trauma material gets tough. The child needs to have a lot of control in this process and the social worker needs to titrate the pacing of the child for the intervention to be effective and healing.
Challenges in Developing Trauma-Informed Systems Researchers and practitioners have identified multiple challenges in implementing and sustaining TI practices in child-serving systems (Hanson and Lang 2016). Professionals across the different systems lack clarity on how to operationalize TI care (Branson et al. 2017; Donisch et al. 2016). Systems experience high staff turnover (Bartlett et al. 2016), heavy caseloads, limited resources (Kramer et al. 2013), and insufficient evaluation of TI initiatives (Hanson and Lang, 2016). Workers hesitate to conduct trauma-impact assessments with children (Kerns et al. 2016), receive insufficient training in implementing TI practices (Donisch et al. 2016), lack access to trauma assessment tools and evidence-based treatments (Donisch et al. 2016; Kramer et al. 2013), and, when trained, are no more likely to refer children to evidence-based treatments than untrained workers (Dorsey et al. 2012). The field urgently needs research that will determine whether identified children actually receive trauma-specific treatments, and whether assessment and treatment result in improved child outcomes (Berliner and Kolko 2016). The lack of universal routine screening of children entering service systems means that many traumatized youth go unidentified. Even if there is routine screening, children and youth may be in a state of shock when they enter the care system and may not be exhibiting trauma symptoms at that point of screening. They may be assessed as not needing trauma interventions. Trauma symptoms surface for some children and youth once they are in a safe and settled placement. Close communication between caregivers and professionals is essential so that children and youth can access trauma interventions at any point in time. Embedding trauma-informed care in any system requires a good analysis of the implementation fidelity. Carroll et al. (2007) discuss implementation science and the need for implementation fidelity to be measured using the five elements: adherence to intervention, dosage, quantity of delivery, participants’ responsiveness, and program differentiation to establish essential components. Ensuring traumainformed care delivery fidelity can help link client outcomes to intervention. This
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can help justify continuation or expansion of trauma-informed care as a modality in a system.
Tuning in to the Impact of Trauma Work on the Social Worker The Self of the Worker Trauma recovery work with children and adolescents can have an emotional, physical, and social impact on the social workers. It is therefore important that social workers working with this special population have strategies to maintain their own mental health and well-being. “It is the painful stories of the . . .child that can hurt the adult working with them” (Child Safety Commission 2009). Clear boundaries, consistent boundaries, and self-care enhance social workers’ ability to be “empathetic, compassionate and helpful” (Rothschild and Rand 2006). Another crucial aspect in trauma work is the social worker’s values and beliefs. If the social worker believes that health is bigger than trauma, the social worker will work toward healing and growth with persistence and confidence and will build on the positive health and functioning of the child or the youth. It is with this belief that social workers will approach their own self-care by focusing on the physical, social, emotional, and psychological health by resourcing self adequately. Dyregrov (2010) explains why trauma work can be exhausting. Social workers in the helping profession have a lot of empathy and strong sense of social justice to help vulnerable populations. Children and youth can be helpless and innocent and when they become the subject of serious harm and even fatality, it can make the social worker feel life is unfair and might threaten the social worker’s perception of a safe world. Dyregrov postulates that this can contribute to feelings of helplessness, fear, anxiety, anger, and irritability as well as intrusive images and thoughts from secondary traumatization.
Preventing Vicarious Trauma, Secondary Traumatic Stress, and Burnout Rothschild and Rand (2006) outlines four areas of risks faced by professionals regularly working with clients who have been traumatized. The four areas are vicarious traumatization (Terr 1985), secondary traumatization (Stamm 1995), compassion fatigue (Figley 1995), and burnout. Vicarious trauma refers to changes in the social worker’s inner experience, beliefs, and thoughts resulting from long-term exposure and empathetic engagement with traumatized clients. Secondary traumatic stress occurs when the social worker listens to the abuse or traumatic experiences of children and youth and experiences an emotional toll, such as PTSD symptoms. Compassion fatigue is related to the change in cognitive schema of the social worker therapist and exhaustion from being in the helping profession.
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Burnout refers to emotional exhaustion and depersonalization and reduced sense of personal accomplishment. It is also seen to be caused by context of work such as workload, interpersonal issues and non-supportive organizational culture. Poor physical health, work avoidance, and negative outlook on life are symptoms of burnout. Reflection, regulation, relaxation, and participating in a care team approach can help mitigate the stress faced by professionals (Child Safety Commission 2009). The use of the social worker’s “brakes” are helpful in “reducing in-session hyperarousal” and “protecting against the direct impact” of traumatic “client material” (Rothschild and Rand 2006). The main goal of applying the brakes in therapy session is for the social worker to become calmer and think with clarity. This would require the social worker to be aware of his or her autonomic nervous system responses and arousal patterns and apply the brakes when the arousal goes beyond the optimal range. Social workers need to self-regulate in order to regulate others.
Reflective Supervision Supervision is essential for social workers working with traumatized children or youth. Supervision builds competent and confident social workers and ensures good client outcomes and service standards. Supervision provides a space to talk about the needed “emotional distancing” and boundary-setting that helps the social worker not be overwhelmed (Dyregrov 2010). In supervision, rituals can be established to help for the social worker to disconnect from work and have clear boundaries as they transition from work to home. When multiple social workers have been impacted by the same incident, critical incident stress debriefing can also be done in a group supervision session. In supervision is also when the social worker can take stock of their anchors using SIBAM concepts and discuss ways to recharge self. Supervision also allows for the celebration of small successes and movement towards healing in child or youth clients. Dyregrov shares that inputs from team feedback on “practical aspects of the work” and “recognition and praise from others help raise morale.” Supervision is also a helpful space to look at social workers’ personal growth and glean insights and integrate them through appreciative inquiry.
Self-Care The steady grounding of self and having strong resources and anchors helps the social worker working with traumatized children and youth be able to support them and contribute to positive adult outcomes. Dyregrov (2010) also reinforces the need for the social worker’s self-care and suggests that relaxation techniques, leaving the situation, and seeking social support from family and friends can help in managing
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“cumulative stress” of the helper. Rath (2015) discusses keys to energizing work and life and describes how connection and positive interactions boost oxytocin levels and open up the prefrontal cortex and allow for expanding thought and increase ability to “trust others.” Social work practice with traumatized children and youth can be challenging while being rewarding and meaningful. It is important that social workers and their organizations have sound strategies to ensure that they can recharge and become increasingly competent in working with this vulnerable yet resilient client group.
Conclusion The building of TI service delivery systems for children, youth, and families, and the dissemination of trauma-specific treatments, require continuous, long-term, neverending efforts by policy makers, funders, administrators, clinicians, parents, and community advocates. Given the vast and persistent disparities in the United States, in health, wealth, and income, access to basic resources and life options, and institutional treatment, based on race, socioeconomic status, and other social identities, the realization of universal trauma-informed systems and the elimination of the treatment gap are aspirational goals. Troubling is that half of the US children with a mental health disorder are not receiving necessary treatment, with gaps in treatment varying widely among the states (Whitney and Peterson 2019). In Singapore context, children and youth statutory services as well as medical and social service sector professionals are steadily building competency, frameworks, and infrastructure to contribute to a sound TI service delivery for the clients and TI organizational culture for professionals. Existing research suggests needs for further consensus on the meaning of “TI approaches,” and implementation and impact studies to identify organizational- and systems-level components and the conditions necessary for integrating and sustaining TI approaches (Melz et al. 2019). Multiple barriers exist in implementing TI approaches and disseminating evidence-based treatments. However, systems are changing and the use of trauma-specific interventions is expanding. We can draw inspiration from the resilience of children, youth, and families affected by traumatic events, and the countless professionals, paraprofessionals, parents, and other community members involved in creating TI service delivery systems and actively disseminating TI approaches.
Cross-References ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Theories on Mental Health, Illness and Intervention
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Annex A A working transition model for child(ren) with planned placement changes Pre-move stage
Post-move stage
Actual move
C
Yoges Munisamy (2011)
Transition time frame Decision is made about transition
Crucial closure with previous carer and family Pick up of child by new carer
Meeng between old and new carers Case Manager, Carer support worker and Transion worker
Child Session 1 Explain move with houses puppets
Collation of routine, eating, likes dislikes, regulation methods, behaviour Making a joint transition plan that is well-paced for child ..not carer’s timeline only Discuss contact
Child Session 2 Bear cards to talk about feelings and transition plan -calendar Goodbye plan
Work with carers on their loss and grief Document what he/she /they have given to this child. Joint memories New carers’ dreams & expectations Observation of child @ visits with new carer
Child Session 3 Collage-by child /joint piece with carer Photos of critical symbols in house
1 month Review Meeng with new carers , Case manager, Carer support worker and Transion worker
Child Session 4 Actual move Name emotions facilitate transition Thank you and affirmation
Joint collage Transition object School goodbye A meaningful closure plan that is significant for the child and carer and other family members Discussion with new carer on trauma
Support to new carer Impact on old carers and the children left behind Ensure contact is occurring where possible and assessed to be helpful document in care plan
Child Session 5 Joint session with new carer and child to talk about the move
Review of how the month has been.. How has the attachment development been ? PACE process (Playful, Acceptance, Curiosity and Empathy
Annex B Self-care for the social worker: Resource Categories Resource type
Present
What are they?
Not present and can be developed
Practical
hysical Physical
sychological Psychological
nterpersonal Interpersonal
piritual Spiritual
Developed by Yogeswari Munisamy from content from Babee Rothschild’s Somac Trauma therapy training in Cambridge, UK (2016)
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References Akin BA, Strolin-Goltzman J, Collins-Camargo C (2017) Successes and challenges in developing trauma-informed child welfare systems: a real-world case study of exploration and initial implementation. Child Youth Serv Rev 82:42–52. https://doi.org/10.1016/j. childyouth.2017.09.007 Alisic E, Zalta AK, Larsen SE et al (2014) Rates of post-traumatic stress disorder in trauma-exposed children and adolescents: meta-analysis. Br J Psychiatry 204:335–340. https://doi.org/10.1192/ bjp.bp.113.131227 American Academy of Pediatrics (2014) Trauma toolbox for primary care. https://www.aap.org/enus/advocacy-and-policy/aap-health-initiatives/healthy-foster-care-america/Pages/TraumaGuide.aspx. Accessed 7 Aug 2017 American Psychiatric Association (2014) Diagnostic and statistical manual of mental disorders, 5th edn. American Psychiatric Publishing, Arlington Attorney General’s National Task Force on Children Exposed to Violence (2012) Report of the Attorney General’s National Task Force on Children Exposed to Violence. Office of Juvenile Justice and Delinquency Prevention, Office of Justice Programs, U.S. Department of Justice. https://www.justice.gov/defendingchildhood/cev-rpt-full.pdf. Accessed 10 July 2017 Azeem MW, Reddy B, Wudarsky M et al (2015) Restraint reduction at a pediatric psychiatric hospital: a ten-year journey. J Child Adolesc Psychiatr Nurs 28(4):180–184. https://doi.org/ 10.1111/jcap.12127 Bartlett JD, Barto B, Griffin JL et al (2016) Trauma-informed care in the Massachusetts Child Trauma Project. Child Maltreat 21(2):101–112. https://doi.org/10.1177/1077559515615700 Berliner L, Kolko DJ (2016) Trauma informed care: a commentary and critique. Child Maltreat 21(2):168–172. https://doi.org/10.1177/1077559516643785 Blaustein ME, Kinniburg KM (2010) Treating traumatic stress in children and adolescents: how to foster resilence through attachemnt, self regulation and competency. The Guilford Press, Canada Bloom SL (2013) Creating sanctuary: toward the evolution of sane societies, 2nd edn. Routledge, New York Branson CE, Baetz CL, Horwitz SM et al (2017) Trauma-informed juvenile justice systems: a systematic review of definitions and core components. Psychol Trauma 9(6):635–646. https://doi.org/10.1037/tra0000255 Carroll C, Patterson M, Wood S et al (2007) A conceptual framework for implementation fidelity. Implement Sci 2(40):1–9. https://doi.org/10.1186/1748-5908-2-40 Center for Pediatric Traumatic Stress, The Children’s Hospital of Philadelphia (2015) Working with children and families experiencing medical traumatic stress: a resource guide for mental health professionals. The Center for Pediatric Traumatic Stress, The Children’s Hospital of Philadelphia. https://www.healthcaretoolbox.org/. Accessed 5 May 2017 Center on the Developing Child, Harvard University (2016) From best practices to breakthrough impacts: a science-based approach to building a more promising future for young children and families. http://www.developingchild.harvard.edu. Accessed 5 May 2017 Child Safety Commission (2009) From isolation to connection: A guide to understanding and working with traumatised children and young people. Melbourne, Victoria, Australia Child Welfare Information Gateway (2015) Developing a trauma-informed child welfare system. U.S. Department of Health and Human Services, Children’s Bureau. https://www.childwelfare. gov/pubPDFs/trauma_informed.pdf. Accessed 5 May 2017 Chng G, Lia D, Chua CM et al (2018) Family profiles of maltreated children in Singapore: a latent class analysis. Child Abuse Negl 79m:465–475. https://doi.org/10.1016/j.chiabu.2018. 02.029 Clervil R, Guarino K, DeCandia CJ et al (2013) Trauma-informed care for displaced populations: a guide for community-based service providers. The National Center on Family Homelessness, American Institutes for Research http://www.air.org/sites/default/files/downloads/report/ Trauma-informed-care-for-displaced-populations.pdf. Accessed 5 May 2017
306
Y. Munisamy and D. E. Elze
Cohen JA, Mannarino AP, Iyengar S (2011) Community treatment of posttraumatic stress disorder for children exposed to intimate partner violence: a randomized controlled trial. Arch Pediatr Adolesc Med 165:16–21. https://doi.org/10.1001/archpediatrics.2010.247 Cole SF, Eisner A, Gregory M et al (2013) Creating and advocating for trauma-sensitive schools. Trauma and Learning Policy Initiative, Massachusetts Advocates for Children and Harvard Law School. https://traumasensitiveschools.org/wp-content/uploads/2013/11/HTCL-Vol-2-Creatingand-Advocating-for-TSS.pdf. Accessed 5 May 2017 De Bellis MD, Zisk A (2014) The biological effects of childhood trauma. Child Adolesc Psychiatr Clin N Am 23(2):185–222. https://doi.org/10.1016/j.chc.2014.01.002 DeCandia CJ, Guarino K, Clervil R (2014) Trauma-informed care and trauma-specific services: a comprehensive approach to trauma intervention. American Institutes for Research. http:// www.air.org/sites/default/files/downloads/report/Trauma-informed%20Care%20White% 20Paper_October%202014.pdf. Accessed 5 May 2017 Denton R, Frogley C, Jackson S et al (2017) The assessment of developmental trauma in children and adolescents: a systematic review. Clin Child Psychol Psychiatry 22(2):260–287. https://doi. org/10.1177/1359104516631607 Department for Child Protection (2011) 2nd edition. Government of Western Australia. The signs of safety child protection practice framework. https://www.dcp.wa.gov.au/Resources/Documents/Pol icies%20and%20Frameworks/SignsOfSafetyFramework2011.pdf. Retrieved 1 June 2018 Department of Child Safety (2006) Practice paper: Supporting children and young people in care through transitions. Queensland government Donisch K, Bray C, Gewirtz A (2016) Child welfare, juvenile justice, mental health, and education providers’ conceptualizations of trauma-informed practice. Child Maltreat 21(2):125–134. https://doi.org/10.1177/1077559516633304 Dorsey S, Kerns SEU, Trupin EW et al (2012) Child welfare caseworkers as service brokers for youth in foster care: findings from project focus. Child Maltreat 17(1):22–31. https://doi.org/ 10.1177/1077559511429593 Dyregrov A (2010) Supporting traumatized children and teenagers: a guide to providing understanding and help. Jessica Kinsley Publishers, London Fahlberg V (2012) A child’s journey through placement. Jessica Kingsley Publishers, Philadelphia Figley CR (1995) Compassion fatigue: coping with secondary traumatic stress disorder in those who treat the traumatized. Brunner/Mazel, New York Fisher J (1999) The work of stabilization in trauma. The Trauma Center at HRI, Boston, Paper presented at The Trauma Center Lecture Series 1999 Forbes C, Inder B, Raman S (2006) Measuring the cost of leaving care in Victoria. Child Aust 31(3):26–33 Ford JD, Chapman JF, Hawke J, Albert D (2007) Trauma among youth in the juvenile justice system: critical issues and new directions. Delmar, NY: National Center for Mental Health and Juvenile Justice. https://www.ncmhjj.com/wp-content/uploads/2013/10/2007_Trauma-AmongYouth-in-the-Juvenile-Justice-System.pdf. Accessed 10 July 2017 Guarino K, Soeares P, Konnath K et al (2009) Trauma-informed organizational toolkit for homeless services. Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, The National Center on Family Homelessness http://www.air.org/sites/default/ files/downloads/report/TraumaInformed_Organizational_Toolkit_0.pdf. Accessed 5 May 2017 Hanson RF, Lang J (2016) A critical look at trauma-informed care among agencies and systems serving maltreated youth and their families. Child Maltreat 21(2):95–100. https://doi.org/ 10.1177/1077559516635274 Hein TC, Monk CS (2017) Research review: neural response to threat in children, adolescents, and adults after child maltreatment – a quantitative meta-analysis. J Am Acad Child Adolesc Psychiatry 58(3):222–230. https://doi.org/10.1111/jcpp.12651 Herman J (2001) Trauma and Recovery:From Domestic Abuse to Political Terror. London: Pandora Henry J, Richardson M, Black-Pond C (2011) A grassroots prototype for trauma-informed child welfare system change. Child Welfare 90(6):169–186
14
Trauma-Informed Social Work Practice with Children and Youth
307
Hiller RM, Meiser-Stedman R, Fearson P et al (2016) Research review: changes in the prevalence and symptom severity of child post-traumatic stress disorder in the year following trauma – a meta-analytic study. J Child Psychol Psychiatry 57(8):884–898. https://doi.org/10.1111/ jcpp.12566 Huckshorn KA (2006) Six core strategies for reducing seclusion and restraint use. National Technical Assistance Center, National Association of State Mental Health Program Directors. https://www.nasmhpd.org/sites/default/files/Consolidated%20Six%20Core%20Strategies% 20Document.pdf. Accessed 5 May 2017 Hughes D (2007) Attachment-focussed family therapy. Norton and Company, New York International Association of Chiefs of Police and Yale Child Study Center (2017) Enhancing police responses to children exposed to violence: a toolkit for law enforcement. Office of Juvenile Justice and Delinquency Prevention, Office of Justice Programs, U.S. Department of Justice http://www.theiacp.org/Portals/0/documents/pdfs/CEVToolkitOnlineVersion.pdf. Accessed 4 Sep 2017 Jennings A (2008) Models for developing trauma-informed behavioral health systems and traumaspecific services: 2008 update. National Center for Trauma Informed Care, Center for Mental Health Services. http://www.theannainstitute.org/MDT.pdf. Accessed 5 May 2017 Keeshin BR, Strawn JR (2014) Psychological and phramacological treatment of youth with posttraumatic stress disorder: an evidence-based review. Child Adolesc Psychiatric Clin N AM 23:399–411. https://doi.org/10.1016/j.chc.2013.12.002 Kerns SEU, Pullmann MD, Negrete A et al (2016) Development and implementation of a child welfare workforce strategy to build a trauma-informed system of support for foster care. Child Maltreat 21(2):135–146. https://doi.org/10.1177/1077559516633307 Kliethermes M, Schacht M, Drewry K (2014) Complex trauma. Child Adolesc Psychiatr Clin N Am 23:339–361. https://doi.org/10.1016/j.chc.2013.12.009 Ko SJ, Ford JD, Kassam-Adam N et al (2008) Creating trauma-informed systems: child welfare, education, first responders, health care, juvenile justice. Prof Psychol Res Pract 39(4):396–404. https://doi.org/10.1037/0735-7028.39.4.396 Kramer TL, Sigel BA, Conners-Burrow NA et al (2013) A statewide introduction of traumainformed care in a child welfare system. Child Youth Serv Rev 35:19–24. https://doi.org/ 10.1016/j.childyouth.2012.10.014 Layne CM, Saltzman WR, Poppleton L, Burlingame GM, Pasalic A, Durakovic E, Pynoos RS (2008) Effectiveness of a school based group psychotherapy programme for war-exposed adolescents: A randomised controlled trial. J AM Acad Child Psy 47:1048–1062 LeBel J, Huckshron KA, Caldwell B (2010) Restraint use in residential programs: why are best practices ignored? Child Welfare 89(2):169–187 Levine P (2008) Healing trauma: a pioneering program for restoring the wisdom of the body. Sounds True, Colorado Liu D, Chu M, Hong Neo L et al (2016) Multiple trauma exposure and psychosocial functioning in Singaporean children in out-of-home care. Psychol Trauma Theory Res Pract Policy 8(4):431–438. https://doi.org/10.1037/tra0000098 Marsac ML, Donlon K, Berkowitz S (2014) Indicated and selective prevention interventions. Child Adolesc Psychiatr Clin N Am 23:383–397. https://doi.org/10.1016/j.chc2013.12.001 Marsac ML, Kassam-Adams N, Hildenbrand AK (2016) Implementing a trauma-informed approach in pediatric healthcare networks. JAMA Pediatr 170(1):70–77. https://doi.org/ 10.1001/jamapediatrics.201.2206 Marsh SC, Dierkhising CB, Decker KB et al (2015) Preparing for a trauma consultation in your juvenile and family courts. National Council of Juvenile and Family Court Judges. https://www. ncjfcj.org/sites/default/files/NCJFCJ_Trauma_Manual_04.03.15.pdf. Accessed 5 May 2017 McInerney M, McKlindon A (2014) Unlocking the door to learning: trauma-informed classrooms & transformational schools. Education Law Center. https://www.elc-pa.org/wp-content/ uploads/2015/06/Trauma-Informed-in-Schools-Classrooms-FINAL-December2014-2.pdf. Accessed 5 May 2017
308
Y. Munisamy and D. E. Elze
McLaughlin KA, Sheridan MA, Tibu F et al (2015) Causal effects of the early caregiving environment on development of stress response systems in children. Proc Natl Acad Sci U S A 112(18):5637–5642. https://doi.org/10.1073/pnas.1423363112 Melz H, Morrison C, Ingoldsby E, Cairone K, Mackrain M (2019) Review of trauma-informed initiatives at the systems level. Submitted to Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services (Contract Number: HHSP2332015001331). https://aspe.hhs.gov/system/files/pdf/262051/TI_Approaches_Research_ Review.pdf Accessed 15 Nov 2019 Miller-Graff LE, Howell KH (2015) Posttraumatic stress symptom trajectories among children exposed to violence. J Trauma Stress 28:17–24. https://doi.org/10.1002/jts.21989 Miller-Karas E (2015) Building resilience to trauma: the trauma and community resiliency models. Routledge, New York Mitchell R, Brennan K, Curran D et al (2017) A meta-analysis of the association between appraisals of trauma and posttraumatic stress in children and adolescents. J Trauma Stress 30:88–93. https://doi.org/10.1002/jts.22157 Murphey D (2016) Moving beyond trauma: child migrants and refugees in the United States. Child Trends. https://childtrends-ciw49tixgw5lbab.stackpathdns.com/wp-content/uploads/2016/09/ Moving-Beyond-Trauma-Report-FINAL.pdf. Accessed 10 Jul 2017 National Child Traumatic Stress Network (2007) Creating trauma-informed child-serving systems. http://www.nctsnet.org/nctsn_assets/pdfs/Service_Systems_Brief_v1_v1.pdf. Accessed 5 May 2017 National Child Traumatic Stress Network (2008) Child trauma toolkit for educators. National Center for Child Traumatic Stress. https://wmich.edu/sites/default/files/attachments/u57/2013/ child-trauma-toolkit.pdf. Accessed 5 May 2017 National Child Traumatic Stress Network (2013) Child welfare trauma training toolkit, 3rd edn. http://www.nctsn.org/products/child-welfare-trauma-training-toolkit-2008. Accessed 5 May 2017 National Child Traumatic Stress Network Medical Traumatic Stress Working Group (2004) Pediatric medical traumatic stress toolkit. http://www.nctsn.org/sites/default/files/assets/pdfs/ TMBrochure.pdf. Accessed 5 May 2017 O’Grady K (2017 January-February) Transforming schools with trauma-informed care. American School Counselor Association. https://www.schoolcounselor.org/asca/media/asca/ASCAU/ Trauma-Crisis-Management-Specialist/TransformingSchools.pdf. Accessed 5 May 2017 Office of the Special Representative of the Secretary-General for Children and Armed Conflict (2013) Working paper no. 1: the six grave violations against children during armed conflict: the legal foundation. United Nations. https://childrenandarmedconflict.un.org/publications/ WorkingPaper1_SixGraveViolationsLegalFoundation.pdf. Accessed 10 Jul 2017 Ong J (2018, November 25) As child abuse reports rise, Singapore agencies shore up protection efforts. https://www.channelnewsasia.com/news/singapore/child-abuse-singapore-msf-biglove-aware. Accessed 25 Nov 2018 Pearson M, Wilson H (2001) Sandplay and symbol work. Emotional healing and personal development with children, adolescents and adults. ACER Press, Melbourne, Victoria, Australia Perry B (2012) Childhood trauma : A neuroscience approach to healing and recovery. Reading material presented at Dr Bruce Perry Speaking Tour in Perth, Western Australia. Price J, Kassam-Adams N, Alderfer MA et al (2016) Systematic review: a reevaluation and update of the integrative (trajectory) model of pediatric medical traumatic stress. J Pediatr Psychol 41(1):86–97. https://doi.org/10.1093/jpepsy/jsv074 Rath T (2015) Are you fully charged: the 3 keys to energizing your work and life. Silicon Guild, Arlington, VA, USA Rose R, Philpot T (2005) The child’s own story: life story work with traumatized children. Jessica Kingsley Publishers: London and Philadelphia Rothschild B (2000) The body remembers: the psychophysiology of trauma and trauma treatment. Norton, New York
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Rothschild B (2003) The body remembers casebook: unifying methods and models in the treatment of Trauma and PTSD. Norton, New York Rothschild B, Rand M (2006) Help for the helper: selfcare strategies for managing burnout and stress. Norton, New York Rozzell L (2013) The role of family engagement in creating trauma-informed juvenile justice systems. National Center for Child Traumatic Stress. http://www.nctsn.org/sites/default/files/ assets/pdfs/jj_trauma_brief_familyengagement_rozzelll_final.pdf. Accessed 5 May 2017 Shern DL, Blanch AK, Steverman SM (2016) Toxic stress, behavioral health, and the next major era in public health. Am J Orthop 86(2):109–123. https://doi.org/10.1037/ort0000120 Silverman WK, Ortiz CD, Viswesvaran C, Burns BJ, Kolko DJ, Putnam FW, Amaya-Jackson L (2008) Evidence-based psychosocial treatments for children and adolescents exposed to traumatic events. J Clin Child Adolesc Psychol 37(1):156–183. https://doi.org/10.1080/15374410701818293 Skuse T, Mathew J (2014) The trauma recovery model: sequencing youth justice interventions for young people with complex needs. Prison Service J 220:15. https://www.crimeandjustice.org. uk/publications/psj. Accessed 10 Oct 2017 Stamm BH (1995) Secondary traumatic stress: selfcare issues for clinicians, researchers, and educators. Sidran Press, Baltimore Stark L, Landis D (2016) Violence against children in humanitarian settings: A literature review of population-based approaches. Soc Sci Med 152:125–137. https://doi.org/10.1016/j. socscimed.2016.01.052 Stoltenborgh M, Bakermans-Kranenburg MJ, Alink LRA et al (2015) The prevalence of child maltreatment across the globe: review of a series of meta-analyses. Child Abuse Rev 24:37–50. https://doi.org/10.1002/car.2353 Substance Abuse and Mental Health Services Administration (2014) SAMHSA’s concept of trauma and guidance for a trauma-informed approach. HHS Publication No. (SMA) 14-4884. Substance Abuse and Mental Health Services Administration. https://store.samhsa.gov/shin/content/ SMA14-4884/SMA14-4884.pdf. Accessed 5 May 2017 Terr LC (1985) Psychic trauma in childrena nd adolescents. Psychiatric Clinics of Noth america, 8(4):815–835 Trickey D, Siddaway AP, Meiser-Stedman R et al (2012) A meta- analysis of risk factors for posttraumatic stress disorder in children and adolescents. Clin Psychol Rev 32:122–138. https://doi. org/10.1016/j.cpr.2011.12.001 U.S. Interagency Council on Homelessness (2015) Opening doors: federal strategic plan to prevent and end homelessness. https://www.usich.gov/opening-doors. Accessed 5 May 2017 United Nations Children’s Fund (2016a) The state of the world’s children 2016: a fair chance for every child. https://www.unicef.org/publications/files/UNICEF_SOWC_2016.pdf. Accessed 7 Aug 2017 United Nations Children’s Fund (2016b) Uprooted: the growing crisis for refugee and migrant children. https://www.unicef.org/videoaudio/PDFs/Uprooted(1).pdf. Accessed 7 Aug 2017 United Nations Children’s Fund (2017a) Education uprooted: for every migrant, refugee and displaced child, education. The growing crisis for refugee and migrant children. https://www. unicef.org/media/files/Education_Uprooted_DIGITAL.pdf. Accessed 7 Aug 2017 United Nations Children’s Fund (2017b) Harrowing journeys: children and youth on the move across the Mediterranean Sea, at risk of trafficking and exploitation. https://www.unicef.org/ publications/files/Harrowing_Journeys_Children_and_youth_on_the_move_across_the_Medi terranean.pdf. Accessed 7 Aug 2017 United Nations, Department of Economic and Social Affairs, Population Division (2016) International migration report 2015: highlights (ST/ESA/SER.A/375). http://www.un.org/en/develop ment/desa/population/migration/publications/migrationreport/docs/MigrationReport2015_High lights.pdf. Accessed 7 Aug 2017 United Nations Office on Drugs and Crime (2016) Global report on trafficking in persons, 2016. https://www.unodc.org/documents/data-and-analysis/glotip/2016_Global_Report_on_Traffick ing_in_Persons.pdf. Accessed 7 Aug 2017
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Van der Kolk BA (1994) The body keeps the score. Harv Rev Psychiatry I:235–265 Walkley M, Cox T (2013) Building trauma-informed schools and communities. Child Sch 35(2):123–126 Whitney DG, Peterson, MD (2019) US national and state-level prevalence of mental health disorders and disparities of mental health care use in children. JAMA Ped 173:389–391 Wolpow R, Johnson MM, Hertel R et al (2009) The heart of learning and teaching: compassion, resiliency, and academic success. Washington State Office of Superintendent of Public Instruction Compassionate Schools. http://www.k12.wa.us/compassionateschools/pubdocs/TheHearto fLearningandTeaching.pdf. Accessed 5 May 2017 World Health Organization (2014) Global status report on violence prevention. http://www.who.int/ violence_injury_prevention/violence/status_report/2014/en/. Accessed 7 Aug 2017
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Si Ying Tan and Shian-Ling Keng
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Historical Roots of Mindfulness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mindfulness: Definitions and Assessments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Existing Mindfulness-Based Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mindfulness in the Context of Social Work and Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mindfulness and Mental Health: Marginalized Populations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mindfulness and Mental Health: Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mindfulness and Mental Health: Social Work Pedagogy and Training . . . . . . . . . . . . . . . . . . . . . . . . Development of Mindfulness-Based Interventions in Asia . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Rooted in the spiritual tradition of Buddhism, mindfulness-based practices have proliferated in medicine and psychology for the past few decades through secularized adaptations of its fundamental tenets into various psychosocial treatment modalities. The extension of the applications of mindfulness-based practices to different types of social work interventions is on the rise. This chapter discusses the application of mindfulness-based practices in the context of social work from three angles. First, we review the applications of mindfulness-based practices among marginalized population groups who are often excluded from the S. Y. Tan (*) Lee Kuan Yew School of Public Policy, National University of Singapore, Singapore, Singapore e-mail: [email protected] S.-L. Keng Division of Social Science, Yale-NUS College, Singapore, Singapore e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_11
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mainstream institutions. We apply social justice framework which emphasizes on fairness and inclusivity of access toward social resources for all segments of population in the society in our analysis, examining both the micro and macro practices of mindfulness-based interventions. Following that, we discuss the way in which mindfulness-based practices can be harnessed as an internal resource to strengthen social workers’ capacities as helping professionals and to increase their capabilities for self-care. Finally, we examine the extent to which mindfulness-based practices have been adopted in social work curriculum and pedagogy as part of the social work trainings in different cultures. We conclude that there are great potentials for the application of mindfulness-based practices in social service settings, particularly in an integrative manner with many existing social work interventions. Keywords
Mindfulness-based practice · Social work · Marginalized population · Practice · Pedagogy and training
Introduction In recent years, there has been a huge increase in the interest in the application of mindfulness-based interventions in a variety of contexts. Mindfulness, commonly defined as a way of paying attention to the experiences in the present moment in an open, intentional, and nonjudgmental manner (Kabat-Zinn 1994), is a practice that has its roots in Buddhism and other spiritual traditions. In recent years, much work has been devoted to understanding the effects and mechanisms through which mindfulness training influences physical and psychological functioning (Baer 2003; Keng et al. 2011), as well as exploring potential adaptations and application of mindfulness-based approaches in various contexts, including the practice of social work. In this chapter, we attempt to provide a discussion of various ways in which mindfulness-based approaches have been applied in the context of social work. We began by providing an overview to the history, definitions, and operationalization of mindfulness. Following this, we elaborated on selected existing mindfulness-based interventions and discussed three major contexts in which mindfulness-based interventions are applied in the realm of social work. We concluded the chapter by discussing the development of mindfulness-based interventions in the Asian context, as well as providing suggestions for future work and research on the intersection between mindfulness and social work.
Historical Roots of Mindfulness Historically, mindfulness has its roots in several eastern philosophical and spiritual traditions, such as Taoism, Chuang-Tzu’s school of philosophy, and Krishnamurti’s teachings (Kabat-Zinn 2003). However, mindfulness has been most systematically
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articulated and emphasized in Buddhism, a spiritual tradition that is at least 2500 years old. The Sanskrit root word for “mindfulness” is sati, which connotes attention, awareness, and remembering. In Buddhism, meditation is a key spiritual vehicle aiming at cultivating the qualities of mindfulness and concentration, which are considered as crucial for one to develop insight into the nature of reality and one’s experiences. Starting from the 1960s, a number of Western psychotherapists became interested in meditation and wrote some books surrounding the theme of meditation and psychotherapy. A few examples were Zen Buddhism and Psychoanalysis (Suzuki et al. 1960), Psychotherapy East and West (Watts 1961), and A Psychiatrist Discovers India (Boss 1965). In addition, some research studies also began to examine the physiological states associated with mindfulness meditation. Brain wave activity of individuals engaged in mindfulness meditation showed very brief periods of alpha blocking, which suggested that these individuals did not habituate to distractions and that each distraction was experienced as if it was experienced for the first time (Kasamatsu and Hirai 1966). Mindfulness began to be more broadly applied in the field of medicine and psychology beginning the work by Jon Kabat-Zinn, who developed an 8-week mindfulness-based stress reduction (MBSR) program based on intensive formal and informal practices of mindfulness meditation in the early 1980s. Subsequently, other treatments based on mindfulness practices and principles were also developed, such as mindfulness-based cognitive therapy (MBCT) (Teasdale et al. 2000), dialectical behavior therapy (DBT) (Linehan 1993), and acceptance and commitment therapy (ACT) (Hayes et al. 1999).
Mindfulness: Definitions and Assessments In an attempt to operationalize this construct further, Bishop et al. (2004) proposed a two-component model of mindfulness. The first component is self-regulation of attention, while the second is orientation to experience. Self-regulation of attention involves non-elaborative observation and awareness of thoughts, sensations, or feelings from moment to moment. This aspect of mindfulness encompasses the ability to voluntarily sustain one’s attention as well as switch attention from one object to another. The second component – orientation to experience – concerns the attitude toward one’s experience. Through mindfulness practice, one maintains an attitude of curiosity toward any sensations, thoughts, or feelings that arise at any moment. Such an attitude is accompanied by a sense of acceptance, which is characterized by being open and receptive to whatever that occurs in the present moment, without imposing judgments on the experience. Various measurement scales, such as Kentucky Inventory of Mindfulness Skills (KIMS) and Freiburg Mindfulness Inventory (FMI), have been developed to assess trait mindfulness and its related constructs (Baer et al. 2004; Buchheld et al. 2001). Baer et al. (2006) reviewed five existing mindfulness self-report questionnaires and derived five clear and interpretable facets of mindfulness through factor analysis.
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These facets include the ability to describe one’s experience with words, the ability to engage in daily activities with awareness, the ability to notice and observe one’s moment-to-moment experience, as well as the ability to remain nonjudgmental and nonreactive toward one’s experiences. Research has demonstrated that these facets of mindfulness traits work synergistically and are predictive of more adaptive psychological functioning, such as reduced symptoms of depression and anxiety (Baer et al. 2006).
Existing Mindfulness-Based Interventions To date, a number of interventions have been developed based on principles and practices of mindfulness and adapted for a variety of populations and settings. Examples of these interventions include mindfulness-based stress reduction (MBSR), mindfulness-based resilience training (MBRT) (Stonnington et al. 2016), MBCT (Oken et al. 2010; Teasdale et al. 2000), mindfulness-based feminist therapy (Crowder 2016), and mindfulness-based interventions that adopt a social justice approach (Hick and Furlotte 2010). As highlighted earlier, one of the earliest mindfulness-based interventions developed was MBSR, previously known as the stress reduction and relaxation program (Kabat-Zinn 1982). MBSR was first introduced in a behavioral medicine setting for patients with chronic pain or stress-related problems. A standard MBSR program consists of an 8-week course, in which a group of up to 30 participants meet for about 2 or 2.5 h per week for mindfulness meditation instruction and training (Baer 2003). Several mindfulness-related practices, such as body scan exercises, sitting meditation, hatha yoga, and walking meditation, are taught in the program. During these exercises, participants are instructed to pay attention to the object of observation (such as breath or bodily sensations) and to observe them nonjudgmentally. Whenever the mind wanders away from the object of observation, participants are instructed to gently bring their attention back to the present moment and the object of observation. Participants are required to practice these skills for at least 45 min a day, outside of group meeting times. With repeated training, mindfulness practice is intended to enable one to recognize one’s habitual pattern of thinking, feeling, and cognition and to take a more nonjudgmental and decentered attitude toward these mental constituents. Since its first application on chronic pain patients, MBSR has been used to alleviate symptoms of a variety of medical problems, such as fibromyalgia, psoriasis, and cancer (Kaplan et al. 1993; Kabat-Zinn et al. 1998; Speca et al. 2000). Research has also demonstrated the beneficial effects of MBSR in treating a variety of psychological disorders, such as eating disorders and anxiety disorders (Kristeller and Hallet 1999; Kabat-Zinn et al. 1992). Similar to MBSR, a number of other mindfulness-based interventions incorporated a myriad of skills training and psychosocial and experiential components, with sitting meditation, walking meditation, and gentle yoga being among the most commonly taught mindfulness practices (Crowder 2016; Oken et al. 2010; Stonnington et al. 2016; Whitebird et al. 2013; Zhang et al. 2015). One study also incorporated
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components from other notable interventions such as acceptance and commitment therapy (ACT) and stress management and resilience training (SMART) and integrated them into the traditional MBSR training for transplant patients and their caregivers. For instance, psychoeducation that imparts knowledge on the neuroscience of stress and resilience and skills training that aims to cultivate gratitude, compassion, and meaning is actively integrated into the traditional mindfulness training exercises (Stonnington et al. 2016). Audio recordings with guided meditation practice are also distributed to the participants, and homework and activities are assigned to the participants to be practiced at home in order to achieve optimal benefit (Crowder 2016; Stonnington et al. 2016; Whitebird et al. 2013; Zhang et al. 2015). Some studies have demonstrated that mindfulness-based interventions have shown similar efficacy as some of the pre-existing psychosocial training and treatment protocols, such as standard training (Whitebird et al. 2013) and standard psychoeducation (Oken et al. 2010) for caregivers of patients with dementia.
Mindfulness in the Context of Social Work and Mental Health Even though the concept of mindfulness took root in Buddhism as an ancient philosophy and spiritual practice, as discussed above, it has been widely applied in modern medicine and psychology over the last few decades through secularized adaptations of its fundamental tenets into various psychosocial treatment modalities. As an interdisciplinary field that has traditionally integrated theoretical concepts from various fields in social sciences which include psychology, social work scholars and practitioners, following the footsteps of psychologists, started borrowing the therapeutic elements of mindfulness practices into the practice and pedagogy of social work heavily in recent years. The rise of empirical studies in the social work literature to examine the efficacy of mindfulness-based interventions in clinical settings and the adaptations of mindfulness principles into social work pedagogy are testimonies of that. Unlike what some may believe to be primarily a practice of self-reflection and introspection, mindfulness practice, when adapted and applied in social work settings, is multifunctional and has broad, inclusive, and encompassing scopes. Besides serving as a tool to self-regulate one’s feelings and emotions, the utility of mindfulness practice in social work reverberates in many dimensions of social relations and could effectively be applied by social workers at many levels of practice. In this respect, Hick (2009) proposed a conceptual model which suggests that mindfulness practice in social work can occur at three different levels: within the person (or inner dimension); in micro practice (through direct interventions with individuals, families, or groups); and at the level of mezzo/macro practice (through community work, advocacy, and policy). This model suggests that the role of mindfulness in social work is multidimensional and multifunctional. At the individual (self/ inner dimension) level, mindfulness could be harnessed as an internal resource to strengthen the helper’s own capacity and development; at the micro practice level, it could be implemented as an intervention to support clients through their problems. At the
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Self/ Inner Dimension
• Present-moment orientation. • Inner peace and calm. • Practices to cultivate self-compassion and self-acceptance. • Changed relationship. • Stress reduction and self-care.
Micro Practice
• Present-moment orientation. • Methods to develop deep listening and interpersonal presence. • Open and nonjudgmental. • Practices to cultivate compassion and empathy.
Mezzo/Macro Pracrtice
• Present-moment orientation. • Attentive to process. • Open-minded and non-dogmatic. • Analysis of structural causes of injustice. • Attentive to intentions of social change.
Fig. 1 The role of mindfulness in social work. (Adapted from Hick 2009)
macro level, it could be utilized as a soft skill approach to create open-mindedness and flexibility in navigating the complex terrain of social work leadership as well as the policy world, forging effective engagement and negotiation in order to facilitate social change (Hick 2009) (Fig. 1). The therapeutic effects of mindfulness-based interventions have been documented in a wide range of populations in a diverse range of human service settings. The literature on the application of these interventions has exhibited positive effects of mindfulness-based interventions to cancer patients (Carlson 2016), transplant patients (Stonnington et al. 2016), people with substance abuse problems (Chiesa and Serretti 2014), survivors of intimate partner violence (Crowder 2016), youth with or without mental health conditions (Borquist-Conlon et al. 2017; Zack et al. 2014), family caregivers of patients with various medical conditions (Oken et al. 2010; Stonnington et al. 2016; Whitebird et al. 2013; Wood et al. 2015), elderly populations with Parkinson’s disease (Cash et al. 2016) and chronic insomnia (Zhang et al. 2015), as well as people with various mental disorders (Keng et al. 2011). Taken together, these studies point to the potential benefits of mindfulness-based interventions for a variety of populations and offer promise to clinical social workers that mindfulness is a form of therapeutic approach that they could apply to benefit their clients. In the below sections, we discuss in greater depth several ways in which mindfulness-based interventions have been applied in the broader context of social work. These areas include mindfulness applied in the context of supporting or treating socially marginalized populations, mindfulness as a form of self-care tool to enhance internal resources for social workers, and mindfulness as applied in social work pedagogy.
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Mindfulness and Mental Health: Marginalized Populations The effects of mindfulness-based interventions in hospital clinical settings targeting different subpopulations that are diagnosed with different medical conditions have been well-documented since MBSR was first introduced in the late 1970s (KabatZinn 1994). Over the years, mindfulness-based interventions have gradually made inroad to many other arenas, including mental health and social service settings. This section focuses on the application of mindfulness-based interventions in treating various mental health conditions, as well as more generally in social service settings that mainly target socially marginalized populations. Within the domain of mental health, mindfulness-based interventions such as MBSR and MBCT have been found to be effective in alleviating a range of psychological symptoms. For example, MBSR was found to be comparable to group cognitive behavior therapy in terms of improving quality of life, mood, and functionality among patients with generalized social anxiety disorder (Koszycki et al. 2007). MBCT, an intervention developed based on the integration of mindfulness meditation and cognitive therapy, has been shown to be effective in preventing relapses among patients with recurrent major depressive disorder (Ma and Teasdale 2004; Teasdale et al. 2000). In the later study, the effects of MBCT in reducing the rate of depressive relapses are found to be comparable with those of maintenance antidepressant medication (Kyuken et al. 2008). The effects of MBCT have also been examined among patients with bipolar disorder. In a study by Williams et al. (2008), MBCT was found to be more effective than a waitlist condition in reducing depressive and anxiety symptoms among patients with unipolar and bipolar disorders. Meanwhile, DBT is a clinical intervention that incorporates teaching of mindfulness skills as a core component and has been found to be efficacious in reducing the rate of nonsuicidal self-injury and improving psychosocial functioning among patients with borderline personality disorder (e.g., see Linehan et al. 1993; Verheul et al. 2003). It is believed that these interventions work in part by increasing individuals’ ability to decenter from their experiences and thereby disengage more effectively from maladaptive cognitive and behavioral patterns (e.g., rumination and avoidance) that trigger and maintain psychological distress (Keng et al. 2011). While the effects of mindfulness-based interventions on severely marginalized populations remain under-researched in many countries, preliminary evidence suggests that mindfulness training may be a promising approach in supporting oppressed and economically disadvantaged populations (Crowder 2016; Hick and Furlotte 2009, 2010). This approach is particularly important in community social work that places emphasis on espousing the principles of social justice to promote fairness and inclusivity in the society, including having equal access toward social resources for all segments of the population. Renowned Vietnamese Zen master Thich Nhat Hanh, for instance, is one of the leading voices that promotes social justice using peace and silence, in line with his teachings on mindfulness, to address sensitive issues such as racism civil rights violation in his capacity as a spiritual leader (Gomez 2015). For instance, social workers and researchers in Canada adapted the standard MBSR program
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and integrated it with critical social theory, which espouses the importance of addressing social exclusion. The result of this integration is a group intervention that specifically targets severely economically disadvantaged populations (Hick and Furlotte 2010). Examples of target populations include individuals who are homeless in drop-in centers, beneficiaries of social welfare schemes, and recipients of the sheltered home programs. This intervention, known as “radical mindfulness training,” addresses individual, interpersonal, societal, and structural issues in addition to teaching formal mindfulness practices. As part of the group work process, the researchers developed an exercise that encompasses nine specific instructions (e.g., (i) notice, pause, and breath; (ii) accept yourself, but not the situation; (iii) clarify with clarity; (iv) think creatively; (v) opening to fear; (vi) take action; (vii) smile; (viii) work in solidarity; and (xi) be persistent) to overcome experiences of oppression. Twenty-two participants were recruited from a local community health center for a study evaluating the effects of this intervention, and seven participants who completed the survey revealed an overall increase in self-compassion and satisfaction with life following completion of the program (Hick and Furlotte 2010). Further, existing work has integrated mindfulness approaches to engender feelings of empowerment and liberation for survivors of intimate partner violence (Crowder 2016). Mindfulness-based approach encourages the gradual detachment of self-identification on one’s past traumas and restores the ability of inner healing through the promotion of self-compassion and letting go. This practice, which encourages inward looking and acceptance of all phenomena – including painful events – as part of ever evolving human experiences can be leveraged to bring about greater sense of interconnectedness of all beings in the world, foster compassion, and increase awareness about how our individual and respective roles in the society can perpetuate or influence oppressions and injustices that affect our collective well-being in the world (Crowder 2016; Hick and Furlotte 2009, 2010). Mindfulness-based interventions have also been shown to be an effective treatment approach for youth and young adults at risk. For young adults with history of substance abuse, mindfulness-based interventions were shown to be effective in preventing relapse or reducing the frequency of substance use (Bowen et al. 2014; Chiesa and Serretti 2014; Witkiewitz and Bowen 2010). A systematic review reported that mindfulness-based interventions, which encompass Vipassana meditation, MBSR, MBCT, mindfulness-based relapse prevention (MBRP), spiritual selfschema therapy (3S-Therapy), DBT, and acceptance and commitment therapy (ACT), were effective in reducing the consumption and misuse of substances such as alcohol, cocaine, amphetamines, marijuana, cigarettes, and opiates to a significant extent, compared to waitlist control participants (Chiesa and Serretti 2014). Two other randomized control trials investigating the effects of MBRP also reported positive results, whereby MBRP participants reported fewer days of alcohol and other substance use compared to control group participants at 4-month follow-up (Witkiewitz and Bowen 2010) and 6-month follow-up (Bowen et al. 2014), respectively. In one of these studies, MBRP was shown to be superior to cognitive-behavioral relapse prevention (RP) with regard to longer-term outcomes;
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in particular, results at 12-month follow-up showed that MBRP participants had fewer days of alcohol or drug consumption as compared to participants in both the RP group and the control group (Bowen et al. 2014). In contrast to many other psychosocial approaches that centered on addressing symptomatic behaviors and providing psychoeducation to the participants, MBRP seeks to address the root of the substance use, such as negative mood and craving that revolved around individual values and needs. This approach teaches participants to observe their physical, emotional, and cognitive conditions of their craving whenever they arise and learn to sit with these uncomfortable feelings without attempting to habitually reacting on these negative states of mind (Bowen et al. 2014; Witkiewitz and Bowen 2010). The use of intensive guided meditation sessions, experiential sessions, and discussion during the intervention, coupled with the use of audio-recorded guides to facilitate daily practice at home, ensures that participants could sustain their practice beyond the immediate settings where they were taught mindfulness practices (Witkiewitz and Bowen 2010). In prison settings, the efficacy of mindfulness-based interventions has also been widely documented. Prisons are among one of the most challenging environments to implement such interventions, due to the fact that the structure and environment in prison settings can often times be extremely dehumanizing. This is often exacerbated by the inherent hostility, command, and control exerted upon the prisoners, which often render them feeling dejected and powerless. Meanwhile, it is precisely due to the fact that implementation of mindfulness-based interventions is challenging that successful implementations can often be extremely rewarding (Lyons and Cantrell 2016). A recent systematic review and meta-analysis that examined the effects of yoga and mindfulness meditation programs in prisons across the United States, United Kingdom, India, and Taiwan reported modest effects of these programs on psychological well-being and behavioral functioning. Further analyses indicated that programs with longer duration had a slightly larger effects on behavioral functioning as opposed to more intensive programs (Auty et al. 2017). Smaller-scale studies that involved smaller sample sizes in the United States (Samuelson et al. 2007) and in China (Xu et al. 2016) demonstrated positive effects of these interventions as well. In the United States, MBSR programs concurrently rolled out to several correctional facilities in Massachusetts were shown to be effective in reducing hostility and mood disturbance, as well as improving self-esteem among the inmates, especially those in minimum-security, pre-release facilities (Samuelson et al. 2007). An adapted version of this program was similarly tested in prison facilities in Beijing, China. Results were largely positive, pointing to reduction in aggression and improvement in emotional health among the inmates who received the intervention (Xu et al. 2016).
Mindfulness and Mental Health: Social Work Practice Mindfulness has long been advocated as an effective psychosocial interventions for clients with different medical and psychosocial conditions. The above section documented how mindfulness-based interventions have been effective to many types
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of socially marginalized populations. However, scholars have argued that helping professionals can only be both effective and authentic facilitators of mindfulnessbased interventions when they are able to truly embody the qualities and practice of mindfulness in their everyday life (Shapiro and Carlson 2009). Embarking on a mindfulness journey is important for social workers interested in experiencing the benefits of this practice and effectively utilizing mindfulness as an intervention approach to help their clients. The journey of mindfulness can start only when mindfulness practice is weaved into one’s daily life as part of self-care. This is important to achieve a healthy balance between addressing the sufferings of others and attending to one’s needs and well-being, both of which arguably function in a synergistic manner. Across most cultures, social workers constantly face challenging and constraining circumstances at all levels – systematic, organizational, and individual. At the systemic level, the need to adjust to the ever-changing realities on the ground and the pressure to keep abreast with constant social policy changes could create a heightened sense of duty that compound mounting work stress. This is even more so for social workers who are already wrestling with high caseloads. At the organizational level, there are managerial expectations on keeping up with performance in a wide range of portfolios that often span both functional and operational aspects. Besides, the nature of social work often predisposes social workers to difficult situations, in which social workers have to make resource allocation decisions. As resources are always scarce, having to capitalize on the limited funding to meet both organizational goals and clients’ needs always requires careful deliberations on the trade-offs. These demands can be overwhelming and potential stressors for social workers. At the individual level, the hypervigilant and hyper-attentive emotional states that social workers are prone to – especially when managing crises events and challenging situations – can take a toll on their personal well-being. Under these circumstances, social workers, like many other helping professionals, risk facing occupational stress such as burnout, compassion fatigue, and professional self-doubt (Lloyd et al. 2005). It is thus important for social workers to put self-care at the center of their profession. One common problem in the helping profession is too many of those in the helping positions see clients’ needs and their own psychosocial needs as separate entities and, very often, place the clients’ needs above their own needs and fail to attend to their own well-being (Shapiro and Carlson 2009). Mindfulness practice, grounded on the development of awareness of presentmoment experiences in an open and nonjudgmental manner (Kabat-Zinn 1994), can be applied by social workers to create a safe haven for themselves in a work setting that tends to demand much emotional energy. Altering one’s mental state from the default mode of “doing” to simply “being” (Hick 2009) helps build up capacity for deep introspection and creates room for personal self-care and mental rejuvenation. Further, mindfulness practice helps to create emotional space for social workers to accept their foibles and limitations and to let go of preoccupation with external criticisms or self-judgment. Incorporating elements and principles of mindfulness to social work practice settings serves to enhance social workers’ internal capacity to work effectively with clients and to be more at ease with the notion that even if
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they are not able to help generate immediate solutions for their clients, being wholly present with them and facilitating the acceptance of uncertainty with their clients can also bring about positive effects of healing (Birnbaum and Birnbaum 2008). Incorporating mindfulness principles in the social workers’ practice settings has started to gain momentum in the West, notably in North America. While mindfulness practice in social work settings is far from establishing itself in the core operations of human service organizations, social workers have started to develop individual or group initiatives to practice mindfulness meditation as a routine and consciously impart the element of mindfulness to their professional work. Studies have shown that incorporating mindfulness principles in social work practice in the form of group contemplative practices and group discussion helps social workers to enhance awareness, develop attentional capacities, cultivate a deeper sense of attunement to the therapeutic relations and interconnectedness with clients, and increase empathy (Birnbaum and Birnbaum 2008; McGarrigle and Walsh 2011; Shier and Graham 2011; Turner 2009). These studies ranged from conceptual and review studies (Birnbaum and Birnbaum 2008; Turner 2009) to empirical studies such as intervention trials (McGarrigle and Walsh 2011) and mixed-method study (Shier and Graham 2011). In one small-scale, pre-post intervention study involving 12 human service officers as participants, an 8-week contemplative practice group consisting of mindfulness-based practices such as meditation, yoga, body scan, and relaxation exercises were taught by an experienced yoga and meditation teacher, who was also a social worker. Post-intervention assessment indicated significant increases in trait mindfulness and decreases in stress levels (McGarrigle and Walsh 2011). This study also showed that social workers perceived incorporating mindfulness practices within the organization, which serves to protect the well-being of workers, as an act of accountability to both clients and organizations (McGarrigle and Walsh 2011). This sense of accountability stems from helpers realizing the need to first care for themselves before they could reach out effectively to those needing their help. Failing to keep their personal emotional wellbeing in check may negatively impair the quality of their work with clients. Another mixed-method study that incorporated mail survey and in-depth semistructured interviews examined ways in which mindfulness practices benefitted social work professionals (Shier and Graham 2011). Findings highlighted several key benefits of mindfulness practice to social workers. These benefits include reduced stress and increased clarity of the realities faced by social workers both internally and externally. Further, mindfulness practice also allows social workers to reflect on pivotal moments in their personal lives and ascribe deeper meanings to those moments, which helps them achieve greater balance between their personal and professional lives (Shier and Graham 2011). While current findings point to the potential benefits of incorporating mindfulness practice in social worker’s personal and professional development, it is important to note that the studies are limited in sample size and lacking control groups. Therefore, future work should examine the effects of mindfulness practice on various dimensions of social workers’ lives, through the use of larger sample sizes and more rigorous methodologies, such as randomized controlled trials. Overall, however, the
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findings do offer promise that mindfulness practices could be utilized as effective strategies for self-care and addressing burnout.
Mindfulness and Mental Health: Social Work Pedagogy and Training In recent years, there has been an increase in the incorporation of mindfulness principles and elements into the training of social work students. Mindfulnessbased practices have been shown to improve quality of life, enhance positive emotions, facilitate emotional regulation, increase awareness toward the perception of reality, as well as increase knowledge and self-efficacy (Birnbaum 2009; Bonifas and Napoli 2014; Botta et al. 2015). These benefits directly improve strengths and capacities of the students to meet the challenging demands in both their study and life pursuits (Birnbaum 2009; Bonifas and Napoli 2014; Botta et al. 2015). The incorporation of mindfulness training in social work pedagogy has been done in both experiential and didactic forms. These trainings are either implemented as a standalone curriculum or integrated into other mainstream, existing curriculums. Studies have shown that most of the institutions which have adopted mindfulness training implemented it in the form of experiential workshop (Birnbaum and Birnbaum 2008) or as experiential teaching elements integrated into mainstream curriculum designed as active listening skills training (Goh 2012), foundational social work practice course (Gockel 2015; Thomas 2017), and mindfulness group work (Botta et al. 2015; Newsome et al. 2012). Some other institutions designed it as a full semester-long elective course with the aim to enhance clinical skills and stress coping capabilities for social work students (Bonifas and Napoli 2014; Wong 2013). In addition, mindfulness training was also incorporated as part of the supervision exercise for social work students during their fieldwork placement (Birnbaum and Birnbaum 2008). In a full elective course designed specifically to promote quality of life and stress coping abilities among Master of Social Work (MSW) students in a public higher institution in the United States, readings and mindfulness exercises were designed to cover eight domains: (i) establishing personal boundaries; (ii) developing environmental awareness; (iii) eating healthfully; (iv) caring for the body; (v) recognizing inner strengths; (vi) restoring life balance through rest, relaxation, and recreation; (vii) building supportive relationships; and (viii) discovering passions and envisioning goals (Bonifas and Napoli 2014, p. 473). The other full elective course that was designed as an elective summer course known as “Spirituality and Critical Social Work” applied the framework of “interbeing” of the person and environment – a concept taught and propagated by renowned Zen master Thich Nhat Hanh – to advance students’ ability to harness mindfulness principles when engaged in a broader context of advocacy and advancing social justice (Wong 2013). Both courses integrated a diverse range of experiential learning activities such as weekend silent retreat, guided mindfulness meditation, in-class discussions on the reading materials, and research presentations on a wide ranging of mindfulness practices for different
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clienteles and their relations in enhancing quality of life (Bonifas and Napoli 2014; Wong 2013). A reflective mindfulness journal was also incorporated as part of the curriculum in which students were given opportunity to keep personal journals on their applications of mindfulness practice in their daily lives (Bonifas and Napoli 2014). In some instances, mindfulness practice was integrated as part of the elements of mainstream social work curriculum. In Smith College, a prominent institution for training social workers in the United States, instructors incorporated MBSR techniques and training exercises such as mindful walking, mindful stretching, mindful play, body scan, open awareness, walking meditation, and loving-kindness meditation for 15-min period in 28 sessions of a 10-week foundational social work practice course for beginning social work students (Gockel 2015). In another social work program in Singapore, instructor inculcated mindfulness principles to encourage individual reflections of habitual mental activities among a cohort of social work students (Goh 2012). A self-assessment tool was used to track 12 common mental habits, and daily reflections were captured on alternate weeks to record students’ experiences of becoming aware with these mental habits. Besides, students were divided into several groups that met fortnightly to discuss their experiences of practicing mindfulness and to brainstorm strategies on overcoming distractions that hindered active listening when attending to the clients. In Israel, mindfulness practices were applied in the form of group work and as a tool for individual observation of their fieldwork experiences and supervisory relationship (Birnbaum and Birnbaum 2008). These exercises were designed as means to enhance self-awareness, facilitate self-inquiry, and increase emotional support. Through mindfulness meditation, students were taught to observe their mental chatters nonjudgmentally and develop nonreactive patterns to the existential threat of anxiety over the uncertainties in life. From these practices, it is envisioned that students would learn to develop a broader world view and adopt a more open perspective toward their identity as a person and as a helper in the world (Birnbaum 2009). The extent of the adoption of mindfulness principles in social work pedagogy among developing countries is less clear. The scarcity of published studies in developing countries suggests that the incorporation of mindfulness in the context of social work education has been more limited, despite the philosophical origins of mindfulness in some of the eastern developing countries (e.g., India). To date, only one recent study has surveyed social work educators on the feasibility and acceptability of inclusion of spirituality in social work education in South Asia (Pandya 2015). This study is a multicountry study conducted in six South Asian countries (India, Sri Lanka, Nepal, Bhutan, Bangladesh, and Myanmar) documenting the perspectives of 1084 social work educators on the inclusion of spirituality as a component in social work education. Findings suggested that majority of the respondents were keen to see a more predominant spirituality element that is culturally adapted to the local context in their respective social work education. More than half of the respondents felt that the delivery method should combine evidence-based learning and experiential learning and that a higher emphasis on the spiritual element of social work education should function to equip social work
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students with the skill sets to bring about the inner strengths and hidden potentials of the respective communities that they serve (Pandya 2015). The literature suggests that the incorporation of mindfulness principles in social work pedagogy remains in its infancy, especially in developing countries. The almost nonexistence of published studies in these countries could well be due to the fact that the adaptation of mindfulness practice in social work has not been systematically documented in English. Future research should explore the cultural adaptations of mindfulness principles in social work pedagogy as well and social work interventions in the context of developing countries. In addition, the effectiveness of mindfulness-informed social work pedagogical approaches that have already been developed ought to be subject to ongoing evaluation and constant refinement to ensure that they could continue to meet the evolving training needs.
Development of Mindfulness-Based Interventions in Asia In Asia, mindfulness-based interventions have been established for more than a decade to serve clienteles of different psychosocial needs. Within several countries of Asia, mindfulness practices tend to be integrated with other mind-body approaches and principles that are already adopted in the local context. One of the forerunners in the field, Dr. Cecilia Chan from The University of Hong Kong, weaved in elements of mindfulness practices along with eastern religions and philosophies in a body-mind-spirit (BMS) intervention approach she and her colleagues developed (Chan et al. 2002). The BMS intervention emphasizes the physical body, psychological mind, and spiritual belief as three interconnected and essential elements that work in tandem to promote healing and holistic care (Chan et al. 2002). Apart from adopting Western positive psychology as part of its intervention components, the BMS intervention includes other intervention components with a strong orientation in the eastern spiritual beliefs, such as meditation and meaning-making, as well as Chinese medical practices such as qigong and acupuncture (Ho et al. 2016). More recently, in Taiwan, scholars have tested the efficacy of a Chinese calligraphy writing intervention that incorporated elements of meditation for a group of graduate students and academic staff (Kao et al. 2014). Findings revealed that Chinese calligraphy writing promotes sustained concentration as well as results in reductions in stress. Both meditation and Chinese Calligraphy writing could thus be effectively incorporated as mindfulness-based practices to obtain optimal mental benefits. Likewise, in Singapore, a recent multicomponent intervention study that tested the effect of mindfulness awareness practice, tai chi practice, and art therapy and music reminiscence therapy in four different groups of community-dwelling elderly population who were assessed to be suffering from subsyndromal depression and anxiety demonstrated beneficial effects in reducing depression and anxiety among the participants. The effects of the intervention were sustained at 4 weeks and 10 weeks, as well as over a 1-year follow-up (Rawtaer et al. 2015).
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Conclusions In sum, there are great potentials for the application of mindfulness-based practices in social service settings, particularly in an integrative manner with many existing social work interventions. As outlined in this chapter, mindfulness-based interventions are widely used to support patients with various medical ailments and mental health issues in the clinical social work setting. In addition, mindfulness-based practices have been integrated in social work settings in three major contexts. These contexts include supporting socially marginally populations – a clientele typically served by social workers, use of mindfulness practices and interventions as resources to support self-care and professional growth among social workers, and incorporation of mindfulness practices and principles in social work pedagogy. These contexts fit with Hick’s (2009) conceptual model?, which suggests that mindfulness practice in social work can occur at three different levels: within the person (or inner dimension); in micro practice (through direct interventions with individuals, families, or groups); and at the level of mezzo/macro practice (through community work, advocacy, and policy). Much research to date has demonstrated the benefits that mindfulness-based practices and interventions could bring about to social workers (Birnbaum and Birnbaum 2008; McGarrigle and Walsh 2011; Shier and Graham 2011; Turner 2009) as well as their clients (e.g., see Crowder 2016; Hick and Furlotte 2009, 2010). It is notable meanwhile that many of the existing studies are characterized by limitations such as small sample sizes and a lack of randomized control groups. Future research therefore should incorporate larger sample sizes and utilize more rigorous methodology to evaluate the effects of mindfulness-based interventions in socially marginalized populations, as well as among social workers. Further, as the majority of research focuses on evaluating impact at the level of individual or small groups within organizational settings, future research should assess the broader impact of mindfulness-based interventions, particularly at the community and/or policy level. Within the Asian context, where the authors are based, mindfulnessbased interventions have been established and integrated with existing Eastern mindbody approaches to support the treatment needs of various populations with both physical health and mental health issues (e.g., Chan et al. 2002). Lastly, the incorporation of mindfulness principles in social work professional training, either formally or informally, has been quite encouraging in some parts of the world, such as the United States (Bonifas and Napoli 2014; Gockel 2015). For these momentum to be sustained and be expanded to other parts of the world, more advocacy efforts are needed to highlight the importance of mindfulness-based interventions to the leadership within social service organizations as well as public agencies that serve to improve the psychosocial needs of marginalized population groups. Advocacy should entail not only psychoeducation and awareness building but also ongoing research efforts to evaluate programs that incorporate elements of mindfulness in social work practice and training. These would ensure that the effects of mindfulness-based interventions can be consistently tracked, rigorously
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evaluated, and appropriately modified at different junctures to address changing organizational priorities and social services needs of the population.
Cross-References ▶ Qigong Practice ▶ Theories on Mental Health, Illness and Intervention
References Auty KM, Cope A, Liebling A (2017) A systematic review and meta-analysis of yoga and mindfulness meditation in prison. Int J Offender Ther Comp Criminol 61:689–710. https://doi.org/10.1177/0306624X15602514 Baer RA (2003) Mindfulness training as a clinical intervention: a conceptual and empirical review. Clin Psychol Sci Pract 10:125–143 Baer RA, Smith GT, Allen KB (2004) Assessment of mindfulness by self-report: the Kentucky inventory of mindfulness skills. Assessment 11:191–206 Baer RA, Smith GT, Hopkins J, Krietemeyer J, Toney L (2006) Using self-report assessment methods to explore facets of mindfulness. Assessment 13:27–45 Birnbaum L (2009) The contribution of mindfulness practice to the development of professional self-concept in students of social work. In: Hick SF (ed) Mindfulness and social work. Lyceum Books, Chicago Birnbaum L, Birnbaum A (2008) Mindful social work: from theory to practice. J Relig Spiritual Soc Work Soc Thought 27:87–104. https://doi.org/10.1080/15426430802113913 Bishop SR, Lau M, Shapiro S, Carlson L, Anderson ND, Carmody J, . . . Devins G (2004) Mindfulness: a proposed operational definition. Clin Psychol Sci Pract 11:230–241 Bonifas RP, Napoli M (2014) Mindfully increasing quality of life: a promising curriculum for MSW students. Soc Work Educ 33:469–484. https://doi.org/10.1080/02615479.2013.838215 Borquist-Conlon DS, Maynard BR, Brendel KE, Farina ASJ (2017) Mindfulness-based interventions for youth with anxiety. Res Soc Work Pract 29:1049731516684961. https://doi.org/ 10.1177/1049731516684961 Boss M (1965) A psychiatrist discovers India. Oswald Wolff, London Botta AA, Cadet TJ, Maramaldi P (2015) Reflections on a quantitative, group-based mindfulness study with social work students. Soc Work Groups 38:93–105. https://doi.org/10.1080/ 01609513.2014.975885 Bowen S, Witkiewitz K, Clifasefi SL, Grow J, Chawla N, Hsu SH, . . . Larimer ME (2014) Relative efficacy of mindfulness-based relapse prevention, standard relapse prevention, and treatment as usual for substance use disorders: a randomized clinical trial. JAMA Psychiatry 71:547–556. https://doi.org/10.1001/jamapsychiatry.2013.4546 Buchheld N, Grossman P, Walach H (2001) Measuring mindfulness in insight meditation (Vipassana) and meditation-based psychotherapy: the development of the Freiburg Mindfulness Inventory (FMI). J Medit Medit Res 1:11–34 Carlson LE (2016) Mindfulness-based interventions for coping with cancer. Ann N Y Acad Sci 1373:5–12. https://doi.org/10.1111/nyas.13029 Cash TV, Ekouevi VS, Kilbourn C, Lageman SK (2016) Pilot study of a mindfulness-based group intervention for individuals with Parkinson’s Disease and their caregivers. Mindfulness 7:361–371. https://doi.org/10.1007/s12671-015-0452-1 Chan CLW, Ho PSY, Chow E (2002) A body-mind-spirit model in health. Soc Work Health Care 34:261–282. https://doi.org/10.1300/J010v34n03_02
15
Application of Mindfulness-Based Approaches in the Context of Social Work
327
Chiesa A, Serretti A (2014) Are mindfulness-based interventions effective for substance use disorders? A systematic review of the evidence. Subst Use Misuse 49:492–512. https://doi. org/10.3109/10826084.2013.770027 Crowder R (2016) Mindfulness based feminist therapy: the intermingling edges of self-compassion and social justice. J Relig Spiritual Soc Work Soc Thought 35:24–40. https://doi.org/10.1080/ 15426432.2015.1080605 Gockel A (2015) Teaching note – practicing presence: a curriculum for integrating mindfulness training into direct practice instruction. J Soc Work Educ 51:682–690. https://doi.org/10.1080/ 10437797.2015.1076275 Goh ECL (2012) Integrating mindfulness and reflection in the teaching and learning of listening skills for undergraduate social work students in Singapore. Soc Work Educ 31:587–604. https://doi.org/10.1080/02615479.2011.579094 Gomez MB (2015) Sacred activism: mindfulness and racial justice. https://www.huffingtonpost. com/marisela-b-gomez/sacred-activism-mindfulne_b_8080444.html. Accessed 26 Sept 2018 Hayes SC, Strosahl KD, Wilson KG (1999) Acceptance and commitment therapy. Guilford Press, New York Hick SF (2009) Mindfulness and social work: paying attention to ourselves, our clients, and society. In: Hick SF (ed) Mindfulness and social work. Lyceum Books, Chicago, pp 1–30 Hick SF Furlotte CR (2009) Mindfulness and social justice approaches: bridging the mind and society in social work practice. Can Soc Work Rev 26:5–24. Retrieved from http://www.jstor. org/stable/41669899 Hick SF, Furlotte C (2010) An exploratory study of radical mindfulness training with severely economically disadvantaged people: findings of a Canadian study. Aust Soc Work 63:281–298. https://doi.org/10.1080/0312407X.2010.496865 Ho RTH, Fong TCT, Lo PHY, Ho SMY, Lee PWH, Leung PPY, . . . Chan CLW (2016) Randomized controlled trial of supportive-expressive group therapy and body-mind-spirit intervention for Chinese non-metastatic breast cancer patients. Support Care Cancer 24:4929–4937. https://doi. org/10.1007/s00520-016-3350-8 Kabat-Zinn J (1982) An outpatient program in behavioral medicine for chronic pain patients based on the practice of mindfulness meditation: theoretical considerations and preliminary results. Gen Hosp Psychiatry 4:33–47 Kabat-Zinn J (1994) Wherever you go there you are: mindfulness meditation in everyday life. Hyperion, New York Kabat-Zinn J (2003) Mindfulness-based interventions in context: past, present, and future. Clin Psychol Sci Pract 10:144–156 Kabat-Zinn J, Massion AO, Kristeller J, Peterson LG, Fletcher KE, Pbert L, Lenderking WR, Santorelli SF (1992) Effectiveness of a meditation-based stress reduction program in the treatment of anxiety disorders. Am J Psychiatry 49:936–943 Kabat-Zinn J, Wheeler E, Light T, Skillings A, Scharf MJ, Cropley TG, Hosmer D, Bernhard JD (1998) Influence of a mindfulness meditation-based stress reduction intervention on rates of skin clearning in patients with moderate to severe psoriasis underoing phototherapy (UVB) and photochemotherpay (PUVA). Psychosom Med 60:625–632 Kao HSR, Zhu L, Chao AA, Chen HY, Liu ICY, Zhang M (2014) Calligraphy and meditation for stress reduction: an experimental comparison. Psychol Res Behav Manag 7:47–52. https://doi. org/10.2147/PRBM.S55743 Kasamatsu A, Hirai T (1966) An electroencephalographic study on the Zen meditation (Zazen). Psychologia 12:205–225 Keng SL, Smoski MJ, Robins CJ (2011) Effects of mindfulness on psychological health: a review of empirical studies. Clin Psychol Rev 31:1041–1056 Koszycki D, Benger D, Shlik J, Bradwejn J (2007) Randomized trial of a meditation-based stress reduction program and cognitive behavior therapy in generalized social anxiety disorder. Behav Res Ther 45:2518–2526. https://doi.org/10.1016/j.brat.2007.04.011 Kristeller JL, Hallett CB (1999) An exploratory study of a meditation-based intervention for binge eating disorder. J Health Psychol 4:357–363
328
S. Y. Tan and S.-L. Keng
Kyuken W, Byford S Taylor RS, Watkins E, Holden E, White K, Barrett B, Byng R, Evans A, Mullan E, Teasdale JD (2008) Mindfulness-based cognitive therapy to prevent relapse in recurrent depression. J Consult Clin Psychol 76:966–978 Linehan M (1993) Cognitive-behavioral treatment of borderline personality disorder. Guilford Press, New York Linehan MM, Heard HL, Amstrong HE (1993) Naturalistic follow-up of a behavioral treatment for chronically parasuicidal borderline patients. Arch Gen Psychiatry 50:971–974. https://doi.org/ 10.1001/archpsyc.1993.01820240055007 Lloyd C, McKenna K, King R (2005) Sources of stress experienced by occupational therapists and social workers in mental health settings. Occup Ther Int 12:81–94. https://doi.org/10.1002/ oti.17 Lyons T, Cantrell WD (2016) Prison meditation movements and mass incarceration. Int J Offender Ther Comp Criminol 60:1363–1375. https://doi.org/10.1177/0306624X15583807 Ma SH, Teasdale JD (2004) Mindfulness-based cognitive therapy for depression: replication and exploration of differential relapse prevention effects. J Consult Clin Psychol 72:31–40. https://doi.org/10.1037/0022-006X.72.1.31 McGarrigle T, Walsh CA (2011) Mindfulness, self-care, and wellness in social work: effects of contemplative training. J Relig Spiritual Soc Work Soc Thought 30:212–233. https://doi.org/ 10.1080/15426432.2011.587384 Newsome S, Waldo M, Gruszka C (2012) Mindfulness group work: preventing stress and increasing self-compassion among helping professionals in training. J Spec Group Work 37:297–311. https://doi.org/10.1080/01933922.2012.690832 Oken BS, Fonareva I, Haas M, Wahbeh H, Lane JB, Zajdel D, Amen A (2010) Pilot controlled trial of mindfulness meditation and education for Dementia caregivers. J Altern Complement Med 16:1031–1038 Pandya SP (2015) Including spirituality in the social work curriculum: perspectives from South Asia. Soc Work Educ 34:729–746. https://doi.org/10.1080/02615479.2015.1043259 Rawtaer I, Mahendran R, Yu J, Fam J, Feng L, Kua EH (2015) Psychosocial interventions with art, music, Tai Chi and mindfulness for subsyndromal depression and anxiety in older adults: a naturalistic study in Singapore. Asia Pac Psychiatry 7:240–250. https://doi.org/10.1111/ appy.12201 Samuelson M, Carmody J, Kabat-Zinn J, Bratt MA (2007) Mindfulness-based stress reduction in Massachusetts correctional facilities. Prison J 87:254–268. https://doi.org/10.1177/ 0032885507303753 Shapiro SL, Carlson LE (2009) The art and science of mindfulness: integrating mindfulness into psychology and the helping professions. American Psychological Association, Washington, DC Shier ML, Graham JR (2011) Mindfulness, subjective well-being, and social work: insight into their interconnection from social work practitioners. Soc Work Educ 30:29–44. https://doi.org/ 10.1080/02615471003763188 Speca M, Carison LE, Goodey E, Angen M (2000) A randomized, wait-list controlled clinical trial: the effect of a minduflness medtation-based stress reduction program on mood and symptoms of stress in cancer outpatients. Psychosom Med 62:613–622 Stonnington CM, Darby B, Santucci A, Mulligan P, Pathuis P, Cuc A, . . . Sood A (2016) A resilience intervention involving mindfulness training for transplant patients and their caregivers Clin Transplant 30:1466–1472. https://doi.org/10.1111/ctr.12841 Suzuki DT, Fromm E, De Martino R (1960) Zen buddhism and psychoanalysis. Harper & Row, New York Teasdale JD, Segal ZV, Williams JMG, Ridgeway VA, Soulsby JM, Lau MA (2000) Prevention of relapse/recurrence in major depression by mindfulness-based cognitive therapy. J Consult Clin Psychol 68:615–623 Thomas JT (2017) Brief mindfulness training in the social work practice classroom. Soc Work Educ 36:102–118. https://doi.org/10.1080/02615479.2016.1250878
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Application of Mindfulness-Based Approaches in the Context of Social Work
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Turner K (2009) Mindfulness: the present moment in clinical social work. Clin Soc Work J 37:95–103. https://doi.org/10.1007/s10615-008-0182-0 Verheul R, van den Bosch LMC, Koeter MWJ, de Ridder MAJ, Stijnen T, van den Brink W (2003) Dialectical behavior therapy for women with borderline personality disorder: 12-month randomized clinical trial in The Netherlands. Br J Psychiatry 182:135–140. https://doi.org/10.1192/ bjp.182.2.135 Watts AW (1961) Psychotherapy east and west. Pantheon Books, New York Whitebird RR, Kreitzer M, Crain AL, Lewis BW, Hanson LR, Enstad CJ (2013) Mindfulness-based stress reduction for family caregivers: a randomized controlled trial. Gerontologist 53:676–686. https://doi.org/10.1093/geront/gns126 Williams JMG, Alatiq Y, Crane C, Barnhofer T, Fennell MJV, Duggan DS, . . . Goodwin GM (2008) Mindfulness-based cognitive therapy (MBCT) in bipolar disorder: preliminary evaluation of immediate effects on between-episode functioning. J Affect Disord 107:275–279. https://doi. org/10.1016/j.jad.2007.08.022 Witkiewitz K, Bowen S (2010) Depression, craving, and substance use following a randomized trial of mindfulness-based relapse prevention. J Consult Clin Psychol 78:362–374 Wong YLR (2013) Returning to silence, connecting to wholeness: contemplative pedagogy for critical social work education. J Relig Spiritual Soc Work Soc Thought 32:269–285. https://doi. org/10.1080/15426432.2013.801748 Wood AW, Gonzalez J, Barden SM (2015) Mindful caring: using mindfulness-based cognitive therapy with caregivers of cancer survivors. J Psychosoc Oncol 33:66–84. https://doi.org/ 10.1080/07347332.2014.977418 Xu W, Jia K, Liu X, Hofmann SG (2016) The effects of mindfulness training on emotional health in Chinese long-term male prison inmates. Mindfulness 7:1044–1051. https://doi.org/10.1007/ s12671-016-0540-x Zack S, Saekow J, Kelly M, Radke A (2014) Mindfulness based interventions for youth. J Relig Spiritual Soc Work Soc Thought 32:44–56. https://doi.org/10.1007/s10942-014-0179-2 Zhang J, Liu X, Xie X, Zhao D, Shan M, Zhang X, . . . Cui H (2015) Mindfulness-based stress reduction for chronic insomnia in adults older than 75 years: a randomized, controlled, singleblind clinical trial. EXPLORE 11: 180–185. https://doi.org/10.1016/j.explore.2015.02.005
Alcohol and Drug Use From Dual Diagnosis to Well-Being
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Critical Starting Points . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Interconnected Relationships . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Specific Populations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Adolescents and Young Persons . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Adulthood . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Older Persons . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Well-Being as Framework of Understanding . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Promoting Well-Being: Prevention and Outreach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Responding to Crisis in Well-Being: Treatment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Supporting and Maintaining Well-Being: Recovery-Orientated Provision . . . . . . . . . . . . . . . . . Cultural, Political, and Social Contexts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Messages . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-Reference . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
This chapter explores the interconnectivity of experiences of mental health and alcohol and other drug use. It initially sets out those critical starting points that contextualize this relationship. The chapter then explores these overlapping experiences through some examples of specific populations: adolescents and young persons, adulthood, and older people. It then introduces a framework for understanding these interconnectivities through the concept of well-being. This is then applied to three areas of understanding and proactiveness: promoting wellbeing, responding to crisis, and ongoing support. The chapter concludes with an W. Livingston (*) Glyndwr University, Plas Coch Campus, Wrexham, Wales, UK e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_12
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exploration of some wider cultural, political, and social contexts, before identifying a number of key messages. These include considering that traditional models of treatment are better integrated by social workers into understandings of well-being, that alcohol and drug use is often a response to as much as a cause of other problems, and that people can and do change, frequently sustaining longterm recovery. The chapter espouses the legitimacy and effectiveness of social work in this area of practice. Keywords
Alcohol · Drugs · Mental health · Dual diagnosis · Recovery · Rehabilitation · Substance use
Introduction Mental health symptoms and experiences are often treated with the use of drugs, either prescribed and supported by a medical/psychiatric professional or as selfadministered by individuals through combinations of legal, illicit, and illegal drugs. Excessive use of alcohol or other drugs is frequently the preferred coping response to or the cause of a range of emotional, physical, psychological, and social experiences. These two situations lead to innumerable and inextricable links between mental health and alcohol and other drug use. Once we add to this, other overlapping issues of child protection, compulsory detention, criminal justice, family breakdown, homelessness, physical disability, and social functioning; it is no surprise that these co-occurring experiences are significant considerations for the social work profession. Quite simply put, combined use of substances with poor experiences of mental well-being is likely to present themselves as part of every social worker’s caseload and, in some instances, be a dominant aspect of their work. This chapter explores this interconnectivity. It begins by considering how these experiences synthesize into complex relationships and how these might be understood by social workers. In considering the role for social work, the chapter then explores how these relationships apply to specific populations that social workers engage with. It then offers a framework to place these experiences with regard to concepts of wellbeing and then analyzes how this understanding can be translated into considerations for social work practice with regard to prevention, treatment, and ongoing support. The chapter then moves on to examine some critical cultural, political, and social contexts for such practice. It concludes with highlighting key messages.
Critical Starting Points Language and keywords shape our understanding and practices (Williams 2014). Mental health and alcohol/drug use are no different. This chapter adopts expressions of mental health experiences or mental well-being, rather than mental illness or
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mental ill health. These positions are a deliberate attempt to adopt expressions that feel most consistent with a sociological understanding and social work values. This is not to deny that for some individuals there is a value in diagnosis and prescription, but rather to suggest that these experiences exist on a continuum, rather than there being “us and them” populations, and as behaviors, they are both cause and consequence to a complex set of phenomena rather than purely individual or pathological traits. It additionally adopts the term alcohol and drug use, rather than addiction or substance misuse. This is also about continuums of use rather than distinct populations. It is further a conscious step away from the current policy preoccupations, which tend to emphasize simply theory of change and logic models which suggests that any reduction in use will result in a reduction of associated harms. So, while sustained and alcohol drug use can lead to harms, it is helpful to understand it as a functional response to a range of pressures as much as it is problematic. The intimated complexities of these discourses set the tone for the approach of this chapter. It asks social workers to consider: • A parent whose drinking appears to be impacting on their children’s well-being is likely to be coping with their own adverse childhood experiences. • Individuals experiencing hallucinations may have triggered them through drug use but could equally be trying to mask out other uncomfortable experiences. • An older person in hospital having fallen may be there because of mental confusion but might equally have been intoxicated.
Interconnected Relationships This interconnectivity reflects that alcohol and other drug use are societally engrained practices. Most cultures use some form of alcohol or other drugs, and these have evolved over generations to develop their own relationship with them (Gossop 2013), for example, Romans and alcohol, Victorian Britain’s use of opium, and Native American consumption of peyote. The nature of this use and why some substances dominate certain societies can be related to local crop availability. Over time exploration, colonialization, and more recently globalization have seen more generic worldwide patterns of use (Alexander 2010). While there are differing laws regarding the legal status of substances, taking in the round, it can be argued that globally alcohol and a lot of other drug use is welcome in most societies and sanctioned through combinations of legality, prescribing, and taxation. Over the last 200 years, this use has been subject to increased consideration from economists, industrialists, legislators, physicians, psychiatrists, and sociologists. Previous chapters in this book have outlined how similar historical accounts can be made for mental health experiences and responses as engrained and changing over time. The preponderance of the two aspects of individual and societal behavior inevitably leads to them being co-occurring. These are
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overlapping existence and experiences rather than distinct evolutions. As social work has also evolved and mixed its relationships with psychiatry/psychological and radical/social understandings, then it too has developed more nuanced and interconnected interpretations. It is possible, however, within these overlapping complexities to suggest three very broad relationships between mental health and alcohol and other drug use that social workers should be considering: (i) The coping response: Individuals use legal, illicit, illegal, and prescribed alcohol, drugs, and medication to cope with significant experiences, including mental health. This use in turn, if not checked, can lead to the development of additional mental health experiences and symptoms. (ii) Trigger behavior: Alcohol and drug use leads to the onset of new mental health experiences. (iii) Inextricably linked: Over time individuals develop increasingly intertwined lifestyle patterns of use and mental health behavior, without any overt starting point or trigger. Given these possibilities, it is no wonder that they present themselves within much social work practice. Usually by the time social workers become involved, these are coexisting behavior and experiences (sometimes labeled as dual diagnosis; see below). In addition to some of the patterns of mental health within social work outlined in other chapters within this text, it is possible to highlight significant amounts of alcohol and drug use in social work caseloads (Livingston and Galvani 2014). This evidence base shows widespread numbers of individuals in children and family, older people, and other aspects of social work with experiences of alcohol and drug use. Critically it consistently indicates individuals presenting at mental health and alcohol/drug services are highly likely to have coexisting experiences (Garbare 2015; Megnin-Viggars et al. 2016; Moselhy 2009). These complex relationships can extend into other overlapping involvements, for example, alcohol use, gambling, and mental health combine in individuals’ lives (Lorains et al. 2011). This interconnectivity has led to an increased use of the term “dual diagnosis.” The UK National Institute for Health and Care Excellence (NICE) defined it as follows: Dual diagnosis usually refers to mental illness combined with substance misuse. But it may also be used to describe a number of other conditions, including physical health problems. In the UK social care sector, the term is sometimes used for people who have both a learning disability and a mental illness. (NICE 2016: 60)
Other expressions, used in the same context, include co-occurring disorders or dual pathology. It is important to acknowledge that this dual diagnosis is essentially a medical and psychiatric term. At its purest it refers to either of the following:
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• An individual whose behavior of symptoms meet the criteria of both a mental illness and a substance use disorder as prescribed in diagnostic handbooks (e.g., schizophrenia and opioid use disorder) • An individual diagnosed with a mental illness who also regularly use alcohol or drugs It is most likely to be preserved for those at the acute end of any given spectrum, where the emphasis is on treatment (often inpatient and community combined with prescribed medication), clear care pathway management, and multi-agency/ multidisciplinary responses. Where this leads to integrated treatment, it has been demonstrated to be beneficial to service users (Schulte et al. 2011). As we have already suggested, the broader the definition becomes, then the greater the level of prevalence. It would be hard to find too many individuals with acute, mental health experiences, who do not also use some substances. Thus, dual diagnosis is a term without a singular clear definition and which has a multiplicity of interpretations, and debate occurs about the appropriateness of its use to capture all the diversity and need of all co-occurring experiences (Garbare 2015). Accepting a broader use of mental health rather than mental illness, as more consistent and inclusive with social work values, suggests to this author that the interrelationship is best described as an encompassing “co-occurring experiences” rather than the narrow prescription of diagnosis. This helpfully acknowledges that an understanding and working with the here and now of individuals’ complex concerns and needs is perhaps more effective than trying to determine exact causality. These interconnectivities can also be understood by social workers through several other considerations that explore competing tensions as regular aspects of social work practice. Firstly, within the process and functions of assessments and interventions, alcohol and drug use can also be seen in the pulls between care needs and risk management (Keene 2010). Secondly, the debates about whether alcohol and drug use is considered a symptom or cause of problems allude to interpretations of whether drinkers and drug users experience or create harms. Thus, rather than seeing a world of addicts and nonaddicts, it is more useful for social workers to recognize users and nonusers and to recognize within the using population moderate, hazardous, harmful, and dangerous uses. Drinking or drug use can be seen as combinations of physical, psychological, and social behavior, which in turn are responses to and causes of physical, psychological, and social problems. Several models have been developed to help these considerations further, for example, Thorley’s (1982) model distinguishing between consequences of different types of use such as visits to accident and emergency are caused by intoxication, whereas brain disorders are linked to significant dependent use, and Zinberg’s (1986) model that looks at the drug (the nature and effect of the substance itself), the set (the nature of the user and their expectations in taking the drug), and the setting (the collection of environmental, social, and cultural factors). Models which do not simply look at alcohol and drug use as a disease or an individual addiction are well-suited to a more social understanding (Bancroft 2009; Gossop 2013; Neale 2002).
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Specific Populations One of the useful starting places for social workers to consider alcohol and drug use among different populations is in relationship to the life course. Human growth and development across the lifespan is an integral part of most social workers’ knowledge base. This might begin by seeing what role it places in increasing the vulnerability of the unborn, children, and young people. From here come the distinct explorations of adolescent use and the normalization of recreational behaviors or the development of consumption patterns to cope with difficult experiences. These formative experiences then influence early adult behavior, for example, increases in binge drinking or changes with family and work commitments. It is evidenced for most adults that levels of drink and drug use decline with age; however some adults will go on to develop entrenched and difficult experiences, and others will take up use later in life. Generally older people are likely to use far less alcohol and drugs than their younger counterparts. However, even experiences within these stages are not universal, and each different age can have distinct populations within it. What follows is an example of three such distinct populations, spread across the lifespan, and whom feature as a regular part of social work practice, young people, adults in the criminal justice system, and older people, all of whose use also has distinct relationships with mental health experiences.
Adolescents and Young Persons There is a lot of evidence to support arguments that adolescents or young people are experiencing a greater volume and acuteness of poor mental health, than their immediate predecessor generations, often manifesting itself in increased levels of self-harm and hospitalization. Alcohol and drug use is likely to be a part of such experiences. This said, young people use drink and drugs for many different reasons, everyone is different, but for many it will be just a normal part of growing up, without too much excess or consequential problems. For others the pursuit of escapism through intoxication is driven by a diversity of factors: relaxing and having fun, to increase confidence, boredom, peer or parental pressure, wanting to fit in, not thinking about problems, releasing anger, and covering up inside anguish. Those who are using particularly excessively will be at higher risk of homelessness, contact with the police, difficulties at school, pregnancy, sexually transmitted disease, abuse, neglect, self-harm, suicide, and assault. Social workers are often working with these specific young people and are well placed to talk to them about the issues and see any alcohol and drug use in its context, as well as have a role in talking about the risks and encouraging them to keep safe. Where young people’s experiences of alcohol and drug use, co-occur along with poorer mental health, this often places particular pressure on social workers. Traditional mental health services for younger people may not work with them while they are actively using and ask that they stop prior to any treatment intervention. In some instances, views will be expressed about mental health issues being a consequence
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of alcohol and drug use, so seeing young people for the problems they cause rather than the problems they experience. While behavior and experiences are often complex, they may in many countries struggle to meet narrow (medical diagnostic) criteria frequently placed upon specialist children and adolescent mental health services. This often leads families or social workers having to work through issues without specialist help. It is also important to note that young people are rapidly developing, and it may feel very inappropriate to quickly want to diagnose or label multifaceted difficulties as those of “mental illness” or “addiction.” It is also often hard to distinguish between the normative emotional and psychological angst of teenage years and natural experimentation with alcohol and drugs from more problematic experiences.
Adulthood For some young people, the complexities and breakdowns in well-being may result in crisis and entry into the criminal justice system. Alcohol and drug use, when combined with difficult mental health experiences, also results in large numbers of the adult population entering the criminal justice system. Typical of the interconnectivity that is the theme of this chapter, for some individuals sustained time spent in the criminal justice system, notably prison will be a cause in the development of mental health problems and the extension of possible drug use. At its most simplistic, those who experience mental health problems and turn to the use of illicit or illegal drug will be breaking the law and running the risk of entering the criminal justice system because of the illegal status of the substances they use. More likely though is the presentation of apparently aggressive behaviors, whether from mental health complications or excessive alcohol and drug use. Outbursts of violence will lead to arrest, cautions, court appearances, and community and custodial sentences. The criminal justice system and in particular the courts often play an increasing role in the mandating of treatment for mental health or alcohol and other drug use through the use of measures like Community Treatment Orders or Drug Rehabilitation Requirements. Once acquired criminal records or court appearances can often act as labels and pasts, which like those of mental health or the “addict” then become stigmatizing and shape experiences of discrimination. The overlapping considerations extend to those individuals will also become involved as victims of crime. Being beaten up, burgled, mugged, or raped is frequently a highly traumatic experience, which in turn can lead to mental health difficulties and/or use of alcohol and drugs as a means to cope with feelings of anger, guilt, loss of confidence, and shame. It is also argued that having complex mental health or alcohol and drug concerns will increase an individual’s vulnerability, including the likelihood of being a victim of crime or in need of safeguarding, for example, abuse, fraud, or violence. These situations can suggest two distinct intervention approaches: (i) ensuring that victim support processes take clear account of the possible consequences of emotional distress and (ii) developing systems for identifying vulnerability and delivering safeguarding.
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Older Persons Issues of vulnerability also occur with regard to older people. Alcohol and drug use among older people is said to be increasing (with aging populations and changing patterns of consumption), with evidence highlighting a corresponding increase in social work caseloads. Given that older people are less likely to present to specialist drug and alcohol services, this seems to reinforce the role for social workers here. Generally older people drink less and use fewer drugs than young generations; however, in some instances, the data suggest that older people may drink more often or regularly than young people (Wadd and Papadopoulos 2014). Two different involvements can be noted: continuing use (problematic experiences developed in earlier adult life) and late onset (developing new problems into older age). The reasons why older people use drink and drugs vary but can be summed up as experiences (of loneliness, isolation, marginalization, regret, change), loss (of partner, routine, role, ability, memory, social life), opportunity (for more use and for some income), coping (with retirement, bereavement, boredom, disability), and fear (of the outside world or dying). There is a range of health considerations that present themselves for older people who use drink and drugs. The physical changes of later life mean the body (and mind) is less effective in processing alcohol and other drugs. Some of the potential consequences include irregular heart rhythm and muscle fatigue, a false sense of being warm, loss of coordination or balance, slower reaction times, difficulties in absorbing minerals or vitamins, diabetes, memory loss, onset of dementia, alcohol related dementia, cancer, and liver failure. In many instances, older people will use alcohol or prescribed medication, as legitimate sanctioned behavior. It can have positive effects, increasing socialization, and be part of everyday life. Alcohol and other drug use may negate or increase the effects of prescribed medication. Such use increases the risk of mental health issues and more specifically degenerative brain disorders. Older people’s capacity is often affected by excessive use of alcohol and drug use. This may lead to an increase in vulnerability or play a significant role in abuse experienced by older people. There is, of course, a significant crossover with mental capacity and the ability to make particular decisions. Alcohol and drug use is likely to contribute or complicate any safeguarding considerations. This highlights the increased need to consider carers. They may experience the negative consequences of an older person’s use or procure/ support that use. Some carers will increase their own alcohol and drug use as a means of coping with the demands and pressures of caring; this could include paid as well as informal/family carers. Social workers have a role in their assessment and work in these situations to consider the behavior and needs of all those involved. In conclusion, these three examples highlight how a lack of mental health wellbeing combined with alcohol and drug use results in complicated pictures of cause and problem for different groups of individuals. They further illustrate that the experiences are different between groups and individuals. Where these individuals are of marginalized or vulnerable groups that already experience oppression and
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stigmatization and are often those groups of people that social workers are likely come into contact with, these considerations also raise concerns about the need to protect and support vulnerability. While it is not possible within the scope of this chapter to explore all the possible social work client groups for prevalence, experience, and consequences of mental health and alcohol and drug use, it is possible to note that these overlapping concerns also extend to other specific marginalized populations such as lesbian, gay, bisexual, and transgender (LGBT), ethnic minority, and indigenous groups. LGBT groups have higher prevalence of alcohol and drug use compared to heterosexual populations, often as a coping response to experiences of stigma and violence (Medley et al. 2016). Within ethnic minority populations, it has been demonstrated that culture and religion are both a protective factor against the onset of alcohol and drug use and a cause of isolation for those who develop alcohol and drug problems (Beddoes et al. 2010; Hurcombe et al. 2010). All groups and individuals are different, with changes occurring over generations and some very specific community-tailored responses required. Similarly, the experiences of different indigenous populations are now well documented with accounts of much higher prevalence of use (notably alcohol), co-occurring problems, and the need for creative outreach service responses (Stewart et al. 2018).
Well-Being as Framework of Understanding One of the ways to understand these complex relationships is to adopt a framework that utilizes concepts of well-being. Thus, to see alcohol and other drug use or poor mental health experiences as a breakdown in well-being, and responses to these expereinces as promotion and support of well-being (Livingston and Thompson 2016). Focus on well-being is becoming an increasing policy orientation. In the broadest sense, well-being is equated with quality of life. This seems to be an important consideration and, for social work, a vital broadening from slight interpretations of well-being as the opposite of illness or poor health. Well-being is a useful integrative concept, which incorporates many dimensions and applications, for example, environmental (clean air/water), equality (access/income/rights), material (hunger), physical (longevity of life), satisfaction (existential), social (support), and spiritual (peace). A sense of the multidimensional complexity and diversity can be seen in Lindert et al.’s (2015) systematic review of measurement scales for wellbeing. Social workers can recognize how this multiplicity of dimensions cuts across other key theoretical traditions, for example, John Bowlby, Erik Erikson, Sigmund Freud, Eda Goldstein, Karl Marx, and Abraham Maslow. This framework seeks to capture two other key approaches gaining prominence in alcohol and other drug, mental health, and social work practices. First is the increasing dialogue and emphasis being placed on the adoption of strengths-based rather than deficit-based approaches. In this sense, achieving mental health wellbeing is a far more useful consideration than treating mental illness. Second is the emergence of increasing references to recovery orientations; in this sense, what
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becomes important is the quality of future lives lived and not the stigmatizing history of past experiences and labels. Traditional responses to alcohol and other drug use have tended to focus on individual use as the problematic behavior. They then suggest that if this use changes, then everything else will be all right. Similar echoes can be considered regarding mental health, so the treatment of mental illness as the panacea to all someone’s struggles. In their most extreme, what both have and continue to utilize in common is the removal of individuals from society to prison or psychiatric units. Both have a long history of dominance by psychiatric professions, use of medication, and an evidence base drawn from random control trials. This has led to responses that suggest the need to prevent availability and excessive consumption and treat those who fail as problematic individuals. While treatment can be demonstrated to be effective and clearly has a legitimate role, the reasons why people use or experience mental health problems and the responses to these life events appear far more complex. They suggest an understanding that is equally economic, political, moral, and social, as it is medical and psychological. Indeed, many argue that cause and solution lie far more in issues of social justice and injustice rather than individual blame. It is further possible to then overlay these fresher critical considerations, with those of traditional interpretations onto the framework. Some indicative alignment can be seen in Fig. 1. This is helpful as (a) a way to reframe experiences and related provision but also (b) to reinforce that more energy and resources spent on promoting and supporting well-being should lead to less breakdown and by consequence less problematic use of alcohol and other drug or acute mental health experiences (and therefore the corresponding need for the acute-, deficit-, and intrusive-based service provision). This chapter now takes each of the three sections of the framework and their constituent elements and explores them regarding key learning for social work.
Prevention and outreach: (health promotion, brief interventions, harm minimization) Promoting well-being
Responding to crisis in well-being
Treatment: (detoxification, substitute prescribing, psychological interventions, rehabilitation, integrated family services,)
Supporting and mainatinaing well-being
Recovery orientated provision: (peer -led interventions and activities, focusing on lifestyle, within and beyond formal service provision)
Fig. 1 Framework for well-being orientation of traditional approaches
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Promoting Well-Being: Prevention and Outreach Many governmental alcohol and other drug strategies contain strong aspirations toward prevention of use, harms, and supply. They often outline four broad groups of alcohol and drug users. These typologies help provide a framework for social workers to think about those they work with and the prevention response (Table 1). Messages about using less, or using more infrequently are predominantly targeted at low risk or hazardous users. At a whole population level, these educational and health promotion messages occur through developing legal frameworks, public information campaigns, and product labeling and are not particularly the preserve of social work. However, prevention (safer use) interventions can also be aimed at specific populations, so those already engaged in risky behavior. These can be considered as (a) brief interventions and (b) harm reduction services. Social work has a much clearer role to play here in promoting well-being. Brief interventions are essential short substance use-focused interventions that take place within a wider health or social care intervention, such as social work. They additional referred to as identification and brief advice (IBA) or extended brief interventions (Lavoie 2010). The evidence base for the effectiveness of brief interventions is good but predominantly drawn from general practitioner, health, and criminal justice settings (O’Donnel et al. 2013). However, social work has been considered as suited to delivering brief interventions. They typically involve 5–10 min of dialogue and advice (with extended brief interventions lasting longer) and involve the use of motivational interviewing techniques and skills. Thus, they are built around good communication skills that guide and/or encourage people to consider reasons to alter their use. They involve offering information about further interventions and services that can support any change in decisions individuals Table 1 Typology of prevention responses
Low risk
Alcohol and other drug use Abstainers or those who use is within recommended guidelines
Hazardous
Binge, excessive, or recreational use leading to increased risk of harm
Harmful
Heavy and sustained use, causing some increasing levels of harm Drink and drug use maintaining physical or psychological dependency. Unable to cope without use
Dependent
(Mental health equivalent) Sustained mental health Well-being
Experience some occasionally experiences or systems of mental distress Regular mental discomfort Acute experiences or mental illness
Prevention response Whole population Health promotion Recommended guidelines Brief interventions Motivational interviewing Harm reduction Specialist outreach
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make. As such, they can be incorporated into generic social work assessments and early interventions. Common to brief interventions is the use of a standardized screening tool or instrument to measure the extent of any alcohol and drug use and its possible consequences. The use of such tools helps social workers to identify users within the typical typology outlined above. The Alcohol Use Disorders Identification Test (AUDIT) ten-item questionnaire (Babor et al. 2001) is often regarded as the gold standard for alcohol screening. It explores frequency and impact of individual alcohol use with each question utilizing a five-point scale. The subsequent of scores have been utilized in care pathway mapping to associated interventions (Raistrick et al. 2006). Shorter versions of this and other tools including CAGE, Michigan Alcohol Screening Test (MAST), and Paddington Alcohol Test (PAT) are also well supported by an evidence base and have been specifically adapted for use with distinct groups, for example, MAST and older people (Livingston and Galvani 2014; Alcohol Learning Centre 2017). Research supports more general substance use screening tools like the substance abuse subtle screening inventory (SASSI) for other drugs. One of the well-evidenced and inclusive assessment tools used for drugs (as well as alcohol) is the Christo inventory for substance-misuse services (CISS) (Christo et al. 2000), and social workers are likely to come across and/or use it. Indeed, research has demonstrated some social workers are aware of AUDIT and other such tools and use them successfully in their practice (Livingston 2013). These assessment tools are useful for sharing and developing common understanding, notably in the context of multi-agency and multidisciplinary practice. They help create conversations about well-being, what is impacting on it and where changes might be considered. In this sense they also help identify harms or negative consequences of use. These conversations are often supported by two seminal models used in alcohol and drug practice: motivational interviewing and cycle of change (Miller and Rollnick 2012; DiClemente 2006). These have been incorporated into a range of social work practice approaches and training, including mental health, and as such are often familiar to many social workers. Motivational interviewing has been extensively researched and validated (Lundahl et al. 2010). At its core is an assumption that people will be ambivalent about change as any significant change in people’s lives can have positive and negative effects. Exploring such trepidation toward change applies to mental health as much as alcohol and drug use. Motivational interviewing is most useful with and therefore targeted at those struggling with or ambivalent toward change. These represent pre-contemplation and contemplation about change and are the first two stages of change within the cycle of change model. It is likely that many of those with complex alcohol and other drug use combined with mental health are among those struggling with change. Where the use is ingrained, it becomes appropriate for social workers to consider the role of harm reduction toward safer use and less chaotic behavior. In some instances, social workers will be a part of multidisciplinary teams involved in the direct delivery of such services. Typically for alcohol and other drugs, these are often specialist outreach service, providing support with needle exchange, reducing transmission of diseases, sexual health, soup kitchens, and other homeless service provisions.
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Many of these services will see individuals experiencing complex mental health issues too. Harm reduction services help keep people alive and prevent further deterioration in lifestyles and other experiences. They are also opportunities in which to provide conversations about motivation for change. For some the nature of their experiences becomes overwhelming. It results in presentations at Accident and Emergency Departments and other acute treatment settings through incidents of fear, injury, overdose, and self-harm. Such presentations are often moments in which these acute breakdowns in well-being often require more specific and acute service provision responses and act as entry into the “treatment” system. Sometimes if combined with acute mental health symptoms, these may be of a compulsory nature. In other instances, those with mental health treatment needs may be denied access to them, because of their current or recent alcohol or drug use being defined as the issue.
Responding to Crisis in Well-Being: Treatment Many of the presentations of breakdown in well-being are common to alcohol and drug use and mental health: homelessness, hospitalization, general practitioners, police cells, prison, and shelters. These are often referred to as “frontline services,” and social work or social services are often included in this list or work within these environs. Individual feelings of desperation or hopelessness are significant moments of crisis, illness, or loss that result in the need for more acute levels of intervention and support. The traditional alcohol and drug responses are those of detoxification and substitute prescribing. Detoxification is a medically assisted process for withdrawing from or reducing dependency and can occur in hospital or appropriate home conditions. Substitute prescribing involves the provision of legal pharmaceuticals to replace alcohol or illegal drugs. Like acute mental health provision, these interventions are often either (i) inpatient settings, usually special units, but also general hospital and prisons or (ii) through community-based doctors, general practitioners, and specialist support staff. These services are invariably health and psychiatric led. The evidence base for “clinical” interventions is usually well established through traditional random control trial research, academic publication, and subsequent governmental guidance (Raistrick et al. 2006; Independent Expert Working Group 2017). Social workers rarely adopt the role of administering such treatment but clearly have roles in enabling individuals to access such and further may be parts of multi-agency teams monitoring progress within treatment programs. This will be particularly the case for social workers employed in community-based teams/programs who play a greater role in treatment than social workers in inpatient settings. This role can include where medically assisted interventions are often complemented with psychological therapies (cognitive behavioral or counseling). Psychological therapies are also provided within residential or community settings, including for a smaller number long-term rehabilitation units. In all these contexts, perhaps the most
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crucial role for social workers is the role associated with smoother discharge and transition from acute provision to longer-term environmental and lifestyle support. Like the treatment responses for mental health, there is an increasing emergence of approaches within alcohol and other drug provisions, which emphasize strengthbased considerations and greater inclusivity of whole families. These approaches particularly lend themselves to the skill and value set of social work. Social workers in many countries of the world are familiar with the positive outcomes of approaches like signs of safety and solution-focused therapy, across a range of client groups (Wheeler and Hogg 2011). These approaches in suggesting the necessity of working with whole families acknowledge that family members both contribute to the problem situation and have the potential to support change. In some instances, individuals will turn to alcohol and drug use to escape familial pressures, for example, drinking to blot out persistent parental arguments or drug use to escape difficult conversations about sexuality. It is easy to see the overlaps with anxiety or depression in these circumstances. Families can also be environments where pressure to use might exist. These could be cultural norms or a particular family member/partner dragging others into their own heavy levels of alcohol or drug use. Occasionally families may also inadvertently perpetuate or collude with alcohol and drug use, for example, buying the alcohol or paying of drug dealers for fear of a family member getting beaten up. Very much like the interconnected relationships within a family that both add to and support difficult mental health experiences, families are often the context in which individuals use alcohol and drugs. However, there is also lot of increased guidance and research that evidences the need to focus on the positive role that family and familial networks can play in treatment interventions associated with alcohol and drug use. They have been considered to be effective in both helping address those problematically using alcohol and other drugs and improving the well-being of the family members (Copello et al. 2006a). Two examples of such specific approaches are social behavior and network therapy (SBNT) (Copello et al. 2006b) and the five-step method (Orford et al. 2013). SBNT is an eight-session structured intervention, which identifies, builds, improves, strengthens, and supports networks of people, around those using. Network may be familial-, community-, or professional-based, with an emphasis on ensuring that the network is sustainable beyond the formal worker engagement period. The five-step method focuses on the support needed for family members rather than the alcohol or drug user. It educates and supports family members about drinking as well as exploring their possible responses. Research has shown that it is effective in reducing both the physical and psychological symptoms the family members suffer as well as improving their coping skills and strategies (Orford et al. 2013). Many of the recent anti-psychiatry critiques of current mental health treatment provision (Bentall 2009; Davies 2013) equally apply to alcohol and drug use treatment provision, for example, a querying of the ever-increasing number of possible diagnosis with each subsequent edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM); different interpretations of these diagnoses; concerns at an overpromotion and problems caused by and reliance on medications;
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and relationships between research and industry. Perhaps one of the most striking examples of this critical discourse is the recent heroin epidemic in the United States, following a massive expansion and overprescription of opioid painkillers (Department of Health and Human Services 2017). Despite these reservations, individuals need and benefit from acute support at moments of crisis. Social workers need to be aware of, enable access to, and support individuals/families through the core treatment provision. These responses have dominated paradigms, resources, and agendas, probably at the expense of others. However, more recent discourse and trends have seen an emphasis in the alcohol and other drug world for consideration of support beyond treatment, what might be loosely considered as recovery agendas or maintenance of well-being.
Supporting and Maintaining Well-Being: Recovery-Orientated Provision The characteristics and processes of recovery for mental health have become well established (Leamy et al. 2011). Many of the same considerations are increasingly being understood as applying to recovery from alcohol and drug use. This includes formulations of unique, personal, and nonlinear journeys, often had within stages and without professional support (Timpson et al. 2016). There are a range of definitions that are used, and it can be argued that the debates about exactly what is recovery for or from alcohol and drug use remain live discussions (White 2014). Within alcohol and drug policy documents, the emphasis is often on maintaining abstinence and making a positive contribution to society. Many of the processes that support this are the same between mental health and alcohol/drug use and include preoccupations with reframed identities, connectedness, futures, meaningfulness (or usefulness), and empowerment. Acute interventions and treatments are the processes by which individuals gain stability to begin to rebuild or reclaim healthier lives. Indeed, many would argue that without such, individuals are highly likely to have experiences of lapse and relapse in alcohol and drug use or mental distress. Increasingly in both arenas, this need is expressed in terms of recovery. These developments can be seen in two specific contexts: (i) the recovery orientation of exiting professional-led provision or the extension of treatment services into lifestyle support and (ii) the increased proliferation of networks of supported activity beyond core service provision, usually exclusively led and managed by communities of peers (Wardle 2009; White 2009). The former development of recovery agendas has been accompanied with an increased claim for peer or service user involvement. Much of this originated in those advocating about the quality and sparsity of provision. Much more recently, it has been incorporated with a more mainstream policy agenda that has led to greater role of alcohol and drug users in a range of commissioning, service provision, and evaluation processes. The support by others who have experienced similar experiences provided within the context of existing service provision is often referred to as
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coaching, mentoring, or role modeling. Two examples of this recent explosion in peer-led alcohol and drug treatment programs are Intuitive Recovery and SMART Recovery (Intuitive Recovery 2018; UK SMART Recovery 2018). While these twelve-step programs such can exist with treatment systems, the most common twelve-step program; Alcoholic Anonymous, is an example of the second type of recovery – peer to peer support outside of funding and professional referral systems. The provision of distinct interventions by service users and carers to their peers often extends beyond supporting alcohol and other drug use change and into helping to maintain much wider lifestyle changes (Livingston et al. 2011). Such groups provide vital support for people away from the formal structures of professional help, often occurring outside of normal offices and treatment operating hours, including creative, physical, and social activities as art, climbing, dance, drama, dry bars, football, leisure outings, meals, music, photography, and walking. The history of, and evidence for, the effectiveness of peer support and self-help in supporting individuals to make changes to their alcohol and drug using lifestyle is well documented and thus can reflect a range of activities. The roles for social workers within this context are varied. They can include supporting engagement in existing groups, helping to begin such groups and actively supporting activities of groups. While what has been described so far is broad and generalized, it is important to consider alcohol and other drug use is heterogeneous. Thus, for social workers, it is important to understand how these three broad types of experiences and intervention response vary within some distinct populations worked with.
Cultural, Political, and Social Contexts This chapter started by setting alcohol and other drug use within societal contexts. It has further argued for understanding and service provision that goes beyond just that of a small number of ill individuals. It is important to finish with a further contextual analysis of the above conversations. Alcohol and pharmaceutical and illegal drug production and supply are part of a global industry. Consequently, use and problems associated with use are to some extent universally spread around the world. However, the exact nature of what is used, sanctioned, and tolerated or not, within different countries and communities, is far from ubiquitous. Just as different societies take different approaches to supporting and understanding mental health, then the same can be said of alcohol and drug use. Policy (and service provision) response to alcohol and drug use varies significantly around the world. This in part of course reflects different historical relationships and cultural use of different substances but also reflects divergent political (and economic) priorities. Policy approaches sit on a spectrum, but broadly speaking it can help to think of the different approaches in a potential typology of (i) liberal, (ii) conservative/restrictive, and (iii) intolerant.
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There have recently been a significant number of countries that have softened their approach to cannabis and other uses. Among the most liberal of approaches are those in the Netherlands and Portugal where there are high levels of decriminalization/ legislation of a range of drugs and Jamaica and some US states which have recently moved to substantive cannabis liberalization or legalization. More restrictive policies are those like that of Hong Kong and its very high levels of alcohol taxation or Russia’s refusal to support methadone treatment programs. In those countries where the approach is one of intolerance, there is often use of the death penalty, especially for drug dealing or trafficking. Most notably at present is Malaysia where capital punishment is used for drug trafficking or Saudi Arabia use of flogging to punish those possessing alcohol. With different drug treatment policy comes different implementation and, in turn, variations about the nature of exact service provision. Essentially though where there is a drift to more liberal approaches, there will be a greater amount of state support for and diversity of interventions and treatment provision. While policy is an important influence on the shape of experiences and possible response to them, there is also often a cultural dimension too. This can be whole country or sections within. In this sense, culture becomes the “normative” experience or pressure. Cultures can be combinations of protective, restrictive, and supportive. Often this is aligned to religious dictate or interpretation of use (although these can be contested and vary). Many Muslims are likely to avoid any intoxicants, and especially alcohol. Rastafarian beliefs often support cannabis use, but not alcohol. This diversity means that it is critical that policy and service responses have an appropriate cultural orientation (Wu et al. 2013). It is likely that individuals in conservative and/or intolerant environments that develop concerns about alcohol or drug use will attract a significant social stigmatization. Alcohol and drug use when combined with mental health experiences may lead to a compound stigmatization sometimes referred to as “double jeopardy.” What can be generally inferred about the cultural, political, and social is that: • Alcohol and drug use has a cultural context. Its use, condolence, or prohibition is shaped by group norms. These are often influenced by important actors: family, media, and religion. • Alcohol and drugs as often politically awkward. Changes to the status quo are often contested and electorally uncomfortable. This is often accompanied by strong industrial (economic) pressures. • Taking alcohol and other drugs is often a socially endorsed activity. Many of the problems of alcohol and drug use manifest themselves in wider social contexts rather than being directly experienced by those doing the using. • Alcohol and drug use is also part of positive social experiences and may play a role in celebrations and rituals. It can further be argued that these considerations meant that those who experience difficulties with their alcohol, medication, and other drug use or develop acute
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mental health problems from this (at its extreme death) are the acceptable (human) collateral damage for maintaining industries and societies that perpetuate the everincreasing availability of such substances (Livingston 2017).
Conclusion If prevention is better than a cure, it might be argued that for many years, service provision has been involved in offering the alcohol and drug (if not mental health) equivalent of the sticking plaster. There has been a huge emphasis on treating deviant, ill, or sick individuals. In many cases, this has involved providing them with statesanctioned alternative drugs (medication). We have responded to the breakdown in well-being rather than to ensuring its prevention. As such, it can be argued that we have struggled to successfully prevent excessive and dependent use and its subsequent harms (after all it’s still happening now). It is often said by drink and drug users that it is easier to get off than stay off alcohol or drugs. In this context, we have then overfocused on the crisis in well-being rather than spent more resources and time fostering maintenance of well-being as individuals recover. Many of these developments have, at times, marginalized the role of sociological understanding and social work involvement. This chapter has articulated for a more nuanced understanding of complex interwoven experiences, sitting within continuum of whole population alcohol and drug use and mental health experiences. It suggests that as such, this is very much social work business.
Key Messages • Expect alcohol and drug use in all forms of social work practice • Traditional models of treatment are better integrated by social workers into understandings of well-being • Consider that alcohol and drug use is often a response to as much as a cause of other problems • Working with alcohol and drugs is a legitimate social work role • Social workers have many core skills that work well with alcohol and drug use; these are often the same as deployed in mental health • Experiences are different for individuals, client groups, cultures, and societies • People can and do change, frequently sustaining long-term recovery • A focus on promoting and supporting improved socialization often reduces the need to escape via the use of alcohol and other drugs.
Cross-Reference ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Individual Approach to Mental Health from a Psychodynamic and Cognitive Behavioral Perspective
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References Alcohol Learning Centre (2017) Identification tools. Public Health England, London. https://www. alcohollearningcentre.org.uk/Topics/Browse/BriefAdvice/SIPS/IdentificationTools/ Alexander B (2010) The globalisation of addiction: a study in poverty of the spirit. Oxford University Press, Oxford Babor TF, Higgins-Biddle JC, Saunders JB, Monteiro MG (2001) AUDIT, the alcohol use disorders identification test. World Health Organization, Geneva Bancroft A (2009) Drugs, intoxication and society. Polity Press, Cambridge Beddoes D, Sheikh S, Khanna M, Prlat R (2010) The impact of drugs on different minority groups: a review of the UK literature. Part 1 ethnic groups. The UK Drugs Policy Commission, London Bentall RP (2009) Doctoring the mind: why psychiatric treatments fail. Allen Lane, London Christo G, Spurrell S, Alcorn R (2000) Validation of the Christo inventory for substance-misuse services (CISS): a simple outcome evaluation tool. Drug Alcohol Depend 59(2):189–197 Copello A, Templeton L, Velleman R (2006a) Family interventions for drug and alcohol misuse: is there a best practice? Curr Opin Psychiatry 19(3):271–276 Copello A, Williamson E, Orford J, Day E (2006b) Implementing and evaluating social behaviour and network therapy in drug treatment practice in the UK: a feasibility study. Addict Behav 31(5):802–810 Davies J (2013) Cracked: why psychiatry is doing more harm than good. Icon, London Department of Health and Human Services (2017) The US opioid epidemic. Washington Department of Health and Human Services. https://www.hhs.gov/opioids/about-the-epidemic/index. html DiClemente C (2006) Addiction and change: how addictions develop and addicted people recover. Guilford Press, New York Garbare D (2015) Dual diagnosis: a report on prevalence, policy and management. Alcohol Forum, Letterkenny Gossop M (2013) Living with drugs, 7th edn. Ashgate, Farnham Hurcombe R, Bayley M, Goodman A (2010) Ethnicity and alcohol: a review of the literature. Joseph Rowntree Foundation, York Independent Expert Working Group (2017) Drug misuse and dependence: UK guidelines on clinical management. Clinical guidelines on drug misuse and dependence update 2017. Department of Health, London Intuitive Recovery (2018) Homepage. https://www.intuitivethinkingskills.co.uk/intuitive-recovery Keene J (2010) Understanding drug misuse, models of care and control. Palgrave Macmillan, Basingstoke Lavoie D (2010) Alcohol identification and brief advice in England: a major plank in alcohol harm reduction policy. Drug Alcohol Rev 29(6):608–611 Leamy M, Bird V, Le Boutillier C, Williams J, Slade M (2011) Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry 199(6): 445–452 Lindert J, Bain PA, Kubzansky LD, Stein C (2015) Well-being measurement and the WHO health policy Health 2010: systematic review of measurement scales. Eur J Public Health 25:731–740. First published online: 22 January 2015 Livingston W (2013) ‘Not from a book’ – the acquisition of knowledge and its use in practice by social workers, with particular regard to alcohol. PhD thesis, Bangor University, Bangor Livingston W (2017) Death, grief and bereavement: relationships with alcohol and other drug use. In: Thompson N, Cox GR (eds) Handbook of the sociology of death, grief and bereavement: a guide to theory and practice. Routledge, New York, pp 224–236 Livingston W, Galvani S (2014) Using evidence to inform working with people who misuse substances. In: Webber M (ed) Applying research evidence in social work practice. Palgrave Macmillan, Basingstoke, pp 156–169
350
W. Livingston
Livingston W, Thompson N (2016) Promoting well-being: crisis, loss and alcohol. Illness Crisis Loss 27:87. https://doi.org/10.1177/1054137316668640. Published Online 20 Sep 2016 Livingston W, Baker M, Atkins B, Jobber S (2011) A tale of the spontaneous emergence of a recovery group and the characteristics that are making it thrive: exploring the politics and knowledge of recovery. J Groups Addict Recover 6(1):176–196 Lorains FK, Cowlishaw S, Thomas SA (2011) Prevalence of comorbid disorders in problem and pathological gambling: systematic review and meta-analysis of population surveys. Addiction 106:490–498 Lundahl BW, Kunz C, Brownell C, Tollefson D, Burke BL (2010) A meta-analysis of motivational interviewing: twenty-five years of empirical studies. Res Soc Work Pract 20(2):137–160 Medley G, Lipari R, Bose J, Cribb D, Kroutil L, McHenry G (2016) Sexual orientation and estimates of adult substance use and mental health: results from the 2015 National Survey on Drug Use and Health. NSDUH Data Review. https://www.samhsa.gov/data/sites/default/ files/NSDUH-SexualOrientation-2015/NSDUH-SexualOrientation-2015/NSDUH-SexualOrien tation-2015.htm Megnin-Viggars O, Brown M, Marcus, M, Stockton S, Pilling S (2016) Coexisting severe mental illness and substance misuse: community health and social care services. Review 1: the epidemiology, and current configuration of health and social care community services, for people in the UK with a severe mental illness who also misuse substances. A systematic review. National Institute for Clinical Excellence, London Miller W, Rollnick S (2012) Motivational interviewing: helping people change, 3rd edn. Guilford Press, New York Moselhy HF (2009) Co-morbid post-traumatic stress disorder and opioid dependence syndrome. J Dual Diagn 5(1):30–40 National Institute for Health and Care Excellence (2016) Coexisting severe mental illness and substance misuse: community health and social care services – National Guideline 58. NICE, London Neale J (2002) Drug users in society. Palgrave, Basingstoke O’Donnell A, Anderson P, Newbury-Birch D, Schulte B, Schmidt C, Reimer J, Kaner E (2013) The impact of brief alcohol interventions in primary healthcare: a systematic review of reviews. Alcohol Alcohol 49(1):66–78 Orford J, Velleman R, Natera G, Templeton L, Copello A (2013) Addiction in the family is a major but neglected contributor to the global burden of adult ill-health. Soc Sci Med 78:70–77 Raistrick D, Heather N, Godfrey C (2006) Review of the effectiveness of treatment for alcohol problems, London, National Treatment Agency for Substance Misuse Schulte SJ, Meier PS, Stirling J (2011) Dual diagnosis clients’ treatment satisfaction – a systematic review. BMC Psychiatry 11:64 Stewart T, Reilly R, Ward J (2018) Community-based interventions to address alcohol and drug use in indigenous populations in Australia, New Zealand and Canada. JBI Database Syst Rev Implement Rep 16(7):1485–1489 Thorley A (1982) The effects of alcohol. In: Plant M (ed) Drinking and problem drinking. Junction Books, London Timpson H, Eckley L, Sumnall H, Pendlebury M, Hay G (2016) Once you’ve been there, you’re always recovering: exploring experiences, outcomes, and benefits of substance misuse recovery. Drugs Alcohol Today 16(1):29–38 UK SMART Recovery (2018) Homepage. https://www.smartrecovery.org.uk/ Wadd S, Papadopoulos C (2014) Drinking behaviour and alcohol-related harm amongst older adults: analysis of existing UK datasets. BMC Res Notes 7:741. https://doi.org/10.1186/17560500-7-741 Wardle I (2009) Recovery and the UK drug treatment system: key dimensions of change. Lifeline Project Limited, Manchester
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Wheeler J, Hogg V (2011) Signs of safety and the child protection movement. In: Franklin C, Trepper T, McCollum E, Gingerich W (eds) Solution-focused brief therapy: a handbook of evidence-based practice. Oxford University Press, New York White WL (2009) The mobilization of community resources to support long-term addiction recovery. J Subst Abus Treat 36(2):146–158 White WL (2014) The boundaries of recovery. http://www.williamwhitepapers.com/blog/2014/11/ the-boundaries-of-recovery.html Williams R (2014) Keywords: a vocabulary of culture and society. Fourth Estate, London Wu L-T, Blazer DG, Gersing KR, Burchet B, Swartz MS, Mannelli P (2013) Comorbid substance use disorders with other Axis I and II mental disorders among treatment-seeking Asian Americans, native Hawaiians/Pacific islanders, and mixed-race people. J Psychiatr Res 47(12):1940–1948 Zinberg N (1986) Drug, set and setting: the basis for controlled intoxicant use. Yale University Press, New Haven
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Background . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Lived Experiences Pre-migration . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Lived Experiences Post-migration . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Language Barriers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Racism and Discrimination . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Economic, Social, and Political Factors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Hope, Optimism, and Resilience . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Biomedical Model: Defining Mental Illness from a Western Perspective . . . . . . . . . . . . . . . . . . . . . Post-traumatic Stress Disorder (PTSD) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Depressive Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Complicated Grief . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Cultural Shape of Mental Health and Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Example One: Paying Attention to Physical Pain . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Example Two: Paying Attention to Spiritual Pain . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Example Three: Paying Attention to Social Pain . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Work Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Knowledge for Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Methods for Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Values for Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Transforming Lived Experience . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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M. Higgins (*) School of Social Sciences, UNSW Sydney, Sydney, NSW, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_13
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M. Higgins
Abstract
Migration, and particularly forced migration, creates unique psychosocial vulnerabilities that bring affected individuals, families, and communities into contact with social workers and mental health systems. Longitudinal studies with migrant and refugee communities indicate that mental health often remains low years after resettlement in Western countries, particularly due to marginalization and social exclusion which layers upon experiences of trauma and loss. Conversely, unique resilience factors are also present in migrant and refugee communities, including their constructions of health and illness and community values and beliefs. Notably, the biomedical model, which is dominant in the field of mental health, tends to pathologize and medicalize distress and may denigrate or ignore diverse perspectives on health and illness. Broader economic, social, and political factors that impact so profoundly on mental health of migrants and refugees are also often ignored by service provision that is underpinned by biomedical models of care. This chapter draws upon scholarly evidence to explore these intersecting themes and then propose essential knowledge, skills, and values for mental health-focused social work. The chapter describes how social workers can integrate clinical and critical perspectives in practice and, by harnessing lived experience and cultural expertise of people from refugee and migrant backgrounds, enhance power and autonomy; restore individual, family, and community wellbeing; facilitate safe and effective intercultural interactions; and advance principles of social justice. It argues for a model of mental health practice that is deeply attuned to diverse constructions of health and illness, holistic, justice-oriented, and informed by expertise from below. Keywords
Refugees · Migrants · Mental health and illness · Lived experience · Risk factors · Cultural shape of resilience · Transforming the foreign
Introduction Social work practice with refugees and migrants requires engagement with the expertise of individuals, families, and communities themselves, described as expertise from below (Ife 2010). This is especially true in the field of mental health where migration, and particularly forced migration, creates unique vulnerabilities for individuals, families, and communities and frequently brings people into contact with formal, often unfamiliar, systems of support and, sadly, surveillance. The author of this chapter is an Australian, female social worker with Irish and English heritage. She has experienced temporary migration but not prolonged or forced migration and has engaged with refugees and migrants over many years in social work practice and studied social work knowledge, skills, and values for working with people from diverse backgrounds in her doctoral dissertation.
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This chapter draws upon data from a variety of sources to explore how social work practitioners can have deep conversations about mental health needs and issues with refugees and migrants using practice knowledge, skills, and values that do not pathologize, exclude, or ignore diverse perspectives, but are instead responsive and curious about lived experience. It attempts to explain why some studies document noticeable declines in mental and physical health experienced by migrants and refugees who settle in countries of asylum or migration such as Australia and proposes a model of mental health practice that is deeply attuned to diverse cultural understandings and constructions of health and illness.
Background Research indicates that people from refugee and migrant backgrounds experience a range of issues relating to mental health, including symptoms associated with preand post-migration stress, depression, and anxiety (Kaplan 2009; Shier et al. 2011; Gušić et al. 2017). While much of the knowledge presented in this chapter relates to practice with both refugees and migrants, no one can really claim to be able to speak in depth about refugees and migrants, or even about refugees or migrants. Some scholars warn that to do so risks producing “inaccurate generalizations” (Cummings et al. 2011, p. 159). One cannot assume, for example, that the mental health experiences of a 50-year-old migrant from Poland will resonate with, or be informed by, the mental health experiences of a 22-year-old woman from Southern Sudan, even if both migrated because they met the criteria for refugee resettlement. Analysis by the United Nations High Commissioner for Refugees (UNHCR) provides clarity about why this is so: Refugees are persons fleeing armed conflict or persecution. Their situation is often so perilous and intolerable that they cross national borders to seek safety in nearby countries, and thus become internationally recognised as “refugees” with access to assistance from States, UNHCR, and other organisations. They are so recognised precisely because it is too dangerous for them to return home, and they need sanctuary elsewhere. These are people for whom denial of asylum has potentially deadly consequences. Migrants choose to move not because of a direct threat of persecution or death, but mainly to improve their lives by finding work, or in some cases for education, family reunion, or other reasons. Unlike refugees who cannot safely return home, migrants face no such impediment to return. If they choose to return home, they will continue to receive the protection of their government. (UNHCR 2016)
Indeed, De Haene et al. (2010, p. 250) describe the refugee experience as “a chronic process of traumatization.” This chapter focuses more on social work with refugees because reliable data suggests that, overall, these members of our communities experience higher rates of mental illness and lower rates of service utilization than the general population and highlights their unique experiences of powerlessness, uncertainty, and precariousness before, during, and after resettlement (Minas et al. 2013).
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Social workers are often employed in generalist positions to assist individuals, families, and communities from refugee and migrant backgrounds but may also be employed in specialized capacities. Social workers provide support to refugees and migrants in roles such as on-arrival reception, assessment, information, referral, case management, assistance to find accommodation, and short-term torture and trauma counseling (Fozdar and Hartley 2013). Bilingual and multicultural models of service are interlinked with mainstream services such as hospitals, child and family support services, and mental health services that are mandated to be responsive to the needs of culturally and linguistically diverse (CALD) clients, though evidence suggests they are underutilized by these populations (Minas et al. 2013; Thomson et al. 2015). Nevertheless, social workers engage with individuals, families, and communities from refugee and migrant backgrounds in a variety of ways. According to the Australian Association of Social Workers (AASW), “the purpose of practice in the mental health field is to promote recovery, restore individual and family wellbeing, to enhance the development of each individual’s self-determination and to advance principles of social justice” (AASW 2014). Yet, significant practice dilemmas exist in the provision of care and support to people from refugee and migrant backgrounds. Organizational resources including time, access to interpreters, and level of commitment to cultural responsiveness are barriers to inclusion of people from CALD backgrounds in mental health services (Shannon et al. 2012). Moreover, the highly politicized nature of the sector can undermine morale and job satisfaction and lead to burnout or high turnover of staff (Briskman et al. 2008). Finally, evidence suggests that mainstreaming care for refugee and migrant communities can undermine culturally responsive service provision in many cases, while outsourcing care to the not-for-profit sector can “make coordination and long-term development of institutional capacity difficult” (Fozdar and Hartley 2013, p. 26). Longitudinal studies with migrant and refugee communities indicate that mental health and self-assessed health can remain low years after resettling in Western countries (Thomson et al. 2015; Jatrana et al. 2017). This chapter offers knowledge, skills, and values for social work in this challenging field of practice, starting with pre-migration and post-migration information, because “attention to lived experiences of mental illness should always be the starting point for professional practice” (Bland et al. 2015, p. 20).
Lived Experiences Pre-migration Estimates of the number of forcibly displaced people worldwide exceed 68 million (UNHCR 2019a). A very small proportion of people who are forcibly displaced from their homes and communities are resettled as refugees each year to a small number of countries with planned refugee resettlement programs, including the United States, Canada, Sweden, France, the United Kingdom, Australia, and New Zealand
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(UNHCR 2019b). The number of people in refugee camps or living in precarious situations is growing exponentially, and many will experience highly uncertain futures. More broadly, international migration reportedly encompassed 258 million migrants in 2018, including 150.3 million migrant workers, 25.4 million registered refugees, and 4.8 million international students, and reportedly comprising 124.8 million women and 36.1 million children (IOM 2018). Over the past two decades, armed conflict has undermined peace, stability, and security in many parts of the world, causing internal displacement and migration across borders in unprecedented numbers. Many from refugee-producing nations have suffered historically under repressive colonial rule and continue to endure military conflicts, authoritarian regimes, human rights violations, and protracted refugee situations. Human rights remain significantly compromised in many parts of the world, significantly in South Sudan, Afghanistan, and Syria, due to armed conflict that undermines peace, stability, and security, causing large numbers of people to flee, often to neighboring countries. Human rights issues for large numbers of refugees and internally displaced peoples globally include access to asylum; registration; protection of women and children; disability support; health and food security; education, particularly literacy; and delivery of life-saving services such as water, sanitation, shelter, health care, and nutrition (UNHCR 2019c). Scholarly literature available to English-speaking social workers tends to concentrate more on post-migration experiences than pre-migration experiences or traditional belief systems, placing “significant limitations on the ability to develop a holistic understanding of the situations of immigration and migration, and that of refugees” (Shier et al. 2011, p. 46). While little empirical evidence is available regarding the connection between mental illness and pre-arrival stressors, these risk factors likely have a profound effect on mental health outcomes in resettlement. Mental health issues of refugees are often exacerbated by physical disorders relating to the lasting impacts of torture and trauma as well as time spent in transition and in refugee camps. Poorly healed bones, poor oral health, malnutrition, and limited immunization protections are commonly experienced by refugees prior to resettlement (Shier et al. 2011). In addition, refugees often experience educational disruptions before being resettled, which impact educational inclusion and overall success post-arrival (Olliff 2010).
Lived Experiences Post-migration Post-migration, many of the risk factors for poor mental health that are identified by researchers are common to both refugee and migrant populations. They include language barriers; racism and discrimination; and economic, social, and political factors (Shier et al. 2011). Acculturation often presents intersectional challenges associated with age, gender, sexuality, culture, and beliefs and is shaped by how and why migration occurred.
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Language Barriers Language barriers have widespread and deleterious impacts on mental health and well-being of refugee and migrant communities resettled to Western countries, including impeding education, employment, and social inclusion (Minas et al. 2013). Worse, a number of studies confirm that possessing limited literacy and vocabulary creates specific limitations for migrant and refugee help-seekers in mental health settings, relating to their knowledge about and access to services, capacity to describe their symptoms and the implications of their illness, and ability to make choices about recommended treatments (McKeary and Newbold 2010; Shannon et al. 2012). Language barriers entrench existing misinterpretations and misunderstandings across cultures; introduce additional complexity and potentially confusion into diagnostic processes; and hamper relationship building and meaning-making in mental health settings (Brown et al. 2010; McKeary and Newbold 2010; Pavlish et al. 2010; Mitschke et al. 2016). Despite awareness about the importance of service accessibility, studies document systemic barriers to effective and inclusive mental health practice including poor funding of interpreters and availability of limited time to adequately manage intercultural communication processes (Minas et al. 2013).
Racism and Discrimination Racism and discrimination undermine mental health and create stress for refugees and migrants. For example, Leuder et al. (2008) demonstrate how racially hostile and deficit-based media representations of migration and asylum-seeking in host communities affect acculturation and self-esteem of migrants and refugees. Interviewees in their study strove to “establish an authentic personal identity” characterized by narratives in which the places they inhabited prior to arrival “negated personal qualities and [appeared to be] ‘unliveable’,” while their lives when resettled were also constructed as difficult: “the change in living circumstances on becoming a refugee was not one for the better. . . economically or socially” (Leuder et al. 2008, p. 216). Other studies highlight broader sociopolitical impacts of negative media constructions of migrants and refugees. For example, Hightower (2015) analyzes the dehumanizing effects of limbo and shows how limbo is employed by the media to establish and uphold limited parameters within which refugees, asylum seekers, and migrants are allowed to exist, enabling implementation of restrictive laws and policies regarding forced migration. Similarly, Pupavac (2008) demonstrates how media representations distance refugees from their host populations, discussing stereotypes including that of talented outsider and occupier of the sick role. Settings where racism and discrimination are most commonly experienced include medical services, workplaces, and schools as well as everyday settings. Concerningly, a study from the United Kingdom documented that migrants from African-Caribbean backgrounds are “three to five times more likely than white people to be admitted to a psychiatric hospital with a first diagnosis of psychosis, . . . [often] admitted and treated compulsorily” (Kirkbridge and Jones, cited by
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Bhugra et al. 2014, p. 109). Clients from Kirkbridge and Jones’ study also reported greater levels of dissatisfaction with services. Lack of cultural responsiveness and flexibility within institutions is often accompanied by discriminatory policies and racist beliefs in these settings.
Economic, Social, and Political Factors Economic, social, and political factors are consistently implicated in studies of mental health of migrants and refugees. Some of the most impactful factors are the processes of seeking asylum, employment processes and norms, poverty and insecure housing, quality of relationships in communities, and losses or stressors relating to their customs and norms. These factors pose challenges for migrants and refugees which vary in intensity and impact, are often enduring, and can worsen over time. Stressors relating to the processes of seeking asylum are associated with extremely poor mental health outcomes. The terrible impacts of mandatory and indefinite immigration detention, temporary protection visas, and other punitive policies relating to seeking asylum are well-documented (Martinez et al. 2015). Evidence confirms that those affected have sound claims for refugee protection and are already highly traumatized. Further, refugees and migrants experience many uncertainties during resettlement including relocating from resettlement centers, processing, finding affordable housing, and establishing networks (Hynie 2018). In addition, the first 12 months after voluntary or forced migration appear to involve a great deal of uncertainty and stress, and this is a high focus in service delivery although longer-term settlement services are also offered to migrants and refugees, in areas of need including education, employment, language acquisition, legal advice, and health care (RCOA 2011). Employment processes and norms in Australia and elsewhere tend to exclude refugees and migrants. People who are “visibly different” in communities, due to their accent, skin color, physical features, and attire, are much less likely to experience successful employment outcomes in the workforce than white, English-speaking applicants, despite having suitable qualifications and skills (Colic-Peisker and Tilbury 2007; Saechao et al. 2012). Refugees and migrants experience barriers to suitable employment including inaccessible or hard to navigate support services; not being recognized for the qualifications and expertise they possess; being discriminated against when seeking work; and lacking local knowledge and experience (RCOA 2010). Refugees and humanitarian entrants often fare even worse than those in other migration streams and experience “overrepresentation among the ranks of underemployed, lowly paid, low-skilled, precariously employed and casualised members of the labour force” (RCOA 2010, p. 3). The strong link between unemployment and mental illness is well-documented. Unemployment, underemployment, and workplace discrimination implicate personal dignity, livelihoods, family functioning, social participation and inclusion, and mental health outcomes (Tinghög et al. 2010; Chantler 2012; Bhugra et al. 2014). In addition to producing mental health issues (Tinghög et al. 2010), poverty and economic insecurity undermine attempts to secure suitable housing in
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resettlement. Primary homelessness is reportedly experienced by single men from refugee backgrounds at very high rates (Flatau et al. 2014). These effects for refugees and migrants are often exacerbated by exploitative and discriminatory processes that undermine or obscure tenancy rights and are compounded by generally poor housing affordability, reduction of public housing stock in most countries studied, and unsuitability of existing housing stock, especially in the case of larger migrant and refugee families (Ziersch and Due 2018). Social factors such as the quality of relationships in multicultural communities are also important for refugee and migrant acculturation. A study by Flatau et al. (2014, p. 2) highlighted “a general lack of communication, or unfriendliness, amongst neighbours [in one Australian city] who were also concerned about the ‘visibility’ of groups of refugees, particularly young people, congregating in public places.” These dynamics reportedly had multiple effects for well-being and mental health of their refugee and migrant informants. Losses and stresses relating to customs and norms within families often provoke sadness, trauma, and anxiety for many refugees and migrants resettled in Australia and similar countries. Men from migrant and refugee backgrounds can resent their loss of status and role as the patriarchal head of the family (Muchoki 2013), while women often experience “greater daily freedoms than they or their families are accustomed to,” potentially creating conflict within marital relationships (Deacon and Sullivan 2009, p. 273). Some women report that their desire for greater influence regarding choice of marital partners and decision making in the home leads to criticism, harassment, and exclusion from their communities of origin, compounding other gaps, such as poor knowledge about services, few culturally relevant services, economic disadvantage, and isolation (Lenette 2014; Ochala and Mungai 2016). Dissonances in values and norms also create pressures for children and parents from migrant and refugee backgrounds, where changed roles and status, erosion of shared norms, language barriers, and differences in time taken to acculturate have been noted to contribute to grief, depression, anxiety, trauma, and family conflict (Lejukole 2008; Losoncz 2011; Milos 2011; Renzaho and Vignjevic 2011). These various patterns create significant mental health concerns. Stigma and beliefs surrounding diagnoses of mental disorders can create feelings of shame for people from migrant and refugee backgrounds. Individuals and families from migrant and refugee backgrounds may go to great lengths to avoid being diagnosed with, or hospitalized for, a mental illness. Further, experiencing judgment from mental health professionals during treatment reportedly impedes many refugees and migrants from accessing and continuing to access health-care services. This may mean that people refuse to engage with services and service providers or withdraw from treatment partway through (Thomson et al. 2015). Gender intersects with economic, social, and political factors throughout migration and acculturation. According to Tinghög et al. (2010, p. 84), “to be a woman, to be divorced or a widow, to have a poor social network, economic insecurity and a high number of types of traumatic episode were unmitigated risk factors for low subjective wellbeing, depression and anxiety.” Similarly, Deacon and Sullivan (2009, p. 273) noted that women from refugee backgrounds are generally more
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vulnerable than their male counterparts, often possessing “less formal education and weaker foreign language skills,” which exacerbates financial insecurity and social isolation, and mental distress, in resettlement. Other research has demonstrated that for some women, barriers to accessing health services increase with years of residence, underpinned by worries about losing their job, fear of being hospitalized, and fear of being judged by their friends or the person from whom they sought help: “surprisingly, these barriers were greater for the more-educated refugee women and strengthened with years of residence” (Drummond et al. 2011, p. 206).
Hope, Optimism, and Resilience Hope, optimism, and resilience of refugees and migrants are linked to local language proficiency, family connectedness, opportunities to maintain and make meaning of culture and tradition, experiences of personal control and self-efficacy, and having social supports (Minas et al. 2013). Values including respect for elders, communalism and responsibility, concern for human dignity, motivations to succeed, and sources of protection and strength including religious observance all contribute to resilience (Hutchinson and Dorsett 2012). These values, traditions, and resources might not be immediately obvious or valued by Western practitioners, but they appear to impact on physical and mental health, help-seeking, and service utilization.
Biomedical Model: Defining Mental Illness from a Western Perspective While there is a plethora of literature to aid conceptualization of social work practice in the mental health domain, dominant ideologies tend to pathologize and medicalize distress such that “normal responses to traumatic experiences are transformed into a diagnosis” (Chantler 2012, p. 327). More broadly, because the majority of social work research publications about migration available to English speakers originate from the United States and the United Kingdom, with somewhat fewer studies emerging from Canada, Israel, Australia, India, the Netherlands, Sweden, and Hong Kong (Shier et al. 2011), knowledge for practice is dominated by Westerncentric perspectives on health and illness. Because of this, the biomedical model is influential for household, state, and national spending on treatment of mental illness and provision of services in Australia and similar countries. For example, $9.1 billion was spent on mental health of Australians in 2016–2017, with 4.0 million people (18% of the population) receiving mental health-related prescriptions (AIHW 2019). The priority placed upon medication of mental illness means that social workers must be familiar with the Diagnostic and Statistical Manual of Mental Disorders (DSM), developed by the American Psychological Association (APA) (AASW 2014). An influential diagnostic tool globally, this manual is underpinned by a “biomedical model” of health and illness which prioritizes and measures
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symptomatology and pathology. Key aspects of this biomedical model of health and illness will be presented below, addressing post-traumatic stress disorder (PTSD), depression, and complicated grief because these are the most common conditions with which refugees and migrants are diagnosed. First produced more than 60 years ago, the DSM has become “a standard reference for clinical practice in the mental health field [and] the best available description of how mental disorders are expressed and can be recognised by trained clinicians” (APA 2014). Currently in its fifth edition, the DSM-5 defines mental disorder as: . . .characterised by clinically significant disturbance in an individual’s cognition, emotion regulation, or behaviour that reflects a dysfunction in the psychological, biological, or developmental processes underlying mental functioning. . . usually associated with significant distress or disability in social, occupational, or other important activities. (APA 2014, n.p.)
Notably, the APA (2014) clarifies: An expectable or culturally approved response to a common stressor or loss, such as the death of a loved one, is not a mental disorder.
Post-traumatic Stress Disorder (PTSD) The most commonly studied mental disorder experienced by migrants and refugees is PTSD (Shier et al. 2011). The DSM-5 presents the following diagnostic criteria for PTSD: exposure to actual or threatened death, serious injury, or sexual violence; presence of intrusion symptoms; persistent avoidance of stimuli and negative alterations in cognitions and mood and marked alterations in arousal and reactivity associated with the traumatic event(s); and symptoms which cause significant distress or impairment for greater than 1 month (APA 2014, n.p.). PTSD may also be accompanied by dissociative symptoms (APA 2014, n.p.). Chantler, who criticizes the medicalization of PTSD, states, “clearly, symptoms of distress require intervention, but equal attention needs to be paid to the wider context in which distress is generated” (2012, p. 327). As outlined earlier in this chapter, prior to their forced migration, people from refugee backgrounds have overwhelmingly experienced and witnessed multiple traumatic events and have been exposed to traumatic events that were witnessed or experienced by a family member than other members of the population, which correlate strongly with the risk of developing PTSD (Teodorescu et al. 2012). A systematic review of the prevalence of serious mental disorders in refugees resettled in Western contexts suggested that people from refugee backgrounds are up to ten times more likely to experience PTSD than other members of the population, with refugee women most at risk (Fazel et al. 2005; Hollander et al. 2011). Concerningly, there is an association between experiencing PTSD and suicidal behavior, particularly when mental distress is compounded by social exclusion, low-socioeconomic status, and lack of psychiatric
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care (Ferrada-Noli et al. 1998). These realities suggest that social workers and other practitioners need to be alert to the signs and symptoms of PTSD and need to develop appreciable skills for holistic, hopeful, and transformative exploration of lived experience and intervention with individuals, families, and communities from refugee and migrant backgrounds.
Depressive Disorders Depressive disorders, too, are frequently linked with experiences of both forced and voluntary migrations (see, e.g., Hansson et al. 2012; Teodorescu et al. 2012; Bhugra et al. 2014). The DSM-5 reports that “the common feature of [depressive] disorders is the presence of sad, empty, or irritable mood, accompanied by somatic and cognitive changes that significantly affect the individual’s capacity to function” (APA 2014, n.p.). Scholarly examination of depression in refugee and migrant communities emphasize socioeconomic, integration, and acculturation issues, such as those discussed earlier in this chapter, and complicated grief associated with losses sustained during migration and resettlement. As with PTSD, people affected by depressive disorders are more likely to display suicidal ideation and behaviors, particularly in circumstances of social exclusion, poverty, and poor access to culturally appropriate care (Ferrada-Noli et al. 1998; Centers for Disease Control and Prevention 2013). Interestingly though, the incidence of depressive disorders in migrant and refugee communities has been shown to vary by culture of origin, age, gender, trauma load, and socioeconomic circumstances (Hansson et al. 2012; Bhugra et al. 2014; Gilliver et al. 2014). This evidence further underlines the importance of each individual, family, and community being treated as unique and capable of partnering with and instructing their helping professionals about their mental health.
Complicated Grief Grief, and other responses to a significant loss, may include symptoms resembling a depressive episode, such as intense sadness, rumination about the loss, insomnia, poor appetite, and weight loss, though are more likely to be characterized by feelings of emptiness and loss (APA 2014, n.p.). According to the APA, grief symptoms usually decrease in intensity over time, may be accompanied by positive emotions and humor, and are usually accompanied by specific thoughts and memories (APA 2014, n.p.). This does not always happen in situations of complicated grief, such as may be experienced due to forced or voluntary migration, and critical social work scholars argue that the DSM-5 and the wider academic literature do not sufficiently address culturally diverse ontologies of grief and loss. Migratory grief and loss have been conceptualized as a function of three categories, searching and yearning, disorganization, and nostalgia (Casado and Leung, cited by Cummings et al. 2011),
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while Allan (2009) describes the grief experiences of refugees and migrants as multilayered, intersectional, accumulative, and potentially recurring. More broadly, it is argued that biomedical models of health and illness impose external expertise on clients and communities (Chantler 2012), impacting workers capacity and readiness to pay attention to, or even elicit, the lived experience of individuals, families, and communities, and frustrate efforts to provide culturally safe and responsive services (Minas et al. 2013). Bland, Renouf et al. highlight that “serious mental illness is profoundly life changing for all who experience it” (2015, p. 35). This is particularly true for people from migrant and refugee backgrounds, as they experience specific risk factors which are thought to undermine their mental health, as well as their capacity to get much-needed support. We do well to remember that medicalized and pathologizing approaches compare unfavorably with holistic definitions of mental health and approaches to treatment (Hynie 2018).
The Cultural Shape of Mental Health and Illness How mental health is constructed in contexts of resettlement influences diagnosis, treatment, and broader social policy and research agendas. Sleijpen et al. (2016, p. 158) urge professionals to do more research regarding the “cultural shape of resilience” as well as the “negative consequences of war and migration” (2016, p. 158). Insights about how meaning is constructed in relation to these complex and changing social realities are gained by considering lived experience, which allows exploration and potentially transformation of people’s perceptions about their lives (Higgins 2019). Empirical evidence drawn from research with migrants and refugees from Cambodia, Iran, South Sudan, and Somalia elucidates striking connections between cultural beliefs, mental health understandings, and expectations of treatment. Three examples which illustrate diverse ways of thinking about and expressing mental illness are presented below: physical, spiritual, and social constructions of mental illness. These examples allow us to explore elements relating to the cultural shape of mental health and illness.
Example One: Paying Attention to Physical Pain This first example highlights the importance of paying attention to physical pain as this kind of pain often conveys information about mental health of refugees and migrants. Han et al. (2012) conducted research to develop and pilot a conceptual framework for culturally competent treatment of Cambodian refugees. Their study highlights that social workers and other mental health service providers paying attention to physical pain are crucial in the assessment and treatment of mental health issues of migrants and refugees from Cambodia. According to the authors, “somatisation of
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symptoms appears to be the most common presentation of PTSD for Cambodians,” specifically relating to sore neck and orthostatic pain (p. 215). Han et al. suggest these presentations of trauma may connect with Cambodian spiritual beliefs including the conviction “that personal hardship in the current life is predestined as a form of karma,” causing people to feel “shameful about the trauma. . .or [to feel they must] accept the act of suffering as being righteous” (2012, p. 216). Based on this analysis, the researchers piloted a practice model utilizing three clinical approaches in tandem: cognitive-psychological treatment, mindfulness meditation, and a family therapy approach.
Example Two: Paying Attention to Spiritual Pain This second example highlights the importance of paying attention to spiritual pain as this kind of pain also conveys information about mental health of refugees and migrants. Martin (2009) conducted research to explore how mental health is conceptualized by older Iranian migrants. Her findings highlight that paying attention to spiritual pain may be crucial in the assessment and treatment of mental health issues of migrants, and potentially refugees, from Iran. According to the author, “the illness of the ruh – the person’s inside, everything that makes them who they are – falls outside the realm of thoughts and mind and is more localised at the heart, senses, feeling, and emotional levels” (p. 121). Martin describes confusion experienced by Iranian people when the focus of assessment and treatment is on the head and the brain region as opposed to their “insides,” that is, their chest, stomach, and heart region. It seems that participants in Martin’s study felt that “Western doctors give too much attention to the mind and, hence, gave too many medications to alter the mind” (2009, p. 123). Based on this analysis, Martin recommended the use of “cultural brokers,” that is, consultants from various ethnic backgrounds who can “provide insight and information on health beliefs, culturally appropriate methods of showing respect to elders and problem areas in health-care interactions” (2009, p. 124).
Example Three: Paying Attention to Social Pain This third example highlights the importance of paying attention to social pain as this kind of pain also conveys information about mental health of refugees and migrants. Higgins (2019) conducted research to explore how human rights are conceptualized by African families from refugee backgrounds. In relation to mental health, this study highlighted the importance of paying attention to social pain in the assessment and treatment of mental health issues of refugees from South Sudanese backgrounds. A Southern Sudanese participant in the study described how each member of the community bears responsibilities to others. When the community perceives that people are incapable or unable to meet these responsibilities, this ruptures the social body. Albert stated:
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Such people will be treated as outcasts. You will be the talk of the day. And if your children grow up, no one would even like to marry your daughter or your son, because they will always be talking: “you go to that family, they’re not responsible”. So, no one would like to associate themselves with shameful things. Always, they want to appear like they are responsible people. (p. 263)
Albert describes the shame and loss of status experienced by South Sudanese people who become visibly incapacitated due to mental illness. Several participants in Higgins’ study described their strategies of quietly withdrawing, minimizing contact, and managing how much they share about themselves in order to avoid being stigmatized or labeled crazy. It was very important to each person in the study to preserve their status. Based on this analysis, Higgins (2019) recommended attention to individual and family dignity, support to meet one’s responsibility to others, and acknowledging prevailing family and community norms – attention to sources of social pain. Other scholars have identified similar patterns of thinking about mental health in African communities. For example, Pavlish et al. (2010, p. 355) documented that their female Somali participants “viewed health holistically and in the context of their everyday lives,” noting that health for these women comprised “being engaged in productive activities, relating well to self, family and Allah; and living in communities that ‘watch our children and avoid violence’.” There is evidence that causal explanations about mental health issues vary strikingly between minority and majority culture caseworkers. In a study of African and non-African caseworkers exploring contributing factors of PTSD experienced by young people from Sudan in foster care, African caseworkers explained the PTSD symptoms as arising because of the youths’ reduced, or nonexistent, social responsibilities. They recommended mirroring traditional roles that these young people could embrace, such as that of an eldest brother with obligations toward their younger siblings. In contrast, non-African caseworkers focused on the youths’ relative inexperience of family life and trauma as explanations for their PTSD symptoms (Bates et al. 2005, p. 641). Physical, spiritual, and social constructions of mental health and illness extend Western models of mental health care. They also highlight salient resilience factors and treatment implications of cultural and religious traditions. Clearly, social workers in mental health service provision require insight into their clients’ cultural beliefs and perspectives on mental health and illness to provide high-quality service and holistic responses. Janoff-Bulman writes about PTSD as resulting from “shattering of basic assumptions individuals hold about themselves and their worlds” (cited in Han et al. 2012, p. 214). Equilibrium and wellness can be reestablished using practices that affirm are culturally responsive to their pre- and postmigration experiences, beliefs, and funds of knowledge about health and illness. These salient features emerge in listening deeply to individual, family, and community narrative. Harnessing this knowledge allows families and communities to express, and play a more active role in addressing, present mental health concerns.
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Social Work Practice Knowledge for Practice For social work practitioners, knowledge emerges from our relationships with our clients, families, and communities. Connolly and Healy (2018) argue that the dual emphasis on micro and macro change is a distinguishing feature of social work as a helping profession: while micro change addresses the particular needs of individuals and groups, macro change focuses on the systems that oppress or disadvantage people. These authors identify five overarching practice orientations for this work: ecosystems, onion-peeling, faulty-engine, storytelling, and mountain-moving theories (Connolly and Healy 2018). Each of these theoretical frameworks for social work practice in the mental health field emphasizes, to different degrees, critical and clinical practice understandings. Clinical practice is concerned with understanding and treating symptoms and focuses social workers on understanding trauma experiences; building insight and awareness about behaviors, thoughts, beliefs, and attributions; and facilitating selfactualization. In contrast, critical practice is concerned with inequality and powerlessness and focuses social workers on enhancing power and control, diverse cultural and spiritual perspectives, social inclusion, and social participation, addressing poverty and social exclusion, and reducing stigma. The clinical and the critical domains of practice are most usefully conceptualized as separate and interrelated, not mutually exclusive (Bland et al. 2015). Holding the critical and clinical domains of practice in mind focuses practitioners and their clients on several relevant and intersecting concepts including evidencebased practice, recovery, participation, social inclusion and social exclusion, stigma, and spirituality. This requires movement beyond efforts to “gain knowledge of the other” (Nadan et al. 2015, p. 369) and “room for extended compassionate engagement” (Westoby and Ingamells 2010, p. 2). The holistic definition of health that is offered by the World Health Organization (WHO) provides a valuable conceptual framework for social workers. They propose: Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity. . .Mental health and well-being are fundamental to our collective and individual ability as humans to think, emote, interact with each other, earn a living and enjoy life. On this basis, the promotion, protection and restoration of mental health can be regarded as a vital concern of individuals, communities and societies throughout the world. (WHO 2014)
Social workers will recognize in this definition several key ideas that resonate with their own practice goals in this area of practice, including realization of potential; enjoyment of activities and interests; positive relationships with others; productivity in work or study; and contribution to the community. Evidence suggests that practitioners activate transformative potential in treatment when future hopes, fears, and expectations are shared and collaboratively re-storied.
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This is because expectations and predictions about the future affect the here and now. In this model, the practitioner assists the client and family to begin to author and trust a new story about what is yet to be (Higgins 2019). Concepts of recovery and resilience are expanded by this future-focused approach that aims to re-establish humanity and create hope for the future following trauma, forced migration, and geographic relocation.
Methods for Practice Informed by these theoretical frameworks, psychosocial and systems-focused methods that prioritize diverse experiences and worldviews are considered core to social work practice with refugees and migrants (Allan 2009). Three broad categories of treatment are available to practitioners, psychological treatments (talking therapies), physical treatments (medications), and exercise, mindfulness, and self-help (Black Dog Institute 2018), while empirical evidence confirms beneficial effects of the following psychosocial interventions for PTSD, depression, and anxiety: narrative exposure therapy (NET); narrative exposure therapy for children (KIDNET); eye movement desensitization and reprocessing (EMDR); common elements treatment approach trauma-focused cognitive behavioral therapy (CBT); interpersonal therapy; writing for recovery; teaching recovery techniques; culturesensitive oriented peer; family-group intervention; and need-satisfaction intervention (Turrini et al. 2019). CBT with a trauma focus enables reduction of trauma symptoms by teaching emotional regulation and developing coping strategies (de Arellano et al. 2014). The treatment combines psychoeducation about trauma reactions with gradual exposure, behavior modeling, coping strategies, and body safety skills training and addresses the needs of parents, partners, and caregivers where required (de Arellano et al. 2014). NET and KIDNET draws upon trauma-focused CBT and testimony therapy which enables reframing of traumatic experiences (McPherson 2012). A shortterm treatment which can be offered in precarious contexts and by trained local counselors, NET comprises therapeutic discussion, documentation, and processing of trauma experiences within broader life narratives. Treatment is offered in three parts, psychoeducation, storytelling, and testifying, to the completion of the narrative (McPherson 2012). Ecosystems theories underpin several models of psychosocial intervention, focusing on individual, social, and cultural systems of support and increasing efficacy of therapeutic work with refugees and migrants. Interventions that are influenced by ecosystems theories highlight and activate intrapersonal resources including resilience, coping, and adaptation as well as interpersonal support provided by family, friends, communities, and societies, including socioeconomic and political resources (Connolly and Healy 2018). Multigroup and multiple-family group interventions are recommended to “build on the strengths of families and communities, while emphasising resilience rather than vulnerability” (Lacroix and Sabbah 2011, p. 47). These approaches have proven
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effective in dealing with trauma and focus on “empowerment of individuals and families within their community of origin should be promoted as a means of helping refugees and asylum seekers reconstruct their social and community fabrics and networks” (Lacroix and Sabbah 2011, p. 47). Moreover, peer-led group mental health interventions may more readily overcome mistrust, uncertainty, fear, and stigma and may be more useful supports to people from refugee and migrant backgrounds (Mitschke et al. 2016). Treatment involves active engagement of individuals, families, and communities in shared acknowledgment of traumatic events and experiences of losses experienced, emphasis on survivorship and rituals that promote memory and healing, processes to reinvigorate family and community systems, and reinvestment in relationships and life pursuits. Artistic, creative, and embodied methods for practice support reinvigoration of family and community systems and personal healing. These include digital storytelling, photography, community music, community video, and use of metaphor to externalize mental health problems, minimize language barriers, and empower clients (Higgins 2019; Lenette 2019). Hughes illustrates the effective use of these methods by discussing a tree of life metaphor she utilized with Afghani mothers from refugee backgrounds resettled in London. Mapping their experiences in color drawings “enabled parents and children to develop empowering stories about their lives, which were rooted in their cultural and social histories,” and separated the person from the problem by using “externalizing conversations” fostering “trust and a spirit of collaboration” between the mothers (Hughes 2014, pp. 139, 144, 146).
Values for Practice Available understandings of mental illness are insufficient to address diasporic community arrangements and do not fully address the disconnects brought about by war, poverty, global dislocation, and structural racism. Expectations migrants and refugees might hold for the future are too often silenced by the need for efficiency or the diagnostic process. This provides impetus for the pursuit of broader cultural explanations of mental health and well-being. The ability of practitioners to identify, engage with, and demonstrate respect for cultural values and norms is crucial to the experience of mental health and well-being in migrant and refugee communities. Paying attention to diverse constructions of mental health and illness encourages greater attention to the holistic, relational, and contextual nature of health and illness. This enables collaborative dialogue about mental health issues. Social systems and structures can enhance refugee and migrant mental health. To implement culturally responsiveness with these populations requires a whole-of-organization approach where inclusiveness and a partnership approach are evident at all levels of a service. Inclusiveness toward families and carers is vital. Provision of care to a relative or partner with mental illness may prove disruptive for family members and often affects physical health, employment status, energy levels, and mental health while at the same time bringing happiness and fulfillment of duty (Poon and Lee 2019). According to Poon and Lee, people from CALD backgrounds experience
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considerable barriers to help-seeking, including language barriers and exclusion from the process of assessment and care planning. Moreover, they note that traditional beliefs and stigma can create distress or mediate both the support they receive from their communities and their perception about their role as carer. Finally, limited resources appear to be available to those who care for relatives with mental illnesses, particularly those from CALD communities (Poon and Lee 2019). Respectful, inclusive dialogue that accommodates sharing of diverse perspectives is a fundamental strategy for treating mental illness and promoting mental health, especially where significant behavioral change is necessary. By acknowledging and engaging with cultural norms and values, family and community roles, and personal experience, families and communities feel more respected and understood and are more likely to remain engaged with treatment. Social work assessment tools that are infused with these values include culturagrams, which produce graphical representations of individual and family culture, developed by Congress and Kung (2013); the cultural awareness tool, which enables culturally sensitive exploration of client presenting problems, produced by Seah et al. (2002); the comprehensive principles and domains of cultural assessment developed for cross-cultural psychiatric assessment by Andary et al. (2003, pp. 20–23); and the cultural auditing tool for multicultural counseling developed by Collins et al. (2010). More recently, the theory of human rights from below has emphasized the creative emancipatory potential of participating in meaningmaking and co-construction of treatments and interventions with those who are least powerful in society (Ife 2016).
Transforming Lived Experience While a focus on lived experience is not new in the area of mental health, the Western world is only just beginning to appreciate the depth and value of culturally diverse ways of knowing, being, and doing. Existing principles of diagnosis and treatment of mental illness, located in Western medicine, are often viewed as unrecognizable, foreign, and shameful by people from refugee and migrant backgrounds. Not only this, but existing principles of diagnosis and treatment can fail these members of our communities in their times of need. Approaches which facilitate co-discovery of insight about lived experience with migrants and refugees living with mental health issues can transform the foreign (Higgins 2019, p. 289), represented by moments in the relationship between self and other in which perspectives align, thereby widening and reframing the dialogue between service provider and client, family, and/or community. Why is it that migrant and refugee families and communities find their stories and views about mental health often ignored in resettlement contexts, affecting their present and raising fears about the future? Perhaps these individuals and families need practitioners to appreciate their stories as a message and able to “focus [more] on the zone of hidden fluctuation where the people can be found” (Fanon 2004, p. 163). By actively engaging with diverse perspectives on mental
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health and illness, we can re-story family and community concerns and move into a space of deeper connection with, and recognition of, their wisdom in the present time and place.
Conclusion This chapter on social work with refugees and migrants has offered a synthesis of new and emerging evidence about social work knowledge, values, and approaches well suited to working with refugees and migrants. It has highlighted numerous social consequences of mental illness in refugee and migrant populations and discussed the limitations of biomedical models of health and illness. By providing empirical evidence to illustrate key knowledge, skills, and values for practice in mental healthfocused social work, it has demonstrated how social workers can harness lived experience and cultural expertise of refugees and migrants backgrounds to enhance power and autonomy; restore individual, family, and community well-being; facilitate effectively intercultural interactions; and advance principles of social justice. Three goals emerge from the analysis presented in this chapter: ensuring practice is holistic, justice-oriented, and fundamentally informed by wisdom from below.
Cross-References ▶ Developmental Approach to Mental Health ▶ Social-Cultural Ecological Perspective ▶ Theories on Mental Health, Illness and Intervention
References AIHW (2019) Mental health services in Australia 2019 V20.0: web report. Media release. Australian Institute for Health and Welfare (AIHW), Canberra Allan J (2009) Weaving together the personal and the political in loss and grief. In: Allan J, Briskman L, Pease B (eds) Critical social work: theories and practices for a socially just world. Allen & Unwin, Crows Nest American Psychological Association (APA) (2014) Diagnostic and Statistical Manual of Mental Disorders (DSM-5). Retrieved 28 Apr 2019, from https://dsm.psychiatryonline.org/doi/book/ 10.1176/appi.books.9780890425596 Andary L et al (2003) Assessing mental health across cultures. Australian Academic Press, Bowen Hills Australian Association of Social Workers (AASW) (2014) Practice standards for mental health social workers. Australian Association of Social Workers, Canberra Bates L et al (2005) Sudanese refugee youth in foster care: the “lost boys” in America. Child Welfare 84(5):631–648 Bhugra D et al (2014) EPA guidance mental health care of migrants. Eur Psychiatry 29(2):107–115 Black Dog Institute (2018) Treatments for post-traumatic stress disorder. Retrieved 28 Apr 2019, from https://www.blackdoginstitute.org.au/clinical-resources/post-traumatic-stress-disorder/ treatment
372
M. Higgins
Bland R et al (2015) Social work practice in mental health: an introduction. Allen & Unwin, Crows Nest Briskman L et al (2008) Human rights overboard: seeking asylum in Australia. Scribe Publications, Carlton North Brown C et al (2010) Vietnamese immigrant and refugee women’s mental health: an examination of age of arrival, length of stay, income, and English language proficiency. J Multicult Couns Dev 38:66–76 Centers for Disease Control and Prevention (2013) Suicide and suicidal ideation among Bhutanese refugees – United States, 2009–2012. MMWR Morb Mortal Wkly Rep 62(26):533–536 Chantler K (2012) Gender, asylum seekers and mental distress: challenges for mental health social work. Br J Soc Work 42(2):318–334 Colic-Peisker V, Tilbury F (2007) Refugees and employment: the effect of visible difference on discrimination. Final report. Centre for Social and Community Research, Murdoch University, Perth Collins S et al (2010) Enhancing reflective practice in multicultural counseling through cultural auditing. J Couns Dev 88(3):340–348 Congress E, Kung W (2013) Using the culturagram to assess and empower culturally diverse families. In: Congress E, Gonzalez M (eds) Multicultural perspectives in social work practice with families. Springer Publishing Company, New York, pp 2–21 Connolly M, Healy K (2018) Social work practice theories and frameworks. In: Connolly M, Harms L, Maidment J (eds) Social work: contexts and practice. Oxford University Press, South Melbourne, pp 19–33 Cummings S et al (2011) Correlates of depression among older Kurdish refugees. Soc Work 56(2):159–168 de Arellano MAR et al (2014) Trauma-focused cognitive-behavioral therapy for children and adolescents: assessing the evidence. Psychiatr Serv 65(5):591–602 De Haene L et al (2010) Adult attachment in the context of refugee traumatisation: the impact of organised violence and forced separation on parental states of mind regarding attachment. Attach Hum Dev 12(3):249–264 Deacon Z, Sullivan C (2009) Responding to the complex and gendered needs of refugee women. AFFILIA 24(3):272–284 Drummond PD et al (2011) Barriers to accessing health care services for West African refugee women living in Western Australia. Health Care Women Int 32(3):206–224 Fanon F (2004) On national culture. The wretched of the Earth. Grove Press, New York Fazel M et al (2005) Prevalence of serious mental disorder in 7000 refugees resettled in western countries: a systematic review. Lancet 365(9467):1309–1314 Ferrada-Noli M et al (1998) Suicidal behavior after severe trauma. Part 1: PTSD diagnoses, psychiatric comorbidity, and assessments of suicidal behavior. J Trauma Stress 11(1):103–112 Flatau P et al (2014) Refugees, housing, and neighbourhoods in Australia. AHURI final report no. 224. Australian Housing and Urban Research Institute Limited, Melbourne Fozdar F, Hartley L (2013) Refugee resettlement in Australia: what we know and need to know. Refug Surv Q 32(3):23–51 Gilliver SC et al (2014) Recent research on the mental health of immigrants to Sweden: a literature review. Eur J Public Health 24(Suppl 1):72–79 Gušić S et al (2017) Dissociative experiences and trauma exposure among newly arrived and settled young war refugees. J Aggress Maltreat Trauma 26(10):1132–1149 Han M et al (2012) Development and implementation of the culturally competent program with Cambodians: the pilot psycho-social-cultural treatment group program. J Ethn Cult Divers Soc Work 21(3):212–230 Hansson E et al (2012) Rates of mental illness and suicidality in immigrant, refugee, ethnocultural, and racialised groups in Canada: a review of the literature. Can J Psychiatry 57(2):111–121 Higgins M (2019) ‘Like gold scattered in the sand’: human rights as constructed and understood by African families from refugee backgrounds. Faculty of Health Sciences, School of Allied Health Sydney, NSW, Australian Catholic University. Doctor of Philosophy Hightower B (2015) Refugees, limbo and the Australian media. Int J Semiot Law 28:335–358
17
Social Work with Refugees and Migrants
373
Hollander A-C et al (2011) Gender-related mental health differences between refugees and non-refugee immigrants – a cross-sectional register-based study. BMC Public Health 11:180–186 Hughes G (2014) Finding a voice through ‘The Tree of Life’: a strength-based approach to mental health for refugee children and families in schools. Clin Child Psychol Psychiatry 19(1): 139–153 Hutchinson M, Dorsett P (2012) What does the literature say about resilience in refugee people? Implications for practice. J Soc Incl 3(2):55–78 Hynie M (2018) The social determinants of refugee mental health in the post-migration context: a critical review. Can J Psychiatry 63(5):297–303 Ife J (2010) Human rights from below: achieving rights through community development. Cambridge University Press, Melbourne Ife J (2016) Community development in an uncertain world: vision, analysis and practice. Cambridge University Press, Cambridge IOM (2018) Global migration indicators 2018: insights from the global migration portal. United Nations, Berlin Jatrana S et al (2017) Investigating the dynamics of migration and health in Australia: a longitudinal study. Eur J Popul 34:519 Kaplan I (2009) Effects of trauma and the refugee experience on psychological assessment processes and interpretation. Aust Psychol 44(1):6–15 Lacroix M, Sabbah C (2011) Posttraumatic psychological distress and resettlement: the need for a different practice in assisting refugee families. J Fam Soc Work 14(1):45–53 Lejukole JW-KL (2008) ‘We will do it our own ways’: a perspective of southern Sudanese refugees resettlement experiences in Australian Society. School of Social Sciences: Anthropology. Adelaide, The University of Adelaide. Doctor of Philosophy Lenette C (2014) ‘I am a widow, mother and refugee’: narratives of two refugee widows resettled to Australia. J Refug Stud 27(3):403–421 Lenette C (2019) Mental health and critical multicultural practice: an arts-based approach. In: Nipperess S, Williams C (eds) Critical Multicultural practice in social work: new perspectives and practices. Allen & Unwin, Crows Nest Leuder I et al (2008) Hostility themes in media, community and refugee narratives. Discourse Soc 19(2):187–221 Losoncz I (2011) Blocked opportunity and threatened identity: understanding experiences of disrespect in South Sudanese Australians. Australas Rev Afr Stud 32(2):118–142 Martin SS (2009) Illness of the mind or illness of the spirit? Mental health-related conceptualization and practices of older Iranian immigrants. Health Soc Work 34(2):117–126 Martinez O et al (2015) Evaluating the impact of immigration policies on health status among undocumented immigrants: a systematic review. J Immigr Minor Health 17(3):947–970 McKeary M, Newbold B (2010) Barriers to care: the challenges for Canadian refugees and their health care providers. J Refug Stud 23(4):523–545 McPherson J (2012) Does narrative exposure therapy reduce PTSD in survivors of mass violence? Res Soc Work Pract 22(1):29–42 Milos D (2011) South Sudanese communities and Australian family law: a clash of systems. Australas Rev Afr Stud 32(2):143–159 Minas H et al (2013) Mental health research and evaluation in multicultural Australia: developing a culture of inclusion. Int J Ment Heal Syst 7(1):23 Mitschke DB et al (2016) Listening to refugees: how traditional mental health interventions may miss the mark. Int Soc Work 60(3):588–600 Muchoki S (2013) ‘[In Australia] what comes first are the women, then children, cats, dogs, followed by men’: exploring accounts of gender relations by men from the Horn of Africa. Australas Rev Afr Stud 34(2):78–98 Nadan Y et al (2015) The political dimension of multicultural social work education. J Soc Work 16(3):362–379 Ochala Y, Mungai NW (2016) The challenges facing single female parents of African background in regional Australia. Aust Soc Work 69(3):311–322
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Olliff L (2010) Finding the right time and place: exploring post-compulsory education and training pathways for young people from refugee backgrounds in NSW. Retrieved 28 Apr 2019, from https://www.nswtf.org.au/files/finding_the_right_time_and_place.pdf Pavlish CL et al (2010) Somali immigrant women and the American health care system: discordant beliefs, divergent expectations, and silent worries. Soc Sci Med 71:353–361 Poon AWC, Lee J-S (2019) Carers of people with mental illness from culturally and linguistically diverse communities. Aust Soc Work 72(3):312–324 Pupavac V (2008) Refugee advocacy, traumatic representations and political disenchantment. Gov Oppos 43(2):270–292 RCOA (2010) Economic, civic and social contributions of refugees and humanitarian entrants: a literature review. http://www.refugeecouncil.org.au/docs/resources/Contributions_of_refu gees.pdf RCOA (2011) Australia’s refugee program: services for refugees. http://www.refugeecouncil.org. au/arp/ihss.html Renzaho AMN, Vignjevic S (2011) The impact of a parenting intervention in Australia among refugees and migrants from Sierra Leone, Congo, and Burundi: results from the African Migrant Parenting Program. J Fam Stud 17(1):71–79 Saechao F et al (2012) Stressors and barriers to using mental health services among diverse groups of first-generation immigrants to the United States. Community Ment Health J 48:98–106 Seah E et al (2002) Cultural awareness tool: understanding cultural diversity in mental health. Multicultural Mental Health Australia, Parramatta Shannon P et al (2012) Screening for war trauma, torture, and mental health symptoms among newly arrived refugees: a national survey of U.S. refugee health coordinators. J Immigr Refug Stud 10(4):380–394 Shier ML et al (2011) International migration and social work: a review of the literature. J Immigr Refug Stud 9(1):38–56 Sleijpen M et al (2016) Between power and powerlessness: a meta-ethnography of sources of resilience in young refugees. Ethn Health 21(2):158–180 Teodorescu DS et al (2012) Mental health problems and post-migration stress among multitraumatized refugees attending outpatient clinics upon resettlement to Norway. Scand J Psychol 53:316–332 Thomson MS et al (2015) Improving immigrant populations’ access to mental health services in Canada: a review of barriers and recommendations. J Immigr Minor Health 17:1895–1905 Tinghög P et al (2010) The association of immigrant- and non-immigrant-specific factors with mental ill health among immigrants in Sweden. Int J Soc Psychiatry 56(1):74–93 Turrini G et al (2019) Efficacy and acceptability of psychosocial interventions in asylum seekers and refugees: systematic review and meta-analysis. Epidemiol Psychiatr Sci 384–385 UNHCR (2016) UNHCR viewpoint: ‘refugee’ or ‘migrant’ – which is right? https://www.unhcr. org/news/latest/2016/7/55df0e556/unhcr-viewpoint-refugee-migrant-right.html UNHCR (2019a) Figures at a glance. Retrieved 28 Apr 2019, from https://www.unhcr.org/en-au/ figures-at-a-glance.html UNHCR(2019b) Resettlement. https://www.unhcr.org/en-au/resettlement.html UNHCR (2019c) Global focus. http://reporting.unhcr.org/#_ga=2.34547945.976441169.1557811 707-51388314.1553555039 Westoby P, Ingamells A (2010) A critically informed perspective of working with resettling refugee groups in Australia. Br J Soc Work 40(1):1759–1776 World Health Organisation (2014) Mental health: a state of wellbeing. Retrieved 28 Apr 2019, from https://www.who.int/features/factfiles/mental_health/en/ Ziersch A, Due C (2018) A mixed methods systematic review of studies examining the relationship between housing and health for people from refugee and asylum seeking backgrounds. Soc Sci Med 213:199–219
Natural Disaster From Individual-Focused to Community-Based Psychosocial Work
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Contents Social Work and Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Health and Psychosocial Work in Natural Disaster . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Community-Based Psychosocial Concepts and Frameworks . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
This chapter provides an overview on the current development of psychosocial work in disaster contexts. It expands the focus on individuals and pathology to include the family and community, as well as the need to incorporate the need to consider the resources and resilience of individuals, families, and communities. Specific assessment and interventions at different stages of disasters are suggested. Keywords
Natural disaster · Mental health and psychosocial support · Social worker · Context · Individual · Family · Community T. Sim (*) Department of Applied Social Sciences and World Health Organization Collaborating Center for Community Health Services, School of Nursing, Faculty of Health and Social Sciences, The Hong Kong Polytechnic University, Kowloon, Hong Kong, China e-mail: [email protected] J. Garai Department of Applied Social Sciences, The Hong Kong Polytechnic University, Kowloon, Hong Kong, China © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_14
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Social Work and Mental Health Introduction Disasters, whether natural (e.g., earthquakes, flood) or human-made (e.g., Fukushima Daiichi nuclear incident), have the potential to affect psychological health. Some impacts are common to all types of disaster, but specific disasters, such as earthquakes and floods, have unique health consequences for survivors. However, it is increasingly apparent that it is difficult to determine if nature or human causes disasters. Moreover, a disaster could be attributed to both nature and human causes. For instance, the 2011 Japanese earthquake and nuclear disaster is a case in point, where an unexpected tsunami intertwined with a drastic human-made disaster. Given the complex nature of disasters, this chapter is dedicated to discussing natural disasters only. Not everyone in a disaster-stricken community would develop significant psychological problems in an emergency (Sim 2015). Many affected disaster survivors demonstrate a substantial level of resilience in adverse situations. An understanding of the interactions of various biological, psychological, and social factors is essential to account for the resilience and psychological issues that an individual displays in face of adversity (The Inter-Agency Standing Committee (IASC) 2010). The World Health Organization (2012) projected that after an emergency, the 12-month prevalence of extreme mental disorder among adults (e.g., psychosis and severely disabling presentations of mood and anxiety disorder) is about 3–4%, which is only 1% higher than the projected average rate of 2–3% before an emergency, whereas in the case of the population with mild or moderate level of mental disorder, the prevalence rate may see an increase from an estimated of 10% before emergency to 15–20% post-emergency (WHO 2005a). Nevertheless, it is necessary to note that these prevalence rates vary depending on varying contexts. Social workers must be cautious when applying classifications or concepts in different contexts. Posttraumatic stress disaster (PTSD) has been used as a predominant lens for implementing interventions on individuals affected by natural disasters (Sim 2015). However, psychological interventions may not always be the most effective in postdisaster situations. PTSD is merely one of the common psychological problems after a disaster, and only a relatively small proportion of the affected population tend to suffer from PTSD and other acute distresses, in both immediate and long-term (IASC 2007; Sim 2015). IASC (2007) suggested that apart from the severely affected survivors (i.e., with symptoms such as PTSD), the majority of them does not need clinical interventions as community-based resources are equally essential and compatible. These resources range from economical, educational, and healthrelated to religious and spiritual in nature, etc. It is evident in the literature that following a “natural” recovery (i.e., healing without external intervention) over time, survivors have exuded resilience after a disaster (Bisson et al. 2015). The focus of community-based resources points to the idea of psychosocial work, which focuses equally on both mental and social aspects of the individual’s wellbeing and contributes to promoting resilience of disaster survivors. The Psychosocial Working Group (2003) elaborated that the term “psychosocial” is used to emphasize the close connection between the psychological aspects (thoughts, emotions, and
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behaviors) and the wider social aspects (relationships, traditions, and culture). Rather than adopting concepts with narrower definitions, such as mental health, the intrinsic nature of “psychosocial well-being” expounds the intertwining relationship between the two aspects and thus is more relevant and appealing to humanitarian agencies. Based on the idea of “psychosocial well-being,” IASC (2007) later introduced a composite term “mental health and psychosocial support” (MHPSS) to describe any types of internal or external support that aims to protect or promote psychosocial wellbeing and to prevent or treat mental disorder. Despite being closely related, many aid workers understand concepts such as “mental health” and “psychosocial support” in different ways. In fact, the definition of these terms varies between and even within aid organizations, disciplines, and countries (IASC 2007). For example, aid agencies outside the health sector may address mental health problems as a way of supporting psychosocial well-being, whereas health sector agencies tend to refer psychosocial well-being as a kind of intervention on mental health issues, though traditionally they used the terms psychosocial rehabilitation and psychosocial treatment to describe non-biological interventions for people with mental disorders (IASC 2007). In spite of their professional training, mental health professionals seldom work with multiple sectors, which is imperative in disaster management. To name a few, these could relate to various specialties, including human rights protection, general health, education, water and sanitation, camp management, community development and mass communication, and so on. In order to address the most urgent mental health and psychosocial issues in emergency settings, IASC (2007) proposed a set of guidelines that focus on the social risk factors of mental health and psychosocial well-being. They attend to the social, psychological, and biological factors that attribute to psychosocial problems and resilience capacity building after disasters. Rather than merely emphasizing on clinical interventions for mental distresses (e.g., PTSD), the guidelines facilitate a more balanced approach and attend to the needs and resources of survivors by suggesting the utilization of existing community resources and local culture to promote resilience. Social workers have a long history of responding to the needs of vulnerable populations (Webster 1995) and providing survivors with mental health and psychosocial support (Nikku 2015; Sim et al. 2013; Taubman and Weisz 2011) in disaster contexts. They have long taken up tasks with an encompassing nature in both normal and disaster contexts, including liaising with government agencies and nongovernment organizations to promote local community development (Pockett 2006); collecting and disseminating information (Yanay and Benjamin 2005); applying case management services (Bliss and Meehan 2008); and monitoring services (Hodgkinson and Stewart 1991). Specifically, social workers play an important role in designing and facilitating the implementation of disaster recovery plans. With their training to focus on details at the micro, mezzo, and macro levels, social workers are committed to work on tasks ranging from coordinating community’s recovery efforts, searching out benefit programs, to writing grants for recovery building (Cooke 1993; Dodds and Nuehring 1996; Sundet and Mermelstein 1997). Social workers are well placed to work with different groups in post-disaster contexts. First, they fit well in psychosocial multidisciplinary treatment teams. In contrast to other professions, the mixture of interpersonal and other soft skills puts
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them in advantageous positions within the team to support severely impaired persons and reach out to vulnerable groups; promote social cohesion; and empower and enhance survivors’ well-being (Hare 2004). Second, social workers are well trained to collaborate with community organizations in working with service users to obtain social support (Sim 2015). Third, social workers are committed to promote the strengths of clients and to advocate for disaster survivors and vulnerable groups to be socially included and respected within the society. Social workers’ extensive skill sets, priorities, and insights put them in a unique position to conduct psychosocial work in disaster management.
Mental Health and Psychosocial Work in Natural Disaster Contextualizing Mental Health and Disaster The word “disaster” has roots in the Greek word “bad star,” which originally comes from an astrological idea: when the stars are in a bad position, a bad event or calamity may happen (Math et al. 2015). Disasters are complex and multidimensional phenomena, which affect the ecological, economic, material, psychological, social, and spiritual dimensions of human life (Ignacio and Perlas 1995). The Federal Emergency Management Agency (FEMA) of the United States defined a disaster as “any natural catastrophe, regardless of cause, any fire, flood, or explosion that causes damage of sufficient severity and magnitude to warrant assistance supplementing state, local, and disaster relief organization efforts to alleviate damage, loss, hardship, or suffering” (Yong et al. 2008). It is apparent that disasters usually have the following features in general, sudden occurrence, unpredictability, beyond control, huge magnitude of destruction, unbearable human suffering, and economic losses, and greatly exceed the coping capacity of the affected community (Math et al. 2015). In recent decades, there is a shift in the conceptualization of disaster in the field of psychiatry, psychology, and psychosocial work (Ignacio and Perlas 1995). Rather than focusing on the destructive effects of a singular event, such as economic losses and materials damages, the emphasis has shifted to the impact on human personal effect (Scolobig et al. 2015). This focuses on the significance of the psychosocial aspects of coping within a given environment, which corresponds to an individual’s thoughts, feelings, and behaviors that are vital to promote resilience and recovery after a disaster (Ignacio and Perlas 1995). Phases of Disaster Response from the Mental Health Perspective Generally, individuals and communities experience several disaster response phases immediately after a disaster: heroic phase, honeymoon phase, disillusionment phase, and restoration phase (Ehrenreich 2001; Math et al. 2006, 2015). Heroic phase occurs immediately after a disaster and usually lasts from a day to weeks depending upon the severity, duration of exposure, and the availability of relief resources from various agencies in the affected area. At this initial stage, survivors and humanitarian workers usually show altruistic behaviors in the form of rescuing, sheltering, feeding, and supporting the fellow beings (Math et al. 2015). The honeymoon
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phase commences when relief agencies step in and survivors are relocated to safer places, such as relief camps, schools, or temporary tents. During this phase, media attention, free food and medical aid, and so on are usually available. Government’s attention, compensation package, and rehabilitation promises provide a sense of relief and confidence to survivors. This phase lasts for about 2–4 weeks immediately after a disaster (Math et al. 2006). However, in the subsequent weeks, it is common to observe that survivors usually make a more realistic appraisal of the lasting consequences of the disaster. This is the disillusionment phase. Survivors usually experience it as a “second disaster” (Ehrenreich 2001; Math et al. 2006). The harsh reality of the impact that survivors have to confront firsthand often becomes an undesirable ground for breeding mental morbidity, which may last from 3 months to 3 years before the community is restored to normalcy. Next, during the restoration phase, survivors, individuals, and communities work together to restore the normalcy and rebuild their lives on their own terms and move on (WHO 2006). Mental health professionals and social workers have performed multidimensional roles at different phases of post-disaster recovery, by working closely with different stakeholders, e.g., local leaders and officers, religious leaders, teachers, village health workers, volunteers, and the survivors, in the affected communities. They contribute to facilitating and coordinating various tasks ranging from education, training, negotiation, counseling, fund raising, skill transfer, treatment, rehabilitation, temporary shelter organization, relief distribution, network building, and so on (Math et al. 2006, 2015; WHO 2006). All of these tasks aim at promoting and building back the resilience of disaster-stricken communities according to local resources and cultures (Sim and Dominelli 2016). In addition, there are four disaster phases that individuals experience from a mental health perspective (Ignacio and Perlas 1995): warning, impact, inventory, and reconstruction. Each phase follows a specific set of recuperative activities directed toward survivors’ physical and psychosocial recovery. During the warning phase of an emergency, actual event preparation is made to protect human life and property from disasters’ destructive effects. In this phase, preparation for disasters including educating people about normal responses, providing training about what helps in psychosocial recovery, and setting up information centers to increase people’s mastery and recovery is carried out (Halpern and Tramontin 2007). Where possible, disaster risk sites should be surveyed and analyzed by community leaders to plan out emergency measures accordingly (Ignacio and Perlas 1995). This dovetails with WHO’s (2003) recommendation to include community-based and primary health care-based intervention in the preparedness phase as well as during and after a disaster. During the impact phase, survivors usually have little control over the emergency event. The impact depends on several factors, such as the duration and nature of a disaster. Take floods and earthquakes as examples: Floods may be expected to happen each year, and the effect could be sustained over a long period. On the contrary, an unpredictable mega earthquake may happen once in a lifetime that could occur in a matter of a few minutes. The stress intensity and severity largely depend on the level of danger to which survivors are subjected to and may continue to experience after the actual event (Ignacio and Perlas 1995).
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Next, the number of people killed, injured, or traumatized and the structural damages and economic losses are tallied in the inventory phase. In this phase, emergency relief such as food, drinking water, medical aid, and other resources arrive, and disaster survivors receive aids from government, nongovernment, and private organizations. Evacuation centers, medical camps, and relief and safe shelters are usually set up to address the physical needs of the survivors. The reconstruction phase is when survivors come to grip with their losses and begin to resolve their feelings of loss and bereavement (Ignacio and Perlas 1995). Community organizations take on a long-term role, with the goal of ensuring the promotion of long-term psychosocial well-being of its members (Halpern and Tramontin 2007).
Psychosocial Consequences of Natural Disasters Natural disasters create a diverse set of problems that could be experienced at individual, family, community, and societal levels. Emergencies may disrupt protective support systems and capacities at different levels, and thus increase the risks of developing a range of problems, and tend to intensify preexisting problems of social injustice and inequality (IASC 2007; Ignacio and Perlas 1995; Sim 2015). For example, floods and cyclones typically exert an adverse impact more on families living in poverty, who may live in a relatively volatile and fragile environment. During and after a natural disaster, survivor’s daily activities may be disrupted and thus create a psychological disequilibrium. Survivors’ normal response may reflect in symptoms such as headaches, fatigue, dizziness, depression, anger, and so on (Ignacio and Perlas 1995). Many of these symptoms may cease over time, but certain individuals may develop other problems, such as anxiety disorders (Fisher et al. 2011). An aggravation of these symptoms may even reach the level of mental disorder (Ehrenreich 2001). Individuals may experience secondary traumatization after a natural disaster. Along with “primary victims” who directly experience a disaster, “secondary victims,” e.g., family members of injured survivors, relief workers, and unpaid volunteers, may also experience serious emotional impact. In addition, medical and mental health professionals and social workers may also experience severe physical fatigue and emotional drain, which may fall victim to “vicarious traumatization” (Ehrenreich 2001; IASC 2007). In sum, natural disasters can directly affect individuals in a society. Sometimes the direct effects of disaster force people to leave their homes and migrate elsewhere. This may increase the vulnerability of survivors concerned because it adversely affects the fabric of families and communities (Ehrenreich 2001). Moreover, disasters may physically destroy community institutions, such as schools, religious organizations, hospitals, and so on, which may disrupt social functioning immediately. It may also affect the livelihood of those attached to these institutions, such as teachers, priests, or medical personnel. In addition, disasters may disrupt traditional patterns of authority along with customary social controls on individual norms and behaviors. So does the heritage and culture, which provide the sense of solidarity, belongingness, and identity of a community (Ehrenreich 2001).
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Vulnerable Individuals and Groups of Natural Disasters Depending on the emergency context and coping capability, particular groups of people are at increased risk of experiencing social and/or psychological problems (IASC 2007). Recent mental health and psychosocial work literature indicated that women are one of the most vulnerable groups in natural disasters (Garai 2016; IASC 2007; Math et al. 2015; North 2003). Women are twice as likely as men to develop PTSD (US Department of Veterans Affair 2013). Gender division of labor, unequal access to resources, and cultural and religious constraints (Garai 2016; Terry 2009) are some of the attributes of their vulnerabilities in natural disasters. In addition, women’s physical size, strength, and endurance capacity put them in a more vulnerable place comparing to men (Twigg 2004). In most of the poor and developing countries, women are mostly confined to their household premises to take sole responsibilities for household chores and rearing children. Economic dependency and lack of decision-making power in households (Garai 2016) could prevent them from accessing information regarding imminent disasters. Consequently, when disasters strike, such as cyclone and tidal surge, this social group rarely acquires sufficient time and resources to prepare themselves to evacuate within a short period of time (Garai 2016; Twigg 2004). Similarly, women’s role and experiences also create special vulnerabilities in natural disasters. Along with the high death toll of girls and women, the incidence of gender-based violence including coerced sex, human trafficking, and domestic violence has also increased exponentially during and after a disaster in these countries (IFRC 2016; Masson et al. 2016; UNDP 2010; WHO 2005a). Apart from women, children and elderly people also face susceptibility in disasters but have not received adequate attention (Twigg 2004; WHO 2006). Aid agencies and NGOs often neglect their rights or tend to treat them as passive recipients of welfare, rather than active members of society. Elderly peoples’ fragile health conditions and physical disability (e.g., poor eyesight, hearing, and moving capability) and conservative attitudes may impede their capacities to take independent actions during and after natural disasters (Twigg 2004). Similarly, physically challenged people, ethnic minority and displaced people, the poor, and people who have lost economic livelihoods are also situated in vulnerable positions during and after natural disasters (Frankenberg et al. 2008; IASC 2007; Math et al. 2008; North 2003). The vulnerable groups extend to people who abuse substances and have chronic medical conditions and preexisting mental disorder (Katz et al. 2002). Nevertheless, individuals of a community are affected in different ways after a natural disaster (Arora-Jonsson 2011; Frankenberg et al. 2008; Math et al. 2008; North 2003; Thienkrua et al. 2006; Twigg 2004). Disaster survivors respond to disasters differently. While some may need immediate and urgent support, others may require support later in time, while some may not even require support at all (Pichet 2008). Ehrenreich (2001) highlighted several approaches that social workers could adopt when assessing and working with disaster survivors. One important approach is to look out for vulnerable groups. For example, survivors whose family member(s) perished in the disaster, survivors
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who were severely injured in the disaster, children who are 5–10 years old, mother of young children, people living in poverty, and so on. Another approach is to identify specific behavior patterns of the affected people. For example, children who were absent from school after a disaster, adults who were absent from work, and those who failed to bounce back may require more attention. The use of screening instruments is helpful in finding out who are vulnerable to disasters. Symptom checklists can be distributed in different places, i.e., schools, churches, workplaces, or temporary shelters. The last approach is to identify cases. This could be carried out via distribution of leaflets; announcements on radio and television, newspaper, and poster; or getting local leaders and officers, such as teacher, religious leaders, and social workers, to help locate survivors in distress and provide essential support for them to recover from the disaster.
Ethical Considerations Unique to Social Work Practice in Disaster Contexts After a natural disaster, a large number of people in the affected area may rely on humanitarian agencies to meet their basic needs. However, this dependency, along with disrupted environment and destroyed protection systems (e.g., family networks and communication system), contributes to inherent unequal power relationships between those providing services (humanitarian agencies) and those receiving them (survivors). Consequently, this may increase the risk of exploitation and discrimination of the affected population in disaster-stricken area. It may also be exacerbated by inadequate detection and reporting in post-disaster settings (IASC 2007). Actions that might potentially cause harm, either by abusing positions of power or as unintended consequences of an intervention, must be explicitly recognized, considered, and addressed by humanitarian agencies (IASC 2007; Pupavac 2001), despite the challenges in monitoring. In a post-disaster setting, social workers may provide services to people diagnosed with mental disorders alongside other mental health professionals, including psychiatrists, psychologists, and psychiatric nurses. Social workers’ roles and tasks depend on the contexts and resource persons present: front-line therapists and case managers and supervisors (Kirk 2005). Mostly, social workers work with vulnerable groups and their families to assess (a) the extent of mental health problems among the community; (b) how the problems are manifested; (c) their rates of utilization of health and mental health services, if available; (d) barriers preventing or limiting their access to these services, before referral to other mental health professionals (Blair 2001); and (e) the work to be implemented in a culturally relevant fashion for a particular vulnerable group. In spite of the varying roles and tasks involved, mental health professionals of all kinds, including social workers, should follow the principles to do no harm and to ensure respect for patients’ freedom and autonomy (Mollica 1996). Without prior informed consent, no mental health intervention can be justified, and such consent needs to be established in a culturally appropriate manner (Roberts 2002). Moreover, mental health care providers should make a special effort to guarantee consent because normal standards may be disrupted by the destruction of the health care system.
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In addition, mental health professionals (including social workers) should be cautious in administering PTSD treatments after a disaster, as there are varying reports on survivors developing PTSD in post-disasters in different cultural contexts (IASC 2007). Mental health practitioners should also be mindful to address different personal and social needs of survivors (e.g., human rights protection, general health, shelter, communication network, water and sanitation, food security and nutrition, education, and so on) that may affect their mental health and psychosocial support. This can help affected people to promote resilience naturally. Furthermore, mental health practitioners should be mindful of the timing of intervention. For instance, administering debriefing immediately after a distressful emergency could be harmful to survivors, because it may produce undesirable outcomes and unwittingly undermine survivors’ own coping strategies (Kenardy 2000; Pupavac 2001). The use of psychological first aid (PFA) is suggested, prior to general intervention, by adhering to the five elements of PFA (i.e., safety, calming, connectedness, self-efficacy, and hope) (Shultz and Forbes 2014). This can ensure justice and security and promote resilience of the distress people in the aftermath of a disaster. The International Red Cross and Red Crescent disaster relief code of conduct outlines standard behaviors that promote the independence, effectiveness, and impact of humanitarian work in post-disaster settings (IFRC 2009). Social workers have unique contributions to overcome some of the ethical challenges. With relevant social work values, knowledge, and skills in disaster contexts (Council on Social Work Education 2008), they are trained to be mindful in promoting the human rights and justice of the survivors via their support services provision in the aftermath.
Community-Based Psychosocial Concepts and Frameworks Resilience: From Individual to Community The concept of “resilience” was first used in physical sciences and later adapted by health professions (UNICEF 2009). In physical sciences, resilience refers to the ability of an elastic element (i.e., from a blow) to release energy as it springs back to its original shape. In engineering and materials sciences, resilience is about the extent materials or systems can withstand disruption or change (Pimm 1984). In the field of ecology, resilience research is concerned with studying the health of ecosystem and factors that corrode their resilience (Linnenluecke and McKnight 2017). Hence, resilience can be defined as the ability of an individual, organization, or system to bounce back from adversity. This is the concept that can be applied in diverse ways across different fields. However, because it means different things to different fields, one of the greatest challenges in the field of resilience is the variety of definitions of resilience used in research and in practice (Alexander 2013; Bennett 2015). In psychology, a major focus of resilience research is to find out why some individuals are capable to handle adversity better than the others (Linnenluecke and McKnight 2017; Luthar et al. 2000). As such, the term resilience or “the ability to bounce back serves an important function in responding to the stress and loss of
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overwhelming situation” (UNICEF 2009). In this chapter, we would be looking at resilience of the individual, family, social groups, and community in the face of adversity related to natural disasters, particularly in the way innate capacity and natural and local resources are utilized in post-disaster contexts. NATO (2008) applied resilience in two ways, i.e., personal resilience and collective or community resilience. Personal resilience is defined as “a persons’ capacity for adapting psychologically, emotionally, and physically reasonably well and without lasting detriment to self, relationships or personal development in the face of adversity, threat or challenge” (p. 39). This understanding of resilience particularly looks into how a person responds to adversity, which is generally dependent on a persons’ personal characteristics; repertoire of knowledge, skills, and capabilities; and the qualities a person possesses through life experiences and circumstances. Individual psychological resilience can be defined in two ways – as a trait moderating stress and an outcome of enhanced adaptation (Windle 2011). The key to all these definitions is that some challenges or adversities must be present for us to know whether someone is resilient or can respond resiliently (Bennett 2015). For promoting family resilience in post-disaster contexts, creative thinking, humor, tolerance for change, process for development, expectations, and family support are several factors that have been considered (Kemp and Palinkas 2015). Moreover, Greeff and Lawrence (2011) highlighted the prevalence of resilience in displaced family by demonstrating resilience-enhancing factors, including (a) traits and capabilities of individual family members; (b) internal resources and support of a family; (c) familial integration and cohesion; (d) utilization of family’s strength to manage problems outside of its boundaries; (e) social support; and (f) coping capacity in adversity. Walsh (1996) has developed a family resilience framework for practitioners to identify the key family process that can reduce stress and vulnerability in extreme adverse situations and to facilitate the process of healing and resilience of families in prolonged adversity. Over three decades, this conceptual map has helped clinical and social sciences research to understand the essential factors within the three domains of family functioning, namely, family belief system, organizational patterns, and communication process (Walsh 2012). Community resilience or collective resilience is a cumulative endeavor that reflects the way a community anticipates, prepares for, reacts, and recovers from distress (Norris et al. 2008). According to Bruneau et al. (2003), community resilience can be defined as “the ability of social units to mitigate hazards, contain the effects of disaster when it occurs and carry out recovery activities in ways that minimize social disruption and mitigate the effects of future earthquake.” It comprises the following characteristics: (a) usage of the properties of robustness (combating stress without decadence); (b) redundancy (access to excess capacity and skills); (c) rapidity (responding in a timely and accurately manner); and (d) resourcefulness (assessing problems and mobilizing existing local and natural resources) (Linnenluecke and McKnight 2017; Norris et al. 2008). In general, the concept can be used to describe how groups of people, organizations, communities, and countries or regions respond to, cope with, and recover from disaster and catastrophes. Social workers and other mental health professionals cannot heal all
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the wounds in chronic stress, humanitarian crises, or natural disasters. However, it is possible for them to help create a safe haven for family and community members to share deep pain and facilitate positive striving (Weingarten 2004). Multi-system resilience-oriented practice and intervention can help families and communities to overcome distress in disaster by means of enhancement of collaboration, mutual trust, connectedness, and open communication (Walsh 2007). With the pace of time, the recovery and rebuilding of lives can be done with collaborative efforts of the family and community (Walsh 2007, 2012). Humanitarian workers who use individualistic clinical intervention often consider that macro practice should be done by humanitarian workers, who are involved in community organization, or by other political-affiliated workers in the community (Kam 2012). Thus, rather than using community-based psychosocial intervention, these individual-focused practitioners often use the medical model (such as assessment, diagnosis, and treatment), which tend to pathologize clients (Maschi et al. 2011). This may not be helpful in post-disaster contexts as many of the psychosocial distress and trauma are inherent in social and cultural dimensions that need to be duly considered. Hence, their ensuing interventions for individuals diagnosed with PTSD may not be culturally relevant and appropriate (Sim 2009, 2015). Moreover, individual-focused psychological intervention may potentially erode community and family cohesion. Pupavac (2001) raised two significant points. Firstly, pathologization and professionalization of emotional communication of survivors may unwittingly undermine the sense of intimacy necessary for communal and family bonding. Secondly, therapeutic individualistic interventions may help to increase the dependency of the “clients” or “patients” upon the intervening agents and consequently erode local ties and institutions (Pupavac 2001; Sim 2015). Rather than assuming individuals as incapable for promoting resilience by focusing on remedial psychological intervention, they should be recognized for their innate capability for building resilience by utilizing their inherent skills and existing resources (IASC 2007). Strength-based approaches may be more useful in post-disaster situations. The strength-based approaches recognize that every person has some distinctive and innate capacity for development and change, having a reservoir of resources and experiences (Miley et al. 2009). These approaches recognize that survivors have assets and resources, rather than be viewed as individuals with problems or liabilities in the communities (Kam 2012). Mental health professionals, including social workers, can also use the asset-based perspectives for fostering and promoting resilience in communities. Community members should be acknowledged as experts and assets in their environment or locality, who may have certain distinctive capacities and skills to solve problems of the affected community and bring about positive social change (Kam 2012). Moreover, instead of understanding community by using the “problem lens,” humanitarian workers should use an asset lens (Walker 2006) and concentrate on identifying community assets and strengths for developing and enhancing resilience. Community mobilization can be made from both inside and outside of the community to involve its members (i.e., groups of peoples, families, members,
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relatives, peer, friends, or others who have common interest) (IASC 2007). People’s intensive involvement in disaster response certainly increases their hope and aspiration and thus intensifies their ability to cope with and rebuild their own lives and communities. Moreover, the affected people or groups can use their existing assets or resources in the community to support their mental health and psychosocial wellbeing and to promote resilience. These resources may include economic resources (e.g., school savings, land, crops), educational resources (e.g., school and teachers), health resources (e.g., health post and stall), spiritual and religious resources (e.g., practice of prayer and worship), and so on, which can promote individual as well as community resilience. It is necessary to highlight that individual and community approaches are not contradictory to each other. Rather, they are complementary. The key is about the shift from being a problem- or pathology-focused approach to a resilience- and resource-focused approach. Thus, for successful recovery and reconstruction of a community after a disaster, the healing of individuals, families, and communities and the connection of these different components is extremely crucial.
Psychosocial Needs Assessment In an emergency, assessment is crucial in determining what activities are appropriate for psychosocial responses (IFRC 2009). To address humanitarian needs, psychosocial needs assessment is certainly an essential first step that not only examines the local needs but also the capacity and skills of the affected people (Wessells 2007). In general, psychosocial needs assessment is employed to find out the needs of an affected community and to establish the status of the well-being of that particular community. It also helps to identify vulnerable groups such as children, women, or older people. Assessment paves the way for deciding when, where, and how to start the appropriate psychosocial activities (IFRC 2009, 2011; Mollica et al. 2004). Moreover, IASC (2007) highlighted that mental health and psychosocial support (MHPSS) assessment in emergencies involves a comprehensive understanding of the emergency; an explanation of probable risk, capacity, and skills for mental health and psychosocial well-being; an estimation of relevant resources in the community; and a consultation with stakeholders about the responses to disasters. According to IFRC (2009), specific procedures are followed in different stages of the psychosocial assessment: rapid assessment, detailed assessment, baseline studies, continuous assessment, and final evaluation. During psychosocial needs assessment in emergencies, it is very important to document survivors’ experiences, such as their reactions to an emergency and how these affect their psychosocial well-being. In addition, the responses of individuals, communities, and organizations should also be recorded, along with the assessment of resources, as well as other needs and problems (IASC 2010). On the other hand, assessment of resources should include individual coping capacity and skills, social support mechanisms, community capacity, and government and NGO activities. Moreover, along with supporting the affected population, relevant data could be collected and analyzed for the improvement of programs (IASC 2007).
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Nevertheless, it is unfortunate but true that, for a large proportion of humanitarian workers and agencies, assessments are treated only as means of collecting data needed to guide effective program implementation and to inform proposals to donors (Wessells 2007). This ignores the purpose of providing support to the affected community. Moreover, duplicated assessments by NGO workers or humanitarian workers often amplify frustration of the affected population. Rather than employing workers outside the community, community members should be given priority to be supporting workers for psychosocial needs assessment, because they know more about their community than outsiders (Angi et al. 2005; Diaz and Prewitt 2008). After a disaster, different organizations such as government, nongovernment, and international organizations conduct different assessments on different aspects of mental health and psychosocial needs. They should coordinate the assessment by categorizing different groups to identify which organization will collect what kind of information and when to collect from the affected area (IASC 2007, 2010). In the assessment of psychosocial needs, both qualitative and quantitative approach should be employed. A 4 W tool for assessment about who is doing what, where, and when is also found effective (IASC 2010; IFRC 2009; Mollica et al. 2004; O’Connell et al. 2012). Most importantly, it is crucial to ensure that assessment approaches (indicators and instruments) are culturally and contextually sensitive and relevant. The assessment team should prioritize the use of local interviewer, who is sensitive to the local cultural tradition and familiar with the locality and language. The following intervention models are two useful examples that demonstrate the relevance of cultural considerations in post-disaster contexts.
Psychosocial Capacity Building (PCB) Model Miller (2012) developed a unique psychosocial capacity building (PCB) model for promoting resilience for individuals, families, social groups, and communities in post-disaster contexts. This model is based on the social ecology framework, which emphasizes on existing local resources and culturally sensitive approach to build local capacity and response to disaster. PCB can be defined as “intervention, provided by professional and non-professional people, both local and from the outside, that constitutes a multi-systemic, culturally grounded, empowerment- and resilience-oriented approach designed to help individuals, families, social groups, and communities recover from a disaster. Psychosocial capacity building seeks to be sustainable over time and builds on the foundations of local capacities and resources” (p. 191). PCB’s scope and duration are not confined to the immediate aftermath of disaster and widen its function ranging from individual to the whole community. This model emphasizes on integrative planning, economic recovery, social network, and restoration to strengthening community network and promoting resilience in the affected area. Rather than depending on outsiders for help, PCB encourages the creation of integrative groups, which can exchange mutual aid, foster mutual understanding, and adopt traditional healing for enhancing resilience in the community. The model believes that self-help or mutual help of the affected people is more effective than outside help. PCB is a strength-focused intervention, which connects the past,
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present, and future in the process of making meaning of a disaster within a culturally and traditionally acceptable way, recovering social connectedness and cohesion, linking individual and family healing with community recovery, fostering resiliency, and emphasizing efficacy.
SICHUAN Model Sim and Dominelli (2016) developed a post-disaster psychosocial social work intervention model based on their 9-year practice after the fateful Sichuan earthquake that occurred in China on 12 May 2008, where 90,000 people were killed or missing. In this model, Sim and Dominelli (2016) used an acronym “SICHUAN” to organize six interlinked concepts: [S] “Step by step” is about workers not hastily imposing their views and paradigms immediately upon arriving at the scene, as the contexts are dynamic and volatile after a natural disaster context. [I] “Involvement” of villagers and local authorities through feedback for planning and delivering services in the community is sine qua non to successful solutions, since the local people know what would work for them. [C] “Contextual” relevance emphasizes the optimal use of local resources, cultural heritages, and human relationships for promoting social and psychological capacity of the affected people in the community such as traditional dance and art as invaluable assets for promoting psychosocial change. [H] “Help people achieve self-help and mutual help” encourages affected survivors to help each other in promoting resilience using their existing social capital and social networks. [U] “United effort” involves engaging academics and practitioners across disciplines, cultures, and borders in a post-disaster situation, to respond to the needs of different stakeholders. [A-N] “Add no trouble, no chaos, and no harm” highlights the need of the survivors should be considered above the need of “disaster gawkers” and “do-gooders” entering the affected areas. Without organized efforts or adequate training, these outsiders may create more problems such as using up limited resources (e.g., food and drinks) and disrupting traffic.
Conclusion Over the past two decades, there was a remarkable increase in the number of natural disasters around the globe. They have affected the physical, psychological, and social well-being of survivors immensely. They affected individuals, families, communities, and societies in different ways. Mental health professionals as well as social workers strive to provide mental health and psychosocial support to the affected individuals and communities by promoting and fostering resilience. After a disaster, not all people experience the impact in the same way. Some may develop mental distress, such as PTSD, but others could overcome the subsequent stress
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naturally by utilizing their existing natural resources and innate capacity. In this light, attending to the biological, psychological, and social aspects that could either attribute to psychosocial problems or strengthen resilience in the face of adversity becomes important. Social workers can assist the affected people and their communities by fostering their capacities and local resources to recover and rebuild at both individual and community levels. Moreover, by promoting resilience, individuals, families, and communities, including those who are considered vulnerable, can be involved as active participants in post-disaster recovery and reconstruction.
Cross-References ▶ Theories on Mental Health, Illness and Intervention ▶ Trauma-Informed Social Work Practice with Children and Youth
References Alexander D (2013) Resilience and disaster risk reduction: an etymological journey. Nat Hazards Earth Syst Sci 13:2707–2716 Angi K, Nygaard SG, Lundberg M, Mossegard P, Skoglund GT, Ekelund E, Berggren E (2005) Community based psychosocial services in humanitarian assistance: A facilitator’s guide. Action by Churches Together (ACT) International. Available at: https://www.medbox.org/ community-based-psychosocial-services-in-humanitarian-assistance-a-facilitators-guide/down load.pdf Arora-Jonsson S (2011) Virtue and vulnerability: discourses on women. Gender Clim Change Global Environ Change 21(2):744–751. https://doi.org/10.1080/13552070215903 Bennett KM (2015) Emotional and personal resilience through life. Government Office of Science, London Bisson J, Cosgrove S, Lewis C, Robert NP (2015) Post-traumatic stress disorder. BMJ 351:h6161 Blair R (2001) Mental health needs among Cambodian refugees in Utah. Int Soc Work 44(2): 179–196 Bliss DL, Meehan J (2008) Blueprint for creating a social work-centered disaster relief initiative. J Soc Serv Res 34(3):73–85. https://doi.org/10.1080/01488370802086401 Bruneau M, Chang MSE, Eguchi MRT, Lee MGC, O’Rourke MTD, Reinhorn MAM, Shinozuka MMS et al (2003) A framework to quantitatively assess and enhance the seismic resilience of communities. Earthquake Spectra 19(4):733–752 Cooke M (1993) The Newcastle lord mayor’s Newcastle earthquake appeal: empowerment via radical social casework. Aust Soc Work 46(1):47–50. https://doi.org/10.1080/031240793 08410654 Council on Social Work Education (CSWE) (2008) Educational policy and accreditation standards. Council on Social Work Education, Alexandria Diaz JOP, Prewitt AD (2008) Words to action: pictorial contextualization of the IASC guidelines on mental health and psychosocial support in emergency settings. Intervention 6(3/4):327–333 Dodds S, Nuehring E (1996) A primer for social work research on disaster. J Soc Serv Res 22(1–2):27–56. https://doi.org/10.1300/J079v22n01_03 Ehrenreich JH (2001) Coping with disasters: a guidebook to psychosocial intervention. Center for Psychology and Society, State University of New York, Old Westbury Fisher JRW et al (2011) Mental health and psychosocial consequences of arm conflict and natural disasters. Int J Soc Psychiatry 57(51):57–78
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Frankenberg E, Friedman J, Gillespie T, Ingwersen N, Pynoos R, Rifai IU (2008) Mental health in Sumatra after the tsunami. Am J Public Health 98:1671–1677 Garai J (2016) Gender specific vulnerability in climate change and possible sustainable livelihoods of coastal people. A case from Bangladesh. J Integr Coast Zone Manag 16(1):79–88. https://doi. org/10.5894/rgci656 Greeff AP, Lawrence J (2011) Indications of resilience factors in families who have lost a home in a shack fire. J Community Appl Soc Psychol 22:210–224. https://doi.org/10.1002/casp.1108 Halpern J, Tramontin M (2007) Disaster mental health: Theory and practice. Thomson Brooke/ Cole, Belmont, CA Hare I (2004) Defining social work for the 21st century the International Federation of Social Workers’ revised definition of social work. Int Soc Work 47(3):407–424 Hodgkinson PE, Stewart M (1991) Coping with catastrophe: a handbook of disaster management. Routledge, London IFRC (International Federation of Red Cross and Red Crescent Societies) (2009) Psychosocial interventions, a handbook. International Federation Reference Centre for Psychosocial Support, Copenhagen IFRC (International Federation of Red Cross and Red Crescent Societies) (2011) Ten steps to creating safe environments. How organizations and communities can prevent, mitigate and respond to interpersonal violence. Canadian Red Cross. http://www.redcross.ca/crc/documents/ 3-5-7-1_respected_2011_tensteps_english_c15_proof.pdf IFRC (International Federation of Red Cross and Red Crescent Societies) (2016) Unseen, unheard, gender-based violence in disasters Asia-Pacific case studies. International Federation of Red Cross and Red Crescent Societies, Asia Pacific Office, Kuala Lumpur. http://www.ifrc.org/Global/Publi cations/Gender%20and%20Diversity/GBV%20in%20disasters%20AP%20report%20LR.pdf Ignacio LL, Perlas AP (1995) From victims to survivors: psychosocial intervention in disaster management in Philippines. Int J Ment Health 24(4):3–51 Inter-Agency Standing Committee (IASC) (2007) IASC guidelines on mental health and psychosocial support in emergency setting. IASC, Geneva Inter-Agency Standing Committee (IASC) (2010) Mental health and psychosocial support in humanitarian emergency. What should protection programme managers know? IASC, Geneva Kam PK (2012) Back to the ‘social’ of social work: reviving the social work profession’s contribution to the promotion of social justice. Int Soc Work 57:723–740. https://doi.org/ 10.1177/0020872812447118 Katz CL, Pellegrino L, Pandya A, Ng A, Delisi LE (2002) Research on psychiatric outcomes and interventions subsequent to disaster: a review of the literature. Psychiatry Res 110:201–217 Kemp SP, Palinkas LA (2015) Strengthening the social response to the human impacts of environmental change, grand challenges for social work initiative. Working paper no. 5. American Academy of Social Work and Social Welfare. http://aaswsw.org/wp-content/uploads/2015/12/ WP5-with-cover.pdf Kenardy J (2000) The current status of psychological debriefing, it may do more harm than good. Br Med J 321(7268):1032–1033 Kirk S (2005) Mental disorders in the social environment. Columbia University Press, New York Linnenluecke MK, McKnight B (2017) Community resilience to natural disasters: the role of disaster entrepreneurship. J Enterpr Commun: People Places Global Econ 11(1):166–185. https://doi.org/10.1108/JEC-01-2015-0005 Luthar SS, Cicchetti D, Becker B (2000) The construct of resilience: a critical evaluation and guidelines for future work. Child Dev 71(3):543–562 Maschi T, Baer J, Turner SG (2011) The psychological goods on clinical social work: a content analysis of the clinical social work and social justice literature. J Soc Work Pract 25(2):233–253. https://doi.org/10.1080/02650533.2010.544847 Masson VL, Lim S, Budimir M, Podboj JS (2016) Working paper, disasters and violence against women and girls: can disasters shake social norms and power relations? Overseas Development
18
Natural Disaster
391
Institute, London. https://www.odi.org/sites/odi.org.uk/files/resource-documents/11113.pdf. Accessed 28 Dec 2017 Math SB, Girimaji SC, Benegal V, Uday Kumar GS, Hamza A, Nagaraja D (2006) Tsunami: psychosocial aspects of Andaman and Nicobar Islands. Assessment and intervention in the early phase. Int Rev Psychiatry 18(3):233–239 Math SB, John JP, Girimaji SC, Benegal V, Sunny B, Krishnakanth K, Kumar U et al (2008) Comparative study of psychiatric morbidity among the displaced and non-displaced populations in the Andaman and Nicobar Islands following the tsunami. Prehosp Disaster Med 23:29–34 Math SB, Nirmala MC, Moirangthem S, Kumar NC (2015) Disaster management: mental health perspectives. Indian J Psychol Med 37(3):201–271 Miley KK, O’Melia MW, DuBois BL (2009) Generalist social work practice: an empowering approach, 6th edn. Allyn and Bacon, Boston Miller JL (2012) Psychosocial capacity building in response to disasters. Columbia University Press, New York Mollica RF (1996) Human rights reflections in daily medical practice. Med J 165:594–595 Mollica RF, Cardozo BL, Osofsky HJ, Raphael B, Ager A, Salama P (2004) Mental health in complex emergencies. Lancet 364:2058–2077 NATO (2008) Psychosocial care for people affected by disaster and major incidents: a model for designing, delivering and managing psychosocial services for people involved in major incidents, conflict, disasters and terrorism. North Atlantic Treaty Organization, Brussels Nikku BR (2015) Living through and responding to disasters: multiple roles for social work. Soc Work Educ 34(6):601–606. https://doi.org/10.1080/02615479.2015.1090942 Norris FH, Stevens SP, Pfefferbaum B, Wyche KF, Pfefferbaum RL (2008) Community resilience as a metaphor, theory, set of capacities, and strategy for disaster readiness. Am J Community Psychol 41:127–150. https://doi.org/10.1007/s10464-007-9156-6 North CS (2003) Psychiatric epidemiology of disaster responses. In: Ursano RJ, Norwood AE (eds) Trauma and disaster, responses and management. Review of psychiatry series, vol 22. American Psychiatric Publishing, Arlington, pp 37–62 O’Connell R, Poudyal B, Streel E, Bahgat F, Tol W, Ventevogel P (2012) Who is where, when, doing what: mapping services for mental health and psychosocial support in emergencies. Intervention 10(2):171–176 Pichet U (2008) Mental health and the psychosocial consequences of natural disasters in Asia. Int Rev Psychiatry (Abingdon, Engl) 20(5):441–444. https://doi.org/10.1080/09540260802397487. Pimm SL (1984) The complexity and stability of ecosystems. Nature 307(5949): 321–326. https:// www.nature.com/articles/307321a0.pdf. Accessed 29 Dec 2017 Pockett R (2006) Learning from each other. Soc Work Health Care 43(2):131–149 Psychosocial Working Group (2003) Psychosocial intervention in complex emergencies: a conceptual framework. http://www.forcedmigration.org/psychosocial/papers/Conceptual%20Frame work.pdf. Accessed 28 Dec 2017 Pupavac V (2001) Therapeutic governance: psycho-social intervention and trauma risk management. Disasters 25(4):358–372 Roberts LW (2002) Informed consent and the capacity for voluntarism. Am J Psychiatr 159:705–712 Scolobig A, Prior T, Schroter D, Jorin J, Patt A (2015) Towards people-centered approaches for effective disaster risk management: balancing rhetoric with reality. Int J Disaster Risk Reduct 12:202–212 Shultz JM, Forbes D (2014) Psychological first aid: rapid proliferation and the search for evidence. Disaster Health 2(1):3–12 Sim T (2009) Crossing the river stone by stone: developing an expanded school mental health network in post-quake Sichuan. China J Soc Work 2(3):165–177. https://doi.org/10.1080/ 17525090903211713
392
T. Sim and J. Garai
Sim T (2015) Psychosocial work. In: James DW (ed) International encyclopedia of the social and behavioral sciences, vol 19, 2nd edn. Elsevier, Oxford, pp 477–483 Sim T, Dominelli L (2016) When the mountains move: a Chinese post-disaster psychosocial social work model. Qual Soc Work 16:594–611. https://doi.org/10.1177/1473325016637912 Sim T, Yuen WKA, Chen HQ, Qi HD (2013) Rising to the occasion: China disaster social work. Int Soc Work 56(4):544–562 Sundet P, Mermelstein J (1997) Predictors of rural community survival after natural disaster. J Soc Serv Res 22(1–2):57–70. https://doi.org/10.1300/J079v22n01_04 Taubman A, Weisz A (2011) Emerging concerns for international social work and disaster response: from relief to development and sustainability. Columbia Soc Work Rev 2:37–48 Terry G (2009) No climate justice without gender justice: an overview of the issues. Gend Dev 17(1):5–18. https://doi.org/10.1080/13552070802696839 Thienkrua W, Cardozo BL, Chakkraband MLS, Guadamuz TE et al (2006) Symptoms of posttraumatic stress disorder and depression among children in tsunami-affected areas in Southern Thailand. JAMA 296(5):549 Twigg J (2004) Disaster risk reduction: mitigation and preparedness in development and emergency programming. Humanitarian Practice Network, Number 9, March 2004 UNDP (2010) Gender and disasters. United Nations Development Programme, Bureau for Crisis Prevention and Recovery. One United Nations Plaza, New York. http://www.undp.org/content/ dam/undp/library/crisis%20prevention/disaster/7Disaster%20Risk%20Reduction%20-%20Gen der.pdf. Accessed 28 Dec 2017 UNICEF (2009) Psychosocial support of children in emergency. http://www.unicefinemergencies. com/downloads/eresource/docs/MHPSS/Psychosocial%20support%20of%20children%20in% 20emergencies.pdf US Department of Veterans Affairs (2013) Veterans health administration. IV 810 Vermen Avenue NW Washington, DC. Walker JE (2006) Building from strength: Asset-based community development. Communities and Banking (Winter): 25–27 Walsh F (1996) The concept of family resilience: crisis and challenges. Fam Process 35:261–281 Walsh F (2007) Traumatic loss and major disasters: strengthening family and community resilience. Fam Process 46(2):207–227. https://doi.org/10.1111/j.1545-5300.2007.00205.x Walsh F (2012) Family resilience, strengths forged through adversity. In: Walsh F (ed) Normal family process, 4th edn. Guilford Press, New York, pp 399–427 Webster SA (1995) Disasters and disaster aid. In: Encyclopedia of social work, vol 1, 19th edn. NASW, Washington, DC Weingarten K (2004) Witnessing the effects of political violence in families: mechanisms of intergenerational transmission of trauma and clinical interventions. J Marital Fam Ther 30(1):45–59 Wessells MG (2007) Do no harm: challenges in organizing psychosocial support to displaced people in emergency settings. Refuge 25(01):6–14 WHO (World Health Organization) (2003) Department of mental and substance dependence, mental health in emergencies mental and social aspects of health of populations exposed to extreme stressors. WHO, Geneva WHO (World Health Organization) (2005a) Mental health assistance to the populations affected by the Tsunami in Asia. http://www.who.int/mental_health/resources/tsunami/en/index1.html WHO (World Health Organization) (2005b) Violence and disasters. World Health Organization, Department of Injuries and Violence Prevention, Geneva. http://www.who.int/violence_injury_ prevention/publications/violence/violence_disasters.pdf. Accessed 28 Dec 2017 WHO (World Health Organization) (2006) The mental health and psychosocial aspects of disaster preparedness. Report of an intercountry meeting, Khao Lak. http://apps.searo.who.int/pds_docs/ B0418.pdf
18
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WHO (World Health Organization) (2012) Assessing mental health and psychosocial needs and resources. https://apps.who.int/iris/bitstream/handle/10665/76796/9789241548533_eng. pdf;jsessionid=938B185274609CD31205E2B3F9EA97F5?sequence=1 Windle G (2011) What is resilience? A review and concept analysis. Rev Clin Gerontol 21(2): 151–169 Yanay U, Benjamin S (2005) The role of social workers in disasters, the Jerusalem experience. Int Soc Work 48(3):263–276 Yong BH, Ford JD, Ruzek JZI, Friedman M, Gusman FD (2008) Disaster mental health services: a guide for clinicians and administrators. National Center for Post-Traumatic Stress Disorder, Palo Alto
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Definition of Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Religious Beliefs and Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Concept of Mental Health in Islamic Perspective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Work in Islamic Perspective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Step I: Taking Stock of Relevant Islamic Concepts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Selection of a Practice Model for Integration . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Field Testing and Modification . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Dissemination and Education . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Islamic Intervention in Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Health in Medicine . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Group Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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The health and psychological well-being condition that occurs today is caused by several factors such as one’s lifestyle, environmental values in society, behavior, and work condition. Social workers and other professionals such as psychologists and counselors also play an important role in contributing to the psychological well-being, of the society. The importance of spiritual dimension and psychological well-being can be related to the uniqueness of the creation of mankind. This chapter will discuss about the importance of spiritual dimension and psychological well-being, which can be related to the uniqueness of the creation of mankind, the Islamic point of view about mental health, religious M. D. A. Malek (*) Faculty of Psychology and Education, Universiti Malaysia Sabah, Kota Kinabalu, Malaysia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_26
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belief of mental health, social works in Islamic perspectives, as well as the pillars of Muslim social workers. As a Muslim social worker, one must observe and abide by the International Federation of Social Work Statement of Ethical Principles in line with professional social work values. Keywords
Mental health and social work in Islamic perspective · Psychological well-being · Spiritual dimension · Religious
Introduction Mental health is an issue that is closely linked with knowledge and insight. It is now a mind-boggling problem in the country, with more people believed to be experiencing some sort of emotional stress and mental distress. The health and psychological well-being condition that occurs today is caused by several factors such as one’s lifestyle, environmental values in society, human behavior, and work condition. In fact, mental health problems do not only have an impact on the health sector but also on everyday life activities, including crime, bullying at school and work place, divorce, violence against children, etc. Based on the National Health and Morbidity Survey by the Institute for Public Health (IPH) (2011), 12% of Malaysians aged between 18 and 60 suffer from some forms of mental illness. The most commonly diagnosed mental illnesses in Malaysia are anxiety, depression, and stress disorders. Neuropsychiatric disorders contributed an estimated 16.8% of the global burden of disease in 2008. Considering the importance of mental health issues, various fields of science have specialized on the study of human behavior problems to understand certain issues that happen in society. Social workers and other professionals such as psychologists and counselors also play an important role in contributing to the psychological well-being of the society. The importance of spiritual dimension and psychological well-being can be related to the uniqueness of the creation of mankind. It is very crucial that the concept and history of the creation of mankind are grasped to ensure that we realize the uniqueness of the existence of human and can reflect on the importance of the mental process and human lifestyle. In the Islamic perspective, Allah SWT (the God) created the Universe and all that exists, seen or unseen. He created humans as special, dignified beings, with integral spiritual and physical constituent elements. He endowed them with countless blessings and capabilities. Salient among these are sense organs and minds, to help them make sense of their surroundings and accumulate useful knowledge needed for survival. However, because of the complexity of life situations and the limited capacities of the senses and the mind, Allah mercifully provided nations with guidance in the form of the Holy Qur’an (the Divine Book), manual to help them make it through this temporary, transient life, in the form of Revelation. The Holy Qur’an, literally the words of God, was revealed to Prophet Muhammad (SAW), the last link in the familiar chain of theistic messengers of God. The Qur’an, which was zealously kept intact, letter by
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letter, for more than 14 centuries, guides almost one fourth of the world population today. According to Ragab (2016), the Qur’an is intended to guide humanity on how to make the correct choices in their daily life and as a source for true knowledge that transcends the limitations of the human mind and the senses. Mankind is considered as a superior creation. The Qur’an revealed the process of the creation of man long before science was able to label every part of the anatomy, down to the inner contents of the individual cells, with their scientific names and pictorial descriptions. In fact, in the Qur’an, Allah described the chronological phases of fetal growth and development 14 centuries ago, long before any ultrasound machines existed: Verily We created man from a product of wet earth; then placed him as a drop (of seed) in a safe lodging; then We fashioned the drop into a clot, then We fashioned the clot into a little lump, then We fashioned the little lump into bones, then clothed the bones with flesh, and then produced another creation. So, blessed be Allah, the Best of Creators! [Qur’an, AlMu’minun: 12–14]
According to Tafsir Ibn Kathir (1994), which is one of the main references for Muslim scholars, this reference to man’s creation from “ﺕﺭﺍﺏ,” or dust, implies the origin of mankind, namely, the creation of the first human being, Prophet Adam []ﻉﻝﻱﻩ ﺍﻝﺱﻝﺍﻡ, from dust: “[“And Allah did create you from dust, then from Nutfah”], meaning, He initiated the creation of your father Adam from dust, then He created his offspring from semen of worthless water.” Modern science has, by now, explained the entire process of the creation of a human being, down to those minute, microscopic intricacies that were invisible to the human eye centuries ago. Many times, in the Qur’an, Allah SWT draws our attention to the way we were created. It is interesting to remember though that at the time when these verses were revealed, human beings had limited knowledge about the process of human birth. In fact, the author believed that Islam is one of the religions which focuses on the psychological well-being of mankind.
The Definition of Mental Health There are multiple definitions of mental health. According to Kartono (2000), mental health means “mental hygiene.” The etymology of “mental hygiene” is derived from the words mental and hygiene. Meanwhile, Hygiene is the name of the Greek goddess of health in which hygiene means health sciences. Mental (from the Latin word, mentis) means soul, life, or spirit. Mental hygiene is often referred as psychohygiene. Psyche (from the Greek word psuche) means the breath, the principle of life, life, soul, or spirit. According to Notosoedirdjo (2001), various understandings on mental health are as follows: 1. A healthy mental health means no mental disorders. 2. A healthy mental health is obtained by the absence of any illness that could potentially occur with the presence of a stressor.
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3. A healthy mental health occurs if a human is in line with his or her capacity and is in harmony with their environment. 4. A healthy mental health means that the human is positively growing. World Health Organization (2005) defines mental health as “. . . a state of wellbeing in which the individual realizes his or her own abilities, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make contribution to his or her community.” Mental health refers to our cognitive, behavioral, and emotional well-being – it is all about how we think, feel, and behave. The term “mental health” is sometimes used to indicate an absence of a mental disorder. Mental health can affect daily life, relationships, and even physical health. It also includes a person’s ability to enjoy life – to attain a balance between life activities and efforts to achieve psychological resilience.
Religious Beliefs and Mental Health The culture of a society is usually characterized with the beliefs and moralities of its people, which are conveyed to an individual through the education provided by the family, society, and religious associations. A person’s religious beliefs tell us a lot about their personality and view of life. A person trusting in God normally experiences the least amount of stress (Athar 2009). Mental and moral diseases have a resemblance to physical diseases. Both have the potential to kill and need to be treated and, at times, could be contagious and must be analyzed. After the main cause is identified, it should be treated accordingly. The Qur’an is considered as a remedying medicine for those who are materialistic, suffer from attachment issues to the world, and possess the need to unconditionally surrender to lust. Maryam Gazorpour and Nasrin Barkhordar (2003) examined the question of mental health in the Qur’an and concluded that throughout the Qur’an, there are teachings that are highly effective, in which each has their own way in maintaining mental balance and providing hope and dignity to human beings. The Qur’an, in fact, does not use the word mental health but a number of other terms conveying the same concept. Some of these terms include Sakinah, Qalbu Salim, Hayatan tayyibah, and Nafsu mutmainnah. Muslims believed that listening and reciting the Qur’an is one of the best coping behavior strategies. When Qur’an is recited aloud, it has an effect on physiological parameters such as the heartbeat, blood pressure, and muscle tension. These effects have been reported regardless of whether he or she is Muslim or non-Muslim and Arab or non-Arab. Anyone can take delight in listening to God’s word (Athar 2009). According to Farideh et al. (2010), in 2006, a research was conducted by Kazem Ali Mohammadi and Massoud Jan on the relationship between
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religious beliefs and mental health. There was a positive and meaningful correlation between these two. Also, the findings of this research correlated with the findings of other researches performed in other nations, confirming that people who practiced their beliefs show a higher degree of happiness. Thus, strong belief in religious teachings is among the main factors of happiness and contentment as a component of mental health. On the topic of prayer, Allah SWT says in the Qur’an: “When my servants ask you about me, tell them that I am close to them and answer the question of the person who calls me. Thus, they should listen to me and have faith in me if they wish to be salvaged” (Qur’an, Al-Baqarah: 186). William James, a psychologist, says that any form of prayer indicates that through the connection with God, the person who prays has obtained spiritual power that is said to be food for the soul. The prayer contains power which is as real as the force of gravity. Remembering Allah SWT (God) constantly is very effective for the health of the soul and strengthens the bond between man and God (Bayan Memar 2003). One of the techniques used by Muslim psychologists and Muslim social workers to treat patients is by calming them through praying. Praying has the same effect as it reduces stress and brings serenity to a person. In Islam, our mental process and psychological well-being are the most important factors that should be focused. Therefore, the concept of well-being and peace is crucial. Islam is an Arabic word which denotes submission, surrender, and obedience. As a religion, Islam stands for complete submission and obedience to Allah SWT (God). The Qur’an states: “Those who believe, and whose hearts find satisfaction in the remembrance of God: for without doubt in the remembrance of God do these hearts find satisfaction. For those who believe and work righteousness, is (every) blessed, and is promised a beautiful place of (final) return” (Qur’an, Al-Ra’d: 28–29). As discussed earlier, mental health problems do not only have an impact on the health sector but also on daily activities. Considering the importance of mental health issues, various areas of science have specialized on the study of human behavior problems. The various fields of science that have shown dedication to the study of mental health include social work, medicine, education, religious studies, social welfare, and psychology. The treatment of mental health afflictions is a concern for everyone in the twentyfirst century. Sheikh and Gatrad (2000) argued that Muslim narratives are not necessarily understood by the Western models of care. A particular view states that psychological difficulties such as depression and anxiety may be viewed from an Islamic perspective as an indication of an unsettled spiritual heart, a viewpoint which is incongruent with the broadly secular models of Western health care (Sheikh and Gatrad 2000). Whereas the Western model extols the expertise of health-care professionals, the Islamic way often relies on performing prayers and turning to religious leaders and family for support (Khan 2006). However, these forms of support are not necessarily mutually exclusive, if individuals can find utility in both conceptualizations of
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mental distress. Khan’s (2006) survey of 459 Muslims which was conducted in America highlighted the potential for health-care provisions to complement traditional care through participants’ repeated identification of the need for services. Nevertheless, Khan suggested this balance has not yet been achieved as the identification of need was not related to a subsequent uptake of services. Similarly, a recent UK study of 156 Muslims of Pakistani origin found a consistent lack of uptake of mental health services (Rethink 2007).
The Concept of Mental Health in Islamic Perspective In the concept of Mental Health in Islamic Perspective from the view of the Qur’an, mankind has three aspects: “jismiyyah” (physical, biological), “nafsiyyah” (mental, psychological), and “ruhiyyah” (spiritual, transcendental). The aspect of “jismiyyah” is the biological physical organ of the mental health of humans (Rahman 2015). The biological physical organ is composed of elements such as earth, water, fire, and air, and it is the most perfect form compared to other creatures, as it is called a concrete form and gives them soul in which they are able to sense various feelings, such as pain, heat, thirst, hunger, and sexual pleasure and the so-called abstract form. The “nafsiyyah” aspect is the overall quality of the typical human, in the form of thoughts, feelings, will, and freedom, whose existence is among “jismiyyah” aspects and “ruhiyyah” aspects. Al-qalb dimension exists as a determinant in the capacity of human goodness and badness that has three functions: firstly, the cognition functions which give rise to creativity; secondly, the emotion function that causes a sense of power; and, finally, the konasi function that raises the power of intention. Under these conditions, the al-qalb is divided into three conditions, namely, “qalb” good condition (Salim), “qalb” bad, and “qalb” between good and bad (Baharudin 2007). There are some forms of the signs of mental health, such as the establishment (alSakinah). The word “Sakinah” in Arabic semantic study comes from the word “Sakana,” which means the food or the poor or infant (village or country citizens). From this semantic sense, the word “Sakinah” means establishment because it has a settled territory and does not move. The terminology of “Sakinah” also has the meaning of (1) al-wadaah, al-waqarah, and al-thuma’ninah which means tranquility and (2) al-rahman which means mercy, whereas in English it means calmness, quietness (security), peacefulness (peace), and serenity (tranquility). Wahbah AlZuhaili (2008), one of the famous Muslim scholars, in his commentary gave the meaning of “Sakinah” with statutes or serenity of the people’s soul (al-isabait and al-thuma’ninah) from all anxiety (al-qalaq) and difficulties or the narrowness of mind (al-idtirar). The word “Sakinah” also means leaving hostility or war and “anab” (al-safe), the loss of fear (al-khouf), and the sorrow of the soul. Ibn Qayyim (1986) classified the meaning of “Sakinah” as the information given by God, to the soul of strong, restless, and agitated people, in order to increase their faith and beliefs. The definition of “calmness” in terms of “Sakinah” does not mean static or immobile, but people who do the work and complete the task they are given are often accompanied by a sense of tranquility. If the term of “Sakinah” has a static and
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immobile meaning, it means that the human mental health spirit would not develop, and it violates the law of developments.
Social Work in Islamic Perspective Social work looked so attractive, perceived to be “the scientific” means for achieving the badly needed social change and social reforms. The profession was introduced as a “social technology” applying “modern science” (social and behavioral) with the aim of tackling socioeconomic problems swiftly and efficiently. For social workers in the Muslim world, authentization of social work implied the integration of Islamic religious knowledge with current practice theories. But the latter, still adhering to a nineteenth-century positivist/empiricist epistemology, hampered the inclusion of religious concepts in professional practice. In time, however, certain theoretical breakthroughs (Sorokin’s integralism, Maslow’s transpersonal psychology, the Islamization of knowledge movement, spirituality in social work movement) helped remove that obstacle (Ragab 2016). As scholars involved in the authentization of social work movement delved deep into examining the basic characteristics of their local cultural and religious heritage, they realized that their clients (and themselves) do embrace a worldview that is starkly different from that underlying Western social work. Issues of the “ontological” and “epistemological” assumptions on which the profession’s practice theories rest were suddenly brought to the center of discussion, something social workers have always ignored, relegating to the realm of unnecessary philosophizing. After all, they reason, a profession is basically about “doing,” thus being interested in techniques and skills for practice. But now, as they found how cultural and religious values do shape the client’s worldview, his behavior, his problems, and their solutions, there was no escape taking up these abstract issues very seriously – if they ever hoped for their practice to be effective (Ragab 2016). Ragab (2016) believed that social work theories of practice should be submitted to rigorous scrutiny to ascertain the degree of each theory’s congruence with the Islamic ontology and epistemology. But, of course, other aspects of practice which are merely technical and instrumental would be utilized, even treasured. And in accordance with the authentization methodology described above, any components which prove to be compatible with the Islamic worldview would be merged into the texture of the new “integrated” model. Then, the new syntheses would have to withstand rigorous field testing, if it is to be accepted as part of the new genuine conceptualization. The qualifier “genuine” is meant to replace the label authentized, because the product would be then ready to be part of mainstream social work. However, despite this evident and clear need for the inclusion of religious concepts when providing services to Muslim clients effectively and despite insistence that this inclusion should be performed in a systematic, verifiable fashion, many academics found it hard to accept that innovative approach. They adhered to the notion that mixing so-called science and religion was not “scientifically” sound. It was clear that most of those disobedient were still stuck to the old nineteenth-century “positivist” philosophy, almost unaware of the impact of the
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twentieth-century revolutionary developments in science, subnuclear physics, cosmology, neuroscience, and psychology, which brought in dramatic changes in our view of the world and of ourselves. Space would not allow dwelling on these vast scientific discoveries or their radical consequences, but fuller accounts could be easily found elsewhere (Ragab 2016). The Islamic Perspective on Social Work Practice refers here to the methodical integration of (a) extant social work practice theories, to the extent that they are compatible with the Islamic ontological and epistemological presuppositions, with (b) relevant aspects of Islamic knowledge, values, and beliefs. As mentioned above, the rich Islamic heritage, rooted in the Qur’an and the Sunnah (the body of traditional social and legal custom and practice of the Islamic community and one of the major source of Sharīʿah, or Islamic law), accumulated by scholars over the centuries, deeply impacts the life of a Muslim in all its facets and in so many ways, starting from defining his identity and the way he sees himself, the world around him, and beyond all the way to guiding him to the legitimate types of financial transactions, decent attire, table manners, and even water conservation. According to Ragab (2016) and other scholars such as Fahrudin et al. (2003) and Azmi (1991), social work as a profession, that Islamic heritage contains tried and tested knowledge, values, and deep spiritual insights, is essential to working with Muslim clients in three ways, namely: 1. It contains a general theory of human behavior and the social environment. 2. It offers a “comprehensive,” non-reductionist theory of the causes of “psychosocial” problems. 3. It provides potent motivating techniques for helping Muslim clients cope with their problems. So, in parallel with the general phases of the process of integration of Islamic concepts in “theory building and research” described above, we will describe here the integration process when it comes to social work “practice.” Ragab (2016) believed that there are several steps for Muslims social work to help their client, namely:
Step I: Taking Stock of Relevant Islamic Concepts If we expect to be able to help Muslim clients overcome their psychosocial problems effectively, we cannot assume that they typically think and act in exactly the same way as “the client” is supposed to think or act under the Western model or practice theory. The most notable feature of concern here is the Islamic view of human nature. As hinted above, in Islam, human beings are dignified beings “created” by the Almighty God, with spiritual and bodily components, and endowed with free will. Each human being lives on this Earth for a limited predestined time span, where he is continuously being “tested” on how he uses his God-given free will: for good or evil. Based on the results of the tests, he receives his rewards or punishments in the eternal Real Life (the hereafter). The Qur’an, the words of God, kept intact in the
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Arabic tongue (no translation) word by word since it was revealed, provides divine guidance to humans in all facets of their lives. The words and deeds of Muhammad, the Messenger of God, provide humans with specific guidelines on how one should conduct himself correctly in this life in its daily details. Now, taking stock of these precepts should afford us the basis for selecting (or modifying) congruent models or practice theories which would be appropriate for working with Muslim clients.
Selection of a Practice Model for Integration The inventory of current practices and practice theories would be subjected to attentive assessment as to their degree of congruence with these Islamic principles. The ontological and epistemological assumptions on which these practice theories or models are based should be rigorously critiqued. Maslow (1954) pronounced his judgment – on the basis of careful assessment – about the first two “forces” in psychology, freudianism and behaviorism, on which social work has depended for decades, dubbing them “nontheories” (himself being for long an ardent behaviorist!). Fortunately, the latest theoretical frameworks reflecting the post-positivistic, post-materialistic “New Story” of science are more open to acceptance of the spiritual and religious factors and consequently are more compatible with the Islamic concepts (Ragab 2016). With the recognition of the mentalist and cognitive factors by humanistic psychology, and the recognition of the transcendent and the “spiritual” factors by transpersonal psychology, social work research took notice of the potentialities for the inclusion of Islamic tenets into the cognitive-behavioral model (Hodge and Nadir 2008). But it is important to point out that the incorporation of Islamic concepts in social work practice entails making certain modifications in the way “standard” procedures and techniques are carried out. For example, the “professional relationship,” the cornerstone of the helping process, when informed by the “Islamic” perspective, certain relevant Islamic precepts when applied would significantly modify its nature. The Islamic perspective introduces the concept of the client being seen as the worker’s “brother in faith.” It follows that the worker, answerable to the All-Seeing and All-Hearing God, has the “duty” to serve him and to protect him as humbly and as caringly as is humanly possible. The worker is rewarded by no less authority than God, both in this life and in the hereafter, in accordance with the degree of his adhering to these admonitions (Zeidan 2005). While, at the same time, if the client is a non-Muslim, the worker, also answerable to God again, should offer him the best “traditional” services his client is entitled to, in fairness and without imposition, or any attempt at proselytization that exploits his need for help.
Field Testing and Modification Once the process of inclusion of the Islamic precepts into such models or practices is completed, these integral innovative practices are ready for testing, the testing of the innovative integrated models or practices usually of the “intervention research”
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variety that takes place in real-life situations and institutions. Maslow (1954) noted that revolutionary developments such as these (his reference was to transpersonal psychology) require such types of research, declaring “Clearly the next step for this psychology and philosophy is research, research, research–not only in the laboratory, but more importantly, in the field, in society, in factories, in homes, hospitals, communities, even nations” (Maslow 1970: 6).
Dissemination and Education Successful models and practices reports standardized and codified describing them would find their way to conference presentations and professional journals. In this way they would be exposed to critical reviews and wide deliberations. In time, the products would find their way to textbooks and other material to be infused in social work education. In-service training could disseminate them to social workers already in the field in accordance with the normal cycle of professional knowledge production, dissemination, and assimilation. There are several verses that discussed about the concept of social work in Islam. For example, the Qur’an stated that: It is not righteous that you turn your faces towards East or West; but it is righteous to believe in Allah and the Last Day and the Angels and the Book and the Messengers; to spend of your substance out of love for Him, for your kin, for orphans, for the needy, for the wayfarer, for those who ask; and for the ransom of slaves; to be steadfast in prayers and practice regular charity; to fulfill the contracts which you made; and to be firm and patient in pain (or suffering) and adversity and throughout all periods of panic. Such are the people of truth, the God fearing. (Qur’an, Al-Baqarah: 177).
The above verse is the concept of social work in Islam. It is however more than a philosophical concept but also a practical draft that outlines the why, whom, and who of service delivery. Muslims believe that the form of worship is incomplete without conducting deeds that could help others. This is because Muslims hold on to the belief that Allah is advising us to complete our worship by helping the needy. Therefore, after believing in Allah SWT, the angels, the Prophets, the Books, and the Last Day, we must translate our Iman (faith) and our beliefs into actions of service to humankind. In fact, it is considered necessary for believers to fulfill their duty of service to those who need their help. Every Muslim is obliged to contribute to the welfare of society. Thus, by establishing social services within Muslim communities, every Muslim can indirectly participate through financial and moral support. The Prophet Muhammad SAW said: “Whosoever removes a worldly grief from a believer, Allah will remove from him one of the griefs on the Day of Judgment. Whosoever alleviates [the] lot of a destitute person, Allah SWT will alleviate his lot in this world and the next. Whosoever conceals the faults of a Muslim, Allah will conceal his faults in this world and the next. Allah will aid a servant (of His) so long as the servant aids his brother.” The question of who is best qualified to carry out the duty of serving the community in the area of social
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services is again outlined in this verse as one who believes in the Unity of Allah, the Last Day, the Angels, Books, and Messengers of Allah. When we are asked on how are we able to achieve these objectives of Islamic social services, the Qur’an once again gives us assistance by laying out the principle on what actions we should take to create the base for our social services but also through which way we could achieve our goals. To conclude, these principles define a Muslim social worker and provide the power and ability to serve their clients in the best way possible. 1. Steadfast in prayer: The one best equipped to help others is one who is steadfast in prayer. “Thee alone we worship, Thee alone we ask for help.” In a Muslim community, a person nominated for social work must possess this fundamental trait of a Muslim. If they are to be effective and productive, it is also a reminder to those of us working in the field that we must be steadfast in prayer. 2. Regular charity: They should of course foster a personality that is giving and allows character development that is empathetic to the needs of others. Communities where members contribute to charity of all kinds are considered as both compulsory and voluntary which could benefit each other and feel responsible for each other. 3. Fulfill contract: Muslims working in the field of social services must be trustworthy, honest, and conscientious of their duty to their clients. Services delivered cannot be haphazard or half-hearted. When we make a pledge, we must honor it; when we make a promise, we should keep it; and when we set ourselves up as helpers, we fulfill that task to the best of our abilities. 4. Patience in pain, suffering, adversity, and panic: These are characteristics that are essential for Muslim social workers, counselors, Imams, and leaders. When people depend on us for support and rely on our counsel, we cannot be hasty, impatient, or panic at first sign of difficulty. The task for Muslim workers in social services is soul wrenching and requires a personality that is blessed with Taqwa (God consciousness) and Sabr (patience). However, the levels of Taqwa (God consciousness) may vary, but it is an evolutionary process in which one can develop the personality of a Mutaqi (one who has God consciousness). 5. Truth: As the Prophet Muhammad SAW stated: “A Muslim cannot be a liar.” Truth and honesty is the cornerstone of any public service. Lies stand in the way of trust without which a Muslim social worker or counselor is not viable. We must be honest in our dealings with our client and not use any underhanded ways. Truth is also a virtue that is admired universally and inspires respect, trust, and reliability. 6. God fearing: Those who fear Allah is always conscious of his or her duty to their Creator and will never harm or put anyone under their care into harm. A sense of accountability and responsibility to Allah must be the core trait of a Muslim community worker. This keeps our egos in check and focuses on the objective that our service must obtain the pleasure of Allah and His blessings, instead of the pleasure of making a name for us.
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In addition, as a Muslim social worker, one must observe and abide by the International Federation of Social Work Statement of Ethical Principles including recognizing the inherent dignity of humanity, promoting social justice, challenging unjust policies and practices, and respecting confidentiality and privacy, integrity, and accountability. Social work is a value-based profession; that is, there are philosophical underpinnings and specific worldviews that by and large shape the profession. Professional social work values aligned with a traditional Islamic perspective, yet there are also social work values and beliefs that Muslims may need to evaluate and negotiate according to their faith. Negotiation of social work values and beliefs are common among all professional social workers, regardless of their religious affiliation, and it is a constant, lifetime process. Islam clearly has a history and commitment to social welfare with the institution of zakat and “Al sadaqa.” Most notably, there are Qur’anic verses and hadith that emphasize caring for the poor, elderly, women in distress, and orphans. Even in the matter of privacy and the way in which people share information and communicate, Islamic tradition encourages people to be mindful of what they say and how they say things. For example, Islamic tradition discourages gossiping, insists respecting peoples’ privacy, and provides encouraging and kind words to others. This is clearly in alignment with the foundation of social work counseling and communication techniques. Furthermore, Islam encourages people to remain positive and hopeful in the most difficult circumstances, which explains why Muslims have a common adage of “alhamdullilah (praise God) for everything.” In social work this reflects taking a strengths-based approach, and it is a hallmark value in the profession. Professional social work can help Muslims better craft their actions to reflect such as an attitude. The Islamic perspective of the person emphasizes selflessness, healthy altruism, perfection of self, and giving happiness to others (Fahrudin et al. 2003). Why have social workers shown increasing interest in spirituality and religion? The root reason may be that our modern society, with its demands that for many are psychologically and emotionally overwhelming, plus its virtual displacement of community and family, has created myriad conditions of life that are spiritually and religiously shattering. Moreover, growing numbers of congregational clergy of all religions and denominations, responding to their members’ needs for counseling and therapeutic care, have sought secular education and training that would enable them to provide psychological and emotional treatment. They in turn have had a spiritual and religious influence on the individuals and institutions – including social workers and schools of social work – that have educated and trained them for such practice. Muslim social worker is required to adhere to the following pillars: 1. The “syahadah,” or profession of faith, is the belief that there is no other god but Allah (God) and that Prophet Muhammad (SAW) is His last prophet. Thus, Islam insists on the submission of the faithful to the oneness of God. “Say: He is God, the one and only” (Qur’an, Al-Ikhlaas: 1–4) is one of many Qur’anic verses emphasizing the monotheistic character of Islam. 2. The “solat” is the imperative to pray five times daily: at dawn, noon, midafternoon, sunset, and evening. The prayers can be performed anywhere, and although individual prayer is allowed, group prayer is preferred.
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3. The “zakat” is the requirement to pay alms to the needy on behalf of one’s family and business. “It was customarily calculated as an annual payment of two and one-half percent of all capital assets, savings, and current income above a specified threshold” (Azmi 1991). 4. The “Syiam” is the imperative to fast from food, drink, and sex during daylight hours during the month of Ramadan, which immediately precedes the celebration of the date upon which Allah revealed the Qur’an to the Prophet Muhammad. Ramadan thus ends with a 3-day celebration, Id Al-Fitr, the breaking of the fast. Self-discipline and reflection, rather than abstinence and self-mortification, are emphasized. 5. The “hajj” is a pilgrimage to Mecca, a holy city of Islam located where Allah revealed the Qur’an to the Prophet Muhammad SAW. The pilgrimage should be undertaken at least once in a Muslim’s lifetime, if financially, mentally, and physically capable. The beginning of the pilgrimage season is the end of Ramadan; the end of the season is the celebration of the Great Feast Id Al-Adha.
Islamic Intervention in Social Work Islam takes great account of the well-being of its people and teaches them to always take care of their health by practicing the act of prevention before cure, as it is stated that “To prevent is better than to cure.” Meanwhile, if the people suffer from sickness, they are encouraged to seek for the best remedy and treat the illness accordingly.
Mental Health in Medicine In the year 1985, WHO added spiritual well-being as an important aspect which could determine whether a person is healthy or not. The concept of prevention in Islam is “To prevent is better than to cure” (preventive medicine). Someone who is well informed about his or her potential, skills, and position will be able to work in optimum condition, which is a sign of a healthy mental person. On the contrary, a person who is forced to occupy certain positions or conditions will work to a certain extent which could later on lead to distress that could potentially be detrimental to their mental health. From the words of Allah: “That they may eat of the fruit, and from what is cultivated by their hands.” Thus, will they not be thankful? Prophet Muhammad SAW once stated: “Better food eaten by a person is food that comes from his own efforts, because the Prophet Daud also ate from his own work” (HR. Al-Bukhari). A mentally healthy person is a person who is grateful for his or her existence and characteristics, regardless of his or her physical condition, position, potential, or ability, because they are considered as grace (fadhl) and blessings from Allah, to test the quality of human labor, for worship or piety to Allah SWT. Despicable acts carried out by a person can cause psychological problems to themselves, while
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conducting good deeds will lead to the maintenance of a healthy mental state (Mujib 2005). And as for those who fear the greatness of his Lord and possess the ability to refrain from his desires. Surely then the paradise will be his residence (Al-Nazi’at: 40–41). The ability to assume responsibility, both family, social, and religious responsibilities shows the maturity of the person, as well as the condition of their mental health. Allah SWT said in the Qur’an: And if Allah wills, He made you one people (course), but Allah mislead whom He wills and gives guidance to whom He wills. and surely you will be asked about what you have been up to. (Qur’an, Al-Nahl: 93)
Humans are granted with the ability to sacrifice and redeem the mistakes they have done. Sacrifice means to concern oneself for the common good by giving away most of their wealth or ability. Meanwhile, redeeming their mistakes is defined as a selfawareness of said mistakes, thus they should dare to bear all the risks faced due to their previous actions, then they must refrain themselves from making the same mistake again. Both issues are considered as a sign of a person’s mental health, because what humans have, either in the form of mind-body or fortune, is indeed a gift that is the result of trust from Allah (SWT). As a mandate, if it is received in a good condition, then it should not be wasted or treated in a manner that disrupts the explosive emotional stability. In contrary, it should be used for the benefit in the context of Islam. However, if it is received in poor condition, then it should not be swore upon and faced in an apathetic and pessimistic manner, even ignored. The attitude that one is supposed to have is the ability to accept it well and try to use it optimally (Mujib 2005). Satisfaction and happiness are regarded as signs of one’s mental health, because an individual would feel successful, as if they have been freed from all burdens, and has fulfilled their needs. The acceptance of favors that brings satisfaction or happiness is not always seen from the quantitative side, but from its quality and blessing. Perhaps the individual is regarded as a failure according to the criteria and eyes of others, but because the individual has deep emotional maturity, then no matter how the quantity of favors one has received, they will feel a great sense of satisfaction and joy. Instead, individuals who are considered successful, but the success was addressed by greed, Kufr, and ungratefulness, then his inner soul will feel dissatisfied, envious, and filled with hatred toward others. Such mental state often creates psychosomatic illness (Mujib 2005).
Group Intervention Group intervention is one of the important interventions for Muslim social work. A social worker should comprehend the helping benefits, at several levels, of the above forms of prayers and the five pillars of Islam. All have a strong group element, reflecting and reinforcing Muslim society’s high-context nature; as a popular Muslim saying has it, “God’s hand [is] with the group.” At the group level, emotional support and exchange of ideas or difficulties take place, most often in the mosque, with other worshippers or with the imam. As emphasized by the Hadith, “The Prophet
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Muhammad SAW remarked: Those who interact with people and express their hardships are better than those who do not interact with people and do not express their pains.” In Islam, the concept of “Jamaah” or work with group is very important; for example, in performing “solat” or prayers, Muslim people are advised to perform in group. Group prayers help to create a sense of familiarity, friendliness, selflessness, and equality among the faithful. This is entirely consistent with the Hadith edict of the equality of believers regardless of color, social strata, or wealth; the Prophet Muhammad said: “All the people are equal as the comb’s teeth.” Group prayers also reinforce a potential for natural support networks and provide a rationale for breaking down barriers that would normally interfere with the mutual exchange of social support. The group nature of prayer can thus influence the thought and behavior of their members, in the context of group intervention (Yalom 1975). Beyond these considerations, research in social work and allied disciplines reveals several direct practice considerations for working with Muslim individuals and families. Practitioners, the literature points out, should: 1. Have an understanding of Muslim family arrangements as more hierarchical and less flexible, with a communication style that tends to be implicit and indirect, rather than explicit and direct (Daneshpour 1998). 2. Have an understanding of the implications of gender construction within Muslim society, which limits women’s movements outside the home and their women’s vocational choices, encourages women’s domesticity, and creates an ethos of the breadwinner male (Al-Krenawi and Graham 1996). In contrast to men, women sometimes with limited geographic mobility preclude seeking help outside their home communities. 3. Appreciate that the client may be reluctant to work with a practitioner of the opposite sex. Where opposite sex clients occur, reduced eye contact, greater physical distance, and culturally appropriate and consciously nonsexual terms such as “my brother” or “my sister” may be used (Al-Krenawi and Graham 1996). 4. Have a basic understanding of Islam, including Shiite, Sunni, and Islamic movement traditions, as well as their common practices and implications. 5. Have a clear understanding of the Muslim world view on sociocultural and psychosocial phenomena which may be encountered during social work practice. Examples include, but are not limited to, social prohibitions against suicide and social constructions of sexuality that affirm heterosexual lifestyles (Haynes et al. 1997). 6. Comprehend the cultural and personal significance of polygamy to family members; appreciate the significance of polygamy to children’s and mothers’ functioning. In order to motivate the father to accept help, children may be selected as a target system for intervention (Al-Krenawi et al. 1997). Muslim family structures may be polygamous, which may create economic loss to women and children, lower academic achievement among children, poor relations with wives and husband, and competition and jealousy between co-wives and among the co-wives’ children (Al-Krenawi et al. 1997). 7. Appreciate the explicit link between a Muslim’s religious identity and his or her individual identity.
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For the Muslim community, religion becomes a natural healing system. Whenever a person is suffering or is facing a problem, eventually they will feel a sense of connection to something great and transcendent which is very therapeutic. By feeling connected to something transcendent, one will feel a sense of power, which in turn gives him or her the resilience to face the sadness and hardships of life. The resilience of the client when faced with problems is often built by their religious beliefs and spirituality. Many clients facing terminal illness claimed that their experience led to self-reflection and a greater self-acceptance. They become more insightful due to their spiritual beliefs. The experience they’ve went through enables them to have a better understanding of the essential purpose of life. In general, the role of spiritual belief includes several aspects. The first role is coping. Spirituality can be observed as a humane way to deal with and adapt to problems (coping). For people who experience sadness and suffering, feeling the presence of God or the Highest Power provides strength and endurance to these stressful situations. The strong belief of the Ultimate Power brings a sense of control to this life. Folkman and Lazarus (1980) believed that coping can be defined as a person’s attempt, both cognitively and psychologically, to constantly manage internal and external demands that transcend one’s capacity. A man who goes through a crisis would first attempt to interpret his experience and then afterward try to cope with the crisis. One of the coping efforts includes the practice of spirituality. Praying is an example of a practice of spirituality that can give strength to a person, because by conducting the prayer, they feel the sense of guidance and protection of God in their settlement of troubles and difficulties. In addition, other spiritual prayers or practices and spiritualities are therapeutic because they bring hope and optimism to someone who was previously helpless. In this case, the figures of spirituality, religion, and the prophet serve as models that give examples of both their attitudes and their behavior. These figures are often people who are highly regarded as intellectuals and possess psychological qualities, such as courage, sincerity, kindness, and other relevant traits as a source of inspiration for humans in general. Furthermore, to the clerical figures, spirituality itself offers an ideal guide to human behavior. The concept of forgiveness, whether forgiving yourself or others, is important to integrate a client with their social reality. The client should try to accept reality, whether it is positive or negative, and make the best of it. In addition, individual spirituality believes in the relevance of submission to The Ultimate Entity. These would effectively promote the healing of stress and trauma. Next is the role of meaning. For the client, spirituality gives meaning to their life. It is with spirituality that they can find meaning in all events and situations, including their past horrific or traumatizing experiences and suffering. Spirituality brings a lot of significant meaning to such things, for example, a disaster can be interpreted as a test or message from God. The concept of intervention is very important for social workers to deal with their clients. The initial stage of intervention is considered as an assessment. Assessment is defined as the process of identifying factors causing problems, both internal and external, which interfere with the normal life of a person, group, or
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community. How spirituality-based interventions a social worker will perform depends on the outcome of the assessment. Components in the spirituality assessment include the following: 1. Exploring the life history of the client’s spirituality and how it implicates biopsychosocial functioning. 2. Determining the extent of the client’s involvement with a particular spirituality community. 3. Determining whether the client’s spirituality is transformative, adaptive, or maladaptive. 4. Determining whether the client has a “pathology” of spirituality, such as radical belief (terrorism), excessive self-blaming (excessive blame), and others. 5. Exploring whether the client’s spirituality contradicts the spirit of family, friends, and spouses (the significant others). 6. Exploring how the client’s spirituality affects his or her interpersonal and ecological relationships. 7. Determining how to integrate the client’s spirituality in the process of social worker intervention. From the above facts, especially from questions such as “How to integrate spirituality in the intervention process?”, an example of a practical question a social worker can ask the client is: “How do you think I as a social worker would respond to your spiritual needs?” This question is important because it determines how the client’s spirituality is integrated with the intervention method. It is the client who understands better the importance of spirituality in his or her life, regarding the meaning, coping, modeling, and support. The following examples of spirituality-based interventions are commonly employed by social workers in Islamic contexts: 1. Pray (prayer can either be done by social workers only, together with clients, or clients only) 2. Teach the concept of religion/spirituality 3. Quote/refer to religious texts 4. Self-disclosure of spirituality (social workers reveal the experience of spirituality in order to guide the client) 5. Confrontation of spirituality (criticizing and commenting on the values of spirituality that the client believes) 6. Assessment of spirituality 7. Relaxation and religious imagery (relaxation and imagination to visualize the imagined experience of spirituality, such as an encounter with spirituality leaders) 8. Blessing 9. Apology (encouraging clients to forgive themselves or others) 10. Using the religious community 11. Encourage repentance 12. Referral for blessings
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13. Writing a journal of spirituality (asking clients to write notes related to experience, struggles, and self-understanding of spirituality) 14. Meditation 15. Bibliotherapy (giving the client a book/reference about spirituality to learn) 16. Scripture memorization (remembering the text/religious doctrine)
Conclusion Mental health is an important issue that is closely linked with knowledge and insight. The mental health problem that occurs today is caused by several factors, such as one’s lifestyle, environmental values in society, people behavior, and work conditions. There are several coping strategies available in dealing with mental health issues, including spiritual and religious approach. Therefore, Muslim social workers could learn from the client about the relative significance of religion and the manner in which it could be integrated into a helping relationship. In both cases, social work practice enters a still richer sense of the depth and breadth of the Muslim human condition. Islamic approach for social works is to bring happiness to man, to develop his faculties and talents, and to create a balance between their desires and needs so that there is no extremism in Islam as a divine religion that places so much emphasis on humanity, and not on a person’s class, race, or family.
Cross-References ▶ Community and Mental Health ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Individual Approach to Mental Health from a Psychodynamic and Cognitive Behavioral Perspective ▶ Medical Perspective on Mental Health ▶ Psychological Perspective
References Al Zuhaili W (2008) Al-Mawsu’ah al-Qur’aniyah al-Muyassarah, translation by Imam Ghazali Masykur. Almahira, Jakarta Timur Al-Krenawi A, Graham JR (1996) Social work practice and traditional healing rituals among the Bedouin of the Negev, Israel. Int Soc Work 39(2):177–188 Al-Krenawi A, Graham JR, Al-Krenawi S (1997) Social work practice with polygamous families. Child & Adolescent Social Work Journal 14:445–458 Athar S (2009) Health concerns for believers: contemporary issues. http://citeseerx.ist.psu.edu/ viewdoc/download?doi=10.1.1.459.3511&rep=rep1&type=pdf
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Azmi SH (1991) Traditional Islamic social welfare: its meaning, history, and contemporary relevance. Islam Q 90(1):165–180 Baharudin (2007) Paradigma psikologi Islam: Studi tentang Elemen Psikologi dari Al-Qur’an. Pustaka Pelajar, Yogyakarta Bayan Memar A (2003) Naghshe din va maraseme ebadi va makanhaye dini dat behdashte ravan. A collection of papers on Islam and mental health. Tehran University, Iran Daneshpour M (1998) Muslim families therapy. Journal of Marital and Family Therapy 24 (3):355–368 Fahrudin A, Malek MD, Haji-Yusuf M (2003) Sources of stress, coping strategies and well-being among senior officers (top down university project rep. No. 2/2000). University Malaysia Sabah, Psychological Research and Social Health Unit, Kota Kinabalu Farideh H, Zohreh B, Sobhan G (2010) The role of Islamic education in mental health. Procedia Social and Behavioral Science (5):1991–1996 Folkman S, Lazarus RS (1980) An analysis of coping in a middle-aged community sample. J Health Soc Behav 21:219–239 Haynes A, Eweiis MMI, Mageed LMA, Chung DK (1997) Islamic social transformation: considerations for the social worker. Int Soc Work 40(3):265–275 Hodge DR, Nadir A (2008) Moving toward culturally competent practice with Muslims: modifying cognitive therapy with Islamic tenets. Soc Work 53(1):31–41 Ibn al-Qayyim al-Jawziyyah, Muhammad bin Abi Bakr Ayyub al-Zar‘i Abu ‘Abd Allah (1986) Zad al-Ma‘ad fi Hadyi Khayr al-‘Ibad, c.14. Muassasah al-Risalah, Beirut Institute for Public Health (IPH) (2011) National health and morbidity survey. Ministry of Health Malaysia, Kuala Lumpur Kant I (2006) Religion and rational theology. Cambridge of the works of Immanuel Kant. Cambridge University Press, Cambridge, United Kingdom Kartono K (2000) Hygiene mental. Mandar Maju, Bandung Kathir I (1994) Tafsir Ibnu Katsir. Abdullah bin Muhammad bin Abdurrahman bin Ishaq Alu Syaikh (ed.). Pustaka Imam Asy-Syafi‘i, Jakarta Khan Z (2006) Attitudes towards counseling and alternative support among Muslim in Toledo, Ohia. Journal of Muslim Mental Health 1(1):21–42 Maryam Gazorpoor F, Nasrin (2003) Barrasiye Behdashte Ravan Dar Ghor'ane Karim va Nahjolbalagheh. A collection of papers on Islam and mental health. Tehran University Maslow AH (1954) Motivation and personality. Harper & Brothers, New York Mujib A (2005) Ilmu Pendidikan Islam. Kencana Prenada Media, Jakarta Notosoedirdjo M (2001) Kesehatan mental: Konsep dan Penerapannya. UMM Press, Malang Ragab IA (2016) The Islamic perspectiveoon social work: a conceptual framework. Int Soc Work 59(3):325–342, May 2016 Rahman MM (2015) Mental health: Islamic Perspectives. Qudus International Journal of Islamic Studies 3(1):54–71 Rethink (2007) Who does it affect? www.rethink.org Sheikh A, Gatrad AR (2000) Death and bereavement: an exploration and a meditation. In: Sheikh A, Gatrad AR (eds) Caring for Muslim patients. Radcliffe, Oxford, pp 97–107 World Health Organization (2005) Promoting mental health, concept, emerging evidence and practice. Report of the World Health Organization, Department of Mental Health and Substance Abuse in collaboration with the Victorian Health Promotion Foundation and the University of Melbourne. (editors: Helen Herrman, Shekhar Saxena, Rob Moodie). WHO Library Cataloguing-in-Publication Data Yalom ID (1975) The theory and practice of group psychotherapy. Basic Books, New York Zeidan AH (2005) Contemporary theories and applications in casework. Almohandis, Cairo. (In Arabic)
Community Mental Health in South Korea Challenges and Lessons of Mental Health Reform
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You-Jin Chung and Ok-Kyung Yang
Contents Introduction: “Birth of Community Mental Health in South Korea” . . . . . . . . . . . . . . . . . . . . . . . . . . Shift of the Perception of Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Historical Context of Mental Healthcare Reform . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Health Policy and Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Community Mental Health Services and Its Delivery Systems . . . . . . . . . . . . . . . . . . . . . . . . . . . . Community Mental Health Professionals and Social Workers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Challenges of Community Mental Health Services and System in South Korea . . . . . . . . . . Mental Health Act and Human Rights . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Revolutionary Changes: Mental Health Welfare Act . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Hope for the Future . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Best Practice: Seocho Recovery Centre . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Human Rights Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Wellness Self-Management . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Peer Support Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Co-op MOA . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Café “JoEunHaRu” . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion: Paradigm Shift – Beyond Hospital in the Community . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Y.-J. Chung (*) Social Work Programme, S R Nathan School of Human Development, Singapore University of Social Sciences, Singapore, Singapore e-mail: [email protected] O.-K. Yang Department of Social Welfare, College of Social Sciences, Ewha Womans University, Seoul, South Korea e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_15
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Abstract
The predominantly Confucian and Buddhist culture of pre-modern South Korean society viewed mental illness from a folk conception, and this notion has remained in modern-day South Korea. This underlying belief that people with mental illness are morally tainted and dangerous proved to be most challenging when crafting the mental health policies and services in 1995 that were subsequently enacted as the first “Mental Health Act,” which transformed South Korea’s mental health system from one where people with mental illness were isolated in a facility to one which seeks to integrate into the community. Since then, the South Korean government put in place the 5-year National Mental Health Promotion Plans in 2011 and 2016, which mainly enhanced deinstitutionalization and mental health in primary care, developing mental health services, delivery system, and human resources (mental health professionals). In 2016, the Mental Health Act was changed to “Act on the Improvement of Mental Health and the Support for Welfare Services for Mental Patients” (commonly called Mental Health Welfare Act), which marked the rebirth of the law reflecting on promoting human dignity, human rights, and recoverybased practice environment. Even though the South Korean government has developed and implemented the new Act, policy, and plans for improving mental health every five years over the past three decades, new challenges and issues keep emerging – it is necessary to consider the balance between mental health promotion, early intervention, treatment, and rehabilitation. Additionally, efficiency and accessibility of mental health services and services integration should be much improved, and the current mental health services and delivery systems should be examined for further improvement. Keywords
Community mental health services and delivery system · Community mental health team · Mental Health Act · Human rights · Recovery-based practice
Introduction: “Birth of Community Mental Health in South Korea” This section presents the historical context of the development of community mental health in South Korea, illustrating mental healthcare reform that progressed from a reliance on institutional care to the current model of community care. It includes contextual and conceptual issues – for example, what we mean when we refer to “mental illness” – which could impact on implementing mental health policy and services for the target population that relies on public care in the South Korean society.
Shift of the Perception of Mental Illness Mental illnesses are featured as multidimensional aspects that include physical, psychological, as well as sociocultural components. In particular, social
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perception of mental illnesses has affected the approaches used in the treatment and rehabilitation of a person with mental illness. Societal values shape people’s attitudes toward mental illness, and these attitudes are, in turn, molded by the historical and cultural contexts of each community. The predominantly Confucian and Buddhist culture of pre-modern South Korean society viewed mental illness from a folk conception that such people were evil or demon possessed; and this notion has remained even in modern-day South Korea. Historically, South Koreans hold a negative and prejudiced attitude toward people with mental illness. They often regarded a person with mental illness to be dangerous and unable to manage his/her life independently (Lee et al. 2000). Until the 1980s, for example, a number of quasi-Christian asylums or illegal “pray houses” would confine persons who were suffering from severe mental illness without any proper medical treatment even though psychotropic drugs had been introduced and the national health insurance set in 1963 was covering psychiatric treatments in private and/or public medical settings. Particularly in rural areas, over 72% of psychotic patients were abandoned at home and sought help from traditional or shaman practitioners (Min and Yeo 2017). Even though families recognize that mental illness requires professional help and medical treatment, the person with mental illness was generally hospitalized for a longer period of time as the family assumed the patient would not be able to independently cope with his or her life. Family members were also too weak emotionally to handle the stress after the patient showed schizophrenic symptoms (Lee et al. 2000). The stigma against those affected by mental illness – especially those with severe conditions like chronic schizophrenia – was pervasive in the society. As a result, most of the mentally ill persons were confined in asylums and illegal institutions or abandoned. This underlying belief that people with mental illness are morally tainted and dangerous proved to be most challenging when crafting the mental health policies and services in 1995 that were subsequently enacted as the Mental Health Act. The Act transformed South Korea’s mental health system from one where people with mental illness were isolated in a facility (which resulted in them living apart from society) to one which seeks to integrate, include, and encourage these people to participate in community life. The Act was enacted as the South Korean society was beginning to recognize mental health as an important issue, with the socioeconomic cost of mental illness increasing due to the rising numbers of persons with mental illness. On top of that, South Koreans were starting to consider the quality of life of the people with mental illness who were confined in asylums or illegal mental institutions after these were reported in a televised program, thus highlighting the need to include the human rights perspective in the national discussion on mental health. The enactment of the Act has also helped to trigger a change in the perception of mental illness and raised awareness of the concept of community mental health. Firstly, the Act led to “deinstitutionalization,” where treatment was shifted from the asylum to the community. Secondly, the concept of mental illness evolved from pathology to “person-in-environment.” This shifted the focus to the interactions between an individual and his or her environment. Thirdly, the target of intervention was extended to the environment, including individuals, families, and society.
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Fourthly, the range of social work practice also extended beyond treatment to include rehabilitation and prevention. Fifthly, various services were then needed to cover diverse interventions. Finally, professionals from different sectors were brought together as a community mental health team comprising of a psychiatrist, social worker, clinical psychologist, and nurse, among others. These professionals were stipulated as community mental health specialists in the Mental Health Act. This “Mental Health Act” was amended in 2016, and the title was changed to “Act on the Improvement of Mental Health and the Support for Welfare Services for Mental Patients.” The shortened title of the law is “Mental Health Welfare Act.”
Historical Context of Mental Healthcare Reform The move to embrace the idea that “community mental health is an ideology” requires a change of perspective when developing an understanding of people with mental problems and encouraging the community to help these people integrate into society (Yang 1996). This shift in emphasis also extends to all activities related to mental health – namely, prevention, treatment, and rehabilitation. In particular, community mental health has spearheaded significant changes in several areas of mental health and social work practice in South Korea since 1995. The enactment of the Mental Health Act, first of all, required a change of perceived attitude of the South Korean society toward people with mental illness. This has proven to be challenging and to take time. Since then, the South Korean government has implemented a long-term mental health plan that provides greater protection of human rights and is moving the mental health system toward a community-based system. Since 1995, basic community mental health services have been set up in each catchment area around the country. The central government delegated the establishment of community mental health centers to the regional governments. Thereafter, the government provided funds for the development of an infrastructure of community mental health services. In 1998, the South Korean government put in place the National Mental Health Promotion Plan that mainly enhanced deinstitutionalization and mental health in primary care, developing mental health services, delivery system, and human resources. In the two 5-year national mental health plans that have been established and implemented in 2011 and 2016, greater consideration was placed on defining the scope and quality of services to be provided throughout the patient’s lifetime. Holistic support that included the mental health promotion drive for the whole nation and community integration of people with severe mental illness was further enhanced. Articulation of these long-term plans has led to a marked improvement in the mental health services, its delivery system, and the professional resources. However, raising awareness and encouraging acceptance of mental illness remain a challenge. For example, the epidemiological survey by the Ministry of Health and Welfare reported that 27% of South Koreans experience mental illness at least once in their life, but only 15% of these people seek professional help or mental health treatment (National Health Insurance Service 2014). The utilization
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rate of mental health services is still much lower compared to other developed countries like the United States (39.2%) and Australia (35%) (Chae and Lee 2013). Despite considerable improvement in mental health services and policy over the past decades, a few issues must be considered in order to develop the mental health system more effectively and promptly. It is important to both advocate for people with mental illness and educate the community about mental health. The people’s increasing awareness and changing attitudes toward mental illness in the society could play a significant role in the establishment and implementation of mental health policies that advocate for early treatment and further rehabilitation. This will help create opportunities for people with mental illness to interact with others in the community. The South Korean society should focus more on promoting mental health literacy to fight the stigma through public education, research, and training professionals who are able to give a voice to those who are suffering from mental illness. Additionally, the government needs to consider establishing a systemic monitoring system that could improve the integrated current services in the community and address the gaps arising from fragmented services provided by different stakeholders and government sectors (Chae and Lee 2013). On a positive note, service users (i.e., people with mental illness) and their families (family association) have implemented self-support services and expanded the services particularly for people with mental disorder. Such activities could enhance and ensure the rights of these people and their protection against discrimination. Seocho Recovery Centre, for example, provides a good case study of how non governmental organizations (NGOs) and the government have incorporated and developed a communitybased recovery program for people with severe mental illness. This will be discussed in greater detail in section “Best Practice: Seocho Recovery Centre” of this chapter.
Mental Health Policy and Services This section discusses the three parts of South Korea’s mental health services. The first part of this section describes the service delivery system of community mental health. The second part introduces professionals who are involved in working for persons with mental illness, that is, certified “mental health professionals” – psychiatrists, mental health social workers, mental health nurses, and mental health clinical psychologists. It also illustrates how service consumers (persons with mental disorders and their families) work with those professionals and are involved in developing community mental health in South Korea. The last part comments on the current mental health policy and service delivery system by discussing some challenges in terms of the quantity as well as the quality of mental health servcies and programs delivered in South Korea.
Community Mental Health Services and Its Delivery Systems South Korea’s mental health service delivery system in the community comprises of three sectors – namely, the community mental health welfare centers, mental
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health rehabilitation centers, and the mental medical institutions. These three sectors collaborate to collectively provide mental health services for the prevention, treatment, and rehabilitation of people with mental health issues. Since the enactment of the Mental Health Act in 1995, the focus of mental health services has shifted to community-based programs including rehabilitation and integration. The first 5-year plan for national mental health promotion, which ensures consistency in mental healthcare provision at the national level, was established in 1998 (The National Mental Health Commission 2010). Since then, the government has developed and implemented 5-year plans with a long-term view of improving the national mental health system. As a result, financial resources for mental health services have increased, and greater emphasis has been placed on mental health promotion and prevention, which is seen as a cost-effective strategy. In 2011, the Ministry of Health and Welfare adopted a 5-year national mental health plan to introduce new services and programs with expanded coverage and services. Additionally, the government strengthened the mental health system nationwide, promoting mental health treatment in proper institutions, developing community-based services based on psychosocial rehabilitation, and putting in place social support for people with mental disorder to integrate into the community through the provision of housing, employment, and financial aid (Ministry of Health and Welfare 2014). The current 5-year plan, which runs from 2016 to 2020, focuses on early detection of mental illness and reduction of the stigma against people with mental disorders (Library of Congress 2016). Overall, services or schemes for people with mental disorder in South Korea cover the following areas: namely, rehabilitation, residence (or sanatorium), employment, income security, and other social services (Roh et al. 2016). These services are regulated in various Acts and Regulations. For example, income security is supported by the National Pension Act, Dependent and Disability Act, and National Basic Livelihood Security Act. To support the employment of people with mental disorder, Mental Health Welfare Act (revised in 2016 and activated in 2017), Welfare Act for the Disabled, and Employment Promotion for the Disabled and Vocational Rehabilitation Act were enacted. At the community level, those services are delivered by the following three major mental health facilities: 1. Mental medical institutions: these include mental health hospitals and psychiatric clinics (public and private). This is the first line of service, particularly for acute patients who need a diagnosis, medical treatment, or hospitalization. 2. Mental health rehabilitation facilities: these provide community-based services (social adjustment training, social skill training, vocational rehabilitation training, etc.) at different centers (e.g., day-care center, group home, short-term/long-term residential rehabilitation center, vocational rehabilitation center, etc.) which help persons with chronic mental illness integrate into society. 3. Community mental health welfare centers: these provide integrated mental healthcare services for residents in the community and cover the different levels of intervention to promote people’s mental health over their lifetime. These
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include preventive intervention for suicide, case management for persons with severe mental illness, services for children and youths’ mental health promotion, integrated services for addicts and online/call crisis intervention program.
The First 5-Year Plan and Its Revisions: 1998–2010 Since the first national mental health promotion plan was set in motion in 1998, the South Korean government has revised its mental health policy and plan twice – in 2005 and 2006 (Ministry of Health and Welfare 2006). These revisions included (1) downsizing large mental hospitals; (2) developing new community mental health services; (3) enhancing mental health in primary care; (4) developing human resources; (5) encouraging service users and their families to be involved in developing and providing services and programs; (6) promoting human rights of service users; (7) improving the accessibility of mental health services; (8) developing monitoring systems; and (9) financing. Among these plans, downsizing of large mental hospitals was the most challenging and controversial issue. It was reported that a considerable number of mentally ill patients were hospitalized for longer periods (Hong et al. 2016), particularly in psychiatric nursing homes or huge mental hospitals that were often located away from the city and were geographically isolated. Additionally, other issues such as the state of the public medical system as well as the patient’s social and family relations also resulted in long-term hospitalization. For example, one of the main reasons the patient’s family resists deinstitutionalization is due to the lack of support systems and programs provided in the community. It is especially necessary to rehabilitate patients who have been hospitalized for a long period so that they are able to adapt to their new life in the community (Kim et al. 1994). Table 1 documents the main reasons for unnecessary long-term hospitalization surveyed by the project team, which included mental health professionals and NGO practitioners who have worked together to suggest the community mental health service delivery system (Sin et al. 1994). Based on the report of the research, the team proposed reforming the public healthcare system by setting up necessary mental health services and programs at the community level, which would cater particularly to persons with chronic mental illnesses who were discharged from mental hospitals or psychiatric nursing homes. During the period between 1998 and 2010, a number of services focusing on rehabilitation and integration were developed in the community and provided in different mental health facilities (Jeon et al. 2017). The Second 5-Year National Mental Health Plan: 2011–2015 In 2011, another 5-year national mental health plan was implemented which identified six areas of mental health promotion (Ministry of Health and Welfare; Seoul National University 2016) – namely, (1) cutting down unnecessary hospitalization and promoting community-based services; (2) managing the quality of services and programs; (3) preventing and improving mental disorders in different age groups; (4) setting up and managing systems for people with alcohol use disorder; (5) reducing the stigma against mental disorders and protecting the
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Table 1 Unnecessary long-term hospitalization of chronic mentally ill patients Category Family related
Social/ community related
Medical staffs related
Main reasons of extended hospitalization No family to live with when they are deinstitutionalized No place to live in when they are deinstitutionalized Caring burden: personnel, cost, timeconsuming, etc. Concerning conflicts among family members due to the stress of caring Worrying about symptom management/ crisis situation Concern about relapse due to irregular medication Misconception: long-term hospitalization is the only way to recover No medical insurance (Medicare) for outpatient care Protest by community residents Rejection from general hospital due to mental health issue even though the person needs physical treatment for other illness There is no case that medical staffs have tried to discharge patients in mental hospital within 3 months Misconception/misunderstanding that person with mental health issues should be segregated from society No particular reason to extend hospitalization
Suggestions Residential care in community
Community services: day-care center, case management, and follow-up service Social/institutional supports for family Crisis intervention Follow-up service Family education Extend the coverage of Medicare Education and advocacy Development of integrated care system for person with mental and physical issues Educate and train mental health professionals and personnel
(Source: Sin et al. 1994, p. 40)
human rights of people with mental illness; and (6) increasing and strengthening the infrastructure and accessibility of services and resources. During this period of time, the mental health services were expanded in line with the objective to reach out to more persons with mental problems. For example, the number of mental health medical clinics/hospitals including public and private medical institutions grew 1.65-fold, and community-based rehabilitation centers (community mental health welfare centers and mental health rehabilitation centers) increased 4.57-fold during this time (Roh et al. 2016). In particular, the functions and roles of mental health rehabilitation centers were enhanced and expanded to cover various areas of rehabilitation – for example, day-care service, residential care services, vocational rehabilitation services and group home (see Table 2). In comparison to the service delivery system of the last decade, various committees at regional and national levels were formed, and each facility was to provide unique services based on their functions regulated in the Mental Health Act.
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Table 2 Mental health rehabilitation center: services and programs Residential care center Community rehabilitation center
Vocational rehabilitation center Rehabilitation center for the addicts Social enterprise Other services: integrated care for people with severe mental illness
Services and programs Long-term residential care, daily living coaching, education, vocational rehabilitation training Day-care rehabilitation center (social skills training, vocational skills training, employment supporting), group home, short-term residential care Vocational rehabilitation training and employment support Treatment and rehabilitation training for people with drug, alcohol, gambling, and Internet game addiction Consultation, providing information, marketing, and distribution Integrated service including residential service, daily living supporting, different types of rehabilitation services
(Source: Jeon et al. 2017, p. 56)
On top of that, persons with mental illness and their families (service users) were included as part of the service providers in the system, which was a remarkable improvement in terms of integrating this group of users into the community. Figure 1 illustrates how various different sectors collaborated and worked together in the provision of mental health services for people with mental illness and residents in the community.
The Third 5-Year National Mental Health Plan: 2016–2020 The South Korean government has attained the desired achievement in terms of the quantity of services and programs; for example, the number of mental health facilities has steadily increased over the past decade. In 2017, it was reported that the total number of mental health rehabilitation centers extended to over 300 and the number of mental health welfare centers reached more than 200 nationwide (Ministry of Health and Welfare 2017). In terms of the quality of services, however, the government is facing new challenges due to emerging mental health issues such as increasing suicide rate, children and adolescence mental health problems, as well as elderly mental health problems. As a result, the government is required to respond by providing services that cover issues that relate not only to chronic mental illness but also to other mental health issues. Throughout the review and analysis on the previous 5-year plan, a perspective on providing mental health services has been evolved. First, mental health professionals and policymakers have started to think of the scope of the services to be provided and to consider the services that would cover different issues encountered throughout one’s lifetime. The services are provided based on the four stages of the life cycle: infant and toddler (0–6 years), children and adolescent (7–18 years), young and middle-aged adult (19–64 years), and old age (65 years and above). The other notable change relates to the concept of mental health intervention. This is now divided into three levels of prevention including primary, secondary
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Ministry of Health and Welfare Central Mental health Review Committee National Psychiatric Medical Institution (Treatment Technical Support)
Central Mental health Supporting Commission
Metropolitan City ∙ Province Regional Mental health Review Committee
Private Psychiatric Medical Institution (Treatment Technical Support)
Regional Mental health Supporting Commission Regional Mental Health Center
City ∙ County ∙ District Social Rehabilitation Facilities (Rehabilitation, Housing) Community Addiction Management Center (Prevention Counselling Rehabilitation)
Psychiatric Medical Center (Treatment Rehabilitation)
Public Health Center
Mental Health Care Facility (Care Protection Rehabilitation)
Community Mental Health Center (Prevention Counselling Rehabilitation)
People with mental illness, Family, Local resident
Fig. 1 Mental health delivery system in Korea (Roh et al. 2016, p. 3)
(treatment), and tertiary prevention (rehabilitation) (Roh et al. 2016). The key policy targets four areas including management of addicts and suicide prevention, and the first and the second policies particularly improve mental health promotion (for the whole nation) and community integration (for people with severe mental illness) (see Table 3). These goals can only be achieved through multiple strategies and tasks that require the involvement and collaboration of a number of government ministries. For example, National Human Rights Commission (NHRC), Ministry of Government Legislation, Ministry of Education, and Ministry of Employment and Labour need to work closely together to improve awareness of discrimination against people with mental disorder (National Policy Steering Committee 2016). Throughout the implementation of the national mental health plans over the past 20 years, the approaches to delivering services have evolved from traditional service provider-centered to service user-centered. One of the most considerable
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Table 3 Integrated policy for mental health promotion Policy Mental health promotion
Strategies Promote the accessibility of mental health service
Strengthen the strategies for early interventions
Set the mental health support system over the life span
Community integration for people with severe mental illness
Intensive care in the early stage to prevent chronic illness
Improve quality of life of persons with chronic/ severe mental illness
Strengthen the human rights of the mentally ill
Tasks Improvement of accessibility of mental health services Improvement of the national attention on mental health Improvement of the discrimination toward mental illness and the mentally disabled Strengthen community services for depression and anxiety Support the management of high-risk group with stress Strengthen the crisis intervention support for victims of disaster Support for infant/early childhood mental health Support for children and adolescents’ mental health Support for young adults and adults’ mental health Support for the elderly’s mental health Improvement of the national health insurance: medical cost for psychiatric treatment Development of care management model for the index case Development of community support system Increase of the number of mental health welfare center and improvement of quality of services Re-establishment of the functions of mental medical institutions and psychiatric nursing homes Improvement of the regulation of admission and discharge process Empowerment of the selfdetermination of the mentally disordered Improvement of the human rights of patients in mental medical institution and psychiatric nursing home
(Source: Hong et al. 2016. p. 10)
attempts made was the adoption of the voucher system. The government provided financial assistance to service users (i.e., people with mental illness and their families) through the provision of vouchers that enabled them to choose services or programs that meet their needs. This new initiative had a spillover effect on
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other aspects of the service delivery system. For example, the services were replicated on a massive scale as each regional government was required to develop and implement new services that would be more relevant and necessary for the residents. Additionally, the services and delivery system were regularly evaluated and modified based on feedback and comments from the service users, which contributed to an improvement in the quality of services (Yang et al. 2010).
Community Mental Health Professionals and Social Workers One of the noticeable achievements was the putting in place of the legislation that establishes the accreditation system for nurturing mental health professionals. Mental health professionals receive specialized mental health training at least 1 year after they are qualified in their own professions as social workers, nurses, or psychologists. As of 2013, over 300 centers have trained mental health social workers, mental health nurses, and mental health clinical psychologists. According to Chae and Lee (2013), a total of 11,233 mental health professionals received their certificate over the 15 years since the accreditation system was adopted in 1997. According to the Ministry of Health and Welfare, there were 27.07 mental health professionals and nonprofessionals employed at private and public facilities per 100,000 population in 2005. They include psychiatrists, other medical doctors, nurses, psychologists, social workers, and other mental health workers (Ministry of Health and Welfare 2006). In 2013, the total number employed in mental health facilities nationwide was over 20,000, a considerable increase in less than a decade (The National Mental Health Commission 2014). Throughout the whole recovery process, the social worker has a strong involvement in providing various services and programs both at the hospital and community. During a maximum of 6-month stay at a hospital, the patient receives mental health social worker’s group activity therapy including individual counseling and family counseling. The social worker’s role takes place after the discharge to community. Community mental health centers and social rehabilitation centers are the core places to provide well-designed community care services including vocational rehabilitation. A typical process of a social worker’s involvement in the recovery process is illustrated in Fig. 2. Another group actively engaged in community mental health is service consumers (i.e., persons with mental illness) and their family members. They are not professionals but have been much involved in developing and improving the self-support services in the community – and especially those related to advocacy of the people with mental disorder. They also work with other mental health professionals to develop legislative activities to strengthen human rights and enhance the protection of the mentally ill from social stigma and discrimination. The Incorporated Korea Family Association For The Mentally Disordered was founded in 1995 when the Mental Health Act was enacted, and this association has worked particularly for rehabilitation of persons with mental illness in terms
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Hosptial: Admission through psychiatrist ’s screening psychiatrist Symptom Diagnosis
Mental health social worker Rehabilitation Social study; family study
Diagnosis; Medication and counseling therapy
Social study; Group activity therapy Family counseling
Mental health nurse care Health and mental health status check Daily care at the ward Daily activity
Community: Discharge planning by the interdisciplinary team Day hospital
Mental Health Welfare Center (prev. Community mental health center )
Social rehabilitation center
Supportive living arrangement
Family home
Fig. 2 Mental health social workers’ involvements in the process of the recovery
of vocational rehabilitation and employment, as well as in educating the community for awareness of mental health and the social stigma against the mental illness.
Challenges of Community Mental Health Services and System in South Korea Even though the South Korean government has developed and implemented new policies and plans for improving and promoting mental health every 5 years over the past three decades, new challenges and issues keep emerging that require the government’s attention. To ensure that the public health system meets people’s mental health needs – in particular, those with mental disorder – it is necessary to consider the balance between mental health promotion, prevention, early intervention, treatment, and rehabilitation. Additionally, efficiency and accessibility of mental health services should be much improved to reduce the length of hospitalization or institutionalization both at the service consumer (i.e., people with mental illness and their families) level and the service provider level. Development of comprehensive and accessible services is the cornerstone of mental health policy, and the service delivery systems built on adequate infrastructure are the prerequisites for the consistent care of people with mental illness. Based on these assumptions of desirable mental health services and systems, the current mental health services and delivery systems should be examined for further improvement.
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In South Korea, services for people with mental illness are administered by various government branches including the Ministry of Health and Welfare, Ministry of Labour, Ministry of Unification, Ministry of Justice, Ministry of Education and Human Resources Development, and others. There is thus a certain degree of redundancy in the services provided by different stakeholders in both the public and private sectors. This is another challenge in the provision of community-based services. The collaboration among stakeholders – government, NGOs, and private organizations. – is desirable and should be further strengthened to ensure better integration of all community services. In sum, the mental health service system in South Korea should enhance the coordination not only between medical services and other community services but also between private and public service providers. The other challenge in improving the mental health system is the lack of integration between mental health services and the general healthcare system of the country, and this may have inadvertently reinforced the social stigma associated with mental illness and the persons with mental illness. To address this, the South Korean government needs to establish and implement a systematic monitoring system using an evidence-based approach to help mental health professionals deliver the required services more efficiently. Another discrepancy that policymakers should pay attention to is the tendency for most mental health professionals and facilities to be located near the city, which has created an uneven and inadequate services delivery system where persons with mental illness who live in suburban areas are not able to receive the much needed services. Despite some challenges and limitations of the current mental health services system, there are a number of strengths. Firstly, South Korea has developed and implemented legislations and a mental health policy since 1995. It has collected and updated data related to mental health every year, making it possible to evaluate national-level statistics in the mental health area. Secondly, South Korea has built up a pool of mental health professionals, and a number of them are specially trained in community mental health practices. The most significant improvement is a shift of perspective from an institutionally based system to a community-based and public mental health system.
Mental Health Act and Human Rights South Korea’s National Assembly passed the Mental Health Act on December 30, 1995. The Act took effect on December 31, 1996. Although it was enacted, the Act still had many pitfalls (Yang 2006). While some people approved it, many had opposed the Act. Among those who opposed the Act, some had taken issue with certain articles of the Act, while others rejected the Act itself. This unhappiness led to the first amendment of the Act in 1997, the first year that the legislature was enforced. The main objection to the Act arose from the possibility of human rights violation and the degradation of psychiatric treatment. Many scholars held conferences and expressed worries over the possibility of involuntary hospitalization, which could happen to almost anybody. Lawyers, psychologists, and psychiatrists sent
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their written concerns to the press (Dong-A Ilbo 1995; Hankyoreh 1995, 1996). These writers raised two points: the first was with regard to the subjects of the Act, while the second focused on the admission process to a mental hospital. In fact, the enactment of the Mental Health Act caused an upheaval in the field of psychiatry. Although there was opposition and concerns were raised regarding the Act, it was clear that the Act had provided greater clarity to the concept of community mental health. Before the Act, community mental institutions were mostly made up of mental hospitals, mental asylums, and homeless shelters. These facilities enabled the mass detention and segregation of mental patients from society so that the rest of society would be protected. With the advent of the Mental Health Act, the basic direction of community mental health policies was given more concrete form and set in motion. The main theme of community-based mental health policy was to support appropriate treatment, adequate care, and active social rehabilitation. The era of community mental health had begun. The Act was revised several times with minor changes. Enormous changes were made during the 2016 amendment, which saw a change to the title of the Act. This marked the rebirth of the law. The current title is Act on the Improvement of Mental Health and the Support for Welfare Services for Mental Patients. The shortened title of the law is Mental Health Welfare Act.
Revolutionary Changes: Mental Health Welfare Act The most profound reason for the 2016 revision is the constitutional discordance adjudication of the Constitutional Court. In September 2016, the Court of nine judges decided unanimously to adjudicate the constitutional discordance on involuntary hospitalization by legal guardians. The Court concluded that this type of involuntary hospitalization limits the mentally ill person’s freedom and lacked the necessary provisions to prevent misuse or exploitation of involuntary hospitalization. This constitutional discordance adjudication provided the impetus for the National Assembly to pass the amendment. The new Act was activated in May 2017 and has been hailed as revolutionary, because it brought reform in the following five areas: “human rights,” “community mental health,” “government initiatives,” “social welfare services,” and “(mental health) professionals.”
Human Rights Human rights is the key ideology in this 2016 revision. In Article 2, “human dignity and value of the mentally ill person” is guaranteed. In doing so, the Act directs the heads of each mental health improvement facility to endeavor to ensure human dignity (Article 6) and to be educated in human rights (Article 70). The law defines the mental health improvement facility as a mental medical institution (i.e., mental hospital), a mental health sanatorium, or a mental health rehabilitation facility (Article 3). Consequently, doctors, nurses, social workers, and all general personnel attached to such institutions are required to attend educational programs on human rights. Otherwise, they will be suspended or their employment revoked.
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Along with this, Article 69 emphasizes the protection of rights and interests. “No person shall restrict any person’s opportunities for education, employment, or the use of a facility, deprive any person of such opportunities, or otherwise treat any person unfairly on the ground that the person is or was mentally ill.” Moreover, the head of a mental health improvement facility shall not force labor on any person with mental illness. Such responsibility is required not only at an individual level but applied at the national and governmental levels as well. Additionally, both national and regional governments should include human rights protection plans in their national and regional mental health plans (Article 7).
Community Mental Health Community mental health is emphasized in these six articles. It appears first in Article 2 (fundamental concepts), where it was stated that hospitalization or institutionalization should be minimized and reiterated the preference for community-based treatment to be recommended and encouraged. It is clear from here that South Korea was declaring community mental health practice to be the core service for people with mental illness. When a nation formulates a national mental health plan, rehabilitation in the community should be emphasized (Article 7). Article 3 defines a mental health welfare center as an institution for promoting and providing community mental health services in the community. More importantly, it states that persons with mental disorders should reside in the community (Article 37). It is also the government’s responsibility to provide assistance. So, when mental hospitals and institutions provide services, they need to recognize that their services are community-based (Article 21, Article 27). Government Initiatives Every 5 years, the government takes the lead in formulating a master national mental health plan for improving mental health and providing welfare services to persons with mental illness (Article 7). Based on the national plan, each regional and local government outlines an implementation plan every year (Article 8). The national plan or regional plan should include the following: (1) activities for preventing mental diseases, counseling, medical treatment, and rehabilitation and interconnection of such activities; (2) services for improving mental health according to the stage in the life cycle – such as infancy, childhood, youth, middle age, and old age – and by gender; (3) early discharge of persons with mental illness and rehabilitation into society; (4) securing and operating appropriate mental health improvement facilities; (5) plans for education, public relations activities for improving awareness of mental diseases, guaranteeing legal rights of persons with mental illness, and protecting human rights; (6) training and managing specialized human resources; (7) plans for improving education, dwelling conditions, and working conditions, for improving mental health and for cooperating with relevant government agencies or institutions; (8) establishing and utilizing an information system for mental health; (9) support for
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persons with mental illness and their families; (10) rehabilitation in local communities and social participation, including health, employment, education, and dwelling conditions of mentally ill persons; (11) matters regarding the research, development, and evaluation of welfare services for persons with mental illness; (12) matters regarding the procurement and management of funds necessary for rendering welfare services to persons with mental illness; and (13) other matters that the Minister or the mayors may decide.
Social Welfare Services Chapter IV, a newly added chapter in this revised version of the Act, prescribes the range of welfare services. This is why the new Act is commonly called the Mental Health Welfare Act. This chapter has six articles – namely, Articles 33 to 38. Article 33 delineates the development of welfare services; Article 34 outlines the assistance in employment and vocational rehabilitation; Article 35 looks at assistance in lifelong education; Article 36 discusses assistance in cultural, artistic, recreational, and sports activities; Article 37 proposes integrated assistance for dwelling, medical treatment, and rehabilitation at local community; and Article 38 looks at the provision of information and education to families. The revised Act is revolutionary in the sense that it outlined a mental health regime. Besides, lifelong education and employment for the persons with mental illness are also supported. More importantly, cultural, artistic, recreational, and sports activities are maximally ensured. And employment is considered as vocational life that makes the best use of capabilities of persons with mental illness. The government also provides the necessary information and education for family members to jointly support this endeavor. The community is recognized as a center for integration of persons with mental illness to society and the hub for all these activities. Additionally, the legal provision emphasizes that the mentally ill person needs to dwell and receive medical treatment in the local community, rather than isolated mental institutions. Currently, in South Korea, there are 225 mental health welfare centers including the mental health improvement facility (previously known as the community mental health center) (Ministry of Health and Welfare 2017). There are also 336 mental rehabilitative institutions providing a range of rehabilitative services for 4,646 users and 2,039 residents in living facilities. (Mental Health) Professionals Under the law, the Minister of Health and Welfare issues a license to qualified professionals. Article 17 refers to them as mental health specialists, and they are classified into mental health social worker, mental health clinical psychologist, and mental health nurse. As of December 2016, there was a total of 18,264 certified or licensed mental health professionals. Among these are 3,078 mental health clinical psychologists, 5,244 mental health social workers, and 9,942 mental health nurses (Ministry of Health and Welfare 2017).
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Hope for the Future Several changes in the new Act were aimed at improving the quality of treatment. The Act emphasized community mental health and highlighted government initiatives in the provision of social welfare services. All this was aimed at the protection of human rights. The essence of the change was to promote human dignity: namely, less restriction and more freedom. The Act emphasized no forced labor under any circumstance and more opportunities for education employment and community living. The new Act also made involuntary commission to mental hospitals more difficult, requiring a consensus among two or more psychiatrists working in two different mental health institutions (Article 43). The length of hospitalization was limited to only 3 months or less, whereas the previous Act had no limit on the stay. Involuntary admission rate in Korea is relatively high. Among all admissions, 67% is involuntary, while the rate in Germany is 17%, 13.5% in Great Britain, and 12% in Italy (Ministry of Health and Welfare 2017). The new law is aimed at reducing unnecessary involuntary admission, while the community-based social welfare services delineated in the Act were aimed at reducing admissions and promoting a humane life. Since the first enactment of the Act, institutions detaining patients such as the mental health sanatorium were reduced. In 1994, there were 76 sanatoriums with 18,168 beds (Minstry of Health and Welfare 1995). This dropped to 59 sanatoriums with 13,519 beds in 2017 (Ministry of Health and Welfare 2017). Various community-based mental health centers were also created and increased throughout the years. There are now 606 community-based mental health centers with 96,000 persons with mental illness who have used the services since 2016. With the revised Act on the Improvement of Mental Health and the Support for Welfare Services for Mental Patients, it is now mandatory to build an environment to promote human dignity and the human rights of the population with mental health issues. Mandatory education on human rights to all staff members, including the heads of institutions, is expected to promote a human rights-based practice environment. The governmental initiative of setting up the social welfare programs will help speed up the development of a human rights-based environment. Now that the system is set, the onus is on those who operate the system. They will need to change their perspectives, reflect on and check their prejudices against the mentally ill, and provide them with ample space to join the society.
Best Practice: Seocho Recovery Centre As of 2016, there are 336 mental rehabilitative institutions nationwide (Ministry of Health and Welfare 2017). Seocho Recovery Centre (or SRC), “Open World,” one of the social rehabilitation centers, was established. It is a day rehabilitation institution for persons with mental disorders located in Seocho District in Seoul, South Korea. It was established in 2001 by the Sarang Welfare Service Foundation
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and has funding support from the city and the local government. Since its opening, SRC set the center’s core values as “recovery” and “human rights” and focused on clients’ self-determination for their recovery plan. All the staff members have a strong belief in recovery paradigm within the human rights practice. The client is understood as a service user and is referred to as a “member.” SRC’s active members are 35. They are 30 service users and 5 full-time staff members including a director and 2 trainees to become mental health social workers and 2 mental health social workers. SRC is supported by the steering committee consisting of a social work professor, an attorney, one SRC member, and one family member. A psychiatrist is also on duty for consultation. Of the 30 service users enrolled in the SRC, 11 are employed, 3 are working as peer support workers, and the rest are involved in various kinds of individually tailored programs for recovery. From the beginning, SRC provided education to clients, utilizing education materials from the United States (Personal Assistance in Community Existence and A New Vision of Recovery), England (100 Ways to Support Recovery of Rethink Mental Illness series), and World Health Organization (QualityRights). Through those materials, the service users began to understand what the recovery from mental disorders was and how and what should be done to accept the recovery concept in the mental health area. SRC service users and staff members studied those materials together and transformed the contents for their own use. SRC runs several programs directly or are assisted by the service users. Currently, five programs are in active operation.
Human Rights Program Human Rights Program (HRP) is the core of all programs in SRC. From the beginning, members develop a two-way communication and cooperative relationship. The core value is that a service user increases his or her capacity for self-determination and advocacy under the assistance of staff members, who ensure that the development is in the right direction. In 2009, SRC conducted a project named “Chance, Change, and Challenge!!!” The project consisted of human rights education, human rights conference, human rights monitoring in ordinary everyday life, and human rights advocacy products. The empowerment approach was practiced to raise self-empowerment and ensure self-determination among the service users. It encouraged this practice not only in SRC but also in the patient’s home and other living environments. For the staff members, competency enhancement program was developed to learn a human rights-based practice. HRP is now successfully embedded in all programs at the SRC. All SRC members are now more sensitive toward the human rights of persons with mental disorders. The members also produced a guidebook and a story-telling book. Rights and Resources Guidebook is a resource book about the inherent rights and the rights to access the resources. Younghee’s Story is a semidocumentary, story-telling human rights book that tells the story of a young woman’s life
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journey from the onset of mental illness to recovery. SRC continues to promote the human rights of persons with mental disorders in society and to the public.
Wellness Self-Management Wellness Self-Management (WSM) is a key program designed for regaining insight and recovering self-management capability among the service users. SRC members adopted seven dimensions for recovery: the belief for recovery, symptom management, physical health, emotional health, cognition, vocational issues, and finance. Based on the WSM manual, SRC members shared the information, specific methods, and skills for coping with the symptoms or hardships of everyday life. These processes were reviewed with the members – staff and service users. WSM is now spread to more than 20 institutions, including day social rehabilitation centers and mental health clinics. SRC staff members and service users educate and supervise those institutions for the use of WSM. It is another positive result of utilizing WSM from the perspective of the service users.
Peer Support Program The Peer Support Program was recently developed but is very actively operated. It is a program to train a service user to become a leader in their issues and challenges so that they can stand up for themselves. It also educates them to teach their colleagues. Some of the subprograms are “Peer-Run Program,” “Self-Help Group Program,” and “Peer Counseling Program.” The program is funded by the Seoul Metropolitan Government. When the service users successfully finish the program, they can be appointed as a peer support worker and paid for 1 year. And it is also funded by the Seoul Metropolitan Government. Three of the SRC members are working actively as peer support workers.
Social Co-op MOA SRC established a social co-op MOA in 2015 with three other social rehabilitation centers. It is named MOA, which is a newly created word meaning essentially a gathering to welcome people to their co-op. It is run directly by the persons with mental disorders and their family members, along with mental health social workers. There are currently 48 people involved. MOA is set up to approach the employment and living arrangement problems in the community. The main goal of this co-op is independent living in the community. SRC took the initiative to set up MOA. The first achievement was the setting up of a job site. It opened a MOA café #1 at the lobby of the National Centre for Mental Health with funding support from the Community Chest of Korea. The café
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#1 now has eight persons with mental disorders as its employees. MOA is preparing to launch café #2 at a private company. MOA’s next task is housing. They plan to set up social housing with a concept of a shared house and supported housing.
Café “JoEunHaRu” Café JoEunHaRu is located in the lobby of the community social welfare center where SRC is located in. JoEunHaRu means “good day.” It was established in 2005 to provide training in service delivery and for barista education. Education and training are provided by professionals and managers. Several hundreds have participated in this program. However, only a few participants took the barista license. Some have gone on to open cafés, while others were hired by commercial cafés in the community, such as Starbucks.
Conclusion: Paradigm Shift – Beyond Hospital in the Community Until recently, mental patients with psychotic symptoms were kept behind the scenes. They were treated either as idiots or fearful persons. Once such a patient was committed to a psychiatric hospital or a mental asylum, they stayed forever or were moved around from one institution to another and were allowed limited contact with family members. Inside the institution, these patients were put together with many other patients and locked up like inmates. They were also forced to do hard labor instead of being treated and cared for. The basic necessities of life – food, clothing, and shelter – were below average. In 1984, the Korean TV report “Chujeok 60 Mins” exposed these cruel conditions. The awareness of the inhumane conditions sped up the enactment of the Mental Health Act of 1995. It became regarded as a watershed, as it represented a turning point where psychiatry was overtaken by an emphasis on mental health and the locus of care for the people with mental illness moved from institutional care to community care. The enactment of the Mental Health Act gave rise to the concept of community mental health. The mental health policies were formulated based on the Act, and the community responded rather quickly with a positive reaction. The community mental health orientation was introduced, and the programs and services were developed. Society slowly geared toward the direction of community mental health, although it was assumed, at the beginning, as a simple change in the residential arrangement – namely, from asylum to community. Since then, social rehabilitative programs have sprung out everywhere in the community of South Korea. The newly set up mental health policies allowed the government to provide financial support for the establishment of social rehabilitation facilities and to subsidize the programs and personnel expenditures. The Act also created professional positions such as mental health social worker, mental health nurse, and mental health clinical psychologist. These mental health
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professionals, particularly social workers who already had a community base with clients, were actively involved in creating and providing programs for the mentally ill patients who were discharged. For example, the “Hanultari (One Boundary)” and Seodaemun-gu Community Mental Health Centre Model Program were social workbased rehabilitation programs that were provided in the community social welfare center (Yang 1996). These programs were launched even before the enactment of the Act and took off in earnest after the Act came into effect. When community mental health first took root, South Korea, like other forerunning countries, focused on rehabilitation in the community. Regaining social functions was the main focus. The programs and services at the facilities were grounded on the concept of symptom reduction and management along with the elimination of disabilities and handicaps. Until then, the professional society still hung on to their negative perspectives of the mentally ill and community mental health. It was only at the beginning of 2000, when the recovery model was introduced and practiced, that society slowly came around to a more positive notion of community mental health (Rosenberg and Rosenberg 2006). At the time, mental health professionals did not realize that community mental health is a revolutionary change from the ideology of psychiatric treatment (Yang 1996; Suh 1999). As they met with patients in the community, they began to realize that the social rehabilitation programs were just the same programs with a mere change in the location for the provision of services. Such an awareness led to the recovery paradigm. Recovery is understood as an ongoing process, not an end goal. Conceptually, recovery refers to “controlling symptoms, regaining a positive sense of self, managing stigma and discrimination, and trying to lead a productive and satisfying life” (Markowitz 2005, p. 86). Since it is a very complicated concept, recovery is delineated in multilevel contexts. The levels are considered in symptoms, selfconcept, and social and economic well-being. Four dimensions were developed to aid the understanding of recovery (Liberman and Kopelowicz 2005). These dimensions are psychotic symptoms, independence, work or school, and social and recreational activities. The essence of the recovery-based practice is “person” and the person’s everyday life with mental illness. Mental illness is illness that the person can handle and manage like all other physical illnesses such as diabetes or heart diseases. It is not an illness that one has to be afraid of. Korean society has slowly moved forward in accepting the concept of recovery, and the community mental health programs in South Korea are pursuing to focus on enhancing the resilience to manage mental disorders and the capacity to cope with various challenges in everyday living situations. Given that this recovery-based practice has been pursued and developed in the community setting in South Korea, mental health professional assistance offered to persons with mental issues also focuses on their self-management skills and simultaneously promotes their dreams and aspirations, which is considered as a human rights-based practice. The recent revised Act reflects the recovery-based and human rights-based practices to promote human dignity and the human rights of the mentally ill population.
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Cross-References ▶ Community and Mental Health ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Legal Provisions, Advocacy, and Empowerment ▶ Reflection of Future Social Work Practice in Mental Health
References Chae E-H, Lee HY (2013) Tasks for present and future of national mental health promotion in Korea: focused on inter-sectoral collaboration. Korean J Heal Educ Promot 30(4):25–39 Five-Year Mental Health Plan Aimed at Reducing Suicide Adopted (2016, March 9) Library of Congress: Global Legal Minority. Retrieved from http://www.loc.gov/law/foreignnews/article/south-korea-five-year-mental-health-plan-aimed-at-reducing-suicides-adopted/ on Dec 2017 Hong S, Lee D, Kim M, Yeom H, Lee Y (2016) Comparative study on community integration of people with mental disorder. National Human Right Commission of Korea, Seoul Jeon J, Lee LH, Kim JH (2017) Recent changes in mental health policy in Korea. Health Soc Welf Forum 246:51–63 Kim YI, Cho MJ, Kim Y, Chung YJ (1994) Development of Mental Health Policy, Department of Health Policy and Management. Seoul National University College of Medicine, Seoul Lee EH, Kim KJ, Lee SY (2000) The attitudes of the inhabitants of Kwangju towards the persons with mental illness. J Korean Neuropsychiatr Assoc 39:495–506 Liberman RP, Kopelowicz K (2005) Recovery from schizophrenia: a criterion-based definition. In: Ralph RO, Corrigan PW (eds) Recovery in mental illness: broadening our understanding of wellness. American Psychological Association, Washington, DC Markowitz FE (2005) Sociological models of recovery. In: Ralph RO, Corrigan PW (eds) Recovery in mental illness: broadening our understanding of wellness. American Psychological Association, Washington, DC Mental Health Act – Possibility in human rights violation (1995, November 14) Hankyoreh Mental Health Act has a problem (1995, November 9) Dong-A Ilbo Min S-K, Yeo I-S (2017) Mental health in Korea: past and present. In: Minas H, Lewis M (eds) Mental health in Asia and the Pacific: historical and cultural perspectives. Springer, Boston Ministry of Health and Welfare (1995) 1995 guideline for mental health services. The Ministry of Health and Welfare, Seoul Ministry of Health and Welfare (2006) WHO-AIMS Report on Mental Health System in Republic of Korea. WHO and Ministry of Health and Welfare, Seoul Ministry of Health and Welfare (2010) Development of National Mental Health Plan 2011–2015. The Ministry of Health and Welfare, Sejong Ministry of Health and Welfare (2014) Mental health services. The Ministry of Health and Welfare, Seoul Ministry of Health and Welfare (2016) A report of the assessment of the mental health system in Republic of Korea using the World Health Organization – Assessment Instrument for Mental Health System (WHO-AIMS). Ministry of Health & Welfare, Seoul National University, Seoul Ministry of Health and Welfare (2017) White paper of 2016. The Ministry of Health and Welfare, Seoul National Health Insurance Service (2014) Health Insurance Statistical Year Book. Seoul National Policy Steering Committee (2016, February 25) National Mental Health Plan Oppose to Mental Health Act (1996, December 18) Hankyoreh Ritter LA, Lampkin SM (2012) Community mental health. Jones & Bartlett Learning, Sudbury
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Roh S, Lee S, Soh M, Ryu V, Kim H, Jang JW, Lim HY, Jeon M, Park J, Choi SK, Ha K (2016) Mental health services and R&D in South Korea. Int J Ment Heal Syst 10:45, 1–10. https://doi. org/10.1186/s13033-016-0077-3 Rosenberg J, Rosenberg S (2006) Community mental health – challenges for the 21st century. Routledge, New York Sin YS, Kim CY, Pyo HJ, Chung YJ (1994) Development of community mental health system. Community Health System Project Team, Seoul National University College of Medicine, Seoul Suh T (1999) Models of mental health service delivery system in Korea. Mental Heal Res 18:1–11 The National Mental Health Commission (2010) Annual report. The Ministry of Health and Welfare, Seoul The National Mental Health Commission (2014) Mental health statistics. The Ministry of Health and Welfare, Seoul Yang OK (1996) Community mental health: from asylum to community. Nanam Publication, Seoul Yang OK (2006) Mental health in social work. Nanam Publication, Paju Yang OK, Lee KY, Lee E-J, Park HK (2010) Study on the policy of social rehabilitation services for the person with mental disorders in Seoul, Korea. Industry-Collaboration Foundation, Ewha Womans University, Seoul
Suicide Prevention Engagement and Community Linkage in a Recovery Framework
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Wider Effects of Suicide . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Relevance of Suicide to Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Workers’ Complex Role . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . How Reliably Are Social Workers Trained in Dealing with Suicidality? . . . . . . . . . . . . . . . . . . . . . . What Practices Are Social Workers Relying on in Their Work with Suicidality? . . . . . . . . . . . . . The Contribution of Social Work to Empirical Knowledge on Suicide . . . . . . . . . . . . . . . . . . . . . . . The Contribution Made by Descriptive Articles . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Contribution Made by Explanatory Articles . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Contribution Made by Control Articles . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Suicide Risk . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Social Work Assessment of Suicide Risk . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The Case for Further Social Work-Informed Research into Suicide . . . . . . . . . . . . . . . . . . . . . . . . . . . Factors Preventing Suicide Research in Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Work Practice in Suicide Prevention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Work Intervention in Suicide Prevention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Future Pathways for Social Work Research into Suicide . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Suicide is an urgent public health concern, and its prevention and reduction have been declared matters of national priority in several countries. Suicide is devastating both for its loss of life and for its wider impacts on families and communities. This chapter provides an overview of the implications for the social work role within this global crisis. Due to their day-to-day proximity to people at L. Joubert (*) · K. Lainson Department of Social Work, Melbourne School of Health Sciences, The University of Melbourne, Melbourne, VIC, Australia e-mail: [email protected]; [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_21
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increased risk of suicide and those impacted by suicide, social workers are identified as being uniquely placed to play a pivotal role in the prevention and reduction of suicide and suicidality, as well as being well-positioned to make a significant contribution to improved understanding of supporting families and communities in the aftermath of a fatal suicide. Suicide statistics are outlined with reference to known risk factors and opportunities highlighted for social workers to be instrumental in the identification and mitigation of risk. Issues of social worker education and training are discussed in relation to the likelihood of social workers coming into contact with one or more individuals at risk of suicide during their career and at any given time. Attention is drawn to the existing contributions made by the social work profession to the field of knowledge on suicide, and the scope for increased social worker involvement in suicide research is put forward. Relating this broader global perspective to the Australian context, an innovative intervention recently developed in collaboration between Melbourne researchers and clinicians is introduced. Keywords
Suicide · Suicidality · Suicide intervention · Suicide prevention · Suicide risk · Social work research
Introduction Suicide has been declared a major, global public health concern especially, although not exclusively, across the Western world (Bunney et al. 2002; Feldman and Freedenthal 2006, pp. 467–480; Joe and Niedermeier 2006, pp. 507–530). According to WHO (2014), close to one million people die by suicide each year, and suicide was reported as accounting for 1.5% of the annual burden of disease, representing 20 million healthy life-years lost (Mann et al. 2005, pp. 2064–2074). In addition, it is estimated that for every completed suicide, there are 25 nonfatal suicide attempts (Berman et al. 2000). Suicide is devastating for both its loss of life and for the wider impact it has on those who are left behind, frequently resulting in considerable interpersonal and economic repercussions (Joe and Niedermeier 2006, pp. 507–530). Both suicide and suicidal behavior have been found to have profound effects individually, for families, and within the broader community (Jordan and McIntosh 2011). As a consequence, suicide prevention has become recognized as an urgent public health need, with several Western countries responding by proclaiming suicide reduction as a matter of national priority, giving additional support to focused efforts for the development and establishment of effective strategies and initiatives to reduce and prevent suicide and suicidal behavior (Joe and Niedermeier 2006, pp. 507–530; Maple et al. 2017, pp. 289–301). Effective management of self-harm (SH) to reduce the risk of subsequent suicide must be a key element of suicide prevention strategies since self-harm is the
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strongest risk factor for future suicide (Hawton et al. 2003). The risk of suicide increases 50–100 “http://ajp.psychiatryonline.org/cgi/content/full/70162/2/297” times within the first 12 months after an episode of SH compared to the general population risk (Hawton and Fagg 1988; Owens and Horrocks 2002). This can be ascribed to the failure to address the complex and multiple psychosocial issues which precipitate self-harm and suicide. This chapter will focus on the contribution of psychosocial factors to self-harm and the prevention of suicide. Recovery in this context is considered to be a selfreported significant reduction in suicidal ideation and sufficient capacity to manage any suicidal ideation that does arise. Psychosocial interventions consisting of psychosocial assessment, assertive engagement, brief client-centered psychotherapy, and community linkage will be discussed as effective interventions in the social work response to suicide prevention.
The Wider Effects of Suicide Suicide has profound and far-reaching effects. Alongside the tragic loss of life, and the practical and economic repercussions for family or loved ones impacted by a suicide, wider ripples felt in the aftermath can include family and community members becoming “vulnerable to psychological morbidity including prolonged grief, post-traumatic stress disorder (PTSD), and depression, and at worst increased risk of suicidal behaviour” (Maple et al. 2017, pp. 289–301). The effects can be long term, and adult children of parents who died by suicide often fear they will experience a similar fate. Family members and friends of people who have completed or attempted a suicide become themselves at increased risk (Gilliland 1995, pp. 647–657), and those close to the person who died often find themselves blamed by others for their loved one’s suicide (Jobes et al. 2000, pp. 536–561). The effects of a suicide on a community will very likely require, at least to some extent, the involvement of social workers.
The Relevance of Suicide to Social Work The prevention of suicide is highly relevant to social work. The diverse contexts in which social workers operate make them well located to contribute significantly to this effort, whether through immediate intervention with a suicidal client or via less direct means such as advocacy, community education, and policy design. Social workers inevitably work with those who are vulnerable and have been identified as the largest occupational group of mental health professionals, putting them at the forefront of suicide intervention (Joe and Niedermeier 2006, pp. 507–530). Feldman and Freedenthal’s (2006) survey on suicide education in social work found that 92.8% of social worker respondents reported having worked with at least one suicidal client during their career. Moreover, 37.1% of their respondents said they were working with at least one suicidal client at the time of
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taking the survey, 53.4% had worked with at least one suicidal client during the month prior to taking the survey, and 78.1% had worked with at least one suicidal client in the previous year. Social workers are employed in diverse settings across a broad spectrum of institutions, communities, and age groups and as such work closely every day with people who are experiencing multiple difficult and stressful life events and circumstances. Situated in schools, prisons, and hospitals, social workers engage with people who have survived or who continue to live with violence and abuse in the home, people who are struggling with problematic substance use and perpetrators of violence and abuse, people living with chronic illness and incapacity, people who are homeless, people who suffered long-term unemployment, and people with marginalized communities facing prejudice, bullying, and discrimination, all factors which put people at increased risk of suicidal ideation behavior (Joe and Niedermeier 2006, pp. 507–530; Manthorpe and Iliffe 2010, pp. 131–147; Maple et al. 2017, pp. 289–301). Not limited to working with people who are at risk of suicide themselves, social workers may also take on the task supporting those impacted by the suicide of a loved one. “The average social worker will see far more suicide-related problems than highly publicised problems like homicide, including child homicide, which number far less per annum than suicide” (Joe and Niedermeier 2006, pp. 507–530). Clearly, there is an imperative for social workers to have significant knowledge for working with suicide.
Social Workers’ Complex Role The social work role in relation to suicide in the community is complex, and the work is challenging. Social workers may find themselves facing expressions of anger or hatred from the very people they are trying to assist (Feldman and Freedenthal 2006, pp. 467–480). Suicide carries social meanings, many of which involve stigma that can reduce the willingness of individuals and their families to seek out help or support when coping with suicidal thoughts, or the suicide of a loved one, meaning social workers must take account of the role of stigma when working in the context of mental illness and suicide (Joe and Niedermeier 2006, pp. 507–530). When assisting families impacted by suicide, knowledge of the unique aspects of suicide bereavement can be crucial for social worker as survivors often experience feelings of self-blame or find themselves the recipients of accusation of blame about their loved one’s death (Feldman and Freedenthal 2006, pp. 467–480). Nor are social workers themselves immune to the effects of exposure to suicide as they go about their occupation. The suicide of a client may be experienced as a major trauma similar to the loss of a close family member and potentially resulting in thoughts of suicide, anger, and guilt (Chemtob et al. 1988, p. 224). There are the inevitable considerations or investigations regarding the diligence of the practitioner, and clinicians frequently worry about, or indeed experience, legal repercussions following the death of a client by suicide (Simon 2000, pp. 399–407). Even when an actual suicide does not eventuate, working with clients who are considering suicide
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can be distressing for social workers due to the work’s urgency and life-or-death nature (Feldman and Freedenthal 2006). Ethical dilemmas come to the fore as the practitioner grapples with the intricacies of client confidentiality, safety and protection, and the right to self-determination (Mishna et al. 2002, pp. 265–280). Social workers’ activities in relation to people affected by suicide may be direct, via their day-to-day client work, or in their role as advocate, and when involved in health promotion and policy work. “Social workers can play an important role in suicide prevention through broader health and wellbeing initiatives and education and implementing intervention strategies within mental health settings as well as providing postvention support to those bereaved by suicide” (Maple et al. 2017, pp. 289–301), thus ensuring social work’s complex, unique, and critical role in saving lives and ability to contribute to the development and implementation of suicide prevention strategies.
How Reliably Are Social Workers Trained in Dealing with Suicidality? Given the frequency of social workers coming into contact with suicide and its effects, combined with suicide’s status as a major public health concern, it follows that the topic should be addressed both by social work researchers and in the education of social workers (Joe and Niedermeier 2006, pp. 507–530). Feldman and Freedenthal (2006, pp. 467–480) in their review of social worker experience of training in suicide prevention found their respondents “largely viewed their social work program’s training in suicide prevention and intervention as inadequate” (p. 467), suggesting graduate programs have an opportunity to review and extend their focus on suicide as a means of supporting social workers in-training to gain sufficient confidence in competently working in the area of suicide prevention and intervention. Their study indicated a desire from social workers for more extensive education in suicide and its prevention, with greater emphasis on training in suicide intervention at graduate school. Their findings suggest that social workers entering the field would benefit from receiving more targeted and extensive education related to working with clients who are at risk of, or contemplating, suicide. Many of the graduate student respondents in the study stated that their field placement supervisors were valuable sources of in situ training. This was not something the supervisors had necessarily been formally trained for, suggesting that provision of professional development opportunities for field placement supervisors could further enhance in situ training for interns and better support supervisors in this role. Ultimately, Feldman and Freedenthal (2006, pp. 467–480) indicated that respondents judged the amount of suicide instruction as an area for especial attention, although respondents did indicate a higher degree of satisfaction with knowledge gained postqualification, believing themselves equipped to work effectively with suicidal clients. In fact, 80% of participants reported that they felt competent and confident when working with suicidal individuals, 59.8% noting feeling comfortable in that situation.
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Feldman and Freedenthal (2006, pp. 467–480) recommend further study involving more recent graduates and to investigate in greater detail the confidence of experienced social workers that they suggest outstrips formal training. More research, they argue, could identify potential gaps between perceived and actual competence, stating: With a problem as grave as suicidal behaviour, it is irresponsible to have such skills imparted to social work students haphazardly, if at all, . . . suicidal behaviour is so dangerous that to send social workers in to the field without adequate training does a disservice to client and practitioner alike (Feldman and Freedenthal 2006, pp. 467–480).
Their case, that there is a need to know how workers are improving their suicide intervention skills after graduation if the profession is to feel confident in its abilities in relation to working with suicide goes, they say, to the very core of professional codes of ethics.
What Practices Are Social Workers Relying on in Their Work with Suicidality? Intrinsic to the question of whether social workers’ training in respect of prevention, intervention, and postvention is adequately meeting their professional needs is the issue of what training they might receive and what contributions there have been from the field of social work that should be imparted to new graduates. Joe and Niedermeier’s (2006) systematic review of literature published by social work investigators in relation to suicide risk, assessment, and treatment approaches found the literature wanting in terms of its ability to support social workers in their quest to work effectively with clients experiencing suicidal thoughts. Despite an increase in social work’s interest in suicide since the 1980s, they state that “social workers’ contributions to the study of suicide is still in need of improvement” (p. 4). They also found the quality of extant empirical studies questionable: It appears that the volume of research publications in social work on the study of suicide has increased significantly during the past decade. However, the relative scarcity of articles addressing the development of effective interventions is a concern ... most of the control studies are less than ideal, lacking replicable interventions because of failure to accurately describe the interventions in detail. The reliability of some of the findings is also questionable due to the low specificity used to measure change, such as personal observation. Finally, some studies lacked control groups, did not randomize subjects or did not use sample sizes large enough to produce reliable and generalizable results. Future research should aim to correct these errors, thereby contributing evidence-based interventions that may be replicated by others in the field (Joe and Niedermeier 2006, pp. 507–530).
Maple et al.’s (2017) more recent scoping review of the suicide prevention role in social work between 2003 and 2013, intended to build on the work of Joe and Niedermeier (2006, pp. 507–530), concluded that the situation has not changed
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greatly in the interim decade, and they remark that “there has been a paucity of suicide research published by social workers” (p. 290). Maple et al. go on to argue that this “paucity of suicide prevention, intervention, and postvention research leaves the social work profession without a strong evidence base of social work-specific knowledge to draw upon in both practice and policy” (p. 299).
The Contribution of Social Work to Empirical Knowledge on Suicide Before moving on to the question of what needs to be on the research agenda for social work, it is worth considering what contributions have already been made. Much of this has been summarized in two reviews undertaken of the empirical literature. Joe and Niedermeier’s (2006) systematic review of social work-related research articles was published on the topic of suicide between 1980 and 2006, and Maple et al.’s (2017) subsequent scoping review of social work research on suicide was published between 2003 and 2013. In each case, articles that met their inclusion criteria were categorized as either descriptive knowledge providing an understanding of assessment and classification of clients and problems, explanatory knowledge identifying relationships between variables, or control knowledge assessing the efficacy of interventions.
The Contribution Made by Descriptive Articles Joe and Niedermeier’s (2006) review illuminates the picture painted by social work’s descriptive scholarly contributions between 1980 and 2006, in which young male suicides were shown to be increasing dramatically, unlike their female counterparts whose rates had dropped considerably. Western suicide rates in the over 65year-olds had decreased overall, but attempts were increasingly fatal due to firearm use. Life experience factors such as illness and sexual or physical abuse were implicated in higher rates of suicide-related behavior, generating the impression of a nuanced and complex terrain. Maple et al.’s (2017) scoping review highlighted prominent topics in the descriptive literature between 2003 and 2013 such as the behavior of children and young people in response to suicide, sociocultural attitudes in suicide, suicide bereavement, and help-seeking. They also evidenced some discussions on late-life suicide risk and an array of research articles ranging from pregnancy to prison, all using small sample sizes.
The Contribution Made by Explanatory Articles Joe and Niedermeier (2006, pp. 507–530) highlighted how risk and resilience studies have made up a substantial portion of social workers’ interest in suicide-
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related behavior. Factors of note included exposure to stressful life situations, examples being older persons moving into a nursing home (Ron 2002, pp. 334–343), young people experiencing school exclusion (Pritchard and King 2000, pp. 139–148), and men on probation (Pritchard et al. 1997, pp. 180–185), all of whom, it is suggested, may experience a sense of alienation and lack the social supports. Females were reported as making more suicide attempts, but males completed more. Evidence suggests links between suicidal behavior and substance abuse, physical abuse, and domestic violence. Divorce was linked to both male and female suicide rates internationally (Cutright and Fernquist 2004, pp. 271–285), and Fernquist (2004, p. 184) found some inverse links between poverty and suicide rates. Mental health was established as closely related to suicidal ideation and attempts, exacerbated by a sense of hopelessness. Oppression, discrimination, prejudice, and acculturation were all recognized as having significant impacts on well-being for minority or marginalized groups increasing their potential risk for suicide attempts. Maple et al. (2017, pp. 289–301) noted research on children and young people continued to dominate the explanatory literature, with other topics of focus being risk factors within ethnic groups, the role of mental illness, the role of child abuse in later suicide, and suicidality in older populations. Discussions on protective factors, efficacy of screening, and impacts of suicide exposure were identified without establishment of causal factors. Difficulties found within the explanatory research as a whole were small sample sizes and methodological problems.
The Contribution Made by Control Articles Joe and Niedermeier (2006, pp. 507–530) identified three types of suicide-related programs with social work involvement: prevention, intervention, and postvention. Prevention-oriented articles focused on social workers’ role in reviewing warning signs and engaging in educational activities with at-risk communities with the beneficial effect of increasing community beliefs that suicidal thoughts are part of mental health, increasing willingness to engage with professional assistance (Ciffone 1993, pp. 197–203). Intervention articles are related to the provision of direct services to clients and to educating professionals who work with them. These interventions were found to have been poorly researched, and Joe and Niedermeier appealed for culturally appropriate programs incorporating local understandings of suicide. Articles covering postvention, i.e., what happens after a suicide has occurred, sought to reduce risk of further suicides. One such intervention involved community engagement “in order to defuse the atmosphere of ‘romantic tragedy’” (Callahan 1996, p. 108). Maple et al. (2017, pp. 289–301) also found the control literature to be lacking, identifying a “paucity of social work research on knowledge that guides and directs social work practice through the testing and evaluation of the efficacy of suicide prevention strategies, intervention and postvention” (p. 294). They argue that “the overall quality of control papers published by social work researchers on strategies designed to reduce suicidal risk
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remained weak” (p. 297) and call for more qualitative research, determining that time pressures, resource constraints, and a wider bias toward quantitative approaches have contributed to insufficient qualitative research being conducted. This is unfortunate as social work’s skills lie in the exploration of the lived experience of people presenting with suicide ideation. This has the potential to inform effective interventions to reduce risk and promote an alternative response to stressful life situations.
Suicide Risk Previous SH is the strongest risk factor for suicide (Hawton et al. 2003, pp. 537–542). Other specific risk factors include the presence of a psychiatric disorder, alcohol and drug abuse, lack of hope, family history of suicide, and cognitive rigidity. These factors tend to compound and exacerbate each other until a pain threshold is exceeded beyond which the person cannot function (Joe and Neidermeier 2006, p. 507–530). That suicidal individuals report four times as many negative life events in the 6 months prior to their attempts than non-suicidal individuals is considered particularly important in the treatment and prevention of suicidal behavior (Neuringer 1974, pp. 96–106; Paykel et al. 1975, pp. 327–333). Schotte and Clum (1987, pp. 49–54) note that the relationship between the aforementioned factors and negative life events exists independently of age, sex, and social class variables and may interact with lack of social support. Individuals who engage in self-harming behaviors have been found to have limited coping strategies, poor problem-solving skills, and low self-esteem and exhibit less control as compared with non-self-harming individuals (Clarke and Whittaker 1998, pp. 129–137; Department of Health 2010, p. 88; Favazza 1989, pp. 137–145; Holdsworth et al. 2001, pp. 449–458; Ryan et al. 1998, pp. 194–210). Similarly, those who self-harm usually experience higher degrees of interpersonal relationship conflict and typically demonstrate less well-developed problem-solving skills than those who attempt suicide (Holdsworth et al. 2001, pp. 449–458; Townsend et al. 2001, pp. 979–988; Williams and Pollock 2000, pp. 79–93). People presenting to emergency departments after episodes of SH are characterized by having psychosocial difficulties and comorbid mental health problems and are at significant risk of further SH and eventual suicide (Mitchell and Dennis 2006, pp. 251–255). Jacobson et al. (2008, pp. 363–375) revealed that individuals who engaged in moderate to severe selfharming behaviors were more likely to have been previously hospitalized, received psychiatric treatment, and experienced previous suicide attempt(s) and suicidal ideation (Butler and Malone 2013, pp. 324–325). Risk categories are defined as: 1. Dynamic risks which are changeable and reactive and often relate to immediate issues or specific events such as a job loss or expressions of distress and the forming of a suicide plan.
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2. Static risks are longer-standing issues that aren’t so changeable. A static risk might be a family history of suicide, a previous suicide attempt, a bereavement, or major psychiatric diagnosis. 3. Vulnerability refers to the personal factors that might make a person more fragile and which may be increased by intellectual disability or cognitive impairment, childhood trauma, exploitation, homelessness, or transition of care. Conversely, protective factors reduce immediate risk. Protective factors may include the person having a reason to live, an ability to engage, and the absence of being alone. Protective factors can also be categorized as follows: 1. Personal factors include the ability to utilize adaptive coping or effective problem-solving skills, having good self-understanding, engaging in meaningful spiritual beliefs or practices, or having a sense of one’s own competence. 2. Family factors include having some relationship to family or a sense of responsibility. 3. Community factors may be some community involvement, or having opportunities to participate, or the availability of affordable and accessible support services. 4. Work factors can range from being part of a supportive work environment with positive colleague relationships to opportunities for professional development and access to employee assistance programs.
The Social Work Assessment of Suicide Risk Predicting any given individual’s immediate risk of suicide has been notoriously difficult due to the “fluctuating nature of suicidality” (Hawgood and De Leo 2016, pp. 251–255). Dissatisfaction with suicide prediction scales has resulted in many mental health professionals weighing the (un)reliability of assessment instruments against the time and resources needed to implement them. In response to increasing support for new collaborative, need-based, and client-centered approaches to suicide risk assessment, researchers at the Australian Institute for Suicide Research and Prevention (AISRAP), Griffith University, have developed the “Screening Tool for Assessing Risk of Suicide” (Hawgood and De Leo 2015). STARS, its creators state, “represents a roadmap to a systematic suicide risk assessment” (Hawgood and De Leo 2016, pp. 251–255) based in a qualitative, rather than a quantitative, paradigm, providing access to a nuanced and compassionate understanding of the client’s own narrative and identifying their current needs through a collaborative interview process. Although neither linear nor prescriptive, the interview comprises three domains of inquiry: suicidal behavior, risk factors, and protective factors, all of which are explored through conversation and guide questions. The practitioner relies on the benefits of “human-to-human connection” as they seek to come to a “collaborative understanding of the troubles that bring about intense suffering” (p. 252), thus maintaining a relational stance while bringing into focus a range of interacting risk, protective, and circumstantial factors, all of which are known to impact on
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likelihood of suicide. The STARS interview is designed to be conducted by professionals with specialized mental health knowledge and experience but without the need for psychiatric training and, as such, provides potential for greater consideration of its applicability to social work.
The Case for Further Social Work-Informed Research into Suicide The research that has been done has clearly shown suicide to be a serious and urgent global health problem, with profound effects on communities. As such, professional practice calls for a credible base of social work-relevant evidence to guide and inform the development of preventative interventions. It is evident that the current empirical literature is insufficient to reliably recommend ways forward, and more control research is needed, particularly that which is informed specifically by social work-related thinking and knowledge. As Joe and Niedermeier (2006, pp. 507–530) argue: Although research on suicide from other disciplines abounds, social work investigators need to incorporate social work’s unique perspectives (e.g. person-in-environment across levels, client-centredness, case management, environmental interventions) to build a scientifically developed clinical knowledge base more applicable for use by social work practitioners working with suicidal clients (Joe and Niedermeier 2006, pp. 507–530).
Because professionals largely rely on their own profession’s literature to advance their practice knowledge (Joe and Niedermeier 2006, pp. 507–530), research that embraces social worker’s perspectives, ideas, and practices will inevitably be more accessible and relevant for social workers who find themselves working with clients who are considering suicide. Their daily proximity to clients who are experiencing distress and the very nature of social work ensure that practitioners are well positioned to make a significant difference in the prevention and reduction of suicide, but the lack of social work-related suicide research leaves them without applicable and appropriately evidenced intervention strategies.
Factors Preventing Suicide Research in Social Work Given the likelihood of encountering suicide-related problems with their clients, it might be considered surprising that the amount of social work research is so limited (Manthorpe and Iliffe 2010, pp. 131–147), but as Maple et al. (2017, pp. 289–301) report, the indications are that dearth of research is less likely to be a result of social worker indifference or lack of research expertise within the profession as a whole, so much as limited funding, poor organizational support, inadequate research training of undergraduates, and an absence of collaboration between universities and social work practitioners (Brough et al. 2013, pp. 528–539).
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Social Work Practice in Suicide Prevention Against this global backdrop, researchers at the University of Melbourne, Australia, have been collaborating on the development of a suicide prevention intervention strategy. The aim of the research was to develop and evaluate a social work intervention for the prevention of suicidal ideation and self-harm for people presenting at emergency departments. The sub-optimal psychosocial assessment and management that they receive in such emergency settings contributes to a pattern of repeated SH and multiple re-presentations. The significant psychosocial morbidity associated with suicidal behavior and the detrimental effects of depression on quality of life often remain unaddressed. The current system of response to suicide risk presentations to Emergency Departments (ED) in Victoria is for Enhanced Crisis Assessment and Treatment Teams (ECATT) to follow up high-acute risk. Unfortunately, there are no standard provisions and no designated best practice for low-moderate risk presentations and the post-acute follow-up of either group. A large proportion of the latter group therefore “slips through the gaps,” failing to engage with treatment and receiving inadequate or no follow-up. It was against this background that the National Suicide Prevention Strategy in Australia sponsored several innovative programs with the purpose of improving the detection and assessment of deliberate SH and suicidal behavior in emergency settings and the management of the problem in the community, thereby addressing these important gaps in service provision. One such program was the Western Area Suicide Prevention Strategy (WASPS), a pilot program development and implementation pilot study for this vulnerable group of people (Joubert et al. 2012, pp. 66–76; Petrakis 2009; Petrakis and Joubert 2013, pp. 239–257). Broadly speaking, the intervention involved proactive engagement, crisis intervention, brief problem-solving-oriented supportive therapy, assertive linkage with community services and resources, and 1–6 months of monitoring and follow-up. None of these elements had previously been combined in an intervention for deliberate SH. The analysis of outcomes demonstrated that the intervention reduced suicidal ideation and levels of suicide risk and depression. During the 6 months after referral to WASPS, the rate of re-presentation to the ED dropped significantly. There was also an improvement in a number of markers of quality of life. Levels of satisfaction among clients who participated in WASPS were very high, and informal comment by Emergency and Area Mental Health Service staff was positive. The Assertive Linkage Service (ALS) social worker will endeavor to engage the client mutually and proactively considering the factors and relationships that are impacting in a positive or negative way on their life situation. This process enables the practitioner and client to jointly prioritize and select a focus for intervention. This might involve psychosocial counseling strategies such as cognitive behavioral therapy, motivational interviewing, or problem-solving therapy to support the client. The aim is to “hold the client” until successful linkage with community-based supports has been established with both client and social worker engaging with the community services until a positive and engaged relationship has been established with them. This process which was named Assertive Community Linkage (ACL)
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results in a reframing of the client’s psychosocial context and supports positive goal achievements which have been named by the client as both essential and meaningful to their process of recovery. A strength-focused interventional model such as ACL aims to strengthen protective elements of the person’s psychosocial context, together with linkage to both formal and informal support networks. Embedded in existing emergency department service delivery models, this intervention is potentially a cost-effective method to expand the existing service delivery to support individuals in the highest-risk period following emergency discharge (Coghlan et al. 2001; Cooper et al. 2006, pp. 459–466; Crandall et al. 2006, pp. 435–442; Gairin et al. 2003, pp. 28–33; Gilbody et al. 1997p171–172; Gunnell et al. 2002, pp. 599–602; Immanuel and Wurr 2001, pp. 358–364; Knesper 2010; Pálsson et al. 1996, pp. 207–216; Windfuhr and Kapur 2011, pp. 101–121). The study contributed to an evidence-informed knowledge base on the effectiveness of a brief psychotherapeutic intervention and community linkage model for the prevention of suicide in a group of people presenting with SH at ED. Our study further contributed to the knowledge base about the contribution of psychosocial factors to SH as well as the impact of psychosocial issues on the prevention of suicide and a community-linked psychosocial intervention for people presenting with SH at emergency (Joubert et al. 2012, pp. 66–76; Petrakis and Joubert 2013, pp. 239–257).
Social Work Intervention in Suicide Prevention The social work practitioner needs to be cognizant both of the presenting issues, the presenting psychiatric diagnosis, and the subsequent social work assessment. Usual psychiatric diagnoses include depression, anxiety, agoraphobia, borderline personality disorder, schizophrenia, acquired brain injury, post-traumatic stress disorder, and Asperger’s syndrome. Studies conducted by the project team found significant co-morbid medical conditions. The social work assessment results in a summary of the wide range of issues that are precipitous for the person experiencing suicidal intent. Again, the project team found relationship breakdown and distress to be the most frequent closely followed by employment and financial issues, substance misuse, social isolation, housing, legal issues, domestic abuse, and adjustment to illness. This range of issues suggests a diverse social work intervention response specific to the unique characteristics of each client’s individual situation. Central to this are the elements of brief strategic client-centered counseling, which includes the techniques of establishment of rapport, supportive counseling, problem clarification, establishment of internal and external resources (both actual and potential), problem-oriented therapy, and the formulation of general management plans with the patient which are focused on risk management. The latter could include material aid, psycho-education, and information to improve health literacy and most importantly assertive outreach. In summary, the psychotherapeutic approach adopted is one of meaningfully intervening and responding to presenting issues such as relationship difficulties,
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•Knowing ‘who’ and ‘how’ with reference to research increases effectiveness •Implementation of evidence strengthens confidence in intervention
Focus on needed competencies •Social work response to suicide prevenon needs to be integrated within service context •Response needs to be brief and evidence based
Importance of effectiveness
•Response to referrals from frontline staff •Social work response according to defined professional role integrated with expressed need
Linking and sustaining the linkage
Fig. 1 Assertive Community Linkage
drug use and abuse, physical health issues, accommodation and employment problems, child protection, financial issues, and legal issues/criminal charges. Central to all of these is frequently a loss of self-esteem related to profound social and emotional distress. This research suggests a model for social work in the prevention of suicide which the team has labeled Assertive Community Linkage (ACL). (Fig. 1). This model as described above has strengthened the team’s confidence in responding to people presenting with suicidal ideation and behaviors in emergency. Social workers are challenged in the emergency context where a brief assessment is important while seeking to understand the complexity of the social precipitating factors presented and to ensure an ongoing supportive engagement with the client as they are reintegrated into the community. It was named this process “Assertive Community Linkage” because of the need to extend the support offered in emergency through the relationship developed at the time of crisis, until the client is meaningfully engaged with community resources. This usually includes ongoing and active engagement by the social worker with organizations providing the continuing care. Intervention in social work in suicide prevention is grounded in the multifactorial needs of consumers and informed by theoretical formulations informing social work practice in the ecosystemic psychosocial context. The latter embraces the complex, dynamic, and interrelated aspects of issues experienced by people at risk of suicide. The main strategies that emerge from ACL are focused on the provision of early intervention after the emergency presentation with brief but regular contact with the client to ensure their linkage to appropriate community resources. This could involve the provision of motivational interviewing grounded in a mutual understanding between practitioner and client of their unique needs and the precipitating dynamics that contributed to their suicide attempt. Critical to the model is ongoing support and appropriate psychosocial intervention to support their integration with community resources.
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The project team found that clients respond to engagement, brief intervention (single session), and community linkage that embed them in a service centered around the GP where they will be offered an ongoing service for their multiple psychosocial needs. These results have shown clients experience a significantly positive increase in their feelings about their social life, their health, and their overall quality of life. Community engagement is critical, and with the client’s consent, linkages with Community Health Services and other nongovernment organizations are carried out according to the needs of each individual client. Where available, the community family doctor plays a significant role in psychopharmacological management. After a client is linked to a GP and community services, the social worker should continue to liaise and provide secondary consultation with the providers.
Future Pathways for Social Work Research into Suicide Maple et al. (2017, pp. 289–301) appeal for the future of social work research to build on existing explanatory knowledge and develop new programs or engage in empirical assessment of existing interventions. When considering the importance that has been placed by governments and other agencies on reducing rates of suicide through the study of suicidal trends and identifying risk and protective factors that are involved, clearly it seems reasonable to expect that social workers would be further involved in developing the evidence base, given their proximity to those vulnerable to suicide in many areas of social work practice (Maple et al. 2017, pp. 289–301) and to extend research involvement to include more suicide vulnerable populations such as older people and young LGBTI people. Their call for research into preventative interventions including the development of models of screening and assessment that are culturally specific and appropriate is echoed by Manthorpe and Iliffe (2010, pp. 131–147) who seek to bring into focus what they name as a “scarcity of research that takes a system-wide approach to suicide prevention in later life and the “dearth of evidence about the social work contribution to reducing risk of suicide in later life and a noticeable absence of reference to social work practice in national guidelines for mental health practitioners” (Manthorpe and Iliffe 2010, pp. 131–147). Manthorpe and Iliffe go on to make the case for “guidelines of national prominence” (p. 143) in order to equip social workers and other practitioners for working in the area of suicide risk in elderly populations, with Joe and Niedermeier (2006, pp. 507–530) adding: In their practice, social workers must understand the demographic patterns and the trends in suicide – namely that younger members of several Western countries are completing suicide at higher rates – and that, therefore, early preventative interventions with older adolescents and young adults, particularly males, must become an integral part of more co-ordinated suicide prevention efforts. Social work research has contributed to our understanding that males, particularly the elderly are at highest risk for suicide and must be screened for suicidal behaviour when thought to evidence known risk factors.
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Additional research recommendations have included giving greater attention to exploring the training needs of social work students and practitioners (Feldman and Freedenthal 2006, pp. 467–480) and investigating possibilities for postvention which has been identified as a neglected subject in social work research (Maple et al. 2017, pp. 289–301). This includes elucidating how social workers are using their practice-gleaned knowledge to work with people who have been suicide bereaved and improved research. It is evident that there is still much to be done and plenty of scope for social work scholarship in this field.
Cross-References ▶ Community and Mental Health ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Theories on Mental Health, Illness and Intervention ▶ Medical Perspective on Mental Health
References Berman AL, Silverman MM, Bongar BM (2000) Comprehensive textbook of suicidology. Guilford Press, New York Brough M, Wagner I, Farrell L (2013) Review of Australian health related social work research 1990–2009. Aust Soc Work 66:528–539 Bunney WE, Kleinman AM, Pellmar TC, Goldsmith SK (2002) Reducing suicide: a national imperative. National Academies Press, Washington, DC Butler AM, Malone K (2013) Attempted suicide v. non-suicidal self-injury: behaviour, syndrome or diagnosis? Br J Psychiatry 202:324–325. https://doi.org/10.1192/bjp.bp.112.113506 Callahan J (1996) Negative effects of a school suicide postvention program – a case example. Crisis 17:108 Chemtob CM, Hamada RS, Bauer G, Kinney B, Torigoe RY (1988) Patients’ suicides: frequency and impact on psychiatrists. Am J Psychiatry 145:224 Ciffone J (1993) Suicide prevention: a classroom presentation to adolescents. Soc Work 38:197–203 Clarke L, Whittaker M (1998) Self-mutilation: culture, contexts and nursing responses. J Clin Nurs 7:129–137 Coghlan R, Lawrence D, Holman CDJ, Jablensky AV (2001) Duty to care: physical illness in people with mental illness. The University of Western Australia, Perth Cooper J, Kapur N, Dunning J, Guthrie E, Appleby L, Mackway-Jones K (2006) A clinical tool for assessing risk after self-harm. Ann Emerg Med 48:459–466. https://doi.org/10.1016/j. annemergmed.2006.07.944 Crandall C, Fullerton-Gleason L, Aguero R, LaValley J (2006) Subsequent suicide mortality among emergency department patients seen for suicidal behavior. Acad Emerg Med 13:435–442. https://doi.org/10.1197/j.aem.2005.11.072 Cutright P, Fernquist RM (2004) The culture of suicide through societal integration and religion: 1996–1998 gender-specific suicide rates in 50 American states. Arch Suicide Res 8:271–285. https://doi.org/10.1080/13811110490436936 Department of Health (2010) Working with the suicidal person: clinical practice guidelines for emergency departments and mental health services. Victorian Government, Melbourne
21
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Favazza AR (1989) Why patients mutilate themselves. Hosp Community Psychiatry 40:137–145 Feldman BN, Freedenthal S (2006) Social work education in suicide intervention and prevention: an unmet need? Suicide Life Threat Behav 36:467–480 Fernquist RM (2004) Educational attainment and the payoff of education: black male suicide in the United States, 1947–1998. Curr Res Soc Psychol 9:184 Gairin I, House A, Owens D (2003) Attendance at the accident and emergency department in the year before suicide: retrospective study. Br J Psychiatry 183:28–33 Gilbody S, House A, Owens D (1997) The early repetition of deliberate self harm. J R Coll Physicians Lond 31:171–172 Gilliland D (1995) Research note: an attempt to classify adolescent parasuicide attempters. Br J Soc Work 25:647–657 Gunnell D, Bennewith O, Peters TJ, Stocks N, Sharp DJ (2002) Do patients who self-harm consult their general practitioner soon after hospital discharge? A cohort study. Soc Psychiatry Psychiatr Epidemiol 37:599–602 Hawgood J, De Leo D (2015) STARS: screening tool for assessing risk of suicide. Griffith University, Brisbane Hawgood J, De Leo D (2016) Suicide prediction: a shift in paradigm is needed. Crisis 37:251–255 Hawton K, Fagg J (1988) Suicide, and other causes of death, following attempted suicide. Brit J Psych 152(3):359–366 Hawton K, Zahl D, Weatherall R (2003) Suicide following deliberate self-harm: long-term followup of patients who presented to a general hospital. Br J Psychiatry 182:537–542 Holdsworth N, Belshaw D, Murray S (2001) Developing A&E nursing responses to people who deliberately self-harm: the provision and evaluation of a series of reflective workshops. J Psychiatr Ment Health Nurs 8:449–458 Immanuel M, Wurr C (2001) Early suicide following discharge from a psychiatric hospital. Suicide Life Threat Behav 31:358–364 Jacobson CM, Muehlenkamp JJ, Miller AL, Turner JB (2008) Psychiatric impairment among adolescents engaging in different types of deliberate self-harm. J Clin child Adolesc Psychol 37:363–375. https://doi.org/10.1080/15374410801955771 Jobes DA, Luoma JB, Hustead LAT, Mann RE (2000) In the wake of suicide: survivorship and postvention. In: Maris, R. W., Berman, A. L., Silverman, M. M., & Bongar, B. M. Comprehensive textbook of suicidology. Guildford Press. pp 536–561 Joe S, Niedermeier D (2006) Preventing suicide: a neglected social work research agenda. Br J Soc Work 38:507–530 Jordan JR, McIntosh JL (2011) Grief after suicide: understanding the consequences and caring for the survivors. Routledge, New York Joubert L, Petrakis M, Cementon E (2012) Suicide attempt presentations at the emergency department: outcomes from a pilot study examining precipitating factors in deliberate self-harm and issues in primary care physician management. Soc Work Health Care 51:66–76 Knesper DJ (2010) Continuity of care for suicide prevention and research: suicide attempts and suicide deaths subsequent to discharge from the emergency department or psychiatry inpatient unit. Education Development Centre, Newton Mann JJ et al (2005) Suicide prevention strategies: a systematic review. JAMA 294:2064–2074 Manthorpe J, Iliffe S (2010) Social work with older people – reducing suicide risk: a critical review of practice and prevention. Br J Soc Work 41:131–147 Maple M, Pearce T, Sanford RL, Cerel J (2017) The role of social work in suicide prevention, intervention, and postvention: a scoping review. Aust Soc Work 70:289–301 Mishna F, Antle BJ, Regehr C (2002) Social work with clients contemplating suicide: complexity and ambiguity in the clinical, ethical, and legal considerations. Clin Soc Work J 30:265–280 Mitchell AJ, Dennis M (2006) Self harm and attempted suicide in adults: 10 practical questions and answers for emergency department staff. Emerg Med J: EMJ 23:251–255. https://doi.org/ 10.1136/emj.2005.027250 Neuringer C (1974) Attitudes toward self in suicidal individuals. Suicide Life Threat Behav 4:96–106. https://doi.org/10.1111/j.1943-278X.1974.tb00871.x
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Owens D, Horrocks J, House A (2002) Fatal and non-fatal repetition of self-harm: systematic review. The British Journal of Psychiatry 181(3):193–199 Pálsson SP, Jónsdóttir G, Pétursson H (1996) The mortality risk of psychiatric emergency patients: a follow-up study. Nord J Psychiatry 50:207–216. https://doi.org/10.3109/08039489609081410 Paykel ES, Prusoff BA, Myers JK (1975) Suicide attempts and recent life events. A controlled comparison. Arch Gen Psychiatry 32:327–333 Petrakis M (2009) Suicide prevention: recovery outcomes from an innovative model of clientcentred assertive counselling, community linkage and monitoring, developed within one Victorian Hospital Emergency Department. The University of Melbourne Petrakis M, Joubert L (2013) A social work contribution to suicide prevention through assertive brief psychotherapy and community linkage: use of the Manchester Short Assessment of Quality of Life (MANSA). Soc Work Health Care 52:239–257 Pritchard C, King E (2000) ‘High risk’ adolescents five years on: the subsequent suicide and homicide of former ‘looked-after’ and ‘exclusion unit’ adolescents (11–15). Int J Adolesc Youth 8:139–148 Pritchard C, Cox M, Dawson A (1997) Suicide and ‘violent’ death in a six-year cohort of male probationers compared with pattern of mortality in the general population: evidence of accumulative socio-psychiatric vulnerability. J R Soc Health 117:180–185. https://doi.org/10.1177/ 146642409711700310 Ron P (2002) Suicidal ideation and depression among institutionalized elderly: the influence of residency duration. Illn Crisis Loss 10:334–343. https://doi.org/10.1177/105413702236513 Ryan M, Parle M, Babidge N (1998) What precipitates deliberate self-harm? A cognitive behavioural formulation of attempted suicide presentations at an inner city hospital. Aust Health Rev 21:194–210 Schotte DE, Clum GA (1987) Problem-solving skills in suicidal psychiatric patients. J Consult Clin Psychol 55:49–54 Simon RI (2000) Taking the “sue” out of suicide: a forensic psychiatrist’s perspective. Psychiatr Ann 30:399–407 Townsend E et al (2001) The efficacy of problem-solving treatments after deliberate self-harm: meta-analysis of randomized controlled trials with respect to depression, hopelessness and improvement in problems. Psychol Med 31:979–988 WHO (2014) Preventing suicide: a global imperative. World Health Organisation, Geneva Williams JMG, Pollock LR (2000) The psychology of suicidal behaviour. In: Hawton K, van Heeringen K (eds) The international handbook of suicide and attempted suicide. Wiley, Chichester, pp 79–93 Windfuhr K, Kapur N (2011) Suicide and mental illness: a clinical review of 15 years findings from the UK National Confidential Inquiry into Suicide. Br Med Bull 100:101–121
Parenting Challenges for Persons with a Serious Mental Illness
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Prevalence . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Effects of Parenthood on Self . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Impact of Psychiatric Symptoms . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Psychosocial Challenges . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Poor Social Support . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Stigma . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Disadvantage . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Direct and Indirect Consequences of SMI on Children . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Family-Focused Approach in Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Services to Support Children . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Services to Support Parents . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Whole Family-Oriented Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . A Community-Focused Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Up to a quarter of people with a lived experience of serious mental illness are parents. Parents with serious mental illness face considerable challenges managing the demands of their illness and day-to-day parenting roles and responsibilities. A lack of resources to cope with parenting tasks, stigma of mental illness, psychiatric L. Campbell (*) School of Psychology, University of Newcastle, Callaghan, NSW, Australia e-mail: [email protected] A. W. C. Poon School of Social Sciences, University of New South Wales, Sydney, NSW, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_16
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symptoms, and side effects of medications can affect parenting abilities. In addition, psychosocial adversities including lower education and employment opportunities, due to the impact of mental illness and parenting duties, can negatively impact the quality of life of families affected by parental mental illness. Studies show that children affected by parental mental illness have a higher risk of developing emotional, psychological, and behavioral problems and sometimes take on caring responsibilities for their parents. It is increasingly recognized that family-focused support services are required to meet the needs of these families and that providing appropriate support can contribute to the recovery journey of parents with mental illness and well-being of the whole family. Keywords
Families · Parenting · Children of parents with mental illness · Psychiatric illness
Introduction Parenthood is central to most adult people’s personal and social identity, and being a parent is highly valued across societies; parenting can improve self-esteem and lead to better recovery for people with mental illness. However, serious mental illness (SMI: also known as severe mental illness) may significantly affect individuals’ functioning and quality of life for extended periods. SMI can interfere with a person’s work ability, academic functioning, daily living skills, and social relationships. In addition, SMI affects the immediate and extended family who often provide emotional support and practical assistance. While the impact of mental illness on families and carers is described in ▶ Chap. 10, “An overview of social work approaches in working with families of people with serious mental illness” of this book, this chapter will focus on parenting challenges for people with SMI. Traditionally, parenthood is something that has not been taken into account by the mental health-care system (Pfeiffenberger et al. 2016). However, it is vital to recognize the positive and negative aspects of parenting with an SMI. Parenting can have a significant positive impact on the psychological well-being of a person with an SMI. For instance, a qualitative study found that parenthood was beneficial for parents with SMI in several ways (van der Ende et al. 2016). The parents reported that a sense of responsibility for their child made them more focused in life and they learnt strengths and skills that helped them in their own life and in their parenting. Parenting also motivated them to be more socially engaged and helped them find social support resources. However, the challenges associated with parenting can add to already significant stresses for parents with SMI. In addition, children of parents with SMIs have an increased risk of poor psychological well-being across the lifespan (Reupert and Maybery 2016). Considering that the well-being of the whole family unit is closely intertwined with the mental health of the parent, it is of utmost importance to consider the needs of parents with SMI in a systemic context, offering effective, family-driven, and strength-based support services while also safeguarding the interests of the children (Maybery et al. 2015).
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Prevalence Studies show that it is common for people with mental illness to be parents. Nicholson et al. (2002) found that participants who had a past or current mental illness, surveyed as part of the US National Comorbidity Survey, were marginally more likely to be parents compared to those without a diagnosis. Overall, they reported that 68% of women and 54% of men with a mental illness were parents with similar patterns as the general population regardless of the type of diagnosis. Conversely, using data from the US National Survey on Drug Use and Health (NSDUH), researchers reported that rates of parenthood were slightly lower overall (women 38%; men 23%) for people with an SMI compared with people with no diagnosis (women 42%; men 38%) (Luciano et al. 2014). Extrapolating this data to the wider US population of parents, 7% of mothers and 2.6% of fathers reported having an SMI. Using data from the 2008–2014 NSDUH and including serious and mild mental illness in the analysis, Stambaugh et al. (2017) identified that 3.8% of people with an SMI and 18.2% of people with any mental illness were living with dependent children. It is worth noting that these studies excluded institutionalized participants and the latter two studies excluded parents not living with their children or who had a history of mental illness. Overall, the studies support that a high number of people with mental illness are parents and many children grow up with parents who experience temporary, intermittent, or chronic mental illness, therefore supporting the importance to recognize parenthood in mental health programs and policies. In the Australian prevalence study of psychosis, researchers found than more than half of the female participants and a quarter of male participants with psychotic disorders identified themselves as parents (Campbell et al. 2012). While 35.9% of the mothers and 26.7% had dependent children, only about one-quarter of the women and 5% of men were living with dependent children. These studies have complemented studies exploring parenthood in specific mental health settings identifying that between one-quarter and half of clients were parents (Howe et al. 2012). In Sweden, health-care professionals are mandated to report if a client is a parent and the age of their children. Afzelius et al. (2017) reported 12.9% of clients of psychiatric services in 2013/2014 Swedish medical records had registered children below the age of 18 years, and women were marginally more likely to be parents. Clients with behavioral and affective disorders were more likely to be parents than those diagnosed with SMI such as schizophrenia. In Singapore, a pilot study in the main public mental health service reported that 11% of clients were parents of young children, and women were more likely to be caring for their children than men with mental illness (Poon et al. 2014). To conclude, from a lifespan approach, a high percentage of people with mental illnesses are parents. Although some individuals may not develop a mental illness until after their children have reached adulthood, between 11% and 25% of people with mental illness live with their dependent children. While people with SMI are less likely to be parents, data indicate that it is getting more common globally, although studies on the prevalence rate of clients with children in non-western contexts are rare. SMIs are associated with sociocultural disadvantages that make
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raising a family and maintaining family connections challenging. Hence, it is important to explore how services can overcome challenges and barriers to support good parenting in people with mental illness.
Effects of Parenthood on Self Parenthood with mental illness can have a direct impact on the mental health of parents. Good experiences with parenting can have a positive effect on the mental health of parents and act as a protective factor that promotes resilience. However, severe stress associated with parenting can have a detrimental impact on mental health. The relationship between parenting and mental health is very complex and can change over time. Parenthood can be stressful for anyone especially parents with SMI. In order to function well, parents with an SMI need to cope with, and address, their own physical and psychological needs that can sometimes be debilitating. This frequently involves monitoring their medication regime, attending physical and psychological health-care appointments, maintaining a healthy lifestyle (Perera et al. 2014), and managing their psychiatric symptoms. Studies show that people with mental illness often have poor physical health such as diabetes, high cholesterol, and other longterm physical health conditions. In addition, side effects of psychiatric medications can cause additional physical and psychological challenges. Similar to nonparents with mental illness, maintaining a healthy lifestyle and balanced diet for parents with mental illness is paramount for physical and psychological health. However, self-care can be very challenging and often not prioritized when providing care to children (van der Ende et al. 2016). Indeed, Perera et al. (2014) found that mothers often neglected their own needs to care for their children. This can be particularly pertinent when parents experience side effects from their psychotropic medication, such as lethargy, poor memory, irritability, blocking of emotions, and poor concentration, that impact on their parenting ability (Evenson et al. 2008). Some parents then face the dilemma between taking their medications and caring for their children (Perera et al. 2014). Not taking the medication can lead to a deterioration of their psychological health, which in the long term can also be detrimental to their parenting ability. Parents also reported that leisure activities and physical exercise were neglected in their lives (van der Ende et al. 2016), while both areas are important to their overall physical and psychological well-being in parenting. Importantly, parents may avoid seeking help to manage their psychiatric symptoms out of fear of losing custody of their children (Westad and McConnell 2012). When parents feel that they are doing well in their parenting role, it can be very empowering and motivating. However, when parents have low confidence in their parenting skills, it can be a very demoralizing experience associated with distress and shame. This sense of failure can be compounded by relationship problems or stigmatizing attitudes from others (Perera et al. 2014). For instance, spouses/partners and other adult relatives may worry about the impact of poor mental health on children and how the pressure of caring for children may affect the parent’s mental health.
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Impact of Psychiatric Symptoms It is evident that parents with an SMI experience a range of cumulative psychosocial and individual challenges that make parenting more difficult. Some of the challenges may be present prior to the onset of the SMI, while others may happen as consequences of the illness or societal responses to mental illness. Parents with SMI are at risk of poor physical health, teenage pregnancy, low educational attainment, unemployment, poverty, inappropriate housing, and shrinking social networks (including high rates of divorce). These challenges make parenting more difficult for anyone, regardless of mental health status, and can lead to intergenerational social disadvantage. Thomas and Kalucy (2003) argue that psychosocial difficulties associated with SMI, as well as the chronicity of the illness, have a more detrimental impact on children of parents with SMI than the mental illness itself. Consequently, when discussing parenting ability, it is vital to consider the relationship and interplay between the psychosocial challenges experienced by an individual and the symptoms and course of illness. It is also important to be aware that symptoms of SMI are often episodic and can fluctuate over time. In addition, many people with SMI do experience an improvement of their psychiatric symptoms and progress in their personal and unique recovery journey. Recovery is possible even within conditions that traditionally are associated with very poor outcomes, for example, 40% of people with schizophrenia recover functionally or socially over time (Zipursky et al. 2013). However, symptoms of mental illness – as well as side effects from medications – can affect parents’ abilities to create and maintain healthy relationships with their children and to undertake day-to-day parenting tasks (Evenson et al. 2008). The symptoms vary greatly between individuals with SMI. Nevertheless, many parents share similar experiences and are concerned about the impact of some of these symptoms on them as parents both in the short and long terms. Symptoms such as fatigue, blunted affect, apathy, withdrawal, lack of energy, and motivation are frequent. In addition, people with SMI often experience cognitive impairments including problems with planning, memory, attention, and concentration. Experiencing symptoms such as these can make it difficult to interpret and understand the needs of children and are likely to affect the relationship between the parent and child. Parental SMI is associated with problems in forming and maintaining functional emotional relationships with their children (Göpfert et al. 2004). For instance, parents may be less emotionally warm, sensitive, and responsive to their child’s needs as well as being more intrusive and hostile. Indeed, fathers with SMI have described that feelings of lethargy, irritability, and blocking of emotions as well as cognitive impairments such as poor memory and concentration disrupt the relationship between themselves and their children (Evenson et al. 2008). Other types of symptoms such as mania, delusions, and hallucinations can lead to parents misinterpreting information; displaying erratic, strange, or even bizarre behaviors; and leading to harm in some extreme instances (Ostler and Ackerson 2009). The symptoms can also make it difficult for parents to complete daily household tasks ensuring a healthy and safe environment for their children.
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Montgomery et al. (2006) describe that parents often hide their symptoms and avoid seeking help in order to protect and focus on their children. There have even been reports that some parents may stop participating in treatment, including taking medications, when these are interfering with their responsibilities as parents (Seeman 2010). Parenting ability is linked with symptom severity, chronicity, and daily living skills (Campbell et al. 2017). Kahng et al. (2008) stress that parenting capacity changes over time as do symptoms indicating the intertwined relationship between symptoms and parenting ability. Substance use disorders are, unfortunately, common among people with SMI and can complicate parenting further, with a significant proportion of mothers (~45%) and fathers (~70%) reporting a lifetime diagnosis of alcohol and/or cannabis abuse (Campbell et al. 2012). Dual diagnoses negatively affect overall functioning including parenting and are associated with an even greater risk of adverse psychosocial circumstances such as poor housing, poverty, deprived neighborhoods, violence, and disruptive behaviors. Henshaw et al. (2011) found that drug and alcohol use disorders were associated with child abuse and neglect. Overall, parents who have better insight into their own mental health are more likely to have better parent-child relationship including displaying a higher level of sensitivity and to be less likely to harm their children. To conclude, while specific diagnoses are not good predictors of parenting ability among parents with SMI, the severity of symptoms and daily living skills are more likely to influence parenting.
Psychosocial Challenges In order to raise a family, there are individual and sociocultural factors that can either help or hinder. Parents with SMI have much in common like other parents, but they are at risk of experiencing a much higher cumulative risk of psychosocial adversities, which can have a serious impact on their parenting. While some of these challenges might have been present before the individual first experienced an SMI or became a parent, others might have occurred as consequences of not only the illness but also the sociocultural factors related to having an SMI. Poor social support and stigma (including prejudices and discrimination), low educational attainment, lack of employment, poverty, and inadequate housing have a significant impact on the ability of parents to care for their children. Conversely, psychosocial stability including relationships and socioeconomic factors is associated with better parenting among people with SMI.
Poor Social Support Social support can serve many different functions and are, for parents, typically obtained from partners, extended family, friends, and community organizations. However, a considerable number of parents with SMI experience poor social support and even social isolation. Indeed, people living with SMI self-identify social and
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relationship problems as one of their main concerns (Morgan et al. 2011). A lack of adequate social support can be very problematic for parents and affect not only their own health but also their ability to parent well. For parents, one of the most important sources of support is from their partners. Married or cohabiting people with SMI report a better quality of life (Nyer et al. 2010). However, people with SMI are less likely to be married and have high risk of separation and divorce (Campbell et al. 2012). Relationship difficulties including conflict and domestic violence are frequently reported and can significantly affect not only the mental health of people with mental illness but also their parenting ability (Mowbray et al. 2005). Hence, many parents with SMI are sole parents or noncustodial parents, and being a single parent has been associated with poorer parenting outcomes for women with SMI. There are also a high number of blended families in this population, which are associated with additional challenges. Extended family and friends are also important sources of social support; good support is associated with better parent-child interactions as well as improved parenting skills in the general population (Green et al. 2007). Social networks tend to be smaller for people with SMI, and their networks include more family members; for those with chronic illnesses, their networks contain fewer friends and relatives and more short-term acquaintances. A study of the lived experiences of women with SMI found that relatives and mental health workers were seen as providing the greatest support (Chernomas and Clarke 2003). The social isolation described by parents with SMI is likely to be multifaceted in origin including neglect of their social networks over time due to their illness and/or caregiving responsibilities. However, a very important component to the loss of social connectedness is stigma.
Stigma Stigma is a complex social construct that includes ignorance, prejudices, experienced discrimination, and self-stigma, all of which are highly salient to parents with SMI (see review by Reupert and Maybery 2015). Public perceptions about SMI include negative stereotypes such as perceived dangerousness or incompetence; prejudiced reactions including fear and disgust; and discrimination that can involve avoidance but also limiting opportunities (Price-Robertson et al. 2015; Sadler et al. 2012). This public stigma can lead to practices such as mandatory reports to child protection services by labeling individuals as “incompetent parents” simply because they have an SMI. In addition, many people with SMI may internalize stigma by believing and agreeing with the public perception. For instance, parents may view themselves as incompetent due to their illness: “As I have a mental illness, I can’t possibly be a good parent.” Public stigma can also include structural stigma through biased laws, policies, and programs that unfairly discriminate against parents with mental illness. Dolman et al. (2013) reported that as many as 75% of the qualitative studies of the lived experiences by mothers with SMI included references to stigma and the profound impact stigma had on the mothers. According to Jeffery et al.
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(2013), 73% of their participants reported experiencing discrimination related to being judged as unfit to be parents, being stopped from having children, or not being allowed to see their children. In addition, parents reported that they received inadequate support and frequently felt undermined in their capacity as parents, including people not understanding and not listening to them. Savvidou et al. (2003) found that mothers with SMI experienced strong social condemnation in their role as parents and said that they were often not given the opportunity to demonstrate good parenting despite good mother-child bonds. The different levels of experienced stigma may lead to parents with SMI avoid talking with others about their mental illness or initiating new contacts due to the fear of being judged or stigmatized or because they do not think that they are capable. It is important to recognize that stigma about parenting by people with SMI can vary across cultures and gender. For instance, mothers perceive and internalize stigmatizing attitudes about their parenting ability more easily than fathers who think that gender attitudes are the underlying cause for the experienced stigma (Lacey et al. 2015).
Social Disadvantage For many people with SMI, social disadvantage began early in life. The onset of SMI in late adolescence or early adulthood frequently disrupts the educational attainment with long-term consequences for the young person. Waghorn et al. (2012) reported that about 30% of Australians with psychotic disorders had not completed high school. Parents with psychotic illnesses are less likely to complete higher education compared to their peers (Campbell et al. 2012). In addition, young parents with SMI experience significant challenges affecting educational attainment. The average age of parenthood is lower among people with SMI, with an increased likelihood of teenage pregnancies (Vigod et al. 2014). The number of young people with mental illnesses who temporarily or permanently drop out of education is alarming (Ennals et al. 2014). When young people fail to perform to their full educational potential, it has an impact on their opportunities of not meeting the requirements for entry into vocational training or tertiary programs. Not completing or performing poorly in education may limit employment opportunities as well as reducing the lifetime earning potential of the individual. While higher levels of education mean a higher likelihood of employment (Waghorn et al. 2012), about 70% of parents who participated in the second Australian national survey of psychosis had not been employed in the year leading up to the survey. While education is only one of the factors leading to employment, general functioning and illness severity also play a significant role. Unemployment and/or difficulty finding stable and well-renumerated employment is a major challenge for parents balancing self-care, home responsibilities, and relationships and bringing up children. Importantly, many families affected by parental mental illness live in poverty. In Australia, it has been reported that one-fifth of parents living with children under the age of 18 live the poverty line (Campbell et al. 2012). Financial
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problems can result in less access to health care, a less healthy lifestyle, relationship problems, and housing problems. When people are satisfied with their housing, it can have a positive impact on their overall quality of life and can help people nurture relationships and also allow a better integration in the community. It has been found that people with mental illnesses who live in appropriate housing have a lower service utilization and less psychiatric symptoms, indicating stable mental health (Nelson and Laurior 2010). Unfortunately, most people with SMI do not have access to satisfactory, safe, or stable housing (Harvey et al. 2012). Poor housing or homelessness can become a child safety concern, with parents in some instances voluntarily or forcefully losing custody of their children (Montgomery et al. 2011). In summary, SMIs are strongly associated with social disadvantage related to poorer parenting practices and higher risks for adverse child outcomes. Social adversities, including lower education, financial strain, and living in areas distinguished by social disadvantage, are in and of themselves linked with an increased risk of poor mental health. For those who already have an SMI, social disadvantages can pose a barrier to their recovery. However, if parents can receive sufficient support to overcome some of these psychosocial barriers, it is likely to have a positive impact on their parenting ability.
Direct and Indirect Consequences of SMI on Children As discussed above, parents with SMI experience many additional challenges in their parenting journey compared to other parents. The literature provides ample evidence of the challenges for parents with SMI in providing a nurturing and safe environment for their children (Göpfert et al. 2004). Parental SMI can have a negative impact on the family and particularly children. However, the biopsychosocial mechanisms involved in increasing risk are complex, and adverse outcomes are not definite (for a review, see Reupert et al. 2015). Briefly, some of the identified key aspects include the transactional parent-child relationship including the internal characteristics of the parent and the child. Parent functioning, parenting style, comorbidities, and level of disability, as well as the child’s needs, temperament, and cognitive and social skills, are all important contributing factors as well as contextual factors that have an impact on family life. More specifically, family members (including the other parent) and environmental and societal factors affect the whole system (parent, child, and family) in a reciprocal fashion. Emotional and practical social support can act as further protective or risk factors for the child and parent, with environmental factors such as stigma, poverty, education, and occupation further modifying the risk. Notwithstanding the complex interrelationships between the parent, child, and wider environmental context, children of parents with SMI are vulnerable to developing behavioral and emotional problems due to heightened biopsychosocial risk factors (Leijdesdorff et al. 2017; Rasic et al. 2014), particularly if the parent with SMI is the primary carer (Berg-Nielsen and Wichstrom 2012). Rasic et al. (2014)
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reported that up to one-third of these children are likely to develop an SMI, with an even higher proportion developing other psychiatric problems. Alarmingly, adolescent children of parents with SMI have an increased risk of violent offending behavior and suicide (Mok et al. 2016). Many children of parents with SMI do not receive the care they need. This can be caused by an unwillingness of parents to seek help for their children due to the fear of negative consequences such as losing custody of their child but also a lack of knowledge of how to seek appropriate assistance (Khalifeh et al. 2009). Children affected by parental SMI frequently experience a lack of social support (Power et al. 2016). Sometimes children learn social avoidance behaviors from their parents; at other times the stigma attached to the mental illness may lead to avoidance (Grové et al. 2015a; Nilsson et al. 2015). Many children with affected parents reported experiencing stigma associated with mental illness (Widemalm and Hjärthag 2015). These experiences frequently hinder the social support and help seeking of these children, and this is particularly problematic as studies have reported that many young people take up informal caring roles in families with parental mental illness. Young carers may face a significant level of caregiving burden in addition to the pressure to cope with their own developmental needs. Role reversal and parentification to care for their parents have also been reported (Grové et al. 2015b). Tragically, they may not be confident to seek or be aware of the availability of professional support on their own and therefore do not seek help from formal services; at other times, they may seek help but not be taken seriously due to their age. Parenting difficulties for persons with SMI are associated with an increased risk of temporary or long-term loss of custody (Seeman 2012). While many of the children are cared for by the other parent (Campbell et al. 2012), some children are left in the care of extended family members or placed in foster care. Loss of custody is a traumatic experience for both the parent and child and often has significant ramifications in mental health problems. However, when parents with SMI are given the appropriate support and resources, they are more likely to provide “good enough” parenting and manage better (Risley-Curtiss et al. 2004). However, as clinicians largely have a deficit focus instead of a strength-based approach, they may lack an understanding of the positive aspects of parenting that may be present for a parent with an SMI. In addition, mental health services may adopt an individualized person-centered approach focusing on the client and neglect the needs of the family. It is not well understood how individual circumstances and strengths can be utilized in a family-driven approach to encourage better outcomes for the whole family. A recent systematic review revealed that the key three concerns for parents with SMI were how to be a good parent, their child’s well-being, and access to practical support. Meanwhile, children wanted to learn and understand more about what is going on for their parents with SMI; they expressed worries about their parent’s well-being and, importantly, expressed a need for normality and less stigma (Grové et al. 2015a; Widemalm and Hjärthag 2015). Adult children also
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reported positive experiences such as strengthening of their relationships with their parents with mental illness and having a purpose in life (Power et al. 2016). Studies reported better parent-child communication might help children to cope with parental mental illness better (Power et al. 2016).
Family-Focused Approach in Practice Emerging evidence point toward the importance of including parenting as a focus in recovery-oriented interventions to enhance well-being not only for the parent but also for the wider family (Reupert et al. 2017). Due to the impact mental illness can have on the whole family, addressing SMI among parents using a family-focused approach can aid in the recovery of the parents, support the children, and decrease the overall family burden. Although there is disagreement over whether interventions to support and care for parents and children should be provided by mental health services or voluntary organizations (Reupert and Maybery 2016), we will highlight some common interventions and their outcomes in this section. We can classify programs broadly into three categories: (1) services to support children, (2) services to support parents, and (3) whole family-oriented services.
Services to Support Children Peer support groups have been reported to be useful to help young people to open up and share their experiences with other children experiencing challenges related to parental mental illness (Nilsson et al. 2015). Support groups may also provide a psychoeducational component to help children understand mental illness better and build their resilience. Support groups can engage young people in face-to-face interactions; however, as children of people with mental illness tend to avoid talking to others about their experiences, Internet forums provide an emerging form of support particularly useful in helping children to communicate and share with peers online (Grové et al. 2016; Trondsen and Tjora 2014; Widemalm and Hjärthag 2015). The anonymity of the Internet seems to be a key factor in removing barriers to help young people share their stories with their peers (Grové et al. 2016). A study found that online self-help groups allowed flexibility for young people in contributing to the forums, created openness, and fostered normality of their experiences (Trondsen and Tjora 2014). More intense educational programs for children, such as seminars and camps, can also help to reduce isolation, provide information, and help young people develop better coping skills (Grové et al. 2015b). Overall, there is a lack of empirical studies systematically evaluating the efficacy of interventions to improve the quality of life of children with a parent who has SMI although recent systematic reviews suggest that interventions can, at least, improve child mental health across time (Thanhäuser et al. 2017).
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Services to Support Parents Generally, generic parenting programs have been found to be inadequate to address the unique needs of parents who have to cope with the stress inferred by living with a mental illness and their parenting responsibilities. Customized parenting programs designed to educate and support parents with mental illness are more effective in addressing the needs of parents with SMI. The key aims of such parenting programs are to inform parents about mental illness and its effects, address and equip them to manage challenges associated with parenting, and maintain own health and wellbeing. Programs such as the Triple P Positive Parenting Program have developed more holistic interventions to support both children and their parents with mental illness in Australia, the UK, and other places (Sanders et al. 2014). Such programs provide education, coping skills training, and opportunities for participants to share their experiences with other participants. For example, an evaluation of an adapted Triple P that included a parenting program and home visits specifically targeting parents with mental illness found high participant satisfaction and engagement with the program (Coates et al. 2017). Parent-infant interventions aiming to support new parents, such as the Baby Triple P program, are acceptable and feasible interventions for mothers of young infants (Butler et al. 2014). Parent-participants of an Internetbased intervention have reported better parenting and coping abilities and reduced parenting stress (Kaplan et al. 2014). The outcomes of these programs are promising for both children and their parents. However, the availability of such intense programs is limited due to the cost and resources to provide them. Support groups are a more cost-effective way for parents and can provide a space for parents with SMI to share their unique experiences and learn from one another in a safe space (Shor et al. 2015). Community outreach programs providing multidisciplinary home-based education support and interventions have shown success in supporting parents with complex needs and high risks (Schrank et al. 2015). Providing crisis interventions and supporting families in the community are key services of such intensive homebased programs. Although managing the risk of parents with mental illness is important, clinicians also need to be mindful of building therapeutic relationships with parents and supporting them to maintain their parental responsibilities (Boursnell 2014). For example, recovery-focused home visiting programs can support parents to plan and achieve their goals regarding family connectedness, hope, identity, and meaning (Maybery et al. 2015).
Whole Family-Oriented Services Within mental health services, there is a greater recognition of the importance of including families of people with mental illness in the planning of treatment and care. Several family inclusive models and approaches have been piloted in mental health services in the USA, Australia, and other countries (Schmidt and Monaghan
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2012; Stanbridge and Burbach 2007). Family inclusive models or approaches are useful for clinicians in assessing needs and perspectives of the whole family and engage children in the care of their parents within the context of providing mental health services to the parents (Schmidt and Monaghan 2012). Services can use relatively inexpensive and simple tools to improve family connectedness and understanding. For instance, Marston et al. (2014) found that the use of a DVD – “Family Focus” – as a tool can enhance understanding and communication between parents with mental illness and their children. Similarly, a psychoeducational focused drama/ filming workshop involving both parents and their children enabled parent-child dyads to share their stories and learn about mental health in a fun environment (Wolpert et al. 2015). For parents with SMI, getting support from relatives and friends to help with caring of children, household responsibilities, and emergency care of children when parents with mental illness are hospitalized is beneficial. Family inclusive practice encourages grandparents and/or significant people to better support families affected by parental mental illness. To conclude, training of mental health and social service workers to provide family inclusive practice and/or family programs is important. Training can facilitate awareness of challenges and concerns of families and equip workers with the necessary tools and skills including confidence to work effectively with families affected by mental illness (Gatsou et al. 2017; Power et al. 2015). Involvement of people with mental illness, carers, and children of parents with mental illness in the training of workers can help workers understand the experiences of families better.
A Community-Focused Approach Several services have considered the fragmentation and poor integration between mental health services and social service organizations in addressing the needs of families with parental mental illness (Reupert and Maybery 2014; Wansink et al. 2015). Mental health services mainly focus on assessing and treating mental illness, while voluntary organizations focus on the social needs of parents and children (Reupert and Maybery 2014). Better coordination and communication between mental health services and social service organizations in managing families affected by mental illness are essential to promote the recovery of parents with SMI (Nicholson et al. 2007). Families experiencing parental mental illness have multiple needs ranging from psychiatric treatment, financial, housing, and marital challenges and require interventions from diverse health-care and social service organizations (Poon et al. 2014). As organizations often employ staff with certain specialized skills and knowledge, staff may lack expertise in addressing the needs of families that are not related to their specialized work experience. One way to address the fragmentation of services is to ensure that mental health services have family-focused case managers to assess the needs and coordination of care for families with parental mental illness (Wansink et al. 2015). Practice standards to guide workers to engage families, assess needs, provide interventions, and
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monitor progress would assist in ensuring a family-focused approach to care (Goodyear et al. 2015). Collaborative networks between mental health workers and counselors and family therapists in social service organizations are important to ensure a shared understanding of the needs of the families. Counselors and family therapists should consider engaging clients and seeking their permission to talk about their mental illness and its effects on the family, and exploring and helping clients to be aware of priorities in addressing mental illness and its impact (Power et al. 2015). However, therapists need to be mindful of the emotional safety of clients when clients share their experiences and provide education on mental illness to their clients (Power et al. 2015). Social isolation is common among families experiencing mental illness; hence, community programs should encourage social participation in societies. Parents with mental illness and their children often report the need to feel “normal” just like other families, emphasizing the essential partnership between mental health services and community organizations to help parents and children feel more socially connected. Being part of the community and contributing to the society are essential for the unique recovery journey of people with mental illness. Contributing to parenting of children is an important part of the recovery journey for parents with mental illness. Generally, parents with mental illness have reported that parenting has brought a sense of meaning, integrity, and normality (Perera et al. 2014), and these elements are considered crucial for recovery. Therefore, supporting parents in caring for their children and achieving their goals are essentially contributing to the recovery of people with mental illness (Maybery et al. 2015). Although recovery-oriented parenting interventions are effective in improving the well-being of families, there are currently very few recovery-oriented parenting interventions, and there is a need to develop empirically efficacious intervention models (Reupert et al. 2017).
Conclusion The bidirectional relationship between parenting and mental health is increasingly recognized by policies and mental health programs. However, it is important to extend the recognition of parenthood to those parents who do not live with their children due to reasons including custody issues, institutionalization, and incarceration. It is also important to explore gender differences in parenting for people with mental illnesses considering that a much smaller proportion of men are living with their children. As a large percentage of people with a mental illness are parents, it is important for mental health workers to consider assessing parenting needs of their clients and explore relevant parenting interventions in their routine practice. Mental health workers, including social workers, can empower parents with SMI to be more competent in their parenting, which in turn will support the recovery journey of people with mental illness. Finally, there is a need to explore this phenomenon in different cultures as our current understanding of the relationship of parenthood and mental illness is predominantly based on studies in western contexts.
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Cross-References ▶ An Overview of Social Work Approaches in Working with Families of People with Serious Mental Illness ▶ Reflection of Future Social Work Practice in Mental Health ▶ Trauma-informed Social Work Practice with Children and Youth
References Afzelius M, Ostman M, Rastam M, Priebe G (2017) Parents in adult psychiatric care and their children: a call for more interagency collaboration with social services and child and adolescent psychiatry. Nord J Psychiatry 1–8. https://doi.org/10.1080/08039488.2017.1377287 Berg-Nielsen TS, Wichstrom L (2012) The mental health of preschoolers in a Norwegian population-based study when their parents have symptoms of borderline, antisocial, and narcissistic personality disorders: at the mercy of unpredictability. Child Adolesc Psychiatry Ment Health 6:19. https://doi.org/10.1186/1753-2000-6-19 Boursnell M (2014) Assessing the capacity of parents with mental illness: parents with mental illness and risk. Int Soc Work 57:92–108. https://doi.org/10.1177/0020872812445197 Butler H, Hare D, Walker S, Wieck A, Wittkowski A (2014) The acceptability and feasibility of the Baby Triple P Positive Parenging Progreamme on a mother and baby unit: Q-methodology with mothers with severe mental illness. Arch Women’s Ment Health 17(5):455–463 Campbell L et al (2017) Severity of illness and adaptive functioning predict quality of care of children among parents with psychosis: a confirmatory factor analysis. Aust N Z J Psychiatry. https://doi.org/10.1177/0004867417731526 Campbell L et al (2012) The experiences of Australian parents with psychosis: the second Australian national survey of psychosis. Aust N Z J Psychiatry 46:890–900. https://doi.org/ 10.1177/0004867412455108 Chernomas W, Clarke D (2003) Social support and women living with serious mental illness. Project 23. Prairie Women’s Health Centre of Excellence Winnipeg, Winnipeg. ISBN 09689692-4-9 Coates D, Phelan R, Heap J, Howe D (2017) Being in a group with others who have mentall illness makes all the difference: The views and experiences of prents who attended a mental health parenting program. Child Youth Serv Rev 78:104–111 Dolman C, Jones I, Howard L (2013) Pre-conception to parenting: a systematic review and metasynthesis of the qualitative literature on motherhood for women with severe mental illness. Arch Womens Ment Health 16:173–196. https://doi.org/10.1007/s00737-013-0336-0 Ennals P, Fossey EM, Harvey CA, Killackey E (2014) Postsecondary education: kindling opportunities for people with mental illness. Asia Pac Psychiatry 6:115–119 Evenson E, Rhodes J, Feigenbaum J, Solly A (2008) The experiences of fathers with psychosis. J Ment Health 17:629–642 Gatsou L, Yates S, Goodrich N, Pearson D (2017) The challenges presented by parental mental illness and the potential of a whole-family intervention to improve outcomes for families. Child Fam Soc Work 22:388–397. https://doi.org/10.1111/cfs.12254 Goodyear M, Hill T-L, Allchin B, McCormick F, Hine R, Cuff R, O’Hanlon B (2015) Standards of practice for the adult mental health workforce: meeting the needs of families where a parent has a mental illness. Int J Ment Health Nurs 24:169–180. https://doi.org/10.1111/inm.12120 Göpfert M, Webster J, Seeman M (2004) Parental psychiatric disorder: distressed parents and their families. Cambridge University Press, Cambridge Green B, Furrer C, McAllister C (2007) How do relationships support parenting? Effects of attachment style and social support on parenting behavior in an at-risk population. Am J Community Psychol 40:96–108. https://doi.org/10.1007/s10464-007-9127-y
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L. Campbell and A. W. C. Poon
Grové C, Melrose H, Reupert A, Maybery D, Morgan B (2015a) When your parent has a mental illness: children’s experiences of a psycho-educational intervention. Adv Ment Health 13:127–138. https://doi.org/10.1080/18387357.2015.1063637 Grové C, Reupert A, Maybery D (2015b) Peer connections as an intervention with children of families where a parent has a mental illness: moving towards an understanding of the processes of change. Child Youth Serv Rev 48:177–185. https://doi.org/10.1016/j.childyouth.2014.12.014 Grové C, Reupert A, Maybery D (2016) The perspectives of young people of parents with a mental illness regarding preferred interventions and supports. J Child Fam Stud 25:3056–3065. https://doi.org/10.1007/s10826-016-0468-8 Harvey C, Killackey E, Groves A, Herrman H (2012) A place to live: housing needs for people with psychotic disorders identified in the second Australian National Survey of Psychosis. Aust N Z J Psychiatry 46:840–850. https://doi.org/10.1177/0004867412449301 Henshaw C et al (2011) Parents as patients: supporting the needs of patients who are parents and their children. Royal College of Psychiatrists, London Khalifeh H, Murgatroyd C, Freeman M, Johnson S, Killaspy H (2009) Home treatment as an alternative to hospital admission for mothers in a mental health crisis: a qualitative study. Psychiatr Serv 60:634–639. https://doi.org/10.1176/ps.2009.60.5.634 Howe D, Batchelor S, Bochynska K (2012) Prevalence of parents within an adult mental health service: census results 2008–2011. Australas Psychiatry 20:413–418 Jeffery D, Clement S, Corker E, Howard LM, Murray J, Thornicroft G (2013) Discrimination in relation to parenthood reported by community psychiatric service users in the UK: a framework analysis. BMC Psychiatry 13:120. https://doi.org/10.1186/1471-244x-13-120 Kahng S, Oyserman D, Bybee D, Mowbray C (2008) Mothers with serious mental illness: when symptoms decline does parenting improve? J Fam Psychol 22:162 Kaplan K, Solomon P, Salzer MS, Brusilovskiy E (2014) Assessing an Internet-based parenting intervention for mothers with a serious mental illness: a randomized controlled trial. Psychiatr Rehabil J 37:222–231. https://doi.org/10.1037/prj0000080 Lacey M, Paolini S, Hanlon MC, Melville J, Galletly C, Campbell LE (2015) Parents with serious mental illness: differences in internalised and externalised mental illness stigma and gender stigma between mothers and fathers. Psychiatry Res 225:723–733. https://doi.org/10.1016/j. psychres.2014.09.010 Leijdesdorff S, van Doesum K, Popma A, Klaassen R, van Amelsvoort T (2017) Prevalence of psychopathology in children of parents with mental illness and/or addiction: an up to date narrative review. Curr Opin Psychiatry 30:312–317. https://doi.org/10.1097/YCO.0000000000000341 Luciano A, Nicholson J, Meara E (2014) The economic status of parents with serious mental illness in the United States. Psychiatr Rehabil J 37:242–250. https://doi.org/10.1037/prj0000087 Marston N, Maybery D, Reupert A (2014) Empowering families where a parent has a mental illness: a preliminary evaluation of the ‘family focus’ DVD. Adv Ment Health 12:136–146. https://doi.org/10.1080/18374905.2014.11081891 Maybery D, Reupert A, Goodyear M (2015) Goal setting in recovery: families where a parent has a mental illness or a dual diagnosis. Child Fam Soc Work 20:354–363. https://doi.org/10.1111/ cfs.12084 Mok PL et al (2016) Parental psychiatric disease and risks of attempted suicide and violent criminal offending in offspring: a Population-Based Cohort Study. JAMA Psychiatry 73:1015–1022. https://doi.org/10.1001/jamapsychiatry.2016.1728 Montgomery P, Brown S, Forchuk C (2011) A comparison of individual and social vulnerabilities, health, and quality of life among Canadian women with mental diagnoses and young children. Women’s Health Issues 21:48–56. https://doi.org/10.1016/j.whi.2010.07.008 Montgomery P, Tompkins C, Forchuk C, French S (2006) Keeping close: mothering with serious mental illness. J Adv Nurs 54:20–28. https://doi.org/10.1111/j.1365-2648.2006.03785.x Morgan VA et al (2011) People living with psychotic illness. Mental Health Publications, Canberra, p 2010 Mowbray C, Bybee D, Hollingsworth L, Goodkind S, Oyserman D (2005) Living arrangements and social support: effects on the well-being of mothers with mental illness. Soc Work Res 29:41–55. https://doi.org/10.1093/swr/29.1.41
22
Parenting Challenges for Persons with a Serious Mental Illness
473
Nelson G, Laurior W (2010) Housing for people with serious mental illness: approaches, evidence and transformative change. J Sociol Soc Welf 123:123–146 Nicholson J, Biebel K, Katz-Leavy J, Williams V (2002) Center for Mental Health Services. Mental Health, United States. In: Manderscheid RW, Henderson MJ (eds) DHHS Pub No. (SMA) 3938. Rockville, Maryland: Substance Abuse and Mental Health Services Administration, Chapter 10, pp. 120–137 Nicholson J, Hinden BR, Biebel K, Henry AD, Katz-Leavy J (2007) A qualitative study of programs for parents with serious mental illness and their children: building practice-based evidence. J Behav Health Serv Res 34:395–413 Nilsson S, Gustafsson L, Nolbris MJ (2015) Young adults’ childhood experiences of support when living with a parent with a mental illness. J Child Health Care 19:444–453. https://doi.org/ 10.1177/1367493513519296 Nyer M, Kasckow J, Fellows I, Lawrence E, Golshan S, Solorzano E, Zisook S (2010) The relationship of marital status and clinical characteristics in middle-aged and older patients with schizophrenia and depressive symptoms. Ann Clin Psychiatry 22:172–179 Ostler T, Ackerson B (2009) Parental chronic mental illness. In: Benson MMHJB (ed) Diseases and disorders in infancy and early childhood. Academic, Amsterdam, pp 293–304 Perera DN, Short L, Fernbacher S (2014) There is a lot to it: being a mother and living with a mental illness. Adv Ment Health 12:167–181. https://doi.org/10.1080/18374905.2014.11081895 Pfeiffenberger AS, D’Souza AJ, Huthwaite MA, Romans SE (2016) The well-being of children of parents with a mental illness: the responsiveness of crisis mental health services in Wellington, New Zealand. Child Family Social Work 21:600–607. https://doi.org/10.1111/cfs.12186 Poon WC, Lee C, Mark L (2014) An exploratory study of the profile and perceived needs of people with mental illness who are caring for young children in Singapore. Soc Work Ment Health 12:174–193. https://doi.org/10.1080/15332985.2013.851058 Power J, Cuff R, Jewell H, McIlwaine F, O’Neill I, U’Ren G (2015) Working in a family therapy setting with families where a parent has a mental illness: practice dilemmas and strategies. J Fam Ther 37:546–562. https://doi.org/10.1111/1467-6427.12052 Power J, Goodyear M, Maybery D, Reupert A, O’Hanlon B, Cuff R, Perlesz A (2016) Family resilience in families where a parent has a mental illness. J Soc Work 16:66–82. https://doi.org/ 10.1177/1468017314568081 Price-Robertson R, Reupert A, Maybery D (2015) Fathers’ experiences of mental illness stigma: scoping review and implications for prevention. Adv Ment Health 13:100–112 Rasic D, Hajek T, Alda M, Uher R (2014) Risk of mental illness in offspring of parents with schizophrenia, bipolar disorder, and major depressive disorder: a meta-analysis of family highrisk studies. Schizophr Bull 40:28–38. https://doi.org/10.1093/schbul/sbt114 Reupert A, Maybery D (2014) Practitioners’ experiences of working with families with complex needs. J Psychiatr Ment Health Nurs 21:642–651. https://doi.org/10.1111/jpm.12149 Reupert A, Maybery D (2015) Stigma and families where a parent has a mental illness. In: Parental psychiatric disorder: distressed parents and their families. Cambridge University Press, Cambridge, pp 51–60 Reupert A, Maybery D (2016) What do we know about families where parents have a mental illness? A systematic review. Child Youth Serv 37:98–111. https://doi.org/10.1080/ 0145935X.2016.1104037 Reupert A, Maybery D, Nicholson J (2015) Towards the development of a conceptual framework. In: Reupert A, Maybery D, Nicholson J, Seeman MV, Göpfert M (eds) Parental psychiatric disorder: distressed parents and their families, 3rd edn. Cambridge University Press, Cambridge, pp 1–15. https://doi.org/10.1017/CBO9781107707559.002 Reupert A, Price-Robertson R, Maybery D (2017) Parenting as a focus of recovery: a systematic review of current practice. Psychiatric Rehabil J 39:1–9. https://doi.org/10.1037/ prj0000240 Risley-Curtiss C, Stromwall L, Hunt DT, Teska J (2004) Identifying and reducing barriers to reunification for seriously mentally ill parents involved in child welfare cases. Fam Soc 85:107–118 Sadler MS, Meagor EL, Kaye KE (2012) Stereotypes of mental disorders differ in competence and warmth. Soc Sci Med 74:915–922
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L. Campbell and A. W. C. Poon
Sanders MR, Kirby JN, Tellegen CL, Day JJ (2014) The Triple P-Positive Parenting Program: a systematic review and meta-analysis of a multi-level system of parenting support, Clin Psychol Rev 34(4):337–357 Savvidou I, Bozikas V, Hatzigeleki S, Karavatos A (2003) Narratives about their children by mothers hospitalized on a psychiatric unit. Fam Process 42:391–402 Schmidt L, Monaghan J (2012) Intensive family support services: a consultative model of education and support. Am J Psychiatr Rehabil 15:26–43. https://doi.org/10.1080/15487768.2012.655226 Schrank B, Moran K, Borghi C, Priebe S (2015) How to support patients with severe mental illness in their parenting role with children aged over 1 year? A systematic review of interventions. Soc Psychiatry Psychiatr Epidemiol 50:1765–1783. https://doi.org/10.1007/s00127-015-1069-3 Seeman M (2010) Parenting issues in mothers with schizophrenia. Curr Women’s Health Rev 6:51–57 Seeman M (2012) Intervention to prevent child custody loss in mothers with Schizophrenia. Schizophr Res Treat 1–6. https://doi.org/10.1155/2012/796763 Shor R, Kalivatz Z, Amir Y, Aldor R, Lipot M (2015) Therapeutic factors in a group for parents with mental illness. Community Ment Health J 51:79–84. https://doi.org/10.1007/s10597-014-9739-2 Stambaugh LF, Forman-Hoffman V, Williams J, Pemberton MR, Ringeisen H, Hedden SL, Bose J (2017) Prevalence of serious mental illness among parents in the United States: results from the National Survey of Drug Use and Health, 2008–2014. Ann Epidemiol 27:222–224. https://doi. org/10.1016/j.annepidem.2016.12.005 Stanbridge R, Burbach F (2007) Developing family-inclusive mainstream mental health services. J Fam Ther 29:21–43 Thanhäuser M, Lemmer G, de Girolamo G, Christiansen H (2017) Do preventive interventions for children of mentally ill parents work? Results of a systematic review and meta-analysis. Curr Opin Psychiatry 30:283–299 Thomas L, Kalucy R (2003) Parents with mental illness: lacking motivation to parent. Int J Ment Health Nurs 12:153–157. https://doi.org/10.1046/j.1440-0979.2003.00282.x Trondsen MV, Tjora A (2014) Communal normalization in an online self-help group for adolescents with a mentally ill parent. Qual Health Res 24:1407–1417. https://doi.org/10.1177/ 1049732314547708 van der Ende PC, van Busschbach JT, Nicholson J, Korevaar EL, van Weeghel J (2016) Strategies for parenting by mothers and fathers with a mental illness. J Psychiatr Ment Health Nurs 23:86–97. https://doi.org/10.1111/jpm.12283 Vigod S, Dennis C, Kurdyak P, Cairney J, Guttmann A, Taylor V (2014) Fertility rate trends among adolescent girls with major mental illness: a Population-Based Study. Pediatrics 133: e585–e591. https://doi.org/10.1542/peds.2013-1761 Waghorn G et al (2012) ‘Earning and learning’ in those with psychotic disorders: the second Australian national survey of psychosis. Aust N Z J Psychiatry 46:774–785. https://doi.org/ 10.1177/0004867412452015 Wansink HJ, Janssens JMAM, Hoencamp E, Middelkoop BJC, Hosman CMH (2015) Effects of preventive family service coordination for parents with mental illnesses and their children, a RCT. Fam Syst Health 33:110–119. https://doi.org/10.1037/fsh0000105 Westad C, McConnell D (2012) Child welfare involvement of mothers with mental health issues. Community Ment Health J 48:29–37. https://doi.org/10.1007/s10597-011-9374-0 Widemalm M, Hjärthag F (2015) The forum as a friend: parental mental illness and communication on open Internet forums. Soc Psychiatry Psychiatr Epidemiol 50:1601–1607. https://doi.org/ 10.1007/s00127-015-1036-z Wolpert M, Hoffman J, Martin A, Fagin L, Cooklin A (2015) An exploration of the experience of attending the Kidstime programme for children with parents with enduring mental health issues: Parents’ and young people’s views. Clin Child Psychol Psychiat 2(3):406–418 Zipursky R, Reilly T, Murray R (2013) The myth of schizophrenia as a progressive brain disease. Schizophr Bull 39:1363–1372. https://doi.org/10.1093/schbul/sbs135
The Role of Religious Institutions in Mental Health Rehabilitation and Recovery in India
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Srinivasan Chokkanathan, H. Sobhana, and Aravindhan Natarajan
Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Religiosity, Religious Institutions, and Mental Health Rehabilitation . . . . . . . . . . . . . . . . . . . . . . . . . Faith Healing: What Is It and Why Is It Preferred? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Role of Religious Institutions in Mental Health Care . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Religious Healing Through Mediators of God: Faith Healers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Healing Through Collaboration Between Faith-Based Institutions and Mental Health Institutions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Religious Healing: Empirical Evidence and Mechanisms Underlying Change . . . . . . . . . . . . All Is Not Well: Faith Healing and Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Workers and Networking with Religious Institutions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
In India, religious institutions and religious healing are pivotal in the treatment of mental illness and rehabilitation. Unfortunately, the discourse on religious healing and the role of religious institutions in mental health care are scarce in India. In S. Chokkanathan (*) Department of Social Work, National University of Singapore, Singapore, Singapore e-mail: [email protected] H. Sobhana Department of Psychiatric Social Work, Lokopriya Gopinath Bordoloi Regional Institute of Mental Health, Tezpur, India e-mail: [email protected] A. Natarajan Department of Criminal Justice, Social Work and Legal Specialties, School of Social Justice, University of Toledo, Toledo, OH, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_17
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this chapter, we critically analyze the nature of religious healing from the perspective of two major religions in India, Hinduism and Islam. Subjective explanatory models that attribute mental illness to supernatural causes, stigma toward mental illness, and dearth of psychiatric services propel people with mental illness to avail services from religious institutions and faith healers. A few studies have documented that faith healing and religious institutions are supportive and provide a positive environment in which healing takes place. Furthermore, collaboration between psychiatric care and religious care appears to result in a holistic care for persons with mental illness. On the other hand, seeking help from religious institutions was found to delay psychiatric treatment, and faith healers were reported to have resorted to inhumane healing methods. Nonetheless, professional experiences of psychiatric social workers indicate that religious institutions are potential avenues of resources for micro and macro practices. Keywords
Faith healers · Trance · Temples · Dargahs
Introduction Religiosity and religious institutions play a pivotal role in the care and rehabilitation of persons with mental health problems – much more so in countries such as India, characterized by an acute dearth of formal mental health services (Saxena et al. 2007). In India, a national level survey on mental health problems placed the lifetime and current mental morbidities rates at 13.7% and 20.6%, respectively (Gururaj et al. 2016). By implication, an estimated 150 million Indians are in need of mental health care at any given point of time. Studies from India have shown that religious help seeking is widespread and it is the first preference of help among clients with mental health problems (Sudhinaraset et al. 2013; Shankar et al. 2006; Thirthalli et al. 2016). However, information is limited on the specific roles that religiosity or religious institutions play in mental health rehabilitation in India. Considering the central role that religion plays in the lives of the Indians in general (Aruna 2018; Chokkanathan 2013; Saoji et al. 2017) and those with mental illness in particular (Kishore et al. 2011; Padmavathi et al. 2005), it is imperative to pursue a greater understanding of the role that religious healing and institutions play in facilitating recovery from mental illness. In this chapter under the nonmedical model rubric, we focus specifically on traditional and faith healing practices. Mental health care and rehabilitation denote services provided to individuals with mental health problems, services that draw on community resources to facilitate people to deal with mental illness (Fallot 2001). Further, religiosity as subjective experiences and as an institutionalized practice are focused on. Religiosity through the subjective lens focuses on supernatural explanations of mental health problems and help-seeking behavior from traditional
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religious healing institutions. Religiosity as an institution refers to the shared beliefs or rituals and involves a community of believers, specifically in the context of mental health problems. Traditional and faith healing practices denote “healers who explicitly appeal to the spiritual, magical, or religious explanations for disease and distress” (Nortje et al. 2016, p. 155). Healing practices involve sacred rituals, pilgrimages, ceremonies, talismans, and prayers to treat mental illness. As such, the other forms of alternate traditional healing methods that use physical, humoral treatments of mental illness have been excluded. In this chapter, we critically analyze the religious healing methods for treating mental illness in India. We set off describing the reasons for and trends in religious healing methods in India. Following this, we focus on how various religious institutions play a role in mental health care and elucidate the mechanisms associated with positive experiences of the clients with mental illness. Furthermore, in a bid to provide a well-rounded critique, we also focus on the deleterious mental health effects of religiosity and religious institutions. Finally, based on experiences of psychiatric social workers in India, we describe how psychiatric social workers and religious institutions collaborate to provide mental health care in India.
Religiosity, Religious Institutions, and Mental Health Rehabilitation Faith Healing: What Is It and Why Is It Preferred? In India, a substantial proportion of persons with mental illness do not either receive any care or get improper/inadequate care. Studies show that between 83% (Gururaj et al. 2016) and 95% (Patel et al. 2016) of persons with mental health problems do not avail medical treatment. Two primary sets of factors appear to hamper medical service utilization and promote religious service use. The first rests on the supply side, wherein there is an acute shortage of mental health resources and professionals both in urban and rural areas (Kohn et al. 2004; Government of India 2014; Thirunavukarasu 2011). The World Health Organization estimates that in India, there are 0.301 psychiatrists, 0.166 nurses, 0.047 psychologists, and 0.033 mental health social workers per 100,000 population. In other words, there are about 5000 psychiatrists for 100 million people suffering from common mental illnesses. Furthermore, there are only 43 government-run underresourced mental hospitals which serve a large population of 1.2 billion (Bishoni et al. 2017). Mental health-care services are hampered by accessibility issues or poor service mainly due to inadequate training of mental health professionals (Cowan et al. 2012) and stigma and discrimination exhibited by mental health professionals toward clients with mental illness (Jugal et al. 2007; Shidhaye and Kermode 2013; Sreevani and Revathi 2012). On the consumer side, explanatory models of mental illness (Kleinman 1980) prevalent in a specific community and expounded by the individual and family appear to result in the preference to nontraditional help-seeking services such as services provided by faith healers and religious institutions. Subjective beliefs and
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explanations about the etiology, course, and prognosis of mental illness direct individuals to procure help from specific services. Culture plays a vital role in mental health perceptions, identification of mental illness, and use of mental health services. Belief in supernatural causation of mental health problems is one of the primary factors that underlie seeking help for mental health problems from religious sources. An increasing body of research in India suggest social causes, supernatural forces, spirit possession, curse, bad deeds, black magic, and misdeeds in the past life (karma) as popular explanations for mental illnesses (Gururaj et al. 2016; Kar 2008; Kate et al. 2012). In a study on the causation of mental illness among those with mental illness, about 65% of them attributed it to supernatural causations. The primary type of supernatural causation was sorcery/witchcraft (JaaduTona). This was followed by planetary/celestial influences (GrahNakchatra), bad deeds in previous life (Karma), spirit intrusion (Opari Kasar), evil spirits (Buri Atma), ghosts (Bhoot-Pret), and divine wrath (Devi Devta Prakop). Overall, about 70% of the sample endorsed their illness to one of the above stated causes, and about 40% attributed their symptoms to multiple causes (Kate et al. 2012). Ram et al. (2016) reported that high levels of paranormal beliefs influenced illness perception. In yet another study, about 82% of persons with mental illness reported that their mental illness was due to supernatural causation (Kar 2008). Persons with mental illness and their family members are highly stigmatized and discriminated in Indian society (Jadhav et al. 2007). Qualitative analysis revealed that depressive symptoms were perceived as socially disadvantageous as these may affect marriage and social status (Raguram et al. 1996). Families and individuals make concerted efforts to conceal their mental illness, despite the distress it causes. Persons with mental illness are referred to in derogatory names and perceived by the society as nuisance, weak, and untidy (Gururaj et al. 2016). The dearth of psychiatric care services, personal explanatory models of mental illness, and stigma toward mentally ill persons foster help seeking from alternate traditional sources of care such as those provided by religious institutions. Most individuals perceive mental illness as abnormal but don’t consider it as part of themselves. Instead they attribute it to spiritual factors, which aligns with their community’s understanding of mental illness (Saravanan et al. 2008). Therefore, it is quite common for Indians to resort to faith healers and religious institutions (Srinivasan and Thara 2001; Raguram et al. 2002), and these healing methods typically complement medical interventions. Several studies had reported that religious interventions are a first source of help seeking among persons with mental illness in India (Kar 2008). Among 229 respondents with mental illness, Lahariya et al. (2010) reported that 69% of them had first sought help from faith healers. A meager 9.2% had reported that they first contacted a psychiatrist. Campion and Bhurga (1997) found that among 198 consecutive psychiatric patients attending a hospital in Tamil Nadu, South India, 89 (45%) had attended between 1 and 15 sessions conducted by either Hindu, Muslim, or Christian healers. Consultations with faith healers were higher among respondents with major mental health problems (schizophrenia and delusional disorders) in comparison to other forms of mental illness.
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Religious healings take place in temples, churches, and mosques (Jain and Jadhav 2009; Khandelwal et al. 2004). Interventions range from yoga and meditation, seeking help and advice from religious-based faith healers, to performing rituals in a religious site (Sax 2009, 2011). Kate et al. (2012) reported that among 76 respondents with mental health problems, 46% of them considered prayer to be sufficient to cure their mental illness. Another 1 out of 10 respondents opined that magicoreligious practices would reduce the symptoms of mental illness. At the behavioral level, 63% of the respondents had prayed during episodes of mental illness and 25% of them had resorted to magico-religious practices. In sum, both service factors and consumer-related factors contribute to the use of religious healing methods in mental health care and rehabilitation. Belief in supernatural causes and stigma toward mental illness plays a prominent role in seeking help from faith healers and religious institutions.
Role of Religious Institutions in Mental Health Care In this segment based on local studies that have used ethnographic and anthropological methods, we detail the different roles that religious institutions play in mental health care and rehabilitation. In India, village and region have their own deities, beliefs, and specific cultural explanation of mental illness. It is not feasible to provide a full coverage of these wide arrays of beliefs, and therefore the information provided is confined to two major religions, Hinduism and Islam (for more information on Islamic perspective, refer to ▶ Chap. 19, “Mental Health and Social Work: The Islamic Perspectives”). Hinduism stipulates that there are four dimensions in life: Dharma, Kama, Artha, and Moksha (Wig 1999). Dharma, the righteousness dimension, involves leading a virtuous life and fulfilling religious duties and charity deeds. Kama, the biological dimension, involves fulfillment of biological needs and sensual pleasures. Artha, the social dimension, involves pursuit of wealth and taking care of family. Moksha, the spiritual dimension, signifies liberation from worldly bondage and unifying with Brahman, a supreme being without life or form that pervades everything both animate and inanimate (Bhagavad-Gita translated by Easwaran 1985). Hinduism stipulates that mental health is achieved through the harmony of these four dimensions.
Religious Healing Through Religious Environment Religious institutions provide a serene environment that facilitates a sense of security and well-being in individuals with mental health problems or stress. The defining feature in this type of healing is the absence of a healer. The healing power associated with these institutions may be inherent in the site itself, rather than in the faith healer or any medicines provided at the site. Usually the religious institution has a legend, and its popularity is spread through word of mouth. Halliburton (2003) in his study of temple healing in the state of Kerala, South India, refers the temple healing as a “pleasant process of treatment.” This describes the aesthetic aspects of
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healing, such as living in the soothing, pleasant, and spiritual environment of the healing temples. The temple environment, the author asserts, does not focus on complete remittance of the mental health problem, but rather bolsters individuals’ coping with mental health problems. Another example for the healing environment is documented in the temple for Muthusamy (name of the legend) situated in the state of Tamil Nadu, South India (Raguram et al. 2002). The locals assert that at the very end of his life, Muthusamy was able to cure physical and mental health problems of individuals by merely touching them. After his death, the villagers constructed a temple over his tomb. Through word of mouth, the popularity of the temple spread, and it is quite common for persons with mental illness and their family members to reside there. There are no specific ceremonies or interactions with a religious leader (priest). Individuals with mental health problems are encouraged to participate in the simple day-to-day activities such as gardening or attending the daily prayers, which are usually of less than 15 minute duration. Going into trance while residing in religious institutions such as temples and Dargahs is also another means through which individuals attempt to gain control over their mental health problems. In North India, there is a sect called Mahanubhavpanth, which is associated with spirit possession and healing practices. The term “Mahanubhav” roughly translates into “one who has a great experience” (Feldhaus and Tulpule 1992). The central feature of Mahanubhav temples is their emphasis on asceticism, non ritualistic worship, and absence of idols. In fact, Mahanubhav temples do not have priests (pujaris) (Colas 2003). The origin of Mahanbhav’s healing practices is long associated with providing residence to people with various types of afflictions, particularly spirit-related afflictions called baher cha dukkha (Skultans 1991). “Baher cha” (literally means “of/ from the outside”) refers to forces of the supernatural or spirit realm such as ghosts and spirits. Persons who visit Mahanubhav temples believe that their baher cha problems cannot be treated by doctors because they (problems) are caused by black magic. The afflictions that they suffer from are part of dukkha, meaning suffering, pain, or distress. In order to draw the evil forces out of one’s body, they have to stay in the temple for 40 days (Ranganathan 2015). During their stay, they pray to God or participate in arathi (prayers offered to God). During these prayers, they enter into a trance, which is one of the most important means of achieving healing. The function of trance serves two main purposes. Firstly, it is a vital indicator that the illness or afflictions are due to black magic and not a result of natural causes. Skultans (1991) explains that the experience of trance irrevocably embeds the problem in that supernatural arena. Secondly, based on the firm understanding that their mental health problems are not due to natural causes, the worshippers enter into repeated trance states during their stay in the temple to draw out their illness. Healing in religious places is not confined to temples alone; they do occur in Dargahs (shrines built over the graves of Sufi Muslim saints) as well. Dargahs are typically local sites in which ritual healing practices dating back several centuries occur (Bihari 1962). One such Dargah is the Husain Tekri Dargah, famous among persons with various types of ailments including mental illness. Healing in this
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religious institution can be explained not so much in terms of specific ritual process, but in the absence of a structured ritual process. By staying in the Dargah, the worshipers crafted their own unique but shared experiences of healing mental illness. For instance, in the absence of a designated traditional healer (expert), the worshipers were able to come to terms with their mental health problems through conglomerating with fellow worshipers and learning from each other’s discourses and experiences about the legends of the Dargah and its potency in solving afflictions (Bellamy 2008, 2011). Although these institutions belong to different religious denominations and differ on their healing practices, there are many commonalities. All of these religious institutions believe that mental health problems are not a part of the individual but occur due to outside supernatural forces. Another distinctive feature that cuts across these religious institutions is the unorganized activities that provide flexibility for people with various illnesses. The absence or minimal involvement of faith healers eliminates expert-client relationships and places greater responsibility on the individuals to understand and pursue religious means in the healing process.
Religious Healing Through Mediators of God: Faith Healers The use of traditional and folk healers as sources for healing mental illnesses is centuries old. The inherent principle in the healing practices of faith healers is invoking the cosmic and supernatural forces with some minimal use of medicinal substances. Irrespective of religion, the faith healers (priest of the temple, father of the church, or the imam of the mosque) heal through religious prayers and rituals. Most of the times, the faith healers prescribe rituals like fasting or a special diet, and perform prayer for a specific period of time (Padmavathi et al. 2005). The main goal of the faith healers is to ward off the demonic spiritual powers residing within the person. They do this through a variety of means. Faith healers prescribe gemstones, amulets made up of copper or iron (ta’wiz in the Islamic tradition and tabiz in the Hindu tradition), and sacred ashes (vibhuti/bhasman/bhabhut), which prevent negative spirits from entering the body (Jones and Ryan 2007; Sax 2009). Typically the rituals are simple such as providing offerings, making wishes (mannat mangna), drinking tirthum (holy water), tying sacred threads, offering lemons for wish fulfillment, wearing locked chains (baba kibedi), performing pradakshina (circumambulation), and making an application (azir) (Gupta et al. 2014; Saglio-Yatzimirsky and Sébastia 2015). The faith healers also take on the role of diviners and sorcerers (Gupta et al. 2014). As a diviner, the faith healer invokes and hosts a deity or spirit to mediate between the physical and the metaphysical world. Once the healer is possessed by the deity/spirit, the persons with mental health problems can communicate to the spirit/deity through the faith healer to gain insight and means to resolve their problems. The healers in the possession state are believed to gain healing powers through a divine power and hence are highly revered. Another type of faith healers is the sorcerer who is skillful in suffusing or elimination of evil spirits which are
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considered to cause mental illness. Usually the exorcism takes place through mantras (chanting of sacred texts) and invoking God, wherein elaborate rituals are conducted to the beat of drums. For example, in Pattan Valley of Lahaul, Himachal Pradesh, a festival is exclusively organized to drive away evil spirits. During the festival, the priest moves within the village with a burning stick in his hand, meant to drive away evil spirits (Gupta et al. 2014). In his observation of healing practices, Kakar (1983) notes that most persons with disorders are unaware of the rituals in a healing session. Kakar (2003) also notes that the unfathomable and undisputable faith of the people with mental health problems in the divine powers of the healer is the principal reason for positive outcomes. The aura and authority of healers, based on the miraculous healings that they had performed, instill a sense of confidence in people with mental illnesses. Most of the faith healers belong to the same clan and share the local belief. They also inherit the right to practice, and hence faith healing remains a prerogative of a few families. By implication, the healing powers of faith healers are not mere decades old, but stories of deeds that have been passed down from several generations, which usually instill irrevocable faith in the minds of persons with mental health problems.
Healing Through Collaboration Between Faith-Based Institutions and Mental Health Institutions Given the diametrically opposite beliefs and approaches toward mental illnesses, it is quite common for the medical and nonmedical models to be in conflict or work in isolation (Levin 2016). On one hand, mental health professionals might be ignorant about or prejudiced against religious beliefs and practices. Mental health professionals might ignore religious dimensions in favor of biological or psychosocial approaches. This might be either due to mistrust in religious practices or due to religious knowledge derived from the pathological religious symptoms of their clients. On the other hand, religious workers may have differing views about mental illness and be disinclined to participate in nonreligious interventions, such as medical treatments. Alongside these conflicts and strife exists another facet, which is buoyant and hopeful. This narrative unpacks the collegial relationship between religion/faith and medicine/health care, and how these two link with each other in providing mental health care. Faith healers and religious institutions are the most convenient to collaborate with and the most inclusive of other healing systems (Halliburton 2003; Sood 2015). Typically, religious healing practices involve benign substances such as sacred ash or tirthum (sacred water) or prayer that do not interfere with other forms of healing practices prescribed by other health systems. For instance, prayer, which is fundamental to religious healing, is noninvasive; prayer does not involve physical intrusion and has been found to be extremely beneficial to people with mental illness. In fact, mental health professionals acknowledge the inevitability of prayers in the
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healing process (Ramakrishnan et al. 2014). People with mental illness also had opined that prayer is sufficient to heal them (Triveni et al. 2017). There are numerous advantages of collaborating with faith healers and religious institutions (Kirmayer 2012). First, an apparent advantage is the immense knowledge of the healers about the community and its resources, as well as awareness about the familial and kinship ties that can be used to negotiate treatment adherence and decisions (Chakravarthy 2015). Faith-based healers and religious institutions have direct access to the communities and are well aware of the prevailing attitudes and norms about mental illness. Second, religious institutions can disseminate values of acceptance and reassurance. Because they are well entrenched in the community, they can spread awareness in a way that the locals can understand and diminish stigma toward mental illness (Khandelwal et al. 2004). Third, because of accessibility, people visit religious institutions for a specific period, sometimes even on a daily basis; therefore, the likelihood of them dropping out of the treatment might be low. Fourth, inter-collaboration between modern and religious healing would also result in holistic care – which is emphasized in modern medicine. Freeman and Motsei (1992) have propounded incorporation, collaboration/cooperation, and total integration as collaboration models between modern and religious healing. In the incorporation model, faith healers are assimilated into the primary health-care system as first-line practitioners. In the collaboration/cooperation model, practitioners from the respective systems retain their healing practices with mutual respect and engage in referrals where appropriate. Total integration encompasses a blended care involving components from religious and modern practices. The discourse on types of collaboration models has been relegated, and the focus is on finding the best way through which modern and religious healing can interface to bridge treatment gap, given that both are parallel systems (Hansdak and Paulraj 2013). Shields et al. (2016) report a collaboration model practiced in Mira Datar Dargah in North India. The Dargah is famous for healing mental health problems presumed to be caused by supernatural forces. As part of the rural community mental health program, through building mutual trust and on the assurance that the Dargah will not be closed, a psychiatric outpatient clinic was set up within the premises of the Dargah. The collaboration can be subsumed under the collaborative/cooperative model wherein each system is independent to follow their own practices. Clients who visit the faith healers can be referred to the psychiatric clinic. Also, if the clients believe in spiritual rituals, the mental health professionals can refer them to the faith healers. Since the inception of the collaborative model, the clients receive both medication and religious healing in the Dargah. Although modern and faith-based systems in India can function in parallel, when working together they provide more holistic care through fulfilling the client’s wish for treatment from both systems (Jain and Jadhav 2009). Research conducted on this dava-dua (medicine-prayer) program shows that both systems are not totally incompatible, and in a climate of acceptance, modern and traditional healing systems can complement each other (King and Homsy 1997; Shields et al. 2016).
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In a South Indian temple called Gunaseelam, people with minor mental illness visit the temple to cure their illness (Saglio-Yatzimirsky and Sébastia 2015). Within the premise of the temple, a community mental health center has been established. People with mental illness and their family members are required to stay there for 48 days, take medications, and participate in religious activities such as puchai (prayer), rituals, and chevvai occupational therapy (temple work such as plucking leaves and flowers for garland and serving free food). Compared to other religious institutions that attribute mental illness to evil forces, in this temple, mental illness is considered as general weakness, darkness, social tension, and bodily changes. Therefore, the treatment does not use trance or possession but involves invoking sacred forces through a combination of religious activities to revitalize self. The treatment is a combination of tirttam, medicine, and prayer (Saglio-Yatzimirsky and Sébastia 2015). Although the mode of treatment differs, the model remains the same, collaborative/cooperative model.
Religious Healing: Empirical Evidence and Mechanisms Underlying Change Studies on the effectiveness of religious methods in healing mental health are scarce. Mental health and illness are culture-specific and not universally valid (Nortje et al. 2016). In religious healing, very rarely an attempt is made to distinguish between mind and body, which is a central feature in biomedical care (Csordas et al. 2008). Mental health outcomes are indicated by emotional wellbeing and socio-familial harmony rather than by an absence of psychopathology (Pakaslahti 2008; Ranganathan 2015). With few exceptions (Halliburton 2003; Raguram et al. 2002), there are no studies on mental health outcomes related to faith healing practices in India. The findings are derived from studies using ethnographic and anthropological methods, wherein the main focus has been the subjective experiences of seeking help. Furthermore, the positive effects of faith healing are attributed to mechanisms widely prevalent in counselling and psychotherapy such as placebo, catharsis, non threatening environment, and the relationship between the healer and the sufferer. However, the findings provide only partial insight, because of the lack of focus on the “faith component.” Fowler (1996, p. 21) defines faith as “a dynamic, evolving pattern of the ways our soul find and make meaning of our lives. . .”. For without faith, all these rituals are meaningless in the healing process (Krause 2006). In general, persons with mental illness report many positive changes while staying in religious institutions or seeking help from faith healers. In a study comparing religious healing with allopathic and Ayurvedic treatments among 100 persons with mental illness in Kerala, a southern state in India, Halliburton (2003) reported that across the three treatments, there was a modest improvement in the symptoms of mental illness, even though there was no absolute cure. The small sample size, dropouts during follow-up phase, severe inter-rater bias, and informal psychiatric diagnosis are some methodological limitations that render the results suspect. In one
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of the very few studies using a formal psychiatric diagnosis and standardized assessment, individuals with mental health problems (n = 31) and their family members staying in a temple reported a marked improvement in psychiatric symptoms. These reports were further augmented by a pre-post score improvement on thinking disturbance, hostile suspiciousness, anxiety depression, and withdrawal retardation as measured by the brief psychiatric rating scale. Although the exact mechanisms underlying this statistically significant reduction in symptoms were unknown, the authors had hypothesized that the culture of staying in religious institutions and a non threatening atmosphere might have effected these changes. Of note, none of the respondents had reported taking medication or seeking medical help (Raguram et al. 2002). In addition to the reduction in psychiatric symptoms, studies have also documented the salubrious socio-familial effects of religious healing. Given that families tend to stay with persons with mental illness, marked improvement in interpersonal relationships has been often reported (Kakar 2003; Saglio-Yatzimirsky and Sébastia 2015). Religious norms and environment encourage peaceful resolution of interpersonal misunderstandings and prohibit emotional outbursts directed toward others. Family members and persons with mental illness are accommodative to each other’s needs and attempt to have better control over their negative emotions. The low cost associated with religious healing has resulted in restorative living wherein the resources used for treatment are diverted for taking care of other familial expenses (Saglio-Yatzimirsky and Sébastia 2015). Emotional well-being in terms of diminished “bad thoughts,” increase in positive outlook, enhanced willpower, and feelings of goodness and peacefulness have also been reported (Sébastia 2007; Davar and Lohokare 2009; Shields et al. 2016). Interestingly, persons with mental illness also believe that because it (mental illness) is due to evil spirits, there is no complete cure and it will fluctuate. Therefore there is a need to engage in religious activities frequently to deal effectively with the problem (Ranganathan 2015). Bolstering of faith, acknowledgment and affirmation of shared beliefs, symbolism and dramatic quality of rituals similar to psychodrama (Casson 2004) are some other factors that are hypothesized to play a role in the healing process (Kleinman 1980; Jadhav 1995). Irrespective of the healing context, empowerment of the person who is healed takes central stage and language; interpersonal communication between the healer and the sufferer assumes great significance (McGuire 1983). Religious healers use language such as “light and dark, pain and happiness, higher and lower worlds, good and evil, deva or pisasu (God or demon), birth or rebirth, and bad deeds or good deeds,” which enables expression of emotions and feelings (Davar and Lohokare 2009). Through language, the healer inculcates an awareness about higher powers and a larger purpose of healing. Through situating the problem at supernatural realm, the healer not only places reason outside the individual but also assures the individual of support from transcendental forces and predisposes a person to be healed, similar to placebo (Kleinman 1980). In India, irrespective of the religious orientations of these institutions, rituals usually comprise of private and mostly shared activities involving song, drum beats, and music (Pakaslahti 2001). Display of intense emotions which might be considered as
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abnormal in everyday life is considered as signs of union with or separation from evil forces and plays a central role in shrines and Dargahs (Ranganathan 2015). This display of emotions is akin to catharsis in psychotherapy (Davar and Lohokare 2009). Curative services for mental illness do not occur in isolation. People with mental health problems and their family members interact and participate in rituals and activities with other worshipers, which in turn increases social connectedness and diminishes the social stigma or isolation due to mental illness (Pakaslahti 1998). The temple environment is positive through being a nonjudgmental and non threatening environment that is optimistic, informal, and in some instances humorous (Kakar 1983, 2003). Treatments are usually family and group oriented where disclosure of feelings and emotional stress takes place in an emotionally protective group environment. The group members also provide suggestions and actively participate in the healing process of self and other group members (Pakaslahti 1998, 2008). Help seekers are expected to stay for a specific period of time. This helps in environmental modification and also minimizes dropout rates. By making the residential facilities available at a nominal or no cost, religious institutions perform the role of a short-term residential care facility, providing much needed respite and succor for the family members.
All Is Not Well: Faith Healing and Mental Illness Faith healing has its own set of limitations. In a Dargah named Erwadi, 41 persons with mental illness were kept chained, and they perished in an accidental fire (Selvaraj and Kuruvilla 2001). This provoked a national outrage and resulted in monitoring of religious institutions that serve people with mental illness. Although the governmental measures have resulted in some positive changes, still much remains to be done (Trivedi 2001). Moreover, faith healers engaging in inhuman treatment practices such as flogging, branding, and slapping have also been reported (Kar 2008). Preference for traditional healers considerably prolongs the time taken to avail psychiatric help. This time lag exacerbates symptoms of illness and results in poor prognosis (O’Callaghan et al. 2010). Furthermore, religious healing is not always economical. Anecdotal evidences are abound with instances of people with mental illness spending exorbitant amounts and in some instances also selling their assets to defray costs. Despite these limitations, faith healing and religious institutions can play a role in the effective psychosocial rehabilitation of persons with mental illness if their services are utilized by mental health professionals in a creative and meaningful way.
Social Workers and Networking with Religious Institutions In this segment, we discuss how psychiatric social workers utilize religious centers and affiliated organizations in the psychosocial rehabilitation and recovery of persons with mental illnesses. Most of the religious organizations in India that
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are involved in the care of persons with mental illness function in the form of trusts, residential rehabilitation centers, or skill training centers run by the religious trusts. The rehabilitation centers managed by religious organizations mostly exist on donations from the public, and they offer free services. As of now, they are not governed or monitored by any competent mental health agencies (Anish 2013). A crucial role of the mental health social worker is to help persons with mental disorders to steer through the labyrinth of systems and to utilize these resources in the rehabilitation and recovery of the client. Social work theories like systems theory and strengths-based approach can be applied in this context. The strengths-based approach perceived the community as a reservoir of resources that social workers can engage in the rehabilitation of the client. Systems approach focuses on the systems within the community structures and resources, and the environmental systems that have implications for the psychosocial rehabilitation and recovery of persons with mental disorders. Thus networking with religious institutions provides the resources and context for social inclusion and community support for persons with severe mental disorders that aid in their psychosocial rehabilitation and recovery. There is scarce published literature on the role of social workers in the utilization of religious institutions for the psychosocial rehabilitation and recovery of persons with mental disorders. Hence, this segment of the chapter is based on the information from one of the author’s own experience of interaction with religious organizations as a routine work requirement as well as insight gained through experiences shared by seven other psychiatric social work professionals across India working in government and nongovernment organizations (NGO).
Religious Institutions: Sources of Resource Psychiatric social workers across India work with the religious institutions as a resource for procuring medication, to provide help in the livelihood of patients, and employment for their families (see Box 1): Box 1
Mr. TP is a 28-year-old unmarried male, with a primary level of education, unemployed, who hails from a low-income family. He was diagnosed with schizophrenia which was left untreated for 6 years. There were several members in his family who also had schizophrenia and were not treated. The rehabilitation team worked closely with the Malabar Muslim Religious Association to provide free medication and finding suitable employment for family members.
Religious Institutions: Centers of Short- and Long-Term Care The trusts run by religious organizations help to provide shelter for persons with mental disorders and ensure regular treatment. It may be noted that many of these trusts are not specifically meant for rehabilitation of persons with mental illness (see Box 2).
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Religious institutions and centers play an important role in the rehabilitation of homeless persons with mental illness. Abandoned and homeless persons with mental illness are admitted to the state- or government-managed mental health setting by the police with a reception order from the magistrate. Psychiatric social workers coordinate with religious centers like temples or religious trusts to provide livelihood or shelter for the homeless person with mental illness. Sometimes the shelter provided is a temporary arrangement (see Box 3). Box 2
Ms. MS, a 40-year-old unmarried homeless mentally ill lady, was brought with an illness of 20 years duration. Other than an aging mother who was in an old-age home, she did not have any family support. The psychiatric social work team coordinated with the Sri Sathya Sai Central Trust, an old-age home where Ms. MS’s mother was housed. The trust members were educated about Ms. MS’s illness and requirements. The trust agreed to provide her with shelter and ensure continuity of her treatment. The District Mental Health Program was also later involved in providing free treatment and medication to MS.
Box 3
Ms. RD, a 26-year-old lady with bipolar affective disorder in her second trimester of pregnancy, was abandoned by her sister. As per the hospital policy, a pregnant patient cannot be admitted without a reception order from the magistrate. In order to tide over the crisis, the psychiatric social workers requested a shelter home managed by a religious organization to provide temporary shelter to the lady. A team from the mental health institute was sent to the shelter home for administering medication to control her aggressive behavior. The shelter home housed Ms. RD for a few days till the reception order was obtained, and she was then placed in a rehabilitation center where she recovered completely.
Religious Institutions: Funding Agencies Psychiatric social workers working in the NGO sectors network with religious organizations for promoting mental health awareness in the community. They also facilitate medical camps and rehabilitation programs of the NGOs. Box 4 illustrates the collaborative work between a psychiatric social worker in MHAT, an NGO, and a trust managed by a religious organization. Box 4
Psychiatric social workers collaborate with trusts managed by religious institutions. These trusts fund the psychiatry clinics organized by the NGOs and (continued)
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Box 4 (continued)
volunteer as care givers at day care center of the NGO. The volunteers from the trusts help in identifying persons with mental illness in the community, and they make regular home visits to ensure treatment adherence among these persons.
Use of Religiosity and Spirituality as Part of Formal Interventions Although the importance of collecting spiritual and religious information as part of mental health assessments is acknowledged, it is rarely witnessed in practice. Upon the consent of the client, religious and spiritual assessment is conducted (Verghese 2008). Following this, the client is encouraged to use religious practices such as praying and chanting mantras (sacred verses) to alleviate symptoms of mental illness. Meditation and yoga are extensively used in dealing with neurotic disorders. A recent meta-analysis shows that yoga significantly assuages mental health symptoms (Cabral et al. 2013). The case studies given above indicate that most of the religious organizations most often run shelter homes for homeless and abandoned persons. They contribute to the welfare of persons with mental illness by providing shelter, ensuring regular treatment and medication adherence, providing jobs for family members or patient, funding awareness programs, and supporting livelihood programs. Networking with religious organizations poses several challenges. Most of the religious institutions do not have trained mental health professionals, facilities, and funds allocated exclusively for persons with mental illness. Furthermore, the lack of support from administrators of mental health institutes, poor awareness of mental health disorders and needs of persons with mental illness, and paucity of religious institutions working exclusively in the field of mental health are some of the challenges that psychiatric social work professionals need to navigate. Notwithstanding the aforementioned challenges, shelter homes and rehabilitation centers managed by religious institutions need to be included more regularly in the rehabilitation programs for persons with mental illness. Such an inclusive approach can perhaps provide a viable solution to the insufficient availability of psychosocial rehabilitation facilities in India.
Conclusion Religious institutions and their healing methods have a very long tradition and play a significant role in mental health care and rehabilitation in India. Due to service-related and cultural reasons, most persons with mental illness tend to utilize religious healing services. Although the religious and modern medical systems work independently, collaboration marked by awareness and respect for each other’s methods would ensure holistic care for persons with mental illness. Although there are promising trends such as the dava-dua program, building mutual trust and maintaining autonomy without undue interference are some of the challenges that might require concerted efforts to
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overcome by practitioners from both systems. Pilot programs that attempt to interface between religious and psychiatric methods, training of psychiatric social workers in interfacing with traditional healing systems, and rigorous research on religious healing – mental health outcomes and mechanism underlying them – are much needed.
Cross-References ▶ Mental Health and Social Work: The Islamic Perspectives ▶ Theories on Mental Health, Illness and Intervention
References Anish KR (2013) An evaluation of psychosocial rehabilitation facilities of homeless mentally ill in India. Artha J Soc Sci 12:1–19 Aruna L (2018) Mantras help the general psychological well-being of college students: a pilot study. J Relig Health 57:110–119 Bellamy C (2008) Person in place: possession and power at an Indian Islamic Saint Shrine. J Fem Stud Relig 24:31–44 Bellamy C (2011) The powerful ephemeral: everyday healing in an ambiguously Islamic place. University of California Press, Berkeley Bihari B (1962) Sufis, mystics, and yogis of India. Bharatiya Vidya Bhavan, Bombay Bishoni HR, Khan A, Avasthi RD, Sataveer I (2017) Community mental health in India: current scenario. Int J Nurs Educ 9:15–16 Cabral P, Meyer HB, Ames D (2013) Effectiveness of yoga therapy as a complementary treatment for major psychiatric disorders: a meta-analysis. Prim Care Companion CNS Disord 13(4). https://doi.org/10.4088/PCC.10r01068 Campion J, Bhurga D (1997) Experiences of religious healing in psychiatric patients in south India. Soc Psychiatry Psychiatr Epidemiol 32:215–221 Casson J (2004) Drama, psychotherapy and psychosis: dramatherapy and psychodrama with people who hear voices. Brunner Routledge, Hove Chakravarthy T (2015) Interface in approaches to mental disorder in India: a sociological analysis. Soc Secur Bull 64(2):197–218 Chokkanathan S (2013) Religiosity and well-being of older adults in Chennai, India. Aging Ment Health 17:800–887 Colas G (2003) History of Vaisnava traditions: an Esquisse. In: Flood G (ed) The Blackwell companion to Hinduism. Blackwell Publishing Ltd, Oxford Cowan J, Raja S, Naik A, Armstrong G (2012) Knowledge and attitudes of doctors regarding the provision of mental health care in Doddaballapur Taluk, Bangalore Rural district, Karnataka. Int J Ment Heal Syst 6:21–27 Csordas TJ, Storck MJ, Strauss M (2008) Diagnosis and distress in Navajo healing. J Nerv Ment Dis 196:585–596 Davar VB, Lohokare M (2009) Recovering from psychosocial traumas: the place of Dargahs in Maharashtra. Econ Polit Wkly 44(16):60–67 Easwaran E (translator) (1985) Bhagavad-Gita translated for modern readers. Nilgiri Press, Tomales Fallot DR (2001) Spirituality and religion in psychiatric rehabilitation and recovery from mental illness. Int Rev Psychiatry 13:110–116 Feldhaus A, Tulpule GS (1992) In the absence of God: the early years of an Indian Sect. A Translation of Smriti Sthal with an Introduction. University of Hawaii Press, Honolulu
23
The Role of Religious Institutions in Mental Health Rehabilitation. . .
491
Fowler JW (1996) Faithful change. The personal and public challenges of postmodern life. Abingdon Press, Nashville Freeman M, Motsei M (1992) Planning health care in South Africa – is there a role for traditional healers? Soc Sci Med 34(11):1183–1190 Government of India (2014) New pathways New Hope. National Mental Health policy of India. Ministry of Family and Social welfare. Retrieved from https://www.nhp.gov.in/sites/default/ files/pdf/national%20mental%20health%20policy%20of%20india%202014.pdf Gupta P, Sharma KV, Sharma S (2014) Healing traditions of the Northwestern Himalayas. Springer, New Delhi Gururaj G, Varghese M, Benegal V, . . . NMHS collaborators group (2016) National Mental Health Survey of India, 2015–16: prevalence, patterns and outcomes. National Institute of Mental Health and Neuro Sciences, NIMHANS, Bengaluru, Publication no. 129. Retrieved from http:// www.nimhans.ac.in/sites/default/files/u197/NMHS%20Report%20%28Prevalence%20patterns %20and%20outcomes%29%201.pdf Halliburton M (2003) The importance of a pleasant process of treatment: lessons on healing from South India. Cult Med Psychiatry 27:161–186 Hansdak SG, Paulraj R (2013) Are we doing harm by omission? Addressing religiosity of the mentally ill. World Psychiatry 12(1):40 Jadhav S (1995) The ghostbusters of psychiatry. Lancet 345:808–809 Jadhav S, Littlewood R, Ryder GA, Chakraborty A, Jain S, Barua M (2007) Stigmatization of severe mental illness in India: against the simple industrialization hypothesis. Indian J Psychiatry 49:189–194 Jain S, Jadhav S (2009) Pills that swallow policy: clinical ethnography of a community mental health program in northern India. Transcult Psychiatry 46(1):60–85 Jones CA, Ryan DJ (2007) Ayurveda. In: Melton JG (ed) Encyclopedia of Hinduism. Facts on File Publishing, New York, p 58 Jugal KR, Mukherjee M, Parashar RCJ, Ingle GK (2007) Beliefs and attitudes towards mental health among medical professionals in Delhi. Indian J Community Med 32:198–200 Kakar S (1983) Shamans, mystics & doctors. Oxford University Press, Delhi Kakar S (2003) Psychoanalysis and Eastern spiritual traditions. J Anal Psychol 48:659–678 Kar N (2008) Resort to faith-healing practices in the pathway to care for mental illness: a study on psychiatric inpatients in Orissa. Ment Health Relig Cult 11:729–740 Kate N, Grover S, Kulhara P, Nehra R (2012) Supernatural beliefs, aetiological models and help seeking behaviour in patients with schizophrenia. Ind Psychiatry J 21(1):49–54 Khandelwal Ks, Jhingan PH, Ramesh S, Gupta KR, Srivastava KV (2004) India mental health country profile. Int Rev Psychiatry 16:126–141 King R, Homsy J (1997) Involving traditional healers in AIDS education and counselling in sub-Saharan Africa: a review. AIDS 11(Suppl. A):S217–S225 Kirmayer LJ (2012) Cultural competence and evidence-based practice in mental health: epistemic communities and the politics of pluralism. Soc Sci Med 75(2):249–256 Kishore J, Gupta A, Jiloha CR, Bantman P (2011) Myths, beliefs and perceptions about mental disorders and health-seeking behavior in Delhi, India. Indian J Psychiatry 53:324–329 Kleinman A (1980) Patients and healers in the context of culture: an exploration of the borderland between anthropology, medicine and psychiatry. University of California Press, Berkeley Kohn R, Saxena S, Levav I, Saraceno B (2004) The treatment gap in mental health care. Bull World Health Organ 82:858–866 Krause N (2006) Religious doubt and psychological well-being: a longitudinal investigation. Rev Relig Res 47:287–302 Lahariya C, Singhal S, Gupta S, Mishra A (2010) Pathway of care among psychiatric patients attending a mental health institution in central India. Indian J Psychiatry 52:333–338 Levin J (2016) Partnerships between the faith-based and medical sectors: implications for preventive medicine and public health. Prev Med 4:344–350 McGuire MB (1983) Words of power: personal empowerment and healing. Cult Med Psychiatry 7:221–240
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S. Chokkanathan et al.
Nortje G, Oladeji B, Gureje O, Seedat S (2016) Effectiveness of traditional healers in treating mental disorders: a systematic review. Lancet 3:154–170 O’Callaghan E, Turner N, Renwick L, Jackson D, Sutton M, Foley SD, McWilliams S, Behan C, Fetherstone A, Kinsella A (2010) First episode psychosis and the trail to secondary care: helpseeking and health-system delays. Soc Psychiatry Psychiatr Epidemiol 45:381–391 Padmavathi R, Thara R, Corin E (2005) A qualitative study of religious practices by chronic mentally ill and their caregivers in South India. Int J Soc Psychiatry 51:139–149 Pakaslahti A (1998) Family-centered treatment of mental disorders at the Balaji temple in Rajasthan. In: Parpola A, Tenhunen S (eds) Changing patterns of kinship and family in India. Studia Orientalia vol 84. The Finnish Oriental Society/Gummerus, Helsinki, pp 129–166 Pakaslahti A (2001) Ritual possession trance and dissociative disorder: a cross-cultural comparison. World Psychiatric Association: Transcultural Psychiatry Newsletter/Autumn. Andorra la Vella Pakaslahti A (2008) Terminology of spirit illness: an empirical study from a living healing tradition, vol 7. In: Wujastyk D (ed) Mathematics and medicine in Sanskrit. Papers of the World Sanskrit conference 2003. Motilal Banarsidass Publishers, Delhi, pp 155–192 Patel V, Xiao S, Chen H, Hanna F, Jotheeswaran AT, Luo D et al (2016) The magnitude of and health system responses to the mental health treatment gap in adults in India and China. Lancet. pii: S0140-6736 (16)00160-4. https://doi.org/10.1016/S01406736(16)00160-4 Raguram R, Weiss MG, Channabasavanna SM, Diop M (1996) Stigma, depression and somatization in South India. Am J Psychiatr 153:1043–1049 Raguram R, Venkateswaran A, Ramakrishna J, Weiss MG (2002) Traditional community resources for mental health: a report of temple healing from India. Br Med J 325:38–40 Ram D, Patil S, Basavana Gowdappa H (2016) Level of paranormal beliefs and its relationship with explanatory models, treatment adherence and satisfaction. Arch Clin Psychiatry (São Paulo) 43(3). https://doi.org/10.1590/0101-60830000000084 Ramakrishnan P, Rane A, Dias A, Bhat J, Shukla A, Lakshmi S, . . . Koneig GH (2014) Indian health care professionals’ attitude towards spiritual healing and its role in alleviating stigma of psychiatric services. J Relig Health 53:1800–1814 Ranganathan S (2015) Rethinking ‘efficacy’: ritual healing and trance in the Mahanubhav Shrines in India. Cult Med Psychiatry 39:361–379 Saglio-Yatzimirsky CM, Sébastia B (2015) Mixing tī rttam and tablets. A healing proposal for mentally ill patients in Gunaseelam (South India). Anthropol Med 22:127–137 Saoji A, Mohanty S, Suhas V (2017) Effect of a Single Session of a Yogic Meditation Technique on Cognitive Performance in Medical Students: A Randomized Crossover Trial. J Relig Health 56:141–148 Saravanan B, Jacob SK, Deepak GM, Prince M, David SA, Bhugra D (2008) Perceptions about psychosis and psychiatric services: a qualitative study from Vellore, India. Soc Psychiatry Psychiatr Epidemiol 43:231–238 Sax W (2009) Healers. In: Jacobsen KA (ed) Brill’s encyclopedia of Hinduism. Brill, Leiden Sax W (2011) A Himalayan exorcism. In: Rodrigues HP (ed) Studying Hinduism in practice. Routledge, New York, pp 146–157 Saxena S, Thornicroft G, Knapp M, Whiteford H (2007) Resources for mental health: scarcity, inequity, and inefficiency. Lancet 370:878–889 Sébastia B (2007) A protective fortress: psychic disorders and therapy at the Catholic shrine of Puliyampatti (South India). Indian Anthropol 37(1):67–92 Selvaraj K, Kuruvilla K (2001) In the aftermath of Erwadi incident. Indian J Psychiatry 43(4):368–369 Shankar R, Saravanan B, Jacob KS (2006) Explanatory models of common mental disorders among traditional healers and their patients in rural South India. Int J Soc Psychiatry 52:221–233 Shidhaye R, Kermode M (2013) Stigma and discrimination as a barrier to mental health service utilization in India. Int Health 5(1):6–8
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The Role of Religious Institutions in Mental Health Rehabilitation. . .
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Shields L, Chauhan A, Bakre R, Hamlai M, Lynch D, Bunders J (2016) How can mental health and faith-based practitioners work together? A case study of collaborative mental health in Gujarat, India. Transcult Psychiatry 53:368–391 Skultans V (1991) Women and affliction in Maharashtra: a hydraulic model of health and illness. Cult Med Psychiatry 15:321–359 Sood A (2015) Women’s rights, human rights and the state: reconfiguring gender and mental health concerns in India. In: Davar BV, Ravindran S (eds) Gendering mental health: knowledge(s), identities and institutions. Oxford University Press, New Delhi, pp 162–192 Sreevani R, Revathi S (2012) Assessment of the attitude of staff nurses towards hospitalised psychiatric patients in Kolar (Karnataka). Nurs J India 103:44–46 Srinivasan TN, Thara R (2001) Beliefs about causation of schizophrenia: do Indian families believe in supernatural causes? Soc Psychiatry Psychiatr Epidemiol 36:134–140 Sudhinaraset M, Ingram M, Lofthouse HK, Montagu D (2013) What is the role of informal healthcare providers in developing countries? A systematic review. PLoS One 8(2):e5497 Thirthalli J, Zhou L, Kumar K, Gao J, Vaid H, Liu H et al (2016) Traditional, complementary, and alternative medicine approaches to mental health care and psychological wellbeing in India and China. Lancet Psychiatry 3:660–672 Thirunavukarasu M (2011) Closing the treatment gap. Indian J Psychiatry 53(3):199–201 Trivedi JK (2001) Implication of Erwadi tragedy on mental health care system in India. Indian J Psychiatry 43(4):293–294 Triveni D, Grover S, Chakrabarti S (2017) Religiosity among patients with schizophrenia: an exploratory study. Indian J Psychiatry 59:420–428 Verghese A (2008) Spirituality and mental health. Indian J Psychiatry 50:233–237 Wig NN (1999) Mental health and spiritual values. A view from the East. Int Rev Psychiatry 11:92–96
Part V Structural Factors in Social Work and Mental Health
Legal Provisions, Advocacy, and Empowerment
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Health Law and Legislation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . The United Nations Convention on the Rights of Persons with Disabilities . . . . . . . . . . . . . . . . . . Social Work Practice in Managing Risk and Compulsion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Social Work: The Recovery Paradigm and Co-production . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Supported Decision-Making . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Community Treatment Orders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Advocacy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Emancipatory Values and Empowerment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
This chapter discusses mental health as a field of social work practice in which care and control dimensions are combined. It will explain the purpose of mental health legislation and how risk has influenced law, policy, and practice. The impact of the United Nations Convention on the Rights of Person with Disabilities (CRPD 2007), the international human rights instrument governing the rights of people with disabilities, will be considered, especially in relation to how it has led to considerable expectation that mental health law and policy, and social work L. Brophy (*) School of Allied Health, Human Services and Sport, College of Science, Health and Engineering, La Trobe University, Melbourne, VIC, Australia Centre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, VIC, Australia Mind Australia, Heidelberg, VIC, Australia e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_18
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practice, needs to be reconsidered with increased emphasis on human rights. The chapter moves on to focus on community treatment orders and supported decision-making as the two contexts of social work practice that illustrate the challenges. Finally, there is discussion about how social workers can engage in individual and systemic advocacy and support consumer empowerment. A contemporary challenge for social workers in mental health is ensuring that the obligations that many countries now hold to the CRPD are upheld. Keywords
Community treatment orders · Supported decision-making · Social work values · Ethics · Advocacy · Empowerment · Human rights
Introduction Social work is guided by valuing social justice, empowerment, and a broad conceptualization of human rights (Brophy 2009). The knowledge base and emancipatory values of social work can make an important contribution to ensuring the human rights of people are likely to be respected and upheld and the emancipatory values of social work encourage practitioners in mental health to have a human rights lens (Brophy and McDermott 2013; Ife 2012). The International Federation of Social Workers (IFSW) global definition of social work is as follows: Social work is a practice-based profession and an academic discipline that promotes social change and development, social cohesion, and the empowerment and liberation of people. Principles of social justice, human rights, collective responsibility and respect for diversities are central to social work. (IFSW 2014)
Notions of collective responsibility potentially explain why social workers, particularly mental health social workers, have historically combined care and control dimensions in their practice. According to the IFSW: The idea of collective responsibility highlights the reality that individual human rights can only be realized on a day-to-day basis if people take responsibility for each other and the environment, and the importance of creating reciprocal relationships within communities. (IFSW 2014)
Social workers are often bound in their practice by mental health law, and this law also gives them powers over others. Mental health legislation is generally described as providing for the care, treatment, and protection of people who experience mental illness and a source of human rights protection. However, mental health legislation also represents social control. A critique of mental health laws is that they are fundamentally discriminatory and unjustifiable. However, others argue that mental health laws, and therefore some form of substitute decision-making, are required to
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ensure people have access to care at times when they are unable to provide informed consent, even when safeguards and supports are available and offered (Campbell et al. 2018; Waddington and McSherry 2016). The advent of the United Nations Convention on the Rights of Person with Disabilities (CRPD 2007), the international human rights instrument governing the rights of people with disabilities, has led to considerable expectation that mental health law and policy, and social work practice, needs to be reconsidered with increased emphasis on human rights (Maylea 2017; Gooding 2017; Campbell et al. 2018). Around the world most mental health social workers are likely to have contact with people who have current or recent experience of coercion as a feature of their contact with mental health service delivery. The parens patriae powers that enable compulsory orders and restrictive practices are justified as required to protect people made vulnerable by the impact of mental illness, perhaps to protect them or others from harm (Campbell et al. 2018). Traditionally psychiatrists and lawyers are the professions most commonly associated with the power and authority related to compulsory or involuntary treatment and containment of people with mental illness. However, social workers work alongside these professions in mental health and are increasingly also either able and or required to exercise these powers (Brophy and McDermott 2013; Brophy and Healy 2014). Often social workers take a pragmatic approach, accepting that this is part of their roles (Maylea 2017). Social workers who work on inpatient units are often supporting people who are compulsorily detained, or they may have case management roles that require them to implement community treatment orders (CTOs). In the United Kingdom, social work researchers and practitioners have explored the experience and practice of statutory mental health social work, in particular the role of Approved Mental Health Practitioner (AMHP) (a role held predominantly by social workers), identifying the complex ethical and practice dilemmas associated with the substitute decision-making powers this role enables (Campbell and Davidson 2009; Stone 2018). The core ideas that social work is justifiably about empowerment and that there are people in the community who are “vulnerable” are contested (Rivest and Moreau 2014; Butler et al. 2016). An alternative critical perspective is that the more we think of people as vulnerable and disempowered, the less likely we are to recognize their potential for agency and the more likely people will be exposed to coercion that is considered to be in their “best interests.” This critical perspective also suggests that oppression is occurring in everyday life and often its agents are caring people acting out the expectations of state-based health and welfare provision (Brophy 2009). Roper (2018) describes, as a person with lived experience of coercion in psychiatry: If the state overrides my autonomy and bodily integrity, these are ethical wrongs, potentially with serious, multiple and ongoing consequences and they are a matter for regret, regardless of justification, or otherwise, for compulsory treatment. (Roper 2018, p. 85)
Social workers are required – in order to be true to their underlying principles – to be aware of this perspective and the potential that they are colluding with powerful forces that are contributing to the marginalization and disempowerment of people
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with experience of mental illness. They may need to challenge a continuation of institutional patterns of thinking that stigmatizes and results in entrenched discrimination thus encouraging coercion and substitute decision-making. The concept of legal capacity is one way to rethink the issue of vulnerability because legal capacity enables recognition that people with disability – including psychosocial disability – are fully recognized as a person before the law who has the right to equal treatment. According to the UN Committee on the Rights of Persons with Disabilities: Legal capacity is a universal attribute inherent in all persons by virtue of their humanity and must be upheld for persons with disabilities on an equal basis with others. (CRPD/C/GC/1, paragraph 8)
Harding (2017), in some useful internet-based resources from the United Kingdom, describes how legal capacity is different to mental capacity. Legal capacity is the formal ability that a person has to hold and exercise rights and duties, and, according to the CRPD, everyone has a right to legal capacity. Mental capacity describes the decision-making skills and competencies of a person. While mental capacity can vary from person to person depending on the nature of their illness or disability and its impact on their functioning, being able to exercise legal capacity is considered a human right (Harding 2017). What this means for social workers is that “rather than make decisions for people, we need to support people to make their own decisions” (Brophy et al. 2018a, p. 291). The CRPD requires that States Parties (i.e., countries that have signed and ratified the convention) provide “access by persons with disabilities to the support they may require in exercising their legal capacity” (Article 12(3)) and “safeguards to prevent abuse,” which “ensure that measures relating to the exercise of legal capacity respect the rights, will and preferences of the person, are free from conflict of interest and undue influence, are proportional and tailored to the person’s circumstances, apply for the shortest time possible, and are subject to regular review by a competent, independent and impartial authority or judicial body” (Article 12(4)) (CRPD 2007). Potentially the human rights protections in the CRPD could completely overturn involuntary treatment, but as McSherry (2008) initially predicted, it appears that, to date, the CRPD’s main influence has been on enabling greater restriction on “unbeneficial and overly intrusive treatment” (p. 122). McSherry and Wilson (2015) argue that the CRPD not only encourages recognition of, and the need for, supports to assist people to exercise or enjoy their legal capacity but also: that the focus of scholarly attention and mental health law reform should be redirected to focus on the way in which a broader construction of the CRPD than the current concentration on the ‘negative’ human rights to legal capacity and to liberty (Article 14) to such ‘positive’ rights as the right to health (Article 25) and the right to independent living (Article 19). (McSherry and Wilson 2015, p. 61)
A focus on positive rights aligns well with the definition of social work proposed above and thus provides social workers with an opportunity to support the
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empowerment of persons with psychosocial disability or cognitive impairment through enabling the social determinants of mental health to be addressed. It should be very encouraging to social workers to have fundamental social work principles, including empowerment, self-determination, and respect for the person, guiding legislation (Brophy et al. 2018a). Thus, worldwide, social workers have an opportunity to have their traditional values and principles at the forefront of the movement for changes in practice and system transformation. By 2016, the CPRD had been signed by 159 countries worldwide and ratified (made legally binding) by 151 (Thornicroft and Henderson 2016), so a contemporary challenge for social workers in mental health is ensuring that the obligations that many countries now hold to the CRPD are upheld. This is even relevant to those countries that are not current signatories considering the alignment of the CRPD with social work values and principles. Here social workers have a potential role to advocate from a clientcentered perspective to work within the spirit and mission of the profession to enable this change internationally (Davidson et al. 2016b; Campbell et al. 2018). However, this can be difficult to realize in practice when workplaces continue to emphasize the management of risk, a procedural approach to practice, and sometimes a high tolerance for coercive interventions (Brophy et al. 2018a, b). This chapter will discuss the role of social workers when care and control dimensions of practice are combined. It will explain the purpose of mental health legislation and how risk has influenced law, policy, and practice. It will then move on to focus on community treatment orders and supported decision-making as the two contexts of social work practice that illustrate the challenges. Finally, it will propose how social workers can engage in individual and systemic advocacy and support consumer empowerment.
Mental Health Law and Legislation In most countries of the world, people with mental illness can be treated against their will. This is often codified and regulated by law (Thornicroft and Henderson 2016). However, Szmukler (2008) observes that there are varying rates in the use of involuntary orders around the world and the use of involuntary orders fluctuates within jurisdictions. This is unlikely to be because of changes in the nature of mental illness over time or across countries. Alternatively, it suggests the influence of social, cultural, and structural factors on perceptions of risk and the use of powers enabled by mental health legislation. In Australia, for example, a recent study in the state of Queensland found patterns in the use of compulsory treatment that suggested differences based on cultural and linguistic backgrounds. Moss et al. (2019) found that people who had settled in Australia who were from a Culturally And Linguistically Diverse background were overrepresented on compulsory community treatment orders in the state. Similarly in New Zealand, the Indigenous Māori people are more likely to be on compulsory orders (Gibbs et al. 2005). The review of the UK mental health legislation highlighted the disproportionate number of people from black and minority ethnicities detained under the Mental Health Act (Government UK 2018).
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The establishment of specific criteria that determine whether involuntary treatment is able to take place has been an important development in mental health legislation and is the key feature of all mental health legislation in Australia and elsewhere (Brophy et al. 2018a; Campbell et al. 2018). It is arguable that, after developing an understanding of the objects and principles underlying any mental health legislation, the most important feature to be understood by all mental health workers is the interpretation and application of these criteria. This is because they determine the important decision-making regarding involuntary treatment both in hospital and in the community (Brophy 2009; Campbell et al. 2018). Dawson and Szmukler (2006) have argued that mental health laws are in themselves discriminatory because they single out people with mental health problems. They have proposed “fusion” legislation that takes into account that a loss of mental capacity or risk to self and others and the subsequent justification for substitute decision-making can apply across a range of general medical as well as mental health conditions, including brain injury or drug- and alcohol-related problems. Northern Ireland plans to implement this fusion approach, and it is anticipated that after 2020 they will not be a separate mental health law (Campbell et al. 2018). However, others have argued that this model places too much emphasis on mental capacity and have instead proposed that all forced treatment should be ceased to make way for a supported decisionmaking framework that is consistent with the CRPD (Gooding 2017).
The United Nations Convention on the Rights of Persons with Disabilities The United Nations Convention on the Rights of Persons with Disabilities (CRPD 2007) marks a significant turning point in the international human rights framework. The convention was opened for signature on 30 March 2007 and entered into force on 3 May 2008, and it is the first comprehensive human rights treaty of the twenty-first century. The CRPD sets out as its first guiding principle, “[r]espect for inherent dignity, individual autonomy including the freedom to make one’s own choices” (Article 3) (CRPD 2007). This Convention applies to those with “mental impairments” as well as intellectual, sensory, and physical impairments (Article 1). Hence it is relevant to people who experience mental illness and mental health social workers. The Convention marks a “paradigm shift” in attitudes and approaches to persons with disabilities. It takes to a new height the movement from viewing persons with disabilities as “objects” of charity, medical treatment and social protection towards viewing persons with disabilities as “subjects” with rights, who are capable of claiming those rights and making decisions for their lives based on their free and informed consent as well as being active members of society. (CRPD 2007)
The United Nations Human Rights Council (2017) has also introduced a new resolution calling on member states to take active steps to fully integrate a human rights perspective into mental health and community services. This resolution
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potentially encourages a “rights” rather than “disease” or “disorder” approach to mental health and thus encourages a move away from restrictive and reductionist practices, particularly the overreliance on medication. States are obliged to protect all human rights and fundamental freedoms and ensure that policies and services related to mental health comply with international human rights norms. Article 12 of the CRPD requires equal recognition before the law – and therefore countries that are signatories are expected to introduce mechanisms that enable people with disabilities, including cognitive impairment or psychosocial disability, to exercise their legal capacity. Hence people with disability should be supported as required to express their will and preferences and exercise choice and control over their lives (Campbell et al. 2018). The CRPD is therefore driving a shift away from substituted decision-making and binary capacity/incapacity assessment toward support for legal capacity, including supported decision-making (Gooding 2017). As discussed above the CRPD can be interpreted as calling for a complete ban on compulsory treatment and substitute decision-making by mental health practitioners (Thornicroft and Henderson 2016). The CPRD puts the person at the center of all decision-making and encourages the use of supported decision-making if required. This would require a transformation of mental health law and service delivery where use of coercive powers and compulsory treatment in a range of settings remain a routine aspect of the work that, despite increased concerns about its potential harm, is still seen to be legitimate (Thornicroft and Henderson 2016; Sykes et al. 2015). Maylea (2017) suggests that the pragmatic approach that mental health social workers have taken to reconcile involuntary treatment with their practice needs to be challenged and suggests that “coercive mental health social work is maintaining the systems of oppression social workers should be moving to combat” (p. 338). Hence a new lens is required on the “day-to-day clinical dilemmas faced by staff who care for people who at times may lack mental capacity in specific domains and who, for example, may actively threaten to harm themselves or others” (Thornicroft and Henderson 2016, p. 647). McSherry and Maker (2018) explain that there are many mental health practitioners who see the abandonment of substitute decision-making and compulsory treatment as farfetched, unrealistic and potentially harmful despite the efforts of the CRPD to identify enforced treatment as a violation of an individual’s integrity. While this debate has the potential to be polarizing, they argue that a way forward is to emphasize that people with mental health challenges are treated as “rights holders” (p. 319), people who have the right to the dignity of risk and a high quality of care that respects and upholds their human rights. The CRPD is a response to the apparent failure of human rights protection for people with mental illness and disability and the common worldwide issue of inadequate investment in mental health programs. To date this has then resulted in widespread sigma and discrimination. People with mental illness and psychosocial disability commonly lack access to safe and affordable housing; are often excluded from employment and education; experience high rates of loneliness and social isolation, abuse, and neglect; and continue to be exposed to the continued use of restraint and confinement.
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In a report submitted to the Human Rights Council, The United Nation’s Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of health stated that: [T]he field of mental health continues to be over-medicalized and the reductionist biomedical model, with support from psychiatry and the pharmaceutical industry, dominates clinical practice, policy, research agendas, medical education and investment in mental health around the world.
And: Coercion, medicalization and exclusion, which are vestiges of traditional psychiatric care relationships, must be replaced with a modern understanding of recovery and evidencebased services that restore dignity and return rights holders to their families and communities. (Quoted in McSherry and Maker 2018, p. 316)
The challenge the CRPD sets is to develop services that are innovative and attractive, community-based, and inclusive and respond more closely to what people want and need and are, therefore, more likely to be the services people choose to access (Maylea 2017).
Social Work Practice in Managing Risk and Compulsion Ramon (2006) has argued that managing risk has become an all pervasive feature of the modern, particularly Anglo-Saxon, society and that social workers are increasingly being limited in their practice as a result of the “risk discourse” (p. 41). For mental health social workers, this can mean that there is often a tension between obligations to the duty to care for their clients and the expectations of the community that people who appear to be at risk to themselves or others will be contained or controlled in some way, despite otherwise valuing autonomy, empowerment, and treatment in the least restrictive environment. As discussed above, this dual professional role is now subject to a profound challenge from the CRPD (Maylea 2017). However, working with involuntary clients may not necessarily be outside the overall mission of casework in social work and can be consistent with working toward empowerment and social justice (Adams et al. 2002; Brophy and McDermott 2013). According to Courtney and Moulding’s (2014) findings, individual social workers can manage to retain a recovery focus even in the context of the pressure to focus on risk and be involved in involuntary intervention. Social work’s interest in, and practice with, involuntary clients potentially aligns well with the idea of people as “rights holders” who have the right to the dignity of risk and a high quality of care. This may assist social workers to advocate for decreased use of involuntary orders and greater respect for their clients’ views and preferences even in the context of involuntary intervention. However, drawing a distinction between “voluntary” and “involuntary” consumers of social work services may be misleading. What may be more helpful is to recognize that clients are on a continuum. On this continuum there may be people
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who are subject to subtle or informal sources of influence or even coercion, such as being required to make a connection or seek help, through to people who are detained in hospital wards as compulsory or involuntary patients or on community treatment orders (CTOs). Recognizing this continuum makes a voluntary/involuntary distinction less polarized. It has been suggested that the majority of psychiatric patients in the United Kingdom (and potentially elsewhere in the world) experience their care as coercive, as they know of the existence of powers to compel. Some authors argue that no one is entirely free in a system that contains compulsion (Molodynski et al. 2010). Hence the need for all mental health social workers to engage with the issues of power and authority in their practice becomes even more salient (Davidson et al. 2016a). Social workers need to understand the role of authority in practice and appreciate how the appropriate use of authority (rather than control) may actually be helpful in engaging with clients and be consistent with the central goal of empowerment in casework. Authority represents skill and expertise and can be used to help motivate and enable change. In considering this situation when working with people in the criminal justice system, Baldry and Sotiri (2014) recommend honesty, following through and genuine empathy as important characteristics for social workers working with involuntary clients. Social workers need to be aware of how power, inequality, and the social and systemic factors contribute to the use of coercion and demonstrate an ability to reflect on how these factors are also impacting on their practice (Baldry and Sotiri 2014). Sykes et al. (2015) suggest that coercive interventions can be harmful in relation to people’s long-term well-being and their relationships with service providers. Participants in research have described feeling humiliated by coercion in mental health care, particularly being forced to take medication (Nyttingnes et al. 2016). In practice, mental health social workers are required to maintain awareness of the negative impact of involuntary treatment and seek opportunities to address these consequences. There is evidence that reducing the use of coercion in psychiatry and mental health service delivery will promote empowerment and self-determination and support the development of recovery enhancing therapeutic relationships which in turn will lead to better outcomes for people (Bracken et al. 2012). Zinkler (2016), writing about the experience in Germany, suggests that compulsory powers can be reduced and that enforced medication does not need to be an essential feature of acute mental health care. The emphasis placed on undertaking risk assessment in everyday practice in mental health service delivery has been subject to recent challenges. These assessments and the prediction of risk that undertaking them implies are seen to be unreliable in informing decision-making and ineffective – with proposals that more emphasis be placed on building relationships (Chung et al. 2017). According to Davidson et al. (2016a): The shifting away from conventional discourses on risk management implies new skills and ways of thinking that encourage tolerance of risk by both workers and the systems they work in. It requires an explicit commitment to a recovery-orientated approach and encourages shared responsibility for safety. (p. 162)
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Carroll and McSherry (2015) discuss the value in taking a more promotional focus to practice rather than a preventative one. They argue that decision-making that is intended to promote empowerment of people and enhance therapeutic relationships and social utility in the longer term may be worth the short-term risks. This approach, in order to manage the fear about risks and reprisals, requires collaboration, clarification, and communication so that there is shared understanding about why certain risks may have been tolerated (Carroll and McSherry 2015). Advocates of the recovery paradigm refer to the importance of respecting people’s autonomy and the right to take risks (Deegan 2005). A recovery-based approach can be used to undertake person-centered safety planning that takes the potential harms of coercion into account, as well as the potential benefits of making a more risky decision (Boardman and Roberts 2014).
Social Work: The Recovery Paradigm and Co-production The personal recovery movement referred to above is another driver for change in mental health policy and law internationally (Campbell et al. 2018). Roberts and Boardman (2013) define this as “a set of values, ideas and principles” derived from the experiences of people with mental health problems, often summarized by the CHIME framework – connectedness, hope, identity, meaning, and empowerment (Bird et al. 2014). Hyde et al. (2015) discuss how social workers have a critical role to play in the transformation of mental health services to reflect the recovery paradigm. They discuss how, like the CRPD (2007), social work values and principles are strongly aligned with the recovery movement. This relates to the work of Tew et al. (2012) who identify three concepts central to recovery – empowerment, connectedness, and the rebuilding of positive identity – that are linked to social factors and the contribution of social workers. A particular challenge for recovery-oriented practice is work on inpatient units where power, coercion, and control tend to flourish and many consumers feel powerless and stripped of their rights. Wyder et al. (2015, 2016) have investigated this tension and concluded that: for coercive treatment to aid, rather than disrupt recovery, treatment services need to focus on: the provision of rights; the creation of a sense of safety; establishing supportive relationships; carrying hope and finding ways to foster a strong sense of agency and empowerment. (2016, p. 338)
Other research that has considered how to support the recovery paradigm in inpatient units, including efforts to reduce restraint and seclusion as well as the locking of doors, has supported the role of peer support and peer workers to enable a more recovery-oriented environment (Brophy et al. 2016; Fletcher et al. 2018). Peer support is one example of how the recovery paradigm and valuing the expertise of people with lived experience of mental health challenges are contributing to
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innovation in mental health services and an increased focus on human rights. Peer support has been linked to increased sense of empowerment and self-efficacy (Hyde et al. 2015), and it has been argued that: social justice is only possible when the expertise of those who are theorized about begin to have their own voices heard in all their complexity and contradictoriness. (Parker 2014, p. 32)
Hence the current mantra of “nothing about us without us” and the emergence of consumer or service user led and co-produced research and service delivery including, for example, recovery colleges, a model that is expanding across the world (Perkins et al. 2012). The value of peer support has also been an important enabler for more recoveryoriented service delivery and respect for human rights in low- and middle-income countries. For example, in Indonesia, efforts to release people from the practice of pasung, the physical restraint of mentally ill people in their homes and villages, often in very poor conditions, have been enhanced through the involvement of primary care mental health workers with lived experience (Stratford et al. 2014). Social workers have the potential to support and advocate for the further development of peer support and the peer workforce. Again, shared values and principles can be a basis to working in partnership with peer support workers to promote recovery-oriented practices.
Supported Decision-Making As discussed above the CRPD has encouraged respect for legal capacity and the need for states to enable people with disability to have access to formal and informal mechanisms that enable supported decision-making (SDM). SDM refers to the process of providing support to people whose decision-making ability is impaired to enable them to make and communicate their own decisions (Gooding 2013). The CRPD rejects reliance on acting in the best interests of the person that social workers and other practitioners have often previously applied to these situations. Compliance with the CRPD means that decisions should be made on the basis of the best interpretation of the will and preferences of the person. This relies on the quality of the interaction between people and a new approach to decision-making in health (Brophy et al. 2018a). SDM is contrasted with substitute decision-making, when decision-making power is given over to another. The CRPD uses the language of disability, so cognitive impairment or psychosocial disability may commonly be referred to when discussing the CRPD and SDM. SDM challenges any assumption that a person with cognitive impairment, perhaps in the context of a diagnosis of psychosis, schizophrenia, bipolar disorder, or severe depression, can no longer make any decisions about his or her treatment. SDM requires that the person with lived
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experience of psychosocial disability is at the center of all decision-making about their care, support, and treatment and that every attempt is made to ensure that they can exercise their legal capacity to the greatest extent possible (Brophy et al. 2018a; Campbell et al. 2018). The implementation of SDM requires the development of safeguards and mechanisms to ensure that people living with disability have an opportunity to exercise their legal capacity. Mechanisms may include advance directives, access to advocacy, and enhancing the role of informal supporters. Safeguards may also be understood as attempts to restrict the use of coercive interventions and involuntary orders. Callaghan and Ryan (2016) suggest that: a true supported decision making model will require that all decisions are guided by a patient’s will and preferences – even where decision making is made via a substitute decision maker. (p. 617)
Hence SDM may still be relevant even in a situation where substitute decisionmaking is also permissible, such as when a person is on an involuntary order. Research in Victoria, Australia, has developed the model presented in Fig. 1 to describe the potential mechanisms to enable supported decision-making (Kokanović et al. 2018). The model refers to legal mechanisms, such as advance directives, advance statements, and similar documents that assist people to inform others, including service providers and informal supporters, about their treatment preferences when, due to their mental health, their ability to communicate or make decisions might be impaired. These, along with other examples such as access to advocacy, having a Fig. 1 Guidelines for supported decision-making in mental health services (Brophy et al. 2017, p. 8)
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nominated person and having the right to access a second opinion are potentially the key to transforming mental health service delivery in the ongoing commitment to SDM. However, it is unlikely that legal mechanisms alone can support this change. Mental health practitioners, including social workers, require advanced interpersonal skills, and consumers require opportunities for empowerment including access to information and peer support. Finally, in order to embed new ways of working and operating, strong leadership and management that support these changes are required (Brophy et al. 2017; Kokanović et al. 2018). In summary SDM is seen as an opportunity to promote citizenship and support people with disability, including psychosocial disability, to exercise their human rights and make decisions that promote their autonomy and potentially improve their (and their families and carers) engagement with services because they have been listened to and respected. Although the drivers are different, there are strong links between SDM and the recovery paradigm (Gooding 2013). Both the recovery paradigm and SDM appear to be in line with the reforms that many people in the mental health consumer movement have been striving for over many years, including a stronger focus on human rights, reducing coercive practices and challenging stigma and discrimination (Slade et al. 2012).
Community Treatment Orders When on a community treatment order (CTO), a person is required to agree to psychiatric treatment in the community, usually medication, or otherwise be forced to return to a psychiatric hospital for ongoing involuntary treatment. These orders are otherwise known as compulsory community treatment or involuntary outpatient commitment, but they share similarities in having particular criteria that need to be met that usually include the person being assessed as having a mental illness, identified as at risk to themselves or other people, and no less restrictive option for treatment being available (Brophy et al. 2018b). As of 2000, all Australian states and territories had CTOs, and the use of CTOs has expanded internationally (Brophy et al. 2018a, b). However, while they are included in mental health legislation in many parts of the world, including in Asia where there is gradually an increased emphasis on care in the community, some countries have resisted introducing CTOs (Brophy et al. 2018b; Nagra et al. 2016). This is potentially because CTOs have long been considered to be a controversial form of coercive power. On the one hand, supporters of CTOs tend to suggest that CTOs serve the interests of a large group of people with complex needs and serious mental illness who require assertive follow-up in the community, following the closure of large institutions or limited availability of inpatient facilities. For many this may require an involuntary order to achieve compliance with treatment (Brophy and McDermott 2003). Alternatively, others argue that people on CTOs are continuing to grow as a relatively invisible, marginalized group who are subject to fundamental human rights violation in the community (Brophy and McDermott 2003; Newton-Howes and Ryan 2017).
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Social factors such as lack of adequate resources for community mental health services and the emphasis on risk management discussed above also impact on the use and potential abuse of CTOs. Concerns about CTOs have included that they may be overused, too long, and used without evidence for their effectiveness (Nagra et al. 2016). There are international concerns about people from ethnic minority groups being overrepresented in the people on CTOs (Mfoafo-M’Carthy 2014; Kisely and Xiao 2018; Gibbs et al. 2005). Newton-Howes and Ryan (2017) express concerns about CTOs being used in situations when a person appears to be competent to refuse treatment, seeing this as particularly discriminatory when it is so inconsistent with ethical obligations in other health contexts. CTOs also have the potential to have a profound effect on the recipient’s well-being, not only in terms of treatment compliance but also in relation to other issues such as empowerment and sense of self-efficacy (Brophy and McDermott 2013). CTOs are also having an impact on how mental health services operate. It is possible that they are increasing the reliance on coercion to achieve compliance with medication and fostering this being the primary purpose of community-based mental health practitioners (Light et al. 2017). This is therefore prioritized over investing in relationship building and innovations to improve engagement and satisfaction with treatment and care and perhaps compensating for underinvestment in community mental health (Brophy and McDermott 2013; Light et al. 2017). There have been ongoing attempts in many jurisdictions internationally to establish evidence to support the effectiveness of CTOs, but the findings, from a broad range of studies, have tended to be contradictory and inconclusive (Brophy et al. 2018b). A Cochrane systematic review of the evidence (Kisely et al. 2017) found that there was: no clear difference in service use, social functioning or quality of life compared with voluntary care or brief supervised discharge. People receiving CCT (compulsory community treatment) were, however, less likely to be victims of violent or non-violent crime. It is unclear whether this benefit is due to the intensity of treatment or its compulsory nature. (p. 2)
Qualitative studies tend to have mixed findings regarding the experience of people on CTOs and those involved in their care and treatment (Corring et al. 2017). It is commonly found that, even when some benefits are acknowledged, such as improved access to care and treatment and the provision of structure and support for people who are struggling with severe mental health issues, there is concern about coercion and disempowerment. Brophy and McDermott (2013) have identified five principles to guide good social work practice from their mixed methods study that included interviews with people on CTOs, their families, and other supporters and staff. These principles are as follows: (1) use and develop direct practice skills, (2) take a human rights perspective, (3) focus on goals and desired outcomes, (4) aim for quality of service delivery, and (5) enhance and enable the role of key stakeholders (with the person at the center of any decision). Further guidance for social workers about these principles is provided by Brophy et al. (2018a). It is important to recognize how these
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principles are now being shaped by the influence of the recovery paradigm, the CRPD, and a more critical engagement with power in mental health social work practice.
Advocacy For social workers working in clinical services and statutory roles, attempting to combine advocacy regarding involuntary status with their provision of (sometimes compulsory) care and treatment is problematic. It may be more appropriate for social workers to advocate in relation to positive, or second-generation, human rights and those emphasizing access to care and treatment, citizenship, and empowerment (Brophy 2009). Social workers throughout the world have a current opportunity to advocate on behalf of and alongside people with psychosocial disability and cognitive impairment to ensure that rights conferred on them by the CRPD are realized. There is also a persistent need to ensure people have information about their rights and access to independent advocacy. Social workers need to develop their knowledge regarding legal mechanisms for SDM while also valuing the persons’ lived experience, and also that of their families and carers. As discussed above, social workers have numerous skills and have the potential to further opportunities for improving SDM in everyday practice and service delivery. For example, this may involve beginning with supporting legal and rights-based mechanisms including advance statements. Advance statements have been found to assist to prevent readmission to hospital and have a positive impact on reducing coercive practice, and yet uptake and appropriate implementation of advance statements are a consistent problem (Maylea et al. 2018). Facilitating and supporting the work of peer workers and independent advocates may be important when social workers are part of the service system that is enabling coercion – it may be inauthentic for social workers to try to hold a dual role in these circumstances. However, demonstrating an ability to listen and be respectful and being prepared to sometimes have challenging conversations with people and their families and carers are all aspects of good social work practice that need to be promoted and consolidated to enable social workers to offer authentic individual advocacy. The CRPD also supports social workers who are engaged in systemic advocacy because of opportunities to identify practices, policy, and law that is incompatible with the convention, therefore acting as leverage for service and practice improvements likely to be consistent with social work’s emancipatory value base. McSherry and Maker (2018) refer to the World Health Organization Quality Rights Initiative. This program “offers guidance and materials to enable low-, middle- and high-income countries to implement policies, strategies, laws and services that comply with international human rights standards” (McSherry and Maker 2018, p. 317). Training tools and guidance modules aim to build capacity among mental health practitioners; people with psychosocial, intellectual, and cognitive disabilities; people using mental health services; families; and other
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stakeholders and stimulate transformative collaborative and participatory projects that promote respect for recovery and human rights.
Emancipatory Values and Empowerment Social work’s emancipatory values have emerged out of the growing awareness of structural oppression (Thompson 2015). Oppression is not necessarily outside people’s day-to-day experience and can be the result of a well-meaning liberal society’s actions (Young 1990). It is reproduced by the systemic structures that such a society maintains. According to Rivest and Moreau (2014): Over the last decades, empowerment has become one of the defining concepts of twenty first-century social work practice. (p. 1855)
Enabling empowerment involves connecting the personal to the political and recognizing the broader sociopolitical context of any situation (Rivest and Moreau 2014). Powerlessness and injustice can contribute to mental health difficulties alongside other social determinants such as trauma, poverty, and social isolation (Tew et al. 2012). Acknowledging social determinants assists to reject the most reductionist elements of a biomedical approach in mental health service delivery. Alternatively, it encourages more integrated interventions such as the bio-psycho-social model, strengths-based practice, and a recovery-oriented approach. The experience of coercive interventions, compulsory treatment, and stigma and discrimination contributes to the experience of a loss of self-efficacy. Alternatively, the emancipatory values of contemporary social work emphasize entering into a partnership with consumers and developing authentic relationships. These relationships attempt to empower consumers with an overall aim of achieving a greater degree of social justice while attempting to address social inequalities (Brophy 2009; Thompson 2015). Thinking critically about empowerment and avoiding the potential for this to overstate people as “vulnerable” rather than “rights holders” may be a valuable approach to contemporary mental health social work (Rivest and Moreau 2014; Butler et al. 2016). Furthermore, enabling empowerment needs to be considered in its cultural context. While it may be appropriate to focus on individuals in some cultures, in others a more collective view, which acknowledges the importance of family and community in people’s experience of empowerment, may help to guide social work practice. However, both are likely to be valuable (Tew et al. 2012).
Conclusion In considering law and mental health, social workers play important roles, as case managers, supervisors, community members of boards or tribunals, policymakers, and managers. Risk management and procedural approaches to service provision,
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rather than recovery-oriented practice, may be persistent features of the mental health system, but social workers have the potential to “smuggle in” their ideas and encourage a more critical discourse (Brophy 2009, p. 80). Encouraging systemic and individual advocacy and supporting empowerment, particularly through enhancing relationships, working alongside peer support workers, and engaging with co-production, provide opportunities for fundamental social work values and principles to be realized in practice. Providing advocacy, giving people greater choice and control, and other strategies to empower people actually help to engage people in treatment and enhance personal recovery. Listening, ensuring consumers of mental health services feel heard and have the support they need to express their preferences on an equal basis with others and knowing not only what choices the person wants to make but why, is the challenge that supported decision-making sets for us. Social workers are very well placed to respond to the challenges required to uphold the CRPD and ensure that mental health practice, policy, and law work to reduce the use of coercive interventions and enhance social justice and human rights.
Cross-References ▶ Community and Mental Health ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice
References Adams R, Dominelli L, Payne M (2002) Anti-oppressive practice. Palgrave Macmillan, Basingstoke Baldry E, Sotiri M (2014) Corrections, social work and prisons. In: Rice S, Day A (eds) Social work in the shadow of the law, 4th edn. The Federation Press, Annandale, pp 80–95 Bird V, Leamy M, Tew J et al (2014) Fit for purpose? Validation of a conceptual framework for personal recovery with current mental health consumers. Aust N Z J Psychiatry 48(7):644–653 Boardman J, Roberts G (2014) Risk, safety and recovery. Available vis Implementing recovery through organisational change (ImROC). https://imrocorg/resources/9-risk-safety-recovery/. Accessed 17 Sept 2018 Bracken P, Thomas P, Timimi S et al (2012) Psychiatry beyond the current paradigm. Br J Psychiatry 201(6):430–434 Brophy LM (2009) Using the emancipatory values of social work as a guide to the investigation: What processes and principles represent good practice with people on community treatment orders? PhD thesis, School of Nursing and Social Work, The University of Melbourne Brophy L, Healy B (2014) Mental health: Mental health law and its implications for social work practice, (Chapter 15) in Rice, S and Day, Social Work in the Shadow of the Law, 4th Edition. The Federation Press, Sydney Brophy L, McDermott F (2003) What’s driving involuntary treatment in the community? The social, policy, legal and ethical context. Australas Psychiatry 11(sup1):S84–S88 Brophy L, McDermott F (2013) Using social work theory and values to investigate the implementation of community treatment orders. Aust Soc Work 66(1):72–85
514
L. Brophy
Brophy L, Roper C, Hamilton B et al (2016) Consumers ‘and their supporters’ perspectives on barriers and strategies to reducing seclusion and restraint in mental health settings. Aust Health Rev 40(6):599–604 Brophy L, McSherry B, Kokanovic R et al (2017) Guidelines for supported decision-making in mental health services. University of Melbourne, Melbourne. http://healthtalkaustralia.org/wpcontent/uploads/2017/09/Guidelines-for-Supported-Decision-Making-in-Mental-Health-Ser vices.pdf. Accessed 26 Dec 2019 Brophy L, Healy B, Maylea C (2018a) Mental health law and its implications for social work practice. In: Rice S, Day A, Briskman L (eds) Social work in the shadow of the law, 5th edn. The Federation Press, Sydney, pp 277–297 Brophy L, Ryan C, Weller P (2018b) Community treatment orders: the evidence and the ethical implications. In: Spivakovsky C, Seear K, Carter A (eds) Critical perspectives on coercive interventions. Routledge, London, pp 42–55 Butler J, Gambetti Z, Sabsay L (eds) (2016) Vulnerability in resistance. Duke University Press, Durham Callaghan S, Ryan CJ (2016) An evolving revolution: evaluating Australia’s compliance with the Convention on the Rights of Persons with Disabilities in mental health law. Univ NSW Law J 39:596 Campbell J, Davidson G (2009) Coercion in the community: a situated approach to the examination of ethical challenges for mental health social workers. Ethics Soc Welf 3(3):249–263 Campbell J, Brophy L, Davidson G et al (2018) Legal capacity and the mental health social worker role: an international comparison. J Soc Work Pract 32(2):139–152 Carroll A, McSherry B (2015) Making defensible decisions in the era of recovery and rights. Australasian Psychiatry (first online) 26(5):474–477 Chung DT, Ryan CJ, Hadzi-Pavlovic D et al (2017) Suicide rates after discharge from psychiatric facilities: a systematic review and meta-analysis. JAMA Psychiat 74(7):694–702 Convention on the Rights of Persons with Disabilities (CRPD) (2007) (resolution 61/106), opened for signature on 30 March 2007, entered into force into force on 3 May 2008 Corring D, O’Reilly R, Sommerdyk C (2017) A systematic review of the views and experiences of subjects of community treatment orders. Int J Law Psychiatry 52:74–80 Courtney M, Moulding NT (2014) Beyond balancing competing needs: embedding involuntary treatment within a recovery approach to mental health social work. Aust Soc Work 67 (2):214–226 Davidson G, Brophy L, Campbell J et al (2016a) An international comparison of legal frameworks for supported and substitute decision-making in mental health services. Int J Law Psychiatry 44:30–40 Davidson G, Brophy L, Campbell J (2016b) Risk, recovery and capacity: competing or complementary approaches to mental health social work. Aust Soc Work 69(2):158–168 Dawson J, Szmukler G (2006) Fusion of mental health and incapacity legislation. Brit J Psychiat, 188:504–509 Deegan P (2005) The importance of personal medicine: a qualitative study of resilience in people with psychiatric disabilities. Scand J Public Healt, 33(66_suppl):29–35 Department of Health and Substance Abuse (2017) WHO Quality Rights: Act, Unite and Empower. WHO, Geneva. http://www.who.int/mental_health/policy/quality_rights/en/. Accessed 23 Sept 2009 Fletcher J, Hamilton B, Kinner S, Sutherland G, King K, Tellez JJ, Harvey C, Brophy L (2018) Working towards least restrictive environments in acute mental health wards in the context of locked door policy and practice. International Journal of Mental Health Nursing. (first online) 28(2):538–550 Gibbs A, Dawson J, Mullen R (2005) Community treatment orders for people with serious mental illness: a New Zealand study. Br J Soc Work 36(7):1085–1100 Gooding P (2013) Supported decision-making: a rights-based disability concept and its implications for mental health law. Psychiatry Psychol Law 20(3):431–451
24
Legal Provisions, Advocacy, and Empowerment
515
Gooding P (2017) A new era for mental health law and policy: supported decision-making and the UN convention on the rights of persons with disabilities. Cambridge University Press, Cambridge Government UK (2018) Final report of the Independent Review of the Mental Health Act 1983. December 2018. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/ attachment_data/file/762206/MHA_reviewFINAL.pdf. Accessed 26 Dec 2018 Harding R (2017) What is legal capacity? Available from legal capacity. http://www.legalcapacity. org.uk/everyday-decisions/what-is-legal-capacity/. Accessed 30 May 2018 Human Rights Council (2017) Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health, 35th session, UN Doc A/HRC/35/21. https://documents-dds-ny.un.org/doc/UNDOC/GEN/G17/076/04/PDF/ G1707604.pdf?OpenElement. Quoted in McSherry and Maker, 2018 Hyde B, Bowles W, Pawar M (2015) ‘We’re still in there’ – consumer voices on mental health inpatient care: social work research highlighting lessons for recovery practice. Br J Soc Work 45 (suppl_1):i62–i78 Ife J (2012) Human rights and social work: towards rights-based practice. Cambridge University Press, Cambridge International Federation of Social Workers (2014) Global definition of social work. Available via International Federation of Social Workers. Accessed 17 Sept 2018. https://www.ifsw.org/whatis-social-work/global-definition-of-social-work/ Kisely S, Xiao J (2018) Cultural and linguistic diversity increases the likelihood of compulsory community treatment. Schizophr Res 197:104–108 Kisely SR, Campbell LA, O’Reilly R (2017) Compulsory community and involuntary outpatient treatment for people with severe mental disorders. Cochrane Database Syst Rev (3):542–543 Kokanović R, Brophy L, McSherry B, Flore J, Moeller-Saxone K, Herrman H (2018) Supported decision-making from the perspectives of mental health service users, family members supporting them and mental health practitioners. Aust N Z J Psychiatry 52(9): 826–833 Light EM, Robertson MD, Boyce P et al (2017) How shortcomings in the mental health system affect the use of involuntary community treatment orders. Aust Health Rev 41(3):351–356 Maylea CH (2017) A rejection of involuntary treatment in mental health social work. Ethics Soc Welf 11(4):336–352 Maylea C, Jorgensen A, Matt S et al (2018) Consumers’ experiences of mental health advance statements. Laws 7(2):22 McSherry B (2008) Protecting the integrity of the person: developing limitations on involuntary treatment. Law Context 26:111 McSherry B, Maker Y (2018) International human rights and mental health: challenges for law and practice. J Law Med 25(2):315–319 McSherry B, Wilson K (2015) The concept of capacity in Australian mental health law reform: going in the wrong direction? Int J Law Psychiatry 40:60–69 Mfoafo-M’Carthy M (2014) Community treatment orders and the experiences of ethnic minority individuals diagnosed with serious mental illness in the Canadian mental health system. Int J Equity Health 13(1):69–79 Molodynski A, Rugkåsa J, Burns T (2010) Coercion and compulsion in community mental health care. Br Med Bull 95(1):105–119 Moss K, Wyder, M, Braddock V, Arroyo D, Kisely S (2019) Compulsory community treatment and ethnicity: findings from a culturally and linguistically diverse area of Queensland. Int J Law Psychiatry. (first online) 62:154–159 Nagra MK, Pillinger T, Prata-Ribeiro H et al (2016) Community Treatment Orders – a pause for thought. Asian J Psychiatr 24:1–4 Newton-Howes G, Ryan CJ (2017) The use of community treatment orders in competent patients is not justified. Br J Psychiatry 210:311–312
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Nyttingnes O, Ruud T, Rugkåsa J (2016) ‘It’s unbelievably humiliating’ – patients’ expressions of negative effects of coercion in mental health care. Int J Law Psychiatry 49:147–153 Parker I (2014) Madness and justice. J Theor Philos Psychol 34(1):28–40 Perkins R, Repper J, Rinaldi M et al (2012) Recovery Colleges briefing paper. Centre for Mental Health, London Ramon S (2006) Risk avoidance and risk taking in mental health social work. In: Sapouna L, Herrmann P (eds) Knowledge in mental health: reclaiming the social. Nova Science Publishers, Inc., New York, pp 39–56 Rivest MP, Moreau N (2014) Between emancipatory practice and disciplinary interventions: empowerment and contemporary social normativity. Br J Soc Work 45(6):1855–1870 Roberts G, Boardman J (2013) Understanding ‘recovery’. Adv Psychiatr Treat 19(6):400–409 Roper C (2018) Capacity does not reside in me. In: Spivakovsky C, Seear K, Carter A (eds) Critical perspectives on coercive interventions: law, medicine and society. Routledge, London, pp 97–108 Slade M, Adams N, O’Hagan M (2012) Recovery: past progress and future challenges. Int Rev Psychiatry 24(1):1–4 Stone K (2018) Approved mental health professionals and detention: an exploration of professional differences and similarities. Practice 31(2):83–96 Stratford A, Kusuma N, Goding M et al (2014) Introducing recovery-oriented practice in Indonesia: the Sukabumi project–an innovative mental health programme. Asia Pac J Soc Work Dev 24(1–2):71–81 Sykes MJ, Brabban A, Reilly J (2015) Balancing harms in support of recovery. J Ment Health 24(3):140–144 Szmukler G (2008) Treatment pressures, coercion and compulsion in mental health care. J Ment Health 17(3):229–231 Tew J, Ramon S, Slade M et al (2012) Social factors and recovery from mental health difficulties: a review of the evidence. Br J Soc Work 42:443–460 Thompson N (2015) Understanding social work: preparing for practice. Palgrave Macmillan, London Thornicroft G, Henderson C (2016) Joint decision making and reduced need for compulsory psychiatric admission. JAMA Psychiat 73(7):647–648 Waddington L, McSherry B (2016) Exceptions and exclusions: the right to informed consent for medical treatment of people with psychosocial disabilities in Europe. Eur J Health Law 23(3):279–304 Wyder M, Bland R et al (2015) Therapeutic relationships and involuntary treatment orders: service users’ interactions with health-care professionals on the ward. Int J Ment Health Nurs 24(2):181–189 Wyder M, Bland R et al (2016) The importance of safety, agency and control during involuntary mental health admissions. J Ment Health 25(4):338–342 Young IM (1990) Justice and the politics of difference. Princeton University Press, Princeton Zinkler M (2016) Germany without coercive treatment in psychiatry – a 15-month real world experience. Laws 5(1):15
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . How Big Is the Problem? Poverty and Mental Illness Around the World . . . . . . . . . . . . . . . . . . . . . Poverty . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Effects on Individuals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Poverty . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Employment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Debt . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cognitive Function and Psychological Well-Being . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Summary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Effects on Children and Families . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Implications for Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Financial Counseling and Addressing Debt . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Improving Mental Health and Work Outcomes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Supporting Whole Families . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Tackling Structural and Multiple Factors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Culturally Appropriate Interventions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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I. Y. H. Ng (*) Department of Social Work and Social Service Research Centre, National University of Singapore, Singapore, Singapore e-mail: [email protected] T. R. Shanks School of Social Work, University of Michigan, Ann Arbor, MI, USA e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_19
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Abstract
This chapter discusses the mental health effects of financial challenges on an individual, as well as on families and children. It also proposes potentially effective strategies for tackling economic and mental distress given the correlation between mental and financial well-being. Financial challenges are scoped within the context of urban poverty and the related issues of unemployment, job conditions, and debt. Mental health is more broadly defined and can encompass general psychological well-being, stress, or severe mental disorders, depending on the relevant studies and models discussed. While different sources of financial challenges have different effects on different types of mental wellbeing, it appears that generally economic distress and poor mental health negatively reinforce each other in ways that have ripple effects on the family and intergenerational effects on children. The consequences become more deleterious when considered alongside other effects, such as impaired cognitive functioning or the trauma effects of adverse child experiences (ACE). In terms of interventions, then, it is important to develop a comprehensive set of responses that takes into consideration the challenges faced by both mental illness and poverty/ economic strain, tackles both individual and environmental/structural factors, and supports the whole family. Initiatives such as supported employment, financial or mobility coaching, early intervention, universal basic income (UBI), child accounts, and trauma-informed practice are highlighted as examples with the potential to address financial and mental distress more holistically. Keywords
Mental health · Financial challenges · Poverty · Trauma · Holistic interventions
Introduction Financial hardship places people into great mental stress. However, in order to assess meaningfully how to intervene, one needs to understand the mechanisms behind how financial hardship correlates with mental health. This chapter will draw from the extant literature to first outline the relationship between financial challenges and mental health. It will discuss the mental health of adults, children, and families. From these insights, it dives into intervention studies and proposes points of intervention that seem to have more effectiveness in overcoming financial hardship on one hand and mental disorder on the other. Financial challenges will refer to urban troubles of poverty, debt, unemployment, job insecurity, and various poor job conditions. In the modern world of work, livelihood is tied intricately to paid employment. These financial challenges can lead to greater economic stress among family members – as illuminated in the family stress model and less investment in children – as highlighted in the family investment model (Conger and Donnellan 2007). The chapter will exclude rural financial challenges,
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which are of a different nature from urban financial troubles, issues around uncertainties of weather, harvest, and access to markets. The chapter also excludes financial challenges faced by higher-income individuals and families, focusing instead on the compounding effects of experiencing financial hardship under poverty. The scope for mental health will be broader, as derived from the repeated findings from studies that show correlation with the above categories of financial challenges. These include psychological well-being measures of life satisfaction on one hand and severe mental disorders and consequences such as schizophrenia and suicide on the other hand. A few studies also looked at common mental disorders (CMD), which refers to symptoms of anxiety, depression, and other unexplained somatic symptoms (Lund et al. 2010; World Health Organization 2017).
How Big Is the Problem? Poverty and Mental Illness Around the World Poverty The prevalence of poverty depends on how poverty is conceptualized. The narrowest definitions of poverty use absolute dollar values, whereas the broadest definitions include other dimensions such as amenities, education, and even social participation. Naturally, then, the broader the definition, the higher the poverty rate. The thresholds set by the World Bank can be considered as the narrowest poverty thresholds. The World Bank sets US$1.90 a day as the extreme poverty level, US$3.20 a day as the poverty level in lower middle-income countries, and US$5.50 a day as the poverty level in upper middle-income countries (World Bank 2018). In 2015, about 10% of people globally lived in extreme poverty, about a quarter lived under US$3.20 a day and about half lived under $5.50 a day. These reported poverty rates suggest that even with these narrow definitions, a large proportion of the world is living in poverty, and in some countries, they even form the majority. Most high-income countries adopt relative poverty measures rather than an absolute line. The idea behind taking a relative poverty view is that of exclusion, because poverty causes someone not to be able to afford the activities and opportunities of the average person in society. For example, the OECD sets relative poverty at 0.5 of median income. An Asian economy, Hong Kong, has also adopted this as its poverty measure. Using this definition, Scandinavian countries such as Denmark and Finland score the lowest poverty rates at below 7%, and Hong Kong and the USA score the highest at above 16%. Other economies such as Germany, New Zealand, and Canada fall somewhere in-between (Ng 2018). The review of the extant literature in this chapter will depend largely on how authors themselves conceptualize poverty. For example, in a well-known study of the effects of poverty on cognitive function, Mani et al. (2013) defined poverty broadly as “the gap between one’s needs and the resources available to fulfill them.”
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Table 1 Lifetime prevalence rates of major depressive symptoms (MJD) and generalized anxiety disorder (GAD) USA Europe China Australia New Zealand Singapore
MJD (%) 16.6 12.8 3.6 11.6 16.6 5.8
GAD (%) 5.7 4.1 0.8 5.9 6.0 0.9
Source: Table 5 of Chong et al. (2012)
From the above narrow and broad definitions of poverty, it can be seen that when contextualized, poverty is far from a problem of only a minority few.
Mental Illness Despite its stigma, mental illness is also not so uncommon. Table 1 is extracted from Table 5 in Chong et al. (2012). It shows the lower prevalence of depression and anxiety in two Asian countries compared to four Western countries/regions. There could be cultural variations in reporting that makes the prevalence rates much lower in Asia, for example, underreporting to save face or inappropriateness of the American instruments for Asians. With this in mind and given that the table lists the rates for only two types of mental disorders, the rates for major depressive symptoms (MJD) and generalized anxiety disorder (GAD) suggest that at the lowest end, 5% of a population could have a mental illness, and at the higher end 30% of a population could have a mental illness.
Effects on Individuals Poverty That poverty and mental health are correlated has been indisputably established. Of greater interest to research and implications for action is the mechanism that relates poverty and mental health. Evidence for the social selection or drift theory, where mental disorder leads to a drift into poverty, is strong (Saraceno et al. 2005; Lund et al. 2010). Conclusions testing the effects of the social causation hypothesis, where poverty leads to mental disorder, is more mixed. In the latter body of research, it seems that the results depend on the type of indicator used as “poverty” and the type of mental disorder matters also. In the systematic review by Lund et al. (2010), “while variables such as education, food insecurity, housing, social class, socioeconomic status and financial stress exhibit a relatively consistent and strong association with CMD (Depression, anxiety, and somatoform disorders), others
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such as income, employment and particularly consumption are more equivocal” (p. 517). In the review by Saraceno et al. (2005), there was more evidence for social causation for depression than for schizophrenia. In addition, the evidence from these studies which found earlier onset and higher prevalence of depression when parents are low educated also provides strong intuition that lower familial socioeconomic status leads to depression. It is also interesting that one study by Santiago et al. (2011) found that among low-income respondents, those with higher SES (a composite index of educational and occupational status) had worse mental health outcomes than those with lower SES. Thus, despite the mixed results on social causation, the various reviews have concluded that there is something about living in financial adversity and experiencing material deprivation that is deleterious to mental health. Furthermore, the social drift theory also shows that while mental disorder leads to poverty, being in poverty also leads to lower chances of recovery from mental disorder. That is, the drift out of mental disorder is harder when poor. The practice implications of these findings are that even if there is greater evidence in support of social selection than social causation, poverty alleviation continues to be part of the solution to addressing mental disorders.
Employment Another important aspect of urban poverty and financial challenge is employment. Increasing job insecurity and deteriorating job conditions of lower-wage workers are being documented worldwide (e.g., Rodgers and Rodgers 1989; Gautié and Schmitt 2010). Although the review by Lund et al. (2010) did not find consistent correlations between unemployment and mental disorder, a meta-analysis by Milner et al. (2014) found that unemployment increased the risk of suicide, with the effects largely mediated through mental disorder. The effects were stronger for males. Beyond unemployment, a two-wave study by Niedhammer et al. (2015) in France found that “low reward and job insecurity predicted major depression, and psychological demands, low reward, emotional demands and job insecurity predicted generalized anxiety disorder.” Butterworth et al. (2013) also found higher prevalence of CMD among both the unemployed and those in the poorest-quality jobs in the United Kingdom. Although the cross-sectional nature of the study prevents a causal conclusion, an important implication to further explore is that being employed is not necessarily better for one’s mental health if job conditions are bad. The debate on social causation and social selection again surfaces with employment, bad jobs, and mental disorder. Along with the studies above that found effects of employment conditions on mental health, other studies have found that poor mental health leads to unemployment (Cook et al. 2005; Kaspersen et al. 2016, in Norway). However, the conclusion is likely similar to that for poverty where both directions of causality contribute to a downward spiral. For example, Stansfeld et al. (2008) found that internalizing behavior in childhood and psychological distress in early adulthood predicted adverse work characteristics at age 45 but that adverse job
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characteristics predicted psychiatric disorders even after controlling for childhood and early adulthood mental health preconditions. The latter result was concluded as supporting the job strain model, where high job demands, low decision latitude (low control over working environment and low discretion to apply skills), and low social support combine to distress workers psychologically.
Debt Another important financial challenge in poverty is debt. Several studies point to the devastating effect of unsecured debt (secured debt for college, for instance, can have positive effect; Zurlo et al. 2014) on depression, psychological well-being, anxiety, other mental disorders, drug dependence, and suicide (Meltzer 2013 in England; Richardson et al. 2013 in the USA and Europe; Zurlo et al. 2014 in the USA; Ong et al. 2019 in Singapore; Ng et al. 2017 in Singapore). Other studies show the mediating effect of debt between socioeconomic status and mental health (Jenkins et al. 2008 in the UK; Milner et al. 2014 in Denmark, Sweden, Australia). Several of these studies also found that it is the number of types of debts that result in mental problems (Jenkins et al. 2008; Meltzer et al. 2013; Ong et al. 2019; Ng et al. 2018). Although the studies and reviews caution against making conclusions on causality, the direction of causality in these studies is mostly from debt to mental health. It appears that distress and anxiety experienced from being in debt are key channels through which poverty adversely affects one’s mental health. For example, Ong et al. (2019) measured the effect of a one-time debt relief program for low-income individuals. It was found that generalized anxiety disorder significantly decreased after the debt relief, and the effect was sustained a year after. In Selenko and Batinic (2011), the effect of debt on mental health in Austria is moderated through perceived financial strain. In Meltzer et al. (2013), the effect of debt on CMD in England is mediated by addictive behavior, which can be construed as a maladaptive coping behavior that leads instead to mental disorder.
Cognitive Function and Psychological Well-Being While mental health is itself an important outcome for individual well-being, the relationship between financial challenges and mental health has also been studied alongside other related outcomes such as cognitive function and psychological wellbeing. In the oft-cited two-part study by Mani et al. (2013), poverty is shown to impede cognitive function through an experiment and an empirical real-world comparison. The experiments found that when induced with thoughts about finances, the cognitive performance of nonpoor participants were not affected but that of poor participants deteriorated. The empirical part of the study administered cognitive tasks on poor sugarcane farmers in India. Such small farmers are poorer before harvest, often taking loans or pawning items. They are richer after harvest, when income is reaped from selling their produce. Indeed, the farmers were found to
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have higher cognitive performance after harvest, when rich, than before harvest, when poor. Besides the effect of debt relief on anxiety reported earlier, Ong et al. (2019) also found that the debt relief improved cognitive performance. However, while anxiety was affected by the number of debts relieved, cognitive performance was affected by the amount of debt relieved. The findings from these behavioral studies point to related but different mechanisms in which financial hardship affects mental health and functioning. Similarly, Ng et al. (2018) found that the propensity to return for government assistance depends on the number of debts owed, not the magnitude of the debts. The exact mechanisms might be areas of further study. Psychological well-being might seem similar to mental health, but Flèche and Layard (2017) argue that the two are distinct psychological concepts. Life satisfaction, measured on a ten-point scale, is a common measure used in international surveys to represent psychological well-being. Defining misery as scoring among the lowest in life satisfaction and mental illness as having been diagnosed with a mental disorder, Fleche and Layard found that the correlation between misery and mental illness is only between 0.1 and 0.4 in their set of panel data from Australia, Germany, the UK, and the USA. They argued that the low correlation suggests that the two are distinct concepts. However, through multiple regressions, they also found that poverty, unemployment, physical health, and mental health all significantly predicted misery, but the largest effect was from mental health. Thus, economic distress and mental health both exerted adverse effects on psychological well-being. An important insight from the above studies that look at mental health along with other outcomes is that mental health or mental illness, while of important consequence itself, does not necessarily lead to poor quality of life or functioning. However, poverty makes that link strong, and the chances of delinking poor mental health and low quality of life are difficult when one is poor.
Summary Figure 1 summarizes the various interconnections of financial challenge and mental health discussed in this section. The main effects are horizontal from left to right. First, growing up in a family with low SES increases the risk of early onset of psychological distress, which in turn increases the chances of poverty, unemployment, or poor job quality. Each of these poor economic conditions has bidirectional effects with various forms of mental illness, as seen from the blue arrows, as well as the orange arrow leading from mental illness back to the three economic conditions. Besides direct effects of poverty on mental illness, debt forms an important intermediary between poverty and mental illness and also between poverty and suicide. In addition, unemployment also increases suicide risk, either directly or through mental illness. Following the black arrows upward, poverty and mental illness also impair cognitive function, but the evidence has not shown effects of poverty on cognitive function through mental illness or of mental illness on cognitive function through poverty.
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Fig. 1 A possible model of the transactional effects of financial hardship and mental health
Finally, Fig. 1 also includes intergenerational effects, which is the focus of the next section.
Effects on Children and Families Chapter 22 of this book by Campbell and Poon discusses the parenting challenges of people with mental illness. In contrast, this section focuses in some detail on the social and mental health consequences of SES and financial issues within families. Over time there has been extensive research documenting that children from low-SES households do poorer than their higher-SES counterparts (Duncan and Brooks-Gunn 1997; McLoyd 1998; Evans 2004; Duncan Ziol-Guest and Kalil 2010; Williams Shanks and Robinson 2013). Poverty and its correlates can strongly influence both health and mental health outcomes in children and adolescents. Specifically, poverty and low SES are associated with depressive symptoms, antisocial behavior, difficulties in peer relations, low self-esteem, conduct problems, anxiety, social withdrawal, and suicide attempts (Bolger et al. 1995; Goodman 1999; Strohschein 2005; Currie and Lin 2007; Goosby 2007). There are also distinctions by gender, with persistent economic hardship leading to more pronounced externalizing behavior among boys (Bolger et al. 1995) and adolescent females more likely to report depression and at least one suicide attempt (Goodman 1999). In addition, poor children are more likely to have activity limitations resulting from whatever health and mental health problems that exist (Currie and Lin 2007). Although persistent poverty influences both child mental health and maternal psychological resources, maternal depression and sense of mastery seem to mediate adolescent outcomes, buffering the effects of economic strain (Goosby 2007). This section will focus on the theoretical and practical reasons for such trends, with a focus on family functioning.
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There are competing models of how economic status influences family functioning and child outcomes. Well-known theories focus on family stress and parental economic investment (Conger and Donnellan 2007). The family stress model focuses on the impact of unmet material need. When parents are unable to pay bills and have to cut back on necessary expenses, this model predicts that parents face high levels of economic pressure, emotional stress (including depression, anxiety, and alienation), and behavioral problems, which lead to marital conflict and less parental involvement and nurturing along with increased irritability and harsher parenting. These patterns can lead to less positive adjustment for children and increase in internalizing and externalizing behavior (Conger and Conger 2002; Conger and Donnellan 2007; Neppl et al. 2016). Internalizing behavior includes anxiety and depressive symptoms. Externalizing behaviors include aggressive behavior and substance abuse and typically come from the Child Behavior Checklist, which includes attention problems in younger children and rule-breaking in older children. Economic hardship is thought to influence child outcomes indirectly. The focus is on how the emotional distress of economic pressure disrupts both romantic relationships among caregivers and nurturing parenting (Conger et al. 2010). The emotional stress experienced by the adults in the family disrupts relationships in ways that negatively influence children. If parents manage to cope with the economic pressure and avoid conflict and harsh parenting, children do better. However, the relationship between income and child social and cognitive outcomes through family processes could be strongest for poorer families (Mistry et al. 2004). Although the basic process in the family economic stress model remains similar, there also might be nuanced differences among different racial, ethnic, and cultural groups (McLeod and Nonnemaker 2000; Emmen et al. 2013). In particular, the effect of poverty on mothers’ report of child problems was smaller for blacks than for non-Hispanic whites. For blacks, mother’s earlier characteristics and experiences, such as self-esteem, were more important. For Hispanics, mothers’ current psychological resources were the strongest mediators of poverty. In addition, for Hispanics, neighborhood problems and home environment were not relevant in explaining poverty’s effects (McLeod and Nonnemaker 2000). A possible explanation for some of these differences is that certain stressors related to poverty may be more associated with certain racial and cultural groups. This could relate to greater acculturation stress (Emmen et al. 2013) or the fact that the types of neighborhoods and opportunities available to mothers may differ by race and ethnicity, particularly in the US context (McLeod and Nonnemaker 2000). The family investment model focuses on the fact that greater access to financial, human, and social capital allows families to make greater investments in their children. This can mean learning materials in the home, parents directly stimulating learning or paying for outside tutoring and training, a higher standard of living, as well as residential location that fosters competent development (Davis-Kean 2005; Conger and Donnellan 2007). Subsequent evidence suggests that these two models are complementary, where family stress models are a better predictor of child behavior problems while parental investments are a better predictor of cognitive development (Gershoff et al. 2007; Conger et al. 2010).
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There are alternate conceptual approaches that emphasize different phenomena. In addition to the noted pathways of family functioning through economic stress and investment, when poverty results in stressors, inadequate investment, and/or neglect that last for extended periods of time, especially in young children, it could lead to what has been called toxic stress. This occurs when a child’s biological response systems remain elevated for long periods of time without support from responsive adults. As a result, a child’s brain architecture can be disrupted (Shonkoff et al. 2009; NSCD 2014). Low-income, low-wealth, low-education families are at higher risk for such toxic stress because of material hardship, parental stress, untreated mental health/health issues, and under-resourced neighborhoods (Williams Shanks and Robinson 2013). Another conceptual frame is adverse child experiences (ACE) and exposure to trauma. The ACE Study protocol began in the mid-1990s for implementation by Kaiser Permanente in Southern California. The study created an instrument to document adverse experiences in childhood and examine their long-term consequences. Adults were asked to retroactively recall childhood exposure to abuse and household dysfunction across seven categories. Results have established a relationship between a high number of adverse childhood experiences and an array of health and mental health risks in adulthood (Felitti et al. 1998; Dube et al. 2001; Murphy et al. 2014). These experiences seem to lead to psychological trauma that later manifest in physical ailments (Kendall-Tackett 2009). Rather than just noting the associations between trauma/adverse experiences and poor health outcomes, many now recommend trying to interrupt negative consequences through trauma-informed care, a strength-based approach that takes past trauma into account to better support survivors (Hopper et al. 2010; Huckshorn and Lebel 2013). One group of researchers attempts to amend the ACE instrument and make it better at assessing things that might help prevent or mediate long-term health and behavioral problems for youth. In particular, the study suggests the ACE instrument could be improved by including socioeconomic status (SES) as an additional domain (Finkelhor et al. 2013). Results show that taking into account SES, neighborhood conditions and a few other items increase the predicted association between the ACE score and current trauma and distress, improving the R2 from 0.21 to 0.34 (Finkelhor et al. 2013). Thus, poverty and strained financial circumstances are important additional adverse childhood exposures to consider. Whether families face normative stressors that come from predictable changes in human development and family systems (such as a child growing up, going to school, and eventually leaving home) or unanticipated nonnormative experiences such as job loss, illness, or trauma, there is a theory that models how they might adapt. The ABCX theory describes how a stressful event (A) interacts with the family’s resources (B) and family’s perception of the event (C) to produce a crisis (X) (Hill 1958; Burr 1982). The way a family adjusts and adapts to the crisis determines whether its members can reorganize to reach a new equilibrium. If the family is vulnerable and has few resources, stressful events could pile up and remain unresolved leading to sustained crisis. If the family adapts and finds ways to cope with the stressor(s), its members
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can recover and return to a stable level of functioning. Some families even become stronger after a crisis and adapt to come through better than before (McCubbin and Patterson 1982; Lavee et al. 1985). The severity of the strain faced, the level of family adaptation, the amount of resources and support accessible to the family, and the family’s sense of coherence regarding the situation all influence how well the family adapts (Lavee et al. 1985). As adolescents begin to differentiate from their families, there are modified models that show how they learn to deal with stressors and begin to develop their own individual coping style, which is linked to the fit between their family system and their wider peer and community systems (Patterson and McCubbin 1987). In addition, it is important to consider the potential impact of stigma in linking chronic poverty to adolescent outcomes. If lack of resources leads to demeaning and humiliating experiences, this also can be stressful. And some youth may turn to substance abuse or delinquency as a coping mechanism, which has its own consequences (McLoyd et al. 2009).
Implications for Interventions Given the reinforcing relationship between financial challenges and mental health, addressing mental health becomes important to poverty alleviation, and addressing poverty becomes important to mental illness treatment. However, this does not necessarily mean that a poverty alleviation program will be able to help mentally ill clients recover or that a mental health treatment program will be able to improve earnings and decrease poverty. There are multiple determinants of both mental illness and poverty. However, it does mean that not addressing poverty of a low-income client with mental illness will compromise the efficacy of any mental illness treatment and similarly not providing proper mental illness treatment to that client will decrease the client’s ability to improve financially. The empirical investigation by Lund et al. (2011) suggests that there is greater effectiveness in reducing poverty by treating mental health than in overcoming mental illness by reducing poverty. That said, the kinds of programs matter. As shown by the varied ways that different kinds of financial challenges affect different kinds of mental health outcomes, the approach may need to target certain interrelationships, and the design of programs should address the root and not the surface of the interrelationships.
Financial Counseling and Addressing Debt For example, one important target is the impact of debt on anxiety and cognitive function. With the plethora of financial literacy programs out there offering to help low-income households better manage their finances, on the surface financial counseling might be an answer to addressing the effects of debt on anxiety and cognitive function. However, getting at the root of this interrelationship actually
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speaks against financial counseling in the forms that are currently provided. One starting point of existing financial counseling is that low-income individuals do not know how to manage their finances, and thus by improving their management skills, their financial situation will improve. The findings actually suggest that it is not that low-income individuals do not know how to manage finances. Instead, they get too anxious to cope, and bandwidth tax of living in lack takes a toll on their mental capacity. Indeed, the evidence on the effects of financial counseling is mixed at best, with short-term gains but reversion to debt in time (Brackertz 2014). A meta-analysis by Fernandes et al. (2014) in fact suggests that financial education programs explain only 0.1% of changes in financial behaviors. Armed with these more nuanced findings, financial counseling programs are incorporating behavioral insights in order to ease financial processes and make it more likely that the automatic responses of clients will better enable them to improve their finances. Examples include putting money for different debt payments into different colored envelopes for mental accounting and commitment strategies made beforehand so that autosavings or payments kick in later on. Programs should then also move from financial literacy to financial mentoring and assurance, with the case manager coming alongside with friendly reminders and assurance so as to reduce anxiety, enhance executive functioning, and improve coping.
Improving Mental Health and Work Outcomes In the past, it was believed that people with severe mental disorders (SMD) cannot work. Thus, psychiatric services or community-based mental health services were provided without work assistance. If the person is deemed ready for work or wishes to work, they are often referred out to employment agencies. They might also be placed in prevocational training, transitional employment, or sheltered employment. The latter are often run by nonprofit organizations funded to provide such employment opportunities at salary levels substantially below competitive wage rates (Suijkerbuijk et al. 2017). Of course, the interventions are not so clearly delineated, and different countries have different extents and variations of the different kinds of services. However, the separation of mental health and competitive work interventions generally holds. Where mental health services engage employers or provide employment assistance, these tend to be special types of arrangements that are sheltered rather than competitive. In recent years, supported employment (SE) programs have been developed and are being replicated. In SE, people with SMD who wish to work are provided support to find competitive work as soon as possible and supported after placement at a competitive job. A well-known SE program is Individual Placement and Support (IPS), which requires adherence by practitioners to the following eight principles: “(1) focus on competitive employment outcomes, (2) zero exclusion: open to anyone with severe mental illness who wants to work, (3) rapid job search, (4) attention to client preferences in services and job searches, (5) employment
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specialists systematically develop relationships with employers based upon client preferences, (6) time-unlimited and individualised supports, (7) employment services are integrated with mental health treatment services, and (8) clients receive personalised benefit counselling” (Becker 1993; Drake 2012; as cited by Suijkerbuijk et al. 2017). As SE developed, augmented SE has also been developed where SE is combined with targeted behavioral interventions, e.g., on social skills, cognitive interventions, and symptom-related skills training. Meta-analyses have found that SE, especially high-fidelity IPS, has been effective in helping people with SMD obtain and maintain competitive employment compared to other interventions such as prevocational training, sheltered employment, or psychiatric services only (Kinoshita et al. 2013; Waghorn et al. 2014; Suijkerbuijk et al. 2017). The meta-analyses have also found beneficial effects to competitive employment of augmented SE over other approaches and also possibly over SE without the cognitive and behavioral interventions. Although effects on employment are favorable, SE and augmented SE have however not been found to improve “secondary effects” such as quality of life or global functioning. For these well-being outcomes, more intensive mental health services such as assertive community treatment (ACT) have been found to be more effective. ACT continues contacting people who are resistant and uncooperative, emphasizes medication compliance, and offers other assistance such as housing, finances, activities of daily living, and employment (Suijkerbuijk et al. 2017). Therefore, if employment is the end goal, SE is promising. However, if the end goal is general well-being of the person with SMD, then SE is likely inferior to other mental health-focused approaches such as ACT. The benefits in terms of the end outcomes should also be weighed against costs. SE is labor intensive and therefore costlier than typical employment services. Fortunately, it also does not incur other costs or “adverse outcomes” such as increased hospitalization or drop out of services. That is, SE appears to be fairly neutral in terms of side effects, and if the augmentations being tested with SE helps to increase the benefits of SE beyond employment, the SE’s potential will be greater and greater (Butler et al. 2012; Suijkerbuijk et al. 2017). With SE’s potential, there appears to be various pilot programs and evaluation research testing augmentation of SE, variations in the intensity and mode of support, and other work-centered interventions for persons with mental disorders. For example, MDRC tested a telephone support service by masters-level care managers for participants of the Employment Retention and Advancement (ERA) program. They found no impact between treatment and control group participants and identified inter-agency collaboration as a key reason because case managers and employment services worked for different agencies (https:// www.mdrc.org/publication/working-toward-wellness-1). Himle et al. (2014) piloted a work-related cognitive behavioral therapy (WCBT) for unemployed persons who have social anxiety. They found reductions in social anxiety, general anxiety, depression, and functional impairment relative to the control group, but no difference in hours worked per week.
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Overall, what this stream of research on mental health and work interventions point to is that persons with mental disorders, even those with severe disorders, can hold competitive employment. However, they have to be supported and how well the support works depends also on inter-agency collaboration. The supported employment that works currently appears to be too intensive and expensive, and there is also insufficient evidence on whether the employment can be sustained in the long run. Still, the important conclusion is that for hard-to-employ groups, combining work strategies with mental health treatment services offer more promise than either strategy alone (Butler et al. 2012).
Supporting Whole Families The intergenerational interrelations discussed in this essay show the importance of interventions not just for parents and not just for children but for both. Much justification for early intervention revolves around the strong evidence that the early years of childhood are crucial years of formation. Besides improving the quality of early, elementary, and secondary education, influential intervention studies such as the Perry Preschool Program and the Abecedarian Project also demonstrate the importance of parenting skills and the home environment (Heckman 2011). What these research and experiments point to is that even if economic resources are at the root of children’s developmental deficiency, solving them requires interventions targeting multiple areas and not just income poverty. This essay showing the correlation between poverty and mental health again reinforces the importance of addressing several issues simultaneously. One increasingly studied approach is two-generation models that utilize the best developmental research to focus on building human capital of both adults and children simultaneously (Haskins et al. 2014). The premise is that putting low-income children in high-quality early childhood education programs and their parents in high-quality education and workforce development programs can be mutually beneficial and reinforcing. Although the best programs are still new and innovation and creativity in this space will continue to be necessary, it is one way to explicitly support an entire family unit. Experts in this area recognize that success also depends on understanding the target population (Chase-Lansdale and BrooksGunn 2014). Parents with mental illness may need additional specialized support as their children receive age-appropriate quality instruction. On the other hand, it is exactly because families are poor that resources and investments in young children are lacking. Providing parenting programs without addressing poverty will also limit the effectiveness of parenting intervention. Thus, addressing parents’ poverty of wealth and mental health are also keys to helping children in their early years of life. There is preliminary evidence that when an intervention offers money and other financial resources to families, it can lead to better outcomes for both children and parents. This is particularly true among low-income and other economically disadvantaged families. An experimental
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Child Development Account intervention in the state of Oklahoma that offered an asset building account to children at birth with an initial deposit of $1000 found better socio-emotional functioning among the children and lower depressive symptoms for caregivers three years later (Huang et al. 2014, 2016). This thinking that improving financial position improves family mental wellbeing is also behind a mobility coaching program that MDRC is now testing (MDRC 2018). The motivation of the pilot was to uplift parents in order to uplift children. Beyond financial literacy, the program incorporates behavioral science to coach participants toward improved executive skills for higher-paying jobs. The pilot is just beginning, so the jury is still out on whether the program will meet its goals. However, the design incorporates the various evidence and implications discussed in this essay.
Tackling Structural and Multiple Factors Even as programs targeting both economic and mental health challenges have greater effectiveness than one alone, if structural and other external factors to poverty and debt continue unaddressed (factors such as low wages, discrimination, family stressors, etc.), effects will be limited. In today’s context where structural factors to financial hardship are of greater and greater bearing, Brackertz (2014) argues that interventions need more holistic approaches where “financial counseling” needs to be accompanied also by advocacy and referral for the client to other agents of change (Brackertz 2014). Brackertz emphasizes “the importance of having a mix of strategies to address financial stress in low income earners that combine approaches based on individual responsibility and models based on social justice and advocacy” (p. 389). This leads to a related point that financial challenge and mental health often also coexist with other stressors in life. Multiple studies have found the multiple prevalences of many different kinds of stressors experienced by low-income families (Danziger et al. 2002; Ng 2013). This means that poverty alleviation and mental health treatment both need to be carried out in consideration also of the other stressors in low-income individuals’ lives. In highlighting the toxic stress experienced by children due to multiple and prolonged economic hardship, Williams Shanks and Robinson (2013) suggest “a comprehensive strategy for the most disadvantaged children, schools and neighbourhoods” (p. 166). Holistic case management and wraparound services need to be pursued with conviction by social services if we are to begin to think of helping clients making any headway in overcoming their challenges in life. In addition to increased comprehensive coordination at the local level, public policy could focus more on broad institutional constructs/barriers rather than just individual constructs/barriers. As emphasized by Beverly et al. (2008), institutions are “purposefully created policies. . .that shape opportunities, constraints, and consequences” (p. 90). Institutions are thought to shape worldview and actions by
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directing and exposing people to particular opportunities and choices (Beverly et al. 2008; Schreiner and Sherraden 2007). If the goal is asset building and greater economic security, there are institutional approaches to get there. If the goal is preparing people for competitive employment, institutional approaches can be created to achieve this. If the goal is to financially and materially support children facing economic hardship and/or caregivers with severe mental illness, it is possible to do this within an institutional frame as well. Whether strategically combining existing programs or gathering data to better understand current barriers and what might incentivize people to meet desired goals, institution-focused policy is also an important consideration. One important institutional setting for economic and mental well-being is the labor market. With greater uncertainty of jobs as a source of financial security due to globalization, technology disruption, and related economic market vulnerabilities, today’s job market exposes low-wage workers to a heightened risk of not only poverty but also mental health problems. At the same time, more thought leaders are questioning the emphasis on individual responsibility in poverty reduction strategies. Some countries have tried out universal basic income (UBI) to provide a stable cash floor. Examples include the USA (De Wispelaere 2016), India (Davala et al. 2014), and Finland (Henley 2017). Although UBIs have issues of fiscal sustainability and moral hazard and the experiments have been geographically confined and even discontinued in the case of Finland, their advent signals state willingness or attempts to test more universal social protection. How will such welfare changes affect mental health? While the harsher labor market decreases the mental health of low-wage earners, might the mental health benefits of the security of a basic income more than offset the actual costs of disbursement and the potential costs of work disincentives? The new economic realities and welfare responses will raise new research questions.
Culturally Appropriate Interventions One question based on the western centrism of the research evidence is to what extent the results also apply to non-Western contexts which tend to spend less in welfare protection. Many of the studies cited in this essay are from Europe, in particular the UK and Scandinavia. If poverty and mental illness correlate so strongly in countries that have stronger social protection, might the comorbidity be worse in leaner welfare systems such as those in Hong Kong and Singapore? The findings from the handful of studies from Asia cited in this essay, for example, India and Taiwan in Lund (2010) and Singapore in Ong et al. (2019), show that the conditions in these Asian cities generally echo rather than counter the western findings. The strategies being tried and tested in the West will then be relevant for use in Asia and similarly the other way around. However, specific results and applications vary, e.g., the type of economic variable under consideration or the size of effects. Thus, more research out of Asia is needed to verify that the conditions in Asia indeed lead to similar outcomes.
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Conclusion In this essay, we have discussed the intra- and intergenerational effects of financial challenges on mental well-being and vice-versa, in the context of poverty. As we have noted throughout the chapter, it is important to develop a comprehensive set of responses that takes into consideration the challenges faced by both mental illness and poverty/economic strain, tackles both individual and environmental/structural factors, and supports the whole family. Addressing these issues one at a time is less likely to be effective. Such multipronged responses will require cross-disciplinary and cross-agency collaborations, for which social work’s systems perspective becomes an important anchor framework. In reality, difficulties working across disciplinary and organizational boundaries often become a barrier to full realization of benefits of wraparound services. Thus, practical next steps for service providers and state departments working on low income and mental health issues might be to iron out barriers to collaboration and establish effective models of partnership for success. Given the vulnerabilities in today’s labor market, universal programs that provide a minimum standard of living can greatly alleviate financial hardship and provide mental relief. However, universal programs do not preclude the need to pay attention to vulnerable populations. Specifically, those facing severe mental illness and in families with histories of persistent and chronic poverty may require particular thought and attention as well as effective policy responses.
Cross-References ▶ Parenting Challenges for Persons with a Serious Mental Illness ▶ Reflection of Future Social Work Practice in Mental Health
References Becker DR, Drake RE (1993) A working life: the individual placement and support (IPS) program. Concord NH: New Hampshire-Dartmouth Psychiatric Research Center, 1993 Beverly S, Sherraden M, Cramer R et al (2008) Determinants of asset holdings. In: McKernan S-M, Sherraden M (eds) Asset building and low-income families. The Urban Institute Press, Washington, DC, pp 89–151 Bolger KE, Patterson CJ, Thompson WW et al (1995) Psychosocial adjustment among children experiencing persistent and intermittent family economic hardship. Child Dev 66(4):1107–1129 Brackertz N (2014) The impact of financial counselling on alleviating financial stress in low income households: a national Australian empirical study. Soc Pol Soc 13(3):389. https://doi.org/ 10.1017/S1474746413000511 Burr WR (1982) Families under stress. In: McCubbin HI, Cauble AE, Patterson JM (eds) Family stress, coping, and social support. Charles C Thomas, Springfield, pp 5–25 Butler D, Alson J, Bloom D et al (2012) What strategies work for the hard-to-employ?: final results of the hard-to-employ demonstration and evaluation project and selected sites from the employment retention and advancement project. OPRE Report 2012–08. Office of Planning, Research
534
I. Y. H. Ng and T. R. Shanks
and Evaluation, Administration for Children and Families, U.S. Department of Health and Human Services, Washington, DC. https://www.mdrc.org/sites/default/files/What%20Strate gies%20Work%20for%20the%20Hard%20FR.pdf. Accessed 11 Jan 2019 Butterworth P, Leach LS, McManus S et al (2013) Common mental disorders, unemployment and psychosocial job quality: is a poor job better than no job at all? Psychol Med 43(8):1763–1710. https://doi.org/10.1017/S0033291712002577 Chase-Lansdale P, Brooks-Gunn J (2014) Two-generation programs in the twenty-first century. Futur Child 24(1):13–39 Chong, SA, Abdin A, Vaingahkar JA et al. (2012) A Population-based survey of mental disorders in Singapore. Annals Academic of Medicine Singapore 41(2):49–65 Conger RD, Conger KJ (2002) Resilience in Midwestern families: selected findings from the first decade of a prospective, longitudinal study. J Marriage Fam 64(2):361–373 Conger R, Donnellan M (2007) An interactionist perspective on the socioeconomic context of human development. Annu Rev Psychol 58:175–199 Conger RD, Conger KJ, Martin MJ (2010) Socioeconomic status, family processes, and individual development. J Marriage Fam 72(3):685–704. https://doi.org/10.1111/j.17413737.2010.00725.x Cook JA, Lehman AF, Drake R et al (2005) Integration of psychiatric and vocational services: a multisite randomized, controlled trial of supported employment. Am J Psychiatr 162(10): 1948–1956. https://doi.org/10.1176/appi.ajp.162.10.1948 Currie J, Lin W (2007) Chipping away at health: more on the relationship between income and child health. Health Affair 26(2):331–344 Danziger SK, Corcoran M, Danziger S et al (2002) Barriers to the employment of welfare recipients. University of Michigan, Population Studies Centre, Ann Arbor. http://www.psc.isr. umich.edu/pubs/pdf/rr02-508.pdf. Accessed 11 Jan 2019 Davala S, Jhabvala R, Kapoor S et al (2014) A little more, how much it is. . .: piloting basic income in Madhya Pradesh, India. UNICEF India, New Delhi Davis-Kean PE (2005) The influence of parent education and family income on child achievement: the indirect role of parental expectations and the home environment. J Fam Psychol 19 (2):294 De Wispelaere J (2016) Basic income in our time: improving political prospects through policy learning? J Soc Policy 45(4):617–634 Drake RE, Bond GR, Becker DR (2012) Individual placement and support: an evidence-based approach to supported employment. Oxford University Press Dube SR, Anda RF, Felitti VJ et al (2001) Childhood abuse, household dysfunction, and the risk of attempted suicide throughout the life span: findings from the adverse childhood experiences study. JAMA 286(24):3089–3096 Duncan GJ, Brooks-Gunn J (1997) Consequences of growing up poor. Russell Sage Foundation, New York Duncan DJ, Ziol-Guest KM, Kalil A (2010) Early-childhood poverty and adult attainment, behavior, and health. Child Dev 81(1):306–325 Emmen RAG, Maike M, Mesman J et al (2013) Socioeconomic status and parenting in ethnic minority families: testing a minority family stress model. J Fam Psychol 27(6):896–904 Evans GW (2004) The environment of childhood poverty. Am Psychol 59(2):77–92. https://doi. org/10.1037/0003-066X.59.2.77 Felitti VJ, Nordenberg D, Williamson DF et al (1998) Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults. The Adverse Childhood Experiences (ACE) study. Am J Prev Med 14(4):245–258 Fernandes D, Lynch JGJ, Netemeyer RG (2014) Financial literacy, financial education, and downstream financial behaviors. Manag Sci 60(8):1861–1883. https://doi.org/10.1287/ mnsc.2013.1849 Finkelhor D, Shattuck A, Turner H et al (2013) Improving the adverse childhood experiences study scale. JAMA Pediatr 167(1):70–75
25
Financial Challenges and Mental Health
535
Flèche S, Layard R (2017) Do more of those in misery suffer from poverty, unemployment or mental illness?: people in misery. Kyklos 70(1):27–41. https://doi.org/10.1111/kykl.12129 Gautié J, Schmitt J (2010) Low-wage work in the wealthy world. Russell Sage Foundation, New York Gershoff ET, Aber JL, Raver CC et al (2007) Income is not enough: incorporating material hardship into models of income associations with parenting and child development. Child Dev 78(1): 70–95 Goodman E (1999) The role of socioeconomic status gradients in explaining differences in US Adolescents’ health. J Public Health 89(10):1522–1528 Goosby BJ (2007) Poverty duration, maternal psychological resources, and adolescent socioemotional outcomes. J Fam Issues 28(8):1113–1134 Haskins R, Garfinkel I, McLanahan S (2014) Introduction: two-generation mechanisms of child development. Futur Child 24(1):3–12 Heckman JJ (2011) The economics of inequality: the value of early childhood education. Am Educ 35(1):31. https://www.aft.org/pdfs/americaneducator/spring2011/Heckman.pdf. Accessed 11 Jan 2019 Henley J (2017) Finland trails basic income for the unemployed. The Guardian. https://www. theguardian.com/world/2017/jan/03/finland-trials-basic-income-for-unemployed. Accessed 11 Jan 2019 Hill R (1958) Generic features of families under stress. Soc Casework 49:139–150 Himle JA, Bybee D, Steinberger E et al (2014) Work-related CBT versus vocational services as usual for unemployed persons with social anxiety disorder: a randomized controlled pilot trial. Behav Res Ther 63:169–176. https://doi.org/10.1016/j.brat.2014.10.005 Hopper EK, Bassuk EL, Olivet J (2010) Shelter from the storm: trauma-informed care in homeless service settings. Open Health Serv Policy J 3:80–100 Huang J, Sherraden M, Purnell JQ (2014) Impacts of child development accounts on maternal depressive symptoms: evidence from a randomized statewide policy experiment. Soc Sci Med 112:30–38 Huang J, Kim Y, Sherraden M (2016) Material hardship and children’s social-emotional development: testing mitigating effects of child development accounts in a randomized experiment. Child Care Health Dev 43(1):89–96 Huckshorn K, LeBel JL (2013) Trauma-informed care. In: Yeager K, Cutler D, Svendsen D et al (eds) Modern community mental health: an interdisciplinary approach. Oxford University Press, New York, pp 62–83 Jenkins R, Bhugra D, Bebbington P et al (2008) Debt, income and mental disorder in the general population. Psychol Med 38(10):1485–1493. https://doi.org/10.1017/S0033291707002516 Kaspersen SL, Pape K, Vie GÅ et al (2016) Health and unemployment: 14 years of follow-up on job loss in the Norwegian HUNT study. Eur J Pub Health 26(2):312–317. https://doi.org/10.1093/ eurpub/ckv224 Kendall-Tackett K (2009) Psychological trauma and physical health: a psychoneuroimmunology approach to etiology of negative health effects and possible interventions. Psychol Trauma 1(1):35–48. https://doi.org/10.1037/a0015128 Kinoshita Y, Furukawa TA, Kinoshita K, Honyashiki M, Omori IM, Marshall M, et al (2013) Supported employment for adults with severe mental illness. Cochrane Database of Systematic Reviews, Issue 9. https://doi.org/10.1002/14651858.CD008297.pub2 Lavee Y, McCubbin HI, Patterson JM (1985) The double ABCX model of family stress and adaptation: an empirical test by analysis of structural equations with latent variables. J Marriage Fam 47(4):811–825 Lund C, Breen A, Flisher AJ et al (2010) Poverty and common mental disorders in low and middle income countries: a systematic review. Soc Sci Med 71(3):517–528. https://doi.org/10.1016/j. socscimed.2010.04.027 Lund C, Silva MD, Plagerson S et al (2011) Poverty and mental disorders: breaking the cycle in low-income and middle-income countries. Lancet 378(9801):1502
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I. Y. H. Ng and T. R. Shanks
Mani A, Mullainathan S, Shafir E et al (2013) Poverty impedes cognitive function. Science 341(6149):976–980. https://doi.org/10.1126/science.1238041 McCubbin H, Patterson J (1982) Family adaptation to crises. In: McCubbin HI, Cauble AE, Patterson JM (eds) Family stress, coping, and family support. C.C. Thomas, Springfield, pp 26–47 McLeod JD, Nonnemaker JM (2000) Poverty and child emotional and behavioral problems: racial/ ethnic differences in processes and effects. J Health Soc Behav 41(2):137–161 McLoyd VC (1998) Socioeconomic disadvantage and child development. Am Psychol 53(2): 185–204 McLoyd VC, Kaplan R, Purtell KM et al (2009) Poverty and socioeconomic disadvantage in adolescence. In: Lerner RM, Steinberg L (eds) Handbook of adolescent psychology, vol 2. Wiley, Hoboken, pp 444–491 MDRC (2018) MyGoals for employment success. https://www.mdrc.org/project/mygoals-employ ment-success#overview. Accessed 11 Jan 2019 Meltzer H, Bebbington P, Brugha T et al (2013) The relationship between personal debt and specific common mental disorders. Eur J Pub Health 23(1):108–113. https://doi.org/10.1093/eurpub/ cks021 Milner A, Page A, LaMontagne AD (2014) Cause and effect in studies on unemployment, mental health and suicide: a meta-analytic and conceptual review. Psychol Med 44(5):909. https://doi. org/10.1017/S0033291713001621 Mistry RS, Biesanz JC, Taylor LC et al (2004) Family income and its relation to preschool children’s adjustment for families in the NICHD study of early child care. Dev Psychol 40(5):727–745 Murphy A, Steele M, Dube SR et al (2014) Adverse childhood experiences (ACEs) questionnaire and adult attachment interview (AAI): implications for parent child relationships. Child Abuse Negl 38:224–233 National Scientific Council on the Developing Child (2005/2014) Excessive stress disrupts the architecture of the developing brain: working paper no. 3. Updated Edition. www. developingchild.harvard.edu. Accessed 11 Jan 2019 Neppl TK, Senia JM, Donnellan MB (2016) Effects of economic hardship: testing the family stress model over time. J Fam Psychol 30(1):12–21 Ng IYH (2013) Multi-stressed low-earning families in contemporary policy context: lessons from work support recipients in Singapore. J Poverty 17(1):86–109 Ng IYH, Mathews M, Ho KW (2017) Struggling yet improving: lessons from a five-waves study of financial assistance recipients. In: International day for eradication of poverty – panel discussion: down but not out! Social Service Research Centre, National University of Singapore, Singapore Ng IYH, Mathews M, Ho KW (2018) Presentation of key findings. In: Work, family and financial assistance: a symposium on low-income families in Singapore. National University of Singapore, Singapore Niedhammer I, Malard L, Chastang J (2015) Occupational factors and subsequent major depressive and generalized anxiety disorders in the prospective French national SIP study. BMC Public Health 15(1):200. https://doi.org/10.1186/s12889-015-1559-y Ong QY, Theseira W, Ng IYH (2019) Reducing debt improves psychological functioning and changes decision making in the poor. Unpublished manuscript. National University of Singapore, Singapore Patterson JM, McCubbin HI (1987) Adolescent coping style and behaviors. J Adolesc 10(2): 163–186 Richardson T, Elliott P, Roberst R (2013) The relationship between personal unsecured debt and mental and physical health: a systematic review and meta-analysis. Clin Psychol Rev 33(8): 1148–1162 Rodgers G, Rodgers J (1989) Precarious jobs in labour market regulation: the growth of atypical employment in Western Europe. International Institute for Labour Studies, Geneva
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Santiago CD, Wadsworth ME, Stump J (2011) Socioeconomic status, neighborhood disadvantage, and poverty-related stress: prospective effects on psychological syndromes among diverse low-income families. J Econ Psychol 32(2):218–230. https://doi.org/10.1016/j. joep.2009.10.008 Saraceno B, Levav I, Kohn R (2005) The public mental health significance of research on socioeconomic factors in schizophrenia and major depression. World Psychiatry 4(3):181–185 Schreiner M, Sherraden M (2007) Can the poor save? Saving and asset building in individual development accounts. Transaction Publishers, New Brunswick Selenko E, Batinic B (2011) Beyond debt. A moderator analysis of the relationship between perceived financial strain and mental health. Soc Sci Med 73(12):1725–1732. https://doi.org/ 10.1016/j.socscimed.2011.09.022 Shonkoff JP, Boyce WT, McEwen BS (2009) Neuroscience, molecular biology, and the childhood roots of health disparities building a new framework for health promotion and disease prevention. JAMA 301(21):2252–2259 Stansfeld SA, Clark C, Caldwell T et al (2008) Psychosocial work characteristics and anxiety and depressive disorders in midlife: the effects of prior psychological distress. Occup Environ Med 65(9):634–642 Strohschein LA (2005) Household income histories and child mental health trajectories. J Health Soc Behav 46:359–375 Suijkerbuijk YB, Schaafsma FG, van Mechelen JC, Ojajärvi A, Corbière M, Anema JR (2017) Interventions for obtaining and maintaining employment in adults with severe mental illness, a network meta-analysis. Cochrane Database of Systematic Reviews, Issue 9. Art. No.: CD011867. https://doi.org/10.1002/14651858.CD011867.pub2 Waghorn G, Dias S, Gladman B, Harris M and Saha S (2014) A multi-site randomised controlled trial of evidence-based supported employment for adults with severe and persistent mental illness. Aust Occup Ther J 61:424–436. https://doi.org/10.1111/1440-1630.12148 Williams Shanks TR, Robinson C (2013) Assets, economic opportunity and toxic stress: a framework for understanding child and educational outcomes. Econ Educ Rev 33:154–170. https:// doi.org/10.1016/j.econedurev.2012.11.002 World Bank (2018). http://www.worldbank.org/en/publication/poverty-and-shared-prosperity World Health Organization (2017) Depression and other common mental health disorders, global health estimates [Data file]. Geneva. http://apps.who.int/iris/bitstream/10665/254610/1/WHOMSD-MER-2017.2-eng.pdf. Accessed 11 Jan 2019 Zurlo KA, Yoon W, Kim H (2014) Unsecured consumer debt and mental health outcomes in middle-aged and older Americans. J Gerontol B Psychol 69(3):461–469. https://doi.org/ 10.1093/geronb/gbu020
Part VI Conclusion
Reflection of Future Social Work Practice in Mental Health
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Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Recovery Movement and Social Work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Toward a Body-Mind-Spirit Approach . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cultural Factors in Mental Health Practice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Families and Carers of People with Mental Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Challenges of Working in Multidisciplinary Mental Health Teams . . . . . . . . . . . . . . . . . . . . . . . . . . . . Structural Factors Outside Mental Health Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Critical Reflection of the Use of Psychiatric Diagnosis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Advancement of the Use of Technology in Mental Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Cross-References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
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Abstract
Social workers largely use an ecological, systemic framework to work with vulnerable clients with mental illness and their families. With the development in mental health, social workers need to consider how to provide holistic services and innovative approaches that will support the recovery of individuals and families. This chapter discusses eight critical areas and provides implications for social workers to consider in their practice. Social workers are encouraged to continue reflecting and advance their knowledge of these areas.
A. W. C. Poon (*) School of Social Sciences, University of New South Wales, Sydney, NSW, Australia e-mail: [email protected] R. Ow Department of Social Work, National University of Singapore, Singapore, Singapore e-mail: [email protected] © Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9_20
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Keywords
Recovery · Systemic · Body-mind-spirit · Multidisciplinary · Technology · Cultural · Case management · Structural
Introduction Social work is a human-centered profession, shaped by diverse social, cognitive, and behavioral theories and ethical concerns as discussed in Part I – Introduction and Part II – General Theories on Mental Health and Etiology of Mental Illness of this book. Social work practice is largely informed by the ecological, systemic framework, and the profession has adopted biopsychosocial approaches to provide relevant assessment and interventions to individuals, families, and community groups as presented in Part III – Overview of Social Work Approaches in Working with Individuals, Families, and Communities of this book. In addition, social workers provide diverse individual, family, group, or community interventions in various cultural and structural contexts (see Part IV – Contextualized Practice with Individuals and Families and Part V – Structural Factors in Social Work and Mental Health of this book). The ecological, systemic framework is increasingly becoming more important in the context of the need to balance a deficit, problem-oriented perspective with a strengths perspective to focus on finding solutions and strengths in clients. This paradigm shift requires a rethinking of the roles and outcomes that social work should aspire to contribute toward the mental healthcare system. Some of the following thoughts are penned to share the opportunities and challenges that may confront social work practice in mental health as the profession grows in its involvement in mental health care for individuals, families, and the community. Several issues will be raised briefly in this introduction, and each issue will be discussed in greater detail later in the chapter. First, the recovery movement is a significant step in bringing to the fore the importance of persons diagnosed with mental illness in taking charge of their treatment and their journey to live a meaningful life that is similar to others in the community. What is the role of social work in advocating for and supporting individuals and families in this recovery journey? Second, research findings emerging from neuroscience research support a holistic approach in understanding mental illness. In medicine and social work, the importance of using a holistic biopsychosocial approach has longed been emphasized (Engel 1977; Healy 2016). Apart from linking individuals and families with practical resources to meet immediate needs, there is also a need to link them to other resources that may be able to help maintain a positive focus and better mental health in the midst of stressful events. Spirituality is also recognized to be a crucial factor to consider for holistic care. Is there an opportunity for social work to be engaged in practice that includes more holistic body-mind-spirit services? Third, working with clients from diverse cultural and linguistic backgrounds is common for social workers in mental health. What are some common issues that are
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happening in working with clients from ethnic minority populations? With the growing development of several cultural concepts in mental health and phenomenon in international migration, what do social workers need to consider to be culturally responsive in their practice? Fourth, families and informal carers are crucial support for people with mental illness. Social workers traditionally work with families and carers in their practice. How should social workers continue to work with families and carers in our current context upholding evidence-based practice? Fifth, multidisciplinary mental health teams have been developed in many parts of the world. The skills and knowledge of diverse team members such as nurses, social workers, occupational therapists, and psychologists are employed to provide holistic community mental health services to people with mental illness. Although multidisciplinary mental health teams have been developed for a while in western countries such as the USA, UK, and Australia, the development of such teams is still ongoing in other parts of the world. Given this global context, what are the challenges of having multidisciplinary mental health team for social work? How can we enhance the services of such teams to support the unique recovery and well-being of individuals with mental illness? Sixth, people with mental illness do experience discrimination and injustice in our societies. Social workers are mainly employed to provide health or social services to support people affected by mental illness. Should social work increase the role in advocacy that addresses the exo- and macro-systems of individuals and families outside mental health such as poverty, poor housing conditions, and income inequality to promote the well-being of people? Seventh, the use of International Classification of Diseases (ICD) and Diagnostic and Statistical Manual of Mental Disorders (DSM) is common in most mental health services (American Psychiatric Association 2013; World Health Organization 2018). Are we overdiagnosing people to have psychiatric illness based on these diagnostic manuals? What are some of the challenges and debates in using psychiatric diagnosis? Is it necessary to distinguish between “normal deviance” (behavior that is different from the norm but is benign) and “risk deviance” (behavior that is different but may cause harm to self or others)? Lastly, in our modern technological context, we have seen the development of technology to support clients with mental health problems. Should social workers participate in advancing the use of technology in mental health? What can social workers do to contribute to this fast-paced technological advancement? The following sections will discuss some of these issues in greater depth.
Recovery Movement and Social Work The importance of recovery from the impact of mental illness was initially verbalized by individuals with lived experience of mental illness (such as Patricia Deegan (1997)). Recovery is conceptualized as a unique individualized journey of an individual to achieve a sense of meaning and purpose while living with a mental illness. Since
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then, the concept of recovery has gained traction and is now recognized in mental health policies and services of many countries (Slade et al. 2012). Although widely recognized, there are several definitions of the concept of recovery (such as Davidson et al. 2005). The concept of recovery is commonly defined by the acronym CHIME – connectedness, hope and optimism about the future, identity, meaning in life, and empowerment (Slade et al. 2012). However, the concept of recovery is largely developed in English-speaking countries and may not recognize the cultural backgrounds of different places (Slade et al. 2012). For example, scholars in Hong Kong have argued the importance of recognizing cultural backgrounds and family milieu of people with mental illness in recovery (Mak et al. 2018). The concept of recovery is said to be closely aligned with social work values (Lukens and Solomon 2013). As social work recognizes the strengths of individuals and empowers people to achieve social justice and better quality of life, the concept of recovery fits very well with social work. Social workers can support the recovery of individuals to achieve meaning and purpose in life despite experiencing the effects of mental illness. Supporting clients to set recovery goals and empowering them to achieve their individualized goals are some possible ways for social workers in applying the concept. For example, social workers can assess whether their clients have any recovery goals in caring for family members or other significant person in their lives and incorporate these goals into the treatment plan (Poon et al. 2019). Social workers can also consider providing rehabilitation services such as supported employment or supported education to individuals with mental illness (Killackey et al. 2014; Shankar et al. 2009). However, the application of the concept in mental health is largely focusing on individuals with mental illness and may neglect the family in the process. Some researchers have argued that social workers should support the recovery of both individuals with mental illness and their families (Poon et al. 2018; Wyder and Bland 2014). As families usually take up caregiving of their relatives with mental illness and experience considerable negative impact, neglecting the recovery and wellbeing of families will eventually cause a negative effect on individuals. Given the systemic perspective in social work, social workers have a unique role in supporting the recovery of individuals and their families holistically. Related to the concept of recovery is the emerging involvement of service users in mental health practice and research. Mental health services have incorporated people with mental illness (also known as service users or consumers) as peer workers in practice and stakeholders in policy development (Cleary et al. 2006; Mahlke et al. 2014). The involvement of service users in the co-design and co-investigation of research is also growing. The lived experience of service users is intended to create a more collaborative and recovery-focused mental health system. It can also address the issue with power imbalance in mental health which privileged mental health workers. Based on social work values in respect and empowerment, social workers should appreciate the benefits of peer workers and support the involvement of service users in mental health across practice and research collaboratively. In teaching, social work academic can also consider involving service users in the co-design and co-delivery of teaching curriculum to embed lived experience into the teaching of future social workers.
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Toward a Body-Mind-Spirit Approach Social work supports a holistic approach in mental health. The spirit dimension has emerged to be an important area in social work (Ow and Saparin 2014). Westerntrained social workers have long been taught to avoid discussing spirituality (or religiosity) and its meaning for clients (Holloway 2007). This has resulted in failing to understand clients’ knowledge and the meaning of spirituality in their lives. Social work scholars have argued that social work should consider the total experience of clients in order to provide holistic body-mind-spirit interventions. One example is the use of mindfulness in social work (Lynn and Mensinga 2015). Other than interventions, social workers should be comfortable in assessing the spirituality of clients and provide therapeutic responses to support clients’ spirituality in their practice. In order for social workers to work ethically with clients regarding spiritual matters, the profession should recognize the importance of spirituality in humans. Recognizing the spirituality of clients need not be conducted by workers employed by religious organizations only as spirituality is a universal human experience and is relevant for any client who wants to find meaning in spirituality. Social work regulating bodies should endorse social workers assessing and supporting clients in finding meaning and identity in spirituality and provide practice standards to guide workers.
Cultural Factors in Mental Health Practice Responding responsively to the culture of clients has been recognized to be critical in social work practice. In mental health, the concerns of workers working with clients from another culture have been highlighted for a long time (Kung 2016). Terms like cross-cultural psychiatry and transcultural psychiatry had been used previously in the mental health literature (Dein 1994). More recently, other terms such as cultural competence, cultural humility, cultural safety, and cultural mastery have been conceptualized to guide workers to work respectfully with clients culturally (Kirmayer 2012; Tervalon and Murray-Garcia 1998). With the growing phenomenon of voluntary and forced migration globally, the issue of culture in mental health is crucial. Specifically, scholars argue that a reasonable number of people with mental health problems may be born overseas and do not speak English in an English-speaking country (Tribe and Thompson 2011). For example, in the latest national prevalence study of psychosis in Australia, the study found that 17.8% of people with psychotic disorders were born overseas (Saha et al. 2015), although the survey excluded people who spoke another language other than English. Adding those who were excluded due to language, the percentage of overseas born people with psychosis would be much higher. Numerous studies in many countries such as the USA, UK, and Australia had reported that ethnic minorities with mental illness had difficulties accessing community mental health services and had longer and more frequent psychiatric
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admissions than clients who were born locally (Derr 2016; Grey et al. 2013; Minas et al. 2013). The complexity of diagnosing someone from another culture who speaks another language, difficulty in translating mental health terms from English into another language, and the lack of adequately mental health trained interpreters have contributed to concerns in working with a person from another culture (Tribe and Thompson 2011). Families and carers from ethnic minority populations may face considerable barriers to be involved in treatment care plans for their family members with mental illness and experience structural barriers in accessing resources for themselves and the person with mental illness (Poon and Lee 2019). Mental health workers should be well trained to provide culturally relevant services, and programs should consider developing culturally competent models that address the cultural diversity of clients (Kirmayer 2012). In addition, systemic perspective provides social work with an advantage in working with individuals, families, and carers of people affected by mental illness. In addition, the profession values cultural diversity and supports culturally responsive practice. Rather than viewing the culture of clients as a minority culture, social workers can instead view mental health culture as one of many diverse cultures. Social workers need to be constantly reflecting on potential power imbalance and health inequalities faced by clients and seek ways to empower them to achieve better equity in health and quality of life.
Families and Carers of People with Mental Illness It is well known that families and carers of people with severe mental illness have assumed greater responsibilities of caregiving since the deinstitutionalization movement in the USA, UK, and other parts of the world. Early studies had reported the challenges and caregiving burden that families and carers experienced (Hoenig and Hamilton 1966). A number of family interventions have since been developed to address the needs and to equip families and carers of people with mental illness (Thorning and Dixon 2016). More recently, researchers have highlighted the impact on children by parental mental illness (Reupert and Maybery 2016). Children may experience disadvantaged social circumstances and have a higher risk of developing psychiatric and behavioral problems (Reupert and Maybery 2016). Most current family interventions have a certain level of systemic orientation in its development. For example, family psychoeducation program was developed to equip families to support the treatment of people with mental illness (McFarlane 2016). Social workers in contemporary practice should continue to utilize the systemic perspective in their assessment and intervention. A number of evidencebased interventions (e.g., family psychoeducation) are available for social workers to adopt and implement in their practice. Within multidisciplinary mental health teams, social workers can show leadership in providing systemic perspective input to the management of clients with complex social needs (Segal 2002).
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To advance the systemic perspective in mental health, social workers should consider conducting both observational and explanatory research concerning families and carers. While social work claims to be largely using a systemic perspective in their practice, social work needs to demonstrate that the profession is truly forefront in conducting research in this area. One example of social work research in this area is a longitudinal study of the health and well-being of carers of people with psychosis conducted within the Australian prevalence study of psychosis (Poon et al. 2018). The population-based study shows the importance of social workers in supporting the recovery and well-being of people with mental illness and their carers simultaneously.
Challenges of Working in Multidisciplinary Mental Health Teams The deinstitutionalization movement has also contributed to the development of multidisciplinary community mental health teams. Professionals formerly working in hospitals are now given new responsibilities to provide services to people with mental illness in the community. Nurses, social workers, occupational therapists, and psychologists are commonly employed in most community mental health teams. Team members (also known as case managers or key workers) provide case coordination, medication monitoring, and liaison services to people with mental illness. This approach of providing services in the community is often called case management. Based on funding, policy, and service contexts, different case management models (such as assertive community treatment program and clinical and rehabilitation-oriented case management) are developed in many places (Fossey et al. 2012). As several authors have reviewed the similarities, differences, benefits, and limitations of these models (see Dieterich et al. 2017; Fossey et al. 2012), this chapter will not discuss these areas. Generally, the multidisciplinary team approach has brought about much achievement in coordinating services to people with mental illness in the community. People can access mental health services while living in the community and avoid living in the hospitals for a long time. However, several challenges have also emerged with this new way of providing services. The first challenge is related to the delivery of family-inclusive services. Many case management models focus on individuals’ needs and unintentionally neglect the concerns of families. The second challenge is related to team members needing to take on multiple roles that they are not having previously in the hospital model. This has led to an ambiguity of roles in multidisciplinary teams assuming the traditional roles of other team members and maintaining effective team work (Bland and Renouf 2001). This particular challenge is strongly related to social work as mentioned in the previous section that social work traditionally utilizes systemic approach in working therapeutically with families, but social workers are doing more generic case management tasks in mental health teams (Lloyd et al. 2004). With the new case management role, social workers need to demonstrate the use of systemic approach as leaders in the multidisciplinary team as discussed previously. The third challenge is the need for social workers to
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learn medication adherence and monitoring strategies which are usually provided by medical professionals such as psychiatrists and nurses (Bentley et al. 2005). In social work undergraduate programs where social work students are not taught about medication adherence and monitoring methods, social workers would need to learn these skills on-the-job from medical and nursing colleagues at the start of them working in this sector. With the growing emphasis on holistic services and recovery, current mental health teams need to consider whether their services are oriented toward the personal recovery of service users (Leamy et al. 2016). Clinically oriented mental health teams may find that their services do not fully support individuals to achieve their unique recovery to achieve their personal goals and identity. Albeit useful in preventing relapse and controlling psychiatric symptoms, medication adherence may still be the main focus of highly focus clinically oriented teams. Multidisciplinary teams should consider providing biopsychosocial approaches more. For example, physical health and nutrition have recently received more attention in mental health services. One example is the Keeping the Body in Mind intervention where physical health including physical activity and nutrition support are provided in a youth mental health service (Teasdale et al. 2016). In addition, multidisciplinary teams should explore if services should emphasize more on cultural and spiritual factors of individuals with mental illness. As discussed previously, every individual has their own cultural and spiritual backgrounds; therefore, multidisciplinary teams would need to be flexible in their team approach to support individuals. Finally, peer workers will likely play an important role to advocate the importance of holistic multidisciplinary team approach that consider the lived experience, unique circumstances, and recovery process of people with mental illness adequately. To support recovery-oriented services, social work can also consider advocating for the input of peer workers or service users to provide feedback to multidisciplinary mental health teams.
Structural Factors Outside Mental Health Services Housing, financial, and legal structure may either be enabling or disabling factors in influencing the lived experience of mental illness. Several studies have shown that these structural factors outside of mental health services often create additional burden on people affected by mental illness (Walker et al. 2015). Clients with mental illness and their families may face barriers and discrimination in accessing relevant resources in the community. Despite considerable efforts in mental health to support the well-being of people affected by mental illness, these efforts will be ineffective without properly addressing structural factors outside mental health services. Social work has long recognized these structural factors in their practice (Bland et al. 2015, pp. 77–91). It is critical for social workers to address discrimination, powerlessness, and injustice of clients. Advocacy is one way that social workers can do to empower clients and help to overcome the challenges of clients due to structural factors. For example, a social worker in a multidisciplinary team can
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highlight the social concerns of clients so that other team members will understand how the social context is influencing the psychiatric condition and how the illness is impacting on the social circumstances of the client. A social worker can advocate for the client to address any discrimination, powerlessness, and injustice outside mental health services so that the client can achieve equity in health and social services.
Critical Reflection of the Use of Psychiatric Diagnosis The ICD and DSM are widely used in mental health services globally (American Psychiatric Association 2013; World Health Organization 2018). The diagnostic codes in these classifications are generally useful to determine the types of psychiatric disorders for relevant treatment. However, there are ongoing debates that the diagnostic criteria are faulty and do not consider the contexts of individuals presented with behaviors outside of normal human norms (Wakefield 2016). It is also possible that false positives may happen when using the latest DSM-5. For example, one can wrongly diagnose people with eccentric behavior and odd thinking to have attenuated psychosis syndrome that requires psychiatric treatment (Wakefield 2016). The debate that it is possible to be overdiagnosing individuals to have mental illness has been around for a long time (Bolton 2013). Wrongly diagnosing or misdiagnosing individuals may be due to the challenge in differentiating symptoms of normal human suffering with psychiatric disorders (Wakefield and First 2013). Others have argued that harm and dysfunction are important factors to consider in diagnosing people with psychiatric illness (Wakefield 2016). With the growing knowledge from neuroscience research, one can understand that human cognition, emotion, and behaviors are on a continuous spectrum, which surfaces challenges in “distinction between normality and abnormality” and “pathologization of deviant behaviors” (Akram et al. 2017). Specifically, although research has helped us to understand that children may develop mental illness such as major depressive disorder, the difficulty in assessing children due to their developmental growth, temperamental changes, and caregiving environment has raised reasonable concerns in diagnosing children (Powell et al. 2017). Although social workers would likely not give someone a formal psychiatric diagnosis in most countries such as Singapore and Australia, it is important for social workers to be aware of the ongoing debates and be critical of psychiatric diagnostic manuals such as the DSM (Robbins 2014). In practice, social workers should consider the impact of people receiving a diagnosis and be mindful of the possibility of mis- or overdiagnosis. For example, an individual diagnosed with early dementia will need to understand the legal implications in making decisions regarding his assets and will. Therefore, a social worker would need to provide relevant legal information or resources to guide the individual and his family to make appropriate decisions. Similarly, family members need to be provided with relevant information related to the diagnosis so that they can provide sufficient support to their relatives with the diagnosis and take care of their own well-being.
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Advancement of the Use of Technology in Mental Health The social work profession and its related practice are generally labor-centric. Social workers often provide person-centered interventions to clients face-to-face or over the phone. They also provide group and community interventions in person. In contrast, we currently live in a world with technological advancement, with further aspiration to push the boundaries of research and development in technology. This advanced technological world embraces robotics and digitalization to improve the quality of life for humans. Within this technology-oriented context, there is a need for social work practice to adapt and advance with the fast-paced technological development. In current mental health, it is prominent that technology has shaped the way on how we assess needs and provide interventions to people with mental illness. For example, a study using digital interventions shows low to moderate effect in reducing alcohol consumption in participants (Kaner et al. 2017). Electronic health record has been established in most western mental health services to help workers record their observations and interactions with patients more accurately (Richardson and McDonald 2016). Electronic health record may also help healthcare professions including social workers to communicate clearer and faster with one another, ultimately improving patient care. Importantly, any attempt to digitalize health records must be clinically focused that aims to improve patient care. Therefore, partnership between mental health workers and information technology developers is essential. Mental health workers also need to support clients to understand their electronic health records and manage their own health needs better (Richardson and McDonald 2016). Likewise, social workers can contribute to this by partnering with their clients and information technology developers to enhance electronic health information system. The use of smartphones and related apps has infiltrated our lives. Studies show that people with serious mental illness were using mobile phones, apps, and social media comparable to the usage of the general population, although ownership of mobile phones was lower due to the cost of devices and plans (Naslund et al. 2016a). Mental health workers and software developers have endeavored to develop apps that will support patients better. The use of mobile phone apps is relatively well established in western mental health contexts and growing in other places such as China (Li et al. 2014). One example is MoodPrism which was developed to monitor emotional well-being and mental health in real time and offers resources to users (Rickard et al. 2016). Social media such as Facebook can be used concurrently with a health intervention to promote social networking and healthy lifestyle in people with serious mental illness (Naslund et al. 2016b). Considering the growing usage of smartphones and the development of apps in mental health services, social work should consider ways to use or develop apps that will complement their therapeutic work with their clients. Entertaining technology to enhance patient care in mental health such as gaming and virtual reality has been studied. A web-based social networking game shows promising results in improving mental health literacy of young people in Hong Kong (Li et al. 2013). Some researchers hypothesize that music streaming may help to
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support treatment for affective and anxiety disorders (Schriewer and Bulaj 2016). However, a review found no clear evidence for virtual reality in improving treatment compliance for people with serious mental illness (Välimäki et al. 2014). Given the infancy stage of using entertaining technology in mental health, social work will need to observe future development of this form of technology and even consider collaborating with stakeholders to advance social work practice and research using technology.
Conclusion As humans gain a greater understanding of mental illness through research in health sciences, the interventions provided by social workers would need to adapt and advance accordingly. Social workers need to be well informed of new knowledge in understanding mental illness and development of innovative approaches in working with people affected by mental illness. The cultural context shaping the lived experience of mental illness is crucial for social workers to be aware of in their practice. At the same time, social workers should advance their research to continue being a leading profession in mental health. Social work’s systemic perspective and holistic approaches are strengths that will continue to place the profession in a unique role in mental health.
Cross-References ▶ An Overview of Social Work Approaches in Working with Families of People with Serious Mental Illness ▶ Ethics, Values, and Recovery in Mental Health Social Work Practice ▶ Financial Challenges and Mental Health ▶ Legal Provisions, Advocacy, and Empowerment ▶ Medical Perspective on Mental Health ▶ Mental Health and Social Work: The Islamic Perspectives ▶ Qigong Practice ▶ Social-Cultural Ecological Perspective ▶ Theories on Mental Health, Illness and Intervention
References Akram F, Kawa S, Giordano J (2017) Diagnosis in American psychiatry: a brief history of the diagnostic and statistical manual. In: Goldstein S, DeVries M (eds) Handbook of DSM-5 disorders in children and adolescents. Springer, Cham. https://doi.org/10.1007/978-3-31957196_1 American Psychiatric Association (2013) The diagnostic and statistical manual of mental disorders, 5th edn. American Psychiatric Association, Washington, DC
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Bentley KJ, Walsh J, Farmer RL (2005) Social work roles and activities regarding psychiatric medication: results of a national survey. Soc Work 50(4):295–303 Bland R, Renouf N (2001) Social work and the mental health team. Australas Psychiatry 9(3):238–241. https://doi.org/10.1046/j.1440-1665.2001.00335.x Bland R, Renouf N, Tullgren A (2015) Social work practice in mental health: an introduction, 2nd edn. Allen and Unwin, Crows Nest Bolton D (2013) Overdiagnosis problems in the DSM-IV and the new DSM-5: can they be resolved by the distress-impairment criterion? Can J Psychiatr 58(11):612 Cleary M, Walter G, Escott P (2006) ‘Consumer consultant’: expanding the role of consumers in modern mental health services. Int J Ment Health Nurs 15:29–34. https://doi.org/10.1111/ j.1447-0349.2006.00401.x Davidson L, O’Connell MJ, Tondora J, Lawless M, Evans AC (2005) Recovery in serious mental illness: a new wine or just a new bottle? Prof Psychol Res Pract 36(5):480–487. https://doi.org/10.1037/0735-7028.36.5.480 Deegan PE (1997) Recovery and empowerment for people with psychiatric disabilities. Soc Work Health Care 25(3):11–24. https://doi.org/10.1300/J010v25n03_02 Dein S (1994) Cross-cultural psychiatry. Br J Psychiatry 165(4):561–564. https://doi.org/10.1192/ bjp.165.4.561 Derr AS (2016) Mental health service use among immigrants in the United States: a systematic review. Psychiatr Serv 67(3):265–274. https://doi.org/10.1176/appi.ps.201500004 Dieterich M, Irving CB, Bergman H, Khokhar MA, Park B, Marshall M (2017) Intensive case management for severe mental illness. Cochrane Database Syst Rev (a):CD007906. https://doi.org/10.1002/14651858.CD007906.pub3 Engel GL (1977) The need for a new medical model: a challenge for biomedicine. Science 196(4286):129–136 Fossey E et al (2012) Case management. In: Meadows G, Farhall J, Fossey E, Grigg M, McDermott F, Singh B (eds) Mental health in Australia: collaborative community practice. Oxford University Press, South Melbourne, pp 428–450 Grey T, Sewell H, Shapiro G, Ashraf F (2013) Mental health inequalities facing U.K. minority ethnic populations. J Psycholo Issues Organ Cult 3(S1):146–157. https://doi.org/10.1002/ jpoc21080 Healy K (2016) After the biomedical technology revolution: where to now for a bio-psycho-social approach to social work? Br J Soc Work 46(5):1446–1462. https://doi.org/10.1093/bjsw/bcv051 Hoenig J, Hamilton MW (1966) The schizophrenic patient in the community and his effect on the household. Int J Soc Psychiatry 12(3):165–176 Holloway M (2007) Spiritual need and the core business of social work. Br J Soc Work 37(2):265–280. https://doi.org/10.1093/bjsw/bcl014 Kaner EFS et al (2017) Personalised digital interventions for reducing hazardous and harmful alcohol consumption in community-dwelling populations. Cochrane Database Syst Rev 9: CD011479. https://doi.org/10.1002/14651858.CD011479.pub2 Killackey E, Harvey C, Amering M, Herman H (2014) Partnerships for meaningful community living: rehabilitation and recovery-informed practices. In: Tasman A, Kay J, Lieberman JA, First MB, Riba MB (eds) Psychiatry, 4th edn. Wiley, Chichester Kirmayer LJ (2012) Rethinking cultural competence. Transcult Psychiatry 49(2):149–164. https://doi.org/10.1177/1363461512444673 Kung WW (2016) Culture- and immigration-related stress faced by Chinese families with a patient having schizophrenia. J Marital Fam Ther 42(3):409–422. https://doi.org/10.1111/jmft.12145 Leamy M et al (2016) Recovery practice in community mental health teams: national survey. Br J Psychiatry 209:340–346. https://doi.org/10.1192/bjp.bp.114.160739 Li TMH, Chau M, Wong PWC, Lai ESY, Yip PSF (2013) Evaluation of a web-based social network electronic game in enhancing mental health literacy for young people. J Med Internet Res 15(5): e80. https://doi.org/10.2196/jmir.2316 Li H, Zhang T, Chi H, Chen Y, Li Y, Wang J (2014) Mobile health in China: current status and future development. Asian J Psychiatr 10:101–104. https://doi.org/10.1016/j.ajp.2014.06.003
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Reflection of Future Social Work Practice in Mental Health
553
Lloyd C, King R, McKenna K (2004) Generic versus specialist clinical work roles of occupational therapists and social workers in mental health. Aust N Z J Psychiatry 38(3):119–124 Lukens JM, Solomon P (2013) Thinking through recovery: resolving ethical challenges and promoting social work values in mental health services. J Soc Work Values Ethics 10(1):61–71 Lynn R, Mensinga J (2015) Social workers’ narratives of integrating mindfulness into practice. J Soc Work Pract 29(3):255–270. https://doi.org/10.1080/02650533.2015.1035237 Mahlke CI, Krämer UM, Becker T, Bock T (2014) Peer support in mental health services. Curr Opin Psychiatry 27(4):276–281. https://doi.org/10.1097/YCO.0000000000000074 Mak WWS, Chan R, H C, Yau SSW (2018) Development and validation of attitudes towards recovery questionnaire across Chinese people in recovery, their family carers, and service providers in Hong Kong. Psychiatry Res 267:48. https://doi.org/10.1016/j. psychres.2018.05.047 McFarlane WR (2016) Family interventions for schizophrenia and the psychoses: a review. Fam Process 55(3):460–482. https://doi.org/10.1111/famp.12235 Minas H et al (2013) Mental health research and evaluation in multicultural Australia: developing a culture of inclusion. Int J Ment Heal Syst 7:23. https://doi.org/10.1186/1752-4458-7-23 Naslund JA, Aschbrenner KA, Bartels SJ (2016a) How people with serious mental illness use smartphones, mobile apps, and social media. Psychiatr Rehabil J 39(4):364–367. https://doi.org/ 10.1037/prj0000207 Naslund JA, Aschbrenner KA, Marsch LA, Bartels SJ (2016b) Feasibility and acceptability of Facebook for health promotion among people with serious mental illness. Digit Health 2:1–10. https://doi.org/10.1177/2055207616654822 Ow R, Saparin NHB (2014) Malay muslim worldviews: some thoughts for social work practice in Singapore. J Relig Spiritual Soc Work Soc Thought 33(1):73–94. https://doi.org/10.1080/ 15426432.2014.874261 Poon AWC, Lee J-S (2019) Carers of people with mental illness from culturally and linguistically diverse communities. Aust Soc Work 72(3):312–324. https://doi.org/10.1080/ 0312407X.2019.1604300 Poon AWC, Joubert L, Mackinnon A, Harvey C (2018) Recovery for carers of people with psychosis: a longitudinal population-based study with implications for social work. Br J Soc Work 48(6):1754–1773. https://doi.org/10.1093/bjsw/bcx120 Poon AWC, Hayes L, Harvey C (2019) Care-giving by people with psychotic disorders in the second Australian prevalence study of psychosis. Health Soc Care Community 27(4):1042–1052. https://doi.org/10.1111/hsc.12721 Powell AK, Ocean SE, Stanick CF (2017) Depressive disorders. In: Goldstein S, DeVries M (eds) Handbook of DSM-5 disorders in children and adolescents. Springer, Cham. https://doi.org/ 10.1007/978-3-319-57196-6_7 Reupert A, Maybery D (2016) What do we know about families where parents have a mental illness? Child Youth Serv 37(2):98–111. https://doi.org/10.1080/0145935X.2016.1104037 Richardson J, McDonald J (2016) Digitally enabled patients, professionals and providers: making the case for an electronic health record in mental health services. Psychol Bull 40:277–280. https://doi.org/10.1192/pb.bp.115.052191 Rickard N, Arjmand H-A, Bakker D, Seabrook E (2016) Development of a mobile phone app to support self-monitoring of emotional well-being: a mental health digital innovation. JMIR Ment Health 3(4):e49. https://doi.org/10.2196/mental.6202 Robbins SP (2014) From the editor – the DSM-5 and its role in social work assessment and research. J Soc Work Educ 50(2):201–205. https://doi.org/10.1080/10437797.2014.885363 Saha S, Morgan VA, Castle D, Silove D, McGrath JJ (2015) Sociodemographic and clinical correlates of migrant status in adults with psychotic disorders: data from the Australian Survey of High Impact Psychosis. Epidemiol Psychiatr Sci 24:534–541. https://doi.org/10.1017/ S2045796014000535 Schriewer K, Bulaj G (2016) Music streaming services as adjunct therapies for depression, anxiety, and bipolar symptoms: convergence of digital technologies, mobile apps, emotions, and global mental health. Front Public Health 4:1–6. https://doi.org/10.3389/fpubh.2016.00217
554
A. W. C. Poon and R. Ow
Segal SP (2002) Social work health and mental health: practice, research and programs, Part III. Introduction. Soci Work Health Care 35(1–2):351–358 Shankar J, Martin J, McDonald C (2009) Emerging areas of practice for mental health social workers: education and employment. Aust Soc Work 62(1):28–44. https://doi.org/10.1080/ 03124070802626893 Slade M, Leamy M, Bacon F, Janosik M, Le Boutillier C, Williams J, Bird V (2012) International differences in understanding recovery: systematic review. Epidemiol Psychiatr Sci 21(4):353–364. https://doi.org/10.1017/S2045796012000133 Teasdale SB, Ward PB, Rosenbaum S, Watkins A, Curtis J, Kalucy M, Samaras K (2016) A nutrition intervention is effective in improving dietary components linked to cardiometabolic risk in youth with first-episode psychosis. Br J Nutr 115:1987–1993. https://doi.org/10.1017/ S0007114516001033 Tervalon M, Murray-Garcia J (1998) Cultural humility versus cultural competence: a critical distinction in defining physician training outcomes in multicultural education. J Health Care Poor Underserved 9(2):117–125 Thorning H, Dixon L (2016) Caregiving for individuals with serious mental illness: a life cycle perspectuve. In: Burgio LD, Gaugler JE, Hilgeman MM (eds) The Spectrum of family caregiving for adults and elders with chronic illness. Oxford University Press, New York, pp 173–211 Tribe R, Thompson K (2011) Developing guidelines on working with interpreters in mental health: opening up an international dialogue. Int J Cult Ment Health 4(2):81–90. https://doi.org/ 10.1080/17542863.2010.503365 Välimäki M et al. (2014) Virtual reality for treatment compliance for people with serious mental illness. Cochrane Database Syst Rev 10:CD009928. https://doi.org/10.1002/14651858. CD009928.pub2 Wakefield JC (2016) Diagnostic issues and controversies in DSM-5: return of the false positives problem. Annu Rev Clin Psychol 12:105–132. https://doi.org/10.1146/annurev-clinpsy032814-112800 Wakefield JC, First MB (2013) Clarifying the boundary between normality and disorder: a fundamental conceptual challenge for psychiatry. Can J Psychiatr 58(11):603–605 Walker ER, Cummings JR, Hockenberry JM, Druss BG (2015) Insurance status, use of mental health services, and unmet need for mental health care in the United States. Psychiatr Serv 66(6):578–584. https://doi.org/10.1176/appi.ps.201400248 World Health Organization (2018) ICD-11 international classification of diseases for mortality and morbidity statistics (eleventh revision). WHO, Geneva Wyder M, Bland R (2014) The recovery framework as a way of understanding families’ responses to mental illness: balancing different needs and recovery journeys. Aust Soc Work 67(2):179–196. https://doi.org/10.1080/0312407x.2013.875580
Index
A ABCX theory, 526 Abuse of power, 32 Acceptance and commitment therapy (ACT), 57, 313, 315, 318 etiology of mental illness, 58 implications for social work, 60–61 interventions, 59–60 mental well-being, 59 theoretical premises, 58 Accreditation system, 426 Act on the Improvement of Mental Health and the Support for Welfare Services for Mental Patients, see Mental Health Welfare Act Acupressure, 143 Adolescents, 527 Adulthood, 337 Advance directives, 508 Advance statements, 511 Adverse child experiences (ACE), 526 Adverse social contexts, childhood adversity, 168 Advocacy, 511–512, 548 Advocate for clients, 105 Advocating, 542 Agency, 114 2030 Agenda for Sustainable Development, 110, 121 Alcohol and drug use, 334, 336 excessive use of, 332 mental health and, 334 older people, 338 Alcohol outlet density, 240, 247–251 alcohol availability, 247 child maltreatment, 248–249 intimate partner violence, 247–248 parental substance use, 248
place managers, 249 socially disorganized neighborhoods, 249 violent crimes, 249–251 Anti-psychiatry critiques, 344 Anti-stigma, 229, 230, 232 Anxiety, 79–80 See also Mental disorders Artistic, creative and embodied methods, 369 ASK cultural competency instrument, 99–100 Assertive Community Linkage (ACL), 452 Assertive Community Treatment (ACT), 80, 529 See also Case management Assessment, 386–387 Association for Behavioral and Cognitive Therapies, 83 Association for Behavior Analysis International (ABAI), 83 Attachment focused family therapy, 292 Australian Association of Social Workers (AASW), 221 Australian mental health services, 153 Australian National Mental Health Strategy, 229 B Baseline, 78 Beck, A.T., see Cognitive-behavioral therapy (CBT) Behavior assessment, 78 definition, 68 interventions, 57 theory, 55 Behaviorism, 70, 403 as philosophy of science, 69 Beliefs, 55 Biological factors, 168
© Springer Nature Singapore Pte Ltd. 2020 R. Ow, A. W. C. Poon (eds.), Mental Health and Social Work, Social Work, https://doi.org/10.1007/978-981-13-6975-9
555
556 Biological, psychological and social factors, 376 Biomedical model, 361 complicated grief, 363–364 depressive disorders, 363 post-traumatic stress disorder, 362–363 Biopsychosocial approach, 111, 542, 548 Biopsychosocial model, 163–164 Bio-psycho-social-spiritual approach, 12 Bio-psycho-social-spiritual framework (BPSS), 251 Board Certified Behavior Analyst (BCBA), 83 Body-mind-spirit, 545 intervention, 324 Body-mind-spirit (BMS) model characteristics, 131 and innate healing, 134 interventions, 141–142 and Qigong, 144–145 transformation, 134 Brain-disease model, 161–163 Breathing meditation practice, 144 Brief interventions, 342 Burden definition, 202 objective, 202–203 subjective, 203–204 See also Caregiving Burnout, 302 C Café JoEumHaRu, 435 Capabilities, 112, 114, 118, 119 Care and control dimensions, 501 Caregiving, 211 burden, 202, 204, 206 needs of, 206 positive effects, 204–205 responsibilities, 203 role, 201 Case management, 547 Categorical approaches to diagnosis, 154 Childhood exposure to violence, 287–288 Child maltreatment, 248–249, 284, 288 Child-parent psychotherapy (CPP), 292 Children, 524 Children of parents with mental illness, 467, 469 See also Parents with serious mental illness Child traumatic stress, 285 Christo inventory for substance-misuse services (CISS), 342
Index Chronic conditions, 132 Chronosystem, 89 Civic engagement, 243–246 adverse childhood events, 246 early young adulthood, 244 electoral participation, 243 informal social connectedness, 245 mental well-being, 244 neighborhood collective efficacy, 246 political and non-political activities, 243 political participation, 246 social connectedness, 246 volunteerism, 244–245 Clinical practice, 100, 104 Code of ethics, 29–31, 38, 39 Coercion, 35, 499, 505 Cognition, 55 function, 522, 523 models, 8 restructuring, 56 Cognitive behavioral approach, 179, 180 Cognitive-behavioral therapy (CBT), 55, 179, 291 behavioral theory, 55 cognitive theory, 55–57 Cognitive theory basic premise, 55 etiology of mental illness, 56 implications for social work, 57 interventions, 56–57 mental well-being, 56 Collaboration/cooperation model, 483 Colonial oppression, 267 Colonization impact, 262–263 Common mental disorders, 520, 522 See also Mental disorders Community definition, 240 development, 377 mental health services, South Korea (see South Korea, community mental health) mental health team, South Korea (see South Korea, community mental health) mental health welfare centers, 419, 420, 422 participation, 246 resilience, 384, 386 Community and mental health, 223 recovery (see Recovery, in mental health) Community-based psychosocial concepts and frameworks psychosocial capacity building model, 387–388
Index psychosocial needs assessment, 386–387 resilience, 383–386 SICHUAN model, 388 Community treatment orders (CTOs), 499, 505, 509–511 Compassion, 37 fatigue, 301 Competence, 38–39, 103 Competitive employment, 529 Complementary and alternative medicine (CAM), 130 and self-management, 133–134 Complex trauma, 285, 286 Complicated grief, 363–364 Comprehensive assessments, 92 Conditioning, 71 See also Behaviorism Conflict, 357 Connected/connectedness, 224–225 Consumer advocacy, 222 Contextual approach, 29 Contextualizing mental health, 378 Coping with Depression course, 82 Co-produced research, 507 Cost-effectiveness, 132, 146 Crisis event, 96 Critical appraisal of recovery, 26 Culturagram, 96 Culture, 94, 95 approach, 273 awareness tool, 370 brokers, 365 competency, 100 expertise, 371 in mental health, 545–546 shape of resilience, 364 Culturally safe and responsive services, 364 Cultural shape of mental health and illness physical pain, 364–365 social pain, 365–366 spiritual pain, 365 Cycle of social changes, 89 Cyclical approach, 100
D Darghas, 486 See also Temples Debt, 522, 527–528 Declaration of Caracas, 117 Deep sleep therapy, 32 Defense mechanisms, 49, 50
557 Deferred action for childhood arrivals (DACA), 95 Degradation of psychiatric treatment, 428 Deinstitutionalization, 263, 417, 418, 421 Dependent children, 459 Depression, 81–82, 93, 521 See also Mental disorders Depressive disorders, 363 See also Mental disorders Detoxification, 343 Developmental agenda, 112 Developmental approach, 111, 114, 115, 119, 120 Developmental social work, 120 Diagnosis of psychosis, 358 See also Mental disorders Diagnostic and Statistical Manual of Mental Disorders (DSM), see Mental disorders Dialectical behavior theory (DBT), 57, 313, 317, 318 etiology of mental illness, 58 implications for social work, 60–61 interventions, 59–60 mental well-being, 59 theoretical premises, 58 Disasters human-made, 376 natural (see Natural disaster) Discrimination, 221, 223, 227, 228, 230, 233 Displaced people, 356 Distress, 203, 204 Diverse culture, 355 Dopamine theory, 6 Dual competency, 276 Dual diagnosis, 334 E Eating disorder, 57 See also Mental disorders Ecological models, 13 Ecological-systemic framework, 239 chronosystem, 239 exosystem, 239 macrosystem, 239 mesosystem, 239 microsystem, 239 Ecomaps, 92, 98 Economic and social development, 115 Economic justice, 105 Education, 464, 468 Efficiency and accessibility, of mental health services, 427
558 Ego, see Psychodynamic theory Ellis, A., see Cognitive-behavioral therapy (CBT) Emancipatory values, 512 Emergencies, 376, 377, 379, 381, 383, 386 Emotion(s), 268 Emotional healing, body processes and, 134–135 Empathy, 51, 54 Employment, 359, 464, 521–522 Empowerment, 226, 505, 506, 512 approach, 433 basic principles of, 227 Hearing Voices Network, 232–233 Our Consumer Place, 231–232 Engagement phase, 264 Environmental characteristics, 92 Environmental factors, 113 Epi-genetics, 152 Epistemic injustice, 37 Equality, 115 Ethical dilemmas coercion, 35 compassion, 37 competencies, 38–39 discretion, 39 discrimination and bias, 36 empowerment, 38 inclusion, 37–38 lived experience, 36–37 power, culture and reflective practice, 39–40 risk, 35–36 Ethics, 24 considerations, 382–383 contextual approach, 29 decision making methods, 28 interpersonal approach, 29 practice, 24, 29, 31, 39 rational approach, 29 reasoning, 28 recovery and mental health system, 27–28 Eugenics, 32 Evidence, 543, 546, 551 Evidence-based practice and standards, 39 Evidence-based trauma-specific treatments with children and youth, 290–292 Evidence-informed and practice-informed trauma-specific treatments, 292–294 Exclusion, 37, 111, 115 Expressed emotions, 205 Expressive therapy, 293 Eye movement desensitization and reprocessing (EMDR), 292
Index F Faith healers, 478, 481–482 goals, 481 incorporation model, 483 inhuman treatment practices, 486 Family-focused approach, 467–469 Family functioning, 525 Family inclusive practice, 469 Family interventions, 205 barriers in provision of, 210–213 elements and forms of, 206–208 as evidence-based practice, 208–210 functions, 209–210 lack of cultural-sensitive models, 212–213 structural barriers to, 211–212 Family investment model, 525 Family members, 344 Family resilience, 384 Family session, 94 Family stress model, 525 Federal Emergency Management Agency (FEMA), 378 Financial challenges, 518, 527 Financial counseling, 527–528 Five Elements Theory, 141 See also Yin-Yang theory Four core ethical principles, see Ethics Freedoms, 118 Freud, F., see Psychodynamic theory Freudianism, 403 Functioning, 114, 202, 205, 206
G Gender inequalities, 91 Gene-environment interactions, 152 Generalized anxiety disorder, 520 See also Mental disorders Generic parenting programs, 468 Genetic research, 169 Geographical regions, 103 Global Agenda for Social Work and Social Development, 110 Green social work, 90 Green spaces, 240–243 green care farm, 251 natural environment, 242, 243 nursing homes, 243 Group cognitive behavioral therapies, see Cognitive-behavioral therapy (CBT) Group intervention, 368, 408–412 See also Support group
Index H Harm reduction services, 343 Hayes, S.C., 48, 55, 58–61 Health, 367, 459, 460 Health services, Māori, see Māori Hearing Voices Network, 232–233 Holistic, 366 approach, 545, 551 interventions, 531 well-being, social work intervention, 137–139 Homelessness, 360 Hong Kong, 144–145 Hope, 225, 368 Hospitalization involuntary, 428, 429 length of, 432 long-term, 421, 422, 432 Housing, 461, 465 Human(s), 408 behavior problems, 399 development, 110, 111 dignity, 429, 432, 436 freedom, 114 Humanistic theory, 52 basic premise, 52–53 etiology of mental illness, 53 implications for social work, 54 interventions, 54 mental well-being, 53–54 Humanitarian workers, 378, 385, 387 Human-made disaster, 376 Human rights, 33, 115, 117, 121, 429–430, 432, 433, 498, 500, 502, 511 conventions, 116 HRP, 433–434 human rights-based practice environment, 432 mandatory education on, 432 protection of, 432 violation, 428 Human rights-based approach, 114–118 Human rights program (HRP), 433–434 I Ibn Kathir, T., 397 Imitation, 75 Immigration detention, 359 Immigration status, 98 Implementation fidelity, 300 Implications for Social Work Practice, 156 See also Social Work
559 Inclusiveness, 369 Incorporated Korea Family Association For The Mentally Disordered, 426 Incorporation model, 483 Individual-focused psychological intervention, 385 Individual-focused treatment models, 211 Individualistic clinical intervention, 385 Inequality, 111 Institutional constructs/barriers, 528 Inter-Agency Standing Committee (IASC), 376, 377, 386 Interconnected relationships, 333 Intergenerational social disadvantage, 461 International Classification of Disease (ICD), see Mental disorders International Federation of Social Work (IFSW) Statement of Ethical Principles, 406 Interpersonal approach, 29 Interpersonal ethical value, 30 Interpersonal relationship, 96 Intervention, 410 Involuntary admission rate, 432 Involuntary hospitalization, 428, 429 Involuntary orders, 501, 504, 508 Involvement, 388 Islamic perspective, 396 mental health in, 400–401 social work in, 401–412 Islamization of knowledge, 401 Isolation, 206, 467 J Job conditions, 521 Job strain model, 522 Justice, 115 Juvenile justice systems, 290 L Language and keywords shape, 332 Language barriers, 358 Leaving no one behind, 110, 114 Legal capacity, 115, 500 Legislation, 117 Length of hospitalization, 432 Licensed clinical social workers, 57 Life story work, 293 Life stressors, 92 Lifestyle, 145 Linehan, M.M., see Dialectical behavior theory (DBT)
560 Listening, 26 Lived experiences economic, social and political factors, 359–361 language barriers, 358 post-migration, 357–361 pre-migration, 356–357 racism and discrimination, 358–359 transforming, 370–371 Loss of custody, 466 M Macro context, 271 Macrosystem, 89 Madrid Declaration, 117 Major depressive symptoms, 520 See also Depression Mandatory education on human rights, 432 Māori, 261 belief systems, 261 ‘dis-ease’, 267 health services for, 263–264 pre-colonial, 260 social work, 264–265 spirituality, 261 symptoms of mental ill health, 265–267 workforce development, 264 worldview, 261 Marginalized populations, 316–319 Maslow, A.H., 52, 53, 55 Mauri, 265 Meaning in life, 225–226 Media constructions, 358 Medical-legal partnerships (MLPs), 123 Medical model, 156, 162 Medicine, 313, 315 Meditation, 313, 314, 317, 319, 321, 324 Meihana model, 271, 272 Mental disorders categorical and dimensional approaches to diagnosis, 154–155 critiques of diagnostic systems, 155–157 diagnosis as aid to clinical communication, 161 diagnosis as guide to treatment and service access, 160–161 DSM, 153 ICD, 153 prevalence, 238 provision of diagnosis to consumers and families, 157–159 Mental health, 130, 145, 203, 211, 528–530
Index biological aspects of, 178 body-mind-spirit, 545 case management service, 180 (see also Case management) challenges, 179 challenges of working in multidisciplinary teams, 547–548 cognitive behaviour approaches in, 186–189 (see also Community) cultural factors in practice, 545–546 definition, 4, 238, 398 determinants, 239–240 families and carers of people with illness, 546–547 (see also Caregiving) in Islamic perspective, 400–401 issues and implications for social work, 13–17 legislation, 498, 501, 509 literacy, 419 in medicine, 407–408 natural disaster, psychosocial work in (see Natural disaster) problems, 178 professionals, 421, 426, 428, 431, 436 professions, 419, 423, 426–427 psychiatric diagnosis, 549 psychodynamic approach in, 180 psychodynamic notions of, 182–183 rehabilitation facilities, 420, 429 and religious beliefs, 398–400 services, 117 spiritual approach, 9–10 structural factors, 10–12 structural factors outside, 548 technology in, 550–551 workers, 224, 225, 229, 232 Mental health and psychosocial support (MHPSS), 377, 383, 386, 388 Mental health and social work, and mindfulness, see Mindfulness Mental health service delivery system, South Korea, see South Korea, community mental health Mental Health Welfare Act, 429 community mental health, 430 government initiatives, 430–431 human rights, 429–430 mental health professionals, 431 social welfare services, 431 Mental illness, 202, 520 family interventions (see Family interventions) impact on families and carers, 202–205
Index objective burden, 202–203 positive impacts, 204–205 subjective burden, 203–204 Mental medical institutions, 420, 429 Mental well-being, 53 Mesosystem, 89 Micro, mezzo, and macro levels, 377 Micro-macro practice, 112, 120 Microsystem, 89 Micro to macro practices, 105 Migrants, see Refugees Mind and spirit power, 135–136 Mind-body-spirit model, 141 Mindfulness, 315 definitions and assessments, 313–314 history, 312–313 interventions, 314–315 marginalized populations, 317–319 role of, 316 social work pedagogy and training, 322–324 social work practice, 319–322 Mindfulness-based cognitive therapy (MBCT), 57, 313, 314, 317, 318 etiology of mental illness, 58 implications for social work, 60–61 interventions, 59–60 mental well-being, 59 theoretical premises, 58 Mindfulness-based feminist therapy, 314 Mindfulness-based interventions in Asia, 324 MBCT, 314, 317, 318 MBRT, 314 MBSR, 314, 317, 319, 323 mindfulness-based feminist therapy, 314 Mindfulness-based stress reduction (MBSR), 313, 314, 317, 319, 323 Misdiagnosis, 265 See also Mental disorders Modeling, 75 Mood regulation, 144 Mothers, see Parents with serious mental illness Multidimensional treatment strategies, 105 Multi-disciplinary, 377 mental health teams, 543, 547–548 Muslim clients, see Islamic perspective N National Association of State Mental Health Program Directors (NASMHPD), 289 National Child Traumatic Stress Network, 289
561 National Health and Morbidity Survey, 396 National mental health plan, South Korea first 5-year plan and revision (1998–2010), 421 second 5-year national mental health plan (2011–2015), 421–423 third 5-year national mental health plan (2016–2020), 423–426 National Mental Health Promotion Plan, 418 National mental health system, 420 National Practice Standards, 229 National Suicide Prevention Strategy in Australia, 450 Natural disaster contextualizing mental health, 378 disillusionment phase, 379 ethical considerations, 382–383 heroic phase, 378 honeymoon phase, 379 impact phase, 379 inventory phase, 380 psychosocial consequences of, 380 reconstruction phase, 380 restoration phase, 379 vulnerable individuals and groups of, 380–382 warning phase, 379 Negative reinforcement, 72 Neuroscience, 5, 6 New Zealand Bill of Rights, 230 New Zealand Human Rights Commission, 230 Nine practice guidelines, 294–300 Non-Muslim client, 403
O Observational learning, 75 One-second techniques, 142–143 Operant conditioning, 72 See also Behaviorism Opportunities, 39 Optimism, 225 Our Consumer Place, 231–232
P Parenthood, 460 Parenting, 458, 524 ability, 462 difficulties, 466 programs, 468 stress, 468
562 Parents with serious mental illness community-focused approach, 469–470 consequences on children, 465–467 family-focused approach, 467–469 impact of psychiatric symptoms, 461–462 parenthood, 460 prevalence, 459–460 psychosocial challenges, 462–465 social disadvantage, 464–465 social support, 462–463 stigma, 463–464 Participation, 117 Partnerships, 112, 121–125 Paternalism, 31 Pavlovian conditioning, see Behaviorism Pedagogy and training, 322–324 Pediatric medical traumatic stress (PMTS), 290 Peer support, 506, 507 program, 434 People’s participation, 115 Personal resilience, 384 Person-in-environment, 88, 161, 164 approach, 70 perspective, 57 Pharmacologic interventions, 294 See also Medicine; Mental disorders Philosophy of science, 69 Physical environment, 271 Physical health, 270 Policy response, 346 Positive psychology, 49 implications for, 49 Positive reinforcement, 72 Post-disaster, 377, 379, 382, 384 family resilience in, 384 PCB model, 387–388 SICHUAN model, 388 strength-based approaches, 385 See also Natural disaster Posttraumatic stress disaster (PTSD), 77, 286, 362–363, 376, 381, 383, 385, 388 Poverty, 111, 461, 519, 520 relief, 88 Power and social work practice, 31–33 Practice bias, 36 mindfulness (see Mindfulness) Prayer, 6, 142, 399, 404–406, 408–411, 477, 479–484 Preconscious, 49 Prejudiced attitude, 417 Pre-modern South Korean society, see South Korea, community mental health
Index Preventative interventions, 294 Prevention, 341 Privileging lived experience, 26 Process of social worker’s involvement, 426 Professional identity, 91 Prophet Muhammad (SAW), see Islamic perspective Psychiatric formulation, 165 in mental health practice, 165–166 Psychiatric practice, 165 Psychiatric symptoms, 460–462 Psychiatric syndromes, 154 Psychocentric practice, 39 Psychodynamic approaches, 179 Psychodynamic models, 7 Psychodynamic theory, 48, 49 basic premise, 49–50 etiology of mental illness, 50 implications for social work, 51–52 interventions, 51 mental well-being, 51 Psychoeducation, 207 Psychological first aid (PFA), 383 Psychology, 313, 315, 324, 403 problems, 376, 381, 407 wellbeing, 396, 399, 523 Psychosexual stages, 50 Psychosocial capacity building (PCB) model, 387–388 Psychosocial interventions, 368 Psychosocial needs assessment, 386–387 Public mental health approach, 114 Public stigma, see Stigma Punishment, 72 Q Qigong, 144 practice, 131 and Yoga, 143 Qualitative and quantitative approach, 387 Quality of life, 201, 204, 458, 463, 465, 467, 544, 550 R Reciprocal determinism, 90 Recovery, 24, 111, 118, 120–122, 125, 206, 356, 461, 467, 469, 470, 543–544 agendas, 345 concepts, 25 critical appraisal of, 26 definition, 436
Index ethical obligation, 27 ethics and mental health system, 27–28 model, 436 orientated provision, 345–346 orientations, 339 oriented practice and principles, 25 paradigm, 433, 436 SRC (see Seocho Recovery Centre (SRC) as values-set, 25–27 Recovery-based practice, 436 Recovery, in mental health, 223–224 connectedness, 224–225 empowerment (see Empowerment) hope and optimism, 225 identity, 225 meaning in life, 226 Recovery-oriented approach, 118 Refugees, 355 biomedical model, 361–364 cultural shape of mental health and illness, 364–366 hope, optimism and resilience, 361 lived experience post-migration, 357–361 lived experience pre-migration, 357–361 social work practice, 366–370 Rehabilitation, 337, 343 Reinforcement, 73 Relationship building, 178 Relationships in multicultural communities, 360 Religious beliefs, 398–400 Religious healing methods for mental illness, India collaboration between faith based institutions and mental health institutions, 482–484 empirical evidence and mechanisms, 484–486 faith healing, 477–479 mediators of God, 481–482 religious institutions in mental health care, 479–481 social workers and networking, 486–489 Religious institutions centers of short and long term care, 487–488 funding agencies, 488–489 sources of resource, 487 Research, 123 Resettlement, 370 Resilience, 361, 376, 377, 379, 383, 385, 387, 388 community, 384, 386 definition, 383
563 family, 384 personal, 384 Respectful, 370 Respondent extinction, 71 Respondent learning theory, 70 Risk and resilience theory, 9 Risk assessment, 505 Risk factors, 286, 360 Risk management, 504–506 Rogers, C.R., see Unconditional positive regard Rule-governed behavior (RGB), 74
S Sakinah, see Islamic perspective Schizophrenia, 80–81 See also Mental disorders Seclusion and restraint, 289 Secondary traumatic stress, 100, 301 Second disaster, 379 Segal, Z.V., see Mindfulness-based cognitive therapy (MBCT) Self-actualization, see Theory of human motivation Self-care, 90, 100, 106, 301, 302, 460 Self-healing, 136 Self-management and healing, 132–133 skills, 145 Self-stigma, 228, 229 Self-support services, 419, 426 Seocho Recovery Centre (SRC), 432–433 Café JoEumHaRu, 435 HRP, 433–434 Peer Support program, 434 social co-op MOA, 434–435 WSM, 434 Service user-centered, 424 Service utilization, 355 Sexual abuse, 272 Shame, 220, 226–228, 233, 366 Shaping, 73 SICHUAN model, 388 Smart principle, 141 Social and economic inclusion, 113, 119 Social causation, 521 Social cognitive, 105 Social connectedness, 242–246, 252 Social consequences, 221, 222, 225, 227, 233 Social context, 221, 227, 233 Social co-op MOA, 434–435
564 Social-cultural awareness, 92 Social-cultural ecological (SCE) perspective culturagrams and ecomaps, 95–99 description, 89–91 in mental health services, 100–105 in social work practice, 92 Social drift theory, 521 Social exclusion, 113 Social factors in mental health, 166, 168 Social inclusion, 112 Social investment approach, 119 Social isolation, 463 Social justice, 93, 221–223, 227 Social pressure and reasoning, 94 Social science, 17 Social selection, 520, 521 Social support, 463 Social work, 9, 253, 506 accreditation, 181 assessment tools, 370 cognitive behavioral therapy, 188 competencies, 181 contemporary, 184 contextualized nature, 183 green and global, 90 to integrate, 137 intervention, 137, 178, 251–253 mental health, 180 and mental health, mindfulness (see Mindfulness) pioneers, 179 practice, 88, 99, 100 processes, 89 psychodynamic theory and, 183 psychological equilibrium, 182 theories, 18, 401 values, 506 Social work, in mental health, 220 empowerment, 231–233 recovery (see Recovery, in mental health) social consequences, 221 social context, 221 social justice, 221 stigma, shame and discrimination, 227–231 Social workers, 376, 385, 388, 389 Social work practice, 92 ethical dilemmas and codes of ethics, 29–31 and power, 31–33 power dynamics in, 33 Socio-economic factors, 111, 113 Somatic trauma therapy (STT), 292 South Korea, community mental health
Index collaboration among stakeholders, 428 community mental health welfare centers, 420 efficiency and accessibility, of mental health services, 427 first 5-year plan and revision (1998–2010), 421 lack of integration, 428 Mental Health Act, 428–432, 435 mental health rehabilitation facilities, 420 mental medical institutions, 420 prejudiced attitude, 417 pre-modern South Korean society, 417 professions and social workers, 426–427 redundancy in services, 428 second 5-year national mental health plan (2011–2015), 421–423 SRC, 432–435 third 5-year national mental health plan (2016–2020), 423–426 utilization rate, of mental health services, 419 Spirit power, 135–136 Spiritual dimension, 396 Spiritual element, 269 Spirituality, 545 and new appreciation of life, 136 STARS Screening Tool for Assessing Risk of Suicide, 448 Stigma, 231, 360, 417, 419–421, 426, 428, 436, 463–464 challenge, 230 definition, 227 and discrimination, 228, 230 impact of, 228 and oppression, 229 public, 228, 229 self-stigma, 228, 229 Strategies and interventions, 125 Strengths, 378, 381, 384, 385 based considerations, 344 Strengths-based theory, 100 Stress, 205 Stress Management and Resilience Training (SMART), 315 Structural injustices, 111, 112 Subjective beliefs, 477 Substance abuse subtle screening inventory (SASSI), 342 Substance use disorder, 335 focused interventions, 341
Index screening tools, 342 Suicidality dealing with, 443–444 fluctuating nature of, 448 social workers relying on, 444–445 Suicide behavior, 362 intervention, 441, 443, 444 prevalence, 440 prevention, 441 research, 445, 449 social work, relevance of, 441–442 wider effects of, 441 Suicide prevention, 440 development and implementation, 443 efficacy of, 446 paucity of, 445 social workers role in, 443 social work intervention in, 451–453 social work practice in, 450–451 strategies, 440, 443 system-wide approach to, 453 training in, 443 Suicide risk, 447–449 assessment of, 448–449 Superego, see Psychodynamic theory Supervision, 302 Supported decision making, 503, 507–509 Supported employment (SE), 528 See also Employment Support group, 467, 468 Survivors, 376, 383, 385, 388 Sustainability, 100 Sustainable development, 111 Systemic approach, 542, 547 barriers, mental health, 358 T Temples and Dargahs, 480 Gunaseelam, 484 healing, 479 Mahanubhav, 480 Temporary protection visas, 359 Testimonial injustice, 37 Te Whare Tapa Whā, 267–269 See also Māori The Etymology Mental Hygiene, 397 The Human Development Report, 111 Theoretical frameworks for social work practice, 367
565 Theory of human motivation, 52, 53 Therapeutic alliance clients to feel safe, 179 concept of, 179 definition, 179 interest in, 178 strength of, 189 Therapeutic questions, 93 Tohunga Suppression Act, 262 Token economies, 80 Toxic stress, 287, 526 Traditional Chinese medicine (TCM), 131, 139–140 Trance, 480 Transformation, 135 See also Smart principle Transforming the foreign, 370 Trauma, 285, 365, 526 Trauma-focused cognitive behavioral therapy (TF-CBT), 291 Trauma informed guides or models for education systems, 290 pediatric health care, 290 practices and policies for homeless, 290 social work practice, 285 systems, 285, 300–301 Trauma-informed care (TIC), 288 Trauma informed-child welfare (CW) practices, 289 Trauma-specific interventions, 285 Traumatic stress, 285 Traumatization, 355 Tribal suffering, 267 U Unconditional positive regard, 52–55 Unconscious, 49, 50 Unemployment, see Employment UN General Assembly Resolutions, 116 Utilization rate of mental health services, 419 V Values, 24, 360, 369–370 Vicarious trauma, see Self-care Vipassana meditation, 318 See also Meditation Virtues, 39 Vulnerability, 113 Vulnerable populations, 377
566 W Well-being, framework of understanding, 339 Wellness Self-Management (WSM), 434 Western Area Suicide Prevention Strategy (WASPS), 450 Western model, 399 Whakamā, see Māori Whānau (extended family), 261, 268 Whole–body-mind-spirit interconnectedness, see Body-mind-spirit (BMS) model
Index Whole-family oriented services, 468–469 See also Family interventions World Health Organization, 130, 376, 398
Y Yin-Yang logo, 140 Yin-Yang theory, 140